The Eye Believe Podcast

Episode 6: Coping with Scanxiety For many cancer patients and survivors, the time leading up to scans can bring overwhelming anxiety — often called scanxiety. In Episode 6 of My 15 Years, Melody opens up about her personal experience with scanxiety over the past 15 years of living with ocular melanoma. She shares the fear, uncertainty, and emotional weight that can come with routine scans, even years after diagnosis. More importantly, Melody talks about how she has learned to cope — offering perspective, strategies, and honest reflections on what has helped her navigate those difficult moments. This episode is for anyone who feels the stress of waiting for results, living between appointments, or carrying the quiet fear that can come with survivorship. You are not alone. 🔔 Subscribe to follow the full My 15 Years series 💙 Learn more about A Cure in Sight 🤝 Support ocular melanoma research and patient support: https://acureinsight.org/donate/

We’re proud to introduce a new series from the Eye Believe Podcast: Living In The Long Middle, hosted by Danet Peterson. This series is dedicated to exploring the often unspoken reality of living with ocular melanoma—the space between diagnosis and outcome. It’s a place many patients find themselves in for months or years: navigating uncertainty, balancing hope and fear, and continuing to live life while carrying the weight of the unknown. In this debut episode, Danet sits down with Ashley McCrary to talk about the complex emotions of “doing well” while others in the community are not. In light of recent losses, they explore grief, survivor’s guilt, and what it means to lose fellow patients who have become close friends. Ashley shares how she finds strength through her faith, while also acknowledging the difficult and sometimes painful questions that come with it—especially when blessings and outcomes are not equally experienced. This is an honest, compassionate, and ultimately uplifting conversation about resilience, community, and finding strength in the midst of uncertainty. If you’ve ever felt the weight of “living in the long middle,” this conversation is for you. 💙 Article by Janis Chen about living in the long middle: https://www.theguardian.com/society/2026/mar/22/i-have-stage-four-cancer-there-will-be-no-cure-but-death-isnt-necessarily-imminent-this-is-how-it-feels-to-live-in-the-long-middle?CMP=fb_gu&utm_medium=Social&utm_source=Facebook#Echobox=1774189536 Ashley's Facebook post- https://www.facebook.com/daveandashley.mccrary/posts/pfbid0vpHCwsAY56ncn5c2gHzG9SCy8rvFxD3QW3J27mWkkyPfVPrJsjGEbkkBiwPJ4ibl?rdid=MzTbn3iV625lmu5h#

In this Eye on the Expert webinar, Eye on CHOPIN: Study Insights & Personalizing Treatment in MUM, three leading U.S. physicians discuss the latest findings from the CHOPIN trial, with results reported in late 2025. This recorded discussion explores how emerging data can support a more individualized approach to treating metastatic uveal melanoma (MUM), helping clinicians and patients make more informed, personalized decisions. In this webinar, experts cover: Key insights and takeaways from the CHOPIN trial How treatment can be tailored based on patient needs and preferences The importance of shared decision-making in MUM care Options for patients who may not be eligible for—or choose not to pursue—certain therapies Whether you are a patient, caregiver, or healthcare professional, this webinar offers valuable perspective on how research is shaping more personalized treatment pathways in uveal melanoma. 🎧 Watch now to learn how CHOPIN trial insights are helping guide the future of MUM care.

In this episode of the Eye Believe Podcast, we’re joined by Adrián Franco, Ph.D., founder of Broken Not Broke, an initiative dedicated to addressing the often-overlooked financial toxicity of childhood cancer. After his son was diagnosed with Ewing sarcoma in 2022, Adrián experienced firsthand the overwhelming financial challenges families face during treatment. In response, he created Broken Not Broke to help connect the dots—serving as a centralized resource that links patients, parents, social workers, and caregivers to organizations offering financial assistance for pediatric cancer families across the United States. In this conversation, Adrián shares: His personal journey as a cancer parent The real impact of financial strain on families How Broken Not Broke functions as a national resource hub Why improving access to financial support is critical for families’ long-term well-being Adrián is also the Executive Director of the Guarini Institute for International Education and Economic Mobility and serves on the Patient and Family Advisory Council for Quality at Memorial Sloan Kettering Cancer Center. This episode shines a light on an important gap in cancer care—and offers hope, resources, and direction for families who need it most. Check out Broken Not Broke- https://brokennotbroke.org https://youtube.com/@thebrokennotbrokeinterview?si=4h220ZDNSxME3BT7

In this episode of the Eye Believe Podcast, Danet sits down with Dr. Vincent Ma to discuss an emerging and exciting tool in cancer monitoring: ctDNA (circulating tumor DNA)—or as Dr. Ma memorably calls it, “cancer poop.” Dr. Ma breaks down this complex topic in a way that’s easy to understand, explaining: What ctDNA is and how it works How it can be tested and monitored over time How he’s using ctDNA in his practice to better track disease and guide care for his patients This conversation offers a unique look at how innovative science is becoming more accessible—and how tools like ctDNA may help improve early detection, monitoring, and personalized treatment strategies. Whether you’re a patient, caregiver, or simply curious about the future of cancer care, this episode provides valuable insight into a rapidly evolving area of research. Tune in to learn how something as unexpected as “cancer poop” could play an important role in advancing cancer care.

Episode 5: Finding Community & Creating A Cure in Sight A cancer diagnosis can feel incredibly isolating — especially when the disease is rare. In Episode 5 of My 15 Years, Melody reflects on what it was like to search for community after being diagnosed with ocular melanoma 15 years ago, when few resources and support systems existed for patients. She shares the frustration, loneliness, and uncertainty of navigating a rare cancer without a clear network — and how that experience ultimately led her to take action. Out of that need for connection and support, A Cure in Sight was born. In this episode, Melody talks about the importance of community, how far things have come, and why no patient should have to face a diagnosis alone. This episode is for anyone seeking connection, support, or a reminder that community can grow even from the most difficult beginnings.

In this episode of the Eye Believe Podcast, we’re joined by Sheri and Leah Wernecke, the mother-daughter team behind Wernecke Wellness, to talk about the power of nutrition in honor of National Nutrition Month. Drawing from their own health journeys, Sheri and Leah share simple, practical, and actionable tips that can help improve overall health, boost energy levels, and support how we feel day-to-day. Their approach focuses on looking at the body as a whole—going beyond symptoms to understand how nutrition and lifestyle choices can make a meaningful difference. Sheri and Leah founded Wernecke Wellness after their personal health struggles led them to search for deeper answers. Today, they help others take a more holistic approach to wellness by listening closely, identifying root causes, and guiding people toward sustainable health. Whether you’re navigating illness or simply looking to feel better in your daily life, this episode offers approachable guidance and encouraging reminders that small steps can lead to meaningful change.

Ocular melanoma is one of the rarest forms of cancer — and because of that, it’s often misunderstood. In Episode 4 of My 15 Years, Melody talks about some of the most common misconceptions surrounding ocular melanoma, including funding challenges that come with such a rare diagnosis. She also reflects on what advocacy looked like in the early days of her journey, when awareness of ocular melanoma was limited and resources for patients were far fewer than they are today. Melody shares how those early experiences helped shape her commitment to raising awareness and supporting the ocular melanoma community. This episode sheds light on the realities of living with a rare cancer and the importance of advocacy, education, and community. 🔔 Subscribe to follow the full My 15 Years series 💙 Learn more about A Cure in Sight 🤝 Support ocular melanoma research and awareness: https://acureinsight.org/donate/

In this special episode of the Eye Believe Podcast, we bring together six leading experts to discuss newly established consensus guidelines for metastatic uveal melanoma (MUM) surveillance. Through a modified Delphi panel led by the Collaborative Ocular Oncology Group (COOG), 41 experts from more than 25 centers worked to create standardized surveillance recommendations in an area where high-level evidence remains limited. Joining us for this conversation are: Dr. Sunandana Chandra Dr. Juan Alban Dr. Meredith McKean Dr. Jose Lutzky Dr. Scott Walter Dr. Sanjay Chandrasekaran Together, they break down: -How the Delphi process was used to achieve expert consensus -Why risk-stratified surveillance (including molecular markers like GEP and PRAME, chromosomal findings, and clinical tumor features) is central to these recommendations -How standardized monitoring can improve early detection of metastatic disease -The importance of balancing surveillance benefits with potential risks and patient burden This panel represents a major step forward in aligning care practices and providing clearer guidance for patients and providers navigating metastatic risk in uveal melanoma. Whether you are a patient, caregiver, or clinician, this episode offers valuable insight into how expert collaboration is shaping the future of uveal melanoma care.

In this episode of the Eye Believe Podcast, we welcome back returning guest Ashley McCrary, founder of the Eye On Grace Foundation. Ashley joins Danet to share valuable insight into the many resources available to ocular melanoma patients and families navigating diagnosis, treatment, and beyond. While she discusses the mission and support offered through Eye On Grace Foundation, this conversation goes even further—highlighting a wide range of organizations, financial assistance programs, and resources that can help ease the burden patients often face. From travel support and financial aid to community connection and advocacy, Ashley and Danet provide guidance on where to turn and how to access meaningful help during the cancer journey. If you or a loved one are looking for support, this episode offers encouragement, direction, and tangible next steps to ensure you don’t have to navigate ocular melanoma alone. Stay tuned for the full resources guide!

In this episode of the Eye Believe Podcast, we’re joined by Dr. Zack Oakey, a board-certified ophthalmologist and ocular oncologist with extensive training in retinal disease and ocular oncology. Dr. Oakey shares his unique approach to using social media—especially TikTok—to educate patients, combat misinformation, and make complex ocular melanoma topics more accessible. Drawing from his training at institutions including the NIH, UC Irvine, the University of Wisconsin, and the Cleveland Clinic’s Cole Eye Institute, he offers valuable insight into how trusted medical information can reach patients where they already are. This episode blends medical expertise with modern communication, offering both reassurance and actionable information for patients, caregivers, and advocates alike. Tune in to hear how education, accessibility, and innovation can make a real difference in the OM community.

In this episode of the Eye Believe Podcast, we’re joined by Molly Vocino, LCSW, an oncology social worker at the Sidney Kimmel Comprehensive Cancer Center at Jefferson Health in Philadelphia. Molly is passionate about ensuring all people have access to quality healthcare and compassionate support—especially individuals and families navigating serious illness. In this conversation, she helps patients better understand the types of professionals available to support them throughout their cancer journey and how oncology social workers can play a critical role in care. Together, we explore: What oncology social workers do and how they support patients and families How to find and access resources, including financial assistance and practical support Why emotional, social, and logistical care are just as important as medical treatment This episode is a valuable guide for anyone facing cancer who may not know where to turn for help—or what support is available beyond the exam room.

Episode 3: Ocular Melanoma 101 & My Treatment Experience Understanding a rare cancer can feel overwhelming — especially at the moment of diagnosis. n Episode 3 of My 15 Years, Melody breaks down the basics of ocular melanoma (OM 101) in a clear, approachable way. She explains what ocular melanoma is, and how she felt as a newly diagnosed patients. Melody also goes deeper into her personal treatment experience, sharing what plaque brachytherapy was like — from preparing for the procedure to living through treatment and recovery. This episode is designed to help patients, caregivers, and loved ones better understand ocular melanoma, while grounding the information in real lived experience. Rare Cancer. Resilient Hope. Revolutionary Research. 🔔 Subscribe to follow the full My 15 Years series 💙 Learn more about A Cure in Sight 🤝 Support ocular melanoma research and awareness

In this powerful episode of the Eye Believe Podcast, we are honored to be joined by Allan Finnegan—a reverend, comedian, and former Britain’s Got Talent finalist—who is living with metastatic ocular melanoma. Allan shares an extraordinary, hope-filled conversation about life, faith, purpose, and finding light even in the most difficult seasons. With honesty, warmth, and humor, he reflects on what it means to live fully, love deeply, and hold onto hope through uncertainty. We also discuss Allan’s new book, “I Didn’t Ask for Any of This,” a moving and uplifting perspective on navigating the unexpected challenges of life. Get your copy here- https://amzn.to/3MfTmXD (affiliate links help support OM patients) This episode is a reminder of the strength of the human spirit, the power of laughter, and the resilience that hope can bring. Tune in for an unforgettable interview that will stay with you long after it ends.

A cancer diagnosis doesn’t just affect the body — it touches every part of life. In Episode 2 of My 15 Years, released during Mental Health Month, Melody opens up about the emotional reality of the months following her ocular melanoma diagnosis. She shares the fear, grief, and isolation she experienced, how her marriage began to fall apart, and the complex ways she related to her family during that time. This episode is an honest conversation about mental health, relationships, and the invisible weight that often follows a life-altering diagnosis — especially when that diagnosis is rare. Looking back 15 years later, Melody also reflects on what she wishes she had known then, offering thoughtful takeaways and perspective shaped by time, healing, and survivorship. This episode is for anyone navigating the emotional aftermath of diagnosis — and for those supporting someone who is. Rare Cancer. Resilient Hope. Revolutionary Research. 🔔 Subscribe to follow the full My 15 Years series 💙 Learn more about A Cure in Sight 🤝 Support ocular melanoma research and awareness

Episode 1: My Diagnosis Fifteen years ago, Melody heard the words that would change her life forever: you have ocular melanoma. In the first episode of My 15 Years, Melody — founder and president of A Cure in Sight — shares an overview of her diagnosis and the moments surrounding it. From the initial symptoms and medical appointments to the shock, fear, and uncertainty that followed, this episode begins the story at its starting point. This conversation lays the foundation for the series, offering an honest look at what it’s like to receive a rare cancer diagnosis and begin navigating a future filled with unknowns. This episode is for patients, survivors, caregivers, and anyone facing a diagnosis they never expected. Thank you for being here — and for walking this journey with us. Rare Cancer. Resilient Hope. Revolutionary Research. 🔔 Subscribe to follow the full My 15 Years series 💙 Learn more about A Cure in Sight 🤝 Support ocular melanoma research and awareness

In this episode of the Eye Believe Podcast, we’re joined by Dr. Hadfield, a medical oncologist treating uveal melanoma patients in the Northeast, for an in-depth discussion of the most important takeaways from ESMO 2025. Dr. Hadfield breaks down key study results and emerging data from major trials, including the CHOPIN Trial, Immatics Trial, IDEAYA Trial, and more—offering expert insight into what these findings may mean for patients, caregivers, and the future of uveal melanoma treatment. Links mentioned in this episode Q1 Eye on the Experts Webinar: Eyes on the Chopin Study: What does this mean for patients? https://events.zoom.us/ev/AgpsCnGSA4Hnib_afWXvh5jNq0qqSTvpKhOB8xHg0M9cItAlsoSw~Ah8MbImmpM---YQJIycJ2xa5cdZV0t5y8JSYZGuk2DnZJoO6vsGncOFduA ACIS Physician Finder: https://acureinsight.org/resources/ - click physician finder ACIS Metastatic Treatment Resources (including the July 2025 updated clinical trial summaries of enrolling trials): https://acureinsight.org/metastatic-om/ ASCO Fiber Study 2025: https://ascopubs.org/doi/10.1200/JCO.2025.43.16_suppl.9511 Summary of Studies discussed from attendance at ESMO: (https://acureinsight.org/acis-summary-of-uveal-melanoma-um-presentations-abstracts-and-posters-at-the-annual-meeting-of-the-european-society-for-medical-oncology-esmo-october-17-21-2025-berlin-germany/ ACIS NEWS RELEASES: follow along and subscribe to our newsletter to see the latest updates as we have them. https://acureinsight.org/ocular-melanoma-news/ Whether you’re a patient, advocate, or clinician, this episode provides a clear and accessible overview of the latest research shaping the uveal melanoma landscape. Tune in to learn what’s new, what’s promising, and where the field may be headed next.

In this episode of the Eye Believe Podcast, we’re joined by Sophie Cantu, who shares her personal experience participating in a TIL (Tumor-Infiltrating Lymphocyte) clinical trial for ocular melanoma. After previous treatments were unsuccessful, Sophie enrolled in the TIL trial—and saw encouraging results, including tumor shrinkage. She speaks candidly about what led her to the trial, what the experience was like, and how it changed her outlook moving forward. Sophie’s story offers hope to patients and families navigating treatment decisions and highlights the importance of continued research and clinical trials in advancing options for ocular melanoma. Tune in to hear Sophie’s journey, her perspective on perseverance, and why sharing patient experiences matters. NCT pages for trials mentioned: TIL TRIAL - https://www.clinicaltrials.gov/study/NCT03467516 IDEAYA TRIAL - https://www.clinicaltrials.gov/study/NCT05987332 RP2 TRIAL - https://clinicaltrials.gov/study/NCT06581406 Sophie Socials: https://www.facebook.com/SophieStevens9 https://www.instagram.com/sophiegstevenscantu/

Mental Health With A Dash Of Humor with Frank King | The Eye Believe Podcast In this powerful episode of the Eye Believe Podcast, we sit down with Frank King, the Mental Health Comedian, for an honest, eye-opening, and surprisingly hopeful conversation about mental health. Frank shares practical guidance on how to start conversations about mental health, key signs to look for in people experiencing depression or suicidal thoughts, and—most importantly—what we can actually do to help. Drawing from his own lived experience and years of advocacy, Frank shows how humor, empathy, and listening can truly save lives. This episode is for anyone who wants to support a loved one, a colleague, or even themselves—and isn’t sure where to begin. 🧠 In this episode, we cover: How to talk about mental health without fear or judgment Warning signs of depression and suicidal ideation What actually helps when someone is struggling How humor can open the door to healing If you or someone you know is struggling, you are not alone—and this conversation could make a difference. 👉 If this episode resonates, please like, subscribe, and share. You never know who might need to hear it. 📌 If you are in crisis or thinking about suicide, please reach out to local emergency services or call/text 988 in the U.S. for the Suicide & Crisis Lifeline. Connect with Frank- https://mentalhealthcomedian.com/ https://www.facebook.com/theMentalHealthComedian/ https://www.youtube.com/watch?v=MOTSdhj3ny4

In this episode of the Eye Believe Podcast, we are joined by Carol McColl, an ocular melanoma patient of more than seven years, who offers a powerful and deeply human perspective on collective grief and collective hope. Carol shares how community and connection play a vital role in navigating the grief and loss that often accompany an OM diagnosis. Through shared experiences, meaningful conversations, and mutual support, patients can find purpose, develop resilience, and cultivate hope—even on the most difficult days. As you listen, we invite you to reflect and engage: share an inspiring quote, a favorite book, or a song that brings you comfort and light when things feel heavy. Together, these small moments of connection can make a meaningful difference. As Carol beautifully reminds us: “Meaning fuels hope, and hope fuels strength and courage, which fuels resilience and perseverance.” Tune in and be part of this conversation about hope, healing, and the power of community. Carol's Social Media: https://www.facebook.com/carol.g.mccoll Drippy The Sad Raincloud: https://abjustforyou.com/product/gwyn-morgan-the-tale-of-the-sad-rain-cloud/ Other great book we recommend- Mans Search For Meaning by Viktor Frankl- https://amzn.to/3L073cL Try Softer by Aundi Kobler- https://amzn.to/4bg6J43 Strong Like Water by Aundi Kobler- https://amzn.to/4aGTVnf Emotionally Healthy Spirituality by Peter Scazzaro- https://amzn.to/4qffujO

In this powerful episode of the Eye Believe Podcast, we’re joined by Megan Morelli, who shares the story of her mother, Tami Sulistyo, an ocular melanoma patient whose legacy continues to inspire meaningful change. Following Tami’s passing, Megan and her family found purposeful ways to honor her life, strength, and impact—including the creation of the Tami Sulistyo Memorial Research Grant. Through this grant, Tami’s legacy lives on by supporting vital ocular melanoma research and helping move the field forward. In this conversation, Megan discusses: How her family transformed grief into action What it means to create a memorial research grant Practical and impactful ways individuals and families can honor loved ones while advancing medical research Whether you’re seeking inspiration, guidance on making a difference, or ways to honor someone you love, this episode offers heartfelt insight and hope. 👉 Learn more about the Tami Sulistyo Memorial Research Grant and how you can make an impact: https://give.arvofoundation.org/e/B90Oaw?vid=1nw87v 💙 Thank you for supporting ocular melanoma research and the Eye Believe Podcast.

🎙️ Steps For Sight 2026 with Kristen MacDonald | The Eye Believe Podcast In this episode of the Eye Believe Podcast, we’re talking all about Steps For Sight 2026, A Cure In Sight’s annual fundraiser supporting the ocular melanoma community and funding research toward a cure. Steps For Sight runs January 1–31, and participants commit to walking 7,000 steps a day to honor the 7,000 people diagnosed with ocular melanoma each year. Hosts Danet and Megan are joined by ocular melanoma patient Kristen MacDonald, founder of KMac Fights Back—the top fundraising team year after year. Kristen shares why she participates in Steps For Sight, how she successfully grows her team, and why this challenge is so important to the OM community and advancing research. 🚨 Registration opens TODAY (12/21)! 👉 Sign up now and download the Charity Footprints app to track your steps: https://www.charityfootprints.com/stepsforsight/ ✨ Whether you’re a patient, survivor, caregiver, or supporter, this episode will inspire you to move with purpose and help step us closer to a cure. 🔔 Subscribe, 👍 like, and 💬 comment to support the OM community and stay connected with A Cure In Sight.

In this inspiring episode of the Eye Believe Podcast, we welcome author and advocate Rachel Sindaco, whose journey through Multiple Sclerosis (MS) and Ocular Melanoma (OM) reshaped her life in unimaginable ways—and ultimately saved it. Rachel maintains a remarkable positive outlook, openly sharing how she considers herself lucky to have MS. It was her MS diagnosis that led to increased medical monitoring, allowing her ocular melanoma to be caught early—a discovery that may have saved her life. Without MS, Rachel believes her cancer might have gone undetected until it was too late. Her book, From a Kick in the Head to a Kick in the Ass: My Involuntary Journey with Multiple Sclerosis and Ocular Melanoma, is a candid, often humorous, and deeply moving memoir about navigating serious illness, reframing adversity, and finding gratitude in the most unexpected places. This conversation is a powerful reminder that perspective matters, early detection saves lives, and even the hardest diagnoses can carry unexpected gifts. 📘 Order Rachel’s book now to receive your copy by Christmas! Support the podcast by purchasing through our Amazon affiliate link: 👉 https://amzn.to/44un94Q Shop the ACIS affiliate store- https://acureinsight.org/shop/amazon-affiliate-products/

👁️ Eye on COOG – Special Eye Believe Mini-Seminar (Recording) 📅 Recorded on December 6, 2025 🔗 Learn more or register for future events: https://www.acureinsight.org/education-events If you missed the live session — or want to watch it again — you're in the right place! This recorded webinar breaks down the latest updates from COOG 2 uveal melanoma studies and explains what they mean for GEP results, PRAME status, and mutation testing. Our expert speakers guide patients and caregivers through understanding eye tumor biopsy reports in a clear, supportive way. 🌟 Featured Speakers Kat Alsina – Castle Biosciences Dr. Amy Schefler Dr. Basil Williams 🎤 Hosted by Danet Peterson 💙 Presented by Castle Biosciences 🤝 Sponsored by Immunocore • Aura • Delcath • IDEAYA Biosciences ✨ Watch, learn, and empower yourself with knowledge about your uveal melanoma journey. ✨ Feel free to share this resource with others who may benefit. #EyeOnCOOG #EyeBelieve #UvealMelanoma #AcureInsight #CastleBiosciences #OcularOncology #COOG2 #PRAME #GEP #MutationTesting #PatientEducation

Welcome to Session 1 of the Eye Believe Survivorship Seminar 2025! This 8:00 AM session features renowned ocular oncologist Dr. MATERIN (Duke Health) as he presents “Yesterday, Today & Tomorrow in Ocular Melanoma.” In this powerful opening session, Dr. Materin walks attendees through: 🔹 The history and evolution of ocular melanoma care 🔹 Current diagnostic tools, treatments, and patient management approaches 🔹 What’s ahead in research, technology, and survivorship support 🔹 How patients, caregivers, and advocates can navigate their journey with greater confidence This presentation is part of A Cure In Sight’s Eye Believe Survivorship Seminar 2025, a full-day event bringing together experts, survivors, caregivers, and advocates to empower the ocular melanoma community with knowledge, resources, and hope. About the Speaker – Dr. MATERIN Dr. MATERIN is a leading specialist in ocular oncology at Duke Health, recognized for his expertise in ocular melanoma diagnosis, treatment, and long-term patient care. His commitment to innovation and compassionate medicine has had a profound impact on the OM community. About A Cure In Sight A Cure In Sight (ACIS) is dedicated to supporting those affected by ocular melanoma through education, patient services, advocacy, and funding research aimed at improving outcomes and finding a cure. Learn more or get involved: https://acureinsight.org

Eye On Research | Session 2: Adjuvant Therapies – What’s New Today? (And What Can You Do About It!?) Join us for Session 2 of Eye On Research, presented by A Cure In Sight 💙. In this insightful session, top experts in the field—Dr. Carvajal, Dr. Lutzky, and Dr. Kahn—discuss the latest developments in adjuvant therapies for ocular melanoma. 🕦 Time: 11:30 AM EST 👩‍⚕️ Speakers: Dr. Carvajal Dr. Lutzky Dr. Kahn ✨ Topics Covered: What’s new and emerging in adjuvant therapies 🔬 The science behind current treatment strategies 🧬 Practical steps patients and clinicians can take today 💡 This session dives deep into the evolving landscape of ocular melanoma research, offering valuable insights for patients, caregivers, and medical professionals alike. 🎧 Stay informed. Stay empowered. Tune in to learn what’s next in ocular melanoma treatment innovation. #EyeOnResearch #ACureInSight #OcularMelanoma #AdjuvantTherapies #CancerResearch #ClinicalTrials #Hope

In this episode, we interview Danny Powell, an ocular melanoma (OM) patient whose tumor was identified early thanks to his eye doctor noticing a change and acting quickly. Danny explains his diagnosis, his treatment with brachytherapy, and how he later discovered that his grandmother also had OM—an extremely rare family connection. This prompted genetic testing, which revealed that Danny carries a BAP1 gene mutation. He discusses what that means for his ongoing care, his decision to join a clinical study, and the importance of regular surveillance scans. Whether you're an OM patient, caregiver, or medical professional, this episode provides practical insight into early detection, genetic risk factors, and patient involvement in research.

🎧 Eye Believe Podcast | Giving Your Diagnosis Direction with Chris Brotherston & Mike Cornell Getting an ocular melanoma diagnosis can feel overwhelming — but finding clarity, support, and direction can make all the difference. 💙 In this inspiring episode, we sit down with Chris Brotherston and Mike Cornell, two OM patients who share how they took charge of their journeys by turning uncertainty into purpose. From navigating initial shock to making informed decisions and finding community through A Cure In Sight, Chris and Mike’s stories remind us that no one has to face this diagnosis alone. Tune in as we explore: 💬 How to find guidance and confidence after diagnosis 🤝 The power of patient connections and shared experience 💡 Practical advice for navigating care and emotional healing 🎙️ Whether you’re newly diagnosed or supporting someone who is, this episode offers hope, direction, and a reminder that there’s strength in shared stories. Please check out- -Mike's episode on Why Participate in Clinical Trials: https://youtu.be/s_XAOsZBE0w -Chris' episode on his journey with Daro as part of a men's health panel - https://youtube.com/live/RCrjZrC7g7Q #EyeBelievePodcast #ACureInSight #OcularMelanoma #PatientStories #Hope #Empowerment #CancerAwareness #GivingYourDiagnosisDirection

🎙️ Men’s Health Panel Discussion — A Special Episode for Men’s Health Month In this powerful new episode from A Cure in Sight, we bring together an expert panel for an honest, insightful conversation in honor of Men’s Health Month. Our guests open up about the unique challenges men face in prioritizing their health—both mental and physical. Together, we explore: Men’s Health & OM: Why early detection, awareness, and open dialogue matter more than ever Advocacy in Action: How men can use their voices to push for research, support, and better outcomes The Patient Registry & Bio Bank: What these vital resources mean for the future of OM research—and how patients can contribute to accelerating breakthroughs This candid discussion shines a light on the importance of men showing up for themselves, their families, and their communities. Whether you’re a patient, caregiver, advocate, or ally, this episode offers valuable perspectives, practical insights, and a renewed sense of connection. Tune in and join us as we honor Men’s Health Month with empathy, information, and hope.

November is National Hospice and Palliative Care Month. Join A Cure in Sight, an ocular melanoma foundation, for an insightful conversation with Suzanne O’Brien, RN, on the important distinctions between palliative care and hospice care. In this episode, Suzanne sheds light on the significant gaps in end-of-life education that leave many families overwhelmed and unsupported during some of the most challenging moments of their lives. As the Founder & CEO of Doulagivers Institute, Suzanne B. O’Brien has dedicated her life to increasing access to high-quality end-of-life education and compassionate care. Drawing from her firsthand experience at the bedside of more than 1,000 patients as a hospice nurse and palliative care professional, she has created free trainings and resources to empower both caregivers and practitioners worldwide. https://doulagivers.com/ 💙 Learn more about end-of-life support, education, and the mission to ensure no one faces this journey alone.

November is Men’s Health Month, and we’re diving into a topic that doesn’t get talked about enough — the emotional side of men’s health. In this powerful episode, we sit down with Pervis Taylor, award-winning life coach, author, and mental health advocate, to explore how men can better navigate the challenges of emotional well-being, especially in the face of serious diagnoses like ocular melanoma. Pervis shares his insights on breaking stigma, building resilience, and learning to express and process emotions in healthy, empowering ways. His compassionate and practical approach reminds us that strength begins with self-awareness — and that healing is both physical and emotional. Join us as we discuss: 💬 Why men often struggle to talk about emotions 🧠 Tools for emotional wellness and self-awareness ❤️ How vulnerability can lead to healing and hope 🎙️ Tune in for a heartfelt, honest conversation that every man—and everyone who loves one—should hear. #EyeBelievePodcast #ACureInSight #MensHealthMonth #MentalHealthMatters #OcularMelanoma #PervisTaylor #MensMentalHealth #EmotionalWellness #Hope #Empowerment

How To Leverage AI In Your Diagnosis Journey with Chris Donaldson | The Eye Believe Podcast Meet Chris Donaldson, an ocular melanoma (OM) patient and AI professional who’s redefining what it means to take control of your health journey. When faced with conflicting medical opinions at the onset of his diagnosis, Chris turned to a tool far more powerful than Google—artificial intelligence—to help guide his decisions and find clarity in the chaos. In this inspiring episode, Chris shares how AI played a pivotal role in his diagnosis and ongoing care, helping him access cutting-edge information, discover new treatment options, and feel empowered throughout his metastatic OM journey. Join us as we explore: 💡 How AI is transforming the patient experience 💬 The emotional and practical realities of life with ocular melanoma ❤️ Finding empowerment and hope through technology 🎙️ Tune in to hear how curiosity, innovation, and resilience come together in Chris’s story. BONUS- Download the A Cure In Sight App now! https://apps.apple.com/us/app/a-cure-in-sight/id6748178227 #EyeBelievePodcast #ACureInSight #OcularMelanoma #AIInHealthcare #PatientStories #Hope #Empowerment

In this inspiring episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we hear from Allie Dashow, a young and passionate ocular melanoma patient who has turned her diagnosis into a mission to raise awareness and make a difference. Now three years into her journey, Allie reflects on where she is today—how she’s grown, found strength, and become an advocate and voice for others facing OM 🌈. From her personal experiences to her work within the larger melanoma community, Allie’s story is one of courage, purpose, and using her voice to create change 🎤. ✨ Allie's story is a powerful reminder that sharing our stories can inspire others, foster connection, and drive hope forward 💫. Link to her story in the Daily Mail: https://www.dailymail.co.uk/health/article-15153837/dry-eyes-dismissed-symptoms-diagnosed-rare-cancer.html Article on melanoma.org https://melanoma.org/news-press/i-had-dry-eyes-and-dismissed-my-symptoms-then-i-was-diagnosed-with-a-six-in-one-million-disease/ Connect with Allie here-- Instagram: https://www.instagram.com/allie_dashow37?igsh=MWR0dzJzamIzNjE4dg== Facebook: https://www.facebook.com/share/16Up8dxTJR/?mibextid=wwXIfr Podcast interview: https://podcasts.apple.com/us/podcast/the-eye-believe-podcast/id1580434627?i=1000583540686 Eye on Mental Health: https://youtu.be/olZCAam3vn8?si=CnJzBg6herXUHINb #EyeBelievePodcast #ACureInSight #OcularMelanoma #Hope #PatientStories #Advocacy #MelanomaAwareness

In this heartfelt episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we meet Shana Bar, an international patient from 🇨🇦 Canada, who shares her journey living with metastatic uveal melanoma. Shana opens up about her experience on a clinical trial 🔬—the hope it’s brought, the encouraging news she’s received, and how her outlook on life has evolved along the way 🌈. But she also speaks candidly about the emotional side of survivorship—the gratitude and the guilt that can come with doing well while others in the community face harder outcomes 💔. ✨ This conversation is a moving reminder of the complexity of healing, the importance of compassion, and the power of community support 🤝. 🎧 Listen now to Shana’s story of resilience, honesty, and hope that shines through every word. #EyeBelievePodcast #ACureInSight #UvealMelanoma #ClinicalTrials #Hope #PatientStories #OcularMelanoma

In this inspiring episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we sit down with Yvonne, a remarkable patient who was diagnosed with ocular melanoma in late 2019. What makes Yvonne’s story even more extraordinary is that she has brown eyes—a rare diagnosis among an already rare cancer 👁️. She opens up about the shock of her diagnosis, the emotional and physical challenges she’s faced, and the strength it takes to navigate life after OM 🌈. Through hope, faith, and community, Yvonne reminds us that every story—no matter how rare—has the power to inspire 💫. 🎧 Listen now to Yvonne’s journey of resilience, courage, and shining light through life’s darkest moments. #EyeBelievePodcast #ACureInSight #OcularMelanoma #Hope #RareButStrong #PatientStories

In this compelling episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, patient Nick Konovaloff shares his powerful journey living with metastatic uveal melanoma. From diagnosis 🩺 to joining a clinical trial 🔬, Nick opens up about the challenges, hope, and determination that have shaped his experience. ✨ This honest and inspiring conversation reminds us that even in the face of uncertainty, there is always hope—and a community standing beside you 🤝. Connect with Nick here- https://www.photographybynicholai.com 🎧 Listen now to Nick’s story of courage, perseverance, and faith in the power of science and support. #EyeBelievePodcast #ACureInSight #UvealMelanoma #ClinicalTrials #Hope #PatientStories

In this powerful episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, patient Tessa Parry-Wingfield shares her courageous journey with ocular melanoma. From the life-changing moment of diagnosis 🩺 to undergoing enucleation 👁️, Tessa opens up about the challenges and triumphs she has faced along the way. Through writing ✍️, Tessa has found both healing and purpose—transforming her experience into a source of strength while helping others in the ocular melanoma community feel seen, supported, and understood 🌈. ✨ Her story is one of resilience, creativity, and hope, reminding us all of the power of sharing our journeys. Victoria Cohen Eye Cancer Charitable Trust- https://www.vcecct.org/ https://www.instagram.com/seeing_life_clearly/ https://tessaparry-wingfield.com/ 🎧 Tessa’s Story and Finding Strength in Storytelling is available now—tune in for inspiration, connection, and encouragement 💫. #EyeBelievePodcast #ACureInSight #OcularMelanoma #Hope #PatientStories

Eye On Research | Session 1: Metastatic Treatments Join us for Session 1 of Eye On Research, presented by A Cure In Sight 💙. In this session, leading experts share the latest on systemic clinical trials, treatment updates, and innovations in liver-directed therapies for metastatic ocular melanoma. 👩‍⚕️ Speakers: Dr. Carvajal Dr. Moser Dr. Montazeri Dr. Orloff Dr. Burns ✨ Topics Covered: Advances in systemic clinical trials 🔬 What’s new in liver-directed therapies 🩺 Treatment updates and research breakthroughs 🌟 This powerful discussion provides patients, caregivers, and advocates with the most up-to-date information on treatment options and ongoing research for metastatic ocular melanoma. 👉 Don’t miss this opportunity to learn from top experts in the field. 📌 Subscribe to our channel for more research updates and inspiring patient stories! #OcularMelanoma #EyeOnResearch #ClinicalTrials #CancerResearch #ACureInSight

In this inspiring episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we sit down with patient Ross Wither and his wife Megann Wither to hear their remarkable story of resilience, faith, and hope ✨. Ross shares his journey from the life-changing moment of diagnosis 🩺 through the uncertainty of treatment decisions, to finding a clinical trial 🔬 that gave him new possibilities. With Megann by his side ❤️, they walk us through their experiences with plaque brachytherapy 🌟, the emotional challenges they faced, and the small and large miracles they witnessed along the way 🙏. This heartfelt conversation is more than just a medical story—it’s a testament to the power of perseverance 💪, support 🤝, and believing in what’s possible 🌈. Whether you’re a patient, caregiver, or simply in need of hope, Ross and Megann’s journey is sure to leave you inspired 🌻. ✨ A story of courage, love, and miracles—you won’t want to miss this episode! 💫

🎙️ Eye Believe Podcast – Featuring Dr. Zachary T. Berman 💙 If you enjoy this free information and want to support our mission, please consider donating here: https://acureinsight.org/donate/ 🙏 Every gift makes a difference! In this episode of the Eye Believe Podcast, we welcome Zachary T. Berman, MD, Associate Professor of Clinical Radiology at the University of California, San Diego. Dr. Berman is a national thought leader in interventional oncology with a subspecialty focus on hepatobiliary malignancies. A graduate of Case Western Reserve University School of Medicine, he completed his internal medicine internship and diagnostic/interventional radiology residency at UC San Diego, where he continues to advance liver-directed therapies and interventional radiology practices. Dr. Berman joins us to discuss the Hepzato Kit—what it is, how it works, and what patients need to know. Could it be the right option for you or your loved one? He breaks down the latest insights, treatment considerations, and the future of liver-directed therapy in an accessible and engaging way. Dr. Padia - how does Hepzato work? https://youtu.be/m7eWqvV9KOg?si=e1Xm4O9qtLZQLHFj YouTube Dr. Chmielowski - Hepzato from a med onc perspective: https://youtu.be/0GzqHluFPWA?si=RjwfYqGLlRi1OWjQ A patient's courageous story of having Hepzato Kit: https://youtu.be/Zhj8ZzPiWos?si=C7Whemzg0Tysbbv- Puzzling out Liver Directed Therapies: https://youtu.be/qBN9lP0TFE8?si=jVjr4-Lh9DY2L7xG Future of Liver Directed Treatments at Eye Believe 2024: https://youtu.be/881K94Zc0sI?si=jKf9uud2qCrSkpkz 👉 Whether you’re a patient, caregiver, or medical professional, this episode offers a clear look into an important innovation in cancer treatment.

🎙 Rare Cancer Day Spotlight: Maya Skubatch’s Story | The Eye Believe Podcast In this special Rare Cancer Day episode of the Eye Believe Podcast, we sit down with Maya Skubatch, a cancer patient living with Blue Nevus Melanoma — an ultra rare cancer nearly identical to uveal melanoma. 🌟 Maya’s journey is one of resilience, courage, and hope. As one of the rarest of the rare, she shares her powerful personal story, the challenges of navigating a rare cancer diagnosis, and the importance of raising awareness for conditions that often go unheard. Join us in honoring Rare Cancer Day by listening, learning, and sharing Maya’s story to help shine a light on those fighting rare diseases. 📢 Don’t forget to subscribe to the Eye Believe Podcast for more patient stories, expert insights, and updates in ocular melanoma and rare cancers. 📌 Resources & Links: 🌐 Learn more about A Cure In Sight: https://acureinsight.org 💙 The Blue Nevus Melanoma Foundation: https://sites.google.com/view/bluenevusmelanoma/our-mission 💌 E-Mail Maya- [email protected] #EyeBelievePodcast #RareCancerDay #BlueNevusMelanoma #UltraRareCancer #UvealMelanoma #MelanomaAwareness #PatientStories #OcularMelanoma #CancerSupport #RareCancerAwareness