Community Spotlight: Foundation for Ichthyosis and Related Skin Types - Part One
PeDRA Pearls · Pediatric Dermatology Research Alliance
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Show Notes
Community Spotlight is back with new episodes and we’re proud to be shining a light on the Foundation for Ichthyosis and Related Skin Types, more commonly known as FIRST! This incredible organization has been supporting patients, families, and caregivers, as well as funding research for more than 40 years. Listen to Chief Executive Officer, Chris Boynton as he shares his journey into rare disease advocacy, and highlights ways both patients, families, and investigators can become involved.