The Bloodline with Blood Cancer United Podcast

Chris Pagliarulo A cancer diagnosis in your 20s or 30s can raise questions most people never expect to face so early in life. In this episode, we speak with Chris Pagliarulo, who was diagnosed with Hodgkin lymphoma at the age of 29, about the medical, emotional, and practical realities of cancer during early adulthood. We explore issues that are especially relevant for adolescent and young adult (AYA) patients, including delayed diagnosis, fertility preservation, treatment side effects, career disruption, relationships, and finding connection with others who understand. While this conversation highlights experiences unique to AYAs, patients and caregivers of all ages may hear pieces of their own experience reflected in what Chris shares. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Hodgkin lymphoma Fertility and family planning resources Patti Robinson Kauffman First Connection® Light The Night Additional Blood Cancer United Support Resources:  Information Specialists  Financial support Online Chat Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources The post A Young Adult Story: Cancer, Connection, and Life After Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Marlise Luskin, MD With so many new advances in acute lymphoblastic leukemia (ALL), understanding today’s treatment landscape can give patients a clearer, more hopeful outlook. In this episode, we speak with Marlise Luskin, MD of the Dana-Farber Cancer Institute, about what adults should know when facing a diagnosis of acute lymphoblastic leukemia. Dr. Luskin helps listeners understand how ALL develops, how subtypes are identified, and why genetics play an important role in guiding treatment. She discusses current therapies including chemotherapy, targeted agents and immunotherapies including CAR T-cell therapy, as well as how care teams monitor progress and manage side effects. While ALL is a complex disease, patients and caregivers will hear clear explanations, practical information, and meaningful reasons to feel hopeful about the advances shaping ALL care today. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute lymphoblastic leukemia (ALL) Minimal/measurable residual disease (MRD) fact sheet Allogeneic stem cell transplantation Clinical Trial Support Center ALL Children and Teens booklet Additional Blood Cancer United Support Resources:  Information Specialists  Financial support Online Chat Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Support groups  Caregiver support  Caregiver Workbook Young Adult Resources Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Episode supported by Syndax Pharmaceuticals Inc. The post Acute Lymphoblastic Leukemia (ALL): The New Tools Shaping Tomorrow first appeared on The Bloodline with Blood Cancer United Podcast.

Andrew Yee, MD Multiple myeloma can feel unfamiliar and overwhelming at first, but today’s advances tell a much brighter story. In this episode, Dr. Andrew Yee of Massachusetts General Hospital explains what myeloma is, how it’s diagnosed, and why new treatment options, from four-drug regimens to CAR T-cell therapy and bispecific antibodies, are transforming patient outcomes. With enthusiasm and relatable analogies, he highlights how patients may progress from periods of significant challenges to reaching a level of stability and well‑being that allows them to live fully. This conversation offers clarity, confidence, and real optimism for anyone navigating myeloma. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Multiple myeloma Amyloidosis Autologous stem cell transplantation CAR T-cell therapy Immunotherapy fact sheet Clinical Trial Support Center Additional Blood Cancer United Support Resources:  Information Specialists  Financial support Online Chat Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Episode supported by AbbVie Inc.; Bristol Myers Squibb; Genentech, A Member of the Roche Group; GSK plc.; Johnson & Johnson. The post Facing Multiple Myeloma: A Guide to Choices, Care, and Confidence first appeared on The Bloodline with Blood Cancer United Podcast.

CAR T‑cell therapy is redefining what personalized cancer treatment can look like, offering real promise for patients and families. In this episode, we speak with Dr. Richard Maziarz and CAR T Nurse Coordinator Bashi Ratterree of Oregon Health & Science University (OHSU). Together, they explain how CAR T‑cell therapy works, who may be eligible, what patients can expect during treatment and recovery, and the promising advancements shaping the future of this innovative therapy. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  CAR T-cell therapy Clinical Trial Support Center CAR T-Cell Therapy: A Path of Hope and Healing Video Series Bloodline Breakthroughs: innovations and inspiration video podcast: CAR T-cell Therapy Hematology Horizons vlog:  CAR T-Cell Therapy and the Patient Experience CAR T-Cell Therapy: Side Effects video   Additional Blood Cancer United Support Resources:  Information Specialists  Financial support Online Chat Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Episode supported by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech;  Kite, a Gilead Company; Novartis Pharmaceuticals Corporation. The post Inside CAR T‑Cell Therapy: How Innovation Is Changing Lives first appeared on The Bloodline with Blood Cancer United Podcast.

Stefan Barta, MD, MS Cutaneous T‑cell lymphoma (CTCL) is a rare condition that often raises important questions for patients and families. In this episode, we sit down with Dr. Stefan Barta, of the University of Pennsylvania, to bring clarity to what CTCL is, how it’s diagnosed, and what patients can expect from staging and treatment. Dr. Barta breaks down the differences between CTCL subtypes, explains why diagnosing someone can take time, and shares the most up-to-date therapies, including skin directed treatments, immunotherapies, and emerging clinical trial options. Most importantly, he offers reassurance for those newly diagnosed: “The future is absolutely bright… there is a lot of hope for our patients with CTCL.” DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Cutaneous T-cell lymphoma Cutaneous Lymphoma Foundation Clinical Trial Support Center Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Online Chat Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Episode supported by Kyowa Kirin, Inc. and Cutaneous Lymphoma Foundation.The post Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward first appeared on The Bloodline with Blood Cancer United Podcast.

Mikkael A. Sekeres, MD, MS Curious about what’s new in the world of myelodysplastic syndromes (MDS)? We’re bringing you the latest insights straight from one of the field’s leading experts. In this episode, we speak with Dr. Mikkael Sekeres, of the Sylvester Comprehensive Cancer Center at University of Miami Health. Recorded onsite at the 2025 ASH (American Society of Hematology) Annual Meeting and Exposition, this conversation explores what MDS is, how it’s treated today, and what researchers are learning about managing side effects. Dr. Sekeres also walks us through the most notable MDS updates presented at ASH, highlighting promising therapies and clinical trial data that may help shape future care. Whether you’re newly learning about MDS or following ongoing research, this episode offers an accessible look at where things stand and what’s on the horizon. *This is not an official program of the ASH annual meeting DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myelodysplastic syndromes International Prognostic Scoring System for MDS American Society of Hematology Highlights from ASH vlog Blood cancer research 2026: Meeting patients where they want to be | blog post Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Clinical Trial Support Center Online Chat Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Episode supported by Geron Corporation and Taiho Oncology, Inc.The post The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research first appeared on The Bloodline with Blood Cancer United Podcast.

Ann Grace MacMullan, C-IAYT In this episode, we sit down with Ann Grace MacMullan, Director of Integrative Wellness at the International Waldenstrӧm’s Macroglobulinemia Foundation (IWMF), to explore how wellness can become a powerful part of life after a cancer diagnosis. Ann Grace shares practical, calming techniques, including breathing exercises, “Bee’s Breath”, and guided meditation, that you can do anywhere to reduce stress and feel more grounded. We’ll also dive into what integrative wellness really means, why it matters for blood cancer patients, and how concepts like the “self-care sandwich” can help you start and end your day with intention. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Integrative oncology Palliative care How Do I Use Breathing To Manage Anxiety? IWMF wellness videos Integrative Oncology podcast episode International Waldenstrom’s Macroglobulinemia Foundation (IWMF) Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Clinical Trial Support Center Online Chat Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources The post Hope Meets Healing: Simple Practices for Stress Relief first appeared on The Bloodline with Blood Cancer United Podcast.

Jean Koff, MD, MSc Non-Hodgkin lymphoma (NHL) can sound overwhelming, but what does it really mean for patients and families? In this episode, we speak to Dr. Jean Koff of Winship Cancer Institute of Emory University, who breaks down the big picture of NHL: what it is, how it’s an umbrella term for multiple subtypes, and what today’s treatments and tomorrow’s innovations could mean for you. From understanding subtypes and staging to exploring options like watchful waiting, chemotherapy, and cutting-edge immunotherapies, we cover what matters most: knowledge, clarity, and hope. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma The Lymphoma Guide Lugano staging system Immunotherapy fact sheet CAR T-cell therapy Allogeneic stem cell transplantation Clinical Trial Support Center Online NHL Chat Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Supported by AbbVie Inc. and Genentech, A Member of the Roche Group.The post The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow first appeared on The Bloodline with Blood Cancer United Podcast.

Michell Fullmer, RDN, LDN, CSP, CNSC Nutrition plays a powerful role in supporting children through cancer treatment, but it’s not always easy for caregivers to know what’s best, especially when there are taste changes, appetite shifts, and treatment side effects. In this episode, we sit down with Michell Fullmer, a registered dietitian at Nemours Children’s Hospital, to share practical insights that simplify nutrition during cancer care, reduce mealtime stress, and empower caregivers to make choices that help their child feel better every day. Join us for myth-busting, actionable tips, and reassurance from an expert who has guided countless families through this important part of care. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Free Nutrition Consultations Nemours Children’s Health Blood Cancer United Dare To Dream Project Navigating Cancer for Children and Teens HealthyWeight.gov Additional Blood Cancer United Support Resources:  Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by Nemours Children’s Health. The post Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Abdulraheem Yacoub, MD In this episode, we are joined by Dr. Abdulraheem Yacoub of The University of Kansas Cancer Center to discuss myeloproliferative neoplasms (MPN), a group of rare blood cancers that affect how blood cells are produced. We explore what MPNs are, the most common types, and the signs and symptoms that lead to diagnosis. We also answer real questions from members of our MPN online chat community, covering topics like life expectancy, genetic mutations, and managing side effects. Finally, we discuss current treatment options, emerging therapies, and share a message of hope for patients and their loved ones. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloproliferative neoplasms (MPN) MPN Online Chat MPN-SAF Symptom Assessment Form MPN Research Consortium Tissue Bank Bispecific antibody/immunotherapy fact sheet CAR T-cell therapy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by PharmaEssentia USA Corporation.The post After Diagnosis: Finding Hope with Myeloproliferative Neoplasms first appeared on The Bloodline with Blood Cancer United Podcast.

When cancer enters a family, it changes everything – routines, roles, and relationships. In this episode, we talk with Lindsey and Thomas Kealey about what it means to navigate cancer together as a care partner and patient. From unexpected diagnoses to months spent living in a hospital room, Lindsey shares how she balanced caregiving, work, and self-care while learning to hold space for difficult emotions. Together, they offer practical tips for caregivers, like creating healing spaces, communicating with care teams, and finding small moments of gratitude amid uncertainty. This heartfelt conversation is a reminder that behind every patient is someone quietly carrying so much and they deserve to be seen too. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Caregiver support  Caregiver Workbook Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Write it Out Journal Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Mental Health Resources The post Supporting the Supporter: Real Talk for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

John Burke, MD MRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers.  In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Minimal/Measurable Residual Disease (MRD) fact sheet Minimal/Measurable Residual Disease (MRD) chart CAR T-cell therapy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics. The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.

Bethany Lilly Choosing the right health insurance plan can make all the difference in protecting your health and finances. In this episode, Bethany Lilly, Executive Director of Public Policy at Blood Cancer United, discusses important updates to healthcare insurance enrollment for 2026. Bethany explains what patients and caregivers need to know about changes to the Healthcare Marketplace and Medicare, how to avoid falling into medical debt, and the resources available to help you make informed decisions. Whether you’re reviewing employer coverage, Marketplace plans, or Medicare options, this episode will help you prepare with confidence. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Medical Debt Case Management (help choosing the right plan) How Do I? Insurance video series Healthcare.gov (Marketplace open enrollment) Medicare.gov (Medicare open enrollment) SHIP (State Health Insurance Plan) Get Involved: Renewing Enhanced Premium Tax Credits Advocacy and Public Policy State Marketplaces Open Enrollment Information Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver WorkbookMental Health Resources The post Health Coverage for 2026 and Protecting Yourself from Medical Debt first appeared on The Bloodline with Blood Cancer United Podcast.

Anand Jillella, MD In this episode of The Bloodline with Blood Cancer United, Elissa and guest co-host, Kristen Parker, speak with Dr. Anand Jillella, of Georgia Cancer Center. Together, they explore acute promyelocytic leukemia (APL)—a rare but highly curable subtype of acute myeloid leukemia. Dr. Jillella explains the rapid onset of APL, its hallmark signs and symptoms, and how targeted treatments have transformed outcomes for patients. Kristen, an APL survivor and Blood Cancer United Patient & Community Outreach Manager, also shares her personal perspective. Listeners will gain valuable insight into why APL stands apart as one of the most treatable forms of leukemia today. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute promyelocytic leukemia (APL) Differentiation syndrome SEER (Surveillance, Epidemiology and End Results Program) database Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources The post Acute Promyelocytic Leukemia (APL): Advances, Hope, and Healing first appeared on The Bloodline with Blood Cancer United Podcast.

Andy Kolb, MD Eric Cooks, PhD Bryon Daily In this special episode of The Bloodline, we introduce our new name and what it means for blood cancer patients, caregivers, and the wider community. Joining us from Blood Cancer United are Dr. Andy Kolb, President & CEO; Dr. Eric Cooks, Senior Director of the Equity & Access Research Program; and Bryon Daily, myeloma survivor and Senior Manager of National Community Outreach. Together, they share why inclusivity and unity are at the heart of Blood Cancer United and how this evolution strengthens our mission to support every person impacted by blood cancer. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Blood Cancer United Patient-Doctor Perspectives: Hope for Myeloma Patients Community Outreach In The Field: Blood and Chess Atlanta Clinical Trial Support Center Advocacy and Public Policy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources The post We are Blood Cancer United: a new name, an unstoppable community first appeared on The Bloodline with Blood Cancer United Podcast.

Eduardo Bruera, MD En este episodio damos la bienvenida al Dr. Eduardo Bruera, distinguido oncólogo médico y jefe del Departamento de Medicina Paliativa, Rehabilitación y Medicina Integrativa en la División de Medicina Oncológica del MD Anderson Cancer Center. Acompáñanos mientras el Dr. Bruera nos ayuda a comprender mejor los cuidados paliativos, definiéndolos y desmintiendo ideas erróneas comunes, al mismo tiempo que explica su verdadero propósito y cómo los pacientes y cuidadores pueden experimentar una mejor calidad de vida al combinar este cuidado de apoyo con sus terapias activas contra el cáncer. Esto es más que una conversación, es un paso hacia una mejor atención y días más brillantes. DESCARGAR TRANSCRIPCIÓN HAGA CLIC AQUI para participar en la encuesta del episodio. Mencionado en este episodio: Manejo de efectos secundarios Atención paliativa Comunicación con el equipo de profesionales médicos: tratamiento Comunicación con el equipo de profesionales médicos: sin necesita tratamiento adicional Recursos adicionales de soporte de LLS:  Apoyo Economico  Apoyo entre pares  Alimentos y nutrición  Centro de Apoyo para Ensayos Clinicos  Especialistas en Información    LLS.org/Espanol  Manuales del cuidador  Manuales del sobreviviente     Publicaciones informativas gratuitas   Webcast, Videos Y Episodios de Pódcast  The post Cuidados paliativos: Más de lo que piensas first appeared on The Bloodline with Blood Cancer United Podcast.

Dianne Callahan In this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma Stem cell transplantation Allogeneic stem cell transplantation animated video NMDP (formerly Be The Match) Light The Night Visionaries of the Year Team In Training Advocacy and Public Policy Caregiver support  Caregiver Workbook Mental Health Resources Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Free booklets  LLS Clinical Trial Support Center Financial support Young Adult Resources Support groups  Survivorship Workbook LLS Community  Supported by Genentech, A Member of the Roche Group.The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

What happens when a sibling match becomes the key to survival? In this heartfelt episode, we speak with Peter and Susan Feinberg, a brother-sister duo connected by both family and a lifesaving stem cell transplant. Peter, an acute lymphoblastic leukemia (ALL) survivor, shares his experience from diagnosis to remission, while Susan offers a rare and intimate view into what it means to be a stem cell donor. Together, they reflect on the emotional and logistical challenges of transplant, the determination to succeed when miles apart, and the hope it represents. Their story sheds light on the real impact of donation—and why joining the registry can mean everything to someone waiting. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Stem cell transplantation Allogeneic stem cell transplantation animated video Acute lymphoblastic leukemia (ALL) Patient-Doctor Perspectives: Acute Lymphoblastic Leukemia (ALL) NMDP (formerly Be The Match) BMT Infonet PubMed Caregiver support  Caregiver Workbook Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Free booklets  LLS Clinical Trial Support Center Financial support Young Adult Resources Support groups  Survivorship Workbook Advocacy and Public Policy LLS Community Mental Health Resources The post Siblings, Stem Cells, and Second Chances first appeared on The Bloodline with Blood Cancer United Podcast.

Sara Jahnke, PhD Steve Fisher Tommy Schroeder Firefighters risk their lives every day—but what happens when some dangers aren’t in the flames, but in the long-term health risks they face on the job? In this episode, we take a closer look at cancer in the fire service, especially the increased risk of blood cancer. Joining us are Dr. Sara Jahnke, Director and Senior Scientist at the Center for Fire, Rescue & EMS Health Research; Steve Fisher, a retired firefighter and cancer survivor; and Tommy Schroeder, a Portland Fire & Rescue Lieutenant and dedicated LLS volunteer. From occupational exposures to systemic change, this conversation dives deep into the science, personal experiences, and grassroots efforts to protect those who protect us. Whether you’re in the firehouse or supporting from the outside, this is a must-listen for anyone who advocates for firefighter health and safety. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  LLS Firefighter Support Resource Page Firefighter and Cancer Risk Fact Sheet Firefighter Cancer Support Network (FCSN) Firefighter Presumptive Health Laws Science To The Station DetecTogether Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Free booklets  LLS Clinical Trial Support Center Financial support Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy LLS Community Mental Health Resources The post Sound the Alarm: Firefighter Health, Cancer Risk, and Moving Forward first appeared on The Bloodline with Blood Cancer United Podcast.

Marc Hoffman, MD In this episode, we’re joined by Dr. Marc Hoffmann from The University of Kansas Cancer Center, to explore chronic lymphocytic leukemia (CLL)—what it is, how it’s treated today, and where research is headed. Dr. Hoffmann shares insights on treatment goals, side effect management, and the importance of shared decision making. We also touch on emerging therapies—including CAR T-cell therapy and bispecifics—and end with a message of hope for those navigating life after a CLL diagnosis. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic Lymphocytic Leukemia Shared Decision-Making Chronic Leukemias Interactive Program CAR T-cell therapy Allogeneic stem cell transplantation LLS Clinical Trial Support Center Financial support How Far Have We Come: Mantle Cell Lymphoma – Dr. Jacob Soumerai Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy LLS Community Mental Health Resources Supported by AbbVie Inc., BeOne Medicines and Genentech, A Member of the Roche Group. The post Partnering in Care: Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

Julie Larson, LCSW Simantinee Roy, Matt Hunt, Alfredo Martinez, and Casey Kang The cancer experience isn’t just physical—it’s deeply emotional. Join us for this special episode recorded onsite while filming our SHARE Project video series, exploring emotional well-being in cancer survivorship. Listen in as four blood cancer survivors share how their diagnoses impacted their mental health and what helped them cope. Key Opinion Leader, psychotherapist Julie Larson, LCSW, then joins us to discuss signs of emotional distress, the role of therapy, and how resilience and support can shape the healing journey. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  SHARE Project Video Series Young Adult Resources YAconnect: Young Adults Living with Blood Cancer Online Chat Mental Health Resources How Do I Use Breathing To Manage Anxiety Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  LLS Clinical Trial Support Center Advocacy and Public Policy Free booklets  LLS Online Chat Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook LLS Community The post LIVE! At SHARE: Emotional Wellness in Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Mary Wells In this episode, we speak with Mary Wells, who was diagnosed with primary myelofibrosis in 2018, a rare blood cancer that falls under the umbrella of myeloproliferative neoplasms (MPN). Mary walks us through her journey, from the side effects and emotional toll of cancer to finding the right treatment that allowed her to reclaim her life. Mary shares the ups and downs of watch-and-wait periods, switching medications, and navigating side effects. Along the way, she advocated for her own care and partnered closely with her doctor, making shared decisions that ultimately led her to a treatment that works best for her. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Primary Myelofibrosis Shared Decision Making podcast episode MPN Online chats  LLS Clinical Trial Support Center Advocacy and Public Policy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook LLS Community Mental Health Resources Supported by GSK plc.The post Choosing the Path Forward: Shared Decisions in Myelofibrosis Care first appeared on The Bloodline with Blood Cancer United Podcast.

Lakshmi Nayak, MD Primary Central Nervous System Lymphoma (PCNSL) is a rare form of non-Hodgkin lymphoma that affects the brain, spinal cord, or eyes. In this episode, Dr. Lakshmi Nayak of Dana-Farber Cancer Institute, helps us better understand this uncommon type of lymphoma.  From early signs and symptoms to diagnosis, treatment options, and the latest clinical trials, Dr. Nayak breaks it all down in a clear and compassionate way. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma Primary central nervous system (CNS) lymphoma (non-Hodgkin lymphoma) fact sheet CAR T-cell therapy Stem cell transplantation Autologous stem cell transplantation video LLS Clinical Trial Support Center Bispecific antibodies – Immunotherapy fact sheet Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community Mental Health Resources Supported by ONO Pharmaceutical The post Breaking Down Primary CNS Lymphoma: From Rare Diagnosis to Growing Progress first appeared on The Bloodline with Blood Cancer United Podcast.

Sara Grisales Jaramillo, LMSW En este episodio, conocemos a Sara Grisales Jaramillo, trabajadora social, gerente de Insight y del Centro de Llamadas de CancerCare. Únase a la conversación donde Sara nos identifica las disparidades en el tratamiento de cáncer, las comunidades más afectadas y les brinda consejos a los pacientes y sus cuidadores de cómo abogar por una mejor calidad de salud.  DESCARGAR TRANSCRIPCIÓN HAGA CLIC AQUI para participar en la encuesta del episodio. Mencionado en este episodio:  Apoyo entre pares  Atención Médica Para Personas Indocumentadas  CancerCon® (en Inglés) CancerCare (en Español) Comunicación con el equipo de profesionales médicos: tratamiento Comunicación con el equipo de profesionales médicos: sin necesita tratamiento adicional Comunidad de LLS Cafecito con LLS: Hablemos de Decisiones Compartidas con su Doctor Stupid Cancer® (en Inglés) Chats en línea en inglés Recursos adicionales de soporte de LLS:  Apoyo Economico  Apoyo entre pares  Alimentos y nutrición  Centro de Apoyo para Ensayos Clinicos  Especialistas en Información    LLS.org/Espanol  Manuales del cuidador  Manuales del sobreviviente     Publicaciones informativas gratuitas   Webcast, Videos Y Episodios de Pódcast  The post Atención Médica: Su Derecho de Abogar first appeared on The Bloodline with Blood Cancer United Podcast.

Trent Wang, MD Curious about CAR T-cell therapy? We went straight to the source for answers. In this episode, the LLS Patient Education team visited The University of Miami Sylvester Cancer Center to meet with Dr. Trent Wang. He answered some of the most frequently asked questions from our patients and caregivers about this innovative cancer treatment – from who’s eligible and what to expect, to side effects, caregiver roles, and exciting future developments. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  CAR T-cell therapy Stem cell transplantation Graft-vs-host disease (GVHD) LLS Clinical Trial Support Center Bispecific antibodies – Immunotherapy fact sheet Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community Mental Health Resources Supported by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech; and Kite, a Gilead Company.The post CAR T-cell Therapy: Your Questions Answered first appeared on The Bloodline with Blood Cancer United Podcast.

Eytan Stein, MD Acute myeloid leukemia (AML) is one of the most aggressive blood cancers—but science is making real progress. In this episode, Dr. Eytan Stein of Memorial Sloan Kettering breaks down what makes AML so challenging to treat, how it’s classified, and the latest therapies changing the outlook for patients. From combination therapies and menin inhibitors to future research on CAR T-cell therapy and bispecifics, this is a hopeful, expert-led look at the future of AML treatment. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute myeloid leukemia Differentiation syndrome Stem cell transplantation Graft-vs-host disease (GVHD) LLS Clinical Trial Support Center CAR T-cell therapy Bispecific antibodies – Immunotherapy fact sheet Genetics and Genomics: What are They, and Why Are They Important for Cancer Patients? Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources Supported by Abbvie Inc.; Astellas Pharma US Inc.; Genentech, A Member of the Roche Group; and Kura Oncology, Inc.The post Understanding AML: The Challenges, The Progress, The Hope first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Ashlee and Michael Cramer, the mother-son duo behind the Michael and Mom Talk Cancer podcast. Diagnosed at 19 with a rare and aggressive type of lymphoma, Michael endured intense treatments while Ashlee became his full-time caregiver. Together, they turned their pain into purpose—creating a platform to support other young adults and caregivers navigating cancer. In this episode, they open up about diagnosis, survivorship, and the unbreakable bond that grew from their shared experience. Tune in for an inspiring conversation about finding strength, hope, and beauty in life’s hardest moments. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Non-Hodgkin lymphoma booklet Hepatosplenic T-cell lymphoma Stem cell transplantation Graft-vs-host disease (GVHD) Michael and Mom Talk Cancer podcast CancerCon® CureFest® CancerBuddy® Caregiver support  Caregiver Workbook Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations – LLS Nutrition Education Resources Center (NESC) LLS Clinical Trial Support Center Financial support Free telephone/web patient programs  Free booklets  Online chats  Support groups  Advocacy and Public Policy Survivorship Workbook LLS Community Mental Health Resources The post Unbreakable: A Mother & Son’s Fight Against Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

When it comes to cancer and nutrition, there’s a lot of misinformation out there. Can sugar fuel cancer? Should you cut out carbs? In this episode, we’re busting some of the biggest myths about cancer nutrition and breaking down what really matters when it comes to fueling your body during treatment and beyond. Join us as we chat with LLS Registered Dietitians, Margaret Martin and Heather Knutson, about evidence-based nutrition strategies that can help support energy levels, manage side effects, and promote overall well-being. Plus, we’ll share how you can access free, personalized nutrition support through The Leukemia & Lymphoma Society’s Nutrition Education Services Center (NESC). Get ready to separate fact from fiction and take the guesswork out of eating well during cancer! DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Free Nutrition Consultations – LLS Nutrition Education Services Center (NESC) Additional LLS Support Resources:  Information Specialists  LLS Clinical Trial Support Center Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources Supported by Johnson & Johnson.The post Cancer Nutrition: Myth Busters Edition first appeared on The Bloodline with Blood Cancer United Podcast.

Cesar Rodriguez, MD In this episode, we sit down with Dr. Cesar Rodriguez of Mount Sinai Hospital in New York, NY to discuss the evolving landscape of myeloma treatment. Groundbreaking innovations are bringing new hope to patients and caregivers. Dr. Rodriguez breaks down the latest advancements in immunotherapy, including CAR T-cell therapy and bispecific antibodies. Hear how researchers and physicians are working to make myeloma into a manageable, long-term disease, while ultimately searching for a cure. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloma Monoclonal Gammopathy of Undetermined Significance (MGUS) and Related Conditions Amyloidosis Revised International Staging System (R-ISS) LLS Clinical Trial Support Center Autologous stem cell transplantation Autologous stem cell transplant animated video CAR T-cell therapy Bispecific antibodies – Immunotherapy fact sheet Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources Supported by Abbvie Inc.; Genentech, A Member of the Roche Group; and Johnson & Johnson.The post Hope in Myeloma: The Road to Long-Term Survival first appeared on The Bloodline with Blood Cancer United Podcast.

Francine Foss, MD A Cutaneous T-cell Lymphoma (CTCL) diagnosis can raise many questions, from understanding symptoms to exploring treatment options.  In this episode, we talk to Dr. Francine Foss of Yale University to break down what CTCL is, how to manage side effects, and the latest advancements in treatment—including promising immunotherapies like CAR T-cell therapy and bispecific antibodies.  We also discuss the critical role of clinical trials in shaping the future of CTCL care.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Cutaneous T-cell Lymphoma Fact Sheet Recent LLS T-cell lymphoma webcast LLS Clinical Trial Support Center ClinicalTrials.gov Stem cell transplantation CAR T-cell therapy Bispecific antibodies – Immunotherapy fact sheet Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources Supported by Kyowa Kirin, Inc.The post Cutaneous T-Cell Lymphoma (CTCL): From Diagnosis to Innovation first appeared on The Bloodline with Blood Cancer United Podcast.

