Living with multiple sclerosis (MS)

Talking about how infusion day went, discussing the sort of things I've got going on currently, as well as positive things in my life.#multiplesclerosis #MS #treatment #Ocrevus ##msawareness #chronicillness #podcast

Talking about #MSawarenessmonth, here are my thoughts on it being just in one country rather than worldwide.Discussing #MS and life with a #chronicillness.

Revisiting my guide to overcoming a phobia of MRI scanners.Discussing upcoming blood tests and touching on how one of my hobbies is going.#MS #multiplesclerosis #msawareness #podcast

In the past week, some MS friends have come together and started a weekly chat on social media; the first was Wednesday, just gone, and it was a massive success. That will now be a weekly show at 8 pm GMT on TikTok. Also, discussing how the meeting went with the cognitive MS study I'm taking part in and explained about Ocrevus treatment for MS.

I was discussing the news that broke about the origins of MS, giving my thoughts and opinions.I am explaining my mental health issues after starting the new year without a job for the first time.This is an update on how I've started seeing the positives again and fought to regain the confidence that had been lost.

Talking about the new ways I'm recording episodes. Discussing Christmas, talking about how MS is affecting me, as well as what I'm doing to stay positive.

Talking about the skydive, and my new job!.explaining about an issue with my lower back and how I'm having to replace my mobility scooter.

These last couple of weeks have been quite mind blowing, the story of my sky dive has made it's way into our local newspaper and bigger than that MS News Today have given me the chance to be a guest columnist, blogging up to the big leap!. So proud to have that opportunity.Talking about what I'm doing to build up to the jump, a new course that is really opening my eyes to the possibilities that the internet gives.Explaining about a new MS related issue, with my speech, and memory issues.

Talking about how my confidence seemed to have taken a knock, a great night out and how things are going at the gym.little bit about my sky dive that is 4 weeks away.

discussing the MS Society London walk, what a day absolutely loved it. lovely weather, great sites and incredible people.what I'm doing and going to do to try and get some type of fitness back.Tuesday just gone was treatment day, it went really well.

fingers crossed my next Ocrevus infusion will be this Tuesday, had quite a good week, Saturday Lisa and Me went to go and see an 80s tribute band. talking about my trip out on the scooter in the week, had a really good experience with an older chap being really polite. Kinda just a little update on how I'm doing as well. quick mention of the JustGiving for the skydive on the 29th October.

it's been a good week. had a meeting with the mental health team, very good chat which has given me a lot of thoughts about how to help myself. Eleanor had a good service and now runs awesomely. real chance for me to get on to a course for Digital Marketing. I want to do a sky dive to raise money for the MS society, need to speak to the doctor first, but, if it's possible then I want to do it, chance of a lifetime if that happens.

Firstly, oh what a mistake haha... I tried to record this episode live, done a whole 30 min episode, went to do the uploads and noticed I hadn't hit record, so here we are with a normal pre-recorded show. talking about my afternoon gardening and how it effected me, new acoustic padding on the walls in the studio and brief mention of my upcoming treatment.

talking about my week, bought a new chair to use while in the studio. little issue with hearing in my left ear (probably not MS), family BBQ and talking about the MS society walk next month.

a brief recap of my condition since show 1 up to today, explaining about a new issue that has literally only started within the hour before recording. Also talking about an issue that I had while out on my mobility scooter a couple of days ago.

Just a quick show this week, I've not been very well. suffering with a saliva glad infection as well as possibly dealing with the well known gap between infusions.

Totally different episode, I just had to get some thoughts out in regards to the cost of living. I will not talk individual companies but as a generalisation, All thoughts in this episode are my own opinion.

discussing my thoughts on information sharing within the NHS and other agencies. It was my 40th birthday this past week, so, I'm explaining what we've been doing... bowling and a family get together.

Discussing how I suffered Trolling online while doing a Live chat on a social media, also talking about how I've asked for some support with my mental health. This is such a different type of show and I personally loved every second of recording it. Internet Trolls should be more heavily dealt with by the social media companies in my opinion.

talking about mobility aids and trying to remove any stigma that some people have about using them, we need them and should be proud to use whatever we need to if it helps us carry on being us. also an update on me and quick update on the Website mikesmsjourney.com