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The Secret Life of Parkinson's

The Secret Life of Parkinson's

203 episodes — Page 3 of 5

#103: Parkinson's advocate and podcaster, Mr. Larry Gifford!

In this episode, we invited Larry Gifford to the show! What an inspiration he is! Larry was diagnosed with Parkinson's in 2017 and since then, he launched his own podcast, "When Life Gives You Parkinson's", co-founded PD Avengers, on the MJFF Patient Council, and is now hosting the podcast for the Brian Grand Foundation, "On Time"....among many other advocate-like things. He talks about his recent DBS, his advocacy work and ways others can get involved. Thanks, Larry!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

May 9, 202431 min

#101: Living with Parkinson's for 9 years

In this episode, we bring back Dave Kolbe from Episode #11. Dave has had Parkinson's for 9+ years and is still living his best life! Hear the advice and tips he has to those of us who are newly diagnosed (or those who are years in!).Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Apr 25, 202429 min

#100!!!!! Top Parkinson's Podcasts

It's been over 2 years since we launched, "The Secret Life of Parkinson's". We recorded our 100th episode and are excited to share our top 5 most viewed episodes and the episodes the four of us learned the most from. Check it out! Thanks for viewing and following our journey! We are so grateful for all the viewers and appreciate all the comments. Keep them coming!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Apr 17, 202431 min

#99: Skeptical about taking Parkinson's medication?

Check out our latest interview with Dr. Patel where we talk about MDS's approach to medication with their patients, their reaction to taking or not taking medications, and much more!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Apr 10, 202426 min

#97: Living with Parkinson's led them to Love

In this episode, hear the love story of Allie and Steven. You may recognize them from #LitWithin or #InLoveWithParkinsons. While they lived over a thousand miles apart, Steven found Allie's blog, LitWithin, reached out to her, and the rest is history. Both living with Parkinson's, they met, fell in love, got married, and just recently, got DBS together - on the same day! Inspiring story you don't want to miss!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 21, 202418 min

#96: Why Physical Therapy is a must for Parkinson's

I've been waiting all week to share this video! For those who watched my "live" video about elbow/shoulder issues, this is a MUST SEE! I never had a reason to go to a Physical Therapist, but my MDS recommended it when medication wasn't fully helping the pain. The results...let's just say I'm a believer in PT! I'm not a doctor, and I know everyone experiences different symptoms, but I highly recommend using all the tools that your doctor provides you! Check out why.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 11, 20249 min

#98: Dopamine and the Power of Socializing

While socializing may not directly increase dopamine levels in Parkinson's patients in the same way that medication or deep brain stimulation does, the positive experiences associated with social interaction can indirectly contribute to dopamine release and have beneficial effects on symptom management and overall well-being. Therefore, go on that girls trip or boys trip! Take the family on a weekend getaway or staycation. Don't isolate - continue to foster social connections and maintain an active social life.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 11, 20248 min

#94: Parkinson's and Gut Health - Can Probiotics help you?

In this informative episode, we learn from Martha Carlin all about poop (yes, poop), our gut, and it's relation to Parkinson's disease. Martha has been researching gut health since her husband was diagnosed with Parkinson's 20 years ago. Inspired by groundbreaking research from Dr. Filip Scheperjans in 2014, Martha founded The BioCollective, a research company focused on mapping health, and then later created BiotiQuest probiotics. The amount we learned in this short segment is amazing! Tune in today!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Feb 20, 202440 min

#95: Did surgery trigger my Parkinson's?

Tune in to hear our friend, Thalia, talk about her journey to Parkinson's. She went in for a heart transplant which she believes may have triggered the onset of Parkinson's. This disease is a complex neurodegenerative disorder with multifactoral causes, and not everyone who experiences trauma or surgery will develop Parkinson's as a result. But there is some evidence that suggests if you are already predisposed to the condition due to genetic or other factors, that the onset is possible after such events.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Feb 17, 202425 min

#93: Coping with Parkinson's arm pain and masked face

In this episode, we talk about Jessica's approach to her new Parkinson's symptom (shoulder and elbow pain/tension) and tips on how Brian can exercise his masked face. We cover a few other random topics...not sure why, but this episode just made us laugh. Always good when have fun with your PD friends ;)Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Feb 14, 202415 min

#92: Parkinson's and your hospital action plan

Download ebook: https://www.parkinson.org/library/books/hospital-action-planOrder the book: https://www.parkinson.org/resources-support/pd-library/order-publicationsIf you have not ordered or downloaded this book from the Parkinson's Foundation, I suggest you do it today! It is filled with great information. Easy to read! There are pages you are supposed to tear out to bring with you. At some point, we will all go to the hospital for some reason - Parkinson's related or not. But living with Parkinson's, we always have to be prepared. Check this out today! Nice work Parkinson's Foundation!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jan 24, 202411 min

#91: Preventing Falls with Parkinson's: Can You Do It?

No one plans on falling but when you are living with Parkinson's, there is a high likelihood that falling may occur due to the disease, or just a normal trip on the curb. Either way, there are things you can learn about and things you can practice today to be prepared if and when a fall occurs.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jan 16, 202421 min

#90: Symptoms come and go

In this episode, we discuss symptom changes. Every Parkinson's patient is different: their symptoms, disease progression, response to medications...everything. It's always good to keep a journal and document any symptoms, whether they come and go or come and are here to stay.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jan 16, 202410 min

#88: What topics to expect in 2024 from The Secret Life of Parkinson's

Brian and Jessica share future episodes that you can expect in 2024!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jan 8, 202419 min

#87: Do you have Parkinson's and suffer from shoulder pain?

In this episode, we talk about our experiences with a "frozen shoulder" or pain in your shoulder. Rigidity, tension, and stiffness. Medication and continuing to exercise/move my arm has helped alleviate some of the stiffness at the moment. Do you suffer from pain in your shoulder?Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Dec 21, 202311 min

#86: Art therapy for Parkinson's

In this episode, we talk with Lisa who is a person living with Parkinson's and has found painting as her therapy. She never painted before, but after living with Parkinson's for 10 years, she decided to give it a try and now she's hooked. According to the APDA, "Art therapy may also be a tool that enhances the lives of people with PD more generally. One small study investigated clay art in people with PD and showed improvements in hand dexterity, mood, and quality of life."What kind of art have you tried? https://www.apdaparkinson.org/article/art-therapy-parkinsons-disease/#:~:text=Art%20and%20PD%3A%20Beyond%20the,mood%2C%20and%20quality%20of%20life.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Nov 20, 202317 min

#85: Parkinson's Psychosis - a Care Partner perspective

This interview is longer than most, but for good reason. My good friend, Leah Dennis, shares her personal journey of what it was like witnessing her mother (diagnosed with Parkinson's in 2016) experience Parkinson's psychosis, only they didn't realize it was PD psychosis right away. In this video, Leah touches on "red flags" and warning signs that every care partner and patient should pay attention to. This is an episode you don't want to miss.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Nov 13, 20231h 1m

#83: How to manage a job search while living with Parkinson's

In this episode, Brian speaks very candidly about his recent work situation. Due to a reduction in workforce with his previous employer, Brian was laid off and is now searching for a new job. Like anyone, searching for a job can be stressful. But add Parkinson's to the mix, as well as being a single dad like Brian. Check out this video to see how he's handling these changes.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Oct 17, 202310 min

#82: Parkinson's and falling

In this episode, we are just scratching the surface with the topic of falling. Parkinson's or not, more than 1 in 4 people over the age of 65 fall each year. That number doubles if you are living with Parkinson's. Melissa introduces us to a few basic things to check into first, but as you can imagine, exercise is going to be a big part of this conversation!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Oct 16, 202318 min

#81: Roz's Deep Brain Stimulation (DBS) surgery 1 year later

In this episode, Roz gives us an update on her DBS journey. We always hear the success stories, and while hers is still a success, she's encountered a few bumps along the way. Listen to her current struggles and how she's working to overcome them.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Oct 13, 202320 min

#79 & #80: Uncovering the 5 Neurodegenerative Parkinsonisms

In this episode, Dr. Patel describes the difference between the 5 Neurodenerative Parkinsonisms: Parkinson's Disease, Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), and Lewey Body Dementia (which is discussed in Part 2). We take a quick break and come back on with Dr. Patel to talk about Lewey Body Dementia further and how it's different from Parkinson's Dementia and Alzheimer's. Great episode that everyone should hear!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Sep 28, 202341 min

#78: The 'Cookie Queen' of Columbus, OH and her journey with Parkinson's Disease

For those living outside of Ohio, Cheryl Krueger is a well-known entrepreneur in Columbus and is referred to as the 'Cookie Queen'. (Order her cookies and you'll quickly find out why: https://ckruegers.com/)She was diagnosed with Parkinson's 10 years ago, has faced, and continues to face, many daily challenges with walking, balance, and hallucinations. She has an incredible outlook on life and a sense of humor about her hallucinations. You don't want to miss this episode!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Sep 25, 202317 min

#77: DBS Journey in Canada vs. the USA - A Patient's Perspective

Join us for an exclusive interview with a Parkinson's Disease (PD) patient living in Canada who underwent Deep Brain Stimulation (DBS) surgery. Our guest shares her personal experiences and unique insights into the DBS process, shedding light on how it differs between Canada and the United States.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Sep 25, 202321 min

#76: Blake Bookstaff - author of “You have Young-onset Parkinson’s Disease

Blake Bookstaff, young-onset patient and author of: “You have young-onset Parkinson’s disease” joins us to talk about his journey with Parkinson’s and what he hopes his book will accomplish. P.S. his book is relevant for all ages of Parkinson’s patients.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Aug 30, 202320 min

#75: A deep, personal view of The National Plan to End Parkinson's Act with Fred Piccolo

As you saw in Episode #74 with Chris Jones, we discussed the National Plan to End Parkinson's Act. In this episode, we interview Fred Piccolo, a young-onset Parkinson's Patient AND the Director of Special Projects for Congressman, Gus Bilirakas, also working on this National Plan. His personal story and hope that is inspiring. By passing this bill in Congress, he believes we could see a cure in our lifetime.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Aug 28, 202316 min

#74: Unveiling the National Plan to End Parkinson's Act: An interview with Chris Jones

In this riveting episode, we sit down with Chris Jones, a dedicated staffer working alongside Gus Bilirakas, to dive deep into the National Plan to End Parkinson's Act. Chris shares his firsthand insights, shedding light on the act's significance and the path forward. If you're passionate about making a difference and eradicating Parkinson's disease, this conversation is a must-listen. Join us in advocating for change as we discuss the importance of reaching out to your state representative to ensure the passage of this crucial act. Tune in now and become a part of the movement that aims to change lives for the better.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Aug 28, 202315 min

#73: Parkinson's clinical research on exercise

Daniel Corcos, Ph.D. at Northwestern University, is running the first randomized control trial designed to investigate the effects of moderate- and high-intensity aerobic exercise on disease progression in untreated patients with Parkinson’s, called SPARX3. Listen as Dr. Corcos explains how aerobic exercise is a vital treatment for people living with Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Aug 7, 202324 min

#72: Do's and Don'ts of Surgery with Parkinson's

In this episode, Gene who is 75 and living with Parkinson's for 4 years, we learn that he is no stranger to surgeries. However, his most recent experience has his family speaking up about what they wish they knew or wish they would have done prior to this surgery. Listen in and learn about how to advocate for yourself or a loved one when you have a hospital stay.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Aug 4, 202323 min

#71: Kirk Gibson Foundation talks plans for Parkinson's in Michigan

Michelle Newman joins us from the Kirk Gibson Foundation to talk about plans their foundation has for Parkinson's patients living in Michigan. Kirk Gibson is a former professional baseball outfielder and manager and was named the National League MVP in 1988. During his career, he hit two dramatic home runs in the World Series! He is currently a color commentator for the Detroit Tigers on Bally Sports Detroit and a special assistant for the Tigers.In 2015, Kirk was diagnosed with Parkinson's and expanded the mission of the foundation to raise awareness and funding for Parkinson’s Research.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jul 29, 202318 min

#70: Tips and Tricks to Living with Parkinson's

In this episode, Jessica and Brian share a few tips and tricks that they use in their everyday life to make things a little easier. Everything from driving to clasping your necklace. Share your everyday tips with us in the comment section!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jul 23, 202317 min

#69: Jessica's young-onset Parkinson's journey: Advocacy, Faith, and Personal Growth

In this episode, our host, Jessica Krauser, takes you on an intimate exploration of the early days of her diagnosis to her remarkable transformation into an empowered advocate. Delve into the pages of her journal, where she meticulously documented the symptoms that led her to the life-altering diagnosis. Discover the depths of her prayer journal, where Jessica sought solace, answers, and guidance from God, grappling with the uncertainty and challenges that Parkinson's presented.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jul 11, 202314 min

#68: Unlocking the Power of Exercise: A Guide for Parkinson's Patients

In this empowering video, we delve into the crucial role of exercise in the lives of people living with Parkinson's disease. Discover how exercise has been proven to slow the progression of Parkinson's and enhance overall well-being. Whether you prefer walking, biking, running, rowing, or lifting, we encourage you to do what you love while incorporating other activities like yoga for stretching, dance for coordination, balance exercises, and cognitive work.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jul 11, 202322 min

#67: How loved ones deal with your Parkinson's

We conducted a survey within our YouTube community to gain insights into how our loved ones cope with our Parkinson's disease. Some ignore it or stress about it, while others talk about it, seek professional guidance, or have joined a dedicated support group.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jun 23, 202310 min

#66: Reel and Real: Exploring Carbidopa/Levodopa and Parkinson's in Cinema

In this podcast, we delve into the intersection of cinema portrayls of Parkinson's and how we feel about carbadopa/levedopa.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jun 15, 202318 min

#65: Living with Parkinson's? You need this kit!

In this exciting episode, we are thrilled to unveil the finished product of our much-anticipated First Step Set. In this episode, you'll get an exclusive sneak peek at the personalized items we curated for this kit. We already distributed 100 kits - listen to find out how you can support us and hopefully receive a kit in the future!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Jun 15, 202317 min

#64: Discover the Michael J Fox Foundation and Team Fox

Join us as we chat with Danielle, a representative from the Michael J Fox Foundation, about the groundbreaking BioMarker study. Gain a deeper understanding of its impact on Parkinson's research and learn how you can make a tangible difference by joining Team Fox.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

May 26, 202319 min

#63: Parkinson's revealed: Vital knowledge for every patient!

Join us as we embark on a journey that began as a straightforward Q&A session with the esteemed Dr. Patel, only to delve into a startling revelation. In this episode, we explore the necessity for individuals with Parkinson's who find themselves admitted to a hospital, be it for surgery or any other reason, to disclose specific medications hospital staff should avoid due to their condition. The significance lies not in the interaction with other drugs but rather in their interaction with Parkinson's itself. Don't miss out on this essential episode! Tune in now!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

May 18, 202334 min

#62: Brian's first vacation since his Parkinson's diagnosis

This is a very short segment, but Brian shares how he felt on his first vacation in 7 years (since his diagnosis). #Don'tBeAfraidToTravel!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

May 15, 20234 min

#61: Takeaways from Team Fox MVP event

Join us for a deep dive into the cutting-edge world of Parkinson's research and clinical trials! We've got the inside scoop from April's Team Fox MVP event, and we're excited to share all the latest breakthroughs with you. Plus, we're shining a spotlight on Michael J. Fox's powerful new documentary, Still. Don't miss this opportunity to stay informed and inspired!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

May 15, 202314 min

#60: Employment advice when living with Parkinson's

If you've been diagnosed with Parkinson's and don't know how to talk to your employer or when to talk to your employer, listen to the advice we received when we interviewed a retired Law Employment Attorney! You don't want to miss it!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

May 15, 202323 min

#59: The good and bad: Reactions from family & friends to my Parkinson's diagnosis

Telling family and friends about your diagnosis can be difficult. Did they deny it, accept it, or feel like they could fix it? Communicate, communicate, communicate!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Apr 24, 202321 min

#58: A therapists journey with Parkinson's

Liz Miller is a psychotherapist and shares her Parkinson's diagnosis journey. Acting out dreams, depression, tremors, and finding a PD community.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Apr 24, 202322 min

Episode 57: The Ripple Effect: How a Woman's Fundraiser Created a Parkinson's Community

The Secret Life of Parkinson's: In this episode, you'll hear from Bethany Richards, the Founder of Bike Box Project. A simple idea she had years ago (putting a box on her bike to raise awareness and donations for MJFF) has turned into a Parkinson's community of over 70 people living with PD in New Bern, North Carolina!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Apr 7, 202318 min

Episode 56: Parkinson's patient making a difference globally and locally

I can't say enough about Dr. Soania Mathur. To put it simply, she is extraordinary. She has been living with Parkinson's since she was 28...and now, 25 years later, she's not talking to us about her aches and pains (although I'm sure she has plenty), rather, she's sharing with us her path to advocacy. She said, "when you know better, you have to do better". And that's exactly what she's doing. Her passion and determination are changing the lives of others, not just locally, but globally.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 30, 202320 min

Episode 55: Answering (and asking for) your Parkinson's questions!

Brian and I take a few minutes to answer questions that some of you have asked in our comments! We are also asking what questions you may have that we can address when we have Dr. Patel on again. Check out The Secret Life of Parkinsonn's on YouTube if you want to leave a comment/questionSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 30, 202310 min

Episode 54: MRI guided Focused Ultrasound (FUS) for Parkinson's Disease

If you haven't heard about MRI-guided Focused Ultrasound (FUS), listen to our guest, Mark, a 60-year-old living with Parkinson's for 14 years, talk about his experience with the procedure. DBS was an option, but he wasn't thrilled with the idea of having wires in his head, so he decided to go the Focused Ultrasound route. He explains his outcome as "a second chance"...that it has been life-changing for him.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 30, 202321 min

Episode 53: Parkinson's and Pickleball...and a different approach to DBS

In this episode, Marcus Woodhouse joins us to talk about his adventures with pickleball and Parkinson's. It's a sport he picked up 1 year before he was diagnosed, but it's also a sport that is helping him more than he realized. It's the perfect combination of exercise, socializing, and constantly moving! He also shared with us that he is scheduled to have CereTom(r) DBS. Marcus and Brian discuss the differences between their two DBS surgeries. We'll follow up with him again soon to hear more about that procedure.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 30, 202317 min

Episode 52: Everyday with Parkinson's is different

The Secret Life of Parkinson's: BRIAN IS BACK! In this episode, we spend a little time just catching up on how we are feeling. While we might look positive and put together, we all experience our off or bad days, and that's ok.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 30, 202315 min

Episode 51: What is the Parkinson's Progression Marker Initiative (PPMI) and what are we learning?

In this episode, I met with Jennifer, a Clinical Research Coordinator from the Cleveland Clinic in Ohio, who is working on an MJFF-sponsored research project called PPMI - Parkinson's Progression Marker Initiative. It's a landmark study collaborating with partners around the world to create a robust open-access data set and biosample library to speed scientific breakthroughs and new treatments. Jennifer explains how critical the PPMI study is to hopefully one day find what causes someone to have Parkinson's as well as other learnings they have found thus far.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Mar 30, 202319 min

Episode 50: When Parkinson's is in the family

In this episode, you'll meet one of my first young-onset friends, a young-onset woman that was diagnosed 3 years ago...just about the same age that HER mother was diagnosed when she was just a kid. You'll hear what it was like growing up with a young-onset mother as well as what it's like to have a young-onset now herself. Unlike most of us, she saw what Parkinson's is capable of. But, talking to her MDS on her first visit, she learned that there are so many new ways to slow the progression - things they didn't know back when her mom was diagnosed: medication management, nutrition, exercise, socializing, and reducing stress. Parkinson's affects more than just the individual...it can affect generations. So talk to your family about what you are going through or talk to a genetic counselor to learn more.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Feb 17, 202331 min