Season 1 · Episode 133
An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA
August 5, 20248m 59s
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Show Notes
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews patient advocate Maureen Juip of Grosse Pointe, Michigan. Juip, newly appointed secretary of the Friedreich's Ataxia Research Alliance (FARA), is also the mother of 2 children with the rare neuromuscular disease.