The Eye Believe Podcast

"Revolutionizing Ocular Melanoma Treatment: New Insights from ASCO 2024" "Join us at the ASCO 2024 meeting in Chicago where Castle Bioscience's groundbreaking study on Uveal melanoma is unveiled. Dive into an in-depth discussion about the latest advancements in gene expression profiling and genomic testing. Learn how these technologies are shaping the future of ocular melanoma treatment, improving patient outcomes, and guiding clinical decisions. Don't miss out on this exclusive coverage bringing hope and new solutions to melanoma patients!"

"Join us in this episode of the Eye Believe Podcast, where we sit down with Ayurvedic health counselor, Vytautel, to explore the transformative power of Ayurveda. In today’s session, we delve into the critical role of sleep in natural healing and how Ayurvedic practices can optimize your health. Discover actionable tips, insights into herbal remedies, and the holistic approach of Ayurveda to maintaining balance in life. Make sure to like, subscribe, and click the bell icon to keep updated with our journey into wellness and natural health solutions!" If you have more specific topics covered in the video that you'd like included in the description, let me know! ​​

Welcome to the Eye Believe Podcast! In this episode, we're joined by the incredible Aimee Kandrac, founder of What Friends Do, to explore the essential role friends and loved ones play in supporting those with a cancer diagnosis. Episode Highlights: Introduction to Aimee Kandrac and What Friends Do: Megan introduces Aimee and her impactful organization, What Friends Do, which helps friends and family members organize support for loved ones during major life events, particularly cancer diagnoses. Importance of Support Networks: Aimee explains how What Friends Do provides an online tool for seamless communication and support, emphasizing the significance of having a strong support network during a cancer diagnosis. Flexibility and Accessibility: Discover how the platform can be accessed from any device, making it easy for friends and family to provide support from anywhere. New Paper Planner: Aimee discusses their new paper organizer, designed to help families and patients write down their needs in one place, making it easier to manage support. Aimee’s Personal Journey: Hear Aimee’s personal story of starting What Friends Do, inspired by her family’s experience with a loved one's terminal brain cancer diagnosis. Practical Tips for Support: Gain insights into how friends can offer practical help, from dropping off meals to running errands, and how these acts of kindness can significantly alleviate the burden on families. Managing Emotional and Practical Needs: Explore the balance between emotional and practical support, and how What Friends Do facilitates effective communication and organization among support networks. Role of Social Networks: Aimee highlights the importance of allowing friends and loved ones to help, sharing how strong social support networks can lead to better outcomes for patients. Starting and Sharing a Support Team: Learn how to start a support team on What Friends Do, including tips on sharing the team with friends and family and ensuring everyone is involved and updated. Real-Life Stories of Impact: Hear inspiring stories of families who have benefited from What Friends Do, showcasing the profound impact of organized support during challenging times. Whether you’re a patient, caregiver, or friend, this episode is packed with valuable advice and heartwarming stories that underscore the power of community and support. Connect with Us: Website: [Your Website] Instagram: [Your Instagram] Facebook: [Your Facebook] Twitter: [Your Twitter] #CancerSupport #WhatFriendsDo #EyeBelievePodcast #AimeeKandrac #CommunitySupport #CancerDiagnosis #SupportNetwork Don’t forget to follow us for more inspiring episodes and share this podcast with those who might benefit from it. Your support helps us continue to bring valuable content to our listeners.

Navigating a Uveal Melanoma Diagnosis: Expert Insights Quarter 2 Webinar Description: Welcome to an enlightening episode of our webinar series, where we dive deep into the complexities of navigating a Uveal Melanoma diagnosis. In this episode, we are joined by renowned ocular oncologists, Dr. Jesse Berry and Dr. Marlana Orloff who bring their extensive knowledge and experience to the table. What You'll Learn: Understanding Uveal Melanoma: Gain a comprehensive understanding of Uveal Melanoma, including its structures, risk factors, and the importance of yearly dilated eye exams. Diagnosis Journey: Discover the step-by-step process involved in diagnosing Uveal Melanoma, including essential tests and imaging techniques. Treatment Options: Explore the latest treatment options available, from traditional methods to cutting-edge therapies, and understand the significance of clinical trials. Patient Support: Learn how to manage the emotional and practical aspects of living with Uveal Melanoma, including the importance of patient support resources and organizations. Future Outlook: Hear about the latest research and advancements in ocular oncology that offer hope for better patient outcomes.

In this empowering episode of the Eye Believe Podcast, we are joined by Janice Russell, known as the Overwhelm Slayer. Janice specializes in helping individuals manage the chaos and stress that come with new or changing medical diagnoses. With her unique blend of expertise in special education, corporate organization, and hands-on productivity, Janice offers invaluable insights into navigating overwhelming situations. Janice shares her journey and the inspiration behind becoming the Overwhelm Slayer. She delves into practical strategies for managing stress, organizing medical paperwork, and optimizing time, especially when dealing with complex medical conditions. Janice also discusses the importance of setting boundaries, prioritizing self-care, and understanding personal values to better manage daily tasks. Listeners will learn: Effective techniques to manage medical paperwork and documents. How to optimize time and energy levels for better productivity. The difference between tasks and projects and how to approach them. Tips for setting boundaries and saying no to avoid burnout. Strategies for balancing responsibilities while prioritizing self-care. Janice is also offering a free downloadable PDF, "Top Ten Ways to Manage Your Schedule When It's Disrupted by Diagnosis." Get your copy at schedule.overwhelmslayer.com. Tune in for an insightful discussion that promises to provide practical tools and inspiration for overcoming overwhelm and reclaiming control over your life. Connect with Janice Russell: Website: JaniceRussell.com Facebook: Janice Russell on Facebook YouTube: Janice Russell on YouTube Instagram: Janice Russell on Instagram LinkedIn: Janice Russell on LinkedIn Connect with Eye Believe Podcast: Website: Eye Believe Podcast Website Instagram: Eye Believe Podcast Instagram Facebook: Eye Believe Podcast Facebook Twitter: Eye Believe Podcast Twitter Don't forget to subscribe and leave a review. Your feedback helps us bring more valuable content to our listeners. Thank you for being part of the Eye Believe Podcast community! 4o

Welcome to another inspiring episode of the Eye Believe Podcast! Today, we are joined by Sandy, a dedicated practitioner at Life Spark, who shares her profound insights into the transformative power of Reiki and healing touch therapies, especially for cancer patients. Discover how these holistic practices are making a significant impact on patients' lives by alleviating stress and promoting relaxation. In this episode, you will learn: What Reiki is and how it benefits cancer patients The mission and values of Life Spark Success stories of cancer patients who have experienced significant improvements through Reiki and healing touch therapies The science behind healing touch and its effectiveness in reducing stress How Reiki sessions help cancer patients cope with their diagnosis, treatment, and recovery Personal experiences and heartfelt testimonials from patients The future potential of holistic cancer care and the growing acceptance of complementary therapies in mainstream medicine Episode Highlights: 0:00 - Introduction 0:14 - Welcome and Introduction to Sandy 1:00 - Overview of Life Spark and Its Mission 2:00 - The Role of Reiki in Cancer Care 3:30 - Life-Changing Success Stories from Life Spark 5:00 - Understanding the Stress Relief Benefits of Healing Touch 7:00 - How Reiki Sessions Help Cancer Patients Cope 9:00 - Personal Experiences and Heartfelt Testimonials 11:00 - The Future and Potential of Holistic Cancer Care 12:30 - Closing Remarks and Appreciation Join us as Sandy shares inspiring stories and valuable insights into the healing journey of cancer patients. Don't miss this enlightening discussion on the powerful benefits of holistic healing practices. Connect with A Cure in Sight and The Eye Believe Podcast: Website: www.acureinsight.org Donations: https://acureinsight.org/donate/?v=7516fd43adaa Instagram: https://www.instagram.com/acureinsight/ Facebook: https://www.facebook.com/ACureInSight Twitter: https://x.com/ACureInSight1 LinkedIn: https://www.linkedin.com/company/3108537 Subscribe and Stay Tuned: Don't forget to subscribe to our podcast and leave a review. Your feedback helps us bring more valuable content to our listeners. Thank you for being a part of the Eye Believe Podcast community!

In this episode of the Eye Believe Podcast, we delve into the topic of eye enucleation, offering a detailed guide on how to prepare for this significant medical procedure. We cover: An overview of eye enucleation Essential pre-surgery steps The surgical process explained Tips for post-operative care and recovery Emotional and psychological support resources Whether you are undergoing this surgery or supporting someone who is, this episode provides valuable insights and practical advice to help you through the process.

click picture to watch on YouTube!!!!!!!!!!! "Welcome to another episode of the Eye Believe Podcast! In this episode, host Megan is joined by Dr. Jose Lutzky from the Sylvester Comprehensive Cancer Center to discuss the unique challenges and solutions for international uveal melanoma patients. Dr. Lutzky provides insights into his melanoma program, the significance of clinical trials, and the comprehensive care available to patients from Central and South America. This episode is a must-listen for anyone seeking to understand more about uveal melanoma and the support available for international patients. Key Topics: Overview of Uveal Melanoma Treatment Options and Clinical Trials Comprehensive Care for International Patients Importance of Early Diagnosis Subscribe and listen to more episodes for expert advice and inspiring stories. #EyeBelievePodcast #UvealMelanoma #InternationalPatients #CancerTreatment #DrJoseLutzky #OcularHealth"

Join us in this powerful episode of the Eye Believe Podcast as we share the inspiring story of Tara Ruckman. Tara has faced multiple cancer diagnoses, including subcutaneous melanoma and, most recently, ocular melanoma. Despite these immense challenges, Tara's journey is a testament to strength, resilience, and hope. In this episode, you'll learn: Tara's initial diagnosis and her journey with subcutaneous melanoma How she discovered ocular melanoma and the symptoms she experienced The treatment decisions she made and the factors that influenced her choices How Tara prepared mentally and physically for her enucleation surgery The importance of mental health and support systems in her healing process Tara's message of empowerment and embracing her identity post-surgery Tara's story is not just about surviving cancer but also about thriving and finding joy in life despite the challenges. Her experiences offer valuable insights and hope to anyone facing similar battles. Key moments: Initial diagnosis and journey with subcutaneous melanoma (00:00 - 02:32) Discovery of ocular melanoma (02:33 - 04:15) Treatment decisions and surgery (04:16 - 11:55) Mental health and support systems (11:56 - 18:20) Tara's message of empowerment (18:21 - end) Don't forget to like, comment, and subscribe to the Eye Believe Podcast for more inspiring stories of resilience and hope. #CancerJourney #OcularMelanoma #Resilience #EyeBelievePodcast #TaraRuckman Don't forget to like, comment, and subscribe to the Eye Believe Podcast for more inspiring stories of resilience and hope. Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

In this compelling episode of the Eye Believe Podcast, we are honored to share the story of Amy Reeves Clews, a courageous mother who was diagnosed with ocular melanoma at 20 weeks pregnant. Amy's journey is a testament to resilience, hope, and the power of a mother's love. After experiencing unusual symptoms like flashing floaters, Amy sought medical advice, only to discover she had a rare form of eye cancer. Despite the devastating news and the complexities of undergoing treatment while pregnant, Amy's determination to protect her unborn daughter never wavered. Her story unfolds through moments of heartbreak, tough decisions, and unwavering support from her family. Throughout her pregnancy, Amy underwent rigorous treatments, including photodynamic therapy, while constantly worrying about her baby’s health. Her strength was tested as she navigated the uncertainties of cancer treatment during pregnancy, all while dealing with the additional challenges brought on by the COVID-19 pandemic. Amy's journey didn't end at childbirth. She continued her fight against cancer while caring for her newborn daughter, demonstrating remarkable strength and perseverance. Her story is not just about surviving cancer but also about embracing life with hope and positivity. Join us as Amy Reeves Clews shares her emotional journey, from the initial shock of her diagnosis to the triumph of giving birth and continuing her battle with cancer. Her story will inspire and uplift, showing that even in the darkest times, there is always a glimmer of hope. Tune in to hear Amy's powerful testimony and witness her incredible spirit and determination. This episode is a must-watch for anyone seeking inspiration and a reminder of the strength of the human spirit. Don't forget to like, comment, and subscribe to the Eye Believe Podcast for more inspiring stories of resilience and hope. Amy also discusses the ongoing impact of her condition, her daily struggles with vision loss, and how she finds strength and positivity through small daily practices, gratitude, and the support of her family and community. Join us for this heartfelt episode as Amy Reeves- provides invaluable advice and encouragement to others facing similar battles, emphasizing the importance of staying positive, seeking support, and finding joy in the little things. Read more from Amy's article here at Mummy Star, a nonprofit soley focused on helping expectant mothers navigating cancer: https://www.mummysstar.org/post/amys-story

https://youtu.be/BJtJUn2O8vg Find out more at nostorylost.com Join us in this heartfelt episode of the "I Believe Podcast" where we dive deep with Andrew, the founder of No Story Lost. Discover how a simple family tradition of storytelling transformed into a mission to preserve precious memories for generations. Andrew shares the inspiring journey behind No Story Lost, from recording his grandfather's tales to creating a service that helps others capture and cherish their own family histories. In This Episode: The Inspiration: Learn about the family experiences that inspired the creation of No Story Lost. The Impact: Understand the profound impact of preserving personal stories, especially for those facing life's biggest challenges, like cancer. The Process: Get an inside look at how No Story Lost captures and immortalizes personal and family stories through their unique service. Q&A Session: Hear directly from Andrew as he answers questions about the importance and process of preserving personal histories. Why This Matters: Capturing personal stories isn't just about remembering the past—it's about enriching future generations and providing comfort and connection through shared history. Whether you're dealing with a terminal illness or just want to preserve your family's legacy, No Story Lost offers a way to keep your memories alive. Subscribe to our channel for more inspiring stories and practical tips on preserving your own history. If you're interested in No Story Lost’s services, visit their website linked below. Connect with No Story Lost: Website: No Story Lost Contact: [email protected] Stay Engaged: Like, Comment, and Share this video if you believe in the power of stories! Don’t forget to subscribe for more content on personal legacies and community stories.

Welcome to our latest episode where we dive deep into the world of immunotherapy, an innovative approach to cancer treatment that leverages the body’s own immune system to fight cancer. Join us as we explore how immunotherapy offers hope and new options for patients, especially those dealing with conditions like ocular melanoma. In this episode, we're joined by Lucy Innes, an ocular melanoma patient and PhD researcher, who shares her personal journey and the complexities of immunotherapy. We'll cover everything from the basics of the immune system to advanced treatments that might just change the future of cancer care. Key Highlights: Immune System 101: Understand the fundamental roles of the immune system, how it typically combats illnesses, and its lesser-known but critical function in identifying and destroying cancer cells. Introduction to Immunotherapy: What is immunotherapy? How does it differ from traditional treatments like chemotherapy and radiation? Learn about the types of immunotherapy, including immune checkpoint inhibitors and CAR T-cell therapy. Personal Journey: Hear Lucy’s firsthand experiences with ocular melanoma, from diagnosis through treatment, and how immunotherapy has played a role in her care. Treatment Insights: Delve into the specifics of how immunotherapies are designed to enhance the immune system's ability to fight cancer, the scientific principles behind these treatments, and the latest research advancements. Practical Advice: Tips for patients and caregivers on navigating cancer treatment options, with a focus on when to consider immunotherapy and the questions to ask your healthcare provider. Why Immunotherapy Matters: Immunotherapy represents a paradigm shift in cancer treatment, offering potential benefits over conventional methods by specifically targeting cancer cells while sparing healthy tissue. This episode sheds light on why immunotherapy could be a game-changer for many cancer patients. Conclusion: Don't miss this informative session packed with expert insights, patient experiences, and hope for those affected by cancer. Subscribe to our podcast for more episodes that help demystify cancer treatments and support patients and their families through their journeys.

In this deeply moving video, Erin recounts her 20-year battle with ocular melanoma, offering insights and hope to those facing similar challenges. Diagnosed at just 23, Erin's journey through treatments, recurrences, and personal growth illuminates the path of resilience and survival. Highlights of Erin's Story: - Early symptoms and the crucial steps leading to her diagnosis. - The impact of treatment, including the innovative approaches that helped her. - How Erin maintained her mental health and found strength in her community. - The role of support systems in navigating the emotional and physical challenges of cancer. This video is a must-watch for anyone touched by cancer, particularly ocular melanoma, offering not just a story of survival but a message of thriving through adversity. #OcularMelanoma #CancerSurvival #Resilience #Hope #SurvivorStory If you or someone you know is facing ocular melanoma, resources and support are available. Check the links below for more information and help. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh May 19, 2024, Washington DC https://runsignup.com/Race/VA/ARLINGTON/LookinForACureWashingtonDC June 8, 2024, Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024, Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024, Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle September 28, 2024, Santa Monica, CA (LA) https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 2, 2024, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 7, 2024, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston December 8, 2024, Dallas, TX https://runsignup.com/Race/TX/Dallas/LookinForACureFortWorth Races dates and locations subject to change this far out in the year. Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

🔬Discover the groundbreaking journey with Aura Biosciences as they work to develop a novel class of targeted oncology drugs for multiple cancer indications, including for the primary treatment of ocular melanoma. In this episode of the Eye Believe Podcast, we dive deep with Eli de los Pinos, founder and CEO of Aura Biosciences, exploring the cutting-edge advancements in treating ocular melanoma and beyond. 🌟 Eli shares her passionate journey from a scientist to an entrepreneur, driven to develop transformative drugs that offer hope without compromise. Learn how their novel approach aims to prime the immune system's T-cells to become vigilant warriors against cancer cells, offering a potential treatment that's both effective and preserves quality of life, as well as vision in the eye. 👁️‍🗨️ What You'll Discover: The inspiring story behind Aura Biosciences and its mission to innovate cancer treatments. An in-depth look at their first-of-its-kind therapy that targets ocular melanoma cancer with precision. Insights into the future of cancer care and how Aura Biosciences is leading the charge in ocular oncology as the envision a new way to treat cancer. Join us as we explore the exciting possibilities of this novel therapy in the fight against cancer, shedding light on the science, the strategy, and the stories of hope it brings to patients worldwide. ✨ Subscribe for more updates on groundbreaking medical advancements and stories of innovation in the battle against cancer. 📌 Learn More About Aura Bio Sciences & Ongoing Clinical Trials: https://aurabiosciences.com/contact/ https://classic.clinicaltrials.gov/ct2/show/NCT06007690?term=NCT06007690&draw=2&rank=1 Social Media Handles: Twitter/X: @AuraBiosciences https://twitter.com/AuraBiosciences LinkedIn: Aura Biosciences https://www.linkedin.com/company/aurabiosciences/ Elisabet de los Pinos https://www.linkedin.com/in/elidelospinos/ #CancerCure #TCellTherapy #OcularMelanoma #AuraBioSciences #MedicalInnovation #EyeBelievePodcast ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh May 19, 2024, Washington DC https://runsignup.com/Race/VA/ARLINGTON/LookinForACureWashingtonDC June 8, 2024, Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024, Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024, Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle September 28, 2024, Santa Monica, CA (LA) https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 2, 2024, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 7, 2024, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston December 8, 2024, Dallas, TX https://runsignup.com/Race/TX/Dallas/LookinForACureFortWorth Races dates and locations subject to change this far out in the year. Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight, an ocular melanoma foundation, to interview guest, Andrew from @nostorylost “Andrew Hall is the Co-Founder of No Story Lost. He started No Story Lost with his cousin and best pal, Jeremy. No Story Lost was born after Andrew and Jeremy recorded their Grandfather's story; they saw how important the result was for their family, but also how much hard work it was to do without a service to help. When Andrew's not working, he enjoys traveling, playing sports, and spending time with friends and family.” We'll have a brief discussion around No Story Lost and how our omie community might benefit from their mission. A Cure in Sight listeners and Eye Believe Podcast subscribers can take advantage of the discount code EyeBelieve_2FreeBooks to capture YOUR life story, or whatever chapter you might choose. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh May 19, 2024, Washington DC https://runsignup.com/Race/VA/ARLINGTON/LookinForACureWashingtonDC June 8, 2024, Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024, Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024, Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle September 28, 2024, Santa Monica, CA (LA) https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 2, 2024, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 7, 2024, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston December 8, 2024, Dallas, TX https://runsignup.com/Race/TX/Dallas/LookinForACureFortWorth Races dates and locations subject to change this far out in the year. Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight, an ocular melanoma foundation, for our first quarter webinar, Good for the Eyes, Good for the Heart. Our guest, Dr. Dorothy Hitchmoth from the Ocular Wellness & Nutrition Society will discuss overall eye nutrition and health, and how caring for your whole body aids in caring for your eyes. Or follow along here for slides. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh May 19, 2024, Washington DC https://runsignup.com/Race/VA/ARLINGTON/LookinForACureWashingtonDC June 8, 2024, Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024, Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024, Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle September 28, 2024, Santa Monica, CA (LA) https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 2, 2024, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 7, 2024, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston December 8, 2024, Dallas, TX https://runsignup.com/Race/TX/Dallas/LookinForACureFortWorth Races dates and locations subject to change this far out in the year. Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

“The difference between an adventure and an ordeal is your attitude.” Bob Bitchin Join A Cure in Sight, an ocular melanoma foundation, and special guest, Megan McClay. "𝗙𝗼𝗿𝗴𝗲𝘁 𝘀𝘁𝗿𝗶𝘃𝗶𝗻𝗴 𝗳𝗼𝗿 𝗮 𝗯𝗶𝗴𝗴𝗲𝗿 𝗵𝗼𝗺𝗲 𝗮𝗻𝗱 𝗮 𝗯𝗲𝘁𝘁𝗲𝗿 𝗰𝗮𝗿. 𝗦𝗹𝗼𝘄 𝗱𝗼𝘄𝗻, 𝗯𝗲 𝗴𝗿𝗮𝘁𝗲𝗳𝘂𝗹 𝗳𝗼𝗿 𝘄𝗵𝗮𝘁 𝘆𝗼𝘂 𝗵𝗮𝘃𝗲 𝗮𝗻𝗱 𝘁𝗮𝗸𝗲 𝘁𝗶𝗺𝗲 𝘄𝗶𝘁𝗵 𝘁𝗵𝗲 𝗽𝗲𝗼𝗽𝗹𝗲 𝘆𝗼𝘂 𝗹𝗼𝘃𝗲." 𝗧𝗵𝗶𝘀 𝗶𝘀 𝘁𝗵𝗲 𝗮𝗱𝘃𝗶𝗰𝗲 𝗳𝗿𝗼𝗺 𝗠𝗲𝗴𝗮𝗻 𝗠𝗰𝗖𝗹𝗮𝘆, 𝟯𝟬, 𝘄𝗵𝗼 𝗶𝘀 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝘁𝗲𝗿𝗺𝗶𝗻𝗮𝗹 𝗰𝗮𝗻𝗰𝗲𝗿. 𝗘𝗶𝗴𝗵𝘁𝗲𝗲𝗻 𝗺𝗼𝗻𝘁𝗵𝘀 𝗮𝗴𝗼 𝘀𝗵𝗲 𝘄𝗮𝘀 𝘁𝗼𝗹𝗱 𝗵𝗲𝗿 𝗼𝗰𝘂𝗹𝗮𝗿 𝗺𝗲𝗹𝗮𝗻𝗼𝗺𝗮 𝗵𝗮𝗱 𝗮𝗱𝘃𝗮𝗻𝗰𝗲𝗱 𝘁𝗼 𝘀𝘁𝗮𝗴𝗲 𝗳𝗼𝘂𝗿, 𝘀𝗽𝗿𝗲𝗮𝗱 𝘁𝗼 𝗵𝗲𝗿 𝗹𝗶𝘃𝗲𝗿 𝗮𝗻𝗱 𝘀𝗵𝗲 𝗵𝗮𝗱 𝗮𝗻 𝗲𝘀𝘁𝗶𝗺𝗮𝘁𝗲𝗱 𝘁𝘄𝗼 𝘆𝗲𝗮𝗿𝘀 𝘁𝗼 𝗹𝗶𝘃𝗲. "𝗜'𝗺 𝗮𝗯𝗹𝗲 𝘁𝗼 𝗵𝗮𝘃𝗲 𝗮 𝗽𝗲𝗿𝘀𝗽𝗲𝗰𝘁𝗶𝘃𝗲 𝗼𝗻 𝘄𝗵𝗮𝘁 𝗶𝘀 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁 𝘁𝗼 𝗺𝗲 𝘁𝗵𝗮𝘁 𝗜 𝗱𝗶𝗱𝗻'𝘁 𝗵𝗮𝘃𝗲 𝗯𝗲𝗳𝗼𝗿𝗲," 𝘀𝗵𝗲 𝘀𝗮𝗶𝗱." - excerpt from the article '𝐖𝐡𝐚𝐭 𝐦𝐲 𝐭𝐞𝐫𝐦𝐢𝐧𝐚𝐥 𝐜𝐚𝐧𝐜𝐞𝐫 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐭𝐚𝐮𝐠𝐡𝐭 𝐦𝐞 𝐚𝐛𝐨𝐮𝐭 𝐥𝐢𝐟𝐞' featured on @BBCnews Full article can be read here. We'll chat briefly about her story with OM and her nuggets of wisdom of navigating the #raredisease of #ocularmelanoma to kick off this month of February where we as omies can be part of the #lightupforrare movement around the world. She shares openly and courageously about confronting her stage iv diagnosis and the sense of normalcy that she has settled into, despite the discomfort of facing her mortality on a day to day basis. Connect with Megan on Facebook or Instagram or in social media groups. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh May 19, 2024, Washington DC https://runsignup.com/Race/VA/ARLINGTON/LookinForACureWashingtonDC June 8, 2024, Minneapolis, MN https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis July 13, 2024, Palo Alto, CA https://runsignup.com/Race/CA/PaloAlto/LookinforaCure July 14, 2024, Seattle, WA https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle September 28, 2024, Santa Monica, CA (LA) https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 2, 2024, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 7, 2024, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston December 8, 2024, Dallas, TX https://runsignup.com/Race/TX/Dallas/LookinForACureFortWorth Races dates and locations subject to change this far out in the year. Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Ocular Melanoma is a family disease. It doesn't just affect one person - having this diagnosis, the fear of the unknown can affect everyone from immediate family, friends, and more. Learning how to support each other with varying needs and boundaries amidst your diagnosis is worth the listen to this unique patient panel, led by patient and therapist, Carol McColl. Carol McColl has worked as a licensed professional counselor for 16 years, specializing in trauma recovery. She is also the author of The Single Mom’s Devotional (Revell, 2009.) Carol lives in Dallas, TX, with her husband Angus, their adorable mini-goldendoodle Barney, and her 94-year old father, “Grampy." Carol’s large step-family includes eight adult daughters, with various spouses and partners, and 10 grandchildren. Carol was diagnosed with OM in July 2018, and had plaque therapy in August 2018. In her free time, Carol enjoys coffee with friends, baking, crocheting, Bible study, serving at her church, travel, and quiet weekends at Holly Lake in East TX. Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences.

Ocular Melanoma patients face a LOT in their diagnosis journey. Facing the fear of recurrence, the fear around scans, fear of dying - there's a lot to unpack. Join us to hear from Katie Wilson, a therapist and patient herself, who specifically studies resilience and the development of post traumatic growth. Katie Wilson is a therapist and an adult educator. She received her master’s degree in counseling Psychology from Gonzaga in 2003. She has worked as a mental health clinician for almost 20 years specializing in trauma. Katie was a psychology instructor and spent several years teaching for North Idaho College. As a Ph.D. student at the University of Idaho, she has done extensive research on transformative learning, attachment theory, posttraumatic growth, and human flourishing in the adult organizational leadership and learning program. Katie has a history of volunteer work at Hospice of North Idaho and currently volunteers as an advocate for the Ocular Melanoma Foundation in which she provides education and mental health care for newly diagnosed cancer survivors. Katie is also a cancer survivor and is passionate about helping individuals live their best lives following trauma. Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences.

Ocular Melanoma is enough to justify extra support. Dr. Allison Dashow, a patient and psychologist, shares a summary of therapies patients may find supportive, emphasizing the skills that can be developed to reach a point of radical acceptance in your diagnosis. Dr. Allie Dashow is a clinical psychologist and has been seeing clients for psychotherapy and group therapy for the past 6 years. She specializes in the following therapy modalities: cognitive behavioral therapy, dialectical behavioral therapy, and acceptance and commitment therapy. Allie also specializes in eating disorders and body image difficulties. She has run multiple psychoeducational trainings for colleagues and early career therapists, workshops for students, and therapy groups relating to eating disorders, disordered eating, and body image challenges. In her spare time, she also spent 8 years as a senior administrator for Beating Eating Disorders, an online based platform with over 150,000 followers that aims to raise eating disorder awareness and provide support and resources to those in need. On the side, Allie also provides executive functioning coaching for people with ADHD. Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences.

Ocular Melanoma is a beast of a diagnosis. Fellow cancer survivor and patient Eve Bogdanove shares strategies for coping with your diagnosis and making meaning throughout the journey. Eve N. Bogdanove has been a clinical social worker for 28 years. She is a psychodynamically trained with additional training in IFS, SE, EMDR, DBT and is a AASECT Certified Sex & Gender Therapist. She has expertise in CPTSD and working with perpetrators who harm their intimate partners. Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Systems, and Trisalus Life Sciences.

Join A Cure in Sight, an ocular melanoma foundation, to bring you an Eye Believe Mini-Seminar, Eye on COOG, where we're joined by Dr. Harbour, Dr. Reichstein, Dr. Williams, and Dr. Correa to discuss the Collaborative Ocular Oncology Group, it's founding and history, the research this collaborative study has yielded, and where COOG hopes to take the ocular melanoma community in the future. Topics covered: History of the COOG study Current Published Studies from COOG (COOG 1 and COOG 2) The Future of COOG Thank you to our Eye Believe 2023 sponsors who also helped sponsor this years mini eye believe online seminars. Castle Biosciences, Aura Biosciences, Immunocore, IDEAYA, Delcath Systems, and Trisalus Life Sciences. ANNOUNCEMENTS: STEPS FOR SIGHT 2024 is still going strong--over $60k raised so far--an exciting feat! Be part of the world wide movement: www.charityfootprints.com/SFS2024 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight, an ocular melanoma foundation, to interview Debora Barton at TScan Therapeutics. Tune in for an episode full of hopeful advances in treatment avenues and research. Check out their website, www.tscan.com for information on their sites open for prescreening as well as their treatment protocol. You can learn more about the uveal melanoma specific trials at the links below: NCT05812027 (screening protocol) and NCT05973487 (treatment protocol). Debora Barton, M.D., is the Chief Medical Officer at TScan Therapeutics. Debora, a clinical oncologist experienced in developing cell therapies, brings to TScan nearly two decades of expertise across global clinical research and development. Prior to joining TScan, Debora was the Chief Medical Officer at Carisma Therapeutics Inc., where she was responsible for the clinical development of a First-in-Human, First-in-Class cell therapy, including clinical operations, medical affairs, and safety. Previously, Debora was the Senior Vice President, Head of Clinical, Head of Safety at Iovance Biotherapeutics, Inc., where she built a team to run several Phase 2 studies in solid tumors and led clinical efforts related to regulatory interactions. Prior to Iovance, she held positions of increasing responsibility at biotech and pharmaceutical companies including Advanced Accelerator Applications S.A., Celgene Corporation, and Novartis. Debora is a board-certified clinical oncologist (M.D.), and a board member for the American Cancer Society, the Tigerlily Foundation (medical advisory board), and Arovella Therapeutics Ltd (non-executive director). She holds an M.D. from Pontificia Universidade Catolica Sao Paulo and completed her fellowship in Oncology at Federal University of Sao Paulo in Brazil. Read a summarized transcript of this episode at the link. ANNOUNCEMENTS: Steps for Sight 2024 is underway! Join the steps movement or donate to research January only at www.charityfootprints.com/SFS2024 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight, an ocular melanoma foundation, to interview patients, Ashley McCrary, Kristen MacDonald, and Loren Seaman. We’ll be chatting about their journey through advocacy and where they are today, their personal missions and passion for improving the lives of omies everywhere. Many thanks to The Melanoma Research Alliance and the Ocular Melanoma Foundation for collaborating on this next year's Steps for Sight movement. Steps for Sight 2024 is officially OPEN for registration! Head to www.charityfootprints.com/SFS2024 For more details, to start your team, or to contribute to the cause! We are partnering with the Melanoma Research Alliance (MRA) to maximize the benefits from the funds raised. The money we raised last year will be matched by MRA to fund a 2-year research grant for Ocular Melanoma. Grant proposals have been received and are currently undergoing the MRA’s meticulous grant review process. Once proposals have been approved, we will work with MRA to jointly issue the grant award and make the announcement in Spring 2024. This year with your help, we can fund another actionable research project exclusively for Ocular Melanoma. We are always better together - so don’t wait! Register and start a team for Steps for Sight today! https://youtu.be/Qjojfn3NfxE ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight, an ocular melanoma foundation and special guest, Dr. Lauren Dalvin at Mayo in Minnesota to chat about AAO and the exciting news for uveal melanoma, and then tune in for a discussion validating the patient experience and journey with initial diagnosis of ocular melanoma. She shares the news from 3 new primary treatments of the eye. There is so much excitement in the realm of what is new and novel. Uveal melanoma as a whole is looking so much more hopeful with the acceleration of research! STUDY LINKS: https://media.ideayabio.com/2023-01-23-IDEAYA-Announces-Darovasertib-Phase-2-Initiation-in-Neoadjuvant-and-Adjuvant-Uveal-Melanoma-and-Guidance-for-Clinical-Data-Update-in-Metastatic-Uveal-Melanoma https://ir.aurabiosciences.com/news-releases/news-release-details/aura-announces-global-phase-3-trial-design-suprachoroidal-route https://public.jaeb.org/drcrnet/stdy/598 ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight, an ocular melanoma foundation, to interview Suzanne O'brien on the topic of Palliative v. Hospice care. Suzanne B. O’Brien RN is the Founder & CEO of Doulagivers Institute. Her life's mission is to increase the availability and access to high quality end of life education and care for patients and families throughout the world. Suzanne has developed free resources and trainings for family caregivers and practitioners from her firsthand experience working at the bedside of over 1,000 end of life patients as a hospice nurse and palliative care professional. Doulagivers Institute was formed in 2012 by Suzanne after she was moved to action by what she witnessed in the homes of her dying patients as a hospice nurse - both the beautiful, empowering deaths that she feels every person has a right to experience and the heartbreaking, traumatic ones that she recognized were the reality for far too many. Improving end of life outcomes for all members of the community through education and advocacy, as well as increasing satisfaction with the home hospice care experience is the ultimate goal of Doulagivers Institute. Suzanne is a registered nurse and has been awarded “Worldwide Leader in Healthcare” by the International Nurses Association for creating Doulagivers Institute. She has worked directly at the bedside of over one thousand end of life patients as a hospice and oncology nurse. Suzanne has a degree in Transpersonal Counseling and Spiritual Ministry from (AIWP) in Los Alamitos, CA and was named Humanitarian Ambassador for Oprah Magazine in 2019 for her work to bring peace and comfort to those facing the end of life around the world. Her socials are the following: IG: https://www.instagram.com/suzannebobrienrn/ FB: https://www.facebook.com/Doulagivers/ YT: https://www.youtube.com/@SuzanneBOBrienRN Tiktok: https://www.tiktok.com/@hospicenursesuzanne LinkedIn: https://www.linkedin.com/in/suzanne-o-brien-rn-0274471a4/ Pinterest: https://www.pinterest.es/suzannebobrien/ ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

A Cure in Sight, an ocular melanoma foundation, is joined by guest, Jennifer Welborn, from Richmond, VA. She is daughter of Bobby Welborn, a patient who valiantly fought OM until July of 2023 when he passed. She has dedicated her participation in the All American and Mrs. All American Pageants, directed by Patricia Sullivan, to her father’s legacy, and conveys a level of advocacy we are proud to bear witness to, and have her support in. With her crowning as All American International, she has planned for her year’s appointment to serve an immense purpose: Sharing far and wide the news of ocular melanoma, and shedding light on the inconsistencies in patient care, the struggles of patients day to day, and all in all giving omies around the world a VOICE. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Steps for Sight 2024 is officially OPEN for registration! Head to www.charityfootprints.com/SFS2024 for more details, to start your team, or to contribute to the cause! We are partnering with the Melanoma Research Alliance (MRA) to maximize the benefits from the funds raised. The money we raised last year will be matched by MRA to fund a 2-year research grant for Ocular Melanoma. Grant proposals have been received and are currently undergoing the MRA’s meticulous grant review process. Once proposals have been approved, we will work with MRA to jointly issue the grant award and make the announcement in Spring 2024. This year with your help, we can fund another actionable research project exclusively for Ocular Melanoma. We are always better together - so don’t wait! Register and start a team for Steps for Sight today! https://youtu.be/Qjojfn3NfxE Melanoma Research Alliance Ocular Melanoma Foundation ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Barbara from Fred Hutch will talk about empowering yourself in survivorship. Barb is currently working at Fred Hutch in the Dept of Oncology serving as the APP for the Survivorship program. As a Stage 3c melanoma patient in surveillance she hopes to support her patients not only as their provider but fellow survivor. Email [email protected] with questions. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

In this session, hear from various experts about what it takes to get a drug to market. The bottom line is that research simply does NOT equal a cure. Learn from some of the best in the uveal melanoma pharma world about the process of bringing a treatment or new drug to market. Experts include Dr. Katz, Chief Medical Officer at TriSalus Life Sciences; Dr. Wade from Aura Bioscienes, Lucinda Innes, a PHD research student investigating uveal melanoma, and research board member Kevin. Dr. Steven Katz has been the Chief Medical Officer at TriSalus since September 2020 and is Chairman of the Scientific Advisory Board, which includes leadership of TriSalus’ Translational Immunotherapy Laboratory. Christian Wade, PhD is a medical affairs leader with over 16 years of experience in the pharmaceutical industry. He is currently the Director of Field Medical Affairs at Aura Biosciences, where he is responsible for leading the field medical affairs team for a portfolio of innovative therapies. Dr. Wade is a graduate of the University of San Francisco and holds a PhD in pharmacology from the University of Washington. He is a member of the Medical Affairs Association and the Pharmaceutical Research and Manufacturers of America. Lucy was born and raised in Seattle and attended Western Washington University, where she earned her degree in biochemistry. In 2021, she pursued her PhD at Weill Cornell Medicine in New York City. During her first year there, she was diagnosed with Ocular Melanoma. This personal challenge inspired her to redirect her research focus towards the disease. Since her diagnosis in the fall of 2022, Lucy has been delving into the interactions between the immune system and ocular melanoma, aiming to improve the future of immunotherapies. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Tune in to hear a patient panel on "What to do when you’re just fed up and DONE with OM," moderated by Dr. Danielle Archer. Dr. Danielle Archer is a licensed mental health therapist and stage IV cancer patient. She utilizes her clinical experience and her cancer journey to help cancer patients manage their mental health before, during and after treatment. Dr. Archer also works with oncology professionals to understand the importance of incorporating mental health into their treatment plans. Danielle's area of expertise includes trauma, grief, depression, and anxiety with a special emphasis of treating individuals who have eating disorders pre cancer diagnosis. Our patient panel will include Loren Seamon, Vice President of the Board and 20+ year OM survivor, Wendy Carpenter, an OM patient who has survived a recurrence of her eye tumor, and Jack O’Dell, a surviving OM patient who has beat the statistics back against a wall. we’re excited to have this discussion together on what exactly can you do to put boundaries between yourself and the diagnosis that you live with so you can be present with everyday life. Email questions to [email protected]

Tune in to hear more about what is palliative care and how to choose between palliative care and hospice, and when to call each of them. Ted Dropcho, MD, is a Palliative Care physician practicing at Virginia Mason Medical Center in Seattle. He serves patients with serious illness and their families. He finds meaning in his work through focusing on patients’ priorities and values to help navigate their courses with serious illness. He and the other members of the palliative care team give additional support to patients and their care networks, and they treat symptoms to improve quality of life. He trained in Internal Medicine at Indiana University before coming to University of Washington for his Hospice and Palliative Medicine Fellowship. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

The first speaker, Gary Barg, spoke on the role of caregiving in a cancer diagnosis. A noted speaker, writer and publisher on caregiving issues since 1995, Gary Barg is Founder and Editor-In-Chief of the first national magazine for caregivers, Today’s Caregiver, as well the original online caregiver community, caregiver.com. Today’s Caregiver magazine and caregiver.com combine information, advice and reader’s stories with interviews with celebrity caregiver such as Leeza Gibbons, Rob Lowe, Dana Reeve, Barbara Eden and Debbie Reynolds, among others. Gary created The Fearless Caregiver Conferences, hosted across the country, which brings together caregivers to share their knowledge and experience and wisdom. His books include, The Fearless Caregiver, Caregiving Ties that Bind, and You Are Not Alone. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Our final session covers metastatic disease. First, you will hear from Dr. Hall about finding and treating metastases, then from Lucinda Innes about current and upcoming clinical trials, and finally you will hear from Dr. Brechbiel about family and patient coping with a mets diagnosis. Dr. Evan Hall is an oncologist at Fred Hutch who specializes in treating patients with skin and kidney cancers. His research focuses on ways to measure and improve quality of life for patients with cancer. Dr. Brechbiel is a clinical psychologist at Fred Hutch Cancer Center. Her grandfather’s legacy influenced her to work with people who were living with serious medical conditions or acquired new disabilities to help them learn to live with it instead of against it. In 2021, Lucy Innes began to pursue her PhD at Weill Cornell Medicine in New York City. During her first year there, she was diagnosed with Ocular Melanoma. Since her diagnosis in the fall of 2022, Lucy has been delving into the interactions between the immune system and ocular melanoma, aiming to improve the future of immunotherapies. This session is brought to you by Immunocore. "Immunocore is a pioneering, clinical-stage T cell receptor biotechnology company working to develop and commercialize a new generation of transformative medicines to address unmet needs in cancer, infection and autoimmune disease. Their initial therapeutic focus is in oncology, where pivotal clinical trials are currently underway for their lead program, tebentafusp, as a potential treatment for metastatic uveal melanoma, a rare form of eye cancer. We thank them for being a return sponsor for the Eye Believe Survivorship Seminar." Email questions regarding this session to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

This session is brought to you courtesy of sponsorship by IDEAYA Biosciences. "IDEAYA is a precision medicine oncology company with deep research and development expertise in synthetic lethality. We are passionately pursuing the discovery and development of targeted therapeutics for patient populations selected using molecular diagnostics. IDEAYA has a world-class team of leading scientists and advisors with extensive knowledge and expertise in cancer biology, small molecule drug discovery, translational biology and clinical development." This session, you will hear from Dr. Stacey, about what we know about prognosis at the time of diagnosis, Dr. Bhatia about screening protocols and using prognostic information, and then Dr. Brechbiel about coping with high risk features and poor prognosis. Andrew Stacey, M.D., M.S., is an Ophthalmologist at the Eye Institute at Harborview and a UW assistant professor of Ophthalmology. Dr. Bhatia is medical oncologist at Fred Hutch Cancer Center who specializes in the care of patients with advanced skin cancers that generally require systemic surveillance and therapy. Dr. Brechbiel is a clinical psychologist at Fred Hutch Cancer Center. Email questions regarding this session to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to hear from Todd and Tawnya Cranmore, board certified ocularists who share about Prosthetics 101 - understanding how a prosthetic is made, how to care for it, etc. Todd Cranmore is a Licensed Ocularist in Washington State, a Board Certified Ocularist (BCO) and a Board Approved Diplomate Ocularist (BADO). Combining medicine, artistry and engineering, Todd creates an amazing replica of the natural eye. Along with his education in ocular prosthetics, he has earned a degree in biochemistry from the University of Washington. Todd loves hanging out with his family, prefers to be out on the water boating and especially loves wake surfing. Tawnya Cranmore is an Apprentice Ocularist combining her creativity and compassion to care for others. She is a graduate of the University of Washington with a Bachelor of Arts degree. She values the opportunity to partner with her husband Todd and the whole team through the rewarding work at Northwest Eye Design. She enjoys being with friends & family, game nights, volunteering, walks and hikes. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Share this with your newly diagnosed omies friends--A Cure in Sight is joined by Dr. Andrew Stacey, Dr. Binkley, and Dr. Nguyen to discuss ocular treatments and side effects. A special thanks to Aura Biosciences for sponsoring this session. Their clinical trial is noted by Dr. Binkley in this session. At Aura, their mission is to develop a new class of oncology targeted therapies that deliver meaningful therapeutic benefit to a range of cancer indications with high unmet need in which they believe they can establish a new standard of care . They are driven by a passion and commitment to science and the patients battling cancer who are relying on them to pioneer these new therapies. Andrew Stacey, M.D., M.S., is an Ophthalmologist at the Eye Institute at Harborview and a UW assistant professor of Ophthalmology. Dr. Stacey knows an appointment with your doctor can be stressful. He enjoys teaching patients about what he sees in their eyes and providing them with information and options. Dr. Stacey earned his M.D. at Ohio State and his M.S. at Brigham Young University, where he was a linebacker on the football team. He has authored many publications and book chapters related to ocular tumors and maintains numerous national and international research collaborations in the field. Dr. Binkley is an ophthalmologist at the University of Iowa Hospitals & Clinics. Dr. Binkley completed her Vitreoretinal Surgery Fellowship in 2016 and Retina Clinical and Molecular Research Fellowship in 2017 at the University of Iowa Department of Ophthalmology and Visual Sciences. Dr. Nguyen was born and raised in Saigon, Vietnam. He moved to sunny California at the age of 19 to pursue higher education. He attended University of Wisconsin School of Medicine on a full scholarship then completed his Ophthalmology residency at the University of Washington where he conducted extensive research in uveal melanoma with Dr. Andrew Stacey. After residency, he received more vigorous training in Cornea and External Disease at the world-renowned UCSF/F.I. Proctor Foundation. Dr. Nguyen is currently providing expertise care for patients in San Diego, California. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight event host Danet Peterson to hear from Dr. Chen and Dr. Bowen on radiation basics. Understanding how a plaque is made, how radiation treatment is determined, and everything that goes into treating melanoma in the eye. Dr. Chen; I am a board-certified radiation oncologist who specializes in caring for patients with ocular melanoma, the most common type of eye tumor, and genitourinary cancers (GU), which affect the urinary tract and male reproductive system. My expertise includes using proton therapy, a type of targeted radiation therapy that minimizes radiation exposure to healthy tissue. At UW Medicine, I research ways to improve treatments for GU cancers, such as prostate cancer, as well as ocular melanoma. Prior to joining Fred Hutch, I completed a PhD in pharmacology and served as chief resident at New York-Presbyterian Hospital. Dr. Bowen Dr. Bowen trained at the prestigious Cleveland Clinic in ophthalmic oncology and then completed advanced retinal surgery training at the University of Iowa. He is a member of the Society of Heed Fellows, a distinguished organization that supports the advancement of ophthalmic research and education. In recognizing the emotional and physical trauma this diagnosis brings patients and their families, his goal is to bring hope through cutting edge treatment modalities, research in bio-innovation, and strong interdisciplinary collaboration with Northwestern Medicine’s team of experts. Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

First up today you'll hear from Dr. Dennis Stacey, the father of Dr. Andrew Stacey. He will talk about the biology of cancer. Then you'll hear more from Dr. Andrew Stacey on the Biology of Uveal Melanoma. Finally you will hear from Dr. Lucinda Innes about different melanomas, different immunities. Dennis Stacey PhD. As a cancer researcher, Dennis has witnessed the explosion of information related to the causes and treatments for cancer. Since the 1980s his laboratory has focused on understanding how cell division is controlled. This laboratory participated in some of the critical observations upon which our basic understanding of cancer growth is based. Currently, his laboratory in Cleveland OH is focused upon identifying a novel cancer treatment strategy, based upon observations made in his laboratory. Andrew Stacey, M.D., M.S., is an Ophthalmologist at the Eye Institute at Harborview and a UW assistant professor of Ophthalmology. Dr. Stacey knows an appointment with your doctor can be stressful. He enjoys teaching patients about what he sees in their eyes and providing them with information and options. Dr. Stacey earned his M.D. at Ohio State and his M.S. at Brigham Young University, where he was a linebacker on the football team. He has authored many publications and book chapters related to ocular tumors and maintains numerous national and international research collaborations in the field. "Lucy was born and raised in Seattle and attended Western Washington University, where she earned her degree in biochemistry. In 2021, she pursued her PhD at Weill Cornell Medicine in New York City. During her first year there, she was diagnosed with Ocular Melanoma. This personal challenge inspired her to redirect her research focus towards the disease. Since her diagnosis in the fall of 2022, Lucy has been delving into the interactions between the immune system and ocular melanoma, aiming to improve the future of immunotherapies." Email questions to [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Meet Steven Russel, a 15+ year ocular melanoma survivor. Steven approached A Cure in Sight and asked us to help create a fundraiser page for him to let the voting public decide: Come March 3, 2024, should the beard stay and GROW or shave and GO!? YOU decide! Help us share posts about Steven's Let it Grow or Go campaign to raise funds for ocular melanoma. Funds raised benefit A Cure in Sight and go to patient program support and research! Vote at the link below and SHARE SHARE SHARE to get your friends and family involved in the voting competition too! https://acureinsight.org/let-it-grow-let-it-go ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

A Cure in Sight is joined by guest, Dr. Darrin Beaupre, Chief Medical Officer at IDEAYA Biosciences. He tells the story of his history in the field of cancer, molecular biology research, and where he is currently with his research at IDEAYA. He fiercely conveys the passion and drive of IDEAYA Biosciences as a whole to develop and fine tune novel therapies in the realm of cancers, touching specifically on their story in uveal melanoma. They are a company devoted to thinking outside the box, pivoting and adjusting their hard work as a team, and trusting that their combined efforts and scientific methods will yield the desired results. You can find the exciting ESMO 2023 data presented at this link. Check out their website: https://www.ideayabio.com/ Learn more about darovasertib here: https://www.ideayabio.com/pipeline/#darovasertib ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami March 24, 2024, Tampa, FL https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL March 30, 2024, Brooklyn, NY https://runsignup.com/Race/NY/Brooklyn/LookinForACureBrooklyn May 18, 2024, Raleigh, NC https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon! Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to interview guest, Heather McMenamin, a patient originally from England, currently living in Houston, TX, and diagnosed with ocular melanoma in 2021. “I went for my annual eye exam 9-22-21, (because of COVID it was actually 18 months since my previous eye exam, normally done every year). I was asymptomatic and more concerned about what new frame I might pick out. The doctor was quite concerned about the large mass in my left eye and said I needed to see a retina specialist STAT. I was able to get an appointment for the next morning at which time the doctor dilated my eyes and very quickly said I needed to see an Ocular Oncologist - he did not give me a diagnosis but at this point I knew it was serious. I was referred to Dr. Amy Schefler and got an appointment 9-29-21. After hours of testing she diagnosed me with Uveal Melanoma. I had Brachytherapy 11-01-21, plaque was in for 7 days. That was an odd experience to look back on. I just had my 2nd year anniversary and so far no sign of METS, next scan 10-19-23 and I began eye injections last month as I have signs of retinopathy.” If you take anything from Heather’s episode, we hope you glean that knowledge is so empowering as a patient, and that the knowledge you share with others to help spread awareness makes such a key difference. You can find Heather on facebook, and also in the Houston area if you head to the Houston 5K coming up on Dec 10th! Her favorite song referenced in this episode is “Take Me Home Country Roads.” ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight to interview Dr. Jesse Berry for this episode chosen and sponsored by Castle Biosciences - the topic? Eye exams and early detection - does finding OM earlier REALLY make a difference? In what ways? Jesse L. Berry, MD is a board-certified ophthalmologist with subspecialty training in ocular oncology. She received her undergraduate and medical degree from Harvard University in Massachusetts. Following her ophthalmology residency at the University of Southern California, she was the Assistant Chief of Service at the Los Angeles County Medical Center. She completed a fellowship in Ocular Oncology at Children’s Hospital Los Angeles. She currently serves as the Vice Chair for Academic Affairs for the Department of Surgery and Director of Ocular Oncology at the Vision Center, CHLA. Dr. Berry actively treats patients with retinoblastoma, uveal melanoma, intraocular and ocular surface tumors. She is active academically within the broader field of ophthalmology and ocular oncology. She is the Vice President for the International Society of Ocular Oncology and was the conference chair for the biennial meeting in Los Angeles in 2019. She is an active advocate for mentorship and opportunities for young ophthalmologists. As such, she is a member of the Young Ophthalmologist committee through the American Academy of Ophthalmology and co-leads the committee for young ophthalmic oncologists and pathologists (YOOPs). Dr. Berry is active within the Women in Ophthalmology organization and is the founder of WOO, Women in Ocular Oncology. As a physician-scientist, Dr. Berry studies outcomes for retinoblastoma, melanoma and other tumors. Her main interest is the development of the aqueous humor as a liquid biopsy for retinoblastoma and other intraocular disease. She was awarded a K08 from the National Cancer Institute of the National Institute of Health in 2018 to further study this. In 2019 she was promoted to Associate Professor of Ophthalmology, Clinical Scholar, a special distinction provided by USC. In 2021 she was awarded the prestigious USC Faculty Mentoring Award. She currently holds the USC Berle & Lucy Adams Chair in Cancer Research. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!? December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join event host and fellow patient Danet Peterson to chat with a few other omies on how they have coped with their diagnosis. Patients on the panel include Carrie Younger-Howard and Linda Boran. Reach out to [email protected] if you have interest in being part of a panel discussion on the podcast or at a future event. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join Melody Burchett, founder and President of A Cure in Sight, with communications and events coordinator, Hanna Hulick to discuss the INSIGHT Registry. This is a unique rare disease patient registry. insight.iamrare.org The INSIGHT Registry is an online registry for patients with Ocular Melanoma (OM). It will be hosted by the National Organization for Rare Disorders (NORD); an independent non-profit patient advocacy organization dedicated to individuals with rare diseases and the organizations who serve them and as such is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. The registry will collect information from participants, (or their authorized respondents, heretofore referred to collectively as “participants”), who are affected by Ocular Melanoma. join the registry today: insight.iamrare.org reach out to [email protected] for support with the registry. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

An interactive presentation by fellow patient, Anne Osborn, who discusses the benefits of meditation on whole body health and in aiding patients in coping with ocular melanoma. Anne Osborn, Author of the book, Coping with Ocular Melanoma: A toolbox, grew up in the shadows of OM when her mother died of OM. Forty years later, she was diagnosed with OM, Class 2. She spent her career in human services and trained as a psychotherapist. Her passions outside of family and friends include travel, writing, and being of service. Her book, Coping with Ocular Melanoma: A Toolbox is published and available for purchase at the store. All proceeds from her book go directly to patient care. contact Anne: [email protected] ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Welcome to this year's Eye Believe 2023 Survivorship Seminar recording series. A discussion on Integrative Medicine and Ocular Melanoma with Blake Langley. Dr. Blake Langley is a licensed naturopathic physician and acupuncturist studying the impact of acupuncture therapies on quality of life and clinical outcomes in patients receiving active treatment for various cancers. As a Staff Scientist at the Fred Hutchinson Cancer Center, Dr. Langley works administers acupuncture for multiple clinical trials and serves as the principal investigator for an NCCIH-funded clinical trial assessing the use of ear seeds in outpatient settings. Dr. Langley is passionate about conducting research that supports increased patient access to integrative therapies nationwide. Learn more at https://www.fredhutch.org/en/patient-care/services/integrative-medicine.html email Dr. Langley [email protected] Our seminar this year was brought to you by Castle Biosciences and co-hosted by University of Washington Eye Institute, and Fred Hutch Cancer Center, and the Ocular Melanoma Foundation. This year's sponsors include Aura Biosciences, Immunocore, IDEAYA, Delcath Systems, Trisalus Life Sciences, North West Eye Design, and Replimune. Special thanks to our hosting doctor, Dr. Stacey, and all speakers and participants who made this possible. ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Alrighty friends--the game is on! See the pic for details on our recipe book fundraiser, how to submit a recipe, and how you could win one of the drawings for prizes! We want recipes from ANYONE and everyone in the OM community world wide--keep it super simple or get fancy. Share with patients, caregivers, physicians, pharma reps--we want to create a special legacy in the #ocularmelanoma community! 𝐑𝐞𝐜𝐢𝐩𝐞𝐬 𝐜𝐨𝐥𝐥𝐞𝐜𝐭𝐞𝐝 𝐮𝐧𝐭𝐢𝐥 𝐦𝐢𝐝𝐧𝐢𝐠𝐡𝐭 𝐨𝐧 𝐍𝐨𝐯 𝟏𝐬𝐭 𝐬𝐨 𝐰𝐞 𝐜𝐚𝐧 𝐚𝐢𝐦 𝐟𝐨𝐫 𝐚 𝐜𝐨𝐨𝐤𝐛𝐨𝐨𝐤 𝐫𝐞𝐚𝐝𝐲 𝐟𝐨𝐫 𝐨𝐫𝐝𝐞𝐫𝐢𝐧𝐠 𝐚𝐬 𝐚 𝐡𝐨𝐥𝐢𝐝𝐚𝐲 𝐠𝐢𝐟𝐭! Submit a recipe here: www.tinyurl.com/ACIScookbook

Join A Cure in Sight to visit with Dr. Kristie Nguyen, an optometrist, who explains the reasons eye exams are important. Share this episode with those in your community still skeptical of if they should have both dilation and photos taken of the eye for a routine comprehensive eye exam. #nationaleyeexammonth is August, and we are grateful to Dr. Kristie helping to spread awareness for eye exams with us! Dr. Kristie Nguyen is an optometrist from Orlando, Florida Follow her on Instagram: @dr.kristienguyen ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Phoenix, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]

Join A Cure in Sight as we interview Patricia Daly, an OM survivor and nutritional therapist. She shares her personal journey with ocular melanoma, including a recurrence of her tumor in her eye and local orbital spread, and how she began a journey to healing her body’s metabolic system, one small step at a time. “Patricia was diagnosed with a 15.2-mm large choroidal melanoma in 2008. Following plaque radiotherapy under Professor Bertil Damato in Liverpool, she responded well to the treatment but not even two years later suffered a recurrence. The original tumour now measured 18.3mm and there was also local spread with an extraocular tumour of 6.2mm, called "extraocular extension" (stage T4e). Patricia was treated with proton beam therapy in Clatterbridge. Another two years on, in 2012, there was renewed tumour activity and excessive angiogenesis- and this was the moment she opted out of further treatment and embarked on a metabolic health journey, which is an ongoing process for her. Patricia Daly is an experienced and internationally recognized nutritional therapist (MSc, dipNT, mBANT, rCNHC) specializing in the personalized application of ketogenic metabolic therapies for recovery from chronic health challenges. She credits the ketogenic lifestyle for successfully quieting an aggressive eye tumour she was diagnosed with fifteen years ago. In 2021, she completed her MSc degree in "Advanced Nutrition in Research and Practice" at Middlesex University in London. Patricia is co-author of The Ketogenic Kitchen, a best-selling cookbook that includes meal plans for therapeutic carbohydrate restriction. Born in Switzerland and living in Ireland, Patricia is a proud founding and advisory member of the European Keto Live Center based in Switzerland. She regularly speaks at international conferences and has established herself as one of the leading practitioners in the field of metabolic therapies. Nothing makes her prouder than witnessing her clients transform from bystanders to active and empowered participants on their health journey." Find more free resources at her site here: https://patriciadaly.com/ Learn about the Recovery Fundamentals course here: https://patriciadaly.com/recoveryfundamentals/ ANNOUNCEMENTS: 5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! November 11, Los Angeles CA https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles November 19, Scottsdale, AZ https://runsignup.com/Race/AZ/Scottsdale/LookinforaCure5k December 9, Dallas FTW TX https://runsignup.com/Race/TX/FortWorth/LookinForACureFortWorth December 10, Houston, TX https://runsignup.com/Race/TX/Houston/LookinForACureHouston January 20, 2024 Orlando FL https://runsignup.com/Race/FL/Orlando/LookinForACureTampa January 21, 2024, Miami FL https://runsignup.com/Race/FL/Miami/LookinForACureMiami Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!! www.lookinforacure.org Subscribe to the newsletter to stay in the know Newsletter link Email [email protected] for questions regarding any upcoming events! ********* Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM! *A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. Contribute via PAYPAL OR VENMO or reach out directly to [email protected]