Rare Care Podcast
105 episodes — Page 3 of 3
S1 Ep 127An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD)
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).
S1 Ep 126An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases.
S1 Ep 125An Interview With Sarah Glass, PhD, of the n-Lorem Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.
S1 Ep 124An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dimitrios Karussis, MD, PhD, who heads the Multiple Sclerosis Center at Israel's Hadassah University Hospital in Jerusalem.
S1 Ep 123An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.