
PeDRA Pearls
239 episodes — Page 1 of 5
Amplifying CMN Voices: The Power of Patient Meetings
Bonus Episode: Using Quality Improvement & Implementation Science to Improve Care in Pediatric Dermatology
Funding the Future of Pediatric Skin and Joint Research
Hope, Access, and the Future of EB Care
From Intention to Impact – Inside the PeDRA Annual Conference
From Results to Real Life: Pediatric Patch Testing
Rethinking Acne Care for Transgender Adolescents
It Takes a Village: Advancing Pediatric Atopic Dermatitis and Psoriasis Research
Planned Until Proven Otherwise: Finding Your Path in Pediatric Dermatology Research
From Ichthyosis to EDD: A Patient-Researcher's Journey
Research Hot Takes
Not Just Small Adults: Rethinking Acne and HS Care for Kids and Teens
From Curiosity to Care: Heather Gochnauer on Pediatric Dermatology
Translational Dermatology: Bringing Science Closer to Patients
Rare Disease, Real Progress: Unraveling Bachmann-Bupp Syndrome
Connection, Service, and Redirection with Mitchell Hanson, MD, MPH
The Evolving Research Landscape in Epidermolysis Bullosa
Beyond Alopecia: Advancing Pediatric Hair Disorders Research
Pediatric Atopic Dermatitis: New Guidelines, New Treatments, New Questions
PeDRA at SID - Key Takeaways from the 2026 Meeting
PeDRA's at SID - Poster Interviews
PeDRA's at SID - Reflections with Stefanos Koutsoukos, and Ganna Bilousova, PhD
PeDRA's at SID - Reflections with Lynn Petukhova, PhD
PeDRA's at SID - A Patient Advocacy Perspective
PeDRA's at SID - Reflections from Dr. Megha Tollefson
PeDRA's at SID - Reflections with Dr. Beth Drolet
PeDRA's at SID - Reflections with Dr. Joy Wan
PeDRA's at SID - Reflections with Dr. Michael Howell
PeDRA's at SID - Reflections from Dr. Yvonne Chiu
PeDRA's at SID - Reflections from Dr. Lawrence Eichenfield
PeDRA's at SID - Reflections with Dr. Jinia El-Feghaly
PeDRA's at SID - Reflections on the EDD Symposium with Keith Choate, MD, PhD
PeDRA's at SID - Kick Off Interview with Mike Siegel, PhD
Heroes for Hallie Grace: Turning Grief into Action
PeDRA Announcements!
STARC Spotlight: Skin Toxicities & Tumors in Pediatric Cancer Care
How Young is too Young for Hormonal Acne Treatment?
Inside the Connective Tissue and Autoinflammatory Disorders Focused Study Group
Two Years with PeDRA: Insights, Impact, and the Road Ahead

Bridging the Lab and the Bedside: The Science Behind Severe Skin Reactions
Reid Oldenburg, MD, PhD, joins host Jenn Dawson to discuss his journey as a clinician-scientist and his leadership of PeDRA’s Drugs and Bugs Focused Study Group. He shares how early global infectious-disease research shaped his path to dermatology, highlights ongoing projects—from genetic studies to patient-centered resources — and reflects on how collaboration and precision medicine are shaping the future of care.Drugs & Bugs Focused Study Group

Spring Forward with PeDRA: Key Deadlines & Opportunities
Jenn Dawson and Caitlin Haskell discuss a host of upcoming PeDRA deadlines and opportunities. Here are links to all the items referenced in the episode.PeDRA funding opportunitiesPeDRA Fellow Application PeDRA Membership Renewal and SurveyNominations for the PeDRA awards programEducational catalogPeDRA events pagePeDRA at SID14th PeDRA Annual ConferencePeDRA Merch shop
More Than Hair: Quality of Life After Persistent Alopecia
Join PeDRA Fellow Hannah Chang for a roundtable discussion with special guests Dr. Jillian Rork and Dr. Deepti Gupta. Together, they discuss a recent publication titled “Impact of Persistent Alopecia on Quality of Life in Childhood Cancer and Transplant Survivors.” This article was published in Pediatric Blood & Cancer in 2025.

Points of Discussion: Clinical Trials - Academic Clinical Trials and How they Work
This episode breaks down the foundations of academic clinical research, from how studies are conceived and funded to how protocols ensure rigor, consistency, and patient safety. Listeners learn about the roles of sponsors, CROs, IRBs, and research teams, as well as the advantages and challenges of conducting trials in academic settings.This independent medical education program is supported by Incyte.Please click here for a complete list of disclosures.

Points of Discussion: Clinical Trials - Speed and Access
Episode 2 explores how private‑practice and industry‑run clinical trials bring efficiency, flexibility, and broader patient access to the research landscape. Our guests discuss the financial and scientific motivations behind industry partnerships, the strengths and trade‑offs of private sites, and how these settings support large, fast‑moving studies. Rare‑disease trials, PK designs, and investigator‑initiated research are highlighted as key collaborative touchpoints.This independent medical education program is supported by Incyte.Please click here for a complete list of disclosures.

Points of Discussion Clinical Trials: Academic + Industry - Collaboration is Key
In this final episode, we examine how academia and industry work together to advance research and improve patient outcomes. The conversation highlights real‑world examples of shared data, translational science partnerships, diagnostic insights, and coordinated patient care. Listeners gain a deeper understanding of how combined expertise strengthens clinical trials and expands access to innovative therapies.This independent medical education program is supported by Incyte. Click here for a complete list of disclosures.
Clinical Insights on Photoprotection in Skin of Color
PeDRA Fellow Hannah Chang hosts a roundtable discussion with Dr. Jillian Rork and Dr. Deepti Gupta about a recent publication titled: Photo Protection in Skin of Color: A Scoping Review of Barriers, Behaviors, and Pediatric Considerations. This article was published in Pediatric Dermatology in September 2025.Tell us about you by taking this 1-question survey!
Prevalence and Demographics of Psoriasis in the Down Syndrome Population
PeDRA Fellow Hannah Chang hosts a roundtable discussion with Dr. Jillian Rork and Dr. Deepti Gupta about a recent publication titled: Prevalence and Demographics of Psoriasis in the Down Syndrome Population: A Cross-Sectional Analysis Using the Epic Cosmos Dataset. This article was published in the Journal of the American Academy of Dermatology in September 2025.Tell us about you by taking this 1-question survey!

Building Community, Advancing Research: A Conversation with the Gorlin Syndrome Alliance
In this episode of PeDRA Pearls, we’re joined by Meredith Weiss, Executive Director of the Gorlin Syndrome Alliance (GSA), to explore the intersection of patient advocacy, education, and research. Meredith shares her personal journey into rare disease advocacy and discusses how the GSA supports patients through community-building, clinician-led education, and a growing commitment to funding research–particularly in dermatology. Together, we highlight the critical role patient advocacy organizations play in improving quality of life and advancing meaningful, patient-centered research.Gorlin Syndrome Alliance RFATell us about yourself!

Full Circle in Pediatric Dermatology: Milie Fang, DO on Eczema, Research, and Finding Your Path
In this episode of PeDRA Pearls, PeDRA Fellow Hannah Chang speaks with Dr. Milie Fang, a pediatric dermatology fellow at Seattle Children’s Hospital, about her journey into pediatric dermatology. Dr. Fang reflects on how her personal experience with eczema sparked her interest in the field, her evolving research focus, and the mentorship and community she’s found through PeDRA. They also discuss navigating imposter syndrome, building a career in academic medicine, and her hopes for the future of pediatric dermatology.Tell us about you!

From the Archives: From Early Calling to Global Impact: Irene Lara-Corrales, MD
Irene Lara-Corrales, MD is an Associate Professor of Dermatology at the University of Toronto and a pediatric dermatologist at The Hospital for Sick Children (SickKids) in Toronto, Canada. She knew early on that pediatric dermatology was her calling, and her dedication to advancing care for children with complex skin diseases deepened after caring for an infant with epidermolysis bullosa (EB) during her residency in Costa Rica. Most recently, Dr. Lara-Corrales has been a leading champion for hidradenitis suppurativa within PeDRA and across the broader pediatric dermatology research community. Watch or listen to learn more about her professional journey, research passions, and the personal interests that inspire her— including her love of books and tea.Please note - this interview originally aired in April 2023.