The Eye Believe Podcast

Tune in to hear a patient panel on "What to do when you’re just fed up and DONE with OM," moderated by Dr. Danielle Archer. Dr. Danielle Archer is a licensed mental health therapist and stage IV cancer patient. She utilizes her clinical experience and her cancer journey to help cancer patients manage their mental health before, during and after treatment. Dr. Archer also works with oncology professionals to understand the importance of incorporating mental health into their treatment plans. Danielle's area of expertise includes trauma, grief, depression, and anxiety with a special emphasis of treating individuals who have eating disorders pre cancer diagnosis. Our patient panel will include Loren Seamon, Vice President of the Board and 20+ year OM survivor, Wendy Carpenter, an OM patient who has survived a recurrence of her eye tumor, and Jack O’Dell, a surviving OM patient who has beat the statistics back against a wall. we’re excited to have this discussion together on what exactly can you do to put boundaries between yourself and the diagnosis that you live with so you can be present with everyday life. Email questions to [email protected]

Tune in to hear more about what is palliative care and how to choose between palliative care and hospice, and when to call each of them. Ted Dropcho, MD, is a Palliative Care physician practicing at Virginia Mason Medical Center in Seattle. He serves patients with serious illness and their families. He finds meaning in his work through focusing on patients’ priorities and values to help navigate their courses with serious illness. He and the other members of the palliative care team give additional support to patients and their care networks, and they treat symptoms to improve quality of life. He trained in Internal Medicine at Indiana University before coming to University of Washington for his Hospice and Palliative Medicine Fellowship. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

The first speaker, Gary Barg, spoke on the role of caregiving in a cancer diagnosis. A noted speaker, writer and publisher on caregiving issues since 1995, Gary Barg is Founder and Editor-In-Chief of the first national magazine for caregivers, Today’s Caregiver, as well the original online caregiver community, caregiver.com. Today’s Caregiver magazine and caregiver.com combine information, advice and reader’s stories with interviews with celebrity caregiver such as Leeza Gibbons, Rob Lowe, Dana Reeve, Barbara Eden and Debbie Reynolds, among others. Gary created The Fearless Caregiver Conferences, hosted across the country, which brings together caregivers to share their knowledge and experience and wisdom. His books include, The Fearless Caregiver, Caregiving Ties that Bind, and You Are Not Alone. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Our final session covers metastatic disease. First, you will hear from Dr. Hall about finding and treating metastases, then from Lucinda Innes about current and upcoming clinical trials, and finally you will hear from Dr. Brechbiel about family and patient coping with a mets diagnosis. Dr. Evan Hall is an oncologist at Fred Hutch who specializes in treating patients with skin and kidney cancers. His research focuses on ways to measure and improve quality of life for patients with cancer. Dr. Brechbiel is a clinical psychologist at Fred Hutch Cancer Center. Her grandfather’s legacy influenced her to work with people who were living with serious medical conditions or acquired new disabilities to help them learn to live with it instead of against it. In 2021, Lucy Innes began to pursue her PhD at Weill Cornell Medicine in New York City. During her first year there, she was diagnosed with Ocular Melanoma. Since her diagnosis in the fall of 2022, Lucy has been delving into the interactions between the immune system and ocular melanoma, aiming to improve the future of immunotherapies. This session is brought to you by Immunocore. "Immunocore is a pioneering, clinical-stage T cell receptor biotechnology company working to develop and commercialize a new generation of transformative medicines to address unmet needs in cancer, infection and autoimmune disease. Their initial therapeutic focus is in oncology, where pivotal clinical trials are currently underway for their lead program, tebentafusp, as a potential treatment for metastatic uveal melanoma, a rare form of eye cancer. We thank them for being a return sponsor for the Eye Believe Survivorship Seminar." Email questions regarding this session to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

This session is brought to you courtesy of sponsorship by IDEAYA Biosciences. "IDEAYA is a precision medicine oncology company with deep research and development expertise in synthetic lethality. We are passionately pursuing the discovery and development of targeted therapeutics for patient populations selected using molecular diagnostics. IDEAYA has a world-class team of leading scientists and advisors with extensive knowledge and expertise in cancer biology, small molecule drug discovery, translational biology and clinical development." This session, you will hear from Dr. Stacey, about what we know about prognosis at the time of diagnosis, Dr. Bhatia about screening protocols and using prognostic information, and then Dr. Brechbiel about coping with high risk features and poor prognosis. Andrew Stacey, M.D., M.S., is an Ophthalmologist at the Eye Institute at Harborview and a UW assistant professor of Ophthalmology. Dr. Bhatia is medical oncologist at Fred Hutch Cancer Center who specializes in the care of patients with advanced skin cancers that generally require systemic surveillance and therapy. Dr. Brechbiel is a clinical psychologist at Fred Hutch Cancer Center. Email questions regarding this session to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to hear from Todd and Tawnya Cranmore, board certified ocularists who share about Prosthetics 101 - understanding how a prosthetic is made, how to care for it, etc. Todd Cranmore is a Licensed Ocularist in Washington State, a Board Certified Ocularist (BCO) and a Board Approved Diplomate Ocularist (BADO). Combining medicine, artistry and engineering, Todd creates an amazing replica of the natural eye. Along with his education in ocular prosthetics, he has earned a degree in biochemistry from the University of Washington. Todd loves hanging out with his family, prefers to be out on the water boating and especially loves wake surfing. Tawnya Cranmore is an Apprentice Ocularist combining her creativity and compassion to care for others. She is a graduate of the University of Washington with a Bachelor of Arts degree. She values the opportunity to partner with her husband Todd and the whole team through the rewarding work at Northwest Eye Design. She enjoys being with friends & family, game nights, volunteering, walks and hikes. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Share this with your newly diagnosed omies friends--A Cure in Sight is joined by Dr. Andrew Stacey, Dr. Binkley, and Dr. Nguyen to discuss ocular treatments and side effects. A special thanks to Aura Biosciences for sponsoring this session. Their clinical trial is noted by Dr. Binkley in this session. At Aura, their mission is to develop a new class of oncology targeted therapies that deliver meaningful therapeutic benefit to a range of cancer indications with high unmet need in which they believe they can establish a new standard of care . They are driven by a passion and commitment to science and the patients battling cancer who are relying on them to pioneer these new therapies. Andrew Stacey, M.D., M.S., is an Ophthalmologist at the Eye Institute at Harborview and a UW assistant professor of Ophthalmology. Dr. Stacey knows an appointment with your doctor can be stressful. He enjoys teaching patients about what he sees in their eyes and providing them with information and options. Dr. Stacey earned his M.D. at Ohio State and his M.S. at Brigham Young University, where he was a linebacker on the football team. He has authored many publications and book chapters related to ocular tumors and maintains numerous national and international research collaborations in the field. Dr. Binkley is an ophthalmologist at the University of Iowa Hospitals & Clinics. Dr. Binkley completed her Vitreoretinal Surgery Fellowship in 2016 and Retina Clinical and Molecular Research Fellowship in 2017 at the University of Iowa Department of Ophthalmology and Visual Sciences. Dr. Nguyen was born and raised in Saigon, Vietnam. He moved to sunny California at the age of 19 to pursue higher education. He attended University of Wisconsin School of Medicine on a full scholarship then completed his Ophthalmology residency at the University of Washington where he conducted extensive research in uveal melanoma with Dr. Andrew Stacey. After residency, he received more vigorous training in Cornea and External Disease at the world-renowned UCSF/F.I. Proctor Foundation. Dr. Nguyen is currently providing expertise care for patients in San Diego, California. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight event host Danet Peterson to hear from Dr. Chen and Dr. Bowen on radiation basics. Understanding how a plaque is made, how radiation treatment is determined, and everything that goes into treating melanoma in the eye. Dr. Chen; I am a board-certified radiation oncologist who specializes in caring for patients with ocular melanoma, the most common type of eye tumor, and genitourinary cancers (GU), which affect the urinary tract and male reproductive system. My expertise includes using proton therapy, a type of targeted radiation therapy that minimizes radiation exposure to healthy tissue. At UW Medicine, I research ways to improve treatments for GU cancers, such as prostate cancer, as well as ocular melanoma. Prior to joining Fred Hutch, I completed a PhD in pharmacology and served as chief resident at New York-Presbyterian Hospital. Dr. Bowen Dr. Bowen trained at the prestigious Cleveland Clinic in ophthalmic oncology and then completed advanced retinal surgery training at the University of Iowa. He is a member of the Society of Heed Fellows, a distinguished organization that supports the advancement of ophthalmic research and education. In recognizing the emotional and physical trauma this diagnosis brings patients and their families, his goal is to bring hope through cutting edge treatment modalities, research in bio-innovation, and strong interdisciplinary collaboration with Northwestern Medicine’s team of experts. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

First up today you'll hear from Dr. Dennis Stacey, the father of Dr. Andrew Stacey. He will talk about the biology of cancer. Then you'll hear more from Dr. Andrew Stacey on the Biology of Uveal Melanoma. Finally you will hear from Dr. Lucinda Innes about different melanomas, different immunities. Dennis Stacey PhD. As a cancer researcher, Dennis has witnessed the explosion of information related to the causes and treatments for cancer. Since the 1980s his laboratory has focused on understanding how cell division is controlled. This laboratory participated in some of the critical observations upon which our basic understanding of cancer growth is based. Currently, his laboratory in Cleveland OH is focused upon identifying a novel cancer treatment strategy, based upon observations made in his laboratory. Andrew Stacey, M.D., M.S., is an Ophthalmologist at the Eye Institute at Harborview and a UW assistant professor of Ophthalmology. Dr. Stacey knows an appointment with your doctor can be stressful. He enjoys teaching patients about what he sees in their eyes and providing them with information and options. Dr. Stacey earned his M.D. at Ohio State and his M.S. at Brigham Young University, where he was a linebacker on the football team. He has authored many publications and book chapters related to ocular tumors and maintains numerous national and international research collaborations in the field. "Lucy was born and raised in Seattle and attended Western Washington University, where she earned her degree in biochemistry. In 2021, she pursued her PhD at Weill Cornell Medicine in New York City. During her first year there, she was diagnosed with Ocular Melanoma. This personal challenge inspired her to redirect her research focus towards the disease. Since her diagnosis in the fall of 2022, Lucy has been delving into the interactions between the immune system and ocular melanoma, aiming to improve the future of immunotherapies." Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Meet Steven Russel, a 15+ year ocular melanoma survivor. Steven approached A Cure in Sight and asked us to help create a fundraiser page for him to let the voting public decide: Come March 3, 2024, should the beard stay and GROW or shave and GO!? YOU decide! Help us share posts about Steven's Let it Grow or Go campaign to raise funds for ocular melanoma. Funds raised benefit A Cure in Sight and go to patient program support and research! Vote at the link below and SHARE SHARE SHARE to get your friends and family involved in the voting competition too! https://acureinsight.org/let-it-grow-let-it-go ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

A Cure in Sight is joined by guest, Dr. Darrin Beaupre, Chief Medical Officer at IDEAYA Biosciences. He tells the story of his history in the field of cancer, molecular biology research, and where he is currently with his research at IDEAYA. He fiercely conveys the passion and drive of IDEAYA Biosciences as a whole to develop and fine tune novel therapies in the realm of cancers, touching specifically on their story in uveal melanoma. They are a company devoted to thinking outside the box, pivoting and adjusting their hard work as a team, and trusting that their combined efforts and scientific methods will yield the desired results. You can find the exciting ESMO 2023 data presented at this link. Check out their website: https://www.ideayabio.com/ Learn more about darovasertib here: https://www.ideayabio.com/pipeline/#darovasertib ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to interview guest, Heather McMenamin, a patient originally from England, currently living in Houston, TX, and diagnosed with ocular melanoma in 2021. “I went for my annual eye exam 9-22-21, (because of COVID it was actually 18 months since my previous eye exam, normally done every year). I was asymptomatic and more concerned about what new frame I might pick out. The doctor was quite concerned about the large mass in my left eye and said I needed to see a retina specialist STAT. I was able to get an appointment for the next morning at which time the doctor dilated my eyes and very quickly said I needed to see an Ocular Oncologist - he did not give me a diagnosis but at this point I knew it was serious. I was referred to Dr. Amy Schefler and got an appointment 9-29-21. After hours of testing she diagnosed me with Uveal Melanoma. I had Brachytherapy 11-01-21, plaque was in for 7 days. That was an odd experience to look back on. I just had my 2nd year anniversary and so far no sign of METS, next scan 10-19-23 and I began eye injections last month as I have signs of retinopathy.” If you take anything from Heather’s episode, we hope you glean that knowledge is so empowering as a patient, and that the knowledge you share with others to help spread awareness makes such a key difference. You can find Heather on facebook, and also in the Houston area if you head to the Houston 5K coming up on Dec 10th! Her favorite song referenced in this episode is “Take Me Home Country Roads.” ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to interview Dr. Jesse Berry for this episode chosen and sponsored by Castle Biosciences - the topic? Eye exams and early detection - does finding OM earlier REALLY make a difference? In what ways? Jesse L. Berry, MD is a board-certified ophthalmologist with subspecialty training in ocular oncology. She received her undergraduate and medical degree from Harvard University in Massachusetts. Following her ophthalmology residency at the University of Southern California, she was the Assistant Chief of Service at the Los Angeles County Medical Center. She completed a fellowship in Ocular Oncology at Children’s Hospital Los Angeles. She currently serves as the Vice Chair for Academic Affairs for the Department of Surgery and Director of Ocular Oncology at the Vision Center, CHLA. Dr. Berry actively treats patients with retinoblastoma, uveal melanoma, intraocular and ocular surface tumors. She is active academically within the broader field of ophthalmology and ocular oncology. She is the Vice President for the International Society of Ocular Oncology and was the conference chair for the biennial meeting in Los Angeles in 2019. She is an active advocate for mentorship and opportunities for young ophthalmologists. As such, she is a member of the Young Ophthalmologist committee through the American Academy of Ophthalmology and co-leads the committee for young ophthalmic oncologists and pathologists (YOOPs). Dr. Berry is active within the Women in Ophthalmology organization and is the founder of WOO, Women in Ocular Oncology. As a physician-scientist, Dr. Berry studies outcomes for retinoblastoma, melanoma and other tumors. Her main interest is the development of the aqueous humor as a liquid biopsy for retinoblastoma and other intraocular disease. She was awarded a K08 from the National Cancer Institute of the National Institute of Health in 2018 to further study this. In 2019 she was promoted to Associate Professor of Ophthalmology, Clinical Scholar, a special distinction provided by USC. In 2021 she was awarded the prestigious USC Faculty Mentoring Award. She currently holds the USC Berle & Lucy Adams Chair in Cancer Research. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join event host and fellow patient Danet Peterson to chat with a few other omies on how they have coped with their diagnosis. Patients on the panel include Carrie Younger-Howard and Linda Boran. Reach out to [email protected] if you have interest in being part of a panel discussion on the podcast or at a future event. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join Melody Burchett, founder and President of A Cure in Sight, with communications and events coordinator, Hanna Hulick to discuss the INSIGHT Registry. This is a unique rare disease patient registry. insight.iamrare.org The INSIGHT Registry is an online registry for patients with Ocular Melanoma (OM). It will be hosted by the National Organization for Rare Disorders (NORD); an independent non-profit patient advocacy organization dedicated to individuals with rare diseases and the organizations who serve them and as such is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. The registry will collect information from participants, (or their authorized respondents, heretofore referred to collectively as “participants”), who are affected by Ocular Melanoma. join the registry today: insight.iamrare.org reach out to [email protected] for support with the registry. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

An interactive presentation by fellow patient, Anne Osborn, who discusses the benefits of meditation on whole body health and in aiding patients in coping with ocular melanoma. Anne Osborn, Author of the book, Coping with Ocular Melanoma: A toolbox, grew up in the shadows of OM when her mother died of OM. Forty years later, she was diagnosed with OM, Class 2. She spent her career in human services and trained as a psychotherapist. Her passions outside of family and friends include travel, writing, and being of service. Her book, Coping with Ocular Melanoma: A Toolbox is published and available for purchase at the store. All proceeds from her book go directly to patient care. contact Anne: [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Welcome to this year's Eye Believe 2023 Survivorship Seminar recording series. A discussion on Integrative Medicine and Ocular Melanoma with Blake Langley. Dr. Blake Langley is a licensed naturopathic physician and acupuncturist studying the impact of acupuncture therapies on quality of life and clinical outcomes in patients receiving active treatment for various cancers. As a Staff Scientist at the Fred Hutchinson Cancer Center, Dr. Langley works administers acupuncture for multiple clinical trials and serves as the principal investigator for an NCCIH-funded clinical trial assessing the use of ear seeds in outpatient settings. Dr. Langley is passionate about conducting research that supports increased patient access to integrative therapies nationwide. Learn more at https://www.fredhutch.org/en/patient-care/services/integrative-medicine.html email Dr. Langley [email protected] Our seminar this year was brought to you by Castle Biosciences and co-hosted by University of Washington Eye Institute, and Fred Hutch Cancer Center, and the Ocular Melanoma Foundation. This year's sponsors include Aura Biosciences, Immunocore, IDEAYA, Delcath Systems, Trisalus Life Sciences, North West Eye Design, and Replimune. Special thanks to our hosting doctor, Dr. Stacey, and all speakers and participants who made this possible. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Alrighty friends--the game is on! See the pic for details on our recipe book fundraiser, how to submit a recipe, and how you could win one of the drawings for prizes! We want recipes from ANYONE and everyone in the OM community world wide--keep it super simple or get fancy. Share with patients, caregivers, physicians, pharma reps--we want to create a special legacy in the #ocularmelanoma community! 𝐑𝐞𝐜𝐢𝐩𝐞𝐬 𝐜𝐨𝐥𝐥𝐞𝐜𝐭𝐞𝐝 𝐮𝐧𝐭𝐢𝐥 𝐦𝐢𝐝𝐧𝐢𝐠𝐡𝐭 𝐨𝐧 𝐍𝐨𝐯 𝟏𝐬𝐭 𝐬𝐨 𝐰𝐞 𝐜𝐚𝐧 𝐚𝐢𝐦 𝐟𝐨𝐫 𝐚 𝐜𝐨𝐨𝐤𝐛𝐨𝐨𝐤 𝐫𝐞𝐚𝐝𝐲 𝐟𝐨𝐫 𝐨𝐫𝐝𝐞𝐫𝐢𝐧𝐠 𝐚𝐬 𝐚 𝐡𝐨𝐥𝐢𝐝𝐚𝐲 𝐠𝐢𝐟𝐭! Submit a recipe here: www.tinyurl.com/ACIScookbook

Join A Cure in Sight to visit with Dr. Kristie Nguyen, an optometrist, who explains the reasons eye exams are important. Share this episode with those in your community still skeptical of if they should have both dilation and photos taken of the eye for a routine comprehensive eye exam. #nationaleyeexammonth is August, and we are grateful to Dr. Kristie helping to spread awareness for eye exams with us! Dr. Kristie Nguyen is an optometrist from Orlando, Florida Follow her on Instagram: @dr.kristienguyen ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight as we interview Patricia Daly, an OM survivor and nutritional therapist. She shares her personal journey with ocular melanoma, including a recurrence of her tumor in her eye and local orbital spread, and how she began a journey to healing her body’s metabolic system, one small step at a time. “Patricia was diagnosed with a 15.2-mm large choroidal melanoma in 2008. Following plaque radiotherapy under Professor Bertil Damato in Liverpool, she responded well to the treatment but not even two years later suffered a recurrence. The original tumour now measured 18.3mm and there was also local spread with an extraocular tumour of 6.2mm, called "extraocular extension" (stage T4e). Patricia was treated with proton beam therapy in Clatterbridge. Another two years on, in 2012, there was renewed tumour activity and excessive angiogenesis- and this was the moment she opted out of further treatment and embarked on a metabolic health journey, which is an ongoing process for her. Patricia Daly is an experienced and internationally recognized nutritional therapist (MSc, dipNT, mBANT, rCNHC) specializing in the personalized application of ketogenic metabolic therapies for recovery from chronic health challenges. She credits the ketogenic lifestyle for successfully quieting an aggressive eye tumour she was diagnosed with fifteen years ago. In 2021, she completed her MSc degree in "Advanced Nutrition in Research and Practice" at Middlesex University in London. Patricia is co-author of The Ketogenic Kitchen, a best-selling cookbook that includes meal plans for therapeutic carbohydrate restriction. Born in Switzerland and living in Ireland, Patricia is a proud founding and advisory member of the European Keto Live Center based in Switzerland. She regularly speaks at international conferences and has established herself as one of the leading practitioners in the field of metabolic therapies. Nothing makes her prouder than witnessing her clients transform from bystanders to active and empowered participants on their health journey." Find more free resources at her site here: https://patriciadaly.com/ Learn about the Recovery Fundamentals course here: https://patriciadaly.com/recoveryfundamentals/ ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight for our 3rd Quarter Webinar, a special presentation with Dr. Harbour and Dr. Correa. Tune in to hear about the history of ocular melanoma over time, where the future of research is headed, and the incidence and presentation of uveal melanoma around the world. J. William Harbour, M.D., is an American ophthalmologist, ocular oncologist and cancer researcher. He is currently Chair of the Department of Ophthalmology at the University of Texas Southwestern Medical Center in Dallas. As an ocular oncologist and clinical researcher, Dr. Zelia Correa was recruited to Sylvester Comprehensive Cancer Center and Bascom Palmer Eye Institute of the University of Miami Miller School of Medicine in 2020 as Director of the Ocular Oncology Service and Professor of Ophthalmology at the University of Miami Miller School of Medicine. Slides accessible at the following links: Youtube recording Dr. Harbour Slides Dr. Correa Slides ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

After seeing her article featured last week, we had to get this omie on the podcast! Tune in to hear from Ellie sharing her story: "I have to believe that going through all of this at a young age has happened for a reason. I’m not someone who blindly believes God has a plan for everything, but in my case, I can’t help but recognize that He’s taught me a lesson. Spending your whole life worrying about what has happened, what will happen, what might happen, is a waste of time. I am proof that worrying does not work! I worried my whole life that I would get cancer. And guess what? It didn’t stop me from getting it." LINK TO ARTICLE Summary of her diagnosis: Diagnosed with choroidal (retina) melanoma in November, 2022. Had surgery in Boston, MA to implant a tantalum ring in my eye, at the end of November. Treated with proton beam radiation in Boston, MA in December. Follow-ups show shrinkage in the tumor. Slowly losing some peripheral eyesight. No sign of metastasis as of fall 2023. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight and Jennifer Stephens, an oncology research nurse with a personal connection to ocular melanoma and a pilot research project investigating patients with OM who have (since original diagnosis) developed another form of cancer on top of ocular melanoma. She is specifically looking for patients willing to be part of this research study. More info in this episode and to be found at her site below: https://www.uwyo.edu/nursing/faculty-staff/stephens.html RESEARCH CALL OUT: deadline fast approaching end of SEPTEMBER. Did you develop a second cancer AFTER being diagnosed with #ocularmelanoma? "PURPOSE OF THIS STUDY: The way someone thinks about themselves and their body can change almost immediately after getting a cancer diagnosis. This study is gathering information about the experience of having had an ocular melanoma (OM) cancer, going into remission/cure, and then developing a second non-OM cancer. Part 1 of this study is a recorded virtual interview using ZOOM lasting approximately 20 to 60 minutes. An optional Part 2 of this study is a virtual participant Focus Group moderated by the principal investigator." Participants must be 18+ years of age in USA or CA. Contact Jennifer Stephens MA, PhD, RN, OCN, CCNE of the University of Wyoming at [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Part 3 of 3 in a mini series recording the EYE ON RESEARCH SEMINAR Join A Cure in Sight to chat with first, Dr. Moser and Dr. McKean regarding all drugs of interest pertaining to uveal melanoma that were discussed or presented on at ASCO 2023 - you can find this list here, courtesy of the ACIS Research board member. Following their presentation, tune in to hear some interesting and novel research in uveal melanoma that Dr. Dalvin heard at ARVO 2023, including key research presented for treatment of the eye. Please send in questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Part 2 of 3 in a mini series recording the EYE ON RESEARCH SEMINAR Join A Cure in Sight to discuss a few key trials of interest to uveal melanoma with Dr. Hamid and Dr. Carvajal. Replimune is discussed, as well as the importance and impact of Phase 1 trials. Please send in questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Part 1 of 3 in a mini series recording the EYE ON RESEARCH SEMINAR Join A Cure in Sight to chat with Dr. Katz about the updates to the PERIO-01 Study, presented on at ASCO 2023 as pertaining to uveal melanoma. Please send in questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Wondering if you should get a biopsy? Wanting to understand more about the biopsy of your eye? Join A Cure in Sight and back again, the wonderful Dr. Basil K Williams to discuss Prognostication of the Eye – A special episode selected and sponsored by Castle Biosciences. Learn about the classes of eye tumors, what newer research tells us, and where research is headed. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Tune in to hear from a few of the researchers and physicians we ran into at ASCO 2023! Thank you to all who came by our booth and helped us compile our "Newsworthy Notes from ASCO" which you can find here: https://acureinsight.org/newsworthy-notes-from-asco/?v=7516fd43adaa ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Hey omies, Registration is now open for our 2023 Eye Believe Survivorship Seminar. This year we’ll be coming to you live and virtually from Seattle WA. Join Dr. Andrew Stacey, top physicians, and experts, for 2 days of workshops and educational sessions on living with ocular melanoma. We'll explore the town - I hear there is a dinner cruise planned for Friday night -, meet new omies, check in with good friends, and end the weekend on the high note for cocktails and dinner. For those attending in person, we hope to see you at our Welcome reception the evening of Sept 7, so plan travel accordingly. Reserve your hotel room using the link provided at time of registration or book at your preferred nearby favorite hotel. If you’re unable to attend in person, during registration, select the “virtual attendance” option. If you plan to attend in person or online, please register using the link in the show notes of each podcast episode or head to www.acureinsight.org/education-events After you register, be sure to finalize your travel plans and reserve your room at the hotel or nearby! Discounted hotel registration ends on August 17th! Please email [email protected] with any registration questions. Share the news with your fellow omies! We can’t wait to finally SEE you in Seattle!

Join A Cure in Sight host Danet Peterson to interview 4 members of the omie community who are also part of the LGBTQA+ community to hear their perspectives on their ocular melanoma journey as well as their insights into the evolution of their medical care as queer cancer patients. Thank you to Calissa Kneip, Steven Russel, Alec MacKenzie, and William Karp for your time and insights and representing the queer community of A Cure in Sight. ANNOUNCEMENTS: REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! HOTEL DEADLINE AUGUST 17th 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team, bring your community, and fundraise to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami May 18, 2024 Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh June 8, 2024 Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024 Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024 Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year and next years dates too! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to interview the author of the book, I Just Turned 2: How I learned to Live After Dying, Dean Weitenhagen to discuss navigating multiple eye surgeries and cancer diagnoses in his last 10 years. A story of resilience and adaptation when life deals you curve ball after curveball. Find his newly published book on Amazon, or at his website below: https://www.deanweitenhagen.com/ ANNOUNCEMENTS: REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! HOTEL DEADLINE AUGUST 17th 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team, bring your community, and fundraise to get involved! August 5, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH August 6, Philadelphia https://runsignup.com/Race/PA/Philadelphia/LookinForACurePhiladelphia September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami May 18, 2024 Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh June 8, 2024 Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024 Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024 Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to interview multiple patients who have learned about and applied various types of alternative medical care. Lindsay Brown, Lori Jones, Lisa Durbin (wife and caretaker of Mike), Kenny Rains, and Hannah Thompson. Hear about the empowerment that comes from taking action and applying new knowledge whether you are in the early stages of diagnosis, or dealing with metastatic spread. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team, bring your community, and fundraise to get involved! August 5, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH August 6, Philadelphia https://runsignup.com/Race/PA/Philadelphia/LookinForACurePhiladelphia September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to interview Dr. Dan Rubin, ND, FABNO, to discuss integrative oncology, and the evolution of this practice he has seen unfold for over 20 years. Tune in to hear what integrative oncology can look like, key points to consider when pursuing care. Learn about their practice here: https://www.listenandcare.com/ Daniel Rubin is a naturopathic doctor based in Scottsdale, Arizona. His naturopathic oncology practice has been an integral part of the Phoenix metropolitan medical community for the past 20 years. After graduating from Southwest College of Naturopathic Medicine (SCNM) in 1997, Dr. Rubin returned to SCNM to complete his residency. In 2004, he became the Founding President of the Oncology Association of Naturopathic Physicians (OncANP). The OncANP represented a revolution for the field of naturopathic oncology providing, for the first time, definition, validation and standardization of the field of naturopathic oncology. Since that time Dr. Rubin has become an internationally recognized naturopathic oncologist. Dr. Rubin is co-Founder (along with his wife, Debi Smolinski, ND) and Medical Director of Naturopathic Specialists, LLC, in Scottsdale, AZ, where he practices full-time as a naturopathic oncologist. At present, Naturopathic Specialists has served the clinical and logistical oncology needs of people from all 50 states as well as 19 countries. Dr. Rubin is an expert at the integration of traditional and naturopathic medicine for people with cancer and services both the adult and pediatric population. He is also an expert in the naturopathic approach to people with cancer who either are unable to undergo conventional therapy or who choose not to. His selected positions include those from the regulatory, education, advisory and community sectors and his main philanthropic interests are focused on children with cancer as well as post-graduate education. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 5, Philadelphia https://runsignup.com/Race/PA/Philadelphia/LookinForACurePhiladelphia August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver November 18, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org REGISTER TODAY for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to interview Starla Hadlock-Allen, an ocularist in Mesa, AZ whose family has a unique history in the field of ocular prosthetics. Hear their story, and learn about the certifications required to become a board certified ocularist; a qualification she and other ocularists strongly urge those seeking prosthetic eye creation care to look for in their ocularist team. A diplomate member of the American Society of Ocularists, Starla received her BA from Brigham Young University and completed her internship with her father, John, in 2007. She and John have been working together for over 20 years. Starla and her husband, natives of Arizona, and their children live in Mesa and enjoy serving their community. Learn about their family practice here: https://www.eyeconcern.com ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight host Danet Peterson to bring you our second quarterly webinar this year; focused on navigating clinical trials. Clinical trials research nurses Kelly Goddard and Shahnaz Singh-Kandah discuss the process of clinical trials registration, locating centers, and offer invaluable resources for patients navigating the trial space. CLINICAL TRIALS 101 PDF CLINICAL TRIALS SLIDES LINK Checklist for prioritizing/recommending studies: -Data – what’s most likely to help? -Whatever we do first – we leave as many doors open down the line to make sure it won’t preclude you from other treatment -What is the impact on the trial? Side effects, logistics. Biopsies, PKs, etc. -Feasibility - travel - Questions: -Is there any published data? -How long has the study been open ? -Is there placebo involved? -Is there a stipend for commuting costs? -What are common side effects that you have noticed in recent patients? -Are there any patients at your site currently participating? -Is this my best option right now? ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight in an interview with Dr. David Ancona, the founder of Mexico's pioneer Eye Cancer Institute. In this episode, Dr. Ancona and podcast host, Danet Peterson discuss the history of the Eye Cancer Institute in Mexico, the treatments they have available, and the effort it has taken to establish an eye cancer institute in Mexico. Their locations are in Monterry, Mexico, as well as Guatelajara, Mexico. They treat patients from all across Mexico, Central America, Southern America, and in some cases near the souther USA border. Their focus is to bring accessible, patient driven care to patients navigating eye cancer of any kind. You can find them on social media to connect and learn more at www.eyecancerinstitute.org. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN coming soon! June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight as they bring you some brief mini interviews from attendees and presenters at AACR, the American Association of Cancer Research, hosted in Orlando in April 2023. Dr. Meredith McKean and Dr. Liya Xu share some unique insights on uveal melanoma research that is happening now. Thanks for tuning in! Don't forget to subscribe and continue to listen in! ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

A Cure in Sight is joined on The Eye Believe Podcast by Dr. Mohammed Dar, who is the Chief Medical Officer of Immunocore. Tune in to learn more! In this brief discussion, Dr. Dar shares the origin and history of Immunocore, how they got started, and how their field came to include uveal melanoma. To access the lists of currently recruiting clinical trials relevant to uveal melanoma, head to clinicaltrials.gov and search uveal melanoma. Thank you again to Immunocore for their continued work for patients with rare diseases like Uveal Melanoma. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH September 23, Denver, CO https://runsignup.com/Race/CO/Denver/LookinForACureDenver Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight and Dr. Maureen Sanger to discuss protecting your mental health as a patient with ocular melanoma. A few key points from this episode: "Switch focus from the what if to what is?" "Grief is something we tend to." When in doubt, let it RAIN: R - Recognize emotions A - Allowing emotions to be felt/ accepting them as what is I - Inspect/Investigate your emotions "why am i feeling this way?"” N - Nurturing yourself - "what do I NEED right now?" Great books to read: When Life Gets Hard by Russ Harris When Things Fall Apart by Pema Chodron Maureen Sanger, PhD is a psychologist with Tennessee Oncology providing counseling to cancer patients and survivors. She received her doctorate in clinical psychology from Vanderbilt University and trained at MD Anderson Cancer Center. Prior to joining Tennessee Oncology she was an Assistant Professor of Pediatrics at Vanderbilt University Medical Center where she worked with the cancer and sickle cell disease programs. Don't forget to subscribe and continue to listen in! ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight and Dr. Basil Williams to discuss Pros and Cons of Radiation to the Eye. Treatment options are covered, based on factors such as eye tumor location, size, possibility of retaining vision. Side effects of various radiation based treatments are discussed. The impact of a biopsy at time of treatment or before is discussed. Tune in and be sure to subscribe and share, plus make a contribution to keep our podcast going! Basil K. Williams Jr. MD is an Associate Professor of Ophthalmology at the Bascom Palmer Eye Institute, where he specializes in ocular oncology and vitreoretinal diseases and surgery. He completed his ophthalmology residency and vitreoretinal surgery fellowship at Bascom Palmer and served as a chief resident and co-director of ocular trauma there as well. He then completed an additional fellowship in ocular oncology at Wills Eye Hospital. Dr. Williams grew up in the Bronx, NY and received his Bachelor of Arts Degree from Yale University before attending The Chicago Medical School. Prior to joining Bascom Palmer, he was the Director of Ocular Oncology at the University of Cincinnati and held the Mary Knight Asbury Endowed Chair of Ocular Oncology. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Stay tuned for registration announcements for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

SPECIAL ANNOUNCEMENT! First up, it’s our 10th anniversary this month! All month long we’ve been sharing challenges on social media to invite you to share with 10 people about ocular melanoma. From now until April 30th, you can also be part of the YOU + 10 challenge for our Lookin for a Cure Walks! HOW IT WORKS? BEFORE April 30th, register for a Lookin' For a Cure 5k walk near you, or register virtually. Walks are happening between May and December. Name your team (the chance to do this is on the first page of the sign up)! Send a link to your team to family and friends to register with you! The 3 people with the largest teams will receive a gift card as a prize! Winners will be announced in the first week of May! REGISTER AT www.lookinforacure.org OR https://runsignup.com/w/ACureinSight You can obtain a copy of the first ever annual report for 2022 here: https://view.flodesk.com/pages/6435ce55c842f57cebceea87 WALKS BELOW: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight and Lisa Durbin, spouse and caregiver to Mike Durbin, an ocular melanoma patient in the metastatic community. The role of caregiver is discussed, as well as the toll this can take on a relationship, on the family as a whole. Tune in for an incredibly insightful and validating episode. You can connect with Lisa and Mark directly to discuss their alternative approaches to metastatic management and glean from their hopeful story here: https://www.facebook.com/ldurbin1 ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight host, Danet Peterson, as well as 3 other omies for "Enucleation 101," part 2 of a 2 part episode release covering the varying experiences of enucleation of 3 more patients, their tips for recovery, as well as their insights on the process as a whole. Discussion of the prosthetic eye is not covered but we have plans to cover an ocularist and a panel of adjusting to the experience of having a prosthetic eye. Panelists featured: Julie LeBlanc Lindsay (lind-SAY) Brown Kristen MacDonald Please share these 2 episodes with anyone considering Enucleation as a treatment path and be sure to subscribe to our podcast and newsletter to stay up to date! ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! May 20, Raleigh, NC https://bit.ly/3KnyTwp May 21, Washington DC https://bit.ly/3ZotGIZ June 10, Minneapolis, MN https://bit.ly/3o5Mwr2 June 11, Philly, PA https://bit.ly/3U4hsUH July 8, Seattle, WA https://bit.ly/3TTgvP3 July 15, Palo Alto, CA https://bit.ly/3lRFi9D August 6, NYC/Brooklyn/Jersey area https://bit.ly/40KUtQH Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight and Dr. Dalvin and Dr. Moser for this special Rare Disease Day Webinar, recorded live on Feb 28, 2023. Are you RARE²? Ocular Melanoma affects 6 per million people each year. Of those diagnosed, children and minority communities (people of color, indigenous peoples, etc.) make up an even smaller percentage of the patient population. Dr. Lauren Dalvin and Dr. Justin Moser, who attended medical school together, were part of a discussion on the importance of awareness for rare diseases, and how they got involved in the work of ocular melanoma specifically. Dr. Lauren A. Dalvin is a full-time Ocular Oncologist and Associate Professor of Ophthalmology with a joint appointment in Medical Oncology at Mayo Clinic, Rochester, MN. Dr. Justin Moser is a medical oncologist and hematologist and associate clinical investigator at HonorHealth Research Institute. He treats patients in the area with uveal melanoma and other rare diseases. They discuss questions such as: What is it like being a physician of those with rare diseases? Why is a day like rare disease day an important day to spread awareness? Why did you get into ocular melanoma? What drew you as a physician to rare disease? How do you see the rare disease landscape changing in the future? What are registries and biobanks? Why are they important for rare diseases? PLUG FOR INSIGHT REGISTRY , living library, what is a bio bank? How often do you treat someone in a minatory group (like children, people of color, potential obstacles they face)? How do you reassure a patient with rare diseases that they will receive good care in your practice? This webinar is made possible by contributions from the EveryLife Foundation for Rare Diseases. The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

Join A Cure in Sight to discuss systemic therapies for metastatic uveal melanoma with Dr. Meredith McKean. We discuss when to use systemic therapies, what is out there besides KIMMTRAK, how to determine a path forward for introducing systemic therapies in metastatic management McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. During fellowship, McKean studied biomarkers for response to immune checkpoint inhibitors (ICI) in metastatic melanoma, earning her an American Society of Clinical Oncology 2017 Young Investigator Award. She now serves as the director for the Melanoma and Skin Cancer Research Program at the Sarah Cannon Research Institute at Tennessee Oncology. ANNOUNCEMENTS: Head to our site to register for a 5K Lookin’ for a Cure near you! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight to briefly interview Yvonne, Presley, and Kenny; patients who are some of the “rare among the rare” or the RARE² in honor of Rare Disease Day. Yvonne, Presley, and Kenny show their stripes by expressing what navigating their journey with ocular melanoma has looked like–and how that has differed from the mainstream community. Ocular melanoma is most commonly found in fair skinned, light eyed males over the age of 50 according to most statistics found online. These 3 patients demonstrate the statistics just don’t accurately depict those in our community who are here, living with OM, and who don’t “fit the mold” of the most common demographic diagnosed. Meet Yvonne Loggins-Colemen, diagnosed in 2020 with ocular melanoma by sheer chance; rare among the rare as a woman of African American descent. Meet Presley Jackson, diagnosed at the age of 13 with ocular melanoma, experiencing childhood eye cancer, and adjusting to the loss of vision and a great deal of uncertainty, while living as full of a life as a teen as he possibly can. Meet Kenny Rains, diagnosed at the age of 29, far younger than most, and tackling life with new passion and perspective after navigating an immense mental health struggle that his diagnosis triggered. ANNOUNCEMENTS: Head to our site to register for a 5K Lookin’ for a Cure near you! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Join A Cure in Sight host, Danet Peterson, as well as 3 other omies for "Enucleation 101," part 1 of a 2 part episode release covering the varying experiences of enucleation of 4 patients, their tips for recovery, as well as their insights on the process as a whole. Discussion of the prosthetic eye is not covered but we have plans to cover an ocularist and a panel of adjusting to the experience of having a prosthetic eye. Panelists featured: Clay Butler (primary enucleation) Wendy Carpenter (enucleation after recurrence) Danet Peterson (host) (enucleation after eye deterioration) Alison Benjamin (primary enucleation) ANNOUNCEMENTS: Head to our site to register for a 5K Lookin’ for a Cure near you! www.lookinforacure.org Swing for Sight April 22, 2023 REGISTER for SWING FOR SIGHT TODAY: Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected] The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors. This podcast was hosted by Danet Peterson and produced by Page Fronczek.

Anne Osborn demonstrates and teaches the "how to" behind meditation, and offers a variety of meditation tools to add to your toolbox for "taming your lizard brain" and why this is important in navigating an ocular melanoma diagnosis.

Join for a discussion on various levels of spirituality and how we make meaning of the circumstances in our lives.

Jennifer Drew will present on coping with your diagnosis and your new normal.