The LDN Radio Show About Low Dose Naltrexone

Kerriann, a person from Canada, shares her experience of living with multiple chronic illnesses. These conditions include Lyme disease, which is known to cause a range of symptoms from fatigue to joint pain, MCAS (Mast Cell Activation Syndrome), a rare condition that causes allergic-like reactions, EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects connective tissues, POTS (Postural Orthostatic Tachycardia Syndrome), a condition that affects blood flow, and Fibromyalgia, a chronic pain disorder. Despite facing these challenges, Kerriann has chosen to share her story in the hope of raising awareness and providing support to others in similar situations.

Tracy, from the United States, shares her personal experience with various medical conditions. These conditions include MCAS (Mast Cell Activation Syndrome), a condition where the mast cells in the body are triggered to release chemicals causing symptoms such as itching, flushing, and swelling; POTS (Postural Orthostatic Tachycardia Syndrome), a condition where changes in position cause an abnormally high increase in heart rate; RA (Rheumatoid Arthritis), a chronic autoimmune disease that causes inflammation and pain in joints and can lead to joint damage; Fibromyalgia, a condition characterized by widespread pain, fatigue, and tenderness in muscles and joints; and finally, a potential diagnosis of EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects the connective tissues in the body and can cause joint hypermobility, skin that is easily bruised or stretched, and other symptoms.

Kris has generously shared her personal journey with LDN, a medication used to treat a variety of conditions including autoimmune diseases, and MCAS, a condition where mast cells release excessive amounts of histamine and other chemicals, causing an array of symptoms such as hives, itching, and digestive problems. In her story, Kris discusses her experiences, including the challenges she faced and the treatments that worked for her. Her story may provide valuable insights and support to others who are also dealing with similar conditions.

Linda Elsegood engages in a conversation with Amy, who shares her journey with multiple health conditions, including small fiber neuropathy, mold toxicity, MCAS (mast cell activation syndrome), EDS (Ehlers-Danlos syndrome), and POTS (postural orthostatic tachycardia syndrome).Amy recalls that she has been experiencing symptoms her whole life, such as hives, reactions to medication, and odd food reactions. She describes having weird physical quirks that were dismissed as "just an Amy thing." For instance, she would feel hot in her head after eating peanuts or feel dizzy. Despite undergoing allergy testing, her results were negative, and doctors attributed her symptoms to being "sensitive."However, after contracting mono and strep in college, Amy's symptoms became more debilitating. She felt extremely tired all the time, and nothing seemed to help. She experienced GI (gastrointestinal) problems, brain fog, and heat intolerance. Her symptoms continued to worsen, and she had episodes every few months where she felt like she was dying. She would have trouble eating, and it felt like a brick was in her stomach.Despite seeking help from countless doctors, none could diagnose her condition or connect all her symptoms. Her doctors would refer her to specialists, such as gastroenterologists, allergists, and pulmonologists, but it didn't help. They would attribute her symptoms to panic attacks, stress, or other unrelated conditions. They even removed her gallbladder, but it didn't alleviate her symptoms.Amy recalls that her body kept reacting to everything, and she could only eat rice for a while. After two back-to-back pregnancies, her body could no longer tolerate certain foods. She experienced anaphylaxis, which she knew was not a panic attack, and her face swelled up, and her tongue became tingly. Her body began reacting to everything, and she now only eats six foods.In conclusion, Amy's story highlights the challenges of living with multiple health conditions and the difficulties of finding a diagnosis and proper treatment. Her experiences could help others who may be going through the same struggles.#LDN #Low Dose Naltrexone

Linda Elsegood interviewing Andrea, a patient from the United States who has been taking low dose naltrexone (LDN) to manage her health concerns. Andrea has been struggling with various conditions, including postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), long Covid, fibromyalgia, and myalgic encephalomyelitis.Throughout the interview, Andrea delves into the details of her journey with LDN. She explains how her search for relief from long Covid ultimately led her to LDN, and how it has significantly improved her quality of life despite her many health concerns. Andrea expresses her gratitude for how LDN has been instrumental in helping her manage her symptoms and improve her overall health.Linda and Andrea are able to discuss the benefits of LDN in managing a wide range of health issues. Their conversation provides insight into the effectiveness of LDN as a treatment option, and the importance of finding the right approach to managing complex health conditions.

In this interview, Linda Elsegood delves into the life of Kaitlin, who shares her inspiring story of living with multiple chronic conditions, including MCAS, POTS, and EDS. Kaitlin describes how she experienced small dislocations and unusual pains as a child, which gradually escalated in her twenties and thirties, making it difficult for her to perform daily activities. She explains how she ignored these symptoms for a long time, thinking that they were normal and that everyone experienced them. However, as time went on, she realized that her experiences were unique and needed attention. Kaitlin also shares her journey of dealing with MCAS, a condition that caused her severe stomach pains after eating, leading to an eating disorder in her teens. She explains how MCAS made it challenging for her to find foods that would not trigger her stomach pains, causing her to miss school and social gatherings. Even after her recovery from the disorder, the pain persisted, and she only received a formal diagnosis in 2022 from the Mayo Clinic. Kaitlin talks about the challenges of treating MCAS and finding trigger foods, which can be a difficult and frustrating process. Additionally, Kaitlin shares her scary experience with POTS after blacking out and suffering catastrophic injuries. POTS caused her blood pressure to recoil, making it challenging for her to perform daily tasks. She talks about the difficulties of getting a diagnosis and seeking treatment for POTS, which can be a complex and confusing process. Through her story, Kaitlin hopes to inspire others not to give up on themselves and seek help. She emphasizes the importance of self-care, seeking medical attention, and connecting with others who may be going through similar experiences. She thanks Linda for providing a platform for people like her to share their stories and connect with others and believes that together, we can make a difference and support each other in our journeys towards better health.

Tierra from the United States shares her personal experience of MCAS, autoimmune progesterone dermatitis, POTS, celiac Tierra describes how she first noticed her problems after taking bee pollen for her outdoor allergies, which led to getting blister hives everywhere and heart palpitations. Despite being misdiagnosed by a walk-in clinic, Tierra took matters into her own hands and researched her symptoms, leading to a diagnosis of Mast Cell Activation Syndrome (MCAS) by herallergist. Tierra also discusses chocolate as a big trigger for her, giving her migraines. Linda and Tierra confidently discuss how MCAS is more common than people realize, affecting an estimated 17% of the population.

Melanie, a resident of Canada, went through a challenging journey of coping with multiple health conditions such as MCAS, POTS, Sjogren’s, Fibromyalgia, Asthma, and Hashimoto's. It's undoubtedly challenging to manage so many health issues simultaneously. However, Melanie found that once she was diagnosed with MCAS and learned how to control it, she observed an improvement in every other condition she had. It's admirable how she persevered through her struggles and learned to manage her health issues effectively.

Pain specialist Dr Chris Kleronomos from Oregon us talks about how he used Ultra low dose naltrexone and LDN in his clinic.Dr. Chris Kleronomos, a renowned pain specialist based in Oregon, shares his valuable experience of utilizing Ultra Low Dose Naltrexone (ULDN) and Low Dose Naltrexone (LDN) in his clinic. He elaborates on the benefits of these powerful medications in the treatment of pain and their effectiveness in helping patients manage their condition. Dr. Kleronomos' insights are highly valued by his peers in the medical community, and his use of these innovative treatments is widely recognized as a significant contribution to the field of pain management.

Living with the chronic conditions of Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), hypermobile Ehlers-Danlos Syndrome (hEDS), Polycystic Ovary Syndrome (PCOS), and Sjogren's Syndrome can be extremely challenging. Lindsay, who lives with these conditions, must face numerous daily struggles and triumphs. Despite her difficulties, Lindsay's determination and resilience continue to inspire others. It is noteworthy that she is not only a patient but also a Registered Nurse (RN) and Licensed Professional Counselor (LPC). Her experience as a healthcare professional and a patient make her an excellent example of strength and courage.

Tracy from the United States, has bravely shared her personal experience dealing with three intricate medical conditions: Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and Hypermobile Ehlers-Danlos Syndrome (hEDS). Her story is an eye-opener for many as these conditions are often misunderstood and difficult to diagnose. Tracy's account provides important insights into the challenges faced by individuals living with these complex health issues.

In this poignant narrative, Doreena delves into the hidden connection between her struggles with Lyme disease and MCAS. She takes us through her emotional journey from childhood to the present day, recounting the trials and tribulations she faced. With a deep sense of empathy, she shares how she turned her experiences into a tool to unravel the mysteries of her condition, although she is still seeking answers for the treatment that would help her. Her story is both inspiring and informative, offering invaluable insights to those who are grappling with similar issues.

Brandi from the US shares her life with Ehlers-Danlos, MCAS, and Dysautonomia.

Natalie from the US shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience with us.

Katie from the US shares her LDN, MCAS, POTS and EDS (type 4 molecular diagnosis) Journey with us.

Anno, from the United States, has been dealing with health issues including mast cell activation syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and small intestinal bacterial overgrowth (SIBO).The journey with these health issues started after the birth of the guest's son in 2016, with severe digestive problems and classic indicators of methane dominant SIBO.Despite multiple treatments for SIBO, relapses were common, leading to a search for underlying causes. Eventually, a GI specialist diagnosed EDS and suspected POTS, leading to the turning point in the guest's health journey.As a child, symptoms such as constipation, temperature regulation issues, and a delayed onset to anaesthesia were noted, indicating early signs of the health conditions later diagnosed.Anno's mornings were challenging, with low energy levels and severe GI issues upon eating, making even showering in the morning difficult.

Caroline from Canada shares her struggles with MCAS, Dysautonomia, PTSD and LDN.

Anne from the US shares her unique LDN, MCAS and EDS story with us.

Dr. Cory Tichauer has 15 years experience and runs his naturopathic “Bear Creek Clinic” in Oregon. He majored in Neurobiology and also studied in Nepal. He has prescribed LDN for 10 years for 30 to 40 % of his patients because it controls the inflammation and pain so well. He also does lab work to check for viruses, infection, parasites, heavy metals, and the like. He avoids opiates and antibiotics as much as possible, and does a great job of combining conventional western medicine with Naturopathy.

Alissa from the US tells us about her journey with MCAS, POTS and LDN.

Michelle and her husband Matt from the US share with us her quest of many years to finally get an MCAS diagnosis and then to have the correct treatment to help her, which included LDN.

Laura from the US shares her LDN, SIBO and MCAS journey with all the struggles that went along the way until she had better quality of life.

Darren from the UK talks about how difficult it was to get an MCAS Diagnosis. What treatments was he offered, and how did he find a private doctor to listen to him and prescribe LDN, among other treatments, which helped him tremendously.

Catherine from the US share her LDN, MCAS, gastroparesis, MALS, RLS,journey and struggles with us.

Dr Jill Carnahan's new documentary, Doctor/Patient, is a must-watch for anyone dealing with or treating chronic diseases. In the documentary, Dr Carnahan shares her expertise and insights on chronic diseases, providing valuable information for patients and healthcare providers alike. Don't miss out on this informative and eye-opening film. Check out Doctor/Patient today! https://doctorpatientmovie.com/

Claudia from the US shares her experience of MCAS and POTS symptoms, how long it took her to be diagnosed and the treatments she's having.

Rebecca Mass-Krajewski, NP, talks about how LDN can help patients with the trifecta of HEDS, POTS, and MCAS, along with the percentiles of improvement she sees in her clients.

Miriam Martinez Callejas is the Superintendent Pharmacist and co-founder of Roseway Labs. During her master’s degree in Pharmacy, she trained in formulating medication and her first job was in a compounding pharmacy in Spain. There, she developed a passion for helping others using her experience and knowledge of medicine.At Roseway Labs, both prescribers and patients benefit from the formulations and compounding expertise that Miriam has developed over the past 20 years. She develops new formulations, finds ways to meet complex patient needs and trains practitioners to prescribe compounded medications. In demand as a conference speaker, she has participated in many sessions including at Menopause in Aesthetics, Aesthetics Medicine Live, Integrative and Personalised Medicine Congress, LDN Conference and BAHRS.As Superintendent Pharmacist, Miriam is responsible for ensuring that Roseway Labs operates in compliance with General Pharmaceutical Council regulations pertaining to the safe and effective provision of pharmacy and compounding services.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more. https://www.ldnresearchtrust.orgWe have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/

Samantha Lebsock, PharmD, received her Bachelor's in Human Biology and Doctor of Pharmacy from the University of Montana. She began working at Belmar Pharmacy in 2014. She is the Director of Product Development and Clinical Research for Belmar Pharma Solutions and the resident LDN specialist. Samantha has become an expert in compounded medication formulations and has become a trusted advisor to providers around the country.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.https://www.ldnresearchtrust.orgWe have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/

Steve Irsfeld is the owner of Irsfeld Pharmacy PC in Dickinson. Steve graduated from NDSU College of Pharmacy in 1988. After working in Fargo as an intern and staff pharmacist he returned to Dickinson to work alongside his dad and has been there for the last 28 years. Pharmacy is a family affair for Steve; NDSU School of Pharmacy has graduated his father, Jim, his daughter, Molly , and 3 uncles (one misguided cousin graduated from some other school)Irsfeld Pharmacy has been a Professional Compounding Centers of America (PCCA) member since 1998 and has incorporated nutrition into the practice in 2005. at a time when we began receiving more questions on how supplements interact with prescription medications. The pharmacy is a hybrid pharmacy with a focus on compounded medication including hormone replacement, pain management, and low dose naltrexone. The pharmacy goal is to help as may patients as possible. By having tools such as compounding and nutrition as well as having relationships with alternative medicine practitioners, they are able to help our patients seek wellness with non-traditional methods. “It has been a joy to hear patients come in and tell us that we have greatly improved their quality of life. That is the big reason I come to work each and every day”, Steve said.Steve was appointed to the ND Board of Pharmacy in April of 2014 and is a current member. He has been an active member of District 5, a local pharmacy organization, having held several offices and serving as the District 5 representative on the ND Pharmacists Association Board. He also served as the chair of the Associations Government Affairs Committee. He was a member of the Heartland Hospice IDG team for the last 24 years. He is a member of North Dakota Pharmacists Association, International Association of Compounding Pharmacists and National Community Pharmacists Association. Steve was the recipient of the Marion-Merrill Dow Distinguished Young Pharmacist Award for 1993 and the Dupont Innovative Pharmacy Practice Award in 2001. Steve is co-owner of Healthy Profits LLC, a business that helps pharmacies grow their supplement sales. Steve routinely speaks publicly and to professionals about the merits of compounding and nutrition. He has writen a weekly article on a health-related topic in his local newspaper since 2016 which is also published in several small papers in the surrounding communities. His most recent endeavor is the Irsfeld Pharmacy Optimal You Podcast where he visits with area providers and health influencers.Steve enjoys spending time with his 3 daughters, their families, including his 2 granddaughters, and his wife of 35 years, Carolyn. He enjoys traveling, gardening, working out, mountain biking, cooking, and learning new ways to better help his patients.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more. https://www.ldnresearchtrust.orgWe have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/

Ioana Vintila is a national board-certified health coach and founder of the POTS Possibilitation Program. She specializes in helping individuals with POTS and dysautonomia minimize their symptoms and uncover what's possible for them on their healing journey. Her holistic approach is based on coaching individuals around energy management, nervous system regulation, nutrition, and physical activity. Ioana guides individuals to implement this formula, offering hope and step-by-step guidance to enhance their well-being and overall quality of life.

Dr Sajad Zalzala from the US talks about the LDN and Anti-Aging Survey. He is the principal investigator.

Belita from the USA is a retired MD, she shares her amazing LDN Story for Chronic Pain.

Jill Brook from the US is a Researcher, Nutritionist and POTS patient and advocate who shares her experience with us.

Lupus is a complicated epigenetic process of cellular interactions that happen in genetically-susceptible people who are exposed to random and unknown environmental factors that create the conditions of lupus, or auto other autoimmune diseases. She discusses four mechanisms of action in regards to lupus and the cellular abnormalities, and recommended treatments. LDN has a positive impact, decreasing the risk of epigenetic changes as it decreases the oxidative damage. It adjusts the inflammatory cascade, and it's known to have a positive impact on gene regulation, the microbiome, and the frequency and severity of infections. Case studies are presented.

Lichen planopilaris is an autoimmune-mediated disorder with scarring hair loss. Dr. Bodemer identifies the clinical signs of lichen planopilaris (LPP), describes the autoimmune pathogenesis of lichen planopilaris, talks about the three main variants, lists some of the lifestyle factors and supplements that may be helpful in treating this condition, and helps to understand the role low dose naltrexone (LDN) may play in treating LPP. As an autoimmune disease, there is increased risk of other autoimmune conditions, with thyroid being the most common. The treatment goal is to slow down the inflammation and to limit the extent of permanent damage.

Sita from the US is a Nutritionist, POTS and EDS patient who shares her health journey with us

Compounding Pharmacist Dr Erin Panian shares her LDN experience.

Treating depression in patients with autoimmune conditions a presentations for the LDN 2019 conference by Beth Livengood NMD

Pamela Smith, MD presented LDN Use in Cognitive Decline, Lyme Disease, and Hashimoto’s Thyroiditis at the LDN Research Trust 2019 Conference

Jill Brook, MA - Intermittent Fasting presentation at the LDN Research Trust 2019 Conference

Traumatic Brain Injury Presentation by Dr Sarah Zielsdorf at the LDN Research Trust Conference

Wiebke Pape MD Presents Dissociative Symptoms in Trauma-Related Disorders at the LDN Conference

Kent Holtorf, MD - LDN should be considered a first-line therapy for CFS/FM (2019 Conference) (LDN, low dose naltrexone)

Nutritionist Jill Brook from the US discusses LDN as a treatment for POTS and MCAS on the LDN Radio Show.

Dr. Weinstock discussed his plans for a documentary about MCAS, POTS, and ED, three conditions that are often misunderstood and difficult to manage. He hopes that by sharing the stories of patients and experts in the field, he can help educate the public and healthcare providers about these conditions.Dr. Weinstock also emphasized the importance of working closely with healthcare providers to find the right treatment plan for each individual patient. While LDN may be a helpful tool for some, it's not a one-size-fits-all solution.Overall, Dr. Weinstock's message is one of hope and determination. With continued research and awareness, there is potential for better outcomes and improved quality of life for those living with difficult-to-treat conditions.If you would like to make a donation, please visit www.mcasfund.com. Your contribution, no matter how small, can make a difference. Thank you for your generosity!

Pharmacist Ray Solano from PD Labs shares his experience of Low Dose Naltrexone (LDN)

Dr Tania Dempsey talks about hard to diagnose conditions, including MCAS, POTS, EDS etc

Madi Wend, Mental Health Therapist, and chronic diseases, shares her experience

Dr Linda Bluestein talks about MCAS, POTS and EDS