The Bloodline with Blood Cancer United Podcast

Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of Acute Lymphoblastic Leukemia (ALL), and Nikki Yuill, a social worker with the LLS Information Resource Center. In this episode, we discuss young adult cancer (15-39 yrs) and what happens from diagnosis through survivorship. Learn about the unique issues that young adults face and how LLS is here to help them through. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphomblastic Leukemia (ALL)Communicating with your Healthcare TeamCancerConStupid CancerYoung Adult ChatMore Young Adult Specific ResourcesBone Marrow Transplant Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations The post I Am a Young Adult With Cancer…Now What? first appeared on The Bloodline with Blood Cancer United Podcast.

Ola Ojewumi Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how she has learned to advocate for herself and others. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Post-Transplant Lymphoproliferative Disorder (PTLD)LLS Health Manager AppRacial Bias in Chronic Pain StudyOla Speaking to CongressProject ASCEND#PatientsAreNotFaking Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition ConsultationsThe post Facing Racial Disparities as a Black Disabled Patient first appeared on The Bloodline with Blood Cancer United Podcast.

Christabel Cheung, PhD, MSW Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In this episode, Christabel talks about her extraordinary struggles as a young adult with cancer, such as living alone without family support and having high healthcare costs. She also delves into the health disparities, racism and racial insensitivity that BIPOC (Black, Indigenous, People of Color) patients experience. Be sure to listen to Part One first to hear more about Christabel’s journey with Hodgkin Lymphoma as a Young Adult. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Dr. Brad J. ZebrackElephants and Tea MagazineJade GangsterStupid CancerHodgkin Lymphoma (HL) Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Seagen, Inc. The post Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Christabel Cheung, PhD, MSW Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In Part One, Christabel tells us about her longtime journey with lymphoma, including a relapse and going through the second diagnosis during a global pandemic. She shares her struggles of not only a diagnosis, where she is in the small percentage that didn’t respond to first-line treatment, but also going through cancer as a racial minority and young adult. Be sure to tune into Part Two as she delves more into health disparities for young adults and BIPOC (Black, Indigenous, People of Color) communities. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Dr. Brad J. ZebrackThe Impact of Cancer on Young Adults Video Clip featuring Dr. Brad ZebrakDr. Ibram X. Kendi Brian GoldmanJade GangsterCancerConHodgkin Lymphoma (HL) Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Seagen, Inc. The post Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Shelly Rosenfeld, Esq. from the Cancer Legal Resource Center and Dr. Steven Pergam from Seattle Cancer Care Alliance. Ms. Rosenfeld and Dr. Pergam presented at CancerCon during a session called, “Understanding Medical Marijuana: It’s a Joint Effort”. In this episode, our speakers dive into the various forms of marijuana, how they can be used to combat side effects of cancer treatment, and the legal issues surrounding their use throughout the United States. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Cancer Legal Resource Center Seattle Cancer Care Alliance CancerCon National Academies of Sciences, Engineering, and Medicine National Institutes of Health (NIH) Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats LLS Community Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Pain Treatment The information contained in this podcast is for general information purposes only and is subject to change without notice. It is not intended to substitute the medical advice of your healthcare provider, information provided to you by your insurance carrier, or to provide legal advice with respect to the subject matter addressed in the podcast.The post Medical Marijuana & Cancer: What you Need to Know first appeared on The Bloodline with Blood Cancer United Podcast.

Laurie Sehn, MD, MPH Join us as we report on the latest developments in immunotherapy from the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition that was hosted virtually December 5-8, 2020. In this episode, we will be speaking to Dr. Laurie Sehn, a Clinical Professor and Researcher with the British Columbia Cancer Centre for Lymphoid Cancer and The University of British Columbia. Immunotherapy was a primary topic at this year’s ASH meeting. Dr. Sehn shares exciting news about the advancements in immunotherapy for Non-Hodgkin Lymphoma. Hear why lymphoma is a great candidate for immunotherapy, how it works, and how a collaboration of researchers from around the world is accelerating the number of new and effective treatments available for lymphoma patients. This podcast episode is NOT an official program of the ASH annual meeting. Support for this episode provided by Genentech and Pharmacyclics. Dr. Laurie Sehn’s Bio DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: The American Society of Hematology (ASH)BC Cancer Agency Chimeric Antigen Receptor T-Cell TherapyImmunotherapyLymphoma Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition ConsultationsThe post Tackling Lymphoma: Recent Advances in Immunotherapy first appeared on The Bloodline with Blood Cancer United Podcast.

Courtney DiNardo, MD, MSCE Join us as we speak to Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX. about the recent advancements in AML treatment.  Dr. DiNardo is an academic clinical researcher who has participated in clinical trials resulting in three new AML therapies since 2017. In this episode, we dive into the new treatments that are showing great promise, as well as discuss how AML can be hereditary.  With recent results of the Beat AML Master Clinical Trial, the increasing potential of immunotherapy and other new treatments, this episode is sure to give hope for current and future AML patients and caregivers.   Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute myeloid leukemia (AML)MD AndersonBeat AML® Master Clinical TrialPersonalized MedicineMinimal Residual DiseaseHereditary Hematologic Malignancy Leukemia Clinic Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Astellas and Novartis. The post Providing Hope for AML Patients first appeared on The Bloodline with Blood Cancer United Podcast.

Meredith Hemphill Ruden, DSW, LCSW Join us as we speak to Dr. Meredith Hemphill Ruden, who had an informative session at CancerCon on Parenting with Cancer. Meredith is a licensed clinical social worker, 13-year Melanoma cancer survivor and Executive Director of the Feather Foundation. In this episode, Meredith dives into the challenging topic of being a parent while dealing with a cancer diagnosis and treatment. After becoming a social worker following treatment, she started to notice that there weren’t as many resources to help parents who had cancer. To combat this shortfall, she started The Feather Foundation, a nonprofit organization dedicated to supporting parents throughout their cancer journey. This episode highlights the importance of making self-care a priority and how to find hope as a family while dealing with cancer. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: The Feather Foundation Caregiver SupportSupport GroupsManaging Your Cancer Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsLLS CommunityPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations The post Strap on your Oxygen Mask First: Being a Parent with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Aaron Goldberg, MD, PhD Join us as we speak with Dr. Aaron Goldberg from Memorial Sloan Kettering Cancer Center in New York City.  Dr. Goldberg discusses how secondary AML differs from AML and how treatment is determined. Secondary AML is a diagnosis of AML that has occurred after previous exposure to radiation or chemotherapy for another cancer or has evolved from a prior diagnosis of MDS, MPN or Aplastic Anemia.  In this episode, Dr. Goldberg points out the major difference between secondary AML and de novo AML and new, promising treatments. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this Episode: Acute myeloid leukemia (AML)Integrative Medicine ServiceStem Cell TransplantationMyelodysplastic syndrome (MDS)Myeloproliferative neoplasms (MPN) Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Understanding Secondary AML Webcast Support for this episode provided by Jazz Pharmaceuticals. The post Complexities of Secondary AML with Dr. Goldberg first appeared on The Bloodline with Blood Cancer United Podcast.

Kristin Fuhrmann-Simmons Join us as we speak to Kristin Furhrmann-Simmons, a caregiver and an LLS volunteer. Kristin talks to us about caring for her father who is a CLL survivor, and how she decided to join LLS’s advocacy efforts through our Office of Public Policy. For Kristin, it was a great way to connect with people in her community and share her family’s story. And she knew that for her dad, being as sick as he was, it was helpful to have her as his voice to bring forward some of the issues that her family was facing as a result of his treatment. This episode highlights how advocates carry the ability to uphold a voice that may have been silenced by a diagnosis. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this Episode: AdvocacyCaregiverTeam in Training Medicare Part DMobile Action Network Additional LLS Support Resources: Information SpecialistsInformation & Support ServicesClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Oral ParityPrescription Out-of-Pocket CostsShare your StorySign up to be an Advocate at LLS The post I’m a Caregiver & Advocate: Kristin’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

James Hoffman, MD Dr. Hoffman from the Sylvester Comprehensive Cancer Center, University of Miami Health System in Miami, Florida speaks to us about Hodgkin lymphoma and its interesting history.  Thankfully, Hodgkin lymphoma is now highly treatable and for the majority of people curable, but not for all.  Dr. Hoffman talks to us about what makes Hodgkin lymphoma unique, as well as discusses emerging therapies and long term and late effects for both young adult and older patients diagnosed with Hodgkin lymphoma. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this Episode: LymphomaHodgkin LymphomaClinical TrialsRadiation therapyChemotherapy Additional LLS Support Resources: Information SpecialistsInformation & Support ServicesClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Young Adults Support for this episode provided by Seattle Genetics. The post Your Questions Answered About Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Ellin Berman, MD Join us as Ellin Berman, MD a leukemia expert from Memorial Sloan Kettering Cancer Center discusses the advancements in treatment for Chronic Lymphocytic Leukemia (CLL). Dr. Berman explains how not all CLL is the same, as it is a heterogeneous disease which explains why one person’s CLL can act differently from another person’s CLL.  Dr. Berman speaks about how some patients do not start treatment right away and why some patients may be good candidates for clinical trials.  Every patient is different, and since there are newer treatments now available for CLL, Dr. Berman provides patients with different treatment options, and encourages patients to ask questions and to be a partner with their treatment team when making treatment decisions. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Chronic Lymphocytic Leukemia (CLL)Printable Question to ask your DoctorMemorial Sloan KetteringClinical Trial Support Center (CTSC)Ibrutinib Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Pharmacyclics/Janssen. The post CLL: Transformation in Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Roman Reigns We will be speaking with WWE Superstar, actor, and former professional football player, Joseph Anoai, who many may know as Roman Reigns. Apart from fighting opponents in the ring, Roman found himself fighting his biggest opponent yet after receiving his leukemia diagnosis back in 2007. Listen as Roman Reigns explains his cancer journey to our very own President & CEO, Dr. Louis DeGennaro.    Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Roman ReignsChronic myeloid leukemia (CML)LeukemiaMake-A-WishTypes of treatment for CMLRoman Reigns and LLS join forces Additional LLS Support Resources: Information SpecialistsInformation & Support ServicesClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations The post Together in the Fight Against Chronic Myeloid Leukemia (CML): Roman Reigns’ Story first appeared on The Bloodline with Blood Cancer United Podcast.

Mary J. Ninan, MD Dr. Mary Ninan speaks to Alicia, Lizette, and Edith about the most common subtype of non-Hodgkin lymphoma (NHL), known as Diffuse Large B-cell lymphoma (DLBCL). With over 70 subtypes of NHL, the priority when Dr. Ninan sees a patient with lymphoma is to confirm which subtype the patient has been diagnosed with in order to determine the best treatment plan. Dr. Ninan explains how lymphoma is staged, and various treatment options are discussed. The doctor also mentions how she always encourages patients and caregivers to ask questions and clarify the points that they do not understand in the treatment plan, as well as welcomes questions about how patients can manage their side effects. Also, in this episode, Dr. Ninan talks about one of the most exciting developments in the treatment of diffuse large B-cell lymphoma in recent years. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Diffuse large B-cell lymphomaAtlanta Medicine magazineCAR T-cell TherapyRituximabRadiation therapyChemotherapyNon-Hodgkin Lymphoma Additional LLS Support Resources: Information SpecialistsInformation & Support ServicesClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Epizyme, Genentech, Karyopharm, and Pharmacyclics/Janssen. The post Dr. Ninan explains Diffuse Large B-cell Lymphoma (DLBCL) first appeared on The Bloodline with Blood Cancer United Podcast.

Lori Leslie, MD Has the Coronavirus (COVID-19) affected your non-Hodgkin lymphoma treatment? Join Alicia, Lizette and Edith as they speak with Dr. Lori Leslie about non-Hodgkin lymphoma and how patients have been receiving treatment during the coronavirus pandemic. Dr. Leslie is a part of the lymphoma division of the John Theurer Cancer Center in Hackensack NJ.  She treats lymphoma and CLL clinically, is the director of the indolent lymphoma and CLL research programs and is heavily involved in the lymphoma CAR-T program. On this episode, Dr. Leslie explains the different types of lymphoma. The doctor informed us on how the coronavirus is affecting lymphoma patients, as well as if lymphoma patients should be taking any extra precautions at this time.  Dr. Leslie also updated us about the latest news regarding a vaccine for the coronavirus.  During this time, we remain hopeful after hearing Dr. Leslie say that research for lymphoma has continued despite the pandemic, and new treatments were recently approved for lymphoma patients. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Non-Hodgkin Lymphoma (NHL)COVID-19Follicular lymphoma (FL)Diffuse Large B-cell Lymphoma (DLBCL)CAR T-cell TherapyAllogeneic Stem Cell TransplantationNew England Journal of MedicineVaccines Additional LLS Support Resources: Information SpecialistsInformation & Support ServicesClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Epizyme, Genentech, Karyopharm, and Pharmacyclics/Janssen. The post What Non-Hodgkin Lymphoma (NHL) Patients Should Know During the COVID-19 Pandemic first appeared on The Bloodline with Blood Cancer United Podcast.

Brett Hagler Join this conversation as Alicia, Edith and Lizette sit down to chat with Brett Hagler.  Brett is an author, cancer survivor, and CEO of New Story, an organization that pioneers solutions to end global homelessness by working to create the world’s first 3D-printed community. On this episode, Brett explains how his chondrosarcoma diagnosis helped to refine his focus and future goals, putting him on the path of creating something bigger than himself. Despite diagnosis, Brett challenges patients to reflect on the question, “How do I want to remember this moment 10 years from now?”, to help gather strength and purpose to push forward. He also describes the crucial role of caregivers and the importance of having a supportive community rallying around each person facing a serious illness. Listen in and be sure to tell us how you liked the episode, by commenting below! Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: New StoryChondrosarcoma LLS CommunityLLS resources about COVID-19 Additional LLS support resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection Program Free Nutrition Consultations Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Creating Something Bigger Than Myself Despite Cancer: Brett Hagler’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Stephen B. Thomas, PhD Join this insightful conversation as Alicia, Edith and Lizette sit down to chat with Dr. Stephen B. Thomas, one of the nation’s leading scholars in the effort to eliminate racial and ethnic health disparities. Dr. Thomas is a Professor of Health Policy & Management and Director of the Maryland Center for Health Equity at the University of Maryland School of Public Health.  On this episode, Dr. Thomas explains structural determinants of health and defines ‘health disparity’ and ‘health equity’ as it relates to ethnicity and race in America. Dr. Thomas emphasizes that only together can we create lasting change and better outcomes for all people. He explains how his students and colleagues continue to think outside the box when creating ways to bring education and awareness to those within marginalized groups. Dr. Thomas shares the results of various research studies, current trends and future plans and projects that help to address racial and ethnic disparities within healthcare. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Race, Ethnicity, Culture, and Disparities in Health CareThe Gaps Between White and Black America, in ChartsA Cluster-Randomized Trial of Blood-Pressure Reduction in Black BarbershopsMyeloma linkTuskegee Syphilis Experiment Additional LLS support resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection Program The post Understanding Racial and Ethnic Disparities Within Healthcare first appeared on The Bloodline with Blood Cancer United Podcast.

Benjamin Lampson, MD Join Alicia, Lizette and Edith as they speak with Dr. Benjamin Lampson.  Dr. Lampson is an instructor in medicine at Dana-Farber Cancer Institute.  On this episode, Dr. Lampson explains how mantle cell lymphoma (MCL) is diagnosed and treated. Dr. Lampson gives his advice for MCL patients during the coronavirus (COVID-19) pandemic. He also shares the long-term effects of treatment, the future of treatment for MCL, clinical trials and when they are considered for treatment for lymphoma patients, and the importance of open communication between a patient and their healthcare team. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Mantle cell lymphoma (MCL) Treatment for MCL Stem cell transplant Drug therapies CAR T-cell therapy Clinical trials Additional LLS support resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Support for this episode provided by Pharmacyclics/Janssen.The post Mantle Cell Lymphoma (MCL) with Dr. Benjamin Lampson: What Patients Should Know first appeared on The Bloodline with Blood Cancer United Podcast.

Viviana Onofre Join Alicia, Lizette and Edith as they speak with Viviana Onofre about her follicular lymphoma diagnosis that she received in November 2015. On this episode she describes minor signs that she noticed prior to being diagnosed, the importance of patients educating themselves about their diagnosis to help relieve anxiety, asking questions to better understand health insurance to avoid delays in treatment and how her diagnosis has helped her to shift perspective and embrace growth. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Follicular lymphomaTreatment for indolent NHL subtypesClinical trialsLight The Night First Connection Program Additional LLS Support Resources: LLS CommunityInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportSupport groupsAdvocacy Support for this episode provided by Epizyme; Genentech; Karyopharm and Pharmacyclics/Janssen.The post Worrying is Not My Plan: Viviana’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Shella Saint Fleur-Lominy, MD, PhD Join Alicia and Lizette as they speak with Dr. Shella Saint Fleur-Lominy, MD, PhD, a hematologist and physician scientist from NYU Langone Health in New York, New York. Dr. Saint Fleur-Lominy is triple board certified in internal medicine, hematology and medical oncology. On this episode, Dr. Saint Fleur-Lominy explains the signs and symptoms of acute lymphoblastic leukemia (ALL), tests and examinations that are used to detect and diagnose ALL, how ALL is treated and the potential side effects of treatment. Dr. Saint Fluer-Lominy describes when transplant as well as chimeric antigen receptor (CAR) T-cell therapy may be considered as a treatment option and her excitement for promising new treatments. Dr. Saint Fleur-Lominy shares in great detail about the chromosomal changes for those with in ALL and emphasizes that there is nothing that a patient did to get their ALL diagnosis. She encourages patients to seek support and clarity about their disease so that they are not left feeling like their diagnosis is their fault. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute lymphoblastic leukemia (ALL)Signs and symptoms of ALLTypes of ALL treatmentChimeric antigen receptor (CAR) T-cell immunotherapyStem Cell transplantation Additional LLS Support Resources: LLS Community Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportSupport groups Support for this episode provided by Amgen and Takeda Oncology.The post How is Acute Lymphoblastic Leukemia (ALL) Diagnosed and Treated? first appeared on The Bloodline with Blood Cancer United Podcast.

Marni Amsellem, PhD May is Mental Health Awareness Month. The Leukemia & Lymphoma Society (LLS) recognizes the unique issues faced by blood cancer patients and caregivers from the moment of diagnosis throughout survivorship. These include psychosocial and emotional effects such as relationship stress, anxiety, depression, survivor guilt and more, which are further compounded by current events. Increased awareness about mental health and cancer can help patients and caregivers best advocate for treatment that meets the breadth of needs during the cancer journey and beyond. LLS provides education, support and resources that can help. On this episode, Alicia, Edith and Lizette speak with Dr. Marni Amsellem, a clinical psychologist in private practice, specializing in health psychology, stress, and coping. Join the conversation as Dr. Amsellem explains the effects that social isolation, caused by forced change, can have on a person’s mental health and ways to cope with them. She shares the challenges that many face as a patient and as someone living through today’s coronavirus (COVID-19) pandemic. She suggests ways to shift perspective as well as shares additional resources that help to address the emotional impact of isolation. We’d love to hear your thoughts on this episode. Please be sure to leave them below. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: www.smarthealthpsych.comAmerican Psychological AssociationReflections: A Journal Companion for the Cancer JourneyLLS Community Additional LLS Support Resources: LLS resources for mental healthInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportSupport groupsThe post Coping with the Challenges of Living in Isolation first appeared on The Bloodline with Blood Cancer United Podcast.

Ruben A. Mesa, MD, FACP What does the effect of the virus have on blood cancer patients? What are hospitals doing to ensure cancer patients can still get treatment during this pandemic? What makes COVID-19 so different than other viruses? Has there been any progress made regarding treatment for COVID-19? Join us on this episode as Alicia and Lizette speak with Ruben A. Mesa, M.D., FACP who will answer these questions and more. Dr. Mesa is director of the Mays Cancer Center, home to the UT Health San Antonio MD Anderson Cancer Center, a National Cancer Institute-designated Cancer Center. Dr. Mesa has been principal investigator or co-principal investigator in more than 70 clinical trials for patients with myeloid disorders and played a lead role in various FDA approvals. Currently, he is a co-principal investigator of the NCI Program Project Grant Funded Myeloproliferative Neoplasms Research Consortium, where he co-leads the clinical trial consortium. Listen in as Dr. Mesa details the reality of COVID-19, answers questions that many patients and caregivers are asking, and shares why he is hopeful about the future of this pandemic. On behalf of The Leukemia & Lymphoma Society, thank you to all healthcare workers on the frontlines of battling this virus. Doctors, nurses, researchers, technicians, transporters, EMTs, pharmacists, maintenance and cleaning staff, and everyone who supports patient care are rising to the occasion and caring for our most vulnerable populations. We will get through this together. Stay safe. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Coronavirus (COVID-19)LLS COVID-19 Patient Financial Aid ProgramFood and Drug Administration (FDA) Additional LLS support resources: World Health OrganizationInformation SpecialistsFree telephone/web patient programsLLS CommunityAdditional financial supportOnline ChatsCaregiver supportSupport groupsThe post What Blood Cancer Patients Need to Know About COVID-19 first appeared on The Bloodline with Blood Cancer United Podcast.

Bishoy Tadros Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society speak with Bishoy Tadros.  Bishoy was diagnosed with acute lymphoblastic leukemia (ALL) at three years old. As an Egyptian immigrant with many things for his family to consider such as, where the best treatment would be and how to go about relocating, Bishoy describes his journey as a cancer survivor. He explains the challenges he faced both individually and as a family, his turning point which occurred in 2017 at Mile 40 of an IronMan, and what his diagnosis has taught him about overcoming life’s obstacles. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic LeukemiaLeukemiaBishoy TadrosVenous HemangiomaLLS Team in TrainingFree bookletsPatti Robinson Kaufmann First Connection ProgramOther podcasts addressing survivorship issues Additional LLS support resources: Information SpecialistsFree telephone/web patient programsLLS CommunityFinancial supportOnline ChatsCaregiver supportSupport groups Support for this episode provided by Amgen and Takeda Oncology. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Survivor, Author, Athlete & Overcomer: Bishoy’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Oya Gilbert Oya knew he was sick, but his inclinations were met with people telling him he was a hypochondriac.  Oya recounts the moment in his life when he decided to increase his health insurance after being told by doctors that he was fine for many years prior.  It was during the insurance company’s own testing that they told him something was wrong and instructed him to bring their results of his blood work back to his primary doctor.  Through a series of tests, he later received his myeloma diagnosis.  Listen in as Alicia, Edith and Lizette speak with Oya about the importance of advocating for yourself when something feels ‘off’.  Having been diagnosed in his 40s, Oya shares how he was diagnosed, signs and symptoms he experienced, the effects of his treatment, the importance of open communication with a patient’s healthcare team and the vital role of a caregiver.  He describes the many friendships he has made throughout this journey and the lessons he has learned about life overall. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: MyelomaMyeloma Link initiativeStem cell transplantation with high-dose chemotherapy Dental and Oral Complications of Cancer Treatment Facts Patti Robinson Kaufmann First Connection ProgramMyeloma bookletsOya and Tim’s podcast Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportCaregiver supportSupport groupsA Medication Resource for Myeloma Patients Support for this episode provided by Amgen.The post Moving Forward with Myeloma: Oya’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Chelsea Keeler, MSW, LSW When you think about a pediatric patient, they are not a child living in a vacuum. They are part of a very complex system that is suddenly impacted by a cancer diagnosis. Psychosocial care helps to address every piece of that complicated system to successfully get patients the treatment that they need. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS), as they speak with pediatric oncology social worker, Chelsea Keeler, from the Children’s Hospital of Philadelphia. Chelsea provides services to patients and families to help optimize functioning, such as psychosocial assessments, supportive counseling around disease diagnosis, coping, decision-making, and connection to community resources as needed. On this episode, they’ll discuss the growing field of psychosocial care for pediatric patients, how psychosocial care differs between children and young adult populations, advancements in technology that have improved how support is provided around the world and the role of a psychosocial team and their relationship with patients and families. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Childhood Blood CancerYoung AdultsLong-Term And Late Effects Of Treatment For Childhood Cancer SurvivorsFollow-Up Care For Childhood Cancer SurvivorsChildhood Blood Cancer Facts and Statistics Additional LLS Support Resources: Understanding the Emotional Effects of CancerPsycho-Oncology: Caring for Body & MindInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS Community Support groups Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post How Will My Child’s Cancer Diagnosis Impact Their Emotions? first appeared on The Bloodline with Blood Cancer United Podcast.

Pallawi Torka, MD One of the most important reasons to seek a second opinion is to protect yourself from misdiagnosis. Researchers have found that the rates of misdiagnosis and mistreatment are higher than you might suspect. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS), as they speak with Dr. Pallawi Torka, Assistant Professor of Oncology and Co-Program Director of the Hematology/Oncology Fellowship Program, from Roswell Park Comprehensive Cancer in Buffalo, NY. Dr. Torka speaks about the importance of a second opinion, red flags that may indicate when a second opinion should be considered and how to approach this sometimes uncomfortable topic with your healthcare team. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Mentioned on this episode: Getting a Second OpinionWorld Health OrganizationClinical TrialsMaking Treatment DecisionsUnderstanding Different Types of Treatments“A Bright Future for Hodgkin Lymphoma” Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsThe post The Value of a Second Opinion first appeared on The Bloodline with Blood Cancer United Podcast.

Tim Card They say hindsight is always 20/20. Looking back, Tim Card remembers how his body may have been sending signals that something was wrong, but how he often attributed them to his active and busy lifestyle. Tim received his shocking lymphoma diagnosis after logging onto his medical portal, while awaiting test results. Tim is Penn State Cancer Institute’s first chimeric antigen receptor (CAR) t-cell therapy recipient, diffuse large B-cell lymphoma survivor and a father of 7. On this episode, Tim describes how he was diagnosed, when CAR T-cell therapy was introduced as a treatment option, side effects he experienced after CAR T-cell therapy, the importance of caregivers, and how humor helped him during the most challenging time of his life. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Please leave comment letting us know how you like the episode. Be sure to check out our other episodes about CAR T-cell therapy. Mentioned on this episode: Chimeric Antigen Receptor (CAR) T-Cell TherapyTim and Oya’s podcast Additional LLS Support Resources: Chimeric Antigen Receptor (CAR) T-Cell Therapy FactsCAR T-Cell Therapy ProcessVideos about CAR T-cell therapyInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groups Support for this episode provided by Allogene Therapeutics: Bristol Myers Squibb; CRISPR Therapeutics; Kite, A Gilead Company, and Novartis.The post “The Only Way Through It, Is Through It”: Tim Card’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Monica Bryant, Esq. Did you know that if somebody is eligible for Medicaid and also eligible for COBRA coverage, some states may actually pay their private COBRA premium? Learn about this and more as Alicia and Lizette chat with Monica Bryant and ask her questions that many of you have asked! Monica is the Co-Founder and Chief Operating Officer for Triage Cancer, a national non-profit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials and resources. Topics on this episode include: the difference between Medicare and Medicaid, Medigap plans, laws surrounding debt collectors, understanding deductibles and out-of-pocket maximums, COBRA, employment rights, appealing a denial notice from a health insurance company and more. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Please let us know what you thought about this episode by commenting below! Thanks for listening! Mentioned on this episode: Cancer resources, guides and more (offered by Triage Cancer)MedicareMedicaidTriage CancerCOBRATriagecancer.org/statelawsHealthcare.gov  HIPP program Additional LLS Support Resources: LLS CommunityInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportSupport groupsPatti Robinson Kaufmann First Connection ProgramThe post Monica Answers YOUR Questions About Cancer and the Law first appeared on The Bloodline with Blood Cancer United Podcast.

Gina DeLuca Eating a well-balanced diet is important, especially with a diagnosis of multiple myeloma. A proper diet during and after cancer treatment can help you feel better, maintain your strength, and positively impact recovery time. Listen in as Alicia and Lizette speak with Gina DeLuca. Gina is an Outpatient Oncology Dietitian for the Center for Cancer Care at NYU Winthrop Hospital. There, she provides individual nutrition counseling and group nutrition education presentations to patients during all phases of oncology care including prevention, treatment and survivorship. On this episode, Gina shares the types of foods that may benefit a myeloma patient and the types of food that they should avoid. Gina also explains why vitamin supplementation should be discussed thoroughly with a patient’s healthcare team, the link between myeloma and obesity, the truth about sugar and its relation to cancer, what foods can potentially interfere with treatment and useful resources for patients and their families. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Mentioned in this episode: One-on-one nutrition consultationFood and Nutrition Fact SheetLLS Blood Cancer ConferencesEnvironmental Working GroupClean 15Dirty DozenFoodsafety.govAmerican Cancer SocietyAcademy of Nutrition and DieteticsOncologynutrition.org American Institute for Cancer ResearchNational Cancer InstituteEating Hints: Before, during and after Cancer Treatment Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection Program Support for this episode provided by Amgen and Takeda. The post Diagnosed with Myeloma: What Should I Eat? first appeared on The Bloodline with Blood Cancer United Podcast.

Casey Biltz-Marsh Listen in as Alicia and Lizette speak with Casey Biltz Marsh. Casey is a high school mathematics teacher and acute myeloid leukemia (AML) survivor. With Spring Break approaching, Casey noticed her increasing fatigue however, attributed it to the demands of a high school teacher during that time. Casey realized something was very wrong when she attended a Garth Brooks concert with ‘standing room only’ tickets and found herself paying a nearby shoe shine station multiple times just to get off her feet. Join the conversation as Casey describes how her life changed after her fourth visit to Urgent Care. She shares how she was diagnosed with AML, how she prepared for and recovered from her stem cell transplant, the importance of asking questions and maintaining a positive mindset even during the roughest times.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute myeloid leukemia (AML)Treatment for AMLBeat AML Master TrialStem Cell TransplantationLight The NightVolunteering at LLS Additional LLS Support Resources: Young adult videosInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groups Support for this episode provided by Jazz Pharmaceuticals. The post Still Sparkling After AML: Casey’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Jason Khalipa Listen in as Alicia speaks with Jason Khalipa. Jason is a devoted father, world champion, and global businessman.  Jason is a force of nature in the fitness world whose life was turned upside down when his daughter, Ava, was diagnosed with leukemia in 2016 at the age of 4.  Jason and his wife, Ashley, dedicated themselves to the fight armed with a positive mindset and an emphasis on physical and mental strength. Join Jason and Alicia as he shares more about how Ava was diagnosed, what their cancer journey taught him not only as a person, but as a father, and how his passion for fitness helped him remain strong and disciplined throughout this new journey.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic LeukemiaLeukemiaThe Emperor of All MaladiesLLS CommunityAva’s KitchenJasonKhalipa.comJason Khalipa InstagramPatti Robinson Kaufmann First Connection Program Additional LLS support resources: Information SpecialistsFree telephone/web patient programsLLS CommunityFree bookletsFinancial supportOnline chatsCaregiver supportSupport groups Support for this episode provided by Amgen and Takeda Oncology.The post Training for the Unknown: Jason’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Mirinda David Alejandro To kick off Caregiver Awareness Month, we invite you to join the conversation as we chat with three caregivers! Listen in as Alicia and Lizette speak with Mirinda, David and Alejandro about their varying caregiving roles. Mirinda, David and Alejandro will share how their loved ones’ acute myeloid leukemia (AML) diagnosis impacted their own lives. On this episode, they describe the changes they went through, where they found support, how they navigated insurance, what they learned about themselves and helpful advice for other caregivers. We encourage you to share this episode and comment below to let us know how you liked this episode. Thanks for listening! Download Transcript CLICK HERE to participate in our episode survey.The post A Conversation with Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

Alan Kraimer Listen in as Alicia and Lizette speak with Alan Kraimer. Alan is an acute lymphoblastic leukemia (ALL) survivor who owns a small medical supply distribution company in Georgia. In 2014, what Alan and doctors believed to be strep throat soon proved to be otherwise. It was not until his third visit to Urgent Care that he was referred to a hematologist in which he received his leukemia diagnosis. Join Alan, Alicia and Lizette as Alan shares how he was diagnosed, questions he had for his healthcare team, the important role his wife played as his caregiver, and how he learned about an interesting new treatment for his dry eyes called autologous serum drops. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic LeukemiaLeukemiaStem cell transplantAutologous serum eye dropsSide effectsPatti Robinson Kaufmann First Connection Program Additional LLS support resources: Information SpecialistsFree telephone/web patient programsLLS CommunityFree bookletsFinancial supportOnline chatsCaregiver supportSupport groups Support for this episode provided by Amgen and Takeda Oncology.The post My ALL Diagnosis: Alan’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Stan Friedman Listen in as Alicia and Lizette speak with Stan Friedman. Stan is a trial lawyer and mantle cell lymphoma (MCL) survivor from Savannah, Georgia. After receiving abnormal lab work and noticing swollen lymph nodes that his doctor pointed out, Stan was referred to a hematologist/oncologist for a bone marrow biopsy. Join them as Stan describes how he was diagnosed, the initial questions he asked his healthcare team, side effects that were both common and uncommon, the importance of support from those around him, and how he is doing five years later. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Mantle cell lymphoma Stem cell transplant Side effects LLS Community Patti Robinson Kaufmann First Connection Program Additional LLS support resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support Support groups Support for this episode provided by AstraZeneca.The post My MCL Diagnosis: Stan’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Chuck Colletti On this episode, Alicia and Lizette speak with Chuck Colletti, a two-time survivor of Stage 4 follicular lymphoma. Chuck was diagnosed in early 2016 when he underwent 7 months of chemotherapy which put his cancer into temporary remission. Unfortunately, 7 months later, it returned in a more aggressive form. With options dwindling, he was accepted into a CAR T-cell therapy clinical trial. Listen in as he describes how this therapy impacted his life both emotionally and physically, the side effects he experienced and the hope he has in this therapy’s ability to save many more lives. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Chimeric Antigen Receptor (CAR) T-Cell Therapywww.collettisurvivorsquad.orgwww.healthcentral.com Additional LLS Support Resources: Chimeric Antigen Receptor (CAR) T-Cell Therapy FactsCAR T-Cell Therapy ProcessVideos about CAR T-cell therapyInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groups Support for this episode provided by Celgene; Kite, A Gilead Company; and Novartis Oncology.The post How CAR T-cell Therapy Saved My Life: Chuck’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Micheline Toussaint, LCSW, RYT, SEP Survivor’s guilt is not an unusual reaction among those who have experienced a traumatic event, especially those impacted by cancer. Join in as Shona sits down with Micheline Toussaint onsite at CancerCon 2019. CancerCon is an annual conference held every year by Stupid Cancer, an organization that provides support to young adult cancer survivors. Micheline is an Oncology Therapist at Inova Dwight and Martha Schar Cancer Institute in Fairfax, VA. On this episode, Micheline defines survivor guilt, how it differs from person to person and the impact it has on an individual and their loved ones. She also shares coping mechanisms that she uses to treat patients as well as helpful resources available to those who may be experiencing survivor guilt. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: CancerConSurvivor Guilt Additional LLS Support Resources: Young adult videosInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsThe post Survivor Guilt: Common Yet Under-Discussed first appeared on The Bloodline with Blood Cancer United Podcast.

Rayne H. Rouce, MD On this episode, Alicia and Lizette speak with Dr. Rayne H. Rouce. Dr. Rouce is a pediatric hematologist and oncologist at Texas Children’s Cancer Center where she is a member of the Leukemia and Bone Marrow Transplant programs. She works as part of The Center for Cell and Gene Therapy at Baylor College of Medicine, focused on translating targeted T-cell therapies, and has been involved in every aspect of CAR T-cell development for clinical use.  On this episode, Dr. Rouce explains what types of cancers chimeric antigen receptor T-cell therapy, known as CAR T-cell therapy, currently treats, when it may be considered for treatment and why the recovery process may be different for each person. She addresses quality-of-life issues and recommends great questions about CAR T-cell therapy that a patient or caregiver should consider asking their healthcare team. Dr. Rouce shares her excitement for how she sees this therapy improving in the future and continues to work towards discovering how it can be a hopeful option for more and more patients. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: CAR (chimeric antigen receptor) T-cell immunotherapyClinical TrialsPossible Side Effects of CAR T-Cell TherapyClinical TrialsCommunicating with Your Specialist Additional LLS Support Resources: CAR T-Cell Therapy ProcessChimeric Antigen Receptor (CAR) T-Cell Therapy FactsInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportCaregiver supportSupport groups Support for this episode provided by Celgene; Kite, A Gilead Company; and Novartis.The post CAR T-cell Explained: Recovering from CAR T-cell Therapy first appeared on The Bloodline with Blood Cancer United Podcast.

Elissa Baldwin Join in as Shona sits down with Elissa Baldwin onsite at CancerCon 2019. CancerCon is an annual conference held every year by Stupid Cancer, an organization that provides support to young adult cancer survivors. Elissa is a young adult acute myeloid leukemia (AML) survivor. After a bone marrow biopsy two weeks earlier, she went on a solo trip to Europe and was diagnosed by email while staying in a hostel in Lisbon, Portugal. She was able to book an emergency flight back home to Portland, OR to begin chemotherapy within a week. On this episode, Elissa shares how and when she was diagnosed, the emotional and physical challenges she experienced and how her diagnosis served as inspiration for a career change. She emphasizes the importance of therapy during a cancer diagnosis and continues to serve as a source of encouragement for other young adult survivors. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: CancerConAcute myeloid leukemia (AML)Treatment for AMLBeat AML Master TrialLight The NightVolunteering at LLS Additional LLS Support Resources: Young adult videosInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groups Support for this episode provided by Jazz Pharmaceuticals. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post My AML Diagnosis: Elissa’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Rayne H. Rouce, MD Join Alicia and Lizette as they speak with Dr. Rayne H. Rouce. Dr. Rouce is a pediatric hematologist and oncologist at Texas Children’s Cancer Center where she is a member of the Leukemia and Bone Marrow Transplant programs. Specifically, she works as part of a research program called The Center for Cell and Gene Therapy at Baylor College of Medicine, focused on translating targeted T-cell therapies from the bench to bedside, and has been involved in every aspect of CAR T-cell development for clinical use.  On this episode, Dr. Rouce explains the process of chimeric antigen receptor T-cell therapy, also known as CAR T-cell therapy. She also explains the role of normal T cells, how re-engineered T cells are expected to perform after being reinfused into the patient, and the lifespan of these re-engineered T cells. Dr. Rouce shares her excitement not only for the future of CAR T-cell Therapy but also for the hope that this therapy provides to many patients and caregivers. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: CAR (chimeric antigen receptor) T-cell immunotherapyClinical TrialsClinical Trial Support Center (CTSC) Additional LLS Support Resources: CAR T-Cell Therapy ProcessChimeric Antigen Receptor (CAR) T-Cell Therapy FactsInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportCaregiver supportSupport groups Support for this episode provided by Celgene; Kite, A Gilead Company; and Novartis Oncology.The post CAR T-cell Therapy Explained: What Is It and How Does It Work? first appeared on The Bloodline with Blood Cancer United Podcast.

Ellen Polamero, LCSW, OSW-C, ACHP-SW Join in as Shona sits down with Ellen Polamero onsite at CancerCon 2019. Ellen is a clinical social worker at City of Hope in Duarte, California. CancerCon is an annual conference held year by Stupid Cancer, an organization that provides support to young adult cancer survivors. This is the fourth year that Ellen has hosted a ‘Couples Coping with Cancer’ session at CancerCon and shares why it is important to her to provide this offering. On this episode, Ellen speaks about the impact of cancer, not only on the specific person that is diagnosed, but on the family unit as a whole and on intimate partners specifically. She describes the challenges a couple may experience, expectations that couples may place on themselves, the importance of communication and various resources available to couples. Ellen shares key takeaways to help couples navigate their cancer journey. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: CancerCon‘Couples Coping with Cancer Together Program’ at City of HopeThe Dear Jack FoundationThe American Cancer Society Young adult informationRelationships Additional LLS support resources: Young adult videosInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groups Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Coping with Cancer as a Couple first appeared on The Bloodline with Blood Cancer United Podcast.

Jonathon B. Cohen, MD Like any therapy that is administered in oncology, there is great promise but also, unfortunately, several toxicities and side effects that must be understood and monitored. Join Alicia and Lizette as they speak with Dr. Jonathon B. Cohen, an Assistant Professor in the Department of Hematology and Medical Oncology at Emory University School of Medicine in Atlanta, Georgia. On this episode, Dr. Cohen explains the potential side effects of chimeric antigen receptor T-cell therapy, also known as CAR T-cell therapy. He describes how side effects may change over time and how a patient’s family members and caregivers can identify some of the more subtle neurologic toxicities that can potentially lead to more severe side effects. Dr. Cohen also shares great information about what patients can ask their doctors about CAR T-cell therapy and things to consider when having this conversation. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: CAR (chimeric antigen receptor) T-cell immunotherapyPossible Side Effects of CAR T-Cell TherapyClinical TrialsCommunicating with Your Specialist Additional LLS Support Resources: CAR T-Cell Therapy ProcessChimeric Antigen Receptor (CAR) T-Cell Therapy FactsInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportCaregiver supportSupport groups Support for this episode provided by Celgene; Kite, A Gilead Company; and Novartis.The post CAR T-Cell Therapy Explained: Understanding Potential Side Effects first appeared on The Bloodline with Blood Cancer United Podcast.

Mohammad Maher Abdul-Hay, MD Join Alicia and Lizette as they speak with Dr. Mohammad Maher Abdul-Hay, a hematologist and bone marrow transplant physician in New York, New York who is affiliated with multiple hospitals including NYC Health and Hospitals, Bellevue, and NYU Langone Hospitals. On this episode, Dr. Abdul-Hay explains how ALL is treated and addresses pre-treatment considerations. He also shares the long-term effects of treatment and the importance of getting a second opinion and open communication between a patient and their healthcare team. Click here to listen to our other episode with Dr. Mohammad Maher Abdul-Hay where he explains how ALL is diagnosed. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute lymphoblastic leukemiaCAR (chimeric antigen receptor) T-cell immunotherapyTypes of ALL treatmentAllogeneic stem cell transplantation  ChemotherapyClinical trialsRelapsed and refractory Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportCaregiver supportSupport groups Support for this episode provided by Amgen and Takeda Oncology.The post Treating Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Martha L. Arellano, MD There have been few advances in treatment for AML in 40 years. Why is acute myeloid leukemia (AML) so difficult to treat? What is the current treatment for AML? How is The Leukemia & Lymphoma Society (LLS) striving to change that? How are targeted therapies being used for patients? Is immediate treatment for patients necessary for all AML patients? How does a patient’s ethnic background play a role in finding a matching bone marrow donor? Join Alicia and Lizette as they address these questions and more with Dr. Martha Arellano from Winship Cancer Institute of Emory University in Atlanta, Georgia. On this episode, Dr. Arellano addresses current treatment and treatment advances for AML, including stem cell transplantation and cellular therapy. She also explains the goal and impact of the Beat AML Master Trial, a groundbreaking collaborative and targeted clinical trial for patients with AML. Listen in as Dr. Arellano shares her excitement about the future of treatment for AML. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute myeloid leukemia (AML)TreatmentBeat AML Master TrialMyelodysplastic Syndromes (MDS) Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportCaregiver supportSupport groups Support for this episode provided by Jazz Pharmaceuticals.The post Treating Acute Myeloid Leukemia (AML) first appeared on The Bloodline with Blood Cancer United Podcast.

Brent, Dawn and Logan As a junior in college and an intramural volleyball player who attributed the increasing pain in her right arm to the sport, Dawn Scott was forced to take notice when she woke up one day and realized that her arm was so swollen that she could not bend it. Although blood clots run in her family, there was a small voice that told her that it was something else. During her three-week admission time, she received her diagnosis of epithelioid hemangioendothelioma (EHE). Join in as Shona sits down with Dawn to discuss Dawn’s story and why Dawn believes fertility should be discussed between every patient and physician, even if the odds are slim. Although having a child naturally seemed unlikely, Dawn explored her other options and chose to pursue adoption. She shares her experience, advice she received from those around her, questions to ask, the differences she experienced between local and national adoption agencies, and how this experience has shaped her outlook on life. Hear Dawn’s story about how her and her husband, Brent, created the family they envisioned. CLICK HERE to participate in our episode survey. Mentioned on this episode: CancerConEpithelioid hemangioendotheliomaAdoptionThe Oncofertility ConsortiumYoung adult informationFertilityRelationships Additional LLS support resources: Young adult videosInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsThe post Adopting After Cancer: Dawn’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Stephen and Rebecca Join Alicia as she speaks with young adult leukemia survivor, Stephen and his wife, Rebecca. This episode was recorded onsite at the filming of The Leukemia & Lymphoma Society’s young adult reunion video, which you can access here. As Stephen prepared when he would introduce Rebecca to his parents, he realized that he was experiencing shortness of breath which prompted an emergency room visit. While in the ER, he received the shocking diagnosis of acute lymphoblastic leukemia (ALL). Having dated for only four months, it was in the ER where Rebecca met Stephen’s parents and where both Stephen and Rebecca knew that they had found the one. Listen in as they share their story about dating, fertility and the importance of advocating for the needs of a patient. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute lymphoblastic leukemia (ALL)Young adult informationFertilityRelationshipsCommunicating with your partnerSuggestions for coping with cancer and intimacy Additional LLS support resources: Young adult videosInformation specialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groups Support for this episode provided by Amgen. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Dating with a Diagnosis: Stephen & Rebecca’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Martha L. Arellano, MD Join Alicia and Lizette as they speak with Dr. Martha Arellano, Associate Professor of Hematology and Oncology and Program Director of the Hematology and Medical Oncology Fellowship Program at the Winship Cancer Institute of Emory University in Atlanta, Georgia. On this episode, Dr. Arellano defines acute myeloid leukemia (AML) and how it is diagnosed. She addresses questions about cause and prevention and how treatment is determined for younger vs older patients. Dr. Arellano also explains the importance of a patient getting a second opinion to not only increase their education about diagnosis and treatment options but also as a way to move forward with a team they trust. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute myeloid leukemia (AML) Signs and symptoms Diagnosis Treatment Myelodysplastic Syndromes (MDS) Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Caregiver support Support groups Support for this episode provided by Jazz Pharmaceuticals. The post Acute Myeloid Leukemia: Diagnosis & Prognosis first appeared on The Bloodline with Blood Cancer United Podcast.

Mohammad Maher Abdul-Hay, MD Join Alicia and Lizette as they speak with Dr. Mohammad Maher Abdul-Hay, a hematologist and bone marrow transplant physician in New York, New York who is affiliated with multiple hospitals including NYC Health and Hospitals, Bellevue, and NYU Langone Hospitals. On this episode, Dr. Abdul-Hay defines and explains how acute lymphoblastic leukemia (ALL) is diagnosed and the risk factors and symptoms of ALL. He also stresses the importance of patients and families asking questions along their treatment journey to ensure that they feel comfortable with their healthcare team. Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute lymphoblastic leukemia LLS Community Bone Marrow Tests Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Caregiver support Support groups Support for this episode provided by Amgen and Takeda.The post Diagnosing Acute Lymphoblastic Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

Marc Braunstein, MD Join Alicia and Lizette as they speak with Dr. Marc Braunstein, a Board-certified hematologist, medical oncologist at NYU Winthrop in New York, NY. This is episode four of our five- part episode series, ‘Removing Mystery from Myeloma‘. On this episode, Dr. Braunstein explains how management of myeloma differs between younger and older patients. He stresses how treatment is not solely based on age and shares the other factors that are taken into consideration when determining how a patient may respond to treatment. Dr. Braunstein discusses minimal residual disease (MRD), the role of autologous and allogeneic transplant for myeloma patients and the difference between palliative and hospice care. Be sure to listen to our other episodes from this series. The fifth episode will be launching this Spring. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Myeloma Myeloma booklets Dana-Farber Cancer Institute’s PROMISE Study LLS Community Stem cell transplantation Graft-Versus-Host Disease Other episodes from this series: Removing Mystery from Myeloma: Diagnosis & Treatment Removing Mystery from Myeloma: Questions to ask, Bone Health and Clinical Trials Removing Mystery from Myeloma: The Truth About Transplant Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Caregiver support Support groups A Medication Resource for Myeloma Patients Support for this episode provided by Amgen and Takeda.The post Removing Mystery from Myeloma: Management of the Elderly Myeloma Patient first appeared on The Bloodline with Blood Cancer United Podcast.

Racquel Innis-Shelton, MD Join Alicia and Shona from The Leukemia and Lymphoma Society as they speak with Dr. Racquel Innis-Shelton, Associate Professor of Medicine and Director of the University of Alabama Multiple Myeloma Clinic at the University of Alabama. On this episode, Dr. Innis-Shelton describes the process for a bone marrow transplant, the difference between autologous and allogeneic transplant, how a patient is screened for transplant, post-transplant symptoms, and adjustments that may be made to a person’s treatment plan after transplant. Dr. Shelton shares news about chimeric antigen receptor T-cell, known as CAR T-cell therapy and its use for myeloma patients. She also answers  questions submitted via LLS Community. Dr. Shelton stresses the importance and role of the healthcare team to develop trust with their patients in order to provide the best care and engage their patients from all backgrounds and cultures. CLICK HERE to participate in our episode survey. Mentioned on this episode: Myeloma Stem cell transplantation Graft-Versus-Host Disease Monoclonal Gammopathy of Undetermined Significance (MGUS) Myeloma Link initiative LLS Community Online Chats Patti Robinson Kaufmann First Connection Program Myeloma booklets Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Caregiver support Support groups A Medication Resource for Myeloma Patients Support for this episode provided by Amgen and Takeda.The post Removing Mystery from Myeloma: The Truth About Transplant first appeared on The Bloodline with Blood Cancer United Podcast.

Marc Braunstein, MD Join Alicia and Lizette as they speak with Dr. Marc Braunstein, a Board-certified hematologist, medical oncologist at NYU Winthrop in New York, NY. This is the second episode of five that will be part of ‘Removing Mystery from Myeloma‘  series. On this episode, Alicia and Lizette discuss the topics pertaining to myeloma patients and caregivers. Dr. Braunstein explains how a myeloma patient and caregiver should choose their hematologist, new treatment for myeloma and how it has evolved over the years, questions to ask one’s healthcare team, the importance of medication adherence, and how myeloma patients can build or maintain healthy bones. To listen to the first episode of this series about diagnosing and treating, click here. Be sure to look out for our other 3 episodes from this series launching this month! DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Myeloma Myeloma booklets Printable question guides A Medication Resource for Myeloma Patients (Calendar) Dana-Farber Cancer Institute’s PROMISE Study Myeloma Link initiative LLS Community Online Chats Patti Robinson Kaufmann First Connection Program Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Caregiver support Support groups A Medication Resource for Myeloma Patients Support for this episode provided by Amgen and Takeda.The post Removing Mystery from Myeloma: Questions to ask, Bone Health and Clinical Trials first appeared on The Bloodline with Blood Cancer United Podcast.