The Parkinson's Podcast

Listen to chapter four, "Non-Motor Symptoms (Emotional)," of the newest edition of our Every Victory Counts® manual. This chapter dives into the emotional symptoms you might experience with Parkinson's, such as depression, anxiety, or apathy, as well as strategies and treatments to manage them. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-four-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today. Email [email protected] for any questions, comments, concerns, and to participate in the competition related to this series. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to the third chapter, "Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter explains the common motor symptoms of Parkinson's as well as strategies to manage them. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-three-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today. Email [email protected] with any questions, comments, or concerns and to participate in the competition related to this series. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to the second chapter, "Parkinson's 101" of the newest edition of our Every Victory Counts® Manual, 6th Edition. This chapter gives a brief overview of the most common questions of Parkinson's such as... What is Parkinson's? Who gets Parkinson's? What are the treatment options for Parkinson's? And many many more. Email [email protected] to participate in the competition related to this series. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-2-parkinsons-101-from-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

This is chapter one of the Every Victory Counts® Manual, 6th edition entitled "You Have Parkinson's, Now What?" Receiving a Parkinson's diagnosis can be overwhelming and an emotional roller coaster. This chapter begins to address the top things you need to know about your Parkinson's diagnosis to begin to move from shock, awe, and fear, to having the confidence in knowing you can live well with this diagnosis. Email [email protected] to participate in the competition related to this series. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-one-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to the introduction of the Every Victory Counts manual 6th edition, featuring a foreword by Bas Bloem, an explanation of how to use this manual and inspiration to live well today with Parkinson's. Go to https://davisphinneyfoundation.org/podcast-recording-introduction-the-every-victory-counts-manual-6th-edition for the show notes and additional resources for today's episode. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to hear what's coming next for the Podcast in 2022! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Linda Olson, a triple amputee, person with Parkinson's, author, and motivational speaker shares her story of the challenges she's overcome and how she continues to live well each and every day through optimism, hope, and perseverance. For additional information and resources go to: https://davisphinneyfoundation.org/podcast-recording-story-inspiration-hope This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

The non-motor symptoms of Parkinson's are vast and vary greatly from person to person, which means that treatment options are expansive as well. In this episode, Dr. Aaron Hang gives a short overview of the most common non-motor symptoms and the primary medical and non-pharmacological options to treat them. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, The YOPD Council discusses depression, anxiety, and how to cope with "dark" days as a follow up to a conversation they had last month on Non-Motor Symptoms. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

When a drug is added or removed from a formulary list, your insurance's coverage of the medication may change. In this interview with Derek Arnold, he explains what formularies are, how they work, and what you can do when your medication is no longer covered. For more information about formularies and resources related to this episode, go to: https://davisphinneyfoundation.org/podcast-recording-what-you-need-to-know-about-formularies This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, The YOPD Council discusses their experience with the unseen non-motor symptoms of Parkinson's. For show notes, resources, and to sign up for the YOPD Council live, go to: https://davisphinneyfoundation.org/podcast-recording-yopd-council-non-motor-symptoms This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Deep brain stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson's; however, it's also frequently misunderstood. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many to want to get the treatment as soon as possible. Others think it sounds scary and shy away from it. During this webinar, Dr. Joohi Jimenez-Shahed broke down the what, why, and how of DBS and its latest advancements. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

There is ample evidence that shows that including exercise, good nutrition, socialization, and more can help people with Parkinson's manage their symptoms, improve mood, and live well for many years. Yet exercise, eating, and social habits look vastly different for different people, and without addressing this cultural context, accessibility barriers can keep people from integrating these practices to improve their quality of life. In this episode Dr. Indu Subramanian and Dr. Greg Pontone dig into what it means to apply a cultural context and how the Parkinson's sector can implement changes to support more people in their pursuit of living well. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Movement disorder specialist Cherian Karunapuzha, MD, (better known as "Dr. K") discusses definitions relating to constipation, causes of constipation, treatments for constipation, how constipation can impact your medication absorption, constipation's connection to other symptoms, and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this session, our YOPD Council leaders discuss regaining confidence after losing it in personal, professional, and social settings with the onset of symptoms in young onset Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Neurologist and Georgetown University Educator Yasar Torres-Yaghi explains OFF times in Parkinson's and how to manage them in easy to understand, relatable, and actionable terms. To learn more about this podcast, go to https://davisphinneyfoundation.org/podcast-recording-off/ This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation ‎

