The Eye Believe Podcast

Join A Cure in Sight for our 3rd Quarter Webinar, a special presentation with Dr. Harbour and Dr. Correa. Tune in to hear about the history of ocular melanoma over time, where the future of research is headed, and the incidence and presentation of uveal melanoma around the world. J. William Harbour, M.D., is an American ophthalmologist, ocular oncologist and cancer researcher. He is currently Chair of the Department of Ophthalmology at the University of Texas Southwestern Medical Center in Dallas. As an ocular oncologist and clinical researcher, Dr. Zelia Correa was recruited to Sylvester Comprehensive Cancer Center and Bascom Palmer Eye Institute of the University of Miami Miller School of Medicine in 2020 as Director of the Ocular Oncology Service and Professor of Ophthalmology at the University of Miami Miller School of Medicine. Slides accessible at the following links: Youtube recording Dr. Harbour Slides Dr. Correa Slides ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

After seeing her article featured last week, we had to get this omie on the podcast! Tune in to hear from Ellie sharing her story: "I have to believe that going through all of this at a young age has happened for a reason. I’m not someone who blindly believes God has a plan for everything, but in my case, I can’t help but recognize that He’s taught me a lesson. Spending your whole life worrying about what has happened, what will happen, what might happen, is a waste of time. I am proof that worrying does not work! I worried my whole life that I would get cancer. And guess what? It didn’t stop me from getting it." LINK TO ARTICLE Summary of her diagnosis: Diagnosed with choroidal (retina) melanoma in November, 2022. Had surgery in Boston, MA to implant a tantalum ring in my eye, at the end of November. Treated with proton beam radiation in Boston, MA in December. Follow-ups show shrinkage in the tumor. Slowly losing some peripheral eyesight. No sign of metastasis as of fall 2023. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight and Jennifer Stephens, an oncology research nurse with a personal connection to ocular melanoma and a pilot research project investigating patients with OM who have (since original diagnosis) developed another form of cancer on top of ocular melanoma. She is specifically looking for patients willing to be part of this research study. More info in this episode and to be found at her site below: https://www.uwyo.edu/nursing/faculty-staff/stephens.html RESEARCH CALL OUT: deadline fast approaching end of SEPTEMBER. Did you develop a second cancer AFTER being diagnosed with #ocularmelanoma? "PURPOSE OF THIS STUDY: The way someone thinks about themselves and their body can change almost immediately after getting a cancer diagnosis. This study is gathering information about the experience of having had an ocular melanoma (OM) cancer, going into remission/cure, and then developing a second non-OM cancer. Part 1 of this study is a recorded virtual interview using ZOOM lasting approximately 20 to 60 minutes. An optional Part 2 of this study is a virtual participant Focus Group moderated by the principal investigator." Participants must be 18+ years of age in USA or CA. Contact Jennifer Stephens MA, PhD, RN, OCN, CCNE of the University of Wyoming at [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Part 3 of 3 in a mini series recording the EYE ON RESEARCH SEMINAR Join A Cure in Sight to chat with first, Dr. Moser and Dr. McKean regarding all drugs of interest pertaining to uveal melanoma that were discussed or presented on at ASCO 2023 - you can find this list here, courtesy of the ACIS Research board member. Following their presentation, tune in to hear some interesting and novel research in uveal melanoma that Dr. Dalvin heard at ARVO 2023, including key research presented for treatment of the eye. Please send in questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Part 2 of 3 in a mini series recording the EYE ON RESEARCH SEMINAR Join A Cure in Sight to discuss a few key trials of interest to uveal melanoma with Dr. Hamid and Dr. Carvajal. Replimune is discussed, as well as the importance and impact of Phase 1 trials. Please send in questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Part 1 of 3 in a mini series recording the EYE ON RESEARCH SEMINAR Join A Cure in Sight to chat with Dr. Katz about the updates to the PERIO-01 Study, presented on at ASCO 2023 as pertaining to uveal melanoma. Please send in questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Wondering if you should get a biopsy? Wanting to understand more about the biopsy of your eye? Join A Cure in Sight and back again, the wonderful Dr. Basil K Williams to discuss Prognostication of the Eye – A special episode selected and sponsored by Castle Biosciences. Learn about the classes of eye tumors, what newer research tells us, and where research is headed. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Tune in to hear from a few of the researchers and physicians we ran into at ASCO 2023! Thank you to all who came by our booth and helped us compile our "Newsworthy Notes from ASCO" which you can find here: https://acureinsight.org/newsworthy-notes-from-asco/?v=7516fd43adaa ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Hey omies, Registration is now open for our 2023 Eye Believe Survivorship Seminar. This year we’ll be coming to you live and virtually from Seattle WA. Join Dr. Andrew Stacey, top physicians, and experts, for 2 days of workshops and educational sessions on living with ocular melanoma. We'll explore the town - I hear there is a dinner cruise planned for Friday night -, meet new omies, check in with good friends, and end the weekend on the high note for cocktails and dinner. For those attending in person, we hope to see you at our Welcome reception the evening of Sept 7, so plan travel accordingly. Reserve your hotel room using the link provided at time of registration or book at your preferred nearby favorite hotel. If you’re unable to attend in person, during registration, select the “virtual attendance” option. If you plan to attend in person or online, please register using the link in the show notes of each podcast episode or head to www.acureinsight.org/education-events After you register, be sure to finalize your travel plans and reserve your room at the hotel or nearby! Discounted hotel registration ends on August 17th! Please email [email protected] with any registration questions. Share the news with your fellow omies! We can’t wait to finally SEE you in Seattle!

Join A Cure in Sight host Danet Peterson to interview 4 members of the omie community who are also part of the LGBTQA+ community to hear their perspectives on their ocular melanoma journey as well as their insights into the evolution of their medical care as queer cancer patients. Thank you to Calissa Kneip, Steven Russel, Alec MacKenzie, and William Karp for your time and insights and representing the queer community of A Cure in Sight. ANNOUNCEMENTS: REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! HOTEL DEADLINE AUGUST 17th 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team, bring your community, and fundraise to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami May 18, 2024 Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh June 8, 2024 Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024 Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024 Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year and next years dates too! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to interview the author of the book, I Just Turned 2: How I learned to Live After Dying, Dean Weitenhagen to discuss navigating multiple eye surgeries and cancer diagnoses in his last 10 years. A story of resilience and adaptation when life deals you curve ball after curveball. Find his newly published book on Amazon, or at his website below: https://www.deanweitenhagen.com/ ANNOUNCEMENTS: REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! HOTEL DEADLINE AUGUST 17th 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team, bring your community, and fundraise to get involved! August 5, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH August 6, Philadelphia https://runsignup.com/Race/PA/Philadelphia/LookinForACurePhiladelphia September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami May 18, 2024 Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh June 8, 2024 Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024 Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024 Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to interview multiple patients who have learned about and applied various types of alternative medical care. Lindsay Brown, Lori Jones, Lisa Durbin (wife and caretaker of Mike), Kenny Rains, and Hannah Thompson. Hear about the empowerment that comes from taking action and applying new knowledge whether you are in the early stages of diagnosis, or dealing with metastatic spread. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team, bring your community, and fundraise to get involved! August 5, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH August 6, Philadelphia https://runsignup.com/Race/PA/Philadelphia/LookinForACurePhiladelphia September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to interview Dr. Dan Rubin, ND, FABNO, to discuss integrative oncology, and the evolution of this practice he has seen unfold for over 20 years. Tune in to hear what integrative oncology can look like, key points to consider when pursuing care. Learn about their practice here: https://www.listenandcare.com/ Daniel Rubin is a naturopathic doctor based in Scottsdale, Arizona. His naturopathic oncology practice has been an integral part of the Phoenix metropolitan medical community for the past 20 years. After graduating from Southwest College of Naturopathic Medicine (SCNM) in 1997, Dr. Rubin returned to SCNM to complete his residency. In 2004, he became the Founding President of the Oncology Association of Naturopathic Physicians (OncANP). The OncANP represented a revolution for the field of naturopathic oncology providing, for the first time, definition, validation and standardization of the field of naturopathic oncology. Since that time Dr. Rubin has become an internationally recognized naturopathic oncologist. Dr. Rubin is co-Founder (along with his wife, Debi Smolinski, ND) and Medical Director of Naturopathic Specialists, LLC, in Scottsdale, AZ, where he practices full-time as a naturopathic oncologist. At present, Naturopathic Specialists has served the clinical and logistical oncology needs of people from all 50 states as well as 19 countries. Dr. Rubin is an expert at the integration of traditional and naturopathic medicine for people with cancer and services both the adult and pediatric population. He is also an expert in the naturopathic approach to people with cancer who either are unable to undergo conventional therapy or who choose not to. His selected positions include those from the regulatory, education, advisory and community sectors and his main philanthropic interests are focused on children with cancer as well as post-graduate education. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 5, Philadelphia https://runsignup.com/Race/PA/Philadelphia/LookinForACurePhiladelphia August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to interview Starla Hadlock-Allen, an ocularist in Mesa, AZ whose family has a unique history in the field of ocular prosthetics. Hear their story, and learn about the certifications required to become a board certified ocularist; a qualification she and other ocularists strongly urge those seeking prosthetic eye creation care to look for in their ocularist team. A diplomate member of the American Society of Ocularists, Starla received her BA from Brigham Young University and completed her internship with her father, John, in 2007. She and John have been working together for over 20 years. Starla and her husband, natives of Arizona, and their children live in Mesa and enjoy serving their community. Learn about their family practice here: https://www.eyeconcern.com ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to bring you our second quarterly webinar this year; focused on navigating clinical trials. Clinical trials research nurses Kelly Goddard and Shahnaz Singh-Kandah discuss the process of clinical trials registration, locating centers, and offer invaluable resources for patients navigating the trial space. CLINICAL TRIALS 101 PDF CLINICAL TRIALS SLIDES LINK Checklist for prioritizing/recommending studies: -Data – what’s most likely to help? -Whatever we do first – we leave as many doors open down the line to make sure it won’t preclude you from other treatment -What is the impact on the trial? Side effects, logistics. Biopsies, PKs, etc. -Feasibility - travel - Questions: -Is there any published data? -How long has the study been open ? -Is there placebo involved? -Is there a stipend for commuting costs? -What are common side effects that you have noticed in recent patients? -Are there any patients at your site currently participating? -Is this my best option right now? ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight in an interview with Dr. David Ancona, the founder of Mexico's pioneer Eye Cancer Institute. In this episode, Dr. Ancona and podcast host, Danet Peterson discuss the history of the Eye Cancer Institute in Mexico, the treatments they have available, and the effort it has taken to establish an eye cancer institute in Mexico. Their locations are in Monterry, Mexico, as well as Guatelajara, Mexico. They treat patients from all across Mexico, Central America, Southern America, and in some cases near the souther USA border. Their focus is to bring accessible, patient driven care to patients navigating eye cancer of any kind. You can find them on social media to connect and learn more at www.eyecancerinstitute.org. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN coming soon! June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight as they bring you some brief mini interviews from attendees and presenters at AACR, the American Association of Cancer Research, hosted in Orlando in April 2023. Dr. Meredith McKean and Dr. Liya Xu share some unique insights on uveal melanoma research that is happening now. Thanks for tuning in! Don't forget to subscribe and continue to listen in! ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

A Cure in Sight is joined on The Eye Believe Podcast by Dr. Mohammed Dar, who is the Chief Medical Officer of Immunocore. Tune in to learn more! In this brief discussion, Dr. Dar shares the origin and history of Immunocore, how they got started, and how their field came to include uveal melanoma. To access the lists of currently recruiting clinical trials relevant to uveal melanoma, head to clinicaltrials.gov and search uveal melanoma. Thank you again to Immunocore for their continued work for patients with rare diseases like Uveal Melanoma. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight and Dr. Maureen Sanger to discuss protecting your mental health as a patient with ocular melanoma. A few key points from this episode: "Switch focus from the what if to what is?" "Grief is something we tend to." When in doubt, let it RAIN: R - Recognize emotions A - Allowing emotions to be felt/ accepting them as what is I - Inspect/Investigate your emotions "why am i feeling this way?"” N - Nurturing yourself - "what do I NEED right now?" Great books to read: When Life Gets Hard by Russ Harris When Things Fall Apart by Pema Chodron Maureen Sanger, PhD is a psychologist with Tennessee Oncology providing counseling to cancer patients and survivors. She received her doctorate in clinical psychology from Vanderbilt University and trained at MD Anderson Cancer Center. Prior to joining Tennessee Oncology she was an Assistant Professor of Pediatrics at Vanderbilt University Medical Center where she worked with the cancer and sickle cell disease programs. Don't forget to subscribe and continue to listen in! ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight and Dr. Basil Williams to discuss Pros and Cons of Radiation to the Eye. Treatment options are covered, based on factors such as eye tumor location, size, possibility of retaining vision. Side effects of various radiation based treatments are discussed. The impact of a biopsy at time of treatment or before is discussed. Tune in and be sure to subscribe and share, plus make a contribution to keep our podcast going! Basil K. Williams Jr. MD is an Associate Professor of Ophthalmology at the Bascom Palmer Eye Institute, where he specializes in ocular oncology and vitreoretinal diseases and surgery. He completed his ophthalmology residency and vitreoretinal surgery fellowship at Bascom Palmer and served as a chief resident and co-director of ocular trauma there as well. He then completed an additional fellowship in ocular oncology at Wills Eye Hospital. Dr. Williams grew up in the Bronx, NY and received his Bachelor of Arts Degree from Yale University before attending The Chicago Medical School. Prior to joining Bascom Palmer, he was the Director of Ocular Oncology at the University of Cincinnati and held the Mary Knight Asbury Endowed Chair of Ocular Oncology. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

SPECIAL ANNOUNCEMENT! First up, it’s our 10th anniversary this month! All month long we’ve been sharing challenges on social media to invite you to share with 10 people about ocular melanoma. From now until April 30th, you can also be part of the YOU + 10 challenge for our Lookin for a Cure Walks! HOW IT WORKS? BEFORE April 30th, register for a Lookin' For a Cure 5k walk near you, or register virtually. Walks are happening between May and December. Name your team (the chance to do this is on the first page of the sign up)! Send a link to your team to family and friends to register with you! The 3 people with the largest teams will receive a gift card as a prize! Winners will be announced in the first week of May! REGISTER AT www.lookinforacure.org OR https://runsignup.com/w/ACureinSight You can obtain a copy of the first ever annual report for 2022 here: https://view.flodesk.com/pages/6435ce55c842f57cebceea87 WALKS BELOW: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight and Lisa Durbin, spouse and caregiver to Mike Durbin, an ocular melanoma patient in the metastatic community. The role of caregiver is discussed, as well as the toll this can take on a relationship, on the family as a whole. Tune in for an incredibly insightful and validating episode. You can connect with Lisa and Mark directly to discuss their alternative approaches to metastatic management and glean from their hopeful story here: https://www.facebook.com/ldurbin1 ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight host, Danet Peterson, as well as 3 other omies for "Enucleation 101," part 2 of a 2 part episode release covering the varying experiences of enucleation of 3 more patients, their tips for recovery, as well as their insights on the process as a whole. Discussion of the prosthetic eye is not covered but we have plans to cover an ocularist and a panel of adjusting to the experience of having a prosthetic eye. Panelists featured: Julie LeBlanc Lindsay (lind-SAY) Brown Kristen MacDonald Please share these 2 episodes with anyone considering Enucleation as a treatment path and be sure to subscribe to our podcast and newsletter to stay up to date! ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight and Dr. Dalvin and Dr. Moser for this special Rare Disease Day Webinar, recorded live on Feb 28, 2023. Are you RARE²? Ocular Melanoma affects 6 per million people each year. Of those diagnosed, children and minority communities (people of color, indigenous peoples, etc.) make up an even smaller percentage of the patient population. Dr. Lauren Dalvin and Dr. Justin Moser, who attended medical school together, were part of a discussion on the importance of awareness for rare diseases, and how they got involved in the work of ocular melanoma specifically. Dr. Lauren A. Dalvin is a full-time Ocular Oncologist and Associate Professor of Ophthalmology with a joint appointment in Medical Oncology at Mayo Clinic, Rochester, MN. Dr. Justin Moser is a medical oncologist and hematologist and associate clinical investigator at HonorHealth Research Institute. He treats patients in the area with uveal melanoma and other rare diseases. They discuss questions such as: What is it like being a physician of those with rare diseases? Why is a day like rare disease day an important day to spread awareness? Why did you get into ocular melanoma? What drew you as a physician to rare disease? How do you see the rare disease landscape changing in the future? What are registries and biobanks? Why are they important for rare diseases? PLUG FOR INSIGHT REGISTRY , living library, what is a bio bank? How often do you treat someone in a minatory group (like children, people of color, potential obstacles they face)? How do you reassure a patient with rare diseases that they will receive good care in your practice? This webinar is made possible by contributions from the EveryLife Foundation for Rare Diseases. The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

Join A Cure in Sight to discuss systemic therapies for metastatic uveal melanoma with Dr. Meredith McKean. We discuss when to use systemic therapies, what is out there besides KIMMTRAK, how to determine a path forward for introducing systemic therapies in metastatic management McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. During fellowship, McKean studied biomarkers for response to immune checkpoint inhibitors (ICI) in metastatic melanoma, earning her an American Society of Clinical Oncology 2017 Young Investigator Award. She now serves as the director for the Melanoma and Skin Cancer Research Program at the Sarah Cannon Research Institute at Tennessee Oncology. ANNOUNCEMENTS: Head to our site to register for a 5K Lookin’ for a Cure near you! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight to briefly interview Yvonne, Presley, and Kenny; patients who are some of the “rare among the rare” or the RARE² in honor of Rare Disease Day. Yvonne, Presley, and Kenny show their stripes by expressing what navigating their journey with ocular melanoma has looked like–and how that has differed from the mainstream community. Ocular melanoma is most commonly found in fair skinned, light eyed males over the age of 50 according to most statistics found online. These 3 patients demonstrate the statistics just don’t accurately depict those in our community who are here, living with OM, and who don’t “fit the mold” of the most common demographic diagnosed. Meet Yvonne Loggins-Colemen, diagnosed in 2020 with ocular melanoma by sheer chance; rare among the rare as a woman of African American descent. Meet Presley Jackson, diagnosed at the age of 13 with ocular melanoma, experiencing childhood eye cancer, and adjusting to the loss of vision and a great deal of uncertainty, while living as full of a life as a teen as he possibly can. Meet Kenny Rains, diagnosed at the age of 29, far younger than most, and tackling life with new passion and perspective after navigating an immense mental health struggle that his diagnosis triggered. ANNOUNCEMENTS: Head to our site to register for a 5K Lookin’ for a Cure near you! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight host, Danet Peterson, as well as 3 other omies for "Enucleation 101," part 1 of a 2 part episode release covering the varying experiences of enucleation of 4 patients, their tips for recovery, as well as their insights on the process as a whole. Discussion of the prosthetic eye is not covered but we have plans to cover an ocularist and a panel of adjusting to the experience of having a prosthetic eye. Panelists featured: Clay Butler (primary enucleation) Wendy Carpenter (enucleation after recurrence) Danet Peterson (host) (enucleation after eye deterioration) Alison Benjamin (primary enucleation) ANNOUNCEMENTS: Head to our site to register for a 5K Lookin’ for a Cure near you! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Anne Osborn demonstrates and teaches the "how to" behind meditation, and offers a variety of meditation tools to add to your toolbox for "taming your lizard brain" and why this is important in navigating an ocular melanoma diagnosis.

Join for a discussion on various levels of spirituality and how we make meaning of the circumstances in our lives.

Jennifer Drew will present on coping with your diagnosis and your new normal.

Kathy Doocy and Wendy Carpenter will discuss turning their talents into healing, and how they refused to allow ocular melanoma to limit their ability to practice their talents.

A Cure in Sight is joined by omie, Kathy Doocy, co-author of The Happy Cookbook, The Simply Happy Cookbook, and The Happy in a Hurry Cookbook. Kathy Doocy was previously the host of ESPN's Sidelines and worked at NBC. WHen Kathy and Steve got married and the kids came along, Kathy retired from her TV work to raise the family and preside as the Doocy family CEO and CFO, and she's enjoyed every single minute of it. Steve and Kathy have Three grown children who moved out and now miss their parent's delicious home-cooked meals every day. they live in New Jersey. Regarding the Happy Cookbook: "The year before we started this project, Kathy was diagnosed with ocular melanoma, an unbelievably rare and aggressive form of eye cancer. She was lucky that they caught it early and she was treated by Dr. Carol Shields and her team of specialists at the Wills Eye Hospital in Philadelphia. during her very first examination, Dr. Shields told Kathy, "I am going to save your life," and she did. During her recovery, while taking stock of her life as many do when they've gone through something that life-changing, Kathy vowed to make it her personal quest to leave her children a written record of the foods they grew up loving. They don't cook much now, but they will someday. This will always be a part of Kathy's legacy to Peter, Mary, and Sally, that whereever they travel in their lives, they'll always have a printed road map to their mom's signature suppers, provided they will actually cook and not order takeout on Uber Eats." ANNOUNCEMENTS: Steps for Sight donations are still being gathered–share to help us fund research! www.charityfootprints.com/SFS Head to our site to register for a 5K Lookin’ for a Cure near you! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join Danet, the Eye Believe Podcast Host, to discuss unrealistic timelines in a cancer diagnosis. Can you relate!? Make sure to share this episode with another omie today, and if you’re able, make a small donation to keep our podcast going! ANNOUNCEMENTS: Steps for Sight Registration is open! It’s not to late to join us this month! www.charityfootprints.com/SFS Eye on Mental Health 2023 is now open for registration! Head to the site below to register! Register at https://tinyurl.com/eyeonmentalhealth23 Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

A Cure in Sight is joined for a webinar titled: A Living Library for Uveal Melanoma with Dr. Lauren Dalvin, M.D. "Uveal melanoma is the most common intraocular cancer in adults. Despite successful treatment of the eye tumor, up to 50% of patients with uveal melanoma will eventually develop metastatic disease. Unfortunately, there are limited effective treatment options once this cancer has spread. Thus, there is an urgent need for new, personalized therapies to improve survival for patients with uveal melanoma. We have addressed a major barrier to uveal melanoma research, a lack of representative human disease models, by creating a unique biobank of patient-derived organoids. Organoids are three-dimensional models which simulate cancer behavior in the laboratory and can be used to study cancer biology and response to treatment. In both patients and in our laboratory, we find that each melanoma is unique. Using the collection of organoids in our lab, we will be able to study unique molecular signatures and identify personalized treatments for this cancer. Today we’ll talk about how we created these tiny tumor models and show you what it looks like to grow uveal melanoma in the lab." Dr. Lauren A. Dalvin is a full-time Ocular Oncologist and Associate Professor of Ophthalmology with a joint appointment in Medical Oncology at Mayo Clinic, Rochester, MN. ANNOUNCEMENTS: Steps for Sight Registration is open! It’s not to late to join us this month! www.charityfootprints.com/SFS Eye on Mental Health 2023 is now open for registration! Head to the site below to register! Register at https://tinyurl.com/eyeonmentalhealth23 Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

The Eye Believe Podcast host, Danet Peterson, shares tips for navigating triggering dates throughout your diagnosis. ANNOUNCEMENTS: Steps for Sight Registration is open! It’s not to late to join us this month! www.charityfootprints.com/SFS Eye on Mental Health 2023 is now open for registration! Head to the site below to register! Register at https://tinyurl.com/eyeonmentalhealth23 Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

A Cure in Sight is joined by Reagan Lambert, an omie hailing from Horseshoe Bay, Texas, who was diagnosed in October 2016 with choroidal melanoma. He shares some incredible insights on making meaning during this diagnosis, as well as how his faith in god to come allows him to live fully. “In October of 2016, I made an appointment with my Optometrist to check flashes I was experiencing in my right eye. After the exam, he said it looked like I had a retina tear. He wanted to make sure, so he sent me to a retina specialist in Austin Texas for additional tests. After a few tests, they determined that I could possibly have an eye tumor, but they wanted to send me to another of their offices for further testing with more specialized equipment. It was then determined that I had a Choroidal Melanoma. I had heard of and actually had a skin melanoma on my back but had never heard of this kind of cancer. They told me what needed to be done and what the procedure would be. They said that they could do the procedure. I asked them how many they had done? I would be their first. That set in motion my search for the person to do the procedure. After some really cool things fell into place, we ended up in Philadelphia.” Tune in to hear more! ANNOUNCEMENTS: Steps for Sight Registration is now open! Join us this month to take steps for ocular melanoma and raise over 100K for research! Start your team today--it's not too late to join us! www.charityfootprints.com/SFS Eye on Mental Health 2023 is now open for registration! Head to the site below to register! Register at https://tinyurl.com/eyeonmentalhealth23 Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

STEPS FOR SIGHT 2023 is now open! www.charityfootprints.com/SFS is where to go to get started! Tune in for what the movement is about, and how you can get involved! Our challenge to you? Register! And then call or text at LEAST one other OM friend to encourage them to join your team or create their own! Grab your friends and Family and let’s walk towards a cure for Ocular Melanoma! We are challenging you to join individuals from around the world by taking 7,000 steps every day in the month of January, with each step representing the 7,000 Ocular Melanoma patients that are diagnosed yearly worldwide. Walk with us not only for a healthier start to your new year, but also for progress in Ocular Melanoma research! Currently there is no cure, but with your help, we could move closer to finding one. As you participate in Steps for Sight, every step you take will get us closer to funding the critical research needed for a cure. A Cure In Sight is partnering with the Melanoma Research Alliance (MRA) in 2023, to maximize the benefits from the funds raised. The money we raised last year will be matched by MRA to fund a 2-year research grant for Ocular Melanoma. Grant proposals have been received and are currently undergoing the MRA’s meticulous grant review process. Once proposals have been approved, A Cure In Sight will work with MRA to jointly issue the grant award and make the announcement in Spring 2023. This year with your help, we can fund another actionable research project exclusively for Ocular Melanoma ANNOUNCEMENTS: Steps for Sight Registration is open! Register at www.charityfootprints.com/SFS Give the gift of YOUR unique OM story by joining the INSIGHT Registry today and completing your first survey! Head to insight.iamrare.org to get started or continue your surveys! Subscribe to the newsletter to stay in the know! Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

A Cure in Sight is joined by Greg Hobbs, aka the one-eyed fly guy. He is a renowned disc golfer who has refused to let being one-eyed hold him back from playing the game he loves, while sharing about OM in the process! Here’s a little of Greg’s story—we’re excited to chat with him this next week! “July 17, 2013 I noticed my vision was a little weird. I went to my eye doctor on Thursday and he sent me to a specialist on Friday. He saw it and said he wanted it out that day. I wanted a second opinion. I went to the second opinion on Monday and he said the 1st doctor was correct. So I went to a surgeon on Tuesday, talked with them and got the surgery for eye removal on Wednesday. I got the results after the eye was sent off to the laboratory that it was a stage 4. I was lucky everything worked out for me. Today, I'm 9 years cancer free.” Tune in and don’t forget to subscribe, share, and donate below if you can to keep our podcast going! ANNOUNCEMENTS: Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know! Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

2 part session: Join the following three physicians as they discuss new advances in treatment of uveal melanoma of the eye. This session was sponsored in part by Aura Biosciences. They discuss the following: -RADIATION RETINOPATHY -Pars plana vitrectomy (PPV) with diode -ENDORESECTION -ADVANCES IN TREATMENT OF THE EYE (Aura presentation) Dr. Scott Walter, a practicing ophthalmologist in Hartford, Connecticut and is affiliated with Hartford Hospital. Dr. David Reichstein, an ocular oncologist, who studied at the renowned Wills Eye Hospital here from Tennessee Retina. Dr. Peter Hovland, who specializes in vitreoretinal disease & surgery, and ophthalmology, here from Colorado Retina. At Aura, our mission is to develop a new class of oncology targeted therapies that deliver meaningful therapeutic benefit to a range of cancer indications with high unmet need in which we believe we can establish a new standard of care. We are driven by our passion and commitment to science and the patients battling cancer who are relying on us to pioneer these new therapies. Second half of episode: Understanding Genetics Testing with Castle Biosciences Join Dr. Reichstein, Dr. Hovland, and Dr. Walter for a discussion on genetics in uveal melanoma. This session is brought to you by Castle Biosciences. Castle Biosciences develops and commercializes diagnostic and prognostic tests for dermatologic cancers. These tests provide clinically actionable, tumor-specific genomic information to enable more accurate treatment plan decisions. They believe that the traditional approach to developing a treatment plan for dermatologic cancers using clinical and pathology factors alone is inadequate, and can be improved by incorporating personalized genomic information.

A Cure in Sight is joined by Dr. Marlana Orloff, MD, for a brief but highly informative discussion on liver-directed therapies when navigating metastatic disease. Dr. Marlana Orloff is an associate professor of medicine and medical oncologist at Thomas Jefferson University Hospital – Sidney Kimmel Cancer Center in Philadelphia, PA. In this discussion, Dr. Orloff shares a few slides (you can find those attached at the link below!) talking about the different types of LDT (liver directed therapies) and how they are used, how effective they are proving in certain cases, and also takes about 10 minutes at the end to answer questions! Get ready for a wild ride but it’s so exciting to see there really are SO many options out there for treatment of this disease. All we want for Christmas is a cure omies–let’s be sure to share and ask our communities for donations to ACIS to help create that reality for as many patients as possible! ANNOUNCEMENTS: Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know! Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

A Cure in Sight is joined by Alec Mackenzie, a patient diagnosed 3 years ago with ocular melanoma. Alec recently participated in the #lookinforacure walk for OM in Santa Monica and was the top fundraiser of the event! We're so excited to have him on live to share his journey and why he started "The One-Eyed Cooking Show." Alec’s story: “I had absolutely no warning in terms of diagnosis. I’m not one of those people who had any symptoms. Things were fine, we went away for a long weekend, and on that Sunday morning I woke up half blind in one eye. It just happened overnight with no warning. I thought it was pink eye, but the next day I went to the doctor who instantly referred me to an ocular oncologist once he saw what was going on. I was officially diagnosed the next day with a very large OM tumor. It turns out it had grown so large that it had detached my retina partially, and that’s why I could only see through half of my eye. I had the eye enucleated about three weeks later. That was just over three years ago. These days I am trying to lead as normal a life as possible with my monocular vision. I am a full-time eighth grade English teacher, and I have two kids who are 16 and 10. I have a very supportive husband who is there through the emotional ups and downs, scan days, doctors appointments, etc. A few months after my diagnosis, I realized how poorly I had been treating my body. I don’t think that’s what caused the cancer, but it certainly didn’t help. I was eating too much junk food, not taking care of my sleep habits, not dealing with my own mental health, and not getting any exercise. I made the decision to overhaul my lifestyle, get back into running little by little, and try out eating 100% vegan. After a few months of eating vegan, I realized that just buying vegan foods from the frozen section was just as unhealthy as eating the regular animal-based products, so I started finding recipes online that were only made from fresh, healthy, vegan ingredients. I started posting silly stuff on Facebook about me spilling things or cutting in crooked lines while I cooked those recipes, but people seemed very focused on the actual recipes themselves. That started me posting what I was cooking on Facebook and linking the recipe I had found online. That turned into my friends and family telling me that I should make some cooking videos and other content around what it’s like to have OM, what OM is, etc. I started the One-Eyed Cooking Guy to show people how easy it is to cook healthy, delicious vegan meals…even if it’s only once or twice a week! Mixed into the recipe videos I also add in content about OM so people can be aware, and I also throw in some silly, stupid short things because I want people to know I have a sense of humor about it all as well.” Tune in and don’t forget to subscribe, share, and donate below if you can to keep our podcast going! ANNOUNCEMENTS: Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know! Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

In this session, fellow ocular melanoma patient Dr. Terry Watson teaches how to use the telling of your story to aid in the healing journey after a traumatic diagnosis. Dr. Terry Watson is a graduate of the University of Louisville School of Dentistry and the owner of Midtown Smiles here in Nashville, Tennessee. He received specialized training in cosmetic dentistry, dental implants, orthodontics, and facial pain therapy. He serves on the faculty for the Tennessee College of Applied Technology’s Dental Assisting Program and has regularly received the Best Dentist Award. Dr. Watson has a passion for improving his patients lives through cosmetic dentistry and enjoys building real relationships with his patients. Diagnosed with choroidal melanoma in his right eye in 2017, Dr. Watson found himself on the other side of the doctor-patient encounter. Upon beginning his treatment, Dr. Watson found help in journaling his journey. He finds purpose in giving back to the community and is an active member of Kiwanis International and a 26-year member of the AWANA Clubs of America. He cherishes time with his wife and two daughters and in his free time is likely to be found outdoors hunting or fishing. Dr. Watson is driven to not let his diagnosis slow him down and hopes that sharing his story will help current and future patients with ocular melanoma.

Join fellow omie, Anne Osborn, as she helps patients navigate "What we can expect of our friends after an OM diagnosis." Welcome our friend Anne Osborn helping us to understand What we can expect of our friends after an OM diagnosis. Anne Osborn, Author, as a teen grew up in the shadows of OM when her mother died of OM. Forty years later, she was diagnosed with OM, Class 2. Anne spent her career in human services, trained as a psychotherapist. Her specialties include initially being a children’s therapist specializing in needs impacting the ability to learn in education. Simultaneously she began leading an emergency team for law enforcement and fire personnel over nearly three decades, ‘when bad things happen to them, we go in’. Managing her stress was with long distance, both in running and bicycling. Though now, as a Master Gardener time is spent in Nature. Her passion outside of family and friends includes travel, writing and being of service. Her book, Coping with Ocular Melanoma: A Toolbox is published with proceeds going to ACIS.

Welcome to your Track 2 session for 9am! In this session you will hear from Dr. John Pino in a talk about low vision. Dr. John Pino has been providing primary eye care for 36 years. As clinical director of one of the largest Optometric practices in Tennessee, Dr. Pino focuses on providing the latest technology to his patients. He is a member of both the American Optometric Association and the Tennessee Optometric Association. Dr. Pino is also a fellow of the International Academy of Low Vision Specialists, an elite group of only 39 professionals worldwide. He is passionate about helping people regain their ability to perform certain visual tasks like driving, reading, or watching television. Dr. Pino also holds a Ph.D. in the field of nutrition. He places great emphasis on the importance of nutrition with his patients. As a cancer survivor, he is passionate about empowering people to live healthier and happier lives. He is also a Professional Health Coach, and he enjoys lecturing and doing research in the field of nutrition. Dr. Pino and his wife, Ree, and his dog, Happy, reside in Lebanon,Tennessee, where he practices.

In this session from our second track, Joanna from Triage Cancer discusses navigating insurance. Thank you Triage Cancer for your invaluable information. Joanna is a cancer rights attorney, speaker, and author, dedicated to improving access to and availability of quality information on cancer survivorship issues. Monica is the co-founder and Chief Executive Officer for Triage Cancer, a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. Throughout her career, Monica has provided hundreds of educational seminars, written articles, blogs, and co-authored a book published by the American Bar Association called Cancer Rights Law: An Interdisciplinary Approach. For further resources on navigating insurance, see the following past presentations: Understanding Health Insurance (October 2022) Medicare: An In-Depth Look (September 2022) (CC) Decisions About Work: Accommodations, Leave, Disability, & Retirement (July 2022)

Join 5 patients as they discuss their ocular melanoma diagnosis, and some of the struggles, and the strange but welcome gifts that have come despite their diagnosis. Patients participating: Mike Stansbury - diagnosed Dec 2018, metastatic June 2021 Julie Le Blanc - Diagnosed Sept 2018, metastatic in March 2022 Laura Cunningham - Diagnosed June 2013, metastatic in Dec 2013 Steve Durrant - Diagnosed Spring 2017, NED Danet Peterson (your host) July 2020, metastatic in Nov 2022 Tune in for an amazing insightful interview.

Join Dr. David Reichstein of Tennessee Retina to discuss what to expect in your eye after treatment. Dr. Reichstein is a graduate of the world's premier Ocular Oncology Fellowship at Wills Eye Hospital, under the direction of Drs. Jerry and Carol Shields. Dr. Reichstein's interests include the diagnosis and management of patients with all types of ophthalmic tumors, including uveal melanoma or nevus, retinoblastoma, vitreoretinal and choroidal lymphoma, vascular tumors of the posterior segment, and choroidal metastases. He also has expertise in the management of anterior segment tumors including conjunctival melanoma, conjunctival or corneal intraepithelial neoplasia, and squamous cell carcinomas of the anterior segment. Dr. Reichstein's therapeutic expertise includes the use of topical and systemic chemotherapy, surgical management of ophthalmic tumors, and radiation using brachytherapy or external beam radiation.

In this session, Dr. Reichstein, Dr. Schefler, Dr. Hovland, and Dr. Walter will be discussing "Standards of Care for Uveal Melanoma, are there any?" Topics addressed include: - NCCN/TNM Staging & guidelines -Types of Plaque/Proton Beam Treatment -Transpupillary Thermotherapy (TTT) alone (and why we shouldn't do it) Dr. David Reichstein, an ocular oncologist, who studied at the renowned Wills Eye Hospital here from Tennessee Retina. Dr. Amy Schefler, ocular oncologist and renowned eye cancer researcher from Houston Retina, joining us virtually. Dr. Peter Hovland, who specializes in vitreoretinal disease & surgery, and ophthalmology, here from Colorado Retina. Dr. Scott Walter, a practicing ophthalmologist in Hartford, Connecticut and is affiliated with Hartford Hospital.

Join Dr. Justin Moser and Dr. Meredith McKean to learn more about the approval of KIMMTRAK and what this means for you as a patient, whether you are HLA-0201 positive and qualify for this treatment drug, or if you do not and wonder what is out there treatment wise for you. Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He leads the Melanoma program at HonorHealth Research Institute, and runs one of the only programs dedicated to uveal melanoma in Arizona. Dr. Meredith McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. McKean completed her fellowship in Hematology-Oncology at the University of Texas MD Anderson Cancer Center. She now serves as the associate director for the Melanoma and Skin Cancer Research Program at the Sarah Cannon Research Institute of Tennessee Oncology.

Join Dr. Justin Moser and Dr. Meredith McKean, together with Dr. Sanger to discuss navigating an ocular melanoma mets diagnosis. Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He leads the Melanoma program at HonorHealth Research Institute, and runs one of the only programs dedicated to uveal melanoma in Arizona. Dr. Meredith McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. McKean completed her fellowship in Hematology-Oncology at the University of Texas MD Anderson Cancer Center. She now serves as the associate director for the Melanoma and Skin Cancer Research Program at the Sarah Cannon Research Institute of Tennessee Oncology. Maureen Sanger, PhD is a psychologist with Tennessee Oncology providing counseling to cancer patients and survivors. She received her doctorate in clinical psychology from Vanderbilt University and trained at MD Anderson Cancer Center. Prior to joining Tennessee Oncology she was an Assistant Professor of Pediatrics at Vanderbilt University Medical Center where she worked with the cancer and sickle cell disease programs.