Living with MCAS and POTS: A Patient's Journey of Struggles and Triumphs - An Interview with Kelly
The LDN Radio Show About Low Dose Naltrexone · Linda Elsegood
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Show Notes
In this interview, Linda has the pleasure of speaking with
Kelly, a guest from the United States who shares her journey of dealing with
MCAS and POTS. Kelly discusses how she first noticed that something was wrong
with her body when she was a child due to severe GI symptoms, which led to her
receiving her first colonoscopy at the age of ten. However, despite years of
experiencing worsening symptoms, Kelly did not receive a formal diagnosis until
2019. She describes her frustration and the challenges she faced while seeking
answers from various specialists, highlighting the systemic factors within the
healthcare system that make it difficult for patients like herself to receive
proper care. As a social worker and a patient herself, Kelly provides unique
insights into how care for undiagnosed patients could be improved, emphasizing
the importance of physicians believing and trusting their patients, providing
them with resources, and access to care to help them find accurate diagnoses.
Kelly also discusses the complexity of MCAS, a multi-system disorder that can
affect various organs and the skin, making it difficult to recognize and
diagnose. She shares her experience of how finding a physician who understands
the condition was crucial to getting it under control. Overall, Kelly's story
sheds light on the challenges of living with an undiagnosed condition and the
importance of improving healthcare systems to support these patients.
Kelly is taking LDN, Low Dose Naltrexone.