The Parkinson's Podcast

Click here to subscribe for our podcast and video content on YouTube. In this epsiode of The Parkinson's Podcast, Dr. Gary Leo discusses sleep challenges unique to people living with Parkinson's. Dr. Leo sheds light on the causes of these disruptions and offers some practical solutions for sleeping better. For more information about the Davis Phinney Foundation visit: https://dpf.org This content is made possible through the generous support of listeners like you. Click here to make a donation. Season 5 Episode 22

Click here to subscribe for our podcast and video content on YouTube. In this episode of the Parkinson's Podcast Unfiltered, Kat and Heather discuss multiple ways pain and Parkinson's intersect. Listen in as Kat and Heather discuss dystonia, off times, the difficulty of determining whether pain is caused by Parkinson's or not, and more. Your hosts also have some tips and observations about how to manage pain--including some thoughts about complementary therapies, the importance of breathwork, and finding ways to remain level-headed no matter what challenge you may be facing. This content is made possible through the generous support of listeners like you. Click here to make a donation.

Click here to subscribe for our podcast and video content on YouTube. In this episode, Roxann Diez-Gross, Ph.D., shares practical techniques for improving breathing and swallowing, vital functions that can be affected by Parkinson's disease. This talk was recorded during one of our online educational events. This content is made possible through the generous support of listeners like you. Click here to make a donation. For more information about the Davis Phinney Foundation visit: https://dpf.org

Click here to subscribe for our podcast and video content on YouTube. In this episode of The Parkinson's Podcast: Unfiltered, as Heather continues the process of moving across the country, she and co-host Kat chat about the curating personal relationships amidst the challenges of living the Parkinson's. Heather and Kat discuss ways to navigate all types of relationships—from friendships and marriages to connections with strangers. At every step, they highlight the importance of staying connected. This content is made possible through the generous support of listeners like you. Click here to make a donation.

This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, Dr. Fleisher emphasizes the realness of pain in Parkinson's by explaining the causes of pain, how to talk to your doctor about your pain, and additional medical and non-medical management strategies. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 18 Read More

This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. As Heather plans to move to a new house, in this episode, Heather and Kat, talk about the importance and challenges of curating your physical space while living with Parkinson's. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's.

In this episode, Dr. Joanne Hamilton of Advanced Neurobehavioral Health, delves into the non-motor and cognitive symptoms of Parkinson's and provides practical strategies for symptom management. This content is made possible through the generous support of listeners like you. Click here to make a donation. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 16

This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. Do you "have" Parkinson's or do you "live with" Parkinson's? Do you "fight" your diagnosis? If so, can you do something "wrong" and "lose the battle"? In this episode of the Parkinson's Podcast Unfiltered, Heather and Kat discuss the significance of the words we use when talking about our lives. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's.

This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. Explore David Putterman's journey from professional drummer to person living with Parkinson's and back to the stage, revealing how reconnecting with music--supported by a music therapist--improved his quality of life and helped alleviate his Parkinson's symptoms. You can watch David Putterman's Mini-Documentary "Fighting Parkinson's With Drums" here: https://www.youtube.com/watch?v=e_8xT3p7ld4&t=126s You can contact David Putterman by email at [email protected] Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 14

This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode of the Parkinson's Podcast Unfiltered, Heather and Kat discuss how they approach the sadness, loss, and grief while still finding joy and productive ways to live well today. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 13 (Unfiltered Episode 3)

This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, join us for an inspiring conversation with Michelle David Lane and Susan Sapir-Fields, the founders of Louisiana Walks (LA Walks) for Parkinson's. Discover the heartwarming story behind this annual fundraiser benefiting the Davis Phinney Foundation. To learn more about the Louisiana Walks fundraiser, please visit: https://parkinsonswalk.org Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 12

The Parkinson's Podcast Unfiltered: Sex This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. In this episode of The Parkinson's Podcast Unfiltered, Heather Kennedy and Kat Hill dive deep into the importance and challenges of sexual health for people with Parkinson's. Strap in for the ride: as always, with Heather and Kat and The Parkinson's Podcast Unfiltered, nothing is off the table. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 11 (Unfiltered Episode 2)

This content is made possible through the generous support of listeners like you. Click here to make a donation. Mobility Matters: NexStride and the Parkinson's Community In this episode, we chat with Sidney Collin, the inventor of NexStride: a device transforming mobility for people with Parkinson's. Join us as Sidney shares the journey from idea to creation, offering insights about her innovative solution and overarching mission to empower people with confidence and independence. To learn more about NexStride and DeOro Devices, please visit: https://www.getnexstride.com/ or email: [email protected] To learn more about the Parkinson's wellness fund, please visit: https://parkinsonswellnessfund.org/ Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 10

This content is made possible through the generous support of listeners like you. Click here to make a donation. In the debut episode of The Parkinson's Podcast: Unfiltered, hosts Heather Kennedy and Kat Hill explore the often overlooked stigma surrounding Parkinson's. Through personal stories and insights, they challenge misconceptions and explore how shifting narratives can empower minds and reshape perceptions. Tune in for a fresh perspective on living with Parkinson's. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's. Season 5 Episode 9 (Unfiltered Episode 1)

This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, panelists discuss ways that Parkinson's has affected their abilities and how they navigate these changes. As always, this panel doesn't hold back, and we're so fortunate to have them tell the hard truths and share their journeys with all of us. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson's.

This content is made possible through generous donations made by our listeners. In this episode, Dr. Karunapuzha discusses advanced Parkinson's with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what "advanced Parkinson's" means, what symptoms are associated with advanced Parkinson's, and possible ways to manage those symptoms. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through generous donations made by our listeners. In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year. Want to learn more about SteadyScrib? Find out more about their mission on their website. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through donations made by our listeners. In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson's. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson's care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy, design, and operations. Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of viewers and listeners like you. This is a special edition of the Parkinson's Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney, co-founder of the Davis Phinney Foundation, and Kevin Kwok, a Foundation board member, as they share their compelling journeys with Parkinson's. To learn more about the No Barriers Podcast, please visit: https://nobarriersusa.org/podcast/ Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content includes information about Parkinson's and insights from our Parkinson's community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson's. To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc. here. To learn more about the Davis Phinney Foundation programs in Spanish, please visit our Spanish site. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content includes information about Parkinson's and insights from our Parkinson's community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! This content includes information about Parkinson's and insights from our Parkinson's community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navigate the complexities of living with Parkinson's and performs a few of his favorite poems. Loving the Parkinson's Podcast? Listen to more episodes on our website! The information in this podcast is for general information purposes only. It includes information about Parkinson's and insights from our Parkinson's community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:https://dpf.org/podcastdonation In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson's, pain, the different types of pain, and where you can find tools and resources to manage it. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! The information in this podcast is for general information purposes only. It includes information about Parkinson's and insights from our Parkinson's community. It is not intended as a substitute for treatment advice from your own medical providers. Relevant Links Pain in PD Self-Assessment Tool Dr. Zawar's Clinic Beyond Rehab Dr. Zawar's program for pain in Parkinson's Contact Dr. Zawar

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology and using things like light and timing of exercise and medications to improve sleep. Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson's; however, it's also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who've been newly diagnosed to want to get the treatment as soon as possible. In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulation (DBS). In this episode of the Parkinson's Podcast, we spoke with six people with Parkinson's who've had DBS. We discussed: How to begin the process How to talk to your family and friends about DBS and your hopes and concerns about it What to expect during the approval process What the surgery is really like (and do you have to shave your head) What recovery is like and what kind of support you might need The challenges of programming your device and the joy that comes when you get it right The myths, challenges, and victories of DBS And more! We hope you enjoy it! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to learn more about Deep Brain Stimulation? Check out our DBS Hub here! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson's Disease." In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages this difference can be small." Dr. Bloem and his co-authors also acknowledge that doctors and researchers "often emphasize the tremendous impact of [Parkinson's] on an individual's life. However, in public awareness campaigns, we largely avoid discussions on the survival of people with Parkinson's..." It's understandable: the topic of mortality and Parkinson's is often painful. However, in this episode of The Parkinson's Podcast, Dr. Bloem argues out that openly acknowledging that Parkinson's shortens lifespans is a good thing for people with Parkinson's for a multiple reasons. Listen to the episode to hear Dr. Bloem's perspective about multiple topics related to mortality and Parkinson's, including: The commonly held view that people die with Parkinson's, not from Parkinson's Pesticides, chemical exposure, and other environmental risks Reasons for hope, including specific advice about exercise and diet The policy and funding implications of candid discussion of mortality in Parkinson's Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

A previous version of this podcast had sound issues. We apologize and hope you enjoy! During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson's. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn't hold back, and we're so fortunate to have them tell the hard truth and share their journeys with all of us. In this episode, topics discussed include: Feeling a loss of relevance Shame when I was diagnosed Shame around impulse control Side-effects of medications and shame Importance of community to overcome shame and more! We hope you enjoy! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson's. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more. In this episode, topics discussed include: How to address fear and shame in yourself and with others How to handle the fear of being marginalized What is the biggest fear you have of the unknown? Dealing with the fear and grief of missing out Handling the fear of being alone and dating with Parkinson's How fear has evolved in our panelists from their diagnosis to the present and more! We hope you enjoy! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can't see in Parkinson's. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's. Topics discussed include: What are the statistics on how many people are currently dealing with depression? Wellness vs. Wellbeing What is mental illness? What is the impact of mental illness on Parkinson's? What are the differences between depression and anxiety? Different types of anxiety medicine and how they impact Parkinson's symptoms The effect of anxiety on dystonia Dealing with compulsive thoughts What are some strategies for families dealing with anxietyand depression at home? What is apathy? and more! We hope you enjoy! Want to see other videos from our Victory Summit on Mental Health? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson's. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the same. In this genuine, inspiring, and relatable conversation, Brian and Davis talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. We hope you enjoy it! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more. Topics discussed include: What does "cultural context" mean? Holistic health in cultural context The importance of community in a cultural context How to help address the divide between clinical care and cultural context as a care partner/care giver Acceptance of Parkinson's symptoms by family and cultural community Feeling culturally "separated" by your diagnosis Finding new community How to create safer spaces as advocates and allies and more! We hope you enjoy! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Anna Lembke, an internationally recognized expert in addiction and dopamine, discusses addiction, dopamine's role in pain and pleasure, dopamine agonists, and more. **Please note, taking regular carbidopa/levodopa alone very rarely leads to someone experiencing impulse control disorders, so please do not delay taking these Parkinson's medications because of a fear of developing an impulse control disorder. If your symptoms are getting in the way of your daily activities and quality of life, work with your doctor to find the right dose for you. Dopamine agonists, on the other hand, which are more commonly prescribed in the early stages of Parkinson's, are the types of medication that put people at greater risk. Still, it's not a given. Each person responds to medication differently, and whatever side effects you do experience are almost always duration and dose-dependent. To learn more about Parkinson's medication, read Medication and Parkinson's. For more on impulse control disorders and dopamine agonists, read Impulse Control Disorders and How to Manage Them. Topics discussed include: Can you define pleasure and pain and the role dopamine plays in them? How has our drive for pleasure changed over time? Does being low on dopamine contribute to the pain many with Parkinson's experience? How is the pain/pleasure cycle disrupted in the absence of naturally produced dopamine? What is a dopamine precursor, and what does it have to do with impulse control disorders (ICDs) in people with Parkinson's? Are there any early warning signs that someone may be experiencing negative side effects such as impulse control disorders from taking their medication? What is addiction, and how does it work in someone with Parkinson's? What is the value of truth-telling for someone who is struggling with an impulse control disorder or any other addiction? Is it possible that Parkinson's meds can expose a preexisting addiction or propensity for addiction? Is there a link between head trauma and addiction? and more! We hope you enjoy! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode, we talked to five people, Michael S. Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson's, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson's. Topics discussed include: Why are you living alone with Parkinson's? How does a service dog help in living alone with Parkinson's? What is the hardest part of living alone with Parkinson's? Finding more important things to worry about Accepting your limits while living alone with Parkinson's What different tools make living alone with Parkinson's easier? How to get around when you physically can't drive and more. We hope you enjoy! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! Addtional Resources: Advances Directives and Parkinson's How Service Dogs Can Support People With Parkinson's Parkinson's Nutrition and Living Well Life With Dempsey, My Parkinson's Service Dog Keep ON Moving – A New Online Parkinson's Exercise Program This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this session, panelists from the Living with Parkinson's meetup answered questions from the chat on everything Parkinson's. Topics discussed include: Why is it important to work with experts in Parkinson's? What is a biomarker? Why does it take so long to develop a drug for Parkinson's? What are the challenges with diagnosing Parkinson's? What are the potential impacts of surgery on Parkinson's symptoms? How do you make sure all medical providers have critical information? What is brain fog? How do you balance having Parkinson's and caring for others? What is speech therapy for Parkinson's? How do you get out of being frozen? and more. We hope you enjoy! Want to join us at the next Living with Parkinson's Meetup? Join us the third Thursday of every month! Want to read the article associated with this podcast? Check it out on our website! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, explains the symptoms, causes, and treatments of urinary dysfunction in people with Parkinson's. Topics we discuss include: What are the differences between urinary dysfunction in different neurological diseases? What is urinary dysfunction? Urinary dysfunction can be a precursor to a Parkinson's diagnosis How does urinary dysfunction affect a person with Parkinson's quality of life? When should you seek treatment? Urinary dysfunction is more prevalent in Later Onset Parkinson's Non-pharmacological and surgical treatments DBS and Urinary Dysfunction Carbidopa/Levodopa's effect on urinary dysfunction Pharmacological treatments Catheterization Prostate symptoms versus Parkinson's symptoms When will non-pharmacological treatments show results? and more! We hope you enjoy! Want to watch the video recording of this audio? Watch here! To view the show notes and related resources for this webinar, visit our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, panelists discussed what they wish they knew when they were diagnosed with Parkinson's and what advice they would give now to those who are newly diagnosed. Topics we discuss include: What do you wish you had known when you were first diagnosed with Parkinson's? Being kind, listening to elders, and seeking help Take things seriously, but not too seriously Don't ignore your symptoms Medications The moment when you are first diagnosed Having a movement disorder specialist Support groups Importance of exercise Socializing, being with people, and getting out of your head and more! We hope you enjoy! Want to watch the video recording of this audio? Watch here! Want to join the Living With Parkinson's Meetup? Register here! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode of The Parkinson's Podcast, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how symptoms of depression begin and how to combat them. In this episode, we talk about: How Dr. Subramanian, Dr. McDaniels, and Dr. Pontone are working on What clinicians can do to make your symptoms better How Dr. Subramanian combines Eastern and Western medicine The impact of demoralization on people with Parkinson's The importance of normalizing diagnosing depression The difference between demoralization in people with early-onset versus late-onset Parkinson's Changes in patient care since this panel started researching demoralization Dr. McDaniels' mother's journey with demoralization and Parkinson's The signs of depression and how to know when to see a doctor and more. We hope you enjoy! Want to read the article associated with this podcast? You can read it here. Want to watch a video of this podcast? You can watch it on our channel! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode, our Living with Parkinson's Meetup panelists discussed physical, social, and emotional vulnerability in Parkinson's. They offered their thoughts about how to adapt to changes that arise as Parkinson's progresses. As always, this panel doesn't hold back, and we're so fortunate to have them tell the hard truth and share their journeys with all of us. In today's episode, we talk about: Start of discussion on vulnerability Vulnerability vs. danger Social vulnerability Adapting to difficult situations Going to the worst-case scenario Community as a source of strength Impact of stories, beliefs and finding community and more! We hope you enjoy it! Want to come to our next Living with Parkinson's Meetup? Join us every third Thursday of the month! Want to watch a video of this podcast? You can watch it on our YouTube channel! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Soania Mathur interviews Dr. Michael Okun to discuss the latest therapies for Parkinson's, including RT-QUIC (Parkinson's biomarker), subcutaneous dopamine pumps, vibrating gloves, rescue medications, DBS, and more. Dr. Mathur and Dr. Okun discuss: New discoveries in diagnosing Parkinson's What do certain biological markers mean for diagnosis? What's new on the horizon for Parkinson's treatments? The subcutaneous delivery of dopamine replacement Transdermal treatment Microbiome in Parkinson's Vibration therapy The importance of individualized care plans How to sort through all the information about Parkinson's and more. We hope you enjoy! Want to read the article associated with this podcast? You can read it here! Want to watch the YouTube video of this podcast? You can watch it here! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, the Living with Parkinson's Meetup panelists discuss LOVE, relationships, and care partners, whether they be spouses, kids, friends, neighbors, etc. As always, our panelists speak with honesty and emotion, making everyone affected by Parkinson's feel less alone. In this episode, we discuss: Care Partners Who Think Your Parkinson's is Going to Get Better Care Partners Who Don't Understand Your Symptoms Pushing Your Care Partners Away The Difficulty of Communication Finding a Partner if You're Single with Parkinson's Partners Who Leave You Because of Your Parkinson's Family Relationships and How Much You Should Expect from Them Not Expecting Other People to "Understand" Crossing the Boundary from a "Partner" to a "Care Partner" Accepting Help When You Need It and more. We hope you enjoy! You can find links for more information about topics discussed in this webinar here. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, the Living with Parkinson's Meetup panelists discuss how their relationships have changed, grown, and faded since being diagnosed with Parkinson's. As always, our panelists speak with honesty and emotion and make everyone affected by Parkinson's feel less alone. In this episode, we discuss: Relationships and Parkinson's How relationships can strengthen after a Parkinson's diagnosis How to find people that are going through a similar experience Feeling like a burden and wanting to hide Finding situations where you feel like you can be yourself and humor Getting out of a funk Learning to ask for help and more! We hope you enjoy! You can find links for more information about topics discussed in this webinar here. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, occupational therapist Carol Chiang discusses the importance of adding an occupational therapist (OT) to your Parkinson's care team, common home adaptations that can be made to help you live well with Parkinson's, and more. What is Occupational Therapy? Why Can People with Parkinson's Benefit from OT? Carol's Business, "Evolving Homes" - How Does it Work? Practical Tips for Lighting The Importance of Contrast in Your House Common Bathroom Setup Problems Suggested Technology to Help People with Parkinson's Considering Handles and Switches Furniture Recommendations Surface Considerations Recommendations Around Rug and more! We hope you enjoy! You can find links for more information about topics discussed in this webinar, including links for the sheets Carol mentions, here: https://davisphinneyfoundation.org/webinar-recording-aging-in-place/ Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this week's episode of the Parkinson's Podcast, panelists from our Living with Parkinson's Meetup share how they find hope and inspiration despite the everyday and ever-changing challenges of Parkinson's disease. In this episode, panelists share: Quotes on Hope and Optimism from the Parkinson's Community How They Practice Being Hopeful, Optimistic, and Grateful How Sree Pushes Through Feelings of Defeat The Importance of Connecting with People How to Find Silver Linings Face Freezing and the "Resting B" Face The Importance of Humor How to Share Non-Motor Symptoms The Difficulties of Convincing People You Have Parkinson's How to Communicate Symptoms to People and more! We hope you enjoy! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Annelien Oosterbaan talks about the impact of Young Onset Parkinson's Disease (YOPD) on women, how women have been left out of the research for so long that their care is impacted, menstrual cycles, pregnancy, breastfeeding, medication, menopause, and much more. She also talks about what it's like to be a gynecologist, a mother of 4, and have YOPD. Dr. Oosterbaan answers questions like: What happened when you were first diagnosed? What was it like with your family when you were first diagnosed? What was it like living with Parkinson's and being pregnant? What have you learned about Parkinson's and pregnancy? What do you think healthcare providers get wrong about pregnant women living with Parkinson's? How does menopause affect women with Parkinson's? How does DBS affect pregnancy? What is Preg Spark? and more! We hope you enjoy it! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Rodolfo Savica discusses the biological and social differences of YOPD (young onset Parkinson's), treatments for YOPD, the challenges of diagnosing YOPD, and more. Topics discussed include: "Early" Versus "Young" Onset Parkinson's Typical Age for Young/Early Onset Parkinson's Treatment Differences for YOPD Diagnosing Young/Early Onset Parkinson's Young Onset Parkinson's and DBS (Deep Brain Stimulation) Difference in Progression Between Early Onset and Late Onset Parkinson's Difference in Women with Early Onset Versus Later Onset Parkinson's Exercising with YOPD Dementia and Cognitive Decline and more! We hope you enjoy! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Benzi Kluger, movement disorder specialist, and Kelly Weinschreider, a person living with Parkinson's, discuss the value of palliative care (aka supportive care or whole person care) from the very beginning of a Parkinson's journey. We discuss what palliative care is and isn't, the palliative care approach, how to advocate for care, where to look for care, and more. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

The practices of mindfulness, meditation, and relaxation, beneficial to everyone, can be particularly beneficial for people living with Parkinson's. In this conversation with Dr. Sarah Mulukutla and Dr. Evelyn Ooi, we talk about the value of learning these psychological, emotional, and spiritual tools to manage the challenges that come with living with Parkinson's. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Greg Ritscher discusses: How he transferred the skills that made him successful in his career to live well with Parkinson's His experience retiring and moving The process of writing a book Preparing for DBS The various ways Greg's found to give back and spread Parkinson's education and resources to those in the panhandle of Florida and more! We hope you enjoy it! For the mentioned links, resources, video recording, and more visit: http://davisphinneyfoundation.org/podcast-work-giving-back-deep-brain-stimulation-and-parkinsons-with-greg-ritscher Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Karen Frank, a person living with Parkinson's talks about: How using cannabis to ease her anxiety took her down an unexpected path How she got out of an unhealthy situation Her experiences with depression and rehab Her relationships, community, and living with Parkinson's and more! We hope you enjoy it! For related links and resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-addiction-cannabis-anxiety-medications-and-living-well-with-parkinsons-with-karen-frank Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Roseanne Dobkin discusses: Depression and anxiety in people with Parkinson's How to connect with a mental health professional The current landscape of telehealth for mental health What a first session with a mental health professional might look like The definition of cognitive behavioral therapy and when it might be a fit Managing anxiety specifically about Parkinson's progression Parkinson's symptoms that can be helped with CBT How to find a professional who is trained in CBT The amount of time for CBT to be effective Description of a typical CBT session The role of care partners in managing mental health symptoms and more! We hope you enjoy it! For mentioned links, resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-cognitive-behavioral-therapy-cbt-and-parkinsons-with-dr-roseanne-dobkin Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation