PeDRA Pearls

In the final installment of this Points of Discussion, the group shares their personal stories when it comes to the benefits of AI in dermatology, and talks about the overall benefit of AI as a research tool.

Donate today!Membership RenewalPathways to Progress SummitGrant Opportunities

In episode ten of Getting to Know Your Research, Dr. Rebecca Levy discusses her 2021 William Weston Career Development Award to Characterize the Cutaneous Late Effects in Pediatric Hematopoietic Stem Cell Transplantation Recipients. In collaboration with the Hematopoietic Stem Cell Transplantation (HSTC) Late Effects Clinic at the Hospital for Sick Children in Toronto, Canada, this project aims to analyze data from linked provincial databases to define the risks and predictions of skin cancers in individuals who underwent HSCT. Listen to learn more about her findings and what this means for patients.

End of Year Giving - Donate today!Membership RenewalPeDRA Pathways to Progress SummitPeDRA GrantsGorlin Syndrome Alliance - Email Dr. Elena Hawryluk

Founder's Fellowship DonationPub ClubGrantsMembership RenewalPathways to Progress Summit

In episode ten, PeDRA Pub Club host Hannah Chang, and guest panelists, Leah Lalor, MD, and Kristi Derrick, MD discuss a recent PeDRA publication, A Survey Assessment of Combined Pediatric Dermatology-Rheumatology Clinics published in Pediatric Dermatology in 2024.

End of Year GivingPeDRA GrantsSPD Case SubmissionsPathways to Progress SummitMembership RenewalGorlin Syndrome Alliance GrantsHS Foundation GrantsGetting to Know Your Research

PeDRA GrantsPathways to Progress SummitMembership RenewalsGetting to Know Your ResearchSPD/PeDRA Journal Club - November 2024

In episode nine, Dr. Erin Mathes and Dr. Mitchell Braun discuss their PeDRA 2021 Research Fellowship Award titled Long Term Outcomes and Quality of Life in PHACE Syndrome. Listen to learn more about their partnership and the things that surprised them about this project!

Consensus Grant Rheum for Kids: Pediatric Skin and Joint Grant Pediatric Ichthyosis Challenge Grant Pathways to Progress SummitMembership RenewalSPD Pre-AAD Meeting Case Submission Points of Discussion: Pediatric Dermatology Residency TrackUnraveling Hidradenitis Suppurativa

New PeDRA GrantsSeptember 2024 Emerging Investigator Research Grant AwardeesSPD/PeDRA Journal Club - November 14Pathways to Progress SummitPeDRA Pub ClubRenew Your MembershipHS Foundation Grant Opportunities

In episode nine, PeDRA Pub Club host Hannah Chang, and guest panelists, Holly Neale, MD, and Emily Croce, PhD, APRN, CPNP-PC discuss a recent PeDRA publication, Dupilumab Improves Clinical Scores in Children and Adolescents with Moderate to Severe Atopic Dermatitis: A Real-World Single-Center Study published in The Journal of Allergy and Clinical Immunology Pediatric Dermatology in 2022.

PeDRA Conference EvaluationSPD/PeDRA Journal Club - November 14Pathways to Progress SummitConsensus GrantPeDRA GrantsInternational Hyperhidrosis SocietyCommunity Spotlight - International Hyperhidrosis Society

It's your Monday update on a Tuesday!PeDRA Conference Recap2024 PeDRA Award RecipientsHS Foundation MeetingSPD/PeDRA Journal Club - November 14Membership RenewalMake a PeDRA DonationPathways to Progress Summit

PeDRA Pathways to Progress SummitDash for DiscoverySPD/PeDRA Journal ClubPeDRA Conference AppConsensus GrantPediatric Dermatology Residency Track

In episode eight of Getting to Know Your Research, Dr. Wenelia Baghoomian discusses her 2021 PeDRA Research Fellowship project titled The Impact of Topical Prescription Drug Delivery Devices in the Adherence and Ease of Use of Corticosteroids in Pediatric Patients with Atopic Dermatitis. Listen to learn about the inspiration for this project and the partnerships that made it successful.

Consensus Grant Q&ANovember 1: Deadline to submit applications for SOCS Mentorship and the Observership Grant Programs November 1-3: 9th Annual Symposium on Hidradenitis Suppurativa Advances in Austin, TXNovember 7: Deadline to submit applications for SPD Pediatric Dermatology Fellowship Matching ProgramDecember 1: Deadline to submit applications for Sanofi and Regeneron Diversity, Equity and Inclusion Mid-Career AwardDecember 5: Deadline to submit SPDCase Submission of the YearDecember 6-8: 2024 HS Academy in Irving, TXOctober is Eczema Awareness Month - Nationa Eczema Association

It's your Monday Update on Tuesday! Below are some important links!Conference RegistrationConsensus GrantHS Podcast SeriesPoints of Discussion - Proposed Pediatric Dermatology Residency TrackPub ClubConversations with Collaborators

In episode eight, PeDRA Pub Club host Hannah Chang, and guest panelists, Holly Neale, MD, and Emily Croce, PhD, APRN, CPNP-PC discuss a recent PeDRA publication, Dermatology Life Quality Index Survey in Patients with Down Syndrome and Caregivers published in Pediatric Dermatology in 2024. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. Through a structured roundtable discussion, listeners will gain valuable insight into publications relating to pediatric dermatology and understand what this research means for both patients and providers.

In this final episode about the proposed pediatric dermatology residency track, the group discusses the measurable outcomes for the program, as well as the expected impact the new track will have on pediatric dermatology research.

In episode two the group discusses the details about the proposal, as well as who this proposal was crafted.

PeDRA's Education Focused Study Group presents a three-part series on the newly proposed pediatric dermatology residency track. Join moderator Leah Lalor, MD, along with guests Esteban Fernandez Faith, MD, Ilona Frieden, MD, and Joy Mosser, MD, as they explore the current state of the pediatric dermatology workforce, the history of pediatric dermatology training programs, details of the proposed residency track, and how its implementation could enhance pediatric dermatology research. In episode one the group discusses the current state of the pediatric dermatology workforce and the history of the pediatric dermatology training program.

In episode three of Unraveling HS, Brindley Brooks, Founder and Executive Director of HS Connect, and Dr. Ginette Okoye, Professor of Dermatology at Howard University, discuss the future of research and the importance of integrating the patient voice in research and clinical trials.Please click here to learn more about the resources HS Connect can offer patients and caregivers. The HS Foundation is hosting its annual Symposium on Hidradenitis Suppartiva Advances in Dallas, TX November 1-3, to learn more click here. To access additional HS educational resources PeDRA offers, please click here.

The weekly update is here: PeDRA Annual Conference Registration - October 24-26, Phoenix, AZDash for Discovery Fun RunConsensus Grant Q&AUnraveling HS Podcast

Welcome to the PeDRA Monday update! This is a quick way to get caught up on all the exciting things happening within PeDRA that you might have missed! Links referenced in this recording are as follows:PeDRA Conference Registration Consensus Grant Program and Q&A Sign-UpConversations with Collaborators PodcastDash for Discovery Fun Run

In this interview, PeDRA and Sanofi discuss how they are working together to advance pediatric dermatology research, combining their expertise and resources to drive innovation and improve care for children affected by skin diseases. Through this collaboration, they aim to support groundbreaking studies, foster new treatments, and provide greater opportunities for researchers to address unmet needs in pediatric dermatology. Please follow these links to access the website resources shared in this interview. For clinical trials and medical information for investigators, please click here. ORIGINS grant program, please click here. For patient and caregiver information, please click here.This interview includes information on a therapy currently under clinical investigation. Thus, no conclusions on its efficacy and safety can be drawn.

In episode seven, PeDRA Pub Club host Hannah Chang, and guest panelists, Holly Neale, MD, and Emily Croce, PhD, APRN, CPNP-PC discuss a recent PeDRA publication, Trends in Health Care Utilization Among United States Children With Eczema by Age, Sex, Race, and Hispanic Ethnicity: National Health Interview Survey 2006-2018 published in Pediatric Dermatology in 2023.

We're thrilled to kick off our inaugural episode with Dr. Chudy Nduaka, the Therapeutic Area Head of Dermatology at AbbVie's U.S. Medical Affairs. Dr. Nduaka's journey into medicine was inspired by his childhood in Nigeria, driving his passion to develop therapies for those in need. Tune in to hear about his remarkable work and discover the exciting opportunities for PeDRA investigators to collaborate with AbbVie.

In episode seven of Getting to Know Your Research, Dr. Dawn Eichenfield and Dr. Jennifer Sui discuss their 2022 PeDRA Research Fellowship project titled Characterization of non-coding genetic loci and transcription factors that drive the development of linear morphea. Listen to learn about the many collaborations needed to propel a study like this.

In episode six, PeDRA Pub Club host Donglin Zhang, MD, and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Presenting Characteristics and Progression of Pediatric On-Set Morphea published in Pediatric Dermatology in 2023. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. Through a structured roundtable discussion, listeners will gain valuable insight into publications relating to pediatric dermatology and understand what this research means for both patients and providers.

Episode Three: Non-Prescriptions and Just Over the HorizonDrs. Yu, Wan, and Lio team up for one final discussion about upcoming therapies and research gaps. Please click here for a list of guest disclosures.

Episode Two: Non-Steroidal Alternatives. From TCIs to PDE4i and JAKis, the Acronyms Rage On. The team is back to discuss non-steroidal medications for inflammatory skin disease in children. Please click here for a list of guest disclosures.

Episode One: Topical Steroids - The Double-Edged SwordJoin JiaDe (Jeff) Yu, MD, MS as he hosts a spirited discussion with Joy Wan, MD, and Peter Lio, MD about using topical steroids to treat skin disease in children.Please click here for a list of guest disclosures.

PeDRA is thrilled to welcome our new 2024-2025 PeDRA Fellow, Hannah Chang! Hannah is a third-year medical student at the University of Texas, Southwestern. As the PeDRA Fellow, she will support PeDRA educational initiatives and the PeDRA Board of Directors and looks forward to playing a key role in the upcoming PeDRA Annual Conference. Listen to Hannah’s inspiring journey from studying economics at the University of Pennsylvania to pursuing medical school and pediatric dermatology research. Plus, discover her many hidden talents along the way!

In episode three, the group discusses the challenges around researching this topic, and what kind of studies are still needed to address this question.Disclosures: Lisa Arkin, MD - no relevant disclosuresLawrence Eichenfield, MD - no relevant disclosuresDenise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDateMaria G. Buethe, MD - no relevant disclosures

In episode two, Dr. Lawrence Eichenfield discusses the reasons laser therapy isn't used more often and the benefits of propranolol. Disclosures: Lisa Arkin, MD - no relevant disclosuresLawrence Eichenfield, MD - no relevant disclosuresDenise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDateMaria G. Buethe, MD - no relevant disclosures

In the first episode of this three-part series, Dr. Denise Metry provides an overview of infantile hemangiomas and Dr. Arkin discusses the benefits of laser therapy. Disclosures: Lisa Arkin, MD - no relevant disclosuresLawrence Eichenfield, MD - no relevant disclosuresDenise Metry, MD - Receives author royalties for three hemangioma chapters in UpToDateMaria G. Buethe, MD - no relevant disclosures

Andrea Zaenglein, MD, and colleagues Sarah Horvath, MD, and Sara Gold, MD provide important information about how and why to counsel patients taking isotretinoin on the use of emergency contraception. This podcast reviews data gleaned from a 2022 PeDRA survey about the comfort level of pediatric dermatologists counseling patients taking isotretinoin about emergency contraception and the counseling and provision practices of those pediatric dermatologists. Listen to learn more. Click here to read the recent article Emergency Contraception for Patients Taking Isotretinoin published in JAMA Dermatology. For the survey results publication, please click here. Listeners can also learn more about the iPledge program by listening to a 2021 PeDRA Points of Discussion Podcast: Is iPledge Working? A Conversation on Isotretinoin.

In episode five, PeDRA Pub Club host Donglin Zhang, MD, and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Efficacy of a lay community health worker (promotoras de salud) program to improve adherence to emollients in Spanish-speaking Latin American pediatric patients in the United States with atopic dermatitis: A randomized, controlled, evaluator-blinded study. This study was published in Pediatric Dermatology in 2022. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. Through a structured roundtable discussion, listeners will gain valuable insight into publications relating to pediatric dermatology and understand what this research means for both patients and providers.

In episode five of Getting to Know Your Research, Dr. Amy Paller discusses the history and significance of the recently published article in JAMA Dermatology titled, Stigmatization and Mental Health Impact of Chronic Pediatric Skin Disorders. Tune in to learn more about the origins of PeDRA's first major study, referred to as The “Big” Study, and discover how it has paved the way for future large-scale research within the organization.To listen to Dr. Paller's interview on the JAMA Dermatology Author Interviews podcast, please click here.

We’re thrilled to bring you a brand-new episode of Community Spotlight, highlighting the vibrant Dermatology Nurses Association (DNA). This remarkable organization supports dermatology nurses and nurse practitioners through a robust educational program and shares an inspiring origin story similar to PeDRA’s own humble beginnings.Dermatology nurses are essential in the research community, making critical observations on the front lines of patient care that often lead to significant research projects. To honor and recognize the invaluable role nurses play in organizations like PeDRA, we're excited to offer a special PeDRA membership rate for DNA members now through July 31, 2024. Becoming a member of PeDRA opens doors to collaboration and participation in groundbreaking research. Connect with clinicians, investigators, patients, families, advocates, and partners with a shared vision of changing lives and healing children with skin disease through collaboration and discovery. Plus, members gain access to exclusive resources to conduct research and receive special rates to attend the PeDRA Annual Conference, taking place October 24-26, 2024, in Phoenix, AZ. We hope you will take advantage of this special opportunity for a discounted membership and join our community today! Click here to learn more about membership and mention the DNA Podcast in the “How did you hear about PeDRA?” on your application form to receive a special code.

In case you missed the annual Society for Investigative Dermatology meeting in May 2024 in Dallas, TX, PeDRA's Executive Director, Mike Siegel, PhD, and Carrie Coughlin, MD, MPHS are here with a recap of the meeting as well as the PeDRA session.Dr. Coughlin is a pediatric dermatologist, and Associate Professor of Dermatology at Washington University School of Medicine in St. Louis. She also serves as the chair of PeDRA's outcomes committee.For information about SID, please click here.

In episode four, PeDRA Pub Club host, Donglin Zhang and guest panelists, Stephen Humphrey, MD, Mary Larijani, MD, and Milie Fang, DO, discuss a recent PeDRA publication, Survey of Pediatric Dermatologist Views on Treatment for Alopecia Areata. This survey was published in JAAD International in December of 2023. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology this podcast is for you. In an approached roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

In episode four of Getting to Know Your Research, Dr. Lucinda Kohn and fourth-year medical student Micah Pascual discuss their 2022 PeDRA Research Fellowship project titled Daxpe: Native Skin Health Survey. Listen to learn more about how to design and implement a survey that aims to understand the needs of an underserved community.

In episode three, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD, discuss a recent PeDRA publication, Successful Use of Telemedicine for Evaluation of Infantile Hemangiomas during the Early COVID-19 Pandemic: A Cross-sectional Study. This study was originally published in June 2022 in Pediatric Dermatology. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology, this podcast is for you. In an approachable roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

In the second episode of Unraveling HS, program hosts Dr. Colleen Cotton and Dr. Irene Lara-Corrales are joined by expert panelists Dr. Jennifer Ruth, Dr. Jennifer Hsiao, and Dr. Rebecca Levy to examine five distinct HS cases. Listen in as they share insights on biosimilars, HS in Down syndrome, and managing comorbidities in both multidisciplinary and non-multidisciplinary clinical settings.

In our final Industry 101 episode we explore the vital role of Key Opinion Leaders (KOLs) in shaping industry trends, innovations, and healthcare practices. In this podcast we delve deep into the qualities industry is looking for in a KOL, why they are important, how to resolve conflicts when they arise, and what early investigators can do now to position themselves to become KOLS. Whether you’re a healthcare professional, industry insider, or simply curious about the inner workings of the pharmaceutical world, you’ll want to tune in to gain actionable insights, and a deeper understanding of the pivotal role KOLs play in driving progress and innovation in the field.

In episode three of Getting to Know Your Research, Dr. Joyce Teng and fourth-year medical student Austin Johnson discuss their 2022 PeDRA Research Fellowship, focusing on Epidermolysis Bullosa Simplex Disease Activity and Response Tool (EBSdart): Scoring Clinical Severity and Outcomes in Epidermolysis Bullosa Simplex. Learn more about their mentorship relationship and discover the process behind creating an assessment tool and its significance for patients.

In episode two, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD, discuss a recent PeDRA publication, Assessing Pain Catastrophizing and Functional Disability in Pediatric Epidermolysis Bullosa Patients. This study was originally published in May 2023 in Pediatric Dermatology. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology, this podcast is for you. In an approachable roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.

April 20, 2023Irene Lara-Corrales, MD is an associate professor of dermatology at the University of Toronto and a pediatric dermatologist at The Hospital for Sick Children (SickKids) in Toronto, Canada. She always knew she wanted to be a pediatric dermatologist, and her interest in epidermolysis bullosa (EB) grew deeper after treating a young baby with EB during her residency in Costa Rica. Most recently, she’s been championing Hidradenitis Suppurativa within PeDRA and the greater pediatric dermatology research community. Watch or listen to learn more about her passions, including her love of books and tea. To listen to the new podcast - Unraveling HS, please click here.