Inside the Children's Hospital

Katie along with Co-host Cortney Given, host of the podcast Mindset for Medical Moms , interviews Dana who had micro-preemie twins at home. She bravely shares her story and how she and her husband acted quickly with the unexpected home birth. Dana shares how she navigated the long NICU stay and the moments to come afterward. You will get a glimpse into their life today and what it looks like to manage their medical care. Dana's journey to advocacy and letting others into your life during challenging seasons as a medical parent is something that is talked about enough in this important conversation on today's episode of the podcast. [10:50} Introductions [11:47] Fertility struggles reveals PCOS diagnosis [13:04] Finding out she was having twins [13:55] Ultrasound revealed possible complications [14:30] Delivering the babies at home [15:57] How giving medical history is a whole process [17:41] Lower back pain just before bedtime [18:56] Dana delivers at home [19:55] James begins to breathe [20:34] Vera was born breech [21:44] Not cutting the umbilical cords saved their lives [23:42] Babies rushed to level 4 NICU [25:44] A humbling experience [26:39] Being released 3 hours after giving birth [28:02] No explanation of early delivery [30:08] The support of family [32:10] Allowing others to support you as a medical parent [34:16] Learning to be an advocate [38:00] It's ok to snooze support groups [40:30] James and Vera today [41:21] Mild Cerebral Palsy diagnosis [44:51] Giving people the benefit of the doubt Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie has a co-host, Serheen Noor Ali from Hello Sleuth on today's episode where we hear Jodi's story of developing HELLP Syndrome and having a premature birth. Jodi walks us through her birth story along with those first moments meeting her daughter. She speaks to the joy we find in the unexpected and will leave you inspired to embrace where you are today. You will get to know Jodi's heart behind the creation of Fllrish. [5:40] Full circle of relationships [6:07] The crash course of becoming a medical parent [7:14] Special needs mother's quitting the workforce [9:30] Thinking ahead about Kindergarten [10:27] Jodi's husband went on his last business trip [11:21] HELLP Syndrome diagnosis [12:45] The calm reassurance from her provider [13:42] The birth plan [14:50] The onset of symptoms of HELLP [17:11] Not seeing her daughter for 2 days as she needed to recover [18:16] The meaning behind Jenna's middle name [20:44] Telling her doctor their was a problem [24:00] How life and death is transformative [26:32] Husbands and fathers getting more credit [28:29] Beginning to process what happened allowed Jodi to have maternal feelings [31:03] Their own growth trajectory [34:12] Deeper joy to be found in the journey [36:29] Putting one front of the other and checking your feelings [39:20] Not coming home with your child is difficult [40:37] The creation of Fllrish [42:25] De-stigmatizing learning differences 44:32 Resources for parents Connect with Jodi Website Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode of the podcast, Katie interviews Ryan who's son has Becker's Muscular Dystrophy. Ryan tells the story of the road to diagnosis for his son Jack and how their family coped along the way. Hear about what fueled Ryan to start an organization to help fund research to change the lives of children and adults with Muscular Dystrophy. This episode is filled with inspiration, hope and the raw perspective of a father advocating for his son. [4:20] Ryan Introduces himself [7:24] They noticed Jack was toe walking at 3 years old [9:20] Braces helped Jack walk flat footed [11:11] Noticing a difference in Jack's muscles [12:30] Elevated protein levels indicate there is an issue [13:36] Muscular Dystrophy diagnosis for Jack and other family members [15:30] How Ryan coped with the diagnosis [18:50] Learning very quickly who your people are [20:00] Trust and rely on those who reach out to help [21:06] A family friend explains Jack's condition to his children [23:00] The regret of past decisions [25:09] Jack's older sister's positive impact [27:39] The gift of the sibling relationship [28:56] Creating an organization to find a solution [30:20] As simple as a blood test [31:55] Curing Muscular Dystrophy with gene therapy [35:00] How a connection lead to the beginning of the research [37:54] Going down a rabbit hole [39:53] Accepting that we don't have all the answers [40:49] The level of bravery [42:11] He teaches me more than I will ever teach him [44:20] Stay tuned for published research Connect with Ryan Website Instagram Facebook Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode, Katie meets with Kristen McNeely, a Licensed family therapist who is in expert on Anxiety in Children. Kristen shares the importance of how we respond to anxiety as parents and caregivers, helping children understand what anxiety is and how we can help them navigate their feelings. This episode is full of ways to support your child through anxious moments and knowing when to get them help. [4:12] Kristen introduces herself [5:45] Seeing more behavior disorders that are manifesting as anxiety [7:15] Your child's anxiety is not your fault [7:45] The way we respond to their anxiety is important [10:19] Understanding what anxiety is [12:15] Accommodating vs Supporting [14:42] Being systematic in your approach [15:45] Our children are people too [18:20] Getting a call about her son at school [19:18] Wearing a professional hat as a parent [20:23] Shifting your perspective [21:20] Every situation is not an indicator of a problem Connect with Kristen Instagram Website SPACE Books Kristen Recommends Freeing your Child from Anxiety by Tamar Chansky Breaking Free of Anxiety and OCD Eli Lebowitz Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

podcast, Katie interviews Crystal Polk, a Social Worker and Licensed Therapist speaks about the dual role parents of medically complex children hold as caregiver and parent. Crystal specializes in working with families who have children with special or medical needs. She gives parents practical things they can do today to start on the path of healing. [3:30] Crystal introduces herself [6:00] Identifying the differences between caregiving and parenting [8:30] Acknowledging the stages of grief [9:40] Grieving what you once imagined [11:03] Delegation, being heard and frustration are common themes [14:08] Healing unprocessed trauma using EMDR [16:19] Lean into mindfulness [17:53] Giving your self the the gift of consistency [21:13] Type of support families receive varies from state to state [22:24] Parents are demanding positive changes [25:04] Getting the word out about parent caregiver support Connect with Crystal Website Instagram Crystal recommends using Psychology Today to search for a qualified therapist. View Crystal and other therapists here. Crystal is LEND Certified. Read more about the LEND program here. Unseen Caregiver Documentary Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On this week's episode of the podcast, Katie interviews Michele Benyo, a Certified Grief Specialist who helps families navigate the loss of a child with a focus on sibling relationships. Michele experienced the loss of her 6 year old son due to cancer. Michele shares how her daughter still maintained her relationship with her son in the midst of several long hospitalizations and how she processed the loss of her brother. *trigger warning-- this episode talks about loss and grief * [4:15] Michele Introduces herself [5:47] How her career and experience with losing a child collided [7:30] Helping families cope with grief and loss [8:45] How her 3 year old articulated her loss [11:40] Even at 15 months Michele's daughter could tell something was wrong [13:24] Her daughter came with to see her brother frequently [15:15] The visits prepared her for reality [17:59] There is no right way to process grief [21:29] Her daughter was aware of the seriousness of the situation [22:46] The radiation chemo took a toll on his body [23:20] Learning how to say the word 'die' [25:40] On the plane with a family from their school [26:55] Preparation helped her cope with his death [28:40] Unsettling for. young children to not be aware of what is happening [30:50] Sharing about her daughter after her son's death [32:31] Asking about what grade David would be in [33:54] Middle School was challenging at times [35:48] How her daughter adjusts her perspective and compassion through her wisdom of the loss of her brother [37:24] Parenting from the heart Connect with Michele Guide to Good Grief Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Travis shares how they discovered his daughter's cystic fibrosis diagnosis at age 4. Just months earlier, Travis learned his half sister was diagnosed with Cystic Fibrosis. He shares how the journey impacted his life on a professional and personal level creating the foundation, Piper's Angels to help support families dealing with a Cystic Fibrosis diagnosis. [3:50] Introductions [6:43] Showing signs of respiratory issues [8:11] Chest X-Ray to determine the cause of the Cystic Fibrosis [8:37] Adamant state of denial [9:16] The earth-shattering news of the Cystic Fibrosis diagnosis [11:06] Oldest half sister was diagnosed with Cystic Fibrosis months before [13:00] Prescreening for Cystic Fibrosis [14:22] Gene expression can create varied symptoms [15:32] Travis and sister have mild Cystic Fibrosis system [18:25 Learning how to advocate started with becoming apart of the CF community [18:44] Piper became very sick around age 8 [20:36] Roller coaster of having a child with a chronic illness [22:44] Creation of Piper's Angels [25:14] Being vulnerable [27:00] Adversity is the starting line for courage [28:50] Growth is the hearts expansion [30:40] Piper's Angels [33:10] Scholarships available for Saltwater Camps for CF patients [34:10] Mindfulness activities [36:15] Paddling contest annually Connect with Travis Website Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this episode, Savannah shares what it means to have wreck-less hope. Through her traumatic birth, having micro preemie twins and receiving a cerebral palsy diagnosis for one of the twins, Savanah explains how her twins have changed her outlook on life and how she cherishes the little things life has to offer. Savannah opens up about maternal mental health and how it affected her. It is her mission to help other moms experiencing a traumatic brith feel not alone through the gift of artwork and support. [4:05] Introductions [4:55] Stories of hope [6:47] History of pre-term labor [7:29] Going into labor at 24 weeks gestation [8:34] Journaling became therapeutic [11:32] Finding out both boys had brain bleeds [13:00] Cerebral Palsy and Hydrocephalus diagnosis [14:45] Leaning on each other and family and friends [17:00] The answers to the hard questions [20:00] The shift of worry [22:30] Charm and Wit of Lochlan [25:29] Staying in the present [27:05 The strength within came from [30:30] Cards of hope for mothers who experienced a traumatic birth [31:27] Survival mode [36:00] Caregivers needs the proper help [40:21] Beads of Courage Connect with Savannah Website Instagram Additional Resources Dear NICU Mama March of Dimes Hand to Hold Beads of Courage Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this episode of the podcast, Lenora from BetterSpeech shares about virtual speech language pathology services and how they can be beneficial for not just the child but for the family. Lenora explains how making a connection with the child positively impacts the progress of speech therapy. This episode is informative of what a virtual session would look like and provides valuable insight to parents seeking out virtual therapy services. [2:50] Lenora introudces herself [3:59] How she got started in Speech Language Pathology [4:32] Integration of therapy into the family setting [5:35] Putting parents at ease [8:03] Parents can share more information [9:22] Providing dedicated time for practicing speech [10:55] Asking your child how they would like to learn to motivate them [12:31] First experiences with children and connection with a child [14:20] The humor children bring [16:40] There are no stupid questions Connect with Lenora Better Speech Website Better Speech Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

This episode is full of tangible truth about what it means to be a caregiver and advocate. Kelly shares about her daughter's epilepsy diagnosis and how it changed her entire world. After a normal pregnancy and delivery, Adelaide wasn't gaining weight and had low muscle tone which was the beginning of her epilepsy diagnosis. Kelly became involved in CURE Epilepsy's mission and shares how Adelaide's spirit lives on through the work she does today. **Trigger warning: Kelly talks about her daughter's death in this episode** [3:20] Introductions [4:35] Adelaide's diagnosis [5:15] Miguel getting the call [6:00] Moving to Chicago [7:50] A friend's advice [10:35] Learning how to find your voice as a medical parent [14:05] Talking with other parents [16:40] Adelaide's seizures [17:31] Having a plan for seizures gave control over the situation [19:08] Regression after seizures [21:00] Accepting the reality of the situation [22:20] Finding empowerment and advocacy through working with CURE Epilepsy [24:51] CURE Epilepsy's research on Infantile Spasms [26:24] Adelaide passed away in 2019 [29:00] Adelaide's spirit lives on with the research [31:15] The forever connection with epilepsy families, clinicians and doctors [33:31] Learning patience along the way [36:00] How to connect with Kelly Connect with Kelly Website Twitter Instagram CURE Epilepsy Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Cindy and Gavin share about their son Ryan and his battle with Osteosarcoma. Cindy shares about how she created a Case for Smiles to help her cope with Ryan's diagnosis. Gavin brings the perspective of dad and professional and shares how he started a new position at the Hospital his son was being treated at the very same day as a diagnosis. They openly share the ups and downs of their journey and how Ryan's legacy lives on today. [3:16] Introducing their family [5;34] A bike accident lead to the shocking diagnosis [6:26] Going into remission [7:00] Gavin begins a new job as a CFO the same day they got the Osteosarcoma diagnosis [8:30] Diagnosis day [9:30] Bedside Manner of Pediatrician [10:26] Balance between hospital and home [13:32] Being open with Ryan during his treatment [15:38] Ryan learned how to golf during his treatment period [18:03] Cindy shares about how she made a pillowcase for Ryan to make each stay more comfortable [19:50] Finding out Ryan was terminal [21:30] Case of Smiles being formed after a Martha Stewart Contest entry [23:00] Coping with the new reality and loss [25:20] Using Ryan's experience to help cope with a cancer diagnosis [28:40] Finding your advocate voice [30:00] The joy in Ryan's pranks [32:32] Learning the ropes quickly [33:05] Evolution of care [35:15] Smiling and laugh through the hard times [39:02] Just Sibs Program Connect with Gavin and Cindy Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode, Katie shares with our listeners how Grandparents can support their kids and grandkids during an illness or diagnosis. During the holidays with lots of family time, this topic came to mind. Grandparents are an integral part of the family, whether they live near or far. This episode gives practical ways Grandparents can support their kids and grandkids. [1:58] Hard conversations during the holidays [2:17] How can Grandparents give support [4:05] When your child is hurting. your heart is in a million pieces [4:45] When is it ok to ask questions [5:25] "Can you let me know when a good time is?" [6:32] I love you, I'm here, I want to be useful [7:00] Let them know that you are there without expecting a response [7:58] Write down your questions [8:30] How can Grandparents advocate? [9:26] Sitting down with your child and ask their wants and needs [10:00] Helping with everyday tasks [11:07] Resources for Grandparents [11:32] Online resources to help navigate [12:38] The role of Grandparents is so important Download our free grandparents guide here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this week's episode, Katie wraps up the year with, Lyndsey (CLOC admin + podcast editor) sharing about what the common themes across the episodes were in 2022. This year was a memorable one as there were so many parents who so candidly shared their story on the podcast and clinicians who shared their expertise to inspire our listeners. 2022, you were SO good to us! 2023 we look forward to all the amazing stories and insight this next season will bring! [00:45] Lyndsey Introduces herself [3:34] Listening to stories while in the hospital [4:09] Diversity of topics in 2022 [4:32] Paola's Story {Episode 131} [5:30] Laura's Story {Episode 123 + Episode 124} [6:02] Dear NICU Mama's Story {Episode 145} [6:28] Feeding pump interruption [8:00] Acceptance of being an advocate and expert [8:25]Find your people [9:09] It's ok to use google [11:20] We are grateful for you Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Katy shares about her daughter Charlotte and how her surgeries that left scars inspired her to write a book about seeing scars in a positive way. Finding out about her daughter's diagnosis at 32 weeks on a Thursday morning and then welcoming Charlotte that Friday evening, talk about a whirlwind! Katy shares so many truths that will resonate with parents and how Charlotte has changed her life forever. [5:00] Katy introduces herself [6:23] Deciding what to share and not share [8:44] Finding your tribe and shared experiences [10:32] The diagnosis was a complete surprise [11:59] Abnormalities on the ultrasound on a Thursday morning [12:46] Being admitted to the hospital at 32 weeks pregnant [13:31] Emergency C-section on Friday evening [15:51] Getting cliff notes for diagnosis and drew photos to explain [17:02] That numbing feeling of receiving a diagnosis [18:23] Thinking of her husband and how it unfolded for him [21:25] Wedding rings gone missing [24:36] Placing value on people rather than things [26:14] Meeting Charlotte for the first time [30:55] Becoming close with the staff [34:44] Importance of a support system [37:50] Finding an expert who knew her diagnosis [39:42] Balancing time between home and schools [41:45] Milestones hit a little differently [46:43] Inspiration to write a book Connect with Katy Instagram Website Book Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast we will hear from Kirsten Black, a Certified Child Life Specialist, who had the opportunity to visit children's hospitals in Sweden. Kirsten shares her perspective on the major differences in pediatric healthcare, what she learned along the way and how it has influenced her as a Child Life Specialist. She shares her unconventional yet beautiful journey to the field of Child Life. [4:00] Introducing herself [7:15] Pivoting after the economy crashed [8:30] A seed was planted [10:15] Utilizing her degree in education [12:00] Using a brain map to help a patient with taking a medication [14:00] Connecting with Pediatric Hospice in London [15:15] Going to the Ronald McDonald House in Sweden [18:33] Several connections lead to many different children's hospitals in Sweden [22:27] Legal rights for children in Swedish Hospitals [23:35] The value of children and families in Sweden [25:48] Child Life specialists have an education degree in Sweden [28:41] Advocating for ourselves as Child Life Specialists [29:21] Nurses are trained to think through a poke plan prior to an injection [34:05] Low technology toys and activities [35:00] Accessibility to different languages in books [37:30] Anatomically correct dolls in Sweden Connect with Kirsten: Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Caryn shares about her daughter Elaina developing ALCAPA, a congenital heart defect, and how they found out weeks after an uneventful pregnancy. Caryn will shed light on how she coped with Elaina's diagnosis and how she strongly advocated for her along the way. You will feel moved by Caryn's fierce love and commitment to her daughter [2:25] Takeaways on numbing cream from Katie [7:22] Caryn introduces her family [10:16] Experiencing a wide variety of symptoms [12:56] A visit to the emergency room [15:16] Diagnosis of ALCAPA and emergency surgery [18:40] Caryn was not able to go home to get belongings [19:14] Thoughts about getting a second opinions [20:56] Elaina quit eating after her first surgery [21:58] Advocating for a transfer to a different hospital [23:13] Elaina needed ventilation to recover from her first surgery [23:47] Getting devastating news that Elaina may not pull through a repeat surgery [25:00] She struggled with feeding difficulties [27:29] Honesty and Empathy [29:39] Crash course on the anatomy of the heart [33:13] The early diagnosis was a better outcome for Elaina [34:50] Caryn shares statistics about ALCAPA [35:49] PTSD symptoms arise while Elaina is hospitalized [36:57] Covid + Thanksgiving [39:22] Everyone has their own pain [40:37] Taking turns going home [42:15] How she turned her own worry into company [44:33] Why she wrote My Scar is Beautiful [46:39] What Elaina has taught Caryn [47:40] Heartfelt words of encouragement from one medical parent to another Connect with Caryn Instagram Facebook Website Sleep Tight Tonight Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast, Ashley + Martha from Dear NICU Mama share their personal stories of trials and joy as they navigated difficult seasons as NICU moms themselves. You will feel right at home with the wit and charm Martha and Ashley bring to this episode. You learn why and how these amazing women created the Dear NICU Mama community all while giving us bits of wisdom, laughter and empowerment along the way. **Trigger Warning**: This episode talks about infant loss. If your heart isn't in the place to listen today, feel free to fast forward through Martha's part of the story.** [3:30] Introducing Dear NICU Mama [3:48] Martha Introduces herself [5:11] Sharing how she became septic and had to have an emergency c-section [6:48] Her son was born at 25 weeks gestation [7:24] Receiving a bleak prognosis [7:58] How JP's life changed the trajectory of Martha's life [8:14] Discovering she had a bicornuate separate uterus [9:00] JJ was born at 29 weeks gestation [10:09] Struggles with PTSD from the past [10:50] Ashley's story [12:33] Finding out she had sub-chorionic hemorrhage in early pregnancy [15:45] Learning her son had a heart condition [16:35] Ashley becomes pre-eclamptic [17:55] Ashley was rushed to the OR for an emergency C-Section [18:55] Silas was transported back to their local NICU [19:37] Adjusting to a private room from a pod [21:34] Ashley's positive emergency room experience [22:55] Ashley posting about her NICU journey lead to Martha reaching out [26:25] Unfollowing accounts on social media is allowed [29:05] The power of Facebook groups [30:50] Delivering a message of hope [33:07] Research about private rooms vs pods [36:06] Empowerment and validation for parents on the facebook group [37:53] Grief and joy can co-exist [40:05] Leaning into grief and pain, finding the beauty in it all [42:33] Every day is a miracle [44:37] the fierce loyalty of the sisterhood of NICU moms Connect with Martha + Ashley at Dear NICU Mama Website Instagram Facebook Course recommendation from Katie: Soul Care Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

As a NICU Dad, Alex Zavala share his perspective and critical role as a father on today's episode of the podcast. Alex shares so many moments along his journey that impacted him and gives advice to fellow NICU dads out there. This episode is for you too moms and partners-- you will learn more about the dad perspective and how to support your spouse. [3:32] Alex shares about his family [7:39] Giving his wife daily injections [9:49] Went to the store to register for baby gifts [10:41] Alex's wife called to let him know her water broke [11:00] The drive to the hospital [14:16] Feeling like you are in the movies [16:00] Finding new found strength as the situation gets harder [17:36] Feeling like you are drinking water from a firehose [18:27] Stat C-Section [19:34] Alone and scrubbing in [23:45] Pleading with the doctor [24:10] Putting faith in the team [26:30] Being in the OR was traumatic for Alex [27:10] Alex's attention turns to his wife as she has post delivery complications [30:25] Dad's are responsible for relaying so much information in the NICU [31:32] Baby was transported to the Children's Hospital [33:00] Setting foot in the NICU for the first time [34:40] His wife meeting the baby [37:20] The trauma and the stress is at a different level for Dads [37:52] The NICU is just a warm up for home life [39:15] Taking better care of yourself [41:09] Sharing your experience makes you feel less alone Connect With Alex Instagram NICU Dad Website Hand to Hold NICU Dad Podcast Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast, Emily Lemke shares how to stay organized as a medical parent. Emily's expertise comes from being a medical parent herself and a clinical social worker. She shares about her own journey navigating the world of being a medical parent and the passion behind creating The Medical Mama Compass. You will learn how to manage everything that comes with this title without becoming overwhelmed. [1:52] Introducing her family [2:38] Nora's premature birth and 97 day NICU stay [4:26] Coming home from the NICU with a G-Tube [5:48] Finding a feeding tube solution for Nora [7:15] Feelings surrounding taking your medically complex baby home from the hospital [8:40] Solution focused mindset [11:10] How to help manage the new equipment [12:20] Learning all about health insurance [16:00] The Medical Mama compass uses (A first time discharge MUST have!) [16:37] Document everything, even for insurance. it is a practical way to advocate [17:58] Keep track of your child's progress no matter how small [19:06] Ask questions to gain understanding [20:08] Keep a big picture view as much as possible [21:01] Taking care of yourself [24:00] In order to cope you have to think about it [26:37] What Nora has taught Emily Connect with Emily Instagram Etsy Shop for the Medical Mama Compass Code: CLOC15 15% off for CLOC Listeners Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Swapnil, father of two, shares on this episode of the podcast about his daughter, Anya, who has severe food allergies. Swapnil shares about Anya's first symptoms of a food allergy and the event that revealed the severity of her allergies. Whether you are a parent or Clinician, you will gain so much understanding and knowledge about food allergies by listening to Swapnil's story. [2:10] Value of resources along the journey [4:00] Introducing the family [4:56] Eczema struggles at 6 months old [5:30] Anya had a anaphylactic reaction to cashew butter [6:44] Awareness is arising about food allergies [7:46] Preparation for Anya to go to school [9:07] Testing from a local allergist [10:20] Keeping a variety of foods in her diet [11:30] Keeping a spreadsheet to keep track of food and reactions [14:50] How manufacturing changes created an issue [16:00] How mitigating the risk is a form self care [17:23] Sub-lingual Immunotherapy treatment (SLIT) [19:00] Finding a team of allergists for Anya [21:30] The differences in a school settings and away from home [25:13] Swapnil wrote a book to help Anya cope [26:10] How the Allergy Community online was extremely helpful [28:22] Practical ways to remember to take the Epi pen [31:08] Using the epi-pen is never easy [32:00] Sharing about Anya's character Connect with Swapnil Instagram Recommended Resource Book by Swapnil Patel Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Hannah bravely shares how her two young daughters developed febrile seizures. Although febrile seizures are common, it is something that isn't talked about enough. Hannah will shed some light for families walking through this diagnosis and provide you with ways to navigate the practicality and emotions that come along with it. [2:47] Hannah introduces her family [4:45] Sharing symptoms and instincts [6:08] Finding her daughter, Hadley, unresponsive in her crib [8:16] Hand foot and mouth was the initial culprit of the fever [10:52] Discharge instructions after having a febrile seizure [11:43] How prayer and a supportive husband gave Hannah the ability to cope [12:45] Hannah shares about her second daughter, Madison [14:40] Madison has her first febrile seizure [16:39] The after effects of a febrile seizure [19:09] Madison's second seizure [20:58] Hannah shares how the week prior she had a CPR and First Aid refresher course [23:27] Madison showed no symptoms but ended up having a UTI, ear infection and pharyngitis [27:04] Madison's third seizure [30:28] Back to back seizures [32:16] Hannah shares the instructions from the dispatcher [33:29] Bloodwork to diagnose Madison [34:45] Hannah explains how reoccurring febrile seizures can result in a seizure disorder [37:40] Connecting with a friend whose son has had febrile seizures [38:33] Tips for prevention [40:12] After effects of febrile seizures [41:07] Being sensitive to illness [44:24] Talking about motherly instinct Connect with Hannah Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

" It was like I was leaving home with a newborn because I had no idea what to do. We were in survival mode for those 3 days in the hospital. It was just nothing that I ever expected to be dealing with.'-Melanie Smith Melanie shares how she learned of her daughter's diagnosis of type 1 diabetes when her daughter was 18 months old. She so vulnerably shares their journey from diagnosis to life at home. This story is packed full of great insight to families navigating a new diagnosis of type 1 diabetes. [2:50] Melanie introduces her family [5:33 Noticing an excessive thirst in her daughter was the first symptom of diabetes [7:05] Malia's energy levels were depleted [8:55] Melanie made a list of concerns to tell her doctor [11:30] The pediatrician urges them to go the emergency room [13:04] Melanie shares the trauma that incurred for her [15:45] Advocating for Maliah to eat while hospitalized [17:36] Processing the news of her daughter being diabetic [19:17] Learning how to care for Maliah [21:30] Melanie shares the range of emotions she felt processing the news of the diagnosis [24:30] Using a continuous pump monitor her diabetes [25:13] Counting the carbohydrates [28:08] Watching her sugar levels at first was overwhelming [30:39] Advocating for your young child [33:00] Feeling reassured starting Maliah in Preschool as her teacher is diabetic [36:30] Melanie shares her concerns about her newborn having diabetes [38:16] Type 1 diabetes misconceptions and value of education [39:26] Questioning how long Maliah had diabetes for [40:59] Finding a community to lean on [44:30] Celebrating Maliah's diaversary Connect with Melanie on Facebook Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"A patient becomes so vulnerable with them because they don't even realize what they are doing. When you are in that moment petting the dog, every emotion, feeling and thought runs free because you aren't having to focus on a conversation, it is so natural." -Shelby Bonnet, CCLS Shelby Bonnet, a certified Child Life Specialist and Animal Assisted Therapy Coordinator, shares how facility dogs are utilized in children's hospitals. This episode is packed full of information on how facility dogs impact patient care and how to balance patient and clinician needs. If you are a parent who has ever wondered about the purpose of a facility dog in hospitals or a clinician who is wanting to have a facility dog be apart of their hospital's program, you will want to give this episode a listen! [3:00] Shelby shares about her career being a Child Life Specialist and Facility Dog handler [5:00] How they started the Facility Dog Program [6:30] Child Life Specialists role with Facility Dogs [7:12] How her workflow changed [8:25] Balancing the needs of patients and clinicians [10:10] Being intentional with your time [11:18] How Pinto, the facility dog helped with a with an intervention with an oncology patient [14:08] How Pinto altered the entire families experience, not only the patient [17:38] Common misconceptions of having a facility dog [19:07] Life at home with Pinto [21:04] How to get the process started [23:22] Splitting time amongst different units in the hospital Connect with Shelby: Instagram Shelby's Recommended Resources: Canine Companions Canine Assistants Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On todays episode, we will hear from Rita Ho-Bezzola, CEO and Founder of Piper + Enza: A Covid-19 inspired health and happiness company for kids. Rita shares her inspiration behind Piper + Enza and how her goal is to make common health experiences positive for children and parents. You will not want to miss this episode! [2:30] Sharing about her family [6:14] How Covid-19 was her inspiration create Piper + Enza [8:10] The moment Rita discovers her mission [10:10] Using Literacy to help children cope with medical experiences [14:45] Growing pains of parenting and children [15:00] Changing our perspective on pain [16:56] Our worldview vs our children's worldview [17:50] Empowering parents to be their child's biggest advocate Connect with Rita: Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast we hear from Lauren about her son's diagnosis of Aicardi-Goutieres Syndrome (AGS.) She shares how her uneventful pregnancy followed by a NICU stay and numerous hospital visits with unanswered questions eventually resulted in a diagnosis. Lauren shares how coaching changed her life and how she is now a life coach for mothers of children with disabilities. [4:32] How ranch living was a dream come true [5:20] After an uneventful pregnancy, Lauren gives birth [7:00] A nurse tells Lauren to get a second opinion [9:15] Lauren and Katie chat about the NICU life [11:00] How staying at the hospital added to the emotional and stressful times [12:25] Asking about Lauren's pregnancy history [14:00] An MRI reveals some answers [16:50] Living in flight or fight mode [19:50] Leo stopped eating and had a swallow study [21:00] The doctors grasp for answers [26:30] Genetics appointment results [27:30] How diagnosis day holds trauma [29:11] Finding a specialist who has experience working with children who have AGS [31:20] How Lauren found healing through coaching [35:28] Lauren shares Leo's love language [37:24] Self care is what works for your stress management [39:22] What is driving your action and feelings? [42:27] Our definitions of being a good mom Connect: Lauen's Coaching Website Lauren's Instagram Page Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"It's not a time to say I'm sorry, It's a time to acknowledge that, yes in fact you had something you did not plan for, a traumatic event. But also you did have a baby and to step into that joy and gratitude and not lose sight of those things.-Jamie Cline Jamie shares how her daughter Callie has persevered with tetralogy of fallot and later on a limb loss.She learned about her daughter's tetralogy of fallot just hours after having her 7 weeks premature. When Callie turned one, she shares how they came to the decision to do a lower leg amputation. Jamie shares Callie's journey of learning to walk with a prosthetic as well as the emotional journey she embarked on as a mother. [3:00] Jamie shares about their family and hobbies [4:50] Close monitoring during Jamie's pregnancy due to her pre-existing type 1 diabetes [5:37] Callie was born 7 weeks early via c-section [6:43] Learning of Callie's heart condition, Tetralogy of fallot [8:30] The grief and anger to follow the initial diagnosis [10:35] Feeling cheated of hopes and dreams she had [11:40] Sharing the emotional challenges of others saying they are sorry rather than celebration [13:12] Callie had to be transferred to a different hospital for the surgery [15:00] How their community rallied around supported their family [17:18] Callie went between the NICU and PICU for close to 3 months [20:40] The best Christmas gift- Callie got to come home for Christmas [21:40] Noticing Callie's limb difference shortly after birth [26:05] At 19 months old, Callie had her amputation surgery [27:30] Decision making process [30:08] How grief was a big part of Jamie's journey to healing [32:00] Jamie shares how she took care of her self during this difficult time [36:00] How Callie has changed their lives and the positive things she has gleaned from being her mother Connect with Jaime: Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Judith shares how one of her twins was born with albinisim and how she stayed positive during the diagnosis and beyond. This episode will absolutely touch your heart, Judith is a natural story teller and captures hows she embraced her daughter's albinism and has seen the beauty through it all. [3:15] Judith shares her busy life and routine with the twins [6:25] She shares about her high risk her twin pregnancy journey [7:27] How the ultrasound tech noticed the bridge of the nose on both of the babies [8:20] Overwhelming feeling that finding out about one issue after a next, [8:49] Joining a support group felt like accepting the mis-diagnosis she received [9:57] The doctor noticed her daughter stopped growing and told her she needed a c-section [11:12] Soon after birth, she noticed her skin was light in color and Judith wondered if she had albinisim [13:14] Baby girl had to stay a little longer to gain some weight when brother got discharged. [15:25] Judith and her family were concerned about others not accepting her [19:45] How her faith helped her maintain positivity during trying time [21:45] While trying to become pregnant, Judith's faith that she would become pregnant with twins was walked out when she prepared the extra bedroom for children [25:55] Confirming the gender of the babies [29:00] How she felt like going to a support group for parents of blind children was accepting that her daughter would be blind [32:00] Sharing how people in her culture treat albinisim [33:40] Judith shares how she explained to her daughter how she was beautiful and that different is beautiful [35:05] Sharing how she is confident in school and speaking to others about her differences [36:50] How she uses her story to help others and inspire parents going through it [40:00] Embracing the journey of albinism and seeing the beauty in it all CONNECT with Judith: Instagram Learn more about albinism at www.albinism.org Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"I've connected with food allergy patients and we have all come together. That is the most important thing, to make sure that nobody feels alone."-Rebekah Wallace Rebekah shares her life today as a teen with food allergies. This episode brings perspective to our listeners about how we can take our challenges and turn them into advocacy and awareness. Rebekah, shares her first memories of having food allergies and how she and her family learned to cope. She shares how she coped with the news and what she is doing today to bring awareness to food allergies. [3:15] Rebekah shares her about her every day life as a teen with food allergies [5:30] The struggle as a young child not understanding why she couldn't eat certain foods [6:40] She began to understand the importance of the allergies around age 10 [7:45] Rebekah shares the first time she had to use an EPI pen [8:00] She explains how remaining calm during a reaction is key [10:30] How Pageantry made her feel confident to speak up about bringing awareness to food allergies [11:55] The Allergy bet book she created to share with young children about food allergies [15:45] Being able to connect with other peers going through the same thing was so helpful [16:00] All children need is just love and support [17:45] Rebekah shares her dream of being a oncology nurse CONNECT Instagram- @Rebekahreacts Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists,get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST

"I really feel like I'm paying forward with everything that I lived and everything I've experienced as a professional. My program is my heart in a basket for them."- Dr. Michelle Hu, Audiologist Dr. Michelle Hu shares how she was diagnosed as hard of hearing as a young child and what lead her to become an audiologist. This episode is packed full of wisdom. [3:12] Michelle's teacher encourages her mom to get her hearing checked [3:49] Getting hearing aids after a mild hearing loss diagnosis [4:44] The hurricane feeling her parents felt after receiving her diagnosis [5;26] Struggling with the news of hearing loss [6:14] Seeking second opinions after struggling with the diagnosis [7:00] How Michelle's parents processed her diagnosis [9:15] The inspiration behind creating a community for parents [10:18] Through the community she has created, she feels like she is paying it forward [13:00] Creating tools to helped newly diagnosed families [16:00] Katie+ Michelle discuss how parenting is full circle [17:33] How Michelle decided to be an Audiologist [20:10] Providing the cliff notes to help each other and win is the goal CONNECT: Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Tanisha tells a story of strength and perseverance as her son Jaleel was born with a lower urinary tract obstruction. This story highlights the powerful ways Tanisha and her husband, Quentin work together as a team for Jaleel and their family. From her experiences in the NICU and beyond, Tanisha created a community to support NICU Medical Moms. [3:52] The journey to motherhood for Tanisha [6:13] Learning that Jaleel had a lower urinary tract obstruction at her 20 week anatomy scan [9:30] How Tanisha's husband helped her feel included in Jaleel's care [14:16] Healing is on-going for Tanisha and her family [18:39] She describes how she had the urge to walk one evening and the next morning learned she was in labor [20:35] Jaleel was born and was immediately rushed to the NICU for respiratory issues [22:57] Tanisha explains the emotional reunion in the NICU [24:51] Her husband advocated for Tanisha become involved in Jaleel's care to connect with him [26:49] Tanisha shares how she went into learning mode to not be stressed [28:42] Child Life specialists put up pictures of Jaleel's progress in the NICU and decorated his room the theme of his nursery [31:33] Getting a G-Tube was key to getting Jaleel ready for transplant [33:30] Moral support from Mom to Mom was key for Tanisha [37:43] Tanisha shares how she was enrolled in her Master's Degree program and how she was supported by faculty [42:00] Tanisha shares how she feels she is getting to live her dream in a new way [45:24] How Child Life Specialists shaped Jaleel's interest in music Connect with Tanisha: Medical Moms of NICU Facebook Group Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Paola shares the shocking diagnosis her son received as a newborn of ADA-SCID (Severe Combined Immunodeficiency.) This powerful story a he shares how she navigated hospital life during the beginning of the pandemic and her journey with postpartum depression. She shares words of wisdom on how to deal with the feelings that come when your child gets a life altering diagnosis. [5:22] Paola describes the grief she experienced with Jakob's diagnosis [7:10] She describes the shock and acceptance of the news that Jakob has ADA-SCID [9:12] Postpartum depression struggles during isolation [11:10] Sharing the importance of opening up about your struggles [13:44] Being a first time Mom and medical mom [15:03] Paola describes how she fights the good fight [17:44] Her cervical cancer diagnosis after Jakob's diagnosis [19:29] Paola's campaign to fight for Jakob's treatment [20:21]She describes how her cancer diagnosis was her moment to pause [26:50] Coming up with a plan and leaning on community helped Paola cope with the diagnosis [30:12] She shares how Child Life specialists have helped reduced the trauma Jakob has had to endure [31:28] Jakob has taught Paola to be brave and to have courage [32:20] Paola has created an environment that helps Jakob have some normal day to day activities despite being isolation [33:45] She shares how her motherhood journey was so different than what she anticipated, she feels fierce and does not take no for an answer In My Magical Bubble Book Connect with Paola: Instagram Facebook Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists,get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"Never listen when they tell you your child will not, encourage them to do the best they can do"- Belinda Hammond, CCLS Belinda shares her son's journey with low tone, epilepsy and autism and how her professional and personal experiences collided, giving her an invaluable perspective as a parent and professional. This episode is in our top 5 most downloaded episodes to date. [4:39] Belinda notices her son is not meeting some major developmental milestones [5:17] Receiving a low tone diagnosis as an infant [10:00] Belinda shares a touching moment in her son's journey to run a 5k [12:39] Finding activities your child likes to incorporate into therapy [13:34] She gets a phone call from Justins school, Belinda begins to search for answers [14:57] Additionally, she learns her son is having absent seizures and after a neurology referral learns he has Epilepsy [15:41] After hearing feedback from her son's school, Belinda decides to homeschool Justin [19:53] Getting her Masters degree helped her become a stronger advocate for her son and patients [22:45] In addition to low tone and seizures, Belinda shares about Justin's mild autism spectrum diagnosis at age 5 [24:50] Belinda describes how going back to school was self-care for her [28:54] Working on self-confidence [30:09] Justin's amazing attitude and ability to push forward is inspiring to Belinda If you would like to connect with Belinda, you can email her, or connect through her website and Facebook pages. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

This episode originally aired in March 2020 at the beginning of the pandemic. This topic is so important and rightfully so, it is our 2nd most downloaded episode of all time. When it comes to COVID-19, how we inform our children is incredibly important. If you're wondering how we can talk to our kids about COVID-19 when we as adults still don't know exactly what's happening, you're not alone. This episode covers suggestions for age-appropriate language to use as well as general considerations to keep in mind as you talk to your children about COVID-19. Children are looking to adults for honest, easy-to-digest information. Give a listen to learn how to break it down into a way that they can understand. [3:20] Katie explains that children and adolescents crave a strong compassionate leader who establishes boundaries [6:00] It's important to remind children that a lot of the information they hear may not be factual [8:53] Katie explains to empower your children by validating what they are already doing [9:19] She shares how hand-washing is an easy practical way fuel empowerment when discussing COVID-19 [10:10] t is ok to admit that there are unknowns about COVID-19 and acknowledging that we don't know the answers and that is ok [11:06] Katie shares the importance of setting a good example.You want to model behavior that your children will follow [12:00] Offer to have a check in with your child if they are feeling worried [12:22] Katie's key to success is to be a strong and compassionate leader and exhibit the behavior you want your child to have. Be a buffer! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this episode of the podcast, you will hear an amazing story of resilience and hope.This episode originally aired back in August of 2020. This is the most shared of all of our podcast episodes; you will quickly learn why after listening to this inspiring story. Meet Maura Senneff, mom to sweet Ryan. Ryan is a thriving 8-year-old boy who has Down syndrome. The amazing advocate by his side, his momma Maura, describes that "zooming out" and looking at things from a wide lens helped them turn Ryan's health around.She talks about small changes and the "no limits" attitude their family lives by. [1:39] Maura shares about her family and introduces us to Ryan and his journey with Down syndrome [2:40] Maura explains how resilient Ryan is despite his struggles with chronic illness for his first six years of life [3:27] Never giving up was key to their success at navigating Ryan's diagnosis of Down syndrome [4:00] Maura shares how Ryan's diagnosis with Down syndrome was not going define him and put limits on what he can and can't do [4:56] Maura shares the deep meaning behind advocating for Ryan; it meant the idea of unlocking potential and removing barriers for generations to come [5:23] Maura explains how they came to learn of Ryan's unexpected Down syndrome diagnosis at birth [7:12] Maura shares that during her prenatal care there were no markers on any of her ultrasounds for Down syndrome [8:04] Maura began to have what she thinks are braxton hicks contractions but learns she is in labor [9:07] Maura describes Ryan's quick delivery and the time that lapsed before getting to see him [9:32] She describes how Ryan wasn't latching and crying like her first baby and something felt wrong [10:45] Maura describes the moment she told her husband Jack that she thought Ryan may have Down syndrome [10:56] She explains through tears how she feels sad about the emotional roller coaster of emotions she went through the first few days and how there is immense joy despite the diagnosis [12:51] Ryan goes to the NICU for additional testing and Maura describes how she was mentally preparing for the diagnosis of Down syndrome [13:45] Maura shares how her husband saw their family pediatrician come in with his Saturday work clothes on and was how it was an indicator that something serious was happening [14:07] Maura explains the emotional moment they heard the official diagnosis of Down syndrome [15:30] Maura explains how with Down syndrome, there is a variety of health complications and Ryan was fairly healthy despite the circumstances, but struggled with acute illness [18:26] Maura shares how she and her husband didn't know much about Down syndrome and special needs before meeting their son [19:57] Ryan was reading before he learned to talk. Maura did not know if he was going to talk but ensured that he had access to as much therapy as possible [22:37] Maura shares how she advocated for Ryan during one of his ICU stays [24:02] Ryan had a low white blood count at birth and had several emergent blood draws over the years and Maura shares her desperation for answers [26:09] Maura explains how an ABA therapist was a pivotal force for Ryan to potty train [28:00] Ryan did swimming lessons at 18 months old, could roll over and do things in the water before he could do them without his walker [29:46] Maura shares how other people have reached out to her after finding her on instagram and how his story has given them hope [31:00] Maura shares about the language surrounding Down syndrome and how it made her feel [33:50] When children have a diagnosis, it is important to not put what they can or can't do in a box [35:40] Maura explains how the school called her about Ryan's therapy, stating that he did not need it any longer. She had his therapists train the teachers on his behavior plan [37:25] She shares the one thing she wished she would have done in early Ryan's diagnosis is to meditate and how many medical professionals urged her to do so as it is a part of their daily practice. It helped her not get overwhelmed in her thought life [41:00] How their family added meditation into their daily routine for calm minds,manage stress and think clearly [43:05] Maura explains how going through the emotions and feeling like your head is spinning is normal but you don't need to stay there. Meditation is so crucial to her to get through the days. [48:00] Maura explains how ABA therapy was a game changer and how she wishes that she would have started Ryan in this type of therapy at birth [50:00] She shares about how when she broke her foot badly and told the doctor she would do anything to help her broken foot.. He sent her to a Chinese medicine doctor for acupuncture and had immediate pain relief. She vented to the doctor about Ryan's situation and she suggested she bring him in for treatment [54:00] Maura explains how thinking outside of the box and trying things that are not typical are SO impactful to their experience. Find your tribe that will sit

Episode 127 | Courtney's Story - A daughter born at 25 weeks [MOST DOWNLOADED] At just 25 weeks pregnant, Courtney was diagnosed with pre-eclampsia and was hospitalized. Just 5 days later and after a terrifying emergent c-section, she would meet her daughter, McKenzie. In this episode, Courtney talks about her entire experience from her own hospitalization and her daughter's 5-month stay in the NICU and eventually going home. She talks about the balance of being a single, working mom and the struggles that come along with having a child with medical needs. Courtney will leave you feeling inspired and in utter awe of how she loves and supports her daughter. [2:47] Courtney is informed she has high blood pressure and is admitted to Labor and Delivery [4:24] Courtney is transported to a larger hospital that has a higher-level NICU [6:35] Courtney asks tough questions about her condition and her daughter [9:12] Courtney is informed she will need to have a c-section [11:12] Courtney is informed she will need an emergency c-section as she has developed HELLP syndrome [15:44] Courtney describes the overwhelming emotions she felt meeting her daughter for the first time in the NICU [19:44] A primary nurse keeps Courtney accountable in the NICU about pumping. Courtney shares how important this was to her and her journey with McKenzie. [21:24] Learning how to do McKenzie's care in the NICU helped Courtney feel empowered [22:45] Courtney describes the roller coaster ride she experienced while McKenzie was in the NICU [24:20] She explains how she stayed in the hospital recovering from HELLP syndrome [24:50] That punch in the gut feeling Courtney felt after learning the significance of a white flower posted outside of a neighboring NICU room [26:50] Courtney shares how she advocated for McKenzie, even when others did not agree with her [29:35] She shares about life after the NICU + rooming in with McKenzie [33:15] Courtney shares about McKenzie's feeding journey and oral aversion and the ups and downs with her feeding including developing, GERD and getting an NG tube [36:41] She recalls how McKenzie's nurse, now friend, came to the rescue to help drop McKenzie's NG tube [38:32] Courtney shares how she came to the decision to get McKenzie a g-tube and how it affected her as a mother [40:15] She shares the love and hate relationship with the feeding tube and how she came to the understanding that even though it wasn't preferable it helped her nutrition [43:00] Changes she had to make in her life to support McKenzie including staying in during cold and flu season [43:50] The beautiful gesture of friends supporting her during their NICU stay, bringing her to lunch each Sunday, and giving her weekly care packages. [45:35] Courtney shares her struggle of finding quality childcare for McKenzie and how difficult it was to find someone whom she could trust [48:12] Courtney relied on her faith and prayer to cope with what was going on in her life and with McKenzie [50:18] Courtney's friend Ebony, encourages her to get help and go to therapy after she describes some dreams and things during her day that remind her of being in the hospital [54:00] She shares how difficult it was for other people to understand what she was going through [55:09] Courtney describes how she puts her own needs aside to give McKenzie the selfless care and love she needs and deserves CONNECT WITH COURTNEY Instagram Facebook Twitter Blog Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Episode 126 | Supporting Children in Hospice On this week's episode, Shani Thornton, CCLS, from Child Life Mommy shares how to support children in hospice. Shani wears many different hats in the Child Life world including supporting children in the hospice setting .Shani shares how to connect with children during this difficult time and ways to explain things that are honest and easy to understand. To help children feel more connected during this challenging time she shares some of the meaningful exercises and activities she does to help children cope. Connect with Shani: Instagram Website Click on this link to view the books Shani talked about in today's episode! [6:50] Shani talks about working with a local hospice agency to provide support [8:44] Interventions in the hospice setting [10:07] Importance of following the child's lead. [11:05] How children digest information [13:35] Explaining differences in medication, for illness versus comfort [15:22] Explaining to children the care team that will be helping [16:10] Processing hospice care [16:30] Using play to help children to understand terminal illness [18:00] How to explain illness not seen by the eye [19:17] Importance of validation, security, emotional safety and being seen [19:35] Creating fingerprint charms, handprint molds, handprint tree and bracelets to commemorate [21:25] Importance of giving parents space to share and how witnessing, validating and listening is key [22:54] Communication with social worker and hospice agency [24:40] Additional ways to support the family Sign up for FREE Parent Support Group with a Child Life Specialist beginning, Monday June 27th at 10am CST Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifeoncall.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

This week's episode is a throwback from Katie's June 2021 interview with Child Life Wild Life host, Jessica Lewin, who was also recently a guest on Child Life On Call. In this episode, you will learn about how Katie's experiences as a child life specialist and a new mother influenced each other in the most positive ways. From sharing her 'why' about podcasting, to preparing her own children for medical procedures and balancing her career and motherhood, you will get to know the heart of our host, Katie Taylor. [5:20] Intro about Katie and her family [9:30] Going back to work after having her baby [11:10] How motherhood transformed her career [12:00] Podcast inspiration [14:32] Supporting parents in the NICU [18:08] Challenges while working pregnant in the field [19:50] Best part of being a mom and child life specialist [21:02] Dental appointment preparation [22:30] Torticollis diagnosis [24:36] Importance of relationship building with parents [28:05] Postpartum anxiety struggles [30:45] Tips for CCLS Students [32:07] Starting her own business Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifeoncall.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

In this episode, we will hear from Laura about navigating hospital life and finding the balance between caring for her family and taking care of herself. She focuses on the importance of self care and how it has made her be the best version of herself. Laura shares how life after the hospital doesn't have this glamorous feeling but is another marathon in itself. In this episode, she speaks on the positive takeaways from this journey. This episode is full of nuggets of wisdom that you will not want to miss! If you are in the middle of a long hospital stay, this episode will speak to your heart. [3:54] Leaving Trey for the night [5:56]- Daily Routines [7:40]- making time special with the big kids [12:07]-Touching interaction with CT Tech [17:47]- How our children heal us and we re-strengthen bonds [18:50]- Dividing and Conquering responsibilities [19:57]- Trey's homecoming [22:00]- Feeling of being alone [24:49] Trey's strong emotional intelligence [28:29] Laura shares how motherhood is a privilege [33:00] Taking care of you! [35:40] The daily high 5 Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

Friends, you are not going to want to miss this episode! On today's episode of the podcast,we hear about Laura's Birth story and the beginning of her son Trey's journey with congenital Leukemia. Laura shares the raw emotion and grief when she and her husband learn of Trey's diagnosis. She goes intimately into detail about her first time seeing her newborn son, how it broke her to her core and how she began to pick up the pieces. Laura shares how her friends rallied behind her during this extremely challenging time and how we can support others going through a crisis. There is a part 2 to Laura's story, sharing all about life during and after an extended stay in the hospital. [4:10] How they chose Trey's name [5:20] Unexpected diagnosis [9:25] Emergency C-Section [10:48] Pep Talk with Mom [15:59] Neonatologist gives them difficult news [19:40] Laura describes that 'tsunami' feeling of their world crashing down around them [22:24] Meeting the transport nurse who helped transport her son [27:12] Meeting Trey at CHOP for the first time [31:10] Processing the events [33:58]Reality of the diagnosis sinking in [35:15] the Importance of taking care of yourself [39:00] How to help in times of need [42:19] How Laura's friends and family supported her every step of the way CONNECT: If you would like to connect with Laura, please reach out to Child Life On Call Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

On today's episode of the podcast, we will hear from Ryan Judd, Music Therapist and creator of Cool Koala. In this episode, Ryan places an emphasis on helping our children develop gratitude, compassion and learning how to cope with our worries. He shares how music helps children feel relaxed and how having the practice of guided meditation can carry into creating healthy habits for children as they move through the different stages of life and into adulthood. Ryan shares vital information on how to teach these practices to children in the hospital and in our everyday routines at home. [3:30]-Ryan shares how he started working with kids [4:20] Discovering Music Therapy as a profession [5:56] Ryan shares about his family [6:36]Ryan's music on the App [7:24] Ryan shares about Cool Koala and when to do meditation [9:00 ]Alexa Skill integration and Cool Koala Collab [10:05] How music calms the nervous system [11:05] Letting go of worries [12:18] Sleep is the foundation of health [15:00]Worry Box and Gratitude Garden CONNECT WITH RYAN: Instagram Facebook You Tube Cool Koala Facebook Page LinkedIn Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifeoncall.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

This episode is sponsored by SmileMakers! On today's episode, Annie Jones, CCLS is our guest host! We will hear from Sarah about her daughter Adalee having an ischemic stroke with no pre-existing conditions. With strokes, the recovery process is different for every individual and doctors initially thought she may not have a full recovery. Sarah shares how her faith got her through this period of time, her daughter's remarkable recovery and self care tips for parents who have children with medical needs. This episode is packed full of wisdom on how to listen to our intuition when we navigate difficult situations as parents. Sarah will also share the inspiration behind her devotional book, The Perfect Storm. Listen to: Events Leading up to Adalee's Stroke [4:03] How Sarah followed her mothers intuition [9:00] Diagnosis at a hospital away from home [11:24] Processing an open ended diagnosis [17:42] How Adalee's siblings were impacted during her hospital stay [22:20] Adalee running in rehab [26:24] Sarah shares about her faith and support from her community [28:54] Adalee Today [31:02] How Sarah practices self care [40:25] The inspiration behind Sarah's devotional book, The Perfect Storm [45:25] CONNECT WITH SARAH Website Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

This episode is sponsored by SmileMakers Abbie Pabon and Emily Enstad share their motherhood journeys through the pandemic, how it shaped their careers and how they created a company that gives hands on tools to help children regulate and express their emotions. In this episode, you will learn more about: +Learn how to empower children with tools and strategies they can access in moments of dysregulation. +How to be self-compassionate as a parent +Learn about current barriers for parents, and how connection, coregulation, and creativity are pillars to supporting social emotional learning with kids. Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

Today we have a guest co-host AND a guest! Our guest co-host is Sehreen Noorali, and you may remember her from Episode 112 of the podcast. Her younger daughter has some medical needs and has been through neurosurgery. Like Sehreen, our guest Michelle has also spent her fair share of time in the rehab setting. Her son, Gideon, was born with heart defects that required hospitalization. In this episode, we talk about… [6:25] Michelle's family [8:08] Discovering low oxygen levels in a newborn [11:24] Receiving diagnoses: Tetralogy of Fallot, Pulmonary Atresia and MAPCAs [15:34] Advocating for your child in the medical system [18:31] Collaborating with your child's care team [26:12] Handling stress as a parent of a child with medical needs [29:38] Creating community in the inpatient pediatric rehab setting [35:44] How Michelle's son has changed her [38:45] An update on Gideon CONNECT WITH MICHELLE: Facebook Instagram CONNECT WITH SEHREEN: Website Instagram Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

I'm bringing you a quick episode about a commonly asked question. This topic also happens to be one of our most downloaded resources on the website (in case you didn't know, you can get free downloadable resources here!) We're talking about how to get your kids to take medicine - liquid, pills, eye drops, and more. In this episode, I talk about… [1:37] Helping ourselves to help our children [2:12] Helping children to understand the need for medicine [3:02] Step 1: Setting expectations [3:34] Step 2: Recognize that medicine is non-negotiable [4:29] Step 3: Consider the child's developmental level [7:16] Step 4: Offer choices about how to take the medicine [8:20] Step 5: Practice and getting the child comfortable with taking medicine [9:00] Giving eye drops to children [10:38] Helping children to swallow pills Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

This is a very worthy repost episode, as April is Limb Difference Awareness Month. We first shared Ashlyn's story over a year ago, but I wanted to bring it back. The two things that I continue to take away from this story is the true partnership between Ashlyn and her husband, as well as the importance of having fun with the cards you're dealt. I encourage you to listen to her story, follow her on Instagram, and share her page and this episode so others can learn more about limb differences. In this episode, we talk about… [4:55] Ashlyn's family [6:07] Ashlyn's pregnancy with her son [14:47] Getting the results from the fetal MRI [23:45] How Ashlyn and her husband renewed their partnership [30:29] Myles's birth and NICU stay [41:17] Getting the diagnosis of VACTERL Association [42:34] Bringing Myles home from the hospital [49:37] How Ashlyn changed her mindset and coped with grief [51:40] Connecting with other parents of children with special needs [57:58] What Ashlyn has learned from her son [1:01:24] An update on Myles [1:03:25] Ashlyn's advice for other parents CONNECT WITH ASHLYN: Instagram Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

Today's guest expert is Jessica Lewin, a child life specialist in the school setting. We talk about some of the key concepts that she wants parents to know are affecting their middle and high schoolers. Jessica and I discuss suicide, the impact of school attendance, and tweens' and teens' psychosocial roles within their social systems. In this episode, we talk about… [2:09] Jessica's background and work in the Child Life field [7:10] Psychosocial development in middle and high school [14:09] The mental health crisis for teenagers [18:19] Mental health resources outside of the school setting [22:12] Conversations with teenagers about suicide CONNECT WITH JESSICA Website Instagram Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot Website Download SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the SupportSpot app's comprehensive resources and user-friendly interface. 92% of parent users say the SupportSpot app's helped them understand medical procedures and treatment better. 80% of parents believe the SupportSpot app's has contributed to better health outcomes for their child. 73% of parent users believe the SupportSpot app's has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. Facebook.com/childlifeoncall linkedin.com/in/kfdonovan Today I'm talking with Megan, who is the mother of three wonderful children. Her first was born with a rare genetic condition called Williams Syndrome. They did not discover this syndrome until he was five months old, and you will hear in her story how those first five months felt like five years. Megan is also a social worker, and she has developed a program that we will talk about at the end of the interview. In this episode, we talk about… [1:53] Megan's family [3:24] Williams Syndrome [4:30] Megan's pregnancy and delivery with her son [6:21] Getting a diagnosis of Williams Syndrome [13:45] Feeling lonely after getting the diagnosis of Williams Syndrome [21:24] Family support and coping as parents of a child with special needs [23:36] Living with Williams Syndrome [26:52] How Megan takes care of herself day to day [30:03] An update on Megan's son and what he has taught her [32:43] Tulip Families: The program Megan developed for families navigating disability and neurodiversity CONNECT WITH MEGAN Website Instagram

Today's guest expert is my mother, Jane Donovan, who is a child abuse advocate. She is here to provide tangible ways to make this concept less scary and to empower kids and parents. We want to leave you feeling confident about how to teach kids about child abuse. In this episode, we talk about… [3:50] Jane's background and her passion for advocacy [8:48] Using puppets to talk to kids about child abuse [15:04] Good touches versus confusing touches [15:54] Empowering children to tell an adult about abuse [17:31] Respecting personal space [21:08] Feedback about the puppet program [22:35] Reporting child abuse [25:42] Engaging in conversations with kids about child abuse [31:06] A safety sheet to create with your children Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

Today I'm talking with Amy, who discovered her son had a brain tumor after noticing something different about his eye one morning. The brain has a lot of jobs, and it has affected his everyday life in many ways. Amy is an incredible mom, and she shares their story so beautifully. Her ultimate goal is to support other parents going through similar things. In this episode, we talk about… [2:19] Amy's family [3:59] Finding out about her son's brain tumor [8:55] Emergency brain surgery [14:32] Complications after brain surgery [18:34] Researching, asking questions, and advocating while caring for a sick child [22:08] Starting a foundation [25:05] Coping with the emotional toll of caring for a child with a brain tumor [36:00] Intentionally looking for blessings [37:32] The Raymond A. Wood Foundation [44:48] An update on Amy's son and what he has taught her CONNECT WITH AMY Website Facebook Instagram (Foundation) Instagram (Personal) LinkedIn Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg

March is Child Life month, and I wanted to feature some amazing organizations that are doing so much to support children and families in crisis. A few weeks back, I had the opportunity to interview an expert in the field of Child Life about the impact of disasters on children and families (episode 105). Child Life Disaster Relief is an organization that empowers and supports children and families in crisis by integrating Child Life professional services into disaster-impacted communities. Learn more at www.cldisasterrelief.org. Today I'm talking with Sehreen, who has so much wisdom to share. She is doing big things for the world of children's health, but she is also a mom whose daughter has had some medical challenges. I'm excited for her to share her experiences with you in this episode. In this episode, we talk about… [2:25] Sehreen's background and family [4:11] Concerns with her daughter missing developmental milestones [9:03] Seeking answers about her daughter's development [12:48] Advocating for your child in medical situations [15:00] How Sehreen coped while waiting for a diagnosis for her daughter [18:18] How Sehreen's daughter coped during her time in the hospital [24:25] The role of child life specialists [26:02] What helps Sehreen to recharge [27:31] The difficulties with having a child with medical needs [29:02] What Sehreen's daughters have taught her [31:52] Sehreen's children's health startup (Sleuth) CONNECT WITH SEHREEN Website Instagram Have you heard? The Child Life On Call mobile app for parents, kids and their care team will be available in 2022. Sign up to stay informed here. Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child's unique experiences. We give you strategies to support yourself and your family through life's challenges. We are so glad you are here. Website: childlifepodcast.com Merch: bonfire.com/store/childlifeoncall Instagram: instagram.com/childlifeoncall Facebook: facebook.com/childlifeoncall Twitter: twitter.com/childlifeoncall YouTube: https://www.youtube.com/channel/UCnh95T1MOYtbpBxJaZqg7rg