Show overview
The Secret Life of Parkinson's has been publishing since 2022, and across the 4 years since has built a catalogue of 175 episodes. That works out to roughly 65 hours of audio in total. Releases follow a weekly cadence, with the show now in its 2nd season.
Episodes typically run twenty to thirty-five minutes — most land between 15 min and 28 min — though episode length varies meaningfully from one episode to the next. None of the episodes are flagged explicit by the publisher. It is catalogued as a EN-language Health & Fitness show.
The show is actively publishing — the most recent episode landed 3 days ago, with 14 episodes already out so far this year. Published by Jessica Krauser.
From the publisher
The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ways we might not be able to express to family and friends.
Latest Episodes
View all 175 episodesParkinson's Didn't Stop Her From Riding
Dating After a Parkinson’s Diagnosis (Yes, It’s Possible)
Don’t Rush This After a Parkinson’s Diagnosis (But Don’t Ignore It Either)
Parkinson’s Isn’t What I Thought It Would Be
Could Improved Circulation Support Daily Life?
Can You Keep Working with Parkinson’s? Legal Rights, Disclosure, and Support
In this episode, we revisit important insights on managing Parkinson's while working, including legal rights, disclosure timing, and workplace accommodations, with expert Jim Allen. We explore practical advice for navigating employment challenges and maintaining independence.Chapters00:00 Introduction and Guest Background01:21 Previous Episode Recap and Key Topics02:50 Medication and Symptom Management03:19 Jim's Career and Expertise in Disability Law05:13 Importance of Employer Communication07:12 Who to Inform About Parkinson's at Work08:40 Cognitive Symptoms and Workplace Challenges09:38 Retirement and Cognitive Decline10:08 Documenting Conversations with Employers11:06 What to Disclose and When12:06 Legal Aspects of Discrimination and Layoffs13:56 Legal Standards for Disability Claims16:25 Employee Rights and Reasonable Accommodations17:21 When to Disclose Symptoms in New Jobs18:48 Handling Personal Limitations and Employer Expectations20:14 Sharing Personal Experiences and Advocacy22:06 FMLA and Medical Leave Options24:00 Napping and Breaks as Accommodations25:26 Managing Work Schedule Flexibility27:23 Resources for Employers and Employees28:50 Legal and Practical Tips for Disclosure29:47 Summary and Final Advice
Ep 175What Singing Is Teaching Us About Parkinson’s | Kristin Norderval
YOU HAVE TO LISTEN UNTIL THE END! SO FUNNY!!!This interview explores the innovative intersection of art, neuroscience, and Parkinson's disease, featuring Kristin Norderval’s journey as a musician diagnosed with Parkinson's and her pioneering work on vocal and gestural research. Discover how music and movement can aid in understanding and managing Parkinson's symptoms.Chapters00:00 Introduction to Kristin Norderval and Her Journey02:48 The Intersection of Music and Parkinson's06:02 Researching the Neurology of Singing08:37 The Role of Singing in Parkinson's Therapy11:47 Exploring Vocal Exercises and Their Benefits14:36 The Impact of NeuroArts and Collaboration17:52 Innovative Tools for Vocal Improvisation20:45 Personal Experiences with Parkinson's and Music23:29 Future Aspirations and Research Goals26:41 Conclusion and Final Thoughts
Ep 175Why Parkinson’s Patients Must Speak Up (And How to Start)
Did you hear? Syngenta is stopping paraquat production! Here’s why this matters for the Parkinson’s community.In our latest episode, we discuss a major shift in Parkinson’s advocacy. With Syngenta halting paraquat production, we have a chance to reshape policies affecting our loved ones.George and Margaret, advocates who lost parents to Parkinson’s, share their journey. They’re not just talking the talk; they’re pushing for real change. Their new podcast dives deep into advocacy and the importance of community involvement.We can’t just stop here. It’s time to get involved, educate our lawmakers, and advocate for everyone battling Parkinson’s.
Ep 174Perseverance with Parkinson’s: Gary Gosselin’s Story
This episode features Gary Gosselin sharing his inspiring journey with Parkinson's disease, the significance of perseverance and intent, and how his wristband initiative fosters community and hope among those affected.Chapters00:00 Introduction and Guest Introduction00:59 Gary's Diagnosis Journey and Initial Steps02:53 The Role of Self-Advocacy and Specialist Care04:48 The Inspiration Behind the Resolve Band07:10 Defining Perseverance and Intent09:02 Creating and Distributing the Wristbands10:57 Community Impact and Support Groups12:48 Sharing the Message at Conferences and Events14:45 The Power of Mindset and Hope17:07 Expanding the Initiative: Spanish Version and Outreach19:02 Reflections on Advocacy and Impact20:58 Future Goals and Final Thoughts
Ep 173Early Parkinson’s Diagnosis: A Journey from Shock to Living Proactively
This interview with Dean Dahl explores the early stages of Parkinson's diagnosis, the emotional impact, and strategies for living proactively with the disease. Dean shares his personal journey, insights on medication, support systems, and the importance of community and self-care.Chapters00:00 Introduction to Parkinson's and Personal Stories02:48 Recognizing Symptoms and Initial Diagnosis06:12 Understanding Parkinson's: A Caregiver's Perspective09:02 Living with Parkinson's: Adjustments and Realizations11:46 The Role of Family and Support Systems15:04 Navigating Medication and Treatment Options17:45 Emotional Challenges and Coping Mechanisms20:38 Finding Community and Support Groups23:59 Living in the Moment and Embracing Life26:51 Exercise and Its Importance in Managing Parkinson's29:36 Conclusion and Final Thoughts
Ep 172Her Dad Has Parkinson’s — Here’s Why She Got Genetic Testing
Taryn Rapp shares her personal journey with genetic testing related to Parkinson's disease, discussing her father's diagnosis and her participation in the PPMI study. The conversation explores the importance of genetic testing, the process involved, and the impact on family dynamics. Taryn emphasizes the value of knowledge and participation in research to help advance understanding and treatment of Parkinson's disease.Chapters00:00 Introduction to Genetic Testing and Parkinson's02:52 Taryn's Personal Journey with Genetic Testing06:11 Understanding the PPMI Study and Its Importance09:00 Family Dynamics and Genetic Testing11:48 The Process and Experience of Genetic Testing15:06 Future of Parkinson's Research and Participation
REM Behavior Disorder and Parkinson’s: Why Acting Out Dreams Matters: #171
This conversation delves into REM Behavior Disorder (RBD) and its significant connection to Parkinson's disease. Dr. Roy is back again to explain the nature of RBD, its prevalence among Parkinson's patients, and the importance of early detection. The discussion covers management strategies, including medication options like melatonin and clonazepam, as well as safety measures for partners of those with RBD. The conversation emphasizes the critical role of sleep quality in overall health and the need for effective sleep hygiene practices.Chapters00:00 Understanding REM Behavior Disorder (RBD) and Its Connection to Parkinson's06:55 The Prevalence of RBD in Parkinson's Patients08:36 Managing and Treating RBD11:17 Safety Measures for Partners of RBD Patients13:48 The Importance of Addressing RBD Early16:02 The Role of Sleep Quality in Neurodegenerative Diseases22:17 Tips for Better Sleep HygieneAdKey:EB2_nD9-VJ4eQwSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#170: Sleep Apnea & Parkinson’s: What You Need to Know
The critical importance of sleep! Today, we met Dr. Asim Roy, a sleep medicine expert, to talk about the different types of sleep apnea, their health impacts, and the importance of early detection and treatment. The conversation also touches on gender differences in sleep apnea prevalence, the role of technology in diagnosis, and the various treatment options available. At the end of the day, we all need to be more aware and proactive when it comes to managing our sleep health, especially for those living with Parkinson's.00:00 Understanding Sleep and Its Importance03:06 Exploring Sleep Apnea and Its Connection to Parkinson's05:49 Types of Sleep Apnea: Obstructive vs. Central09:00 The Impact of Sleep Apnea on Health11:53 Gender Differences in Sleep Apnea15:13 Screening and Diagnosis of Sleep Apnea17:56 Treatment Options for Sleep Apnea21:08 The Role of Technology in Sleep Health23:52 Research Insights on Sleep Apnea and Neurological Health27:07 The Importance of Early Detection29:53 Final Thoughts on Sleep Health and Parkinson'sSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#169: Freezing of Gait in Parkinson’s: Causes, Risks, and Treatments
Freezing of gait can feel sudden, scary, and incredibly frustrating for people living with Parkinson’s disease. In this episode, Dr. Hinkle, Head of MDS Neurology at OhioHealth, joins us to talk honestly about why freezing of gait is so difficult to treat and how patients and caregivers can better understand and manage it.Dr. Hinkle shares his passion for working with people affected by freezing of gait, as well as his frustration with the limited tools currently available. He also discusses realistic strategies, safety considerations, and why ongoing research and patient advocacy remain so important.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#167: 14 Years In: What Parkinson’s Taught Me About Living
In this episode, hosts Jessica Krauser and Brian Baker engage in a heartfelt conversation with Robert McMillan, who shares his 14-year journey with Parkinson's disease. The discussion covers the initial shock of diagnosis, the importance of support systems, treatment options, and the impact of exercise on quality of life. Robert emphasizes the need for self-advocacy, the significance of community, and the personal growth that can arise from living with Parkinson's. The episode concludes with advice for those newly diagnosed, highlighting the importance of perspective and resilience in the face of challenges.00:00 Introduction to Parkinson's Journey02:58 Diagnosis and Initial Reactions05:59 Living with Parkinson's: Early Experiences09:01 Treatment Options and Their Impact12:00 Support Systems and Community14:49 Quality of Life and Personal Growth18:06 Managing Symptoms and Daily Challenges20:57 Advice for the Newly Diagnosed23:56 Conclusion and Final ThoughtsSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#166: Preparing for Your Parkinson’s Appointment: What Doctors Really Need to Know | Dr. Mantri
In this episode, Jessica and Brian talk to Dr. Mantri, a Movement Disorder Neurologist and the new Chief Medical Officer for the Parkinson's Foundation. Dr. Mantri dives into the importance of personalized patient care in managing Parkinson's disease and they explore how patients can prepare for appointments, the significance of care partners, and the value of community support. The conversation also touches on the need for better education for healthcare providers and the future goals of the Parkinson's Foundation.Chapters00:00 Introduction to the First Chief Medical Officer03:00 The Role of a Movement Disorders Specialist06:03 Preparing for Your First Appointment08:58 The Importance of Care Partners12:03 Utilizing Videos for Better Diagnosis15:02 Key Questions for Your Doctor17:49 When to Seek a Second Opinion21:03 Follow-Up Appointments and Their Importance23:49 The Value of Community Support26:47 Future Goals of the Parkinson's FoundationSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#165: The Parkinson's Medication Rollercoaster
Viewers have asked about our personal experiences with medication changes throughout our journey so far - the changes in dosage, the side effects, the different medications, trial and error. So in this episode, Jess and Brian each dive into their medication journey (Jess over 6 years and Brian over 10 years). The conversation also touches on alternative treatments and lifestyle adjustments that can aid in coping with Parkinson's symptoms.Chapters00:00 Introduction and Survey Insights01:02 Jessica's Medication Journey 06:40 Brian's Medication Journey 10:40 Exploring Alternative Treatments and Lifestyle Adjustments18:33 Final Thoughts and AdvocacySupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#164: Changes overtime with Parkinson's
This is our 2nd episode with our PD friends, Mike and Bob. In this episode, they share things they've noticed since their last podcast episode (#136) in March 2025 (8 months ago). The conversation dives into more personal experiences living with Parkinson's, exploring the emotional and psychological challenges faced by individuals diagnosed with the condition. It highlights the importance of support systems, coping mechanisms, humor, and the journey towards acceptance.Chapters:0:00 - Intro1:00 - Parkinson's acceptance / double vision3:00 - Depression diagnosis based on hand grip4:45 - Empathy6:00 - Recognizing slow/stiff movements6:37 - Medications Neurophsych test8:48 - Would you rather know and help yourself or not know13:46 - Coming to the realization you have Parkinson's15:04 - It's my parkinson's18:00 - RBD (REM Behavior Disorder)21:31 - Sometimes, we have to laugh at ourselves22:37 - Being a hunter and living with Parkinson's23:23 - Bicycling and living with Parkinson's26:05 - The difference the gym and community make27:20 - Surgeries with Parkinson's29:15 - Close / Have a sense of humorSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#163: "My Dad was diagnosed with Parkinson's, but he's still an Inspiration!!"
In this episode, we had Lesley Sittler talk to us about her dad who was diagnosed with Parkinson's disease, our Producer, Steve Brandenburg. 0:00 Intro1:20 Finding out my dad had Parkinson's4:25 Jess having a brain fart on not remembering Steve's diagnosis story (I actually knew but forgot)6:00 Dad was always invicible to me7:40 How I felt8:30 Making Lemonade out of Lemons9:37 The grandkids experience11:42 Did your relationship change? 13:50 Inspired by mom. That's marriage15:00 Therapy for carepartners16:53 What I wish other adult children of PD knew19:20 When parents with PD are open vs not open about Parkinson's21:36 What I want my dad to know24:00 ClosureSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
#162: Adapting to Life with Parkinson's Disease
In this episode, Melissa and Jess talk to Mike Willingham who was diagnosed 1 year ago. He talks about his diagnosis journey and most importantly his words of encouragement for others. Don't stop living life. Make adjustments, but you are still YOU!Chapters:0:00 Introduction and Diagnosis1:31 Diagnosis journey8:46 Body's response to medication and exercise11:16 Difficulty accepting diagnosis15:09 Jobs and hobbies19:08 What you wish you could tell yourself the day you were diagnosed20:35 Diagnosis gave me an "ah-ha" moment21:58 Parkinson's Community23:01 Life goals24:50 "I really needed to hear that"26:11 ClosingSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy