PeDRA Pearls

PeDRA is thrilled to welcome our new 2024-2025 PeDRA Fellow, Hannah Chang! Hannah is a third-year medical student at the University of Texas, Southwestern. As the PeDRA Fellow, she will support PeDRA educational initiatives and the PeDRA Board of Directors and looks forward to playing a key role in the upcoming PeDRA Annual Conference. Listen to Hannah’s inspiring journey from studying economics at the University of Pennsylvania to pursuing medical school and pediatric dermatology research. Plus, discover her many hidden talents along the way!

In episode three, the group discusses the challenges around researching this topic, and what kind of studies are still needed to address this question.Disclosures: Lisa Arkin, MD - no relevant disclosuresLawrence Eichenfield, MD - no relevant disclosuresDenise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDateMaria G. Buethe, MD - no relevant disclosures

In episode two, Dr. Lawrence Eichenfield discusses the reasons laser therapy isn't used more often and the benefits of propranolol. Disclosures: Lisa Arkin, MD - no relevant disclosuresLawrence Eichenfield, MD - no relevant disclosuresDenise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDateMaria G. Buethe, MD - no relevant disclosures

Andrea Zaenglein, MD, and colleagues Sarah Horvath, MD, and Sara Gold, MD provide important information about how and why to counsel patients taking isotretinoin on the use of emergency contraception. This podcast reviews data gleaned from a 2022 PeDRA survey about the comfort level of pediatric dermatologists counseling patients taking isotretinoin about emergency contraception and the counseling and provision practices of those pediatric dermatologists. Listen to learn more. Click here to read the recent article Emergency Contraception for Patients Taking Isotretinoin published in JAMA Dermatology. For the survey results publication, please click here. Listeners can also learn more about the iPledge program by listening to a 2021 PeDRA Points of Discussion Podcast: Is iPledge Working? A Conversation on Isotretinoin.

In the first episode of this three-part series, Dr. Denise Metry provides an overview of infantile hemangiomas and Dr. Arkin discusses the benefits of laser therapy. Disclosures: Lisa Arkin, MD - no relevant disclosuresLawrence Eichenfield, MD - no relevant disclosuresDenise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDateMaria G. Buethe, MD - no relevant disclosures

In episode five, PeDRA Pub Club host Donglin Zhang, MD, and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Efficacy of a lay community health worker (promotoras de salud) program to improve adherence to emollients in Spanish-speaking Latin American pediatric patients in the United States with atopic dermatitis: A randomized, controlled, evaluator-blinded study. This study was published in Pediatric Dermatology in 2022. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. Through a structured roundtable discussion, listeners will gain valuable insight into publications relating to pediatric dermatology and understand what this research means for both patients and providers.

In episode five of Getting to Know Your Research, Dr. Amy Paller discusses the history and significance of the recently published article in JAMA Dermatology titled, Stigmatization and Mental Health Impact of Chronic Pediatric Skin Disorders. Tune in to learn more about the origins of PeDRA's first major study, referred to as The “Big” Study, and discover how it has paved the way for future large-scale research within the organization.To listen to Dr. Paller's interview on the JAMA Dermatology Author Interviews podcast, please click here.

We’re thrilled to bring you a brand-new episode of Community Spotlight, highlighting the vibrant Dermatology Nurses Association (DNA). This remarkable organization supports dermatology nurses and nurse practitioners through a robust educational program and shares an inspiring origin story similar to PeDRA’s own humble beginnings.Dermatology nurses are essential in the research community, making critical observations on the front lines of patient care that often lead to significant research projects. To honor and recognize the invaluable role nurses play in organizations like PeDRA, we're excited to offer a special PeDRA membership rate for DNA members now through July 31, 2024. Becoming a member of PeDRA opens doors to collaboration and participation in groundbreaking research. Connect with clinicians, investigators, patients, families, advocates, and partners with a shared vision of changing lives and healing children with skin disease through collaboration and discovery. Plus, members gain access to exclusive resources to conduct research and receive special rates to attend the PeDRA Annual Conference, taking place October 24-26, 2024, in Phoenix, AZ. We hope you will take advantage of this special opportunity for a discounted membership and join our community today! Click here to learn more about membership and mention the DNA Podcast in the “How did you hear about PeDRA?” on your application form to receive a special code.

In case you missed the annual Society for Investigative Dermatology meeting in May 2024 in Dallas, TX, PeDRA's Executive Director, Mike Siegel, PhD, and Carrie Coughlin, MD, MPHS are here with a recap of the meeting as well as the PeDRA session.Dr. Coughlin is a pediatric dermatologist, and Associate Professor of Dermatology at Washington University School of Medicine in St. Louis. She also serves as the chair of PeDRA's outcomes committee.For information about SID, please click here.

In episode four, PeDRA Pub Club host, Donglin Zhang and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Survey of Pediatric Dermatologist Views on Treatment for Alopecia Areata. This survey was published in JAAD International in December of 2023. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. In an approached roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

In episode four of Getting to Know Your Research, Dr. Lucinda Kohn and fourth-year medical student Micah Pascual discuss their 2022 PeDRA Research Fellowship project titled Daxpe: Native Skin Health Survey. Listen to learn more about how to design and implement a survey that aims to understand the needs of an underserved community.

In the second episode of Unraveling HS, program hosts Dr. Colleen Cotton and Dr. Irene Lara-Corrales are joined by expert panelists Dr. Jennifer Ruth, Dr. Jennifer Hsiao, and Dr. Rebecca Levy to examine five distinct HS cases. Listen in as they share insights on biosimilars, HS in Down syndrome, and managing comorbidities in both multidisciplinary and non-multidisciplinary clinical settings.

In our final Industry 101 episode we explore the vital role of Key Opinion Leaders (KOLs) in shaping industry trends, innovations, and healthcare practices. In this podcast we delve deep into the qualities industry is looking for in a KOL, why they are important, how to resolve conflicts when they arise, and what early investigators can do now to position themselves to become KOLS. Whether you’re a healthcare professional, industry insider, or simply curious about the inner workings of the pharmaceutical world, you’ll want to tune in to gain actionable insights, and a deeper understanding of the pivotal role KOLs play in driving progress and innovation in the field.

In episode three, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD, discuss a recent PeDRA publication, Successful Use of Telemedicine for Evaluation of Infantile Hemangiomas during the Early COVID-19 Pandemic: A Cross-sectional Study. This study was originally published in June 2022 in Pediatric Dermatology. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology, this podcast is for you. In an approachable roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

In episode three of Getting to Know Your Research, Dr. Joyce Teng and fourth-year medical student Austin Johnson discuss their 2022 PeDRA Research Fellowship, focusing on Epidermolysis Bullosa Simplex Disease Activity and Response Tool (EBSdart): Scoring Clinical Severity and Outcomes in Epidermolysis Bullosa Simplex. Learn more about their mentorship relationship and discover the process behind creating an assessment tool and its significance for patients.

In episode two, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD, discuss a recent PeDRA publication, Assessing Pain Catastrophizing and Functional Disability in Pediatric Epidermolysis Bullosa Patients. This study was originally published in May 2023 in Pediatric Dermatology. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology, this podcast is for you. In an approachable roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

April 20, 2023Irene Lara-Corrales, MD is an associate professor of dermatology at the University of Toronto and a pediatric dermatologist at The Hospital for Sick Children (SickKids) in Toronto, Canada. She always knew she wanted to be a pediatric dermatologist, and her interest in epidermolysis bullosa (EB) grew deeper after treating a young baby with EB during her residency in Costa Rica. Most recently, she’s been championing Hidradenitis Suppurativa within PeDRA and the greater pediatric dermatology research community. Watch or listen to learn more about her passions, including her love of books and tea. To listen to the new podcast - Unraveling HS, please click here.

In Episode Two of Getting to Know Your Research, Dr. Kristen Berrebi discusses her 2020 PeDRA Research Grant, A Multi-Center Retrospective Cohort Study on the Utility of Ancillary Studies in the Risk Assessment and Management of Spitz Nevi, Atypical Spitzoid Tumors, and Spitzoid Melanoma in the Pediatric Population. Learn more about this project and the pivotal contributions of medical students and trainees in the research process.This podcast episode builds upon a previous Points of Discussion focused on Spitz Nevi. To listen to that discussion, please click here.

Dr. Yvonne Chiu discusses the findings of her collaborative study – Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea are risk factors for extracutaneous involvement. This webinar originally aired in 2021. To view the video version of this presentation, please click here.

Dr. Streicher is an Assistant Professor at Indiana University School of Medicine. She’s currently co-chairing PeDRA’s Birthmarks Focused Study Group*. She became interested in pediatric dermatology while in medical school at Indiana University after completing a peds derm rotation with Dr. Anita Haggstrom. Her training took her to Georgia and Pennsylvania, and she’s come full circle back to Indiana to work alongside Dr. Haggstrom. Learn more about her work with the Birthmarks Focused Study Group and why she’s been reading so much by Julia Donaldson lately.*This episode originally aired in May of 2021. The Birthmarks Focused Study Group is now chaired by Denise Metry, MD and Maria Buethe, MD, PhD. For more information please visit www.pedraresearch.org.

In this episode, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD discuss a recent PeDRA publication, Clinical Characteristics of Infantile Hemangiomas with Aggressive, Persistent, and Destructive Ulceration. This collaborative, multi-site, retrospective study was originally published on October 16, 2023, in Pediatric Dermatology and was supported by a 2016 PeDRA Team Research Grant and a 2021 PeDRA Study Support Grant. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology, this podcast is for you. In an approachable roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

Hidradenitis Suppurativa (HS) expert, Haley Naik, MD of the University of California, San Fransisco joins Drs. Cotton and Lara-Corrales for a comprehensive discussion about diagnosis and treating early onset HS in the clinic and highlights the specific research taking place globally to help change outcomes for pediatric patients suffering from this devastating condition.

Welcome to "How We Made it Count," a special podcast that takes you behind the scenes of the Eczema Counts project. This collaborative effort, fueled by an engagement award from the Patient Centered Outcomes Research Institute also known as PCORI, aimed to educate and inspire caregivers, patients, and researchers alike. Through a series of virtual games and in-person sessions, Eczema Counts went beyond conventional approaches and brought a unique blend of gamification and patient-centered outcomes research to the forefront. Listen as key members of the project reflect on its impact, share their thoughts for the future, and dive into the fascinating world of pediatric dermatology research and the innovative partnership between the Pediatric Dermatology Research Alliance and the National Eczema Association. For more information visit PeDRA, the National Eczema Association, or Eczema Counts.

In case you missed it, PeDRA produced two sponsored webinars with Novan in the Spring of 2023. If you would like to view the video versions of these presentations, please click here. For more resources about molluscum, please click here.

As we gear up to release the first episode of our new Hidradenitis Suppurativa Podcast series, we dipping into the archives for a publication presentation from Dr. Irene Lara-Corrales about this international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about the study, recommendations for managing patients with HS, and recommendations for future research. To view the video version of this presentation, please click here. Stay tuned for the upcoming HS series!

Dr. Markus Boos discusses the influence of gender and sexual identity in adolescent skin health. His findings reiterate the importance of recognizing implicit bias and ensuring sexual/gender minority (SGM) children are being treated with the same holistic, respectful care as non-SGM children. Watch to learn more. To view the video presentation of this program, please click here.

Season four of Getting to Know You shakes up our format with a new twist. This season, we are getting to know the amazing research that PeDRA members are doing. In our first episode, nurse practitioner, Emily Croce, PhD, MSN, APRN, CPNP-PC talks us through her 2022 Childhood Eczema Challenge grant, The Role of Outdoor Air Pollution on Disease Burden and Racial Ethnic Disparities. Learn how this project made use of existing data to reveal some key findings, the tools and methodology used in this study, and how this project is going to fuel future research into the intersection of atopic diseases and racial and ethnic disparities. You can view Emily's collaborative publication here.

Lisa Arkin, MD presents the findings of a PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. This program originally aired in May of 2020. To view the video version of this presentation, please click here.

In this mini Community Spotlight, PeDRA shines a light on The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID). Learn about the work AHSID does for the patient and provider communities in an interview with founder and CEO Jasmine Espy.AHSID has volunteer opportunities! If you are interested in volunteering, please click here to apply.To view the video version of this interview, please click here.

Olivia Davies, MD discusses the findings of a recent publication – Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes. To view the video version of this program, please click here. This program originally aired in June of 2020.

Listen now to a special PeDRA Publication Presentation about a recent collaborative publication in the British Journal of Dermatology. Alexis Sokoloff is a young woman living with Down syndrome and hidradenitis suppurativa (HS), and together with Dr. Jillian Rork, Morgan Dykman, and Gwen Sokoloff, she discusses the publication and shares what she wants providers to know about treating HS in the Down syndrome community.

The Drugs and Bugs Focused Study Group presents a spirited conversation on whether Reactive Infectious Mucocutaneous Eruption (RIME) should be a separate condition from Stevens-Johnson Syndrome (SJS). Moderated by Dr. Michele Ramien, Dr. Erin Mathes, and Dr. Yvonne Chiu debate RIME, SJS, and other blistering severe cutaneous adverse reactions. In this three-part miniseries, episode one presents the case for RIME, episode 2 states the case for SJS, and episode three is a moderated discussion between the two opposing sides to highlight the research still needed to come to a consensus, while also shedding light on active research in this area. The program originally aired in June of 2023.

Past PeDRA Research Fellowship Grant recipient, Angel D. Pagan Gonzalez, MD, presents this single-site research study about the success of Dupilumab in children and adolescents. Dupilumab Improves Clinical Scores in Children and Adolescents with Moderate to Severe Atopic Dermatitis. To view the video version of this presentation, please click here.

Blistering severe cutaneous adverse reaction in children: proposal for pediatric-focused clinical criteria. Dr. Michele Ramien summarizes a collaborative study on blistering severe cutaneous adverse reactions (SCAR) in children. It’s very important to diagnose these reactions early and accurately as they can be life-threatening. The study created categories that are more appropriate for diagnosing pediatric patients than what existed in the past. Watch to learn more about the impact on patients and the next steps. To view the video version of this program please click here.

In episode four, Dr. Harper Price facilitates a dynamic conversation alongside Beth Drolet, MD, and Michael Howell, PhD, exploring the significance of investigator-initiated studies. They delve into the reasons behind its importance and provide insights on when and how to initiate such studies. The discussion emphasizes that collaborating with industry and spearheading a study can be a manageable and rewarding experience, dispelling any apprehensions.

Presented by the Acne and Hidradenitis Focused Study Group and moderated by Dr. Irene Lara-Corrales, Drs. A. Yasmine Kirkorian, and Izzy Andrews discuss the treatment options for pediatric hidradenitis suppurativa and highlight the research that is still needed to understand and treat this devasting disease effectively. Listen to learn more. The program originally aired in May of 2022.

The Down syndrome sub-group presents a discussion on the use of immune modulators in children with Down syndrome. Moderated by Dr. Jillian Rork, Drs. Emily Gurnee, Kristen Holland, and Kishore Vellody take a deep dive into skin conditions and treatments for children with Down syndrome and highlight exciting new research on the horizon. This program originally aired in February of 2022.

So you’ve got the funding, now how do you make the research happen? Hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the ground. Don’t miss this great opportunity to learn from their experiences! This program originally aired in April of 2021. View the video version of this presentation here.

Join Jennifer Schoch, MD as she discusses the successes of the research program at the University of Florida Dermatology and the importance of funding. This program originally aired in July of 2020. To view the original webinar, please click here.

Listen as Dr. Jen Schoch moderates a podcast discussion on the pros and cons of sunscreen use in children under the age of 6 months. Joined by two esteemed guests, Dr. Irene Lara-Corrales, and Dr. Jeannette Jakus, this conversation identifies not only the pros and cons, but offers sunscreen alternatives, and discusses future potential research projects. This program originally aired in December of 2021.

Season three concludes with an interview featuring Sonal Shah, MD. Dr. Shah is the Director of Pediatric Dermatology at University Hospitals Rainbow Babies & Children’s Hospital and holds the position of Associate Professor of Dermatology at Case Western Reserve University School of Medicine. Alongside Dr. Leah Lalor, she is a co-founder and co-leader of PeDRA’s newest Focused Study Group (FSG) – Education. Tune in to discover more about Dr. Shah’s research and ways to get involved in the Education FSG.

This is part two of a two-part miniseries about the importance and value of patient partners. Learn how to engage patients as research and data strategy partners with Suz Schrandt.This program originally aired as a webinar in the spring of 2020. To view the webinar, click here.

The group discusses the current research and what the next steps are to better define these lesions, and when and how to treat them. They also answer questions from our live studio audience.To learn more about current PeDRA studies, please click here.

Dr. Berrebi discusses her parameters for monitoring vs. excision and Dr. Gerami discusses how to uncover the true nature of the lesion through a variety of testing options.

The group discusses the ever-changing terminology and why it matters. Listen as episode one lays the foundation for a great discussion on genomics.

We are rounding out EB Awareness Week with this Monday’s Podcast Rerelease. Originally airing in April of 2021, this Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, was presented by Jean Tang, MD, PhD. Dr. Tang provided an update on the EB-101 pivotal Phase 3 VIITAL study and answered questions from the audience.To view the original webinar, please click here.

In honor of Epidermolysis Bullosa (EB) awareness week starting today, we are re-releasing an audio version of an Amryt Pharma-sponsored webinar that originally aired in December of 2021. Listen as Dr. John Browning from Baylor College of Medicine and Dr. Lara Wine-Lee from the Medical University of South Carolina discuss a promising new treatment for wound healing in EB patients. Click here to view the video version of this webinar.

PeDRA member, Colleen Cotton, MD, recently presented at the 2023 Symposium on Hidradenitis Suppurativa Advances (SHSA). In this episode, Dr. Colleen Cotton sits down with PeDRA to give a quick summary of the SHSA meeting and make a special announcement about an upcoming PeDRA educational initiative. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS. ICYMI: PeDRA is thrilled to support HS Research through the 2023 Hidradenitis Suppurativa Pilot Grant! The deadline to apply is December 7, 2023 and you can learn more here.

PeDRA had the privilege of attending the Symposium on Hidradenitis Suppurativa Advances (SHSA) in Phoenix, AZ in October 2023. During the meeting, PeDRA’s Associate Director of Educational Programs interviewed three amazing presenters to discuss the incredible work being done in this space. First up is Lynn Petukhova, PhD, discussing her ground-breaking work in Hidradenitis Suppurativa (HS) genetics and how she harnesses the power of genome-wide association studies (GWAS). Following this, you’ll gain insight into more HS research through two poster interviews with MD candidates Nicholas Chiang and Sydney Dong, respectively. For more information on Dr. Petukhova’s work, or to submit a case study, please visit the Columbia University Data Science Institute. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS.

Get to know Cristy Garza-Mayers, MD, PhD. Dr. Garza-Mayers is an Instructor at Harvard Medical School and a pediatric dermatologist at Mass General Brigham with an interest in vitiligo. In addition to her work on PeDRA's Early Investigator Committee, she also serves as a mentor through the PeDRA Mentorship Program and has received funding for her research projects through two grant programs. Learn more about her research, what led her to pediatric dermatology, and listen to the end to hear her answer some fun, rapid fire questions.