Bilal Abid, MD In this episode, we sit down with Dr. Bilal Abid from University of Texas Health Science Center in Houston to discuss how healthcare disparities have an effect on cancer care — especially when it comes to cutting-edge treatments such as stem cell transplantations and CAR T-cell therapy. We discuss how race, socioeconomic status, education, and geographic location can determine a patient’s access to cancer care. With travel, insurance, and systemic barriers in the mix, we explore what patients can do to navigate these challenges, and how treatment centers and policymakers are contributing to ensure equitable access to care for all patients. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Bloodline Breakthroughs: Innovations & Inspiration video podcast American Society of Transplantation ACCESS Initiative NMDP (formerly Be The Match) LLS Clinical Trial Support Center Stem cell transplantation CAR T-cell therapy Ronald McDonald House Charities American Society of Hematology Bispecific antibodies – Immunotherapy fact sheet CIBMTR Analysis Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources Supported by Genentech, A Member of the Roche Group. The post Impact of Disparity: Navigating Treatment Equality in Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

Alison Loren, MD A stem cell transplant for blood cancer is just the beginning – what may come next for the patient can be a complex journey. In this episode, Dr. Alison Loren of the University of Pennsylvania discusses graft-vs-host disease (GVHD), a possible complication of transplantation – exploring the latest advancements in treatment and how patients and caregivers can navigate the challenges ahead. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Graft-vs-host disease Stem cell transplantation Stem cell transplantation booklet Allogeneic stem cell transplant video Autologous stem cell transplant video Clinical Trial Support Center NMDP (formerly Be The Match) Autologous GVHD Syndrome Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources The post Beyond the Transplant: Navigating Graft-vs-Host Disease (GVHD) first appeared on The Bloodline with Blood Cancer United Podcast.

William Shomali, MD Research continues to accelerate for myelodysplastic syndromes (MDS), giving hope to patients and their loved ones. In this episode, Dr. William Shomali of Stanford University dives into cutting-edge treatments for both low and high-risk MDS. Learn about the innovative therapies that are enhancing quality of life and explore the promising strides towards curative treatments. Don’t miss this inspiring conversation filled with valuable insights and hope for a brighter future.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myelodysplastic syndromes (MDS) Acute myeloid leukemia (AML) IPSS-Molecular (IPSS-M) risk stratification Bone marrow transplantation Iron chelation CAR T-cell Therapy Bispecific Antibodies Clinical Trial Support Center Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources Support for this episode provided by Geron Corporation and Taiho Oncology, Inc.The post There’s Always Hope: Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

Mateo Mejia Saldarriaga, MD En este episodio conocemos al Dr. Mateo Mejia Saldarriaga de Weill Cornell Medicine, hospital NewYork-Presbyterian. Únase para aprender cómo los avances científicos han transformado el tratamiento de mieloma dándole lugar a mejores resultados y pronósticos para pacientes.  DESCARGAR TRANSCRIPCIÓN HAGA CLIC AQUI para participar en la encuesta del episodio. Mencionado en este episodio: Mieloma Ensayos clínicos Inmunoterapia Terapia de células T con receptor de antígeno quimérico (CAR-T) Administración de Alimentos y Medicamentos Recursos adicionales de soporte de LLS: Apoyo Economico Apoyo entre pares Alimentos y nutrición Atención Médica Para Personas Indocumentadas Centro de Apoyo para Ensayos Clinicos Especialistas en Información  LLS.org/Espanol Manuales del cuidador Manuales del sobreviviente   Programa de Administracion de Casos de Deuda Medica Publicaciones informativas gratuitas Webcast, Videos Y Episodios de Pódcast The post Nuevos Avances Para Mieloma Múltiple first appeared on The Bloodline with Blood Cancer United Podcast.

Mousa Ghannam Join us as we speak to Mousa Ghannam, who was diagnosed with chronic myeloid leukemia (CML) at the age of 24. He shares his ups and downs over the past 20 years and how he has persevered to become the happy and healthy husband and father he is now.  Don’t miss this inspiring episode of a blood cancer survivor who chooses to bet on life and not cash in his chips. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic myeloid leukemia Patient-Doctor Perspectives: Groundbreaking Research in CML podcast episode Shared Decision Making In Chronic Leukemias CML Online Chat Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community  Mental Health Resources The post Not Cashing In My Chips: Living with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Yasmin Karimi, MD Diffuse large B-cell lymphoma is the most common subtype of non-Hodgkin lymphoma. Tune in as we chat with Dr. Yasmin Karimi from the University of Michigan about the latest breakthroughs in treatment, including combination therapies, CAR T-cell therapy and bispecific antibodies. Discover how these innovations are offering new hope and pathways to cures for patients. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Diffuse large B-cell lymphoma CAR T-cell Therapy Bispecific Antibodies Diffuse Large B-Cell Lymphoma: Effective Practices for Meaningful Care Conversations in a Changing Landscape You and Your Doctor: Actively Participating in Your Care: A Toolkit For Those Living With Or Caring For Someone With Diffuse Large B-Cell Lymphoma (DLBCL) Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community Mental Health Resources Support for this episode provided by Genmab US, Inc. The post Emerging Therapies and Hope: Diffuse Large B-cell Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Rashad Hayes, LMSW Join us for a powerful message of hope and perseverance after a cancer diagnosis. In this episode, Rashad Hayes shares his experience of being diagnosed with follicular lymphoma at 22 years old and how it motivated him to reevaluate his mindset and push forward. Now a social worker and motivational speaker, Rashad introduces his C.A.K.E. methodology, a unique approach to embracing life’s challenges. Don’t miss out on this uplifting episode of resilience and adaptation in the face of cancer. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Follicular lymphoma Rashad Hayes Speaks Mental Health Resources Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook LLS Community The post Don’t Burn Your CAKE: Embracing Life’s Challenges first appeared on The Bloodline with Blood Cancer United Podcast.

Sara Grisales Jaramillo, LMSW Navigating the maze of cancer care can be overwhelming. Join us as Sara Grisales Jaramillo, LMSW, of CancerCare® discusses the challenges patients face in accessing affordable treatment and strategies to improve cancer outcomes. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  CancerCare Navajo Nation: The First Cancer Center on a Reservation  podcast episode Cafecito con LLS: Hablemos de los Ensayos Clínicos (Coffee with LLS: Let’s talk about clinical trials – English subtitled) Survivorship Workbook LLS Community Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Online chats  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Support for this episode is provided by Genentech, a member of the Roche Group.The post Overcoming Barriers: Navigating Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

Ambreen Maan, MSW, LSW Megan Gilman, MD Peter Drahms, RN, BSN, C. Robert Bennett, PhD, CPNP-AC Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. A diagnosis of cancer can present many challenges when it comes to relationships with others and the relationship you have with yourself. In this episode, we speak with experts about rediscovering yourself after cancer, exploring mental health treatment, and cancer “ghosting”. Be sure to tune into our prior LIVE! At CancerCon episode, where we interviewed young adult patients and survivors to hear their thoughts on transitioning from their oncologist to a primary care provider. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Stupid Cancer® CancerCon® for adolescents and young adults Seven Stages of Grief Psychiatric Oncology Onco-psychology: Helping people manage cancer-related distress Mental Health Resources Follow up care and survivorship Survivorship Workbook Beyond Treatment fact sheet Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Online chats  LLS Community  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Support for this episode is provided by Genentech, a member of the Roche Group. The post LIVE! At CancerCon: Ghosts, Growth and Guidance first appeared on The Bloodline with Blood Cancer United Podcast.

Brian Connell There are new Medicare changes starting in January 2025 that will benefit cancer patients.   LLS Vice President of Federal Affairs, Brian Connell, joins us again on The Bloodline to inform us about these new changes and how they will impact Medicare patients.       In this episode, you will learn about the key changes for Part D, the prescription drug plan for Medicare, as well as the drug plan for Medicare Advantage. One of these new changes requires action on the part of the Medicare enrollee, so be sure to tune in to learn more about how you can benefit.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Medicare Change Information Medicare.gov SHIP counselors Be Informed: Beneficial Medicare Changes podcast episode Inflation Reduction Act and Medicare Information Specialists  Advocacy and Public Policy Financial support Additional LLS Support Resources:  Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Online chats  LLS Community  Support groups  Caregiver support  Caregiver Workbook The post Medicare Updates: What You Need to Know for 2025 first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. Following a cancer diagnosis and treatment, oncologists often become the default primary care for patients. Transitioning away from the oncologist to a primary care provider for general healthcare may be challenging at times for patients but may have tremendous benefits. In this episode, we ask young adults with cancer about their experiences transitioning to primary care during or after treatment. Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on cancer “ghosting”, rediscovering yourself after cancer and mental health. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Stupid Cancer® CancerCon® for adolescents and young adults Follow up care and survivorship Survivorship Workbook Beyond Treatment fact sheet Stem cell transplantation Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Online chats  LLS Community  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Support for this episode is provided by Genentech, a member of the Roche Group.The post LIVE! At CancerCon: Transitioning to Primary Care first appeared on The Bloodline with Blood Cancer United Podcast.

Mayur Narkhede, MD Living with chronic lymphocytic leukemia (CLL) can be a challenging journey for both patients and caregivers.   However, there is a beacon of hope. Tune in to our latest episode, where we speak to Dr. Mayur Narkhede of the University of Alabama about groundbreaking research and innovative treatments for CLL. Discover the potential of CAR T-cell therapy, bispecific antibodies and other cutting-edge options that bring the promise of new hope and possibilities for those affected by CLL. Don’t miss this inspiring and informative discussion!  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic lymphocytic leukemia (CLL) CAR T-cell Therapy Bispecific Antibodies – Immunotherapy Fact Sheet Stem cell transplantation Graft-vs-host disease Copay Assistance for CLL patients Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  LLS Community  Clinical Trial Support Center Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook Support for this episode is provided by Genentech, Inc.The post Hope on the Horizon: Chronic Lymphocytic Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

Chronic myelomonocytic leukemia (CMML) has been a challenging disease to tackle, historically treated with therapies meant for other conditions. But there’s a new wave of hope! Join us as Dr. Eric Padron of Moffitt Cancer Center and Dr. Lee Greenberger of The Leukemia & Lymphoma Society unveil the groundbreaking new CMML Initiative, fueled by recent funding aimed at revolutionizing treatment. Discover how this initiative is paving the way for individualized therapies that promise to enhance the quality of life for CMML patients and bring us closer to a cure. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Chronic myelomonocytic leukemia CMML classification system National Institutes of Health (NIH) National Cancer Institute (NCI) CMML Special Initiative Stem cell transplantation Graft-vs-host disease Clinical Trial Support Center Mike & Sofia Segal Foundation Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) podcast episode Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  LLS Community  Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) podcast episode Support for this episode is provided by Taiho Oncology, Inc.The post Advancing the Science: Chronic Myelomonocytic Leukemia (CMML) first appeared on The Bloodline with Blood Cancer United Podcast.

David Bond, MD The treatment landscape for non-Hodgkin lymphoma has significantly evolved over the past few decades. With groundbreaking advancements in CAR T-cell therapy and bispecific antibodies, researchers are making strides toward curative treatments and enhancing patients’ quality of life. In this episode, we speak with Dr. David Bond from The Ohio State University about the latest developments in treating both aggressive and slow-growing non-Hodgkin lymphomas. He discusses innovative, newly approved therapies for patients, as well as how improvements in supportive care better manage the physical and emotional side effects of treatment. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma CAR T-cell Therapy Bispecific Antibodies – Immunotherapy Fact Sheet Mental Health Support Patti Robinson Kaufmann First Connection Program® Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  LLS Community  Clinical Trial Support Center Support groups  Caregiver support  Caregiver Workbook Advocacy and Public Policy Survivorship Workbook Support for this episode is provided by Genentech, Inc.The post Innovative Therapies: Transforming Non-Hodgkin Lymphoma Care first appeared on The Bloodline with Blood Cancer United Podcast.

Shernan Holtan, MD Paul Rothweiler Joe Grey Exercise, or simply moving the body, can be an important part of cancer recovery, both physically and emotionally. In this episode, Dr. Shernan Holtan of Roswell Park Comprehensive Cancer Center and blood cancer survivors, Paul Rothweiler and Joe Grey, share about a clinical trial they developed to introduce a personalized strength training program to patients and caregivers. Dr. Holtan highlights the benefits of strength training for all patients, while Paul and Joe share how exercise has aided their physical and emotional recovery during and after their treatments. For patients and survivors who may be fearful or nervous about starting an exercise program, this episode is for you! DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Mental Health Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects podcast episode Quality-of-Life: Managing Cancer-Related Fatigue podcast episode Powerful Benefits – article on clinical trial Survivorship Resources Exercise, Fitness and Workout Tips and Advice (aarp.org) Strength Training At Home: 15 Exercises for a Full-Body Workout (today.com) A 30-day strength training routine — no equipment required (nbcnews.com) 5 Strength Training Workouts (for Beginners) | Nerd Fitness Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  LLS Community  Clinical Trial Support Center Support groups  Caregiver support  Caregiver Workbook Patti Robinson Kaufmann First Connection Program® Advocacy and Public Policy Survivorship Workbook Support for this episode is provided by Genentech, a member of the Roche Group.The post Exercise and Cancer: Celebration That You CAN first appeared on The Bloodline with Blood Cancer United Podcast.

Alissa Huston, MD Julie Larson, LCSW Shirley D’Sa, MD, FRCP, FRCPath For patients with chronic blood cancers, such as Waldenström Macroglobulinemia (WM), quality of life is a main priority. Physical and emotional side effects of the disease or treatment may present several challenges for patients and caregivers.   In this episode, we were onsite at the International Waldenström‘s Macroglobulinemia Foundation’s 2024 IWMF Educational Forum in Renton, WA.  Elissa met with experts who discussed how integrative oncology, wellness, mental health, and peripheral neuropathy affects WM patients and their caregivers. While this episode focuses on WM, the topics discussed are relevant to all types of cancer. We encourage you to listen and learn!  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Waldenström Macroglobulinemia Fact Sheet International Waldenström ‘s Macroglobulinemia Foundation (IWMF) Integrative Medicine and Complimentary Therapies Fact Sheet Mental Health Peripheral Neuropathy American Society of Clinical Oncology (ASCO) Society for Integrative Oncology (SIO) Nation Comprehensive Cancer Network (NCCN) Side effect management Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  LLS Community  Clinical Trial Support Center Support groups  Caregiver support  Caregiver Workbook Patti Robinson Kaufmann First Connection Program® Advocacy and Public Policy Survivorship Workbook The post LIVE! At IWMF: Living with Waldenström Macroglobulinemia first appeared on The Bloodline with Blood Cancer United Podcast.

Marco Davila, MD Explore the cutting-edge of oncology as we delve into the revolutionary world of CAR T-cell therapy, a more recent medical advancement in the fight against blood cancer.   Join our conversation with Dr. Marco Davila of Roswell Park Comprehensive Cancer Center in Buffalo, NY, as he highlights the significant impact CAR T-cell therapy has made on treating various blood cancers. Dr. Davila discusses the current uses of this therapy and gives us a look at the ongoing clinical trials that are broadening the horizons of this innovative treatment.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  CAR T-cell Therapy CAR T-cell educational video Stem Cell Transplantation Graft-vs-host disease Side effect management National Cancer Institute Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Online chats  LLS Community  Clinical Trial Support Center Support groups  Caregiver support  Caregiver Workbook Patti Robinson Kaufmann First Connection Program® Advocacy and Public Policy Survivorship Workbook Support for this episode provided by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech; Kite, a Gilead Company; and Novartis Pharmaceuticals Corp.The post Cellular Revolution: CAR T-cell Therapy first appeared on The Bloodline with Blood Cancer United Podcast.

In this episode, we speak with Dr. Matthew Matasar of Rutgers Cancer Institute, and Elizabeth Stone, who was diagnosed with Hodgkin lymphoma in 2012. Dr. Matasar discusses the current and emerging treatments for Hodgkin lymphoma. Elizabeth shares her story of resilience as a refractory patient throughout multiple treatments, and how she has navigated a life of hardships, joy, love and friendship while in a highly immunocompromised state. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Hodgkin Lymphoma Stem Cell Transplantation Stem Cell Transplantation Animated Videos CancerCon by Stupid Cancer® LLS COVID Vaccine Study Side effect management Young Adult Resources Online chats  LLS Community  Clinical Trial Support Center Support groups  Additional LLS Support Resources:  Information Specialists  Free Nutrition Consultations Financial support Free telephone/web patient programs  Free booklets  Caregiver support  Caregiver Workbook Patti Robinson Kaufmann First Connection Program® Advocacy and Public Policy Survivorship Workbook Support for this episode provided by Affimed Inc.The post Patient-Doctor Perspectives: Resilience in Relapsed/Refractory Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.