The Secret Life of Parkinson's

No one plans on falling but when you are living with Parkinson's, there is a high likelihood that falling may occur due to the disease, or just a normal trip on the curb. Either way, there are things you can learn about and things you can practice today to be prepared if and when a fall occurs.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, we discuss symptom changes. Every Parkinson's patient is different: their symptoms, disease progression, response to medications...everything. It's always good to keep a journal and document any symptoms, whether they come and go or come and are here to stay.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Brian and Jessica share future episodes that you can expect in 2024!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, we talk about our experiences with a "frozen shoulder" or pain in your shoulder. Rigidity, tension, and stiffness. Medication and continuing to exercise/move my arm has helped alleviate some of the stiffness at the moment. Do you suffer from pain in your shoulder?Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, we talk with Lisa who is a person living with Parkinson's and has found painting as her therapy. She never painted before, but after living with Parkinson's for 10 years, she decided to give it a try and now she's hooked. According to the APDA, "Art therapy may also be a tool that enhances the lives of people with PD more generally. One small study investigated clay art in people with PD and showed improvements in hand dexterity, mood, and quality of life."What kind of art have you tried? https://www.apdaparkinson.org/article/art-therapy-parkinsons-disease/#:~:text=Art%20and%20PD%3A%20Beyond%20the,mood%2C%20and%20quality%20of%20life.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

This interview is longer than most, but for good reason. My good friend, Leah Dennis, shares her personal journey of what it was like witnessing her mother (diagnosed with Parkinson's in 2016) experience Parkinson's psychosis, only they didn't realize it was PD psychosis right away. In this video, Leah touches on "red flags" and warning signs that every care partner and patient should pay attention to. This is an episode you don't want to miss.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, Brian speaks very candidly about his recent work situation. Due to a reduction in workforce with his previous employer, Brian was laid off and is now searching for a new job. Like anyone, searching for a job can be stressful. But add Parkinson's to the mix, as well as being a single dad like Brian. Check out this video to see how he's handling these changes.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, we are just scratching the surface with the topic of falling. Parkinson's or not, more than 1 in 4 people over the age of 65 fall each year. That number doubles if you are living with Parkinson's. Melissa introduces us to a few basic things to check into first, but as you can imagine, exercise is going to be a big part of this conversation!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, Roz gives us an update on her DBS journey. We always hear the success stories, and while hers is still a success, she's encountered a few bumps along the way. Listen to her current struggles and how she's working to overcome them.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, Dr. Patel describes the difference between the 5 Neurodenerative Parkinsonisms: Parkinson's Disease, Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), and Lewey Body Dementia (which is discussed in Part 2). We take a quick break and come back on with Dr. Patel to talk about Lewey Body Dementia further and how it's different from Parkinson's Dementia and Alzheimer's. Great episode that everyone should hear!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

For those living outside of Ohio, Cheryl Krueger is a well-known entrepreneur in Columbus and is referred to as the 'Cookie Queen'. (Order her cookies and you'll quickly find out why: https://ckruegers.com/)She was diagnosed with Parkinson's 10 years ago, has faced, and continues to face, many daily challenges with walking, balance, and hallucinations. She has an incredible outlook on life and a sense of humor about her hallucinations. You don't want to miss this episode!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Join us for an exclusive interview with a Parkinson's Disease (PD) patient living in Canada who underwent Deep Brain Stimulation (DBS) surgery. Our guest shares her personal experiences and unique insights into the DBS process, shedding light on how it differs between Canada and the United States.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Blake Bookstaff, young-onset patient and author of: “You have young-onset Parkinson’s disease” joins us to talk about his journey with Parkinson’s and what he hopes his book will accomplish. P.S. his book is relevant for all ages of Parkinson’s patients.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

As you saw in Episode #74 with Chris Jones, we discussed the National Plan to End Parkinson's Act. In this episode, we interview Fred Piccolo, a young-onset Parkinson's Patient AND the Director of Special Projects for Congressman, Gus Bilirakas, also working on this National Plan. His personal story and hope that is inspiring. By passing this bill in Congress, he believes we could see a cure in our lifetime.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this riveting episode, we sit down with Chris Jones, a dedicated staffer working alongside Gus Bilirakas, to dive deep into the National Plan to End Parkinson's Act. Chris shares his firsthand insights, shedding light on the act's significance and the path forward. If you're passionate about making a difference and eradicating Parkinson's disease, this conversation is a must-listen. Join us in advocating for change as we discuss the importance of reaching out to your state representative to ensure the passage of this crucial act. Tune in now and become a part of the movement that aims to change lives for the better.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Daniel Corcos, Ph.D. at Northwestern University, is running the first randomized control trial designed to investigate the effects of moderate- and high-intensity aerobic exercise on disease progression in untreated patients with Parkinson’s, called SPARX3. Listen as Dr. Corcos explains how aerobic exercise is a vital treatment for people living with Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, Gene who is 75 and living with Parkinson's for 4 years, we learn that he is no stranger to surgeries. However, his most recent experience has his family speaking up about what they wish they knew or wish they would have done prior to this surgery. Listen in and learn about how to advocate for yourself or a loved one when you have a hospital stay.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Michelle Newman joins us from the Kirk Gibson Foundation to talk about plans their foundation has for Parkinson's patients living in Michigan. Kirk Gibson is a former professional baseball outfielder and manager and was named the National League MVP in 1988. During his career, he hit two dramatic home runs in the World Series! He is currently a color commentator for the Detroit Tigers on Bally Sports Detroit and a special assistant for the Tigers.In 2015, Kirk was diagnosed with Parkinson's and expanded the mission of the foundation to raise awareness and funding for Parkinson’s Research.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, Jessica and Brian share a few tips and tricks that they use in their everyday life to make things a little easier. Everything from driving to clasping your necklace. Share your everyday tips with us in the comment section!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, our host, Jessica Krauser, takes you on an intimate exploration of the early days of her diagnosis to her remarkable transformation into an empowered advocate. Delve into the pages of her journal, where she meticulously documented the symptoms that led her to the life-altering diagnosis. Discover the depths of her prayer journal, where Jessica sought solace, answers, and guidance from God, grappling with the uncertainty and challenges that Parkinson's presented.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this empowering video, we delve into the crucial role of exercise in the lives of people living with Parkinson's disease. Discover how exercise has been proven to slow the progression of Parkinson's and enhance overall well-being. Whether you prefer walking, biking, running, rowing, or lifting, we encourage you to do what you love while incorporating other activities like yoga for stretching, dance for coordination, balance exercises, and cognitive work.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

We conducted a survey within our YouTube community to gain insights into how our loved ones cope with our Parkinson's disease. Some ignore it or stress about it, while others talk about it, seek professional guidance, or have joined a dedicated support group.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this podcast, we delve into the intersection of cinema portrayls of Parkinson's and how we feel about carbadopa/levedopa.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this exciting episode, we are thrilled to unveil the finished product of our much-anticipated First Step Set. In this episode, you'll get an exclusive sneak peek at the personalized items we curated for this kit. We already distributed 100 kits - listen to find out how you can support us and hopefully receive a kit in the future!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Join us as we chat with Danielle, a representative from the Michael J Fox Foundation, about the groundbreaking BioMarker study. Gain a deeper understanding of its impact on Parkinson's research and learn how you can make a tangible difference by joining Team Fox.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Join us as we embark on a journey that began as a straightforward Q&A session with the esteemed Dr. Patel, only to delve into a startling revelation. In this episode, we explore the necessity for individuals with Parkinson's who find themselves admitted to a hospital, be it for surgery or any other reason, to disclose specific medications hospital staff should avoid due to their condition. The significance lies not in the interaction with other drugs but rather in their interaction with Parkinson's itself. Don't miss out on this essential episode! Tune in now!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

This is a very short segment, but Brian shares how he felt on his first vacation in 7 years (since his diagnosis). #Don'tBeAfraidToTravel!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Join us for a deep dive into the cutting-edge world of Parkinson's research and clinical trials! We've got the inside scoop from April's Team Fox MVP event, and we're excited to share all the latest breakthroughs with you. Plus, we're shining a spotlight on Michael J. Fox's powerful new documentary, Still. Don't miss this opportunity to stay informed and inspired!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

If you've been diagnosed with Parkinson's and don't know how to talk to your employer or when to talk to your employer, listen to the advice we received when we interviewed a retired Law Employment Attorney! You don't want to miss it!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Telling family and friends about your diagnosis can be difficult. Did they deny it, accept it, or feel like they could fix it? Communicate, communicate, communicate!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Liz Miller is a psychotherapist and shares her Parkinson's diagnosis journey. Acting out dreams, depression, tremors, and finding a PD community.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of Parkinson's: In this episode, you'll hear from Bethany Richards, the Founder of Bike Box Project. A simple idea she had years ago (putting a box on her bike to raise awareness and donations for MJFF) has turned into a Parkinson's community of over 70 people living with PD in New Bern, North Carolina!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

I can't say enough about Dr. Soania Mathur. To put it simply, she is extraordinary. She has been living with Parkinson's since she was 28...and now, 25 years later, she's not talking to us about her aches and pains (although I'm sure she has plenty), rather, she's sharing with us her path to advocacy. She said, "when you know better, you have to do better". And that's exactly what she's doing. Her passion and determination are changing the lives of others, not just locally, but globally.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Brian and I take a few minutes to answer questions that some of you have asked in our comments! We are also asking what questions you may have that we can address when we have Dr. Patel on again. Check out The Secret Life of Parkinsonn's on YouTube if you want to leave a comment/questionSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

If you haven't heard about MRI-guided Focused Ultrasound (FUS), listen to our guest, Mark, a 60-year-old living with Parkinson's for 14 years, talk about his experience with the procedure. DBS was an option, but he wasn't thrilled with the idea of having wires in his head, so he decided to go the Focused Ultrasound route. He explains his outcome as "a second chance"...that it has been life-changing for him.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, Marcus Woodhouse joins us to talk about his adventures with pickleball and Parkinson's. It's a sport he picked up 1 year before he was diagnosed, but it's also a sport that is helping him more than he realized. It's the perfect combination of exercise, socializing, and constantly moving! He also shared with us that he is scheduled to have CereTom(r) DBS. Marcus and Brian discuss the differences between their two DBS surgeries. We'll follow up with him again soon to hear more about that procedure.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of Parkinson's: BRIAN IS BACK! In this episode, we spend a little time just catching up on how we are feeling. While we might look positive and put together, we all experience our off or bad days, and that's ok.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, I met with Jennifer, a Clinical Research Coordinator from the Cleveland Clinic in Ohio, who is working on an MJFF-sponsored research project called PPMI - Parkinson's Progression Marker Initiative. It's a landmark study collaborating with partners around the world to create a robust open-access data set and biosample library to speed scientific breakthroughs and new treatments. Jennifer explains how critical the PPMI study is to hopefully one day find what causes someone to have Parkinson's as well as other learnings they have found thus far.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In this episode, you'll meet one of my first young-onset friends, a young-onset woman that was diagnosed 3 years ago...just about the same age that HER mother was diagnosed when she was just a kid. You'll hear what it was like growing up with a young-onset mother as well as what it's like to have a young-onset now herself. Unlike most of us, she saw what Parkinson's is capable of. But, talking to her MDS on her first visit, she learned that there are so many new ways to slow the progression - things they didn't know back when her mom was diagnosed: medication management, nutrition, exercise, socializing, and reducing stress. Parkinson's affects more than just the individual...it can affect generations. So talk to your family about what you are going through or talk to a genetic counselor to learn more.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

We don’t always remember how our first symptom felt, but when new symptoms occur, we are reminded…again, and again, and again. We might look like we are put together, but each of us, optimistic or not, will have our bad days. In this episode, I share mine with Melissa.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Are you bringing all the right things to your PD appointment to make the most out of the time you have? Jessica and her Neurologist, Dr. Andrea Malone, MDS at OhioHealth, discuss how patients and caregivers/family members can prepare for these important appointments.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

I had no idea that over 75% of us (people with PD) will develop speech or voice problems at some point along our PD journey. We learned about voice exercises from our previous episode, #45 with Gina a Speech Pathologist, but in this episode, Dr. Loochtan from Ohio ENT will talk about procedures patients can undergo.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

We welcome Dr. Patel, MDS from OhioHealth, back to our podcast. In this episode, we discuss why there is a lack of standardization when it comes to medication and treatment for Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of PD: What a great year! While many people don’t think of Parkinson’s as a blessing, we do. 2022 brought us connections with people across the world that otherwise would not have happened. We want to thank you for your support, positive comments, and questions. Keep them coming. We have a lot more in store for 2023!!! Stay tuned!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Ever wonder what your vocal cords look like? Check out this episode as we talk to Steve, our podcast Producer and person with Parkinson's, along with his speech therapist, Gina. Learn the different exercises and therapies available for people that experience voice changes due to Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Did you know people living with Parkinson's can receive botulinum toxin (aka Botox) injections to help relieve rigidity and in some cases tremors and even drooling? Learn more from Dr. Patel, MDS at OhioHealth.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of PD: This holiday season, if you are living with PD, give yourself a pass. Be a little selfish. Stick to your routines. The holidays can be a stressful time for anyone. Stress + Parkinson's = increase in symptoms. So do yourself this holiday season, especially if you have a very big, loud extended family like mine (I mean that in the most loving way possible - and my family would agree), take a break. Allow yourself some time to do what's best for you. Happy Holidays!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of Parkinson's: Freezing of Gait (FOG) is just another potential symptom that people living with Parkinson's may experience. In this episode, we talk to Ginger, a fellow PDNextSteps gym member, who was diagnosed in 2020 and has been dealing with Freezing of Gait for the past year. She shares what it feels like and a few tips that work for her.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of Parkinson's welcomes Jimmy Choi! If you have Parkinson's and don't know Jimmy yet, you have to check this out. He has been living with Parkinson's for over 20 years and is a huge advocate for people living with Parkinson's. During the pandemic, he and his wife started the #MOVEmber4PD - a month-long virtual event to mobilize people to MOVE and spread awareness on how moving helps people with Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of Parkinson's: Over the top. I used to think running a marathon was over the top. Joe Drake has now given over the top a new meaning. In his new book "Run With It" we learn that it's not just the fact someone with Parkinson's is running a marathon that's over the top. Tune in to this episode to learn more.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy