The Bloodline with Blood Cancer United Podcast

Merissa Pemberton Join Alicia and Lizette as they speak with a young adult and Stage II Hodgkin lymphoma survivor, Merissa Pemberton. Having just finished her master’s degree, started her first full-time job, and moved into her first apartment on her own, Merissa believed life was finally settling down. After receiving an alarming call while on vacation, Merissa shares how her boyfriend (now husband), Jake, served as a tremendous pillar of strength during one of the most challenging times of her life. She explains how Jake, who was also in medical school, helped to remind her of her beauty, the fighter she truly is and ensured her that cancer would not ruin their relationship. They decided to navigate this cancer journey together, celebrating ‘the little things’. Listen in as Merissa shares how having a relationship where both people know when and how to be each other’s support system is crucial, as well as noticing when the other person may feel bombarded. Merissa now volunteers for The Leukemia & Lymphoma Society and is an active member in Pittsburgh’s Young Adult Cancer Support Group, known as YACS. CLICK HERE to participate in our episode survey. Mentioned on this episode: Non-Hodgkin lymphoma Young adults resources Pittsburgh’s Young Adult Cancer Support Group Relationships Communicating With Your Partner Suggestions for Coping With Cancer and Intimacy Additional LLS support resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Dating with a Diagnosis: Merissa’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Ann LaCasce, MD Join Alicia and Lizette from The Leukemia and Lymphoma Society as they speak with Dr. Ann LaCasce, Program Director of the Dana-Farber/ Partners CancerCare Fellowship, the largest hematology/oncology training program in the country. On this episode, Dr. LaCasce explains the difference between chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL), CLL and its connection with Agent Orange exposure, resources available for Veterans, current and emerging therapies, clinical trials and the importance of medication adherence. Dr. LaCasce shares her excitement for what is to come for CLL treatment and her appreciation for fellow providers around the world, who work to move science forward as they continue to learn from each other.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. You can listen to our other episode with Dr. LaCasce about CLL here. Support for this episode provided by Pharmacyclics.The post CLL: Risk Factors, Resources and Research first appeared on The Bloodline with Blood Cancer United Podcast.

Racquel Innis-Shelton, MD Join Alicia and Shona from The Leukemia and Lymphoma Society as they speak with Dr. Racquel Innis-Shelton, Associate Professor of Medicine and Director of the University of Alabama Multiple Myeloma Clinic at the University of Alabama. This episode is the first of five that will be part of ‘Removing Mystery from Myeloma‘  series. On this episode, Dr. Innis-Shelton explains the difference between myeloma and multiple myeloma, risk factors that can affect someone’s chance of getting myeloma, signs and symptoms of myeloma, diagnosis and current and emerging treatments. Dr. Innis-Shelton also expounds on why it seems that myeloma seemingly takes longer to diagnosis and the role of ‘monoclonal gammopathy of unspecified significance’ (MGUS) within a myeloma patient. Dr. Innis-Shelton shares her concern for the low awareness of myeloma within the African-American population, especially with myeloma being the most common hematologic malignancy in African-Americans with twice the incidence of Caucasians. She strives to educate all patients about their myeloma diagnosis and stresses the importance of community and support along one’s cancer journey. Be sure to look out for our other 4 episodes from this series in the upcoming months! CLICK HERE to participate in our episode survey. Mentioned on this episode: Myeloma Myeloma Link initiative LLS Community Online Chats Patti Robinson Kaufmann First Connection Program Myeloma booklets Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Caregiver support Support groups A Medication Resource for Myeloma Patients Support for this episode provided by Amgen and Takeda.    The post Removing Mystery from Myeloma: Diagnosis & Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Ann LaCasce, MD Listen in as Alicia and Lizette chat with Dr. Ann LaCasce, a Program Director of the Dana-Farber/ Partners CancerCare Fellowship, the largest hematology/oncology training program in the country. While studying pre-med, Dr. LaCasce took additional classes that piqued her interest in art history. After managing an art gallery in New York for five years and returning to medical school, she found that being visually oriented allowed her to approach hematology with creativity while caring for her patients. Join in as Dr. LaCasce discusses diagnosis and treatment of chronic lymphocytic leukemia (CLL), small cell lymphocytic lymphoma (SLL), the importance of patients feeling comfortable with their healthcare team and why she prefers the term ‘active surveillance’ over ‘watch and wait’ when monitoring a patient’s disease. You can listen to our other episode with Dr. LaCasce about CLL here. CLICK HERE to participate in our episode survey. Mentioned on this episode: CLL CLL booklet (that discusses SLL) LLS’s new CLL chat Watch and wait Free nutrition consultation Communicating with your healthcare team ‘Cancer-related fatigue’ publication CRF podcast episode Drug listings LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Support for this episode provided by Pharmacyclics.The post Understanding a CLL Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Robert Chen, MD Join Alicia and Lizette as they speak with Dr. Robert Chen about the treatment of mantle cell lymphoma (MCL). Dr. Chen is a hematologist/oncologist at City of Hope in Duarte, California. On this episode, Dr. Chen explains the different variables taken into consideration when choosing the proper treatment for a MCL patient. He also discusses induction chemotherapy, CAR T-cell therapy, and stem cell transplantation, explaining that although allogeneic transplant is potentially curative, it’s important to understand why it should be approached with caution. You can listen to our other episode with Dr. Chen about mantle cell lymphoma here. CLICK HERE to participate in our episode survey.  Mentioned on this episode: Mantle cell lymphoma Stem cell transplant Drug therapies CAR T-cell therapy Clinical trials Additional LLS support resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Support for this episode provided by AstraZeneca.The post Treating Mantle Cell Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Marni Amsellem, PhD November is Caregiver Awareness Month! On behalf of The Leukemia & Lymphoma Society, we’d like to thank caregivers for their kindness in caring for their loved ones. Your dedication does not go unnoticed. On this episode, Alicia and Lizette speak with Dr. Marni Amsellem, a clinical psychologist who specializes in working with patients and caregivers who are adjusting to cancer and other health-related challenges, and looking to build their coping skills and resilience. Listen in as Alicia, Lizette and Dr. Amsellem speak about many caregiving topics including long-distance caregiving, emotional concerns, mental health, work-related issues, the importance of delegating tasks and more. All month long, we’re encouraging patients and families to recognize the special caregivers in their lives. Simply share a photo of you with your caregiver on Facebook, Twitter or Instagram with #LLScaregiver for a chance to win a caregiver swag bag. CLICK HERE to participate in our episode survey. Mentioned on this episode: Caregiver Awareness Month Caregiver Resources Caregiver Videos www.smarthealthpsych.com Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program The post Coping as a Caregiver first appeared on The Bloodline with Blood Cancer United Podcast.

Robert Chen, MD With over 60 types of lymphomas, a lymphoma diagnosis can be very confusing.  Listen in as Alicia and Lizette speak with hematologist/oncologist Dr. Robert Chen from City of Hope in Duarte, California about mantle cell lymphoma (MCL). On this episode, they discuss how MCL is diagnosed, indolent vs aggressive lymphomas, and the importance of knowing what to research before attempting to learn about a diagnosis on your own. Dr. Chen also talks about how difficult it was to diagnosis MCL in the past but due to strides made in its molecular path, there has been significant progress in extending survival and improving therapy. You can listen to our other episode with Dr. Chen about mantle cell lymphoma here. CLICK HERE to participate in our episode survey. Mentioned on this episode: Mantle cell lymphoma Lymphoma Lab and imaging tests Non-Hodgkin lymphoma Indolent and aggressive lymphomas LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Support for this episode provided by AstraZeneca.The post Mantle Cell Lymphoma: Indolent vs Aggressive first appeared on The Bloodline with Blood Cancer United Podcast.

Julie Larson Emotions are complex. We all can agree on that. On this episode, Alicia and Lizette speak with Julie Larson, a licensed clinical social worker who has spent her career working in oncology supportive care. Julie speaks about topics that arise within her own private practice with patients and caregivers. She addresses the fear of missing out (FOMO) and ways in which our emotions serve a very important purpose as one journeys through life with a diagnosis. She thoughtfully discusses the importance of appreciating now, the shock of a diagnosis, and redefining ‘control’ within each person’s life. CLICK HERE to participate in our episode survey. Mentioned on this episode: Anxiety The Artist’s Way Coping Magazine Cure Self Magazine Crazy, Sexy Cancer Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program    The post All Emotions Serve a Purpose first appeared on The Bloodline with Blood Cancer United Podcast.

Marni Amsellem, PhD Hearing the words, “you have cancer” rattles your core, regardless of who you are. On this episode, Alicia and Lizette speak with Dr. Marni Amsellem, a clinical psychologist who specializes in working with patients and caregivers who are adjusting to cancer and other health-related challenges and seeking to build their coping skills and resilience. Dr. Amsellem speaks about issues that are experienced by both newly diagnosed patients and patients who are further along in their survivorship. She addresses the individual differences regarding the way in which people seek information about their diagnosis, the rate of depression and anxiety amongst people with cancer and the importance of discussing mental and emotional health with one’s treatment team. Dr. Amsellem also touches on the cost of therapy and ways in which it could actually be more affordable than people realize. CLICK HERE to participate in our episode survey. Mentioned on this episode: www.smarthealthpsych.com Anxiety and depression Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program The post Cancer and Mental Health first appeared on The Bloodline with Blood Cancer United Podcast.

Young adult cancer survivors have unique needs, different from pediatric and adult patients. Live on June 21, 2018, the first ever Young Adult Cancer Action Day, listen in as Guest Speaker Shona Lovie, from The Leukemia & Lymphoma Society, speaks with Kate Houghton, President and CEO of Critical Mass of The Young Adult Cancer Alliance, and Sarah Milberg, Senior Manager of Federal Affairs at The Leukemia & Lymphoma Society’s Office of Public Policy in Washington, DC. June 21st is a special day because it marks the introduction of the first young adult cancer bill by Congress, HR2976, the Deferment for Active Cancer Treatment Act. This bill calls for federal student loan borrowers to be eligible for deferment while they are receiving treatment for cancer. On this episode, they discuss the importance of advocacy, who can be an advocate, the needs of young adult cancer survivors, and the work both organizations are doing to ensure that young adults not only have a voice, but an impact on issues pertaining to young adult cancer survivorship. CLICK HERE to participate in our episode survey. Mentioned on this episode: LLS LLS Beat AML Master Trial Critical Mass The Samfund HR 2976, the Deferment for Active Cancer Treatment Act LLS Advocacy Teens and Young Adults Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Young Adult Cancer Action Day: Advocating for Young Adult Survivors first appeared on The Bloodline with Blood Cancer United Podcast.

Most people are aware of common side effects of cancer treatment such as nausea and hair loss. However, most people who undergo cancer treatment develop complications that affect the mouth. Listen in as Alicia and Lizette speak with Dentist Dr. Nevin Waters, who founded his own practice in 1975 with the goal of treating each patient as he would have a family member.  He is an active member of the American Dental Association and founder and board member of the Kansas Foundation of Dentistry for the Handicapped.  Dr. Waters speaks about his experience as a dentist, his diagnosis of chronic myelomonocytic leukemia (CMML), the importance of dental hygiene and how cancer treatments can affect an individual’s dental and oral health. CLICK HERE to participate in our episode survey. As mentioned on this episode: Chronic myelomonocytic leukemia ‘Chronic Myelomonocytic Leukemia and Juvenile Myelomonocytic Leukemia’ Fact Sheet ‘Dental and Oral Complications of Cancer Treatment’ Fact Sheet Dental Lifeline Network National Foundation of Dentistry for the Handicapped UMKC School of Dentistry Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Dental Awareness within Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

Joseph Antin, MD Many may be familiar with graft versus host disease (GVHD) however, veno-occlusive disease (VOD), otherwise known as sinusoidal obstruction syndrome (SOS), is also one of the most frequently encountered complications after stem cell transplantation. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Joseph Antin, Chief of the Stem Cell Transplant Program of the Department of Medical Oncology at Dana Farber Cancer Institute and Brigham and Women’s Hospital in Boston, Massachusetts. On this episode they will discuss the difference between a bone marrow and stem cell transplant, treating VOD, autologous and allogeneic transplants, how doctors choose the cell source collected from the blood or the marrow that is best for the patient, VOD as it presents in pediatric and adult patients and interesting findings about herbal tea induced hepatic veno-occlusive disease. CLICK HERE to participate in our episode survey. As mentioned on this episode: Veno-occlusive Disease (VOD) Stem Cell Transplants Autologous Stem Cell Transplantation Allogeneic Stem Cell Transplantation Graft Versus Host Disease (GVHD) Blood and Marrow Stem Cell Transplantation Booklet Cord Blood Stem Cell Transplantation Fact Sheet Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this program provided by Jazz Pharmaceuticals.The post Transplant & Veno-Occlusive Disease (VOD) first appeared on The Bloodline with Blood Cancer United Podcast.

Elizabeth Harvey, PhD Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with psycho-oncologist, Elizabeth Harvey. Elizabeth works with and supports cancer patients, their families and caregivers throughout their cancer journey. Elizabeth has spent over 20 years working in research for cancer drug development and also worked alongside the late Dr. Jimmie Holland, a Founder of psycho-oncology. Elizabeth shines light on the fact that many times there is failure to address the psychosocial concerns that are associated with cancer. On this episode, she discusses the history of psycho-oncology, its purpose within the field of oncology, her work as a psycho-oncologist, and the support needed to help one cope with their cancer experience. CLICK HERE to participate in our episode survey. Mentioned on this episode: Dr. Jimmie Holland Support Resources Resources for ‘Managing Your Cancer’ Managing Side Effects Anxiety and Depression Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Psycho-Oncology: Caring for Body & Mind first appeared on The Bloodline with Blood Cancer United Podcast.

Kimberly Alexander Describing her life as a ‘storybook’, Kimberly Alexander shares with Alicia and Lizette from The Leukemia & Lymphoma Society how her world was turned upside down after her late husband and NFL linebacker Elijah was diagnosed with multiple myeloma. What began as pain in his feet, usually disregarded due to his active lifestyle, Elijah was later diagnosed with Stage III-B multiple myeloma at 35 years old. Kimberly describes her transition to ‘caregiver’, how she continues to maintain normalcy for their two young boys, and the importance of self-care and doing what you love in spite of change. CLICK HERE to participate in our episode survey. Mentioned on this episode: Multiple Myeloma Blood and Marrow Stem Cell Transplantation Man/Woman of the Year Campaign Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this episode provided by Amgen.The post No Playbook for Caregiving: Kimberly’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Founder of Stupid Cancer, Matthew Zachary onsite at CancerCon 2018 in Denver, Colorado. Film composer and concert pianist by the age of 21, Matthew was confident about what his next steps would be until life threw him the proverbial curve ball. After feeling strange sensations in his left arm and ignoring it for some time, while also being told it ‘was all in his head’, Matthew was floored when he learned he would need surgery on his brain for what was later diagnosed to be medulloblastoma, a cancerous tumor, also called cerebellar primitive. Matthew shares how this diagnosis changed his life and at time when he was supposed to be focused on the usual ‘hard things’ like high school, college, jobs, dating, a family, and buying a house, he was met with limited resources necessary for his age at a very challenging time of his life. With 1.4 million young adult cancer survivors in America alone, Matthews shares that he began Stupid Cancer to let other young adult cancer survivors know that they are not alone and have resources available for them. Stupid Cancer addresses the main concerns for the young adult population (ages 15- 39) including mental health, social media, isolation, fear, anxiety, fertility and recurrence while also looking at the practical issues that are unique to this group regarding insurance, and employment. Looking back on how far Stupid Cancer has come, Matthew also shares their proudest moments. CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes. CLICK HERE to participate in our episode survey. Mentioned on this episode: Stupid Cancer Children’s Cause for Cancer Advocacy National Coalition for Cancer Survivorship LIVESRTONG, Adolescents & Young Adult Alliance Medulloblastoma Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Live at CancerCon with Matthew Zachary: Founder of ‘Stupid Cancer’ first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Heather Juliet, a young adult survivor and an attendee onsite at CancerCon 2018 in Denver, Colorado. Heather knew something was wrong for many years but each time she went to the doctor she was met with ‘you’re fine’, ‘you’re too young’, or ‘you’re too healthy’. When symptoms became severe, she was diagnosed with stage 4 Hodgkin lymphoma. Being in the health and wellness field and describing herself as ‘extremely healthy’, she was shocked by the news but also relieved to know that there was finally an explanation for the way she had been feeling. Realizing that finding survivorship resources was incredibly challenging, she was inspired and motivated to be that source for other survivors. She understands how it feels to be diagnosed and to have your life change so quickly and not knowing where to go first. She also shares how she made ‘finding herself again’ her goal by adjusting her mindset and intentionally creating a happy space around her. Taking yoga and seeing the impact it had on her own life, she decided to get certified so that she too can be a mentor and advocate for other cancer survivors. CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes. CLICK HERE to participate in our episode survey. Mentioned on this episode: Hodgkin Lymphoma Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts Long-Term and Late Effects of Treatment in Adults Facts Fertility LLS Community Patti Robinson Kaufmann First Connection Program Co-Pay Assistance Cancer Support Community Stupid Cancer CancerCon Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Live at CancerCon with Heather Juliet: Young Adult Advocate & Mentor first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Melanie Stachelski onsite at CancerCon 2018 in Denver, Colorado. Diagnosed with acute myeloid leukemia (AML) at 29 years old after celebrating her first wedding anniversary, Melanie describes how staying in a good place mentally was one of her top priorities. Personally living through the reality that cancer patients need unique needs when it comes to mental health, she pursued a degree in counseling psychology, specializing in helping people through a cancer diagnosis. She explains how finding a right therapist takes time but is incredibly worth it. She also shares the needs of a cancer survivor compared to the general population and the various support resources that are available. CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes. CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Myeloid Leukemia (AML) Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts Long-Term and Late Effects of Treatment in Adults Facts LLS Community Online Chats LLS Information Specialists Local LLS Chapter Patti Robinson Kaufmann First Connection Program Stupid Cancer CancerCon Cancer Care Be The Match® Patient Support Services Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Live at CancerCon with Melanie Stachelski: Therapist & Young Adult Survivor first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Sara Davenport, a young adult survivor and Blood Cancer panelist, onsite at CancerCon 2018 in Denver, Colorado. Having been diagnosed with thyroid cancer first and later with non-Hodgkin lymphoma, Sara talks about her journey, how she was introduced to The Leukemia & Lymphoma Society, fertility, long- term and late effects of cancer treatment, and the importance of patience during one’s journey. Sara also shares how she combats ‘survivorship guilt’ with the decision to live a life that strives to understand and help others as a way to ‘pay it forward’ and honor those who have passed. CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes. CLICK HERE to participate in our episode survey. Mentioned on this episode: Non-Hodgkin Lymphoma Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts Long-Term and Late Effects of Treatment in Adults Facts LLS Community Patti Robinson Kaufmann First Connection Program LLS Team in Training Stupid Cancer CancerCon Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Live at CancerCon with Sara Davenport: Panelist & Young Adult Survivor first appeared on The Bloodline with Blood Cancer United Podcast.

Pallawi Torka, MD Join us on this episode as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Pallawi Torka, Assistant Professor of Oncology and Co-Program Director of the Hematology/Oncology Fellowship Program, at Roswell Park Comprehensive Cancer in Buffalo, NY. Dr. Torka speaks about her experience diagnosing and treating Hodgkin lymphoma and why shared decision making is necessary for patients to better understand their disease and treatment options. Dr. Torka explains the standard of care, emerging therapies and when a stem cell transplant may be considered. She also shares her excitement and optimism in the field of lymphoma as new data continues to develop, hopefully leading to increased survival and improved quality of life. CLICK HERE to participate in our episode survey. As mentioned on this episode: Hodgkin Lymphoma Clinical Trials Clinical Trial Support Center (CTSC) LLS Information Specialists Lymphoma Research Foundation National Comprehensive Cancer Network (NCCN) Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this program provided by Seattle Genetics. The post A Bright Future for Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Mother’s Day is a celebration honoring mothers, motherhood, maternal bonds, and the influence of mothers in society. In this episode, Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with survivor Katy Ursta, a mother of two adorable young boys. Katy speaks about her diagnosis of Hodgkin lymphoma at age 30, and how she and her husband worked to keep their young family going, while maintaining normalcy around both their four year old and four months old sons. She speaks about the importance of support, having a good relationship with her oncologist, speaking up herself, and being inspired by late sportscaster and long-time anchor on ESPN, Stuart Scott. As her sons watched on as neighbors brought food and offered tremendous support to her and her family, cancer taught them kindness and emphasized Katy’s deep belief that we are all here to help each other. Katy believes in leaving a legacy of love and hope and with that belief, created Every Sweat Matters, which encourages people to work out as a way to ‘one up’ cancer and sweat for those who cannot do so. To everyone listening, we’d like to wish you a Happy Mother’s Day! CLICK HERE to participate in our episode survey. Mentioned on this episode: Hodgkin lymphoma LLS Community Light The Night Stuart Scott Every Sweat Matters Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.  The post Motherhood & Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Daniel Epner, MD, FACP Caring for a patient means caring for the entire patient. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Daniel Epner, professor in the Department of Palliative Rehabilitation and Integrative Medicine from MD Anderson Cancer Center in Houston, TX, about his experience being an oncologist for nearly 20 years before moving into his current field of palliative medicine. While treating many patients with cancer, Dr. Epner began to really appreciate the power of the relationships that he forged with his patients.  His attention to caring for the entire patient naturally evolved into practicing palliative medicine.  Dr. Epner speaks about a curriculum he created for young doctors and discusses ways in which culture, gender and personality must be taken into account in order to provide the best care to a patient. CLICK HERE to participate in our episode survey. Mentioned on this episode: ‘Effective Communication within Cancer Care’ with Carma Bylund, Ph.D Palliative Care Hospice Care Communicating with Your Specialist Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Encouraging Empathy Within Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

In its early stages, cutaneous t-cell lymphoma (CTCL) may be mistaken for a skin condition like eczema. Many people have a hard time grasping how something that arises in the skin is actually considered a blood cancer. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Jasmine Zain, hematologist/oncologist at City of Hope in Duarte, CA, about how CTCL is not just one disease, how CTCL is diagnosed and treated, why dermatologists may be part of a person’s treatment team, the prevalence of CTCL within certain geographies and ethnicities, stem cell transplants, the role of clinical trials and the importance of a team approach when determining the best treatment options. Dr. Jasmine Zain also explains how people can live their normal lives despite their CTCL diagnosis. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Cutaneous T-cell Lymphoma Facts Sheet Clinical Trials Printable Question Guide to Ask Your Healthcare Team Cutaneous Lymphoma Foundation LLS Community Lymphoma Research Foundation BMT Infonet: Blood & Marrow Transplant Information Network Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this episode provided by Seattle Genetics. The post CTCL: Skin Lymphoma, Not Skin Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Rachelle Rachelle is a commercial actor, model, mother, wife and lymphoma survivor, who shares with Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) how her world changed after an annual visit to her OBGYN doctor.  A lump which she attributed to one of the effects of pregnancy, ended up being something she never would have imagined. Having lost her father to kidney cancer, her approach to her follicular lymphoma diagnosis is one that intends to reframe the outlook of a cancer diagnosis. She shares her shock when receiving the news, the importance of taking all details regarding diagnosis and prognosis with a grain of salt, and why remaining hopeful is necessary. After hearing from her doctor that ‘stress can play a role in reoccurrence’, she has promised herself that she will face each day focusing on the things she loves, instead of living in fear of when or if cancer will return. CLICK HERE to participate in our episode survey. Mentioned on this episode: LLS Facebook Online Chats LLS Community Free LLS Publications Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post I Am a Person, Not a Percentage: Rachelle’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Good nutrition is important for cancer patients. Eating the right kinds of foods can help patients feel better and stay stronger. On this episode, Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with nutrition educator, Margaret N. Martin, RD MS LDN CDE, about dietary information to keep in mind before, during and after active treatment. Cancer and cancer treatments can affect taste, smell, appetite and the ability to eat or absorb the nutrients from food. Margaret shares nutritional information to keep in mind during a person’s cancer journey. You will also learn how The Leukemia & Lymphoma Society’s free one-on-one nutrition consultation can assist in providing patients with ways to maintain a healthy diet. CLICK HERE to participate in our episode survey. Mentioned in this episode: Click here to request a free one-on-one nutrition consultation. Click here for free support booklets, including our ‘Dental and Oral Complications of Cancer Treatment’ fact sheet. LLS Pinterest Recipes Visit www.LLS.org/support for support resources. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Remembering Nutrition Throughout Your Cancer Journey first appeared on The Bloodline with Blood Cancer United Podcast.

After crossing the finish line at the Madrid Marathon, Ethan Hawes felt a shooting pain in his hip. Assuming it was a result of the race, being diagnosed with multiple myeloma at the age of 22 years old was the furthest thing from his mind. Listen in as Alicia and Lizette from The Leukemia & Lymphoma (LLS) speak with Ethan about his journey and how being called ‘a trailblazer’ having been diagnosed with a disease that usually presents in people over 50 years old, would change his outlook on life and shift his career goals. CLICK HERE to participate in our episode survey. Mentioned in this episode: Visit more information on myeloma, www.LLS.org/myeloma. Click here for free publications about myeloma. Visit www.LLS.org/support, for support resources. For more information on LLS Community, visit www.LLS.org/community. Click here to visit Ethan’s blog on CaringBridge.org. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this episode provided by Amgen.The post Ethan: Myeloma Survivor & Trailblazer first appeared on The Bloodline with Blood Cancer United Podcast.

Twenty-three years old and living in New York City, Glamour magazine Editor Erin Zammett Ruddy finds herself writing her biggest story yet when she is diagnosed with chronic myelogenous leukemia. Upon diagnosis, this writer, author, blogger and survivor, along with her husband Nick, make the brave decision to stop treatment three times in hopes of expanding their family. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Erin and Dr. Michael Mauro, hematologist at Memorial Sloan Kettering Cancer Center. Dr. Mauro has treated Erin since her diagnosis, going on 16+ years, and is a strong advocate for women and fertility within the cancer realm. You’ll hear about Erin’s journey, fertility preservation, questions patients can ask their healthcare team when considering fertility, and how patients are not only ‘patients’ but people seeking to live the life they’ve always envisioned for themselves. Download Transcript  CLICK HERE to participate in our episode survey. Mentioned in this episode: Fertility Facts booklet LLS Community Erin’s blog, www.erinzammettruddy.com Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Stopped Treatment, Started a Family first appeared on The Bloodline with Blood Cancer United Podcast.

La fatiga es el síntoma más frecuentemente reportado por individuos con cáncer. Sin embargo, la fatiga relacionada con el cáncer (CRF, por sus siglas en inglés)  es muy diferente de la fatiga diaria. Escuche a Alicia y Lizette de La Sociedad de Lucha Contra la Leucemia y el Linfoma (LLS, por sus siglas en inglés) hablar con la trabajadora social médica jubilada y líder de trabajo social de oncología, Patrice Al-Shatti, MSW, LMSW. Patrice desarrolló los primeros materiales educativos para el paciente, evaluaciones y programación sobre el tema del Síndrome de Fatiga relacionada con el cáncer para Mayo Clinic. Ella comparte cómo llamar a la fatiga relacionada con el cáncer un síntoma lo perjudica, ya que en realidad se considera un síndrome. Explica la diferencia entre la fatiga y la fatiga relacionada con el cáncer, los diversos factores fisiológicos y biológicos y las estrategias útiles conocidas para mejorar la calidad de vida. Patrice también analiza la conservación de la energía y la gestión de actividades y cómo impulsar, planificar, priorizar y tratar activamente las “fugas de energía”. Mencionado en este episodio: Descargue o solicite nuestra publicación gratuita sobre la Fatiga Relacionada con el Cáncer visitando www.lls.org/materiales Recursos de Soporte Adicionales de LLS: Especialistas en Información Consultas personalizadas sobre la nutrición Centro de Apoyo para Ensayos Clínicos Programas de asistencia económica al paciente Planillas e Información Para Cuidadores Guías de Preguntas Imprimibles Comenta a continuación ya que nos encantaría escuchar tus comentarios sobre este episodio. Además, asegúrese de suscribirse hoy para ser notificado de nuestro próximo episodio.The post Fatiga Relacionada Con El Cáncer: Síndrome, No Síntoma first appeared on The Bloodline with Blood Cancer United Podcast.

Fatigue is the symptom most frequently reported by individuals with cancer. However, cancer-related fatigue (CRF) is very different from daily fatigue. Listen in as Alicia and Lizette speak with Patrice Al-Shatti, LMSW, who shares how calling cancer-related fatigue a symptom does it as a disservice as it is actually considered a syndrome. She explains the difference between fatigue and cancer-related fatigue, the varying physiological and biological factors, and helpful strategies known to improve quality of life. Patrice also discusses energy conservation and activity management and how to actively pace, plan, prioritize and deal with ‘energy leaks’. Download Transcript CLICK HERE to participate in our episode survey.The post Cancer-Related Fatigue: Syndrome Not Symptom first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Carma Bylund, Ph.D, a behavioral scientist with international expertise in healthcare communication, who shares how research has proven that good doctor-patient communication results in patients making more informed decisions, better quality of life, and better outcomes for patients. Carma provides ways how both healthcare professionals and patients can improve their communication as they discuss diagnosis and treatment. CLICK HERE to participate in our episode survey. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Effective Communication within Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

After a cancer diagnosis, people with cancer and their loved ones may feel “out of step” during the holidays. A diagnosis can prompt new questions during this time, such as: How do I take care of myself during the holiday rush? How can I celebrate when I have so many other things on my mind? How can I manage my fatigue during such an active time of the year? Listen as Karen Hartman, Clinical Social Worker and Social Work Manager at Memorial Sloan Kettering Cancer Center, speaks with Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) about 10 ways to cope with the holidays after a cancer diagnosis. CLICK HERE to participate in our episode survey. Mentioned in this episode: Visit www.mskcc.org and type ‘coping with the holidays‘ in the search bar for blogs about coping. For dietary information to help keep you on track this holiday season, visit www.LLS.org/nutrition. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Coping with the Holidays after Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Timothy, an ALL young adult survivor, who shares how his culture, attitude and relationship with his healthcare team during treatment steered him towards a profession he would have never envisioned for himself. Download Transcript CLICK HERE to participate in our episode survey. Mentioned in this episode: Stupid Cancer, visit www.stupidcancer.org LLS Community, visit www.LLS.org/community Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this episode provided by Amgen. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Timothy’s Turning Point first appeared on The Bloodline with Blood Cancer United Podcast.

While studying for the nursing board exams, planning to retire from firefighting, and preparing to travel, Peter, an acute promyelocytic leukemia (APL) survivor, and his caregiver and wife, Donna, share with Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) how a trip to the emergency room for extreme fatigue propelled them into their new roles of patient and caregiver. Download Transcript CLICK HERE to participate in our episode survey. Mentioned in this episode: LLS Online Chats, visit www.LLS.org/chat LLS Community, visit www.LLS.org/community Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Processing Our New Plan: Pete & Donna’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) as they sit with Rebecca Nellis, Executive Director of Cancer and Careers. Learn about the rights of employees who have been diagnosed with cancer and how Cancer and Careers works to empower and educate people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. CLICK HERE to participate in our episode survey. Mentioned in this episode: Cancer and Careers, visit www.cancerandcareers.org. Triage Cancer, visit www.triagecancer.org. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. “The information contained in this podcast is for general information purposes only and is subject to change without notice. It is not intended to substitute the advice of your healthcare provider or information provided to you by your insurance carrier.” The post A Cancer Diagnosis Within the Workplace first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Monica Bryant, COO & Co-Founder of Triage Cancer, who shares quality information on healthcare-related issues for those diagnosed with cancer. As a cancer rights attorney, she believes a patient’s life should not be in jeopardy due to a lack of information. Be sure to jot down notes as she gives us the 411 on cancer and insurance. Download Transcript CLICK HERE to participate in our episode survey. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. “The information contained in this podcast is for general information purposes only and is subject to change without notice. It is not intended to substitute the advice of your healthcare provider or information provided to you by your insurance carrier.” Support for this episode provided by Bristol-Myers Squibb.The post What You Need to Know About Cancer & Health Insurance first appeared on The Bloodline with Blood Cancer United Podcast.

In her junior year of college and new to Los Angeles, Hodgkin’s Lymphoma was the furthest thing from Racheli’s mind. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) as Racheli walks them through how a presumed head cold was misdiagnosed. Listen in as she shares how she was able to press play on her life, with treatment and support from her healthcare team, family and growing online support. Download Transcript CLICK HERE to participate in our episode survey. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Follow Racheli: Instagram Twitter YouTube Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. Support for this episode provided by Bristol-Myers Squibb.The post Life on Pause: Racheli’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Being diagnosed with a blood cancer can be overwhelming. On this episode, Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with David, a diffuse large B-cell lymphoma (DLBCL) survivor, and Dr. John Leonard from Weill Cornell Medical College about David’s lymphoma diagnosis. David and Dr. Leonard share helpful information for both newly-diagnosed and long-term survivors. Download Transcript CLICK HERE to participate in our episode survey. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this episode provided by Kite Pharmaceuticals.The post Diagnosed with Diffuse Large B-Cell Lymphoma (DLBCL). Now what? first appeared on The Bloodline with Blood Cancer United Podcast.

CLICK HERE to participate in our episode survey. --> Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) chat with John F. Gerecitano, MD, PhD, Clinical Director of Lymphoma Outpatient Services at Memorial Sloan Kettering Cancer Center and Margaret (Peg) McCormick, RN, BSN, MA, Consultant, Clinical Trials Support Center. Hear about the role clinical trials play in cancer treatment, who can participate in a clinical trial and how participants are protected, how LLS’s Clinical Trial Support Center assists patients in finding a trial that is right for them, and why it is important to think of clinical trials as a possible treatment option instead of a last resort. Download Transcript CLICK HERE to participate in our episode survey. Mentioned in this episode: The Leukemia & Lymphoma Society’s Clinical Trial Support Center, visit www.LLS.org/ctsc Registry of clinical trials, visit ClinicalTrials.gov Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.The post Why You Should Consider a Clinical Trial first appeared on The Bloodline with Blood Cancer United Podcast.