The Bloodline with Blood Cancer United Podcast

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about what the word, “survivorship” means to them. We found the responses to this question can vary from patient to patient and even change once treatment ends. We hope that through their words, listeners will find a sense of connection and evaluate their own meaning of survivorship. Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on various aspects of survivorship, such as the growth mindset, creating a survivorship plan, and imposter syndrome. *NOTE: For the safety of all participants, masks were required at all times during the conference. All cancer patients and survivors were encouraged to speak to their doctor prior to participating. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Survivorship Definition – National Cancer InstituteSurvivorship WorkbookYoung Adult Online ChatStupid CancerLLS Dare to DreamStem Cell TransplantBe The MatchArmenian Bone Marrow Registry Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacyThe post LIVE! At CancerCon: A Journey Through Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us as we speak to Dr. Shernan Holtan and guest co-host from LLS, Christina Neilsen. In this episode, Dr. Holtan discusses stem cell transplants; how they work, the different types of transplants, and the side effects, including graft-vs-host disease (GVHD). Dr. Holtan shares exciting new research on reducing GVHD and provides blood cancer patients with hope as transplantations continue to improve and bring about potential cures. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Stem Cell TransplantAllogeneic Stem Cell TransplantAutologous Stem Cell TransplantGraft-verses-Host Disease Fact SheetCAR T-cell TherapyClinical Trial Support CenterHope LodgePosttransplant CyclophosphamideBe The Match Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacySurvivorship WorkbookThe post Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects first appeared on The Bloodline with Blood Cancer United Podcast.

John P. Leonard, MD Please join us as we speak to Dr. John Leonard of Weill Cornell Medicine. In this episode, Dr. Leonard discusses the broad array of immunotherapy treatments, in which a patient’s own immune system is stimulated to fight cancer cells. From CAR T-cell therapy to monoclonal antibodies to new bispecific therapies, Dr. Leonard shares how these immunotherapies are changing the landscape of cancer treatment and giving hope to more blood cancer patients. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Immunotherapies for Blood CancerCAR T-cell TherapyCAR T-Cell Therapy WebinarHow CAR T-Cell Therapy Works In Augmented RealityStem Cell TransplantAllogeneic Stem Cell TransplantAutologous Stem Cell TransplantDiagnosed with Diffuse Large B-Cell Lymphoma. Now What? Podcast episodeClinical Trial Support Center Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by Pharmacyclics LLC, an AbbVie Company & Janssen Biotech, Inc. The post Immune System To The Rescue: Immunotherapies In Blood Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Únase a nosotros mientras hablamos con Ana Zermeño y Ana Victoria Portillo sobre asistencia financiera y recursos para pacientes que enfrentan un diagnóstico de cáncer de la sangre. Ana Zermeño es trabajadora social del Centro Médico de la Universidad de California en San Francisco. Ana Victoria Portillo, también trabajadora social, es Especialista en Información en La Sociedad de Lucha contra la Leucemia y el Linfoma (LLS, por sus siglas en inglés). Ambos ayudan a los pacientes y sus familias a navegar por sus finanzas, así como a encontrar información y apoyo. En este episodio se analizan los recursos financieros. DESCARGAR TRANSCRIPCIÓN Enlaces: Programas de asistencia económica al pacienteEspecialista en Información de LLSLLS.org/EspanolAyuda con los asuntos financieros / Help With FinancesEl cáncer y tus finanzasProgramas sociales del Gobierno Por favor, envíenos sus comentarios sobre este episodio. Si desea asistencia financiera personalizada, proporciónenos su nombre, dirección de correo electrónico y/o número de teléfono para que un Especialista en Información se comunique con usted.The post En Español: Asistencia Financiera Después de su Diagnóstico first appeared on The Bloodline with Blood Cancer United Podcast.

Daniel Pollyea, MD, MS Please join us as we speak to Dr. Daniel Pollyea from the University of Colorado School of Medicine.  In this episode, Dr. Pollyea discusses the group of diseases that make up Myelodysplastic Syndromes (MDS) and how their variability leads to different treatments and prognoses, from active monitoring to chemotherapy and/or stem cell transplantation.  He shares his excitement about new treatment advances and is looking forward to an era of innovative targeted treatments for MDS. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myelodysplastic Syndromes (MDS)Myelodysplastic Syndromes (MDS) BookletsAcute Myeloid Leukemia (AML)Stem Cell TransplantIPSS-R Scoring SystemIPSS-M Scoring SystemClinical Trial Support Center Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by Taiho Oncology. The post Myelodysplastic Syndromes (MDS): A Group of Diseases first appeared on The Bloodline with Blood Cancer United Podcast.

Howard Willens Please join us as we speak to Howard Willens, a chronic myelomonocytic leukemia (CMML) patient. In this episode, Howard shares how he was diagnosed with this rare blood cancer. He shares how patient support groups have assisted him, and how he no longer feels alone. His story encourages CMML patients to focus on stability and the present, while living their lives to the fullest. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Myelomonocytic Leukemia (CMML)CMML Fact SheetStem Cell TransplantMyelodysplastic Syndromes (MDS)Myeloproliferative Neoplasms (MPNs)Mental Health ResourcesLLS Community CMML Friends on Facebook Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyClinical Trial Support CenterOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacySurvivorship Workbook Support for this episode provided by Taiho Oncology. The post Support and Stability: Living with CMML first appeared on The Bloodline with Blood Cancer United Podcast.

Benjamin Lampson, MD, PhD Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part Two of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the development and utilization of CAR T-cell therapy for MCL. Approved in July of 2020 for relapsed or refractory MCL, CAR T-cell therapy has shown incredible promise and is already giving hope to patients and doctors as a potential cure. Be sure to tune into Part 1, where Dr. Lampson discussed the current treatments and latest advances for MCL. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Mantle Cell Lymphoma Mantle Cell Lymphoma (MCL) with Dr. Benjamin Lampson: What Patients Should Know episode CAR T cell Therapy Highlights from ASH conference Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Patti Robinson Kaufmann First Connection Program Free booklets  LLS Public Policy & Advocacy Clinical Trial Support Center Online chats  Caregiver support  LLS Community  Support groups  Free Nutrition Consultations  LLS Advocacy Survivorship Workbook Support for this episode provided by Bristol Myers Squibb; CRISPR Therapeutics; Janssen Oncology & Legend Biotech; KITE, a Gilead Company and Novartis Pharmaceuticals Corporation. The post Mantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy first appeared on The Bloodline with Blood Cancer United Podcast.

Benjamin Lampson, MD, PhD Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part One of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the latest treatment advances for MCL. With more treatments available than just a few years ago, Dr. Lampson shares how his conversations with his patients have changed, providing more hope after a diagnosis of MCL. Be sure to tune into Part 2 launching on May 23, 2022, where Dr. Lampson will focus on the exciting possibilities of CAR T-cell therapy for MCL. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Mantle Cell Lymphoma Mantle Cell Mantle Cell Lymphoma (MCL) with Dr. Benjamin Lampson: What Patients Should Know episode LLS COVID Antibody Study and COVID resources Protecting Patients: COVID and Vaccine Updates episode Stem Cell Transplant Autologous Stem Cell Transplant Allogeneic Stem Cell Transplant Graft-vs-Host Disease Highlights from ASH conference Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Patti Robinson Kaufmann First Connection Program Free booklets  LLS Public Policy & Advocacy Clinical Trial Support Center Online chats  Caregiver support  LLS Community  Support groups  Free Nutrition Consultations  LLS Advocacy Survivorship Workbook Support for this episode provided by Eli Lilly & Company.The post Mantle Cell Lymphoma (MCL) Part One: Treatment Advances first appeared on The Bloodline with Blood Cancer United Podcast.

Damion Davis Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks about his myeloma diagnosis and how he reached remission after a stem cell transplant. Dealing with the difficulty of a cancer diagnosis as a husband and father of young daughters, Damion knew the benefits that therapy would provide for him and his family. In honor of Mental Health Awareness Month in May, we share his story of resilience, highlighting the importance of mental health care for cancer patients and their families.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Multiple MyelomaStem Cell TransplantAutologous Stem Cell TransplantParenting ResourcesMental Health ResourcesAdditional Mental Health and Crisis ResourcesSurvivorship Workbook Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyClinical Trial Support CenterOnline chats Caregiver support LLS Community Support groups Free Nutrition Consultations LLS Advocacy Support for this episode provided by Genentech, Inc & Biogen; GlaxoSmithKline; and Janssen Oncology. The post Mental Health and Myeloma: A Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Charles Huang and Dr. Gabriel Mannis in honor of AML Awareness Day (April 21st). In this episode, Charles tells us about his treatment for AML, participation in clinical trials, and shares about his struggle to find a bone marrow donor as an Asian Pacific Islander. Charles then turned his struggle into legislation to make it easier to join a bone marrow donor registry to save lives. Dr. Mannis, of Stanford Medicine, shares about the latest advances in AML research, from clinical trials in Chimeric Antigen Receptor (CAR) therapy to medications that reduce graft-vs-host disease (GVHD). With research advancing quickly in the field of AML treatment, patients and caregivers are given reasons to have hope after the uncertainty of a diagnosis. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Myeloid LeukemiaMyelodysplastic Syndromes (MDS)Minimal/Measurable Residual DiseaseCAR T-cell TherapyStem Cell TransplantGraft-Vs-Host-Disease (GVHD)Charlie’s LawBe The Match – Bone Marrow Donor RegistryLLS Advocacy & Public PolicyInnovative Therapies in Acute Leukemias podcast episode Additional LLS Support Resources:  Information SpecialistsFree telephone/web patient programs Clinical Trial Support CenterFree booklets Financial supportOnline chats Caregiver support LLS Community Support groups Free Nutrition Consultations LLS Myeloma LinkPatti Robinson Kaufmann First Connection Program Young Adult ResourcesSurvivorship Workbook Support for this episode provided by Astellas and Genentech, Inc & Biogen. The post Patient-Doctor Perspectives: Hope in the Uncertainty of AML first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Hongtao Liu and Dr. Adam DuVall from University of Chicago Medicine, about current and emerging cellular therapies for acute leukemias. These innovative therapies include CAR T-cell therapy, modified Natural Killer (NK) cells and stem cell transplantations. In this episode, we discuss how these groundbreaking therapies have changed the landscape of treatment for acute leukemias. The doctors share what they are excited about in the future, citing how clinical trials are advancing therapies and how cancer centers can better serve the unique needs of adolescent and young adults (AYAs) with acute leukemias by utilizing a holistic and comprehensive approach. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Lymphoblastic LeukemiaAcute Myeloid LeukemiaCAR T-cell TherapyStem Cell TransplantCellular TherapiesMinimal/Measurable Residual Disease (MRD)Graft-Vs-Host DiseaseAdolescent and Young Adult (AYA) Oncology Program at University of ChicagoCALMM Clinic at University of ChicagoYoung Adult ResourcesSurvivorship WorkbookBetween Two Kingdoms Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportClinical Trial Support CenterOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode is provided by University of Chicago Medicine. The post Innovative Therapies for Acute Leukemias first appeared on The Bloodline with Blood Cancer United Podcast.

Bonus Content! Go to the Subscriber Lounge to see what Gregory has been up to since this episode in our new After the Podcast segment. Join us as we speak to Gregory Proctor, a myeloma patient, and Erica Ali, the Senior Manager of Copay and Patient Financial Assistance Programs at The Leukemia & Lymphoma Society. In this episode, Gregory shares his story of his diagnosis with myeloma in July 2021 and how he has benefited from the LLS Copay Program, which provided financial support for his treatment. Erica discusses all of the financial programs that LLS has to support patients, what the funds cover, and how to apply for these programs. LLS Financial assistance improves patients’ access to care and is accessible to patients of all blood cancer diagnoses when funding is available. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Multiple MyelomaFinancial supportKut2ThaChase Podcast Additional LLS Support Resources:  Free telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramInformation SpecialistsFree booklets LLS Public Policy & AdvocacyClinical Trial Support CenterOnline chats Caregiver support LLS Community Support groups Free Nutrition Consultations LLS Advocacy The post LLS Financial Assistance: How We Can Help first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Lee Greenberger, the Chief Scientific Officer of The Leukemia & Lymphoma Society, and Dr. Larry Saltzman, the Executive Research Director of the LLS Patient Registry. In this episode, Dr. Greenberger and Dr. Saltzman provide important updates on the continued COVID-19 pandemic, the LLS Antibody Research Study, patients’ responses to the COVID vaccines, and additional methods of protection. Be sure to tune in to these important updates as LLS strives to protect patients. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  LLS Patient RegistryLLS Antibody StudyCOVID ResourcesFDA Approved Monoclonal Antibodies – including EvusheldAsk The Expert in LLS Community *Membership (no cost) required Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Online chats Financial supportClinical Trial Support CenterCaregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations As part of LLS’s COVID-19 Response Program, this podcast episode is supported in part by BeiGene, Bristol Myers Squibb, Kite, A Gilead Company, Pfizer and Pharmacyclics, An AbbVie Company & Janssen Biotech.The post Protecting Patients: COVID and Vaccine Updates first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to determine the best treatment course for Donnie’s CLL/SLL. Shared decision making is a key component of patient-centered healthcare that balances risks and expected outcomes with patient preferences and values. Be sure to tune into this real-world example of how SDM works and how patients can have open communication with their healthcare team. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Lymphocytic Leukemia (CLL)Small Cell Lymphocytic Lymphoma (SLL)Shared Decision Making Fact SheetShared Decision Making in Chronic Leukemias immersive programAnxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) podcast episodeMinimal/Measurable Residual DiseaseInformation Specialists Additional LLS Support Resources:  Free telephone/web patient programs Clinical Trial Support CenterFree booklets Financial supportOnline chats Caregiver support LLS Community Support groups Free Nutrition Consultations LLS AdvocacyLLS Myeloma Link Support for this episode provided by AbbVie Inc. and Genentech, A Member of the Roche Group. The post Patient-Doctor Perspectives: Shared Decision Making first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Peter Riedell and Dr. Benjamin Derman from University of Chicago Medicine, about the latest research coming out of the annual meeting of the American Society of Hematology (ASH). In this episode, we discuss new treatments on the horizon for lymphoma and myeloma. The doctors share how innovative therapies such as CAR T-cell therapy and new combinations of medicines are showing significant promise, providing further hope to patients. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  LymphomaMyelomaAmyloidosisMGUS (Monoclonal Gammopathy of Undetermined Significance)Smoldering myeloma (Myeloma staging)Minimal/Measurable Residual Disease (MRD)Bispecific Antibody TherapyASH Annual Meeting HighlightsAnxiety and Hope: Living with CLL podcast episodeDara-KRdCAR T-cell TherapyStem Cell TransplantGraft-Vs-Host Disease Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportClinical Trial Support CenterOnline chats Young Adult ResourcesCaregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode is provided by University of Chicago Medicine. The post Emerging Research in Lymphoma and Myeloma first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Lorna McNeill, a Professor and Associate Director for Health Disparities and Community Outreach at MD Anderson Cancer Center in Houston, TX, along with a special guest from our LLS Patient and Community Outreach team, Erika Pomares. In this episode, Dr. McNeill shares how people of color, particularly African Americans, have disproportionate rates of cancer incidence and death, but are also more likely to face racial bias in healthcare and clinical trials. She offers potential solutions to improve the healthcare outcomes for these underserved communities. Dr. McNeill and Erika also discuss the importance of community outreach, and how programs, like LLS’s Myeloma Link, have improved access to care and trust in the medical community. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloma LinkCenter for Community Engaged Translational ResearchThe Black-White Gap in Blood Cancer Outcomes – Medical News TodayNational Institutes of Health Requirement for Women in ResearchFacial Racial Disparities As A Black Disabled Patient – Podcast Episode100 Black Men of America organizationUnderstanding Racial and Health Disparities in Healthcare (Dr. Steven Thomas)LLS Public Policy & AdvocacyClinical Trial Support Center Additional LLS Support Resources:  Free telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramInformation SpecialistsFree booklets Financial supportOnline chats Caregiver support LLS Community Support groups Free Nutrition Consultations LLS Advocacy Support for this episode provided by Genentech, Inc. and Biogen; Pharmacyclics, An AbbVie Company & Janssen Biotech.The post Addressing Racial Health Disparities Through Community Outreach first appeared on The Bloodline with Blood Cancer United Podcast.

Michelle Bratton Join us as we speak to Michelle Bratton, a registered dietitian and certified oncology nutritionist with LLS’s PearlPoint Nutrition Services®. In this episode, Michelle shares the benefits of nutrition throughout treatment and survivorship. Rather than cutting out foods, she changes the narrative for cancer patients by encouraging them to nourish their bodies. She also shares how a patient – or caregiver – with any cancer diagnosis, can take advantage of a free nutrition consultation to further guide them through their cancer experience. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  PearlPoint Nutrition Services®LLS Nutrition InformationNational Cancer Institute Nutrition Information Eating Well Magazine Additional LLS Support Resources:  Free telephone/web patient programs Clinical Trial Support CenterPatti Robinson Kaufmann First Connection ProgramInformation SpecialistsFree booklets Financial supportOnline chats Caregiver support LLS Community Support groups Free Nutrition Consultations LLS AdvocacyLLS Myeloma Link Support for this episode provided by Bristol Myers Squibb; Genentech, Inc. & Biogen; Pharmacyclics LLC, An AbbVie Company & Janssen Biotech, Inc. The post Making a Difference Through Nutrition first appeared on The Bloodline with Blood Cancer United Podcast.

Donnie Hill Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he has worked with his doctor to determine the best treatment for him. Don’t miss this engaging story of how, throughout his cancer journey, Donnie continues to celebrate life and hope with volunteering, advocacy and the love of his family. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Lymphocytic Leukemia (CLL)Small Cell Lymphocytic Lymphoma (SLL)Shared Decision Making in Chronic LeukemiasBlood Cancer ConferencesLight The NightMan and Woman of the YearPatti Robinson Kaufmann First Connection ProgramInformation Specialists Additional LLS Support Resources:  Free telephone/web patient programs Clinical Trial Support CenterFree booklets Financial supportOnline chats Caregiver support LLS Community Support groups Free Nutrition Consultations LLS AdvocacyLLS Myeloma Link Support for this episode provided by Eli Lilly. The post Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

Brady Stein, MD Join us as we speak to Dr. Brady Stein, a clinical hematologist and researcher at the Northwestern University Feinberg School of Medicine in Chicago, IL. In this episode, Dr. Stein discusses the rare blood cancer, myelofibrosis (MF), which is a type of myeloproliferative neoplasms (MPNs). Hear about the unique characteristics of MF, how it develops, and the current and emerging treatments that give MF patients hope. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  MyelofibrosisMyeloproliferative NeoplasmsASH (American Society of Hematology)Pushing for a Diagnosis: A Polycythemia Vera (PV) StoryClinical Trial Support Center Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations LLS AdvocacyLLS Myeloma Link Support for this episode provided by AbbVie. The post Under the MPN Umbrella: Exploring Myelofibrosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship. In the fourth episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the survivorship stage of multiple myeloma. Register at the link below. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  MyelomaStem Cell TransplantImmunotherapyCaregiver support  Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Parent’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship. In the third episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the role reversal stage of multiple myeloma. Register at the link below. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  MyelomaStem Cell TransplantImmunotherapyCaregiver support  Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Parent’s Cancer – Role Reversal first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Mariam Nawas and Dr. Satyajit Kosuri from University of Chicago Medicine, about graft-vs-host disease (GVHD) and the Transplant Optimization Program (TOP). In this episode, we discuss stem cell transplants, how GVHD occurs and what can be done to manage and treat symptoms. The doctors also share how the TOP program at the University of Chicago Medicine utilizes multiple specialties to improve post-transplant success for patients over 50.    DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Stem Cell TransplantGraft-Vs-Host DiseaseBarnes and Loutit Mouse Leukemia Study  University of Chicago Medicine Cancer CenterTransplant Optimization Program (TOP)Be The Match Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportClinical Trial Support CenterOnline chats Young Adult ResourcesCaregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode is provided by University of Chicago Medicine. The post Transplant Support and Graft-Versus-Host-Disease (GVHD) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship. In the second episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the treatment stage of multiple myeloma. Register at the link below. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  MyelomaStem Cell TransplantImmunotherapyCaregiver support Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Parent’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on adult child caregivers of a parent with cancer. In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to parent caregiver, and post-treatment survivorship. In the first episode of this series, Jennifer Bires, MSW, LCSW, OSW-C, will talk with caregiver, Rob Coles about the experience of caregiving for his stepfather through the diagnosis stage of multiple myeloma. Register at the link below. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  MyelomaStem Cell TransplantImmunotherapyCaregiver support  Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Parent’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Bryon Daily, a myeloma survivor and Dr. Scott Solomon from Northside Hospital in Atlanta, GA. Diagnosed in 2018, Bryon shares his experience living with myeloma after an autologous stem cell transplant. Bryon has also started working at LLS in our Myeloma Link Program where he is helping to close the healthcare disparity gap in communities of color. Dr. Solomon then delves deeper into myeloma treatments, and what is new on the horizon for myeloma treatments. He also discusses how clinical trials and having greater treatment options are providing hope to those diagnosed with myeloma.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  MyelomaBone Marrow TransplantMyeloma LinkCAR T-cell TherapyVaccines for Blood Cancer PatientsLLS COVID-19 Antibody Research Study: Your Questions Answered Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportClinical Trial Support CenterOnline chats Young Adult ResourcesCaregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by GlaxoSmithKline and Janssen Oncology Pharmaceutical Companies of Johnson & Johnson. The post Patient-Doctor Perspectives: Hope for Myeloma Patients first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school. In the fourth episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the post-treatment stage of acute myeloid leukemia (AML). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Myeloid LeukemiaCaregiver support  Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school. In the third episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the schooling stage of acute lymphoblastic leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Lymphoblastic Leukemia (ALL)Caregiver support Hopecam Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Child’s Cancer – Schooling first appeared on The Bloodline with Blood Cancer United Podcast.

Lyneshia Johnson-Woodland Join us as we speak to Lyneshia Johnson-Woodland, an internet radio show host, actress and comedian who was diagnosed with non-Hodgkin lymphoma in September 2020.  In this episode, Lyneshia shared how she was diagnosed with lymphoma and the difficult treatments she endured during the COVID-19 global pandemic. She also discussed the emotional impact of cancer and how she is appreciating this second chance at life. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on the episode: Non-Hodgkin LymphomaBlack Women Connexting CommunitiesUniverSoul Circus® Additional LLS Support Resources: Information SpecialistsClinical Trial Support CenterFree telephone/web patient programsFree bookletsLLS Young Adult ResourcesFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Pharmacyclics, An AbbVie Company & Janssen Biotech. The post A New You: You Made It Through (NHL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school. In the second episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the treatment stage of acute lymphoblastic leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Lymphoblastic Leukemia (ALL)Caregiver support  Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Child’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school. In the first episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the diagnosis stage of acute myeloid leukemia (AML). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Myeloid LeukemiaCaregiver support  Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Erin Galyean Join us as we speak to Erin Galyean, a pharmaceutical sales trainer, professional speaker, and published author.  In this episode, Erin tells us how, after losing her father to non-Hodgkin lymphoma and then helping care for her sister, who was diagnosed with the same disease 20 years later, she learned that family and friends who are not the primary caregiver can still become great patient advocates. Erin shares strategies on how to effectively advocate for a patient, the different roles that friends and family can play on the support team and how, even if you live far away from a loved one facing a cancer diagnosis, you can still make a difference. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on the episode: Non-Hodgkin LymphomaBadass Advocate: Becoming the Champion Your Seriously Ill Loved One DeservesMeal TrainFive stages of grief and how to get through them: CNN Health Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportClinical Trial Support CenterOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations LLS AdvocacyLLS Myeloma LinkThe post How to Become a Great Patient Advocate first appeared on The Bloodline with Blood Cancer United Podcast.

Areej El-Jawahri, MD Join us as we speak to Dr. Areej El-Jawahri, a physician researcher at Massachusetts General Hospital and Associate Professor of Medicine at Harvard Medical School. In this episode, Dr. El-Jawahri shares the wonderful benefits of palliative care for both blood cancer patients and their families. Often erroneously associated with hospice or end of life care, palliative care can be started at any point after diagnosis and has shown many benefits with being started early in treatment. In palliative care, the physical, emotional and cognitive challenges after a cancer diagnosis are addressed by a specialized team of providers, leading to a more comfortable experience through treatment and beyond. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on the episode: Palliative Care Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportClinical Trial Support CenterOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations LLS AdvocacyLLS Myeloma Link Support for this episode provided by Bristol Myers Squibb; Genentech, Inc. & Biogen; Pharmacyclics LLC, An AbbVie Company & Janssen Biotech, Inc.The post How to Address Physical, Emotional and Cognitive Challenges of Cancer with Palliative Care first appeared on The Bloodline with Blood Cancer United Podcast.

Eunice Wang, MD Join us as we speak to Dr. Eunice Wang, the Chief of Leukemia Service and Professor of Oncology at Roswell Park Comprehensive Cancer Center in Buffalo, NY. In this episode, Dr. Wang delves into the rare blood cancer, blastic plasmacytoid dendritic cell neoplasm (BPDCN). Usually identified by characteristic deep purple lesions, oncologists continue to raise awareness of this rare diagnosis, as swift referral and treatment usually leads to better outcomes. After being universally identified as BPDCN by World Health Organization (WHO) in 2018, clinical trials and CAR T-cell therapies have brought new hope to BPDCN patients. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)Why Roswell Park for Leukemia & Blood Cancers Stem Cell TransplantationCAR T-cell TherapyClinical Trial Support Center Additional LLS Support Resources:  Information Specialists Free telephone/web patient programs Free booklets Financial supportOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations LLS AdvocacyLLS Myeloma Link Support for this episode provided by ImmunoGen. The post Hope for Rare Cancers: Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. To celebrate the 100th episode of The Bloodline with LLS, we will be speaking with Mel Mann, a chronic myeloid leukemia (CML) survivor and Dr. Brian Druker, a physician researcher at Oregon Health Sciences University (OHSU).  Mel shares how Dr. Druker’s research saved his life with the drug, Gleevec®, and we get to hear his inspirational message of how one person can make a difference. Dr. Druker discusses this revolutionary therapy, how it transformed the lives of CML patients like Mel, and how targeted treatments are continuing to transform how we treat cancer.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Chronic Myeloid LeukemiaThe rise of precision medicine for patients with CMLTKI TherapyBe The Match – Bone Marrow Donor RegistryLLS Translational ResearchLLS Specialized Centers of Research ProgramBeat AML Master Clinical TrialOral Parity LawsLLS AdvocacyClinical Trial Support CenterLLS Myeloma Link Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial supportOnline chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by Pfizer.The post Patient-Doctor Perspectives: Groundbreaking Research in CML first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In this fourth episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the survivorship stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCAR T-cell TherapyYoung Adult ResourcesCaregiver support Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In this third episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the moving home stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCaregiver support COVID resources Additional LLS Support Resources: Caregiver WorkbookYoung AdultsInformation Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCaregiver support Medical Power of AttorneyUlman Foundation Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In the first episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the diagnosis stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCaregiver support  Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Dr. Larry Saltzman, a Chronic Lymphocytic Leukemia (CLL) survivor and physician researcher and Dr. Steven Coutre from Stanford Medicine. Dr. Larry shares his experience living with CLL, participating in LLS Team In Training events, and his current work with LLS studying patient outcomes and COVID-19 vaccine antibody response. Dr. Coutre then delves deeper into CLL treatments, responses to vaccines and what is on the horizon for new treatments and clinical trials.  *Please note that this episode was recorded prior to the rise of the COVID Delta variant and release of booster shots. We encourage patients to consult with your physician regarding COVID-19 safety and vaccines. Preliminary results have also been released for the antibody study and can be found in the show notes below. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Chronic Lymphocytic Leukemia (CLL)Small Cell Lymphocytic Lymphoma (SLL)CAR T-cell TherapyMinimal Residual DiseaseTeam In TrainingFinancial supportClinical Trial Support CenterLLS Patient RegistryVaccines for Blood Cancer PatientsLLS COVID-19 Antibody Research Study: Your Questions Answered Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by Genentech, Inc. & Biogen and Pharmacyclics, An AbbVie Company & Janssen Biotech.The post Patient-Doctor Perspectives: CLL and a Decade of Transformation first appeared on The Bloodline with Blood Cancer United Podcast.

Nikki Steltenkamp Join us as we speak to Nikki Steltenkamp, a young adult, non-Hodgkin lymphoma survivor.  Nikki, an engineer, was 24 years old when she was diagnosed with primary mediastinal B-cell lymphoma.  In this episode, we hear about her intense treatments that finished up just as the world was entering a global pandemic. She also shares her experiences with mental health, fertility preservation and her podcast, That 6-Letter Word. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Primary Mediastinal B-cell Lymphoma (Non-Hodgkin Lymphoma)That 6-Letter Word PodcastAlessandra episode – That 6-Letter Word PodcastLivestrong FertilitySexuality & Young Adult Cancer with Dr. Anne KatzCancerConLLS Young Adult Resources Additional LLS Support Resources: Information SpecialistsClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Karyopharm Therapeutics and Pharmacyclics.The post Cancer and a Pandemic – A Non-Hodgkin Lymphoma Story first appeared on The Bloodline with Blood Cancer United Podcast.

Grzegorz (Greg) Nowakowski, MD Join us as we speak to Dr. Grzegorz (Greg) Nowakowski, a physician researcher and Professor of Medicine at the Mayo Clinic in Rochester, Minnesota, who also leads the Mayo Clinic Aggressive Lymphoma program. In this episode, Dr. Nowakowski discusses clinical trials for lymphoma patients, including recent advancements and how clinical trials work. He also discusses the benefits and common misconceptions of clinical trials. This episode is a must listen for patients of all cancers who want to know how they can get access to the latest advancements in treatment. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Non-Hodgkin Lymphoma Hodgkin LymphomaMayo Clinic HematologyClinical Trial Support CenterClinical TrialsIMPACT ProgramFinancial support Additional LLS Support Resources: Information SpecialistsUnderstanding Clinical Trials for Blood CancersFree telephone/web patient programs Free booklets Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode is provided by Mayo Clinic. The post Clinical Trials in Lymphoma: An Evolution, Not A Revolution first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Caron Jacobson, an Assistant Professor of Medicine at Harvard Medical School and a lymphoma physician and researcher at the Dana-Farber Cancer Institute. In this episode, Dr. Jacobson shares about the use and benefits of CAR T-cell therapy in B-cell cancers, such as diffuse large B-cell lymphoma (DLBCL), mantle cell lymphoma (MCL) and chronic lymphocytic leukemia (CLL). You will hear about how CAR T-cell therapy works, why it is used for B-cell cancers and the benefits of joining a clinical trial for this type of treatment. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: CAR T-cell TherapyDiffuse Large B-cell LymphomaMantle Cell LymphomaChronic Lymphocytic LeukemiaImmune Effector Cell Therapy Program – Dana-Farber Cancer InstituteClinical Trial Support Center Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support – **Mantle Cell Lymphoma funding is OPEN** Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by Allogene; Bristol Myers Squibb; CRISPR Therapeutics; Kite, a Gilead Company; Janssen Oncology & Legend Biotech; and Novartis Pharmaceuticals.The post How CAR T-cell Therapy Gives Hope to Cancer Patients first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Chelsea Brickham, a transgender model, actress, and professional cosplayer who was diagnosed with Stage II Hodgkin lymphoma in 2013. In this episode, Chelsea shares with us what it was like to go through cancer as a transgender female, the reaction from her family and friends, and how she maintained her femininity during treatment. Since her treatment, she has been active in spreading awareness of LGBTQ+ issues at comic conventions and on social media. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Hodgkin LymphomaChelsea on TikTokCancerCon by Stupid CancerLLS CommunityComic-Con Additional LLS Support Resources: Information Specialists Young Adult ResourcesClinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by Seagen.The post Making Your Mark: A Transgender Cancer Patient Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with David Wallace, a polycythemia vera (PV) patient and advocate.  In this episode, David shares how he struggled to get his diagnosis, advocated to get the treatment he needed, and finally how he found a specialist that was able to treat his PV. He used his struggles to create the website, PV Reporter and nonprofit, MPN Cancer Connection, to educate patients about their disease, help them find resources, and increase awareness of MPNs. David encourages all patients to become their own advocates and to actively participate in their cancer journey. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Polycythemia Vera (PV)Myeloproliferative Neoplasms (MPNs)PV ReporterMPN Cancer Connection Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by Incyte.The post Pushing for a Diagnosis: A Polycythemia Vera (PV) Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Alex Okafor, a defensive end with the Kansas City Chiefs. Alex lost his mother to acute myeloid leukemia (AML) in 2020. In this episode, Alex talks about his mother’s short battle with AML and the difficulties his family faced receiving this diagnosis during a global pandemic. Following his mother’s death, Alex found a new determination to make his mother proud and continue her legacy in fighting against racial injustice and creating a better society for the black community. *Since the taping of this podcast, Alex has launched the Alex Okafor Family Foundation, which is raising funds for the LLS Scholarship for Blood Cancer Survivors Program. In addition, in honor of Mother’s Day, Alex wrote a touching letter to his mother, titled A Letter to My Mother for The Players Tribune website. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Myeloid LeukemiaKansas City Star ArticleKingdom United Reading ProgramAlex Okafor Family Foundation and ScholarshipA Letter to My Mother Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by Genentech, Inc. and Jazz Pharmaceuticals.The post Tragedy to Legacy: NFL Player Continues The Fight first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Jan White, a survivor and thriver of Stage IV Non-Hodgkin Lymphoma.  In this episode, Jan shares her story of how she went from facing immediate paralysis and death to using her experience to advocate for patients. She became a legislative advocate for LLS, started a website to share her experience, and has participated in numerous national conferences in support of cancer patients and healthcare access.    DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Non-Hodgkin LymphomaDiffuse Large B-Cell LymphomaMental Health ResourcesJan Says OnwardOne More -Ologist Blog PostLLS AdvocacyJoin Mobile Action Network: Click Link or Text SPEAK to 69866 Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by Epizyme, Karyopharm Therapeutics and Pharmacyclics & Janssen Biotech.The post Bring It On: From Lymphoma to Advocacy first appeared on The Bloodline with Blood Cancer United Podcast.

Frank Dalichow, MD and Johanna DiMento, MD Join us as we speak to Dr. Johanna DiMento and Dr. Frank Dalichow, oncologists at the first cancer center on a reservation in the United States. In this episode, the doctors share about the realities of cancer care for Native American communities.  They also discuss how they were able to bring cancer care to the Navajo and Hopi tribes, and the importance of inclusivity and culturally appropriate care for this population. [photo credit: Brandy Tomhave] DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Tuba City Regional Health Care Corporation  Navajo Nation: First Cancer Center Indian Health ServiceCancer Rates: Navajo NationNational Comprehensive Cancer NetworkNavajo Hopi Health Foundation Navajo Culture/Medicine Man Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations The post Navajo Nation: The First Cancer Center on a Reservation first appeared on The Bloodline with Blood Cancer United Podcast.

William Yank Join us as we speak to William Yank, a 23-year-old, three-time Acute Lymphoblastic Leukemia (ALL) survivor. In this episode, we hear about the variety of treatments William went through, his relapses and then subsequent stem cell transplant. Now one year out of transplant, he shares about his post-cancer journey – going viral on TikTok, becoming the face of the LLS Giving Tuesday campaign and then starting a podcast with another Young Adult Cancer survivor. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic LeukemiaCancerCon by Stupid CancerClonoSeq®CAR T-cell TherapyStem Cell TransplantThe Illest. PodcastWilliam’s TikTok pageFamily Service Society, Inc.LLS Young Adult Resources Additional LLS Support Resources: Information SpecialistsClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Amgen Inc. and Jazz Pharmaceuticals.The post I Will Survive: A Viral TikTok Star’s Journey through Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Lori Muffly and Dr. Matthew Frank from Stanford Medicine in Stanford, CA, about the recent advancements in testing for Minimal/Measurable Residual Disease (MRD). In this episode, we delve into what MRD is, which blood cancers testing is currently used on, and how we can utilize it to more accurately monitor patients and customize treatment. The doctors also share exciting possibilities on how MRD and other testing can benefit patients in the future. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Minimal/Measurable Residual DiseaseA Medication Resource for Blood Cancer Patients Minimal/Measurable Residual Disease Chart Stanford Medicine ResearchCAPP-Seq test – Ash Alizadeh Acute Lymphoblastic Leukemia (ALL)   Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by Genentech, Inc. and Biogen. The post Exploring Minimal/Measurable Residual Disease (MRD) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Myelodysplastic Sydromes (MDS)Stem Cell TransplantationHereditary Myeloid Malignancies – University of Chicago MedicineDr. Lucy Godly ContactYoung Adult Resources Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Taiho Oncology. The post Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.