Parkinson's disease dementia (PDD) is a term used for dementia that develops after several or many years of living with Parkinson's. In nearly all cases of Parkinson's, people experience motor symptoms in the early stages; some may also have mild changes in cognition at diagnosis. Over time, though, non-motor symptoms of Parkinson's may get so problematic that they are much more debilitating than motor symptoms ever are. Not all people with Parkinson's will develop dementia, but for those who do, it can be a very difficult symptom to live with. In this episode, Dr. Rodolfo Savica from the Mayo Clinic shares his expertise from over two decades of experience working with people with dementia. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Approximately 50-60% of people living with Parkinson's experience varying levels of depression and anxiety. It's important to know the difference between these common mood disorders so you can accurately explain how you're feeling to your doctor and get the care you need. During this webinar, Roseanne Dobkin, PhD, discusses depression, anxiety, and apathy; the causes and treatments of them; and much more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this session, our YOPD Council leaders answered YOUR questions. This month's YOPD Council discussed: Finding meaning and purpose in your life post-diagnosis How to deal with the highs and lows of living well with Parkinson's Tips on medications and deep brain stimulation Finding community and building support systems This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Living well with Parkinson's takes support – from our families, communities, healthcare professionals, workplaces, government, and more. When those systems are compromised due to systemic oppression, bias, or lack of inclusion, health outcomes are compromised. In this webinar, Wissam Deeb, MD, and Nicole Rosendale, MD, help us understand how issues faced by the LGBTQ+ community show up in Parkinson's care and how we can increase awareness and create more inclusive spaces to address inequities. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

One of the most common questions we're asked is this: "What should I eat now that I've been diagnosed with Parkinson's?" The answer is that there is no one answer. Just as each person with Parkinson's experiences different symptoms, each person reacts differently to different types of diets. During this session, our panel members, along with registered dietician and Davis Phinney Foundation Ambassador, Marty Acevedo, will talk about food as medicine. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

If you've been living with Parkinson's for a while, chances are good that you've either heard about how beneficial boxing is for people with Parkinson's, or you've attended many boxing classes yourself. But how familiar are you with the latest and greatest research about boxing and Parkinson's? In this webinar, our panel members, John Dean, Josefa Domingos, and Sara Rigarre shared specifics about the research they've conducted and described the effects of Parkinson's severity and duration of boxing training on changes in balance, mobility, and quality of life for people living with mild or moderate to severe Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this genuine, inspiring, and relatable conversation, past professional athletes, Brian Grant and Davis Phinney talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, the YOPD Women's Council discusses sex, intimacy, love, dating, and all topics related to relationships. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In Angela Duckworth's book Grit, she examines why some people succeed and others fail, and why talent is hardly a guarantor of success. During this episode, we will discuss whether human behavior is constant or circumstantial, how behavior change really happens, the mindsets that help people succeed regardless of challenges, and what Angela learned from having a father who lived with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Since 2020, the COVID-19 pandemic has exposed the myriad ways that structural racism and oppression affect healthcare and health outcomes, including wellbeing and quality of life. These same systemic issues plague the Parkinson's community and result in care inequities and disparities that disproportionately affect people of color, women, people with limited English proficiency, and more. In this conversation, Nicte I. Mejia, MD, MPH, FAAN, and Aswita Tan-McGrory, MSPH, discussed how these systems of racism and oppression affect our community, and how we can take these learnings and create the change needed to ensure all people can live well with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

The human body was built to work in partnership with the sun. Its light can transform our moods, focus, sleep, energy levels, immune systems, bone density, and mental health. As a result, spending time in the sun can be particularly beneficial to people living with Parkinson's who experience symptoms like depression, apathy, poor sleep, pain, and fatigue. During this session, our YOPD council members discuss all the ways sun and light help them live well with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Living alone while living with Parkinson's can be a blessing or a curse. Some people love their independence and love being able to direct their days all on their own. For some, not having a live-in care partner, family member, or roommate is lonely and a hardship. During this webinar, we talked to five people, Michael Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson's, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council talked about the added challenges women living with Parkinson's face as it relates to contraception and pregnancy. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Did you know that dementia in people diagnosed with young onset Parkinson's disease (YOPD) looks different than dementia in those diagnosed with later-onset Parkinson's? In this webinar, Dr. Rodolfo Savica, MD, PhD, and YOPD Council Leader Tom Palizzi discussed dementia: what it is, how it develops, and its relationship to Parkinson's, as well as some distinct differences between YOPD and later-onset Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council and special guest Dr. Karen Jaffe, MD, talked about the added challenges women living with Parkinson's face as it relates to menstruation, menopause, and hormones. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Racial differences in Parkinson's treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. But what do we really mean when we talk about trust? In this conversation, Dr. Altaf Saadi and Dr. Consuelo H. Wilkins will examine the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson's. During this webinar, Toni discussed what she's learned about living with chronic pain and illness and how to live well no matter what obstacles you are facing. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Imagine if you had access to your doctor or movement disorder specialist via a computer was just a few clicks away. Or you could have an appointment via the phone in the comfort of your own living room. Telemedicine makes that possible. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Our YOPD Council leaders discussed: Parkinson's and its effect on their perspectives of death Strategies for managing feelings of loss How to effectively prepare for end-of-life and live well in the moment NOW How to have conversations with your loved ones about death How to re-channel your energies on things that bring you hope This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Our YOPD Women's Council and special guest Kathleen Reardon discussed: The road to their Parkinson's diagnosis The differences between men and women when it comes to symptoms and medications The importance of advocating for yourself and finding the right doctor Finding joy through new creative pursuits This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this panel discussion, our YOPD Women's Council and special guests Dr. Jill Farmer and Vicki Dillon discuss everyone's unique journey with medications; the many types, classes, and possible side effects of Parkinson's medications; and the importance of trying a variety of medication combinations until you find the best fit for you. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this webinar, a panel of Parkinson's organization leaders serving people across the US discussed common issues that exist within urban communities and rural communities alike, shared assumptions and misunderstandings about rural and urban neighborhoods, what policymakers and other decision-makers miss most often when it comes to addressing the unique needs of our communities, and what leaders and Parkinson's advocates can do TODAY to help address health disparities like these that may exist in their communities. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Speech and voice impairments are common among people living with Parkinson's. As many as 90% of people with Parkinson's experience difficulties such as "hypophonia" (soft speech) or a more monotone, raspy, or breathy voice. Speech can become less intelligible and can make communication difficult, especially if paired with facial masking (a decrease in facial expression). It will come as no surprise then that speech and voice impairments can impact quality of life. Speech and Language Pathologist John Dean recently sat down with us to discuss the various speech challenges related to Parkinson's and actions you can take every day to train your voice, improve your speech, and communicate more fluidly and clearly. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Receiving a Parkinson's diagnosis when you're young is overwhelming enough as it is. Add the need to exercise daily, attend a variety of medical appointments, and focus on your mental health to an already busy work schedule and it can feel like too much. Plus, if you don't love your current career path, or you do but the demands exceed your energy and ON time, the possibility of changing careers or shifting roles at your age might feel like a pipe dream. But it's not. IN THIS EPISODE, YOU WILL LEARN FROM OUR COUNCIL LEADERS: How to evaluate your career with the Parkinson's lens How to evaluate new ideas How to use your Parkinson's community to network and learn about second, third, or even fourth act careers How to bring more meaning to your current role And more This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this final chapter, we share ways to plan for the financial impact of Parkinson's, as well as advice about long-term care planning for people with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Learn how to navigate changing relationships within the family after a Parkinson's diagnosis and as it progresses. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Care partners are essential members of the wellness team for a person with Parkinson's. Learn how to balance the many aspects of being a Parkinson's care partner, how to manage stress and avoid caregiver burnout, how to find and ask for support, and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Hear in-depth information about the Duopa pump, deep brain stimulation, and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Here, we share how helping others helps yourself and how creative arts, spirituality, and hope can bring joy to your life. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Learn how to live your best life by managing common Parkinson's symptoms like depression and anxiety through mindfulness, counseling, and other wellness activities. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

What to know before checking in, what to ask before discharge, tips from individuals with Duopa or Deep Brain Stimulation, and information about medical alert bracelets. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Learn how changes to your diet can help manage certain symptoms, how protein can interfere with medications, and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Learn tips to live well with Parkinson's in any stage and with any symptoms. Here, we share advice on self-care; preventative screenings; dental, bone, heart, and vision health; fatigue; sleep issues; cognitive concerns; constipation; and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Listen to an overview of Parkinson's medications followed by detailed information about treatments for motor and non-motor symptoms. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation