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#129: The Parkinson's Experience - Living Solo vs. Shared Support (Raw Emotion)

#129: The Parkinson's Experience - Living Solo vs. Shared Support (Raw Emotion)

The Secret Life of Parkinson's · Jessica Krauser

January 19, 202522m 10s

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Show Notes

Not everyone has a live-in carepartner. People dealing with Parkinson's could be young, old, male, female, living solo or living with someone. See how Brian manages living alone, and listen to the questions he asks me about checking in on my caregivers. This is a good one...

0:00 Intro

3:15 Living solo you do things for yourself

4:06 Living with PD, do you have stress, putting stress on your carepartner?

5:10 Are we asking or checking in our CarePartners how they are dealing with our PD?

7:24 Are you embarrassed by your symptoms in public?

8:41 Do we talk about our Parkinson's too much?

10:33 Does Parkinson's consume you?

11:57 Having an outlet - a PD community

13:03 There needs to be a PD training class - how to live with PD

15:03 Being your own CarePartner

15:54 All Parkinson's patients need a Tesla, Mr. Musk ;)

16:49 Do you think of long-term care or disability options?

18:10 Seeing the progression

20:29: Last 30 seconds



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