Living with multiple sclerosis (MS)

Talking about how infusion day went, discussing the sort of things I've got going on currently, as well as positive things in my life.#multiplesclerosis #MS #treatment #Ocrevus ##msawareness #chronicillness #podcast

Talking about #MSawarenessmonth, here are my thoughts on it being just in one country rather than worldwide.Discussing #MS and life with a #chronicillness.

Revisiting my guide to overcoming a phobia of MRI scanners.Discussing upcoming blood tests and touching on how one of my hobbies is going.#MS #multiplesclerosis #msawareness #podcast

In the past week, some MS friends have come together and started a weekly chat on social media; the first was Wednesday, just gone, and it was a massive success. That will now be a weekly show at 8 pm GMT on TikTok. Also, discussing how the meeting went with the cognitive MS study I'm taking part in and explained about Ocrevus treatment for MS.

I was discussing the news that broke about the origins of MS, giving my thoughts and opinions.I am explaining my mental health issues after starting the new year without a job for the first time.This is an update on how I've started seeing the positives again and fought to regain the confidence that had been lost.

Talking about the new ways I'm recording episodes. Discussing Christmas, talking about how MS is affecting me, as well as what I'm doing to stay positive.

Talking about the skydive, and my new job!.explaining about an issue with my lower back and how I'm having to replace my mobility scooter.

These last couple of weeks have been quite mind blowing, the story of my sky dive has made it's way into our local newspaper and bigger than that MS News Today have given me the chance to be a guest columnist, blogging up to the big leap!. So proud to have that opportunity.Talking about what I'm doing to build up to the jump, a new course that is really opening my eyes to the possibilities that the internet gives.Explaining about a new MS related issue, with my speech, and memory issues.

Talking about how my confidence seemed to have taken a knock, a great night out and how things are going at the gym.little bit about my sky dive that is 4 weeks away.

discussing the MS Society London walk, what a day absolutely loved it. lovely weather, great sites and incredible people.what I'm doing and going to do to try and get some type of fitness back.Tuesday just gone was treatment day, it went really well.

fingers crossed my next Ocrevus infusion will be this Tuesday, had quite a good week, Saturday Lisa and Me went to go and see an 80s tribute band. talking about my trip out on the scooter in the week, had a really good experience with an older chap being really polite. Kinda just a little update on how I'm doing as well. quick mention of the JustGiving for the skydive on the 29th October.

it's been a good week. had a meeting with the mental health team, very good chat which has given me a lot of thoughts about how to help myself. Eleanor had a good service and now runs awesomely. real chance for me to get on to a course for Digital Marketing. I want to do a sky dive to raise money for the MS society, need to speak to the doctor first, but, if it's possible then I want to do it, chance of a lifetime if that happens.

Firstly, oh what a mistake haha... I tried to record this episode live, done a whole 30 min episode, went to do the uploads and noticed I hadn't hit record, so here we are with a normal pre-recorded show. talking about my afternoon gardening and how it effected me, new acoustic padding on the walls in the studio and brief mention of my upcoming treatment.

talking about my week, bought a new chair to use while in the studio. little issue with hearing in my left ear (probably not MS), family BBQ and talking about the MS society walk next month.

a brief recap of my condition since show 1 up to today, explaining about a new issue that has literally only started within the hour before recording. Also talking about an issue that I had while out on my mobility scooter a couple of days ago.

Just a quick show this week, I've not been very well. suffering with a saliva glad infection as well as possibly dealing with the well known gap between infusions.

Totally different episode, I just had to get some thoughts out in regards to the cost of living. I will not talk individual companies but as a generalisation, All thoughts in this episode are my own opinion.

discussing my thoughts on information sharing within the NHS and other agencies. It was my 40th birthday this past week, so, I'm explaining what we've been doing... bowling and a family get together.

Discussing how I suffered Trolling online while doing a Live chat on a social media, also talking about how I've asked for some support with my mental health. This is such a different type of show and I personally loved every second of recording it. Internet Trolls should be more heavily dealt with by the social media companies in my opinion.

talking about mobility aids and trying to remove any stigma that some people have about using them, we need them and should be proud to use whatever we need to if it helps us carry on being us. also an update on me and quick update on the Website mikesmsjourney.com

Update on my week, 2nd appointment in Sheffield to see how the FES has been and how im coping with it. Talking about how I'm doing, as well as a story about a 12 hour nights sleep.

Chatting about what MS has changed for me and just getting things off my mind

Talking about how the meeting at the Sheffield teaching hospital went, I now have the FES. How the machine is working for me, a little funny story and an update on myself.

Talking about west ham winning the Europa conference league and talking about me finding me again.

Talking about my phone call about the FES machine and having a good chat.

World MS Day, talking about MS day and things I'm doing to stay positive and just having a general chat.

Talking about MS causing so many issues with your head and thoughts as well as another update with the lions mane mushroom supplements. Also talking about things im doing since having to leave work.

I discuss what issues I'm having now, some are new and talk about how I'm dealing with them. Discussing our house decorating, Lions Mane mushroom tablets I'm taking to help memory issues and a very quick mention about the whole cost of living issues.

after a couple of weeks without recording I've realised why... this was such a fun episode to record. time for me to get my confidence back and get back to being me!.

talking about our family trip to Plymouth and a full update on myself.

talking about my family time over Easter as well as an update on how I am and other general chat.

talking about the Ocrevus booklet and most importantly explaining about 2 very serious life events that have happened this week. Work is no more for me after 20 years in the security industry and explaining about my Physio session using a FES machine, this was incredible!.

Talking about the booklet I was given at my first Ocrevus treatment. I will discuss the second part of the booklet on my next show.

Talking about the past week and how things have been.

30th show, wow!. Just a general chat about myself and how im doing.

Very open and honest talk about the emotional side of my diagnosis

Loved recording this episode, talking about how my first treatment with Ocrevus went and just generally chatting about what I've been upto.

Opening up on my fears about the upcoming Ocrevus treatment and an update on how i am

Talking about somethings I did in my life before MS, giving a quick personal thought on MS and a massive shout out to the online MS Community.

Talking about my meeting with the MS nurse, how my case went in front of the MS MDT, finally treatment has been agreed and a sighting of the Red Arrows.

I had my appointment with the Neurologist where he has explained my lumbar puncture results and let me see my MRI pictures. Also I've had the call I've been desperately waiting for from my MS nurse.

My new poem and straight honest talk, explaining how im feeling in the most open way I can. Im struggling but im still fighting.This may be a tough listen for some because I am quite passionate about, how I feel im not being helped currently by medical professionals and it feels like I'm being left to get worse all because they need to tick boxes rather than give me the help and treatment that's needed.

Update on myself, its not been a good week, lots of pains and a trip to the doctors. Also talking about what I'm doing to keep going as well as a massive thank you to people for all their support.

Thank you all so much. 500 all time downloads. I can't explain just how grateful I am for the support, each and everyone listening THANK YOU, this achievement is fully down to all of you. Just had to put this out to show my total gratitude to everyone.

Talking about my new website mikesmsjourney.com and contact email [email protected] , please get in touch if you have any questions for me that I can answer on the show. Also an update on myself and talking about my challenge 28 I'm doing for the MS society during February.

Happy New year, update on myself as well as a new poem and talking about my hopes for the coming year.

Some of my most hard truths about how I feel im being treated by not being currently being given treatment. No script just total from the heart talking.

Talking with Lisa about how the Lumbar puncture went and then talking about the Christmas Panto was.

Talking about my meeting with the medical study team, occupational health. As well as my current physical issues and the best bit of all CHRISTMAS.

My MS journey Podcast. I hope you find this helpful. I will be talking about my journey with MS as a newly diagnosed person.