Show overview
The Secret Life of Parkinson's has been publishing since 2022, and across the 4 years since has built a catalogue of 183 episodes. That works out to roughly 70 hours of audio in total. Releases follow a weekly cadence, with the show now in its 2nd season.
Episodes typically run twenty to thirty-five minutes — most land between 15 min and 28 min — though episode length varies meaningfully from one episode to the next. None of the episodes are flagged explicit by the publisher. It is catalogued as a EN-language Health & Fitness show.
The show is actively publishing — the most recent episode landed 1 weeks ago, with 22 episodes already out so far this year. Published by Jessica Krauser.
From the publisher
The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ways we might not be able to express to family and friends.
Latest Episodes
View all 183 episodesWhat If Everything We Know About Parkinson's Is Incomplete?
Packing for Europe With Parkinson's Looks a Little Different
Living 19 Years With Parkinson's: How I Found Purpose Again
Why Does Parkinson's Look So Different From Person to Person?
Everyday People with Parkinson's Are Hiking Mountains. Here's How.
Could These Sheets Make Turning in Bed Easier with Parkinson's? (BONUS episode)
Inside the Kirk Gibson Parkinson’s Wellness Center
The Parkinson's Medication Side Effect That Changed Everything
Parkinson's Didn't Stop Her From Riding
Dating After a Parkinson’s Diagnosis (Yes, It’s Possible)
Don’t Rush This After a Parkinson’s Diagnosis (But Don’t Ignore It Either)
Parkinson’s Isn’t What I Thought It Would Be
Could Improved Circulation Support Daily Life?
Can You Keep Working with Parkinson’s? Legal Rights, Disclosure, and Support
In this episode, we revisit important insights on managing Parkinson's while working, including legal rights, disclosure timing, and workplace accommodations, with expert Jim Allen. We explore practical advice for navigating employment challenges and maintaining independence.Chapters00:00 Introduction and Guest Background01:21 Previous Episode Recap and Key Topics02:50 Medication and Symptom Management03:19 Jim's Career and Expertise in Disability Law05:13 Importance of Employer Communication07:12 Who to Inform About Parkinson's at Work08:40 Cognitive Symptoms and Workplace Challenges09:38 Retirement and Cognitive Decline10:08 Documenting Conversations with Employers11:06 What to Disclose and When12:06 Legal Aspects of Discrimination and Layoffs13:56 Legal Standards for Disability Claims16:25 Employee Rights and Reasonable Accommodations17:21 When to Disclose Symptoms in New Jobs18:48 Handling Personal Limitations and Employer Expectations20:14 Sharing Personal Experiences and Advocacy22:06 FMLA and Medical Leave Options24:00 Napping and Breaks as Accommodations25:26 Managing Work Schedule Flexibility27:23 Resources for Employers and Employees28:50 Legal and Practical Tips for Disclosure29:47 Summary and Final Advice
Ep 175What Singing Is Teaching Us About Parkinson’s | Kristin Norderval
YOU HAVE TO LISTEN UNTIL THE END! SO FUNNY!!!This interview explores the innovative intersection of art, neuroscience, and Parkinson's disease, featuring Kristin Norderval’s journey as a musician diagnosed with Parkinson's and her pioneering work on vocal and gestural research. Discover how music and movement can aid in understanding and managing Parkinson's symptoms.Chapters00:00 Introduction to Kristin Norderval and Her Journey02:48 The Intersection of Music and Parkinson's06:02 Researching the Neurology of Singing08:37 The Role of Singing in Parkinson's Therapy11:47 Exploring Vocal Exercises and Their Benefits14:36 The Impact of NeuroArts and Collaboration17:52 Innovative Tools for Vocal Improvisation20:45 Personal Experiences with Parkinson's and Music23:29 Future Aspirations and Research Goals26:41 Conclusion and Final Thoughts
Ep 175Why Parkinson’s Patients Must Speak Up (And How to Start)
Did you hear? Syngenta is stopping paraquat production! Here’s why this matters for the Parkinson’s community.In our latest episode, we discuss a major shift in Parkinson’s advocacy. With Syngenta halting paraquat production, we have a chance to reshape policies affecting our loved ones.George and Margaret, advocates who lost parents to Parkinson’s, share their journey. They’re not just talking the talk; they’re pushing for real change. Their new podcast dives deep into advocacy and the importance of community involvement.We can’t just stop here. It’s time to get involved, educate our lawmakers, and advocate for everyone battling Parkinson’s.
Ep 174Perseverance with Parkinson’s: Gary Gosselin’s Story
This episode features Gary Gosselin sharing his inspiring journey with Parkinson's disease, the significance of perseverance and intent, and how his wristband initiative fosters community and hope among those affected.Chapters00:00 Introduction and Guest Introduction00:59 Gary's Diagnosis Journey and Initial Steps02:53 The Role of Self-Advocacy and Specialist Care04:48 The Inspiration Behind the Resolve Band07:10 Defining Perseverance and Intent09:02 Creating and Distributing the Wristbands10:57 Community Impact and Support Groups12:48 Sharing the Message at Conferences and Events14:45 The Power of Mindset and Hope17:07 Expanding the Initiative: Spanish Version and Outreach19:02 Reflections on Advocacy and Impact20:58 Future Goals and Final Thoughts
Ep 173Early Parkinson’s Diagnosis: A Journey from Shock to Living Proactively
This interview with Dean Dahl explores the early stages of Parkinson's diagnosis, the emotional impact, and strategies for living proactively with the disease. Dean shares his personal journey, insights on medication, support systems, and the importance of community and self-care.Chapters00:00 Introduction to Parkinson's and Personal Stories02:48 Recognizing Symptoms and Initial Diagnosis06:12 Understanding Parkinson's: A Caregiver's Perspective09:02 Living with Parkinson's: Adjustments and Realizations11:46 The Role of Family and Support Systems15:04 Navigating Medication and Treatment Options17:45 Emotional Challenges and Coping Mechanisms20:38 Finding Community and Support Groups23:59 Living in the Moment and Embracing Life26:51 Exercise and Its Importance in Managing Parkinson's29:36 Conclusion and Final Thoughts
Ep 172Her Dad Has Parkinson’s — Here’s Why She Got Genetic Testing
Taryn Rapp shares her personal journey with genetic testing related to Parkinson's disease, discussing her father's diagnosis and her participation in the PPMI study. The conversation explores the importance of genetic testing, the process involved, and the impact on family dynamics. Taryn emphasizes the value of knowledge and participation in research to help advance understanding and treatment of Parkinson's disease.Chapters00:00 Introduction to Genetic Testing and Parkinson's02:52 Taryn's Personal Journey with Genetic Testing06:11 Understanding the PPMI Study and Its Importance09:00 Family Dynamics and Genetic Testing11:48 The Process and Experience of Genetic Testing15:06 Future of Parkinson's Research and Participation
REM Behavior Disorder and Parkinson’s: Why Acting Out Dreams Matters: #171
This conversation delves into REM Behavior Disorder (RBD) and its significant connection to Parkinson's disease. Dr. Roy is back again to explain the nature of RBD, its prevalence among Parkinson's patients, and the importance of early detection. The discussion covers management strategies, including medication options like melatonin and clonazepam, as well as safety measures for partners of those with RBD. The conversation emphasizes the critical role of sleep quality in overall health and the need for effective sleep hygiene practices.Chapters00:00 Understanding REM Behavior Disorder (RBD) and Its Connection to Parkinson's06:55 The Prevalence of RBD in Parkinson's Patients08:36 Managing and Treating RBD11:17 Safety Measures for Partners of RBD Patients13:48 The Importance of Addressing RBD Early16:02 The Role of Sleep Quality in Neurodegenerative Diseases22:17 Tips for Better Sleep HygieneAdKey:EB2_nD9-VJ4eQwSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy