Inside the Children's Hospital

Dr. Korie Leigh is our guest today on the podcast, sharing with our listeners what grief feels like. Dr. Leigh is a Child Life Specialist, Thanatologist, Associate Professor, and most recently a Children's Book Author. Katie and Dr. Leigh have an essential conversation surrounding grief and what it feels like and how her new book, "What does grief feel like?" can guide parents and professionals to navigate the questions that come with talking about grief with children. [3:55] Dr. Leigh introduces herself [5:00] Sharing her why [6:24] Growth in grief [7:49] Dr. Leigh's new book launched [9:33] Helping children navigating grief [11:02] Reflecting on the grief process [12:47] Conversations about grief take place over time [13:42] How grief is felt in the body [15:51] Asking for feedback and input to expose pre-teens and teens [17:43] Dr. Leigh's new book Connect with Korie Bookshop link: https://bookshop.org/a/85078/9781631987069 Publisher link -the 20% off code is A23LEIGH https://www.teachercreatedmaterials.com/free-spirit-publishing/p/what-does-grief-feel-like/899857/ Amazon link https://www.amazon.com/What-Does-Grief-Feel-Like/dp/1631987062 My website: www.korieleighphd.com Instagram: https://www.instagram.com/drkorieleigh/ Tiktok: https://www.tiktok.com/@drkorieleigh Twitter: https://twitter.com/drkorieleigh Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode of the podcast, Katie interviews Rylee Neal who decided to become a Child Life Specialist from her past experiences being hospitalized with a heart condition called tetralogy of fallot. An experience with a Child Life Specialist during one of her hospital stays lead her to pursue the field of Child Life. Katie and Rylee have some great conversation about scars, our feelings and how as Child Life Specialists or parents we constantly are looking to better ourselves. You will leave this episode with a heartfelt perspective from Rylee as she shares pieces of her journey as patient and clinician. [3:23] Rylee introduces herself [4:41] First memory of her diagnosis [5:45] Realizing her diagnosis was serious at age 13 [6:45] Aversion to medical care [8:01] Reading consent forms at a young age [10:00] How preparing ahead would have helped Rylee [12:07] Wanting to know more the Child Life Specialist who helped her [14:30] How she fell in love with the Child Life field [16:50] How her parents get sappy hearing about her work [19:00] Rylee shares about her scars [21:18] Kids say what they feel [22:26] Being able to relate with the children [24:07] Not letting worse case scenarios creep into personal thoughts [26:33] Feeling your feelings and decompressing [28:42] Continual betterment [30:35] Creating a virtual diversion wall [33:01] Getting patients out of bed Connect with Rylee by sending her a message here! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie along with co-host Mijha from Jambo books interview Dr. Kate Lund, TedEx speaker, clinical psychologist and hydrocephalus warrior. She brings an incredibly important perspective as provider, patient and parent. Dr. Lund shares with us how the support she received throughout her childhood had a positive impact on her life and journey with hydrocephalus. From her wise words and experiences, you will leave this episode feeling empowered with actionable things you can do today. This message is so inspiring. [4:00] Mihja shares about her daughter [5:44] Dr. Kate introduces her self [8:05] Wally, the Facility Dog [9:36] Discussing support she received as a child [11:24] Working hard put her ahead of the game [13:00] Focusing on what you can do [14:19] Diagnosed with hydrocephalus when she was 4 [15:53] Finding out she had 2 different kinds of tumors [17:15] A Child Life Specialist became her friend during a hospitalization [20:50] Katie shares how it is a choice who is in your room [23:12] Modeling interactions for our children [25:54] Understanding and appreciating differences [27:46] The stakes are high with parenting [29:19] Be open to connecting with your child's experiences [31:25] Watching your child's passions emerge [34:30] Helping your children find their happy place [35:50] Communicating your child's needs [38:24] Finding her voice [40:00] Sitting with you reality Connect with Dr. Lund Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

[Child Life 101] How to Support Kids in Pain As a child life specialist, I know that pain can significantly impact children. It can affect them physically, emotionally, socially, and cognitively. Research has shown that uncontrolled pain can lead to long-term effects such as stress, anxiety, and depression, as well as changes in brain function and delayed recovery. Helping children cope with pain can be particularly challenging as they may not be able to articulate what they're feeling or understand what's happening to them. That's where child life specialists come in. What we cover in this episode: Pain can have a significant impact on children, both physically and emotionally. Child life specialists play an essential role in assessing kids in pain and determining what they need to feel better. Child life specialists use a combination of observation, conversation, and other techniques to understand a child's pain experience. Child life specialists work closely with healthcare providers and other professionals to ensure that children's pain is being managed effectively. By providing a supportive and compassionate presence, child life specialists help children and families navigate the often-challenging world of healthcare with greater ease and confidence. By the way, my favorite resources for anything pain related are over at Meg Foundation for Pain. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

On today's episode of the podcast, Katie interviews Courtney Morey, Mother to Annie who was diagnosed with Trisomy 21, AVSD and Pulmonary Hypertension. Katie and Courtney have such great dialogue and raw conversation in this episode. Courtney shares the positive impacts on her marriage and the questions that arise when receiving a life altering diagnosis. Sharing about her journey of self discovery along the way and how it has changed her view on life, this episode will leave you feeling validated and inspired by Courtney's strength. [4:00] Introducing her family [6:00] Receiving a life changing phone call [8:24] Misconceptions about Trisomy 21 [8:59] Spencer having experience working with children who had Trisomy 21 [10:20] Learning Annie had AVSD [12:00] Being asked if you are a medical professional [12:50] Coping by learning about Annie's diagnosis's [15:25] Learning how to ask the right questions [16:55] Annie's birth [18:40] Annie's first heart surgery at 4 months old [20:40] Refusing to google and reaching out to other parents [22:04] Friendships carried her through difficult times [23:03] Annie coded post surgery [23:35] Starting ECMO [26:20] Caring for Annie while on ECMO [28:42] Pulling them closer together [30:30] Sharing updates about Annie's health helped her have a better grasp on the situation [30:04] How Annie's story impacted other people's lives through social media [32:49] Self care in the hard moments [35:34] Speaking up about the language we use [37:41] Giving feedback that is humbling and gracious [40:08] Receiving feedback from parents [42:00] Wrestling with the why [45:40] Meaning in being Annie's Mother [47:12] Starting a foundation Annie's honor [48:20] Resource hub to help families [50:10] Singing more alike than different [52:31] Annie's perspective keeps things real Connect with Courtney Instagram Shop for Spoonie Threads here! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here

Today in [Child Life 101] we are answering the question we get ALL THE TIME: WHAT IS CHILD LIFE?! You've asked and now we're answering. Did you know that SO many of the parents on our podcast haven't ever even met a child life specialist before our interview?! Our goal during this series is to help people understand what child life is all about by getting rid of any misunderstandings or roadblocks. What do child life specialists do? Why is play an essential component of child life services? Family Centered Care and Child Life Services How do you become a Child Life Specialist? Where do child life specialists work? Why Should Hospitals invest in Child Life Services? Challenges and Barriers in the Field Wrapping it Up Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

On this week's episode, Katie and Co-Host Serheen Noor Ali from Hello Sleuth interview Dr. Kelly Fradin about building trusted relationships with your child's pediatrician. Dr. Fradin shines a light on parent and patient experiences through being a physician in public health and in private practice. She touches on ways to have productive conversations with your child's pediatrician to create a lasting and effective relationship. [4:00] Introductions [6:45] Barriers her patients were experiencing [9:00] Information to create independence and confidence [9:24] Reading your audience as a Pediatrician [11:00] Dr. Fradin's book on Advanced Parenting [13:00] Choosing a Pediatrician [14:54] Finding a new Pediatrician first [16:41] Who to share feedback with [18:36] Finding different Pediatricians for different age groups [20:04] Listening to your adolescent about doctor preferences [22:30] Atria Institue [25:30] The power parents have [27:30] Developmental screenings from the pediatrician's office [31:06] Judgement free zone [32:00] Preparation tools [34:32] Preparing for lab draws [37:38] The positive difference that Child Life makes [39:10] Making a plan Connect with Dr. Kelly Fradin Website Instagram Order Dr. Fradin's book HERE Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here

I'm SO excited to share a new podcast series we are starting at Child Life On Call! [You can watch this via a screencast on YouTube here] Child Life 101 is a new 10-week podcast series dedicated to all things related to all things child life specialists and the important role they play in the lives of children and families. This series was born from some of the questions I've gotten over the past 6 (almost 7!) years that we've been producing Child Life On Call. Each week we will cover a new topic: Child Life 101: What is Child Life Child Life 101: Kids in Pain and Procedure Support Child Life 101: Difficult Conversations with Kids Child Life 101: Preparing Kids for Procedures Child Life 101: Empowering Parents Child Life 101: Digital Resources in Hospitals Child Life 101: Child Life Entrepreneurship & Private Practice Child Life 101: Family-Centered Care Child Life 101: Child Life Tips Child Life 101: How to Support Child Life Programs I promise to keep it awkward (like always) and fumble over my words in the most Katie-way possible. Join us as we explore topics such as pain management, coping strategies, therapeutic play, and much more. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Follow us on Instagram Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect

Today we have another Dad on the podcast. Katie interviews Oliver Bernier, father of Emilio and filmmaker, about his son's unexpected diagnosis of down syndrome. You will learn what inspired Oliver to create a film to educate and empower parents of children with Down syndrome how to navigate the school system and be the best advocate for their child. Oliver's passion to educate parents about the importance of inclusivity will shine through as he shares an inspiring message. [3:45] Introductions [5:10] Forever connection to New York [6:22] Filming the moments [7:12] Misconceptions about Down syndrome [9:28] Giving Emilio the world [10:22] Building the bridge to understanding living with disabilities [12:17] An atmosphere of acceptance [15:01] Putting a dent the world to raise awareness [17:20] Sharing other families stories on the film, giving him hope [19:28] Living in the moment [21:34] Universal design for learning [23:18] Empathy taught by practice [24:53] All parents advocating to be in classes with differently abled child [26:45] NICU is a mirror of an inclusive classroom Connect with Oliver Forget Me Not Documentary Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie and Cortney Given, host of the Mindset for Medical Moms Podcast, interview Leah Ward about her son Jackson and his journey with Hypoplastic Left Heart Syndrome (HLHS.) Leah shares the ups and downs of being a heart mom. Jackson received the gift of life through a Heart Transplant after he went into heart failure and was placed on the Berlin Heart for several months. Leah and Cortney's conversation (Cortney is a heart Mom too!) with Katie will leave you feeling inspired to live in each moment. You will not want to miss this episode of the podcast. [6:50] Introductions [8:40] 20 week ultrasound and subsequent echocardiograms [9:57] The unimaginable grief of losing her older son months ago [11:29] First surgery at 4 days old [12:05] After Fontan surgery, Jackson developed a lung condition [12:50] Rhinovirus caused Jackson to go into heart failure [13:32] Jackson was put on a Berlin heart [14:00] 15 month hospital stay [15:14] Explaining to Jackson about his heart transplant [16:00] Jackson's will to fight [17:45] A sequence to to build up to the question [19:00] Accepting reality that all life will end [20:27] Advances in the medical field with the best quality of life [22:11] How Leah supported Mae [24:35] Grappling with the concept of finality [27:14] Staying in the present [29:35] It's ok to grieve the dreams you had for your children [31:28] Letting yourself feel the feelings [35:15] Taking things day by day [36:31] Someone has lived through my worst fear [38:30] You have be stronger than the diagnosis [40:15] Advocate for your child [43:00] Not having an end date [48:33] Simple moments with family Connect with Leah Connect with Cortney Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode of the podcast, Katie interviews Lo Nigorish, certified IBCLC Lactation Consultant and Host of The Milk Making Minutes Podcast. Whether your journey consisted of breastfeeding or not she shares how lactation consultants can assist with feeding the NICU and beyond. Lo shares her heart and mission behind supporting families. Whether you are a parent of a baby in the NICU or a clinician, you will not want to miss this episode. [4:21] Introductions [6:05] Parents are experts [7:04] Perceptions of what a lactation specialist is and does [8:38] Listening is so important [10:45] Helping families feel heard and supported [13:00] Focusing on what you can do in those moments [14:12] Bottle feeding support [17:20] It's ok to say no [18:50] The evolution of breast feeding [20:47] Congenital Heart Defect Mama's breast feeding journey [22:32] Support is key [23:09] Reframing your mind and not comparing your journey during [24:00] How Chelsea's Story inspired Lo to connect with Child Life Specialists [25:00 ] Assessing needs as a clinician prior to seeing the parent [26:00] Creating an inclusive community [28:00] Judgement free support zone Connect with Lo Instagram Quabbin Birth Services The Milk MakIng Minutes Podcast Link to Show ' Letting go of Breastfeeding Comparisons' episode with Chelsea Bea Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie, along with co-host Serheen Noor-Ali from Hello Sleuth interview Kelsey Ward, mom to Scarlett who was diagnosed with gastroparesis and hereditary spherocytosis as an infant. Kelsey shares the ups and downs of what it means to be a medical mom and how Scarlett's diagnosis strengthened her marriage. Body confidence is something near to Kelsey's heart. She shares about how she empowers Scarlett to be proud of her g-tube and scars. This episode is packed with great dialogue and you will get at insight from both Kelsey and Serheen on navigating medical parenthood. [3:40] Kelsey introduces herself and her family [4:04] Finding out she had a blood disorder [4:31] Scarlett was losing weight at 2 months old [6:10] Gastric emptying scan revealed answers [6:56] G-tube placement [7:29] G-J tube placement [7:57] Pyloroplasty surgery success [9:27] Behind on developmental milestones [11:24] Connecting with parents on social media [12:20] Feeding Therapy 101 [13:21] Swallowing vs Textural [15:10] Sibling bond and integration [16:00] Balancing information sharing with her siblings [17:26] Medical supplies and home integration [18:46] Finding your family's new normal [21:09] Post discharge to do lists [21:39] Post g-tube replacement [22:58] Hospital shower woes [24:55] Prioritizing yourself [26:02] Celebrating everything [27:46] Perspective on body image [29:12] Lack of accessibility [31:00] Everybody is different [33:12] Sharing about [34:13] Do what works for your family [36:12] Social Media boundaries Connect with Kelsey Instagram TikTok Link to Present not Perfect's store front here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

April is Child Abuse awareness month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today's guest expert is my mother, Jane Donovan, who is a child abuse advocate. She is here to provide tangible ways to make this concept less scary and to empower kids and parents. We want to leave you feeling confident about how to teach kids about child abuse. In this episode, we talk about… [3:50] Jane's background and her passion for advocacy [8:48] Using puppets to talk to kids about child abuse [15:04] Good touches versus confusing touches [15:54] Empowering children to tell an adult about abuse [17:31] Respecting personal space [21:08] Feedback about the puppet program [22:35] Reporting child abuse [25:42] Engaging in conversations with kids about child abuse [31:06] A safety sheet to create with your children Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie interviews Emma Springer, mother to Sage who was born with Trisomy 18. Emma shares her journey to parenthood and how they learned of Sage's diagnosis. Prior to Sage being born, Emma was a pediatric nurse. Emma shares the struggles she went through in Sage's first few months to find care options. She opens up about how being on social media can be so empowering but also shares some of the challenges go along with it. Through Emma, you will get to know the joy that Sage carries with her each and every day. Katie dedicates this episode to her dear friend Anna and family who lost baby Jack to Trisomy 18. [5:50] Introductions [7:12] Meeting her husband at College [7:41] Enrolled in nursing school [9:08] Opting out of first trimester screening [9:51] Navigating Covid in early pregnancy [10:27] Two blood vessel cord and cysts on the brain at 20 week ultrasound [11:45] The combination of symptoms were concerning [12:54] Blood test results coming back with high probability of Trisomy 18 [14:57] Being alone for the appointments was very isolating [16:24] First time being a patient [18:16] Getting the call about the diagnosis just before an echocardiogram for baby Sage [22:00] Learning about Trisomy 18 during clinical rotations [25:00] Telling her family about the diagnosis [27:11] Cardiac interventions [29:58] Hope for the future [31:29] Respiratory support changed her life [34:20] Finding things in common with other families [37:29] Connecting with other parents changed the trajectory of their course [39:56] Social media causing fast movement with advancements for treatment [41:30] Recognizing your boundaries [46:00] Sage loves being around people [49:30] Hospitalizations [51:20] Growing advocacy skills [52:48] Compartmentalizing emotions [55:11] Looking behind the curtain isn't always pretty [57:45] Springer Family Foundation Resources Connect with Emma Instagram Springer Family Foundation Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On todays episode of the podcast, Katie along with co-host Mijha Godfrey from Jambo Books, interview Kayla Gunderson, who's daughter was diagnosed with Ollier's disease. You will get to hear how Kayla navigated her daughter's diagnosis just weeks after giving birth to her son and her valuable perspective as a nurse and former Child Life Specialist. We talk about navigating grief, the support of her spouse and loved ones and what Claire has taught Kayla along this journey. [4:47] Mijha shares about Jambo books [7:00] Kayla introduces herself [9:40] Small bumps on her daughter's finger [10:27] Full body rash from amoxicillin reaction [12;23] Playing phone tag with the doctor [12:44] Mention of Ollier's Disease [15:29] Emotions run high after receiving a diagnosis of Ollier's disease [16:50] Blaming yourself [19:12] Understanding Ollier's disease [20:40] Expressing her feelings at her postpartum appointment [22:17] Ollier's is a rare disease [23:18] The delivery of information can make or break you [24:07] Mijha shares how she learned of her daughter's condition [26:00] X-rays revealed she had endchondromas in her hands and feet [27:59] The grief process [29:41] Supporting those walking down the same road by sharing Claire's story [31:06] Being grateful for the timing of the diagnosis to be together as a family [31:50] The support of family [33:25] Genetics appointments and advocating for an earlier time [34:22] Relationships and connections are important [35:35] Understanding her own fragility [37:00] Giving others the avenue to support you [39:38] Coming to terms with the birth of her last baby [41:10] Motivation and inspiration [42:30] Listening to podcasts is healing Connect with Kayla Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie along with Co-host Cortney Given, host of the podcast Mindset for Medical Moms , interviews Dana who had micro-preemie twins at home. She bravely shares her story and how she and her husband acted quickly with the unexpected home birth. Dana shares how she navigated the long NICU stay and the moments to come afterward. You will get a glimpse into their life today and what it looks like to manage their medical care. Dana's journey to advocacy and letting others into your life during challenging seasons as a medical parent is something that is talked about enough in this important conversation on today's episode of the podcast. [10:50} Introductions [11:47] Fertility struggles reveals PCOS diagnosis [13:04] Finding out she was having twins [13:55] Ultrasound revealed possible complications [14:30] Delivering the babies at home [15:57] How giving medical history is a whole process [17:41] Lower back pain just before bedtime [18:56] Dana delivers at home [19:55] James begins to breathe [20:34] Vera was born breech [21:44] Not cutting the umbilical cords saved their lives [23:42] Babies rushed to level 4 NICU [25:44] A humbling experience [26:39] Being released 3 hours after giving birth [28:02] No explanation of early delivery [30:08] The support of family [32:10] Allowing others to support you as a medical parent [34:16] Learning to be an advocate [38:00] It's ok to snooze support groups [40:30] James and Vera today [41:21] Mild Cerebral Palsy diagnosis [44:51] Giving people the benefit of the doubt Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie has a co-host, Serheen Noor Ali from Hello Sleuth on today's episode where we hear Jodi's story of developing HELLP Syndrome and having a premature birth. Jodi walks us through her birth story along with those first moments meeting her daughter. She speaks to the joy we find in the unexpected and will leave you inspired to embrace where you are today. You will get to know Jodi's heart behind the creation of Fllrish. [5:40] Full circle of relationships [6:07] The crash course of becoming a medical parent [7:14] Special needs mother's quitting the workforce [9:30] Thinking ahead about Kindergarten [10:27] Jodi's husband went on his last business trip [11:21] HELLP Syndrome diagnosis [12:45] The calm reassurance from her provider [13:42] The birth plan [14:50] The onset of symptoms of HELLP [17:11] Not seeing her daughter for 2 days as she needed to recover [18:16] The meaning behind Jenna's middle name [20:44] Telling her doctor their was a problem [24:00] How life and death is transformative [26:32] Husbands and fathers getting more credit [28:29] Beginning to process what happened allowed Jodi to have maternal feelings [31:03] Their own growth trajectory [34:12] Deeper joy to be found in the journey [36:29] Putting one front of the other and checking your feelings [39:20] Not coming home with your child is difficult [40:37] The creation of Fllrish [42:25] De-stigmatizing learning differences 44:32 Resources for parents Connect with Jodi Website Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode of the podcast, Katie interviews Ryan who's son has Becker's Muscular Dystrophy. Ryan tells the story of the road to diagnosis for his son Jack and how their family coped along the way. Hear about what fueled Ryan to start an organization to help fund research to change the lives of children and adults with Muscular Dystrophy. This episode is filled with inspiration, hope and the raw perspective of a father advocating for his son. [4:20] Ryan Introduces himself [7:24] They noticed Jack was toe walking at 3 years old [9:20] Braces helped Jack walk flat footed [11:11] Noticing a difference in Jack's muscles [12:30] Elevated protein levels indicate there is an issue [13:36] Muscular Dystrophy diagnosis for Jack and other family members [15:30] How Ryan coped with the diagnosis [18:50] Learning very quickly who your people are [20:00] Trust and rely on those who reach out to help [21:06] A family friend explains Jack's condition to his children [23:00] The regret of past decisions [25:09] Jack's older sister's positive impact [27:39] The gift of the sibling relationship [28:56] Creating an organization to find a solution [30:20] As simple as a blood test [31:55] Curing Muscular Dystrophy with gene therapy [35:00] How a connection lead to the beginning of the research [37:54] Going down a rabbit hole [39:53] Accepting that we don't have all the answers [40:49] The level of bravery [42:11] He teaches me more than I will ever teach him [44:20] Stay tuned for published research Connect with Ryan Website Instagram Facebook Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode, Katie meets with Kristen McNeely, a Licensed family therapist who is in expert on Anxiety in Children. Kristen shares the importance of how we respond to anxiety as parents and caregivers, helping children understand what anxiety is and how we can help them navigate their feelings. This episode is full of ways to support your child through anxious moments and knowing when to get them help. [4:12] Kristen introduces herself [5:45] