The Bloodline with Blood Cancer United Podcast

Ricardo Lopez, Dietista Oncológico MSHA, RD, CSO, LDN Unase a nosotros en nuestra conversación con Ricardo Lopez, Dietista Oncológico. En este episodio él nos explicará la importancia de tener una nutrición adecuada antes, durante y después de un tratamiento, y nos proveerá consejos para aliviar efectos secundarios causado por el cáncer. DESCARGAR TRANSCRIPCIÓN HAGA CLIC AQUI para participar en la encuesta del episodio. Mencionado en este episodio: La American Heart Association (AHA) Temas y recursos de LLS: LLS en Español Consultas personalizadad sobre de nutrición   Alimentos y Nutrición Applicación de Salud de LLS Assistencia Alimentaria Recursos Y Consejos Especialistas en Información  Publicaciones informativas gratuitas Webcast, Vídeos, Episodios de Pódcast The post La Nutrición y el Cáncer first appeared on The Bloodline with Blood Cancer United Podcast.

Ashlie D’Andrea Emma D’Andrea Lynn Steele, LSW, OSW-C In this episode, we speak to a myeloma patient and her teenage daughter about the impact that myeloma had on her family. Lynn Steele, a social worker and Information Specialist at LLS, then joins us to share tips and resources on how families can navigate a cancer diagnosis together.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Multiple myeloma Talking to children and families about cancer Parenting with cancer Caregiver support  Caregiver Workbook Online chats  LLS Community  Patti Robinson Kaufmann First Connection Program® Pickles Group Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Clinical Trial Support Center Free telephone/web patient programs  Free booklets  Young Adult Resources Advocacy and Public Policy Survivorship Workbook Support groups  Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.The post Family Ties: Navigating Multiple Myeloma Together first appeared on The Bloodline with Blood Cancer United Podcast.

Sharon Castellino, MD, MSc In this episode, Dr. Sharon Castellino, a pediatric oncologist at Children’s Healthcare of Atlanta, examines the impact of healthcare equity and barriers to care for patients and caregivers dealing with blood cancer. Dr. Castellino sheds light on how groundbreaking treatments have transformed the landscape of cancer care, emphasizing the crucial role that LLS, patient advocates and government entities can play in ensuring accessible and quality care for all. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Clinical Trial Support Center  Shared decision making interactive program Advocacy and Public Policy American Association for Cancer Research (AACR) Resources for Children and Young Adults Acute lymphoblastic leukemia Hodgkin lymphoma Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.The post Bridging the Gaps: Striving for Accessible Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

Teresa Altemeyer Join us on a heartfelt journey woven by support and education, as we speak to Teresa Altemeyer, who was diagnosed with chronic lymphocytic leukemia in 2009. In this episode, Teresa shares her experience with CLL from diagnosis through long-term survivorship. On the advice of her doctor, she went out to live her life, and found herself supporting other blood cancer patients and survivors in doing the same. Despite her own physical and mental health struggles with this disease, she shares beautiful advice learned along the way. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic lymphocytic leukemia Mental health resources Minimal/Measurable Residual Disease Clinical Trial Support Center Financial support Finances podcast Shared decision making interactive program Shared decision making for CLL podcast Light The Night Advocacy Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.The post Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

Elie Traer, MD Karin Rodland, PhD Lee Greenberger, PhD The fight to effectively treat and cure the complex disease of acute myeloid leukemia (AML) continues. In this episode, we speak to Dr. Elie Traer, Dr. Karin Rodland and Dr. Lee Greenberger about an exciting new study for AML. The doctors share about a longtime collaboration between Oregon Health & Science University (OHSU) and Pacific Northwest National Laboratory (PNNL) using patient samples from LLS’s Beat AML Master Clinical Trial to further understand the proteins on the cancer cells, resulting in the development of more targeted treatments for AML patients.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Myeloid Leukemia Beat AML Master Clinical Trial Beat AML Documentary Stem Cell Transplant Mapping The Proteogenomic Landscape Enables Prediction of Drug Response in Acute Myeloid Leukemia Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups Patti Robinson Kaufmann First Connection Program Support for this episode provided by: Abbvie Inc. and Genentech, Inc. & Biogen.The post Visions of Hope: Continuing to Beat AML first appeared on The Bloodline with Blood Cancer United Podcast.

Monica Fawzy Bryant, Esq. Dealing with cancer extends beyond physical health, often bringing financial challenges that can overwhelm patients and their loved ones.   In this episode, we offer a beacon of support as we speak to Monica Bryant, Esq., a cancer rights attorney and Co-founder/Chief Operating Officer of Triage Cancer. She reviews the financial hurdles that may arise during treatment and provides practical strategies to help with economic hardships. She also highlights a wealth of resources designed to aid patients, covering everything from financial grants to transportation, Social Security benefits and navigating the complex world of health insurance.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Financial support Triage Cancer Continuation of Health Coverage (COBRA) State Health Insurance Marketplace Health Insurance Appeals Guide Family and Medical Leave Act (FMLA) Social Security Disability (SSDI) Social Security Return To Work program Road to Recovery – transportation Be Informed: Beneficial Medicare Changes – podcast episode Inflation Reduction Act and Medicare Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Support for this episode provided by: Genentech, Inc. & Biogen.The post You Aren’t Alone: Navigating The Financial Impact of Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Mayra Gomez Padua, PhD Ser cuidador, para muchos es una muestra de compasión. Sin embargo, a medida que pasa el tiempo, muchos cuidadores se encuentran abrumados por el estrés, la carga, y la tristesa asociado con ser un cuidador de alguien dianosticado con cáncer. En muchas ocaciones los cuidadores se encuentran dejando su salud al lado. En este episodio, la Dra. Mayra Gómez Padua, psicóloga clínica bilingüe nos explica la importancia de mantener el equilibrio entre ser cuidador y manteniendo su autocuidado.  Aquí, ella ofrece herramientas y alternativas que ayudarán a los cuidadores navegar de manera efectiva su papel sin tener que sacrificar su bienestar. DESCARGAR TRANSCRIPCIÓN HAGA CLIC AQUI para participar en la encuesta del episodio. Mentionado en este episodio: Medicare en Español Especialistas en Información Recursos  Addiciónales de LLS: LLS en Español Apoyo entre pares Consultas personalizadad sobre de nutrición Manuales del cuidador Manuales del sobreviviente Publicaciones informativas gratuitas Webcast, Vídeos, Episodios de Pódcast The post Soy cuidador de un paciente con cáncer. ¿Y ahora qué? first appeared on The Bloodline with Blood Cancer United Podcast.

Naveen Pemmaraju, MD “If you have a rare disease, it’s not rare to you.” In this episode, Dr. Naveen Pemmaraju of MD Anderson Cancer Center in Houston, TX, sheds light on the latest treatment advancements for myelofibrosis. The pace of scientific discovery for rare diseases is moving at a fast rate, resulting in better outcomes for myelofibrosis patients. *This episode was recorded on Rare Disease Day, February 29, 2024 DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myelofibrosis Myeloproliferative Neoplasms (MPNs) Acute Myeloid Leukemia CAR T-cell Therapy Immunotherapy Fact Sheet (Bispecific Antibodies) Stem Cell Transplant TRANSFORM-1 trial American Society of Hematology (ASH) Additional LLS Support Resources:  Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: GSK plc.The post Hope for a Rare Disease: Myelofibrosis first appeared on The Bloodline with Blood Cancer United Podcast.

Nishi Shah, MD, MBBS Remarkable progress has been made in the treatment of myeloma over the past decade, giving patients and families much hope for the future. In this episode, we speak to Dr. Nishi Shah of Montefiore Einstein Comprehensive Cancer Center in New York City. While the wide variety of therapies available to patients are discussed, this episode also focuses on the newest, cutting-edge therapies for myeloma, such as CAR T-cell therapy and bispecific antibodies.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Multiple Myeloma CAR T-cell Therapy Bispecific Antibodies – Immunotherapy Booklet Stem Cell Transplant Multiple Myeloma and Agent Orange Additional LLS Support Resources:  Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.The post How New Therapies Are Changing The Future of Myeloma first appeared on The Bloodline with Blood Cancer United Podcast.

In the episode, we explore the family of diseases called myeloproliferative neoplasms (MPNs). Dr. Anand Patel and Dr. Olatoyosi Odenike of The University of Chicago Medicine share the latest advances in treatments for MPNs, including myelofibrosis (MF), polycythemia vera (PV) and essential thrombocythemia (ET). We also highlight how treatment teams prioritize the improvement of patients’ quality of life as a key aspect of care. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloproliferative Neoplasms (MPN) MPN Booklet Chronic Myeloid Leukemia Acute Myeloid Leukemia Hopeful Advancements for Chronic Myeloid Leukemia (CML) – podcast episode Stem Cell Transplant American Society of Hematology (ASH) Additional LLS Support Resources:  Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode is provided by University of Chicago Comprehensive Cancer Center. The post Living with Myeloproliferative Neoplasms (MPNs) first appeared on The Bloodline with Blood Cancer United Podcast.

Nutrition is a crucial part of cancer care. Many patients and caregivers play an active role in managing their nutrition during and after treatment. In this episode, we discuss nutrition after a cancer diagnosis with Luz Chavez and Susanne Massarani, Registered Dietitians from The University of Chicago. Learn the basics of oncology nutrition and how a good diet can help combat treatment-related weight loss and side effects. Caregivers will also benefit from tips on how to care for their loved ones when they experience appetite changes or other gastrointestinal symptoms. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  LLS Nutrition Resources and Free Consults New American Plate Graft-vs-host disease (GVHD) CAR T-cell Therapy Stem Cell Transplant Additional LLS Support Resources:  Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode is provided by University of Chicago Comprehensive Cancer Center. The post Bite By Bite: Supporting Cancer Patients Through Nutrition first appeared on The Bloodline with Blood Cancer United Podcast.

Caner Saygin, MD A diagnosis of cancer can cause significant emotional distress to a patient.  A diagnosis of a rare leukemia can leave patients and caregivers feeling unsure and nervous about the future.  In this episode, we speak to Dr. Caner Saygin of University of Chicago Medicine about hairy cell leukemia, a rare, but treatable cancer.  Dr. Saygin delves into this disease, highlighting the need for an accurate diagnosis, as well as current and emerging treatments.  Patients will be given hope for a good quality of life while managing this disease. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Hairy Cell Leukemia Flow Cytometry and Next Generation Sequencing Tests MRD (Minimal/Measurable Residual Disease) Hairy Cell Leukemia Foundation Additional LLS Support Resources:  Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode is provided by University of Chicago Comprehensive Cancer Center. The post Exploring Hairy Cell Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

Colin Vale, MD Myelodysplastic Syndromes (MDS) is a group of diseases that have a variety of different treatments and outcomes. In this episode, we speak to Dr. Colin Vale of Emory University in Atlanta, GA, about the treatments for MDS, the potential for transforming into acute myeloid leukemia (AML), and new strategies to give patients the quality of care that they deserve. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myelodysplastic Syndromes (MDS) IMerge Phase 3 Study (Imetelstat) Classification Systems Germline Predisposition Article Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) | The Bloodline with LLS International Prognostic Scoring System Allogeneic Stem Cell Transplantation Additional LLS Support Resources:  Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Taiho Oncology, Inc.The post Improving Quality of Care for Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

Adriana Rossi, MD Testing for minimal or measurable residual disease (MRD) in blood cancer has transformed the way we look at remission and treatment planning. In this episode, we speak to Dr. Adriana Rossi of Mt. Sinai Hospital in New York about how MRD testing is being utilized for blood cancer patients. Join us as we explore minimal/measurable residual disease (MRD) testing for blood cancer and its role in guiding treatment decisions and predicting relapse and prognosis.    DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Minimal/Measurable Residual Disease Minimal/Measurable Residual Disease Chart  Tests (FISH, Flow Cytometry, Next-generation Sequencing) The Revolution of Genomics: How Testing Leads to Individualized Treatment Multiple Myeloma Acute Lymphoblastic Leukemia Additional LLS Support Resources:  Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Adaptive BiotechnologiesThe post Mission To Complete Remission: Utilizing MRD Testing In Blood Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Cliff Davis Cliff Davis was only sixteen weeks away from graduating medical school when he received the shocking news that he had Hodgkin Lymphoma.  His path has been unique and his story will inspire you. Cliff has a story that is familiar to many patients –a cancer diagnosis that resulted in pausing his schooling and career aspirations. In this case, going back to finish medical school proved much more difficult than expected when he took a leave of absence. Be sure to tune into this incredible story of resilience, as Cliff never gave up on the one thing he felt like he was meant to do – while learning so much about the world of patient care along the way.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Hodgkin Lymphoma Financial support Team In Training Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.The post Continuing The Dream: An Inspiring Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

Have you ever wondered how doctors determine the treatment for a blood cancer patient? In this episode, we’re speaking with Dr. Eric Severson of Labcorp Oncology and Dr. John DiPersio of Washington University in St. Louis, MO, about genomics testing, what it is, and how it benefits blood cancer patients. You will learn about the crucial collaboration between pathologists and oncologists to make sure patients are getting the most accurate diagnosis and best possible treatments for their particular blood cancers. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Genomics Testing Video Genomics Tests (FISH, Flow Cytometry, Next-generation Sequencing) Acute Myeloid Leukemia Minimal/Measurable Residual Disease A Medication Resource for Blood Cancer Patients Minimal/Measurable Residual Disease Chart  CAR T-cell Therapy Stem Cell Transplantation Beat AML Master Clinical Trial Dare To Dream Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Financial support Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Labcorp Oncology.The post The Revolution of Genomics: How Testing Leads to Individualized Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Iris Cohen Fineberg, PhD, MSW, OSW-C Caregivers can come from many places in a patient’s life. They may be a spouse, family member, neighbor or “chosen family”. When caring for a cancer patient takes a village, caregivers come together to do what’s best for the patient. Join us as we sit down with Dr. Iris Cohen Fineberg, an Associate Professor at Stony Brook University, who specializes in oncology social work and palliative care. In this episode, we discuss planned family meetings, communicating with the treatment team, and how the community can provide supportive care to the patient. We invite caregivers, patients and their treatment teams to listen in on this important discussion. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Caregiver support  Caregiver Workbook Palliative Care Caregiver Online Chat Caregiver Videos Caregiver telephone/web programs Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Financial support Young Adult Resources Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations The post Supporting the Patient: Caregiving Takes a Village first appeared on The Bloodline with Blood Cancer United Podcast.

Aerial Donovan Alique Topalian, PhD, MPH Peter Drahms, RN, BSN, C. Robert Bennett, PhD, CPNP-AC Please join us for this second live episode from CancerCon® 2023, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed “chemo brain”, palliative care, and healing through writing. Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from hearing from these experts. Be sure to tune into the previous episode from CancerCon, where we heard from young adult cancer patients and survivors on the milestones and challenges that they have experienced along the road of survivorship. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Survivorship Workbook YAConnect: Young Adults Living with Blood Cancer Online Chat Stupid Cancer® Cactus Cancer Society “Chemo brain” Palliative Care Voicing My Choices Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Patti Robinson Kaufmann First Connection® Program Free booklets  LLS Public Policy & Advocacy Online chats  Caregiver support  Support groups  Free Nutrition Consultations  LLS Advocacy Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.The post LIVE! At CancerCon: Coping with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Click image to view full size. Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about where they are along the road of survivorship. In the exhibit hall, we displayed a roadmap of survivorship, which had many detours and pit stops along the way towards long-term survivorship. The responses from young adult patients and survivors varied and each person had different milestones or points along the road that that they found significant. We encourage our listeners to view the roadmap on the episode page. To our patients and survivors, where do YOU fit along the road? Be sure to share in the comments or discuss in the PodClub in our Subscriber Lounge. Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on various ways to cope with a cancer diagnosis and treatment. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Survivorship Definition – National Cancer Institute Survivorship Workbook YAConnect: Young Adults Living with Blood Cancer Online Chat LLS Dare to Dream Stem Cell Transplant Stupid Cancer® Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Patti Robinson Kaufmann First Connection® Program Free booklets  LLS Public Policy & Advocacy Online chats  Caregiver support  Support groups  Free Nutrition Consultations  LLS Advocacy Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.The post LIVE! At CancerCon: The Roadmap of Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Tune in to the latest episode of the Patient-Doctor Perspectives series, featuring an enlightening conversation with Dr. Judith Shizuru of Stanford Medicine and acute lymphoblastic leukemia (ALL) survivor, Peter Feinberg. Delve into the world of cutting-edge ALL treatments and gain insight from a patient who shares his personal story of treatments, bone marrow transplantation and re-vaccination challenges. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute lymphoblastic leukemia Stem Cell Transplantation HLA Matching Bone Marrow Donor Registry CAR T-cell Therapy Graft-vs-host Disease (GVHD) CHIP Screening Minimal/Measurable Residual Disease (MRD) Additional LLS Support Resources:  Information Specialists  Clinical Trial Support Center Free telephone/web patient programs  Free booklets  Financial support Caregiver support  Young Adult Resources Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Amgen Inc.The post Patient-Doctor Perspectives: Adult Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Deborah Stephens, DO Join us as we sit down with Dr. Deborah Stephens from the University of Utah, as we discover the latest breakthroughs in treating chronic lymphocytic leukemia (CLL). We also gain valuable insights into enhancing patient’s quality of life. In this episode, Dr. Stephens emphasizes the importance of effective communication with your healthcare team, unveiling strategies that not only optimize disease management, but also minimize the impact of side effects. Your path to empowered long-term care with CLL begins here. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic lymphocytic leukemia (CLL) Quality-of-Life: Managing Cancer-Related Fatigue podcast episode S1925 High-risk CLL study Stem Cell Transplantion CAR T-cell Therapy Graft-vs-host Disease (GVHD) Clinical Trial Support Center Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Caregiver support  Young Adult Resources Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.The post Empowering Lives: Advancements in Chronic Lymphocytic Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

Kieron Dunleavy, MD Delve into the complex landscape of non-Hodgkin lymphoma research, where a cure is pursued amidst a backdrop of over 100 subtypes of this disease. In this episode, Dr. Kieron Dunleavy, of MedStar Georgetown University Hospital, breaks down the differences in treatments, prognosis and goals for both slow-growing and aggressive subtypes of non-Hodgkin lymphoma. Discover the remarkable momentum of scientific progress that increased the understanding and management of lymphoma, igniting a renewed sense of hope for patients and their loved ones. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma Chronic lymphocytic leukemia POLARIX study Stem Cell Transplantion CAR T-cell Therapy ZUMA-7 Study TRANSFORM Study Graft-vs-host Disease (GVHD) Minimal/Measurable Residual Disease (MRD) Clinical Trial Support Center Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Caregiver support  Young Adult Resources Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Eli Lilly and Company and Genentech, Inc. & Biogen.The post Accelerating Hope for Aggressive Non-Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Mrinal Patnaik, MBBS While chronic myelomonocytic leukemia (CMML) is a rare disease, it is not rare to the patients and loved ones who are affected by it. In this episode, Dr. Mrinal Patnaik of the Mayo Clinic in Rochester, MN, discusses the unique aspects of CMML and how it is classified and treated.  Dr. Patnaik shares the latest treatment advances and discusses the importance of patients’ quality of life. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic myelomonocytic leukemia (CMML) Myeloproliferative Neoplasms (MPNs) Myelodysplastic syndromes (MDS) Acute myeloid leukemia (AML) Stem Cell Transplantion Graft-vs-host Disease (GVHD) Minimal/Measurable Residual Disease (MRD) Clinical Trial Support Center Spanish Risk Stratification System French Risk Stratification System RAS mutations (study) – Nature Communications  TET2 mutations (study) – Leukemia Decitabine Versus Hydroxyurea (study)– Journal of Clinical Oncology Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Caregiver support  Young Adult Resources Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Taiho Oncology, Inc.The post Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) first appeared on The Bloodline with Blood Cancer United Podcast.

When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other age groups.  Healthcare and nonprofit professionals around the world are listening to patients and researching these issues to improve quality of life during and after treatment. In this episode, we are taking you onsite to the 5th Annual Global Adolescent and Young Adult Cancer Congress in Long Beach, CA. Elissa met with experts who discussed mental health, the resiliency of AYA patients when facing uncertainty, healthcare transitions and disparities, and how patients can advocate for their care.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Promoting Resilience in Stress Management Stupid Cancer CancerCon First Descents True North Treks Additional LLS Support Resources:  Information Specialists  LLS Financial support (Copay assistance) Free telephone/web patient programs  Free booklets  Caregiver support  Survivorship Workbook Clinical Trial Support Center LLS Public Policy and Advocacy Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations The post The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

Brian Connell Cancer related costs can be an overwhelming burden for patients on Medicare. However, new changes in Medicare will directly impact cancer patients and ease this financial burden. In this episode, Brian Connell, the Vice President of Federal Affairs at LLS, discusses the new changes in Medicare for 2024 and 2025, as a result of the recent Inflation Reduction Act. Medicare recipients will benefit from these important changes, making cancer treatment more affordable and accessible. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  LLS Blog Post with Changes and Infographics (English and Spanish) LLS Financial support (Copay assistance) LLS Public Policy and Advocacy Information Specialists  Inflation Reduction Act and Medicare Low Income Subsidy Program Additional LLS Support Resources:  Free telephone/web patient programs  Free booklets  Caregiver support  Young Adult Resources Survivorship Workbook Clinical Trial Support Center Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations The post Be Informed: Beneficial Medicare Changes first appeared on The Bloodline with Blood Cancer United Podcast.

Mia Johnson Please join us for the latest episode of our Community Outreach In The Field series, where our field correspondents, comprised of LLS Staff, will be on the ground interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will make listeners feel like they are right in the middle of the action! In this episode, Mia Johnson, the National Community Outreach Manager for LLS’s Myeloma Link program, hosted an event curated for Black women called “Red, Bred & Led” in Houston, TX. This weekend-long event consisted of a Sip and Paint Party, a Luxe brunch, and Sunday worship, all with an educational overview of multiple myeloma. This event heightened awareness of how myeloma disproportionately affects Black communities. A heavy focus was given on female caregivers, and how they can spread awareness and share resources available to them within their families and communities if a loved one is diagnosed with a blood cancer. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloma Link Multiple Myeloma Community Outreach In The Field: Blood and Chess Atlanta Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Caregiver support  Young Adult Resources Survivorship Workbook Clinical Trial Support Center Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Bristol Myers Squibb; Eli Lilly and Company; GSK and Pharmacyclics, An AbbVie Company & Janssen Biotech.The post Community Outreach in The Field: Red, Bred & Led Houston first appeared on The Bloodline with Blood Cancer United Podcast.

Angela Fleischman, MD Myeloproliferative Neoplasms (MPNS) is an umbrella term that includes myelofibrosis (MF), essential thrombocythemia (ET) and polycythemia vera (PV). In this episode, Dr. Angela Fleischman of the Chao Comprehensive Cancer Center in Orange, CA, delves into these disorders in more detail. She shares how a patient’s quality of life can be improved with the latest advancements in treatment.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloproliferative Neoplasms (MPNs) Acute myeloid leukemia (AML) Stem Cell Transplantion Graft-vs-host Disease (GVHD) 23andMe® Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Caregiver support  Young Adult Resources Survivorship Workbook Clinical Trial Support Center Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Bristol Myers Squibb.The post Living A Full Life: Exploring Myeloproliferative Neoplasms (MPNs) first appeared on The Bloodline with Blood Cancer United Podcast.

Carlos Silva, MD and Margie Únase a nosotros mientras hablamos sobre la terapia de células T con receptores de antígenos quiméricos (CAR-T, en inglés) con el Dr. Carlos Silva, hematólogo/oncólogo, especialista en trasplante de médula ósea y terapia celular del equipo de Hematología Maligna y Terapia Célular de Moffitt en el Sistema de Salud Memorial en Pembroke Pines, Florida.  En este episodio, exploramos los últimos avances y lo que se espera en el futuro para esta terapia transformadora. Veamos como este tratamiento innovador dará esperanza a los pacientes con cáncer de la sangre y a sus familiares. Aprenderemos como a través de la utilización de terapias dirigidas, podemos ahora ver un futuro lleno de mejores resultados y posibles curas. DESCARGAR TRANSCRIPCIÓN HAGA CLIC AQUI para participar en la encuesta del episodio. Mencionado en este episodio:  Terapia  de células T con receptores de antígenos quiméricos (CAR-T) Proceso para la terapia de células T con receptores de antígenos quiméricos (CAR T-cell therapy, en inglés) Síndrome de liberación de citoquinas Trasplante de cédulas madre Centro de apoyo de ensayos clínicos Recursos de asistencia adicionales de LLS:  Sitio web en español de LLS Alimentos y nutrición Apoyo Económico Aplicación móviles gratuitas Especialistas en información (siglas IRC) Manuales del cuidador Manuales del sobreviviente Programas de asistencia económica al paciente Publicaciones informativas gratuitas Webcast, Videos y Episodios de Pódcast Este episodio es apoyado por: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics Ltd; Janssen Oncology & Legend Biotech; Kite, A Gilead Company and Novartis Pharmaceuticals Corp.The post Atacando las Células Cancerosa: Avances en La Terapia de Células T con Receptores de Antígenos Quiméricos (CAR-T) first appeared on The Bloodline with Blood Cancer United Podcast.

Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival. Join us as we talk to chronic myeloid leukemia (CML) patient, Jonathan Daige, and Registered Dietitian, Jennifer Redlich, about healthy eating and the benefits of a balanced diet. In this episode, Jonathan, a three-time cancer survivor, shares his journey of nutrition and exercise through his cancer treatments. Jennifer gives tips on putting together balanced meals that provide patients with the nutrients they need to nourish their bodies during cancer treatments. All cancer patients and caregivers can benefit from this episode, as we learn that no step is too small to maintain good nutrition. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  LLS PearlPoint Nutrition Services® Chronic Myeloid Leukemia Thin Blue Ride (ThinBlueRide.org) Stem Cell Transplant America’s Most Beautiful Bike Ride – LLS Team In Training Shred for Red Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Young Adult Resources Survivorship Workbook Caregiver support  Clinical Trial Support Center Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Novartis Pharmaceuticals Corporation.The post Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Cancer-related fatigue can be a tremendous burden on patients and caregivers. In this episode, we speak to Dr. Mariam Nawas and oncology nurse, Mary Lappe, of University of Chicago Medicine, about how cancer-related fatigue is identified and managed. Patients and caregivers will be empowered to work with their treatment teams, addressing cancer-related fatigue to improve quality of life during cancer treatments and survivorship. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Cancer-related fatigue Cancer-related fatigue fact sheet Transplant Support and Graft-vs-Host Disease (GVHD) podcast episode Stem Cell Transplant Caregiver support  Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Young Adult Resources Survivorship Workbook Clinical Trial Support Center Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode is provided by University of Chicago Comprehensive Cancer Center. The post Quality-of-Life: Managing Cancer-Related Fatigue first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we highlight how pivots in therapy and self-advocacy were used to treat a young woman’s diagnosis of non-Hodgkin lymphoma. In this episode, Caitlyn Householder, diagnosed with diffuse large B-cell lymphoma in 2019, shares her incredible journey after finding out that she was pregnant the day she was admitted to the hospital to treat her lymphoma. An ever-evolving plan was then set into motion to not only save Caitlyn’s life but allow for her pregnancy to continue.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma Diffuse large B cell lymphoma Shared decision making podcast Fertility information Fertility and cancer fact sheet Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Patti Robinson Kaufmann First Connection Program  LLS Community  Young Adult Resources Survivorship Workbook Online chats  Clinical Trial Support Center Caregiver support  Support groups  Free Nutrition Consultations Support for this episode provided by: Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Company.The post Non-Hodgkin Lymphoma: Cancer & Pregnancy first appeared on The Bloodline with Blood Cancer United Podcast.

Tina Bhatnagar, DO Most blood cancer patients can experience side effects from their cancer diagnosis, or its treatments. In certain blood cancers, an urgent condition called tumor lysis syndrome (TLS) can develop. Dr. Tina Bhatnagar of the West Virginia University Cancer Institute joins us in this episode to explain why tumor lysis syndrome occurs and how it is treated. Although considered a medical emergency, Dr. Bhatnagar reviews how prevention and treatment can be successful in the treatment of TLS. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Tumor Lysis Syndrome Acute Lymphoblastic Leukemia B cell lymphomas Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Patti Robinson Kaufmann First Connection Program  LLS Community  Young Adult Resources Survivorship Workbook Online chats  Clinical Trial Support Center Caregiver support  Support groups  Free Nutrition Consultations Support for this program is provided by: Sanofi US.The post Tumor Lysis Syndrome: What Patients Need to Know first appeared on The Bloodline with Blood Cancer United Podcast.

Steve Buechler As a cancer patient or caregiver, telling your story can not only be a way to update loved ones about your condition or be a comfort to current patients, it can be healing for yourself. In this episode, we speak to Steve Buechler about his treatment for acute myeloid leukemia as well as his experience through survivorship. Steve shares how writing helped him heal from the emotional effects of cancer. As an LLS volunteer, he now facilitates writing workshops for our LLS Community and wrote an article about how language matters when speaking to patients. Join us to hear about Steve’s “odyssey” through AML, which he describes as not something he chose, but something that taught him more about life and himself. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Myeloid Leukemia Stem Cell Transplant Cord Blood Transplant Resources Graft-Vs-Host Disease (GVHD) How Steve Became Ralph Language Matters: What Supporters Say is Not Always What People with Cancer Hear Patti Robinson Kaufmann First Connection Program  LLS Community – be informed of upcoming writing workshops Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Young Adult Resources Survivorship Workbook Online chats  Clinical Trial Support Center Caregiver support  Support groups  Free Nutrition Consultations Support for this program is provided by: Bristol Myers Squibb. The post Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML) first appeared on The Bloodline with Blood Cancer United Podcast.

Carlos Silva, MD and Elissa Please join us as we speak about CAR T-cell therapy with Dr. Carlos Silva, a Moffitt Cancer physician at Memorial Healthcare System in Pembroke Pines, Florida. In this episode, we explore the latest advances and what the future holds for CAR T-cell therapy.    This comprehensive view of CAR T-cell therapy will give blood cancer patients and their families hope. Through the utilization of targeted therapies, we can now see a future filled with better outcomes and potential cures. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  CAR T-cell Therapy Cytokine release syndrome Stem Cell Transplant Graft-Vs-Host Disease (GVHD) Clinical Trial Support Center Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Young Adult Resources Survivorship Workbook Online chats  Caregiver support  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this program is provided by: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics Ltd; Janssen Oncology & Legend Biotech; Kite, A Gilead Company and Novartis Pharmaceuticals Corp. The post Attacking the Cancer Cell: Advances in CAR T-Cell Therapy first appeared on The Bloodline with Blood Cancer United Podcast.

Join us live from Miami, FL, as we talk about healthcare disparities and equity with Dr. Erin Kobetz of Sylvester Comprehensive Cancer Center and Seth Berkowitz, Director of Patient and Community Outreach at LLS. In this episode, we discuss how organizations like Sylvester and LLS work together to address healthcare gaps and barriers that patients may face in accessing quality and affordable cancer care. The diverse population in South Florida has provided opportunities for researchers, cancer advocates and community health workers to implement new, innovative programs with the goal of giving every person the same access to care. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Sylvester Community Advisory CommitteeNational Cancer InstituteLLS Blood Cancer ConferencesThe Paradox of Prevention – Geoffrey RoseGame-changer vehiclesMedical Care for Undocumented People (En Español) Additional LLS Support Resources:  Information Specialists Caregiver support Free telephone/web patient programs Free booklets Financial supportYoung Adult ResourcesSurvivorship WorkbookClinical Trial Support CenterOnline chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this program is provided by: Bristol Myers Squibb; Eli Lilly and Company; GSK and Pharmacyclics, An AbbVie Company & Janssen Biotech.The post Chipping Away at the Iceberg: Addressing Healthcare Disparities and Equity first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission, while Tim shares his experience using newer therapies. Both share their stories and how CML has impacted their lives. Both Tim and Becky have worked to build and maintain a good quality of life and have used their experiences to help others in the cancer community and find connection. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Myeloid Leukemia (CML)Tyrosine Kinase Inhibitors (TKIs)LeukapheresisStem Cell TransplantDonor Lymphocyte Infusion (DLI)Graft-Vs-Host-Disease (GVHD)Showing Up: Perspectives On Cancer ShowPerspectives On Cancer BookPodcastNotPodcast: Tim Sohn. Leukemia and Livestreaming.Information Specialists Caregiver support  Additional LLS Support Resources:  Free telephone/web patient programs Free booklets Financial supportYoung Adult ResourcesSurvivorship WorkbookClinical Trial Support CenterOnline chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by: Novartis Pharmaceuticals Corporation. The post Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Richard Larson and Dr. Anand Patel from University of Chicago Medicine about chronic myeloid leukemia (CML). In this episode, they discuss the latest advances in treatment for CML and what is on the horizon. With decades of progress with targeted treatments, CML patients are now given more hope of achieving deep remission and potentially discontinuing medication. A cure for an incurable disease may now be in sight. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Myeloid Leukemia (CML)Tyrosine Kinase Inhibitors (TKIs)FISH testStem Cell TransplantCellular TherapiesInstilling Hope Through Progress: Myelodysplastic Syndromes (MDS) Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportYoung Adult ResourcesSurvivorship WorkbookClinical Trial Support CenterOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode is provided by University of Chicago Comprehensive Cancer Center. The post Hopeful Advancements for Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Unase a nuestro anfitrión, Javier Macias, y nuestra invitada Susan Moscoso, BSN, RN, BMT-CN, una de las enfermeras orientadoras del Centro de Apoyo para Ensayos Clínicos de La Sociedad de Lucha contra la Leucemia y el Linfoma. Explican importancia de los ensayos clínicos, los beneficios de participar en ensayos clínicos y cómo los enfermeros orientadores ayudan a los pacientes encontrar ensayos clínicos apropiados mientras los apoyan durante el proceso. DESCARGAR TRANSCRIPCIÓN Mencionado en este episodio:  Apoyo EconomicoCafecito con LLS: Hablamos de los Ensayos ClinicosCentro de Apoyo para Ensayos Clinicos  (siglas CTSC)Comunicandose con su medico y hablando sobre ensayos clinicosEspecialistas en Información  (siglas IRC) Recursos additionales de apoyo de LLS: LLS.org/EspanolAlimentos y nutriciónAplicación de Salud de LLSApoyo Entre ParesAtención Médica Para Personas IndocumentadasManuales del sobreviviente     Publicaciones informativas gratuitas                      Webcast, Videos Y Episodios de PódcastThe post En Español: Navegando Ensayos Clínicos first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments. While their lives have been impacted by these treatments, they have been able to find joy and peace as they work to overcome these side effects. Don’t miss out on this important episode, as blood cancer patients learn to give themselves grace during challenging days in treatment and beyond. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Diffuse large b cell lymphoma (DLBCL)Acute myeloid leukemia (AML)LIVE! At CancerCon: A Journey Through Survivorship podcast episodeArmenian Bone Marrow Donor RegistryCancer-related cognitive impairmentThe Gathering PlaceGilda’s Club Kentuckiana (other cities available)Caring for Kids and Adolescents WorkbookSurvivorship Workbook Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Free booklets Patti Robinson Kaufmann First Connection ProgramClinical Trial Support CenterLLS Financial Assistance ProgramLLS Community Online chats Caregiver support Support groups Caregiver WorkbookFree Nutrition Consultations LLS Advocacy Support for this episode provided by: Pharmacyclics, An AbbVie Company and Janssen Biotech. The post Give Yourself Grace: Overcoming Long-term Side Effects first appeared on The Bloodline with Blood Cancer United Podcast.

Heidi MacAlpine Join us as we speak to Heidi MacAlpine, a chronic lymphocytic leukemia (CLL) patient and occupational therapist. In this episode, Heidi talks to us about her diagnosis of CLL and how she has utilized wellness techniques to reduce inflammation and maintain a good quality of life while on a watch and wait protocol.  This episode will help patients, caregivers and healthcare professionals understand the benefits of adding wellness practices to conventional therapies, such as yoga, mindfulness, journaling, and massage, to decrease side effects and improve the life of patients following a cancer diagnosis.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Lymphocytic Leukemia (CLL)Watch and Wait (Active Monitoring) protocolLLS Write It Out JournalGenetic predisposition to CLLNational Center for Complementary and Integrative HealthPatient-Doctor Perspectives: Shared Decision Making podcast episodeShared Decision Making in Chronic Leukemias interactive programAmerican Association for Cancer ResearchInterleukin 8Caregiver support Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Free booklets Patti Robinson Kaufmann First Connection ProgramClinical Trial Support CenterLLS Financial Assistance ProgramLLS Community Online chats Support groups Caregiver WorkbookFree Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by: BeiGene USA, Inc.; Bristol Myers Squibb; Genentech, Inc. & Biogen; Loxo Oncology at Lilly and Pharmacyclics, An AbbVie Company & Janssen Biotech.The post Improving Quality of Life Through Wellness Practices first appeared on The Bloodline with Blood Cancer United Podcast.

Tim Cooper Join us as we speak to Tim Cooper, a multiple myeloma patient and caregiver. In this episode, Tim discusses how he was diagnosed with myeloma after sustaining a neck fracture. Unlike many patients, he was familiar with myeloma, as his mother had been diagnosed with myeloma years prior.   After multiple treatments, including chemotherapy and stem cell transplantation, Tim is doing well and enjoying life. He finds that sharing his story is therapeutic and encourages other patients to keep pushing forward and find hope after a blood cancer diagnosis.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Multiple MyelomaLLS Financial Assistance ProgramAutologous Stem Cell TransplantationBeating Incurable podcast episodesCaregiver support  Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Free booklets Patti Robinson Kaufmann First Connection ProgramClinical Trial Support CenterLLS Community Online chats Support groups Caregiver WorkbookFree Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by: Bristol Myers Squibb; GSK plc.The post Making The Decision To Live: A Myeloma Story first appeared on The Bloodline with Blood Cancer United Podcast.

Laurie Adami Join us as we speak to Laurie Adami, a follicular lymphoma (non-Hodgkin lymphoma) survivor. In this episode, Laurie shares her long journey through multiple cancer treatments, which eventually led to CAR T-cell therapy and complete remission. Hear one patient’s story of hope, as new treatments continued to come out, keeping her stable until the one that finally worked was approved for her disease. Her story of resilience and determination to stay alive for her young son is the inspiration that so many blood cancer patients need. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Follicular Lymphoma CAR T-cell Therapy Sjorgren’s Syndrome Patti Robinson Kaufmann First Connection Program Allogeneic Stem Cell Transplant Graft-Vs-Host Disease (GVHD) LLS Public Policy & Advocacy Light The Night Woman of The Year (Visionaries of the Year) Student of The Year Team In Training Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center LLS Community  Online chats  Support groups  Caregiver support  Caregiver Workbook Free Nutrition Consultations  LLS Advocacy Survivorship Workbook Support for this episode provided by: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics; Janssen Oncology & Legend Biotech; Kite, A Gilead Company; Novartis Oncology.The post Statistics Don’t Color My Outcome: A CAR T-cell Therapy Success first appeared on The Bloodline with Blood Cancer United Podcast.

Lee Greenberger, PhD Join us as we speak to Dr. Lee Greenberger, the Senior Vice President and Chief Scientific Officer of The Leukemia & Lymphoma Society. In this episode, Dr. Greenberger gives us updates on the COVID-19 pandemic. As the virus has continued to evolve at a rapid pace, we discuss how the national approach to this pandemic has changed and what measures we can use to stay safe. Patients and their families will be given updated and accurate information to stay safe as we all move into the winter season, where we gather indoors and celebrate holidays with family and friends. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  LLS COVID WebsiteLLS Patient RegistryProtecting Patients: COVID and Vaccine Updates podcast episodeCOVID variant soup is making winter surges hard to predict – NatureCDC Weekly Covid TrackerCoronavirus (COVID-19) Online Chat for Patients and Caregivers: Banding Together: Feeling Good FridaysCaregivers: Banding Together: Feeling Good Fridays Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Free booklets LLS Public Policy & AdvocacyPatti Robinson Kaufmann First Connection ProgramClinical Trial Support CenterLLS Community Online chats Support groups Caregiver support Caregiver WorkbookFree Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by: BeiGene; Bristol Myers Squibb; Genentech, Inc.; Kite, A Gilead Company; Pfizer, Inc.; Pharmacyclics, An AbbVie Company & Janssen Biotech.The post COVID: Staying Safe As The Virus Evolves first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that the site also afforded the opportunity for family members and friends to engage and give them support. Tia then shares the mission of CaringBridge and how it has evolved into a community of over one million pages where patients and caregivers communicate their updates and needs with family members from diagnosis through survivorship. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  CaringBridge®Diffuse Large B LymphomaMealTrainWrite for Life: Persisting in Online Health Communities through Expressive Writing and Social SupportCaregiver support Caregiver Workbook Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Free booklets LLS Public Policy & AdvocacyPatti Robinson Kaufmann First Connection ProgramClinical Trial Support CenterLLS Community Online chats Support groups Free Nutrition Consultations LLS AdvocacySurvivorship WorkbookThe post Engaging with Loved Ones: A CaringBridge Story first appeared on The Bloodline with Blood Cancer United Podcast.

John Falco Join us as we speak to John Falco, who was diagnosed with chronic myeloid leukemia (CML) in 2019 and then later diagnosed with acute myeloid leukemia (AML) in his brain in 2021. This incredibly rare second diagnosis changed the course of John’s treatment and thankfully led to him achieving a complete remission after a stem cell transplant. As a young adult professional, John was at the heart of his career at the time of his diagnosis and felt the pressure to return to normal, which meant returning to work quickly. He shares advice with other young adult cancer patients to slow down and enjoy life, while also listening to your body and advocating for yourself. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Myeloid LeukemiaAcute Myeloid LeukemiaStem Cell TransplantTyrosine Kinase Inhibitors (TKIs)Be The Match – Bone Marrow Donor RegistryLet’s Talk About Stem Cell Transplantation: Benefits and Side Effects podcast episodeTips about Talking to Your Employer Light The Night event Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Free booklets LLS Public Policy & AdvocacyPatti Robinson Kaufmann First Connection ProgramClinical Trial Support CenterLLS Community Online chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacySurvivorship Workbook The post A Young Adult’s Journey Through Two Leukemia Diagnoses first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Anand Patel and Dr. Satyajit Kosuri from The University of Chicago Medicine about the latest treatment advances for myelodysplastic syndromes (MDS). In honor of MDS Awareness Day on October 25th, the doctors discuss how MDS develops, why genetic mutations matter when choosing a treatment course, and how stem cell transplantation, targeted treatments and cellular therapies bring hope to MDS patients and their families. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myelodysplastic syndromesAcute Myeloid LeukemiaTransplant Support and Graft-Versus-Host-Disease (GVHD) episodePatient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) Transplant Optimization Program (TOP)MyeloMATCH initiativeCAR T-cell TherapyStem Cell TransplantCellular TherapiesGraft-Vs-Host DiseaseBe The Match – Bone Marrow Donor Registry Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportYoung Adult ResourcesSurvivorship WorkbookClinical Trial Support CenterOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode is provided by University of Chicago Medicine. The post Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

Bruce Rieder Don’t miss this story of a patient who refuses to let cancer define his life.   Join us as we speak to Bruce Rieder, who was diagnosed in 2019 with mantle cell lymphoma (MCL), a type of non-Hodgkin lymphoma. In this episode, Bruce shares about his diagnosis and subsequent search for a clinical trial. He connected with the LLS Clinical Trial Support Center, sought out a second opinion and ended up with a specialist in a nearby cancer center. He received a stem cell transplant in February 2020, right before the world shut down due to COVID.   Now, two years after his transplant, Bruce stays active in the LLS Community and has received support from the Patti Robinson Kauffman First Connection® program. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Mantle Cell LymphomaMantle Cell Lymphoma (MCL) Part One: Treatment Advances episodeMantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy episodeStem Cell TransplantNon-Hodgkin LymphomaCOVID InformationPatti Robinson Kaufmann First Connection ProgramClinical Trial Support CenterLLS Community  Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Free booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Co., Inc. The post Cancer Doesn’t Define My Life: A Non-Hodgkin Lymphoma Story first appeared on The Bloodline with Blood Cancer United Podcast.

Bryon Daily Please join us for a brand new series called, Community Outreach In The Field, where our field correspondents, comprised of LLS Staff, will be interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will give the listener the feel that they are right in the middle of the action. In the first episode, Bryon Daily, the National Community Outreach Manager for LLS’ Myeloma Link Program, explored one of the newest outreach settings called Blood and Chess. This chess event took place in Atlanta, Georgia, at The Anguished Barber and is designed as an off shoot of the barbershop model, where advocates can spread blood cancer awareness in comfortable community settings and help to decrease healthcare disparities of underserved communities. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloma Link Multiple Myeloma Acute Lymphoblastic Leukemia (ALL) Stem Cell Transplant Understanding Racial and Ethnic Disparities in Healthcare Health Advocates in Reach and Research (HAIR) Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Patti Robinson Kaufmann First Connection Program Free booklets  LLS Public Policy & Advocacy Online chats  Caregiver support  Support groups  Free Nutrition Consultations  LLS Advocacy Survivorship Workbook Support for this episode provided by Genentech, Inc. and BiogenThe post Community Outreach In The Field: Blood and Chess Atlanta first appeared on The Bloodline with Blood Cancer United Podcast.

Matthew Davids, MD Please join us as we speak to Dr. Matthew Davids of Dana-Farber Cancer Institute. In this episode, Dr. Davids discusses current treatments for chronic lymphocytic leukemia (CLL) and the exciting possibilities for the future using immunotherapies. Dr. Davids shares how the goal of treatment is long term remission and quality of life. Since 2010, BTK Inhibitors, CAR T-cell therapy and other treatments have come on the market and have increased the possibilities for patients to live a long life with CLL. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Lymphocyctic Leukemia (CLL)How CAR T Cell Therapy Gives Hope to Cancer Patients Podcast EpisodeCURE Magazine Article on CAR T and Young CLL PatientsAmerican Journal of Managed Care – CAR T cells persistMinimal/Measurable Residual Disease (MRD) Fact SheetCAR T-cell TherapyCAR T-Cell Therapy WebinarHow CAR T-Cell Therapy Works In Augmented RealityStem Cell TransplantAllogeneic Stem Cell TransplantAutologous Stem Cell TransplantLLS COVID-19 ResourcesClinical Trial Support CenterThe Bloodline Subscriber Lounge Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets Online chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by BeiGene USA, Inc.; Bristol Myers Squibb; Genentech, Inc. & Biogen; Loxo Oncology at Lilly and Pharmacyclics, An AbbVie Company & Janssen Biotech, and Thomas D. Oxley Fund for CLL Patient Education and Support.The post Achieving Long-term Remission with Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us for our second live episode from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed survivorship planning, imposter syndrome, and developing a growth mindset. Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from hearing from these experts. Be sure to tune into the previous episode from CancerCon, where we hear from young adult cancer patients and survivors on what the word, “survivorship” means to them and how that meaning may have changed throughout their cancer experience. *NOTE: For the safety of all participants, masks were required at all times during the conference. All cancer patients and survivors were encouraged to speak to their doctor prior to participating. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Survivorship Definition – National Cancer InstituteSurvivorship WorkbookYoung Adult Online ChatYoung Adult ResourcesStupid Cancer®National Cancer Institute Cancer CentersGrow Into GreatnessFirst Descents® Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacyThe post LIVE! at CancerCon: Navigating Young Adult Cancer first appeared on The Bloodline with Blood Cancer United Podcast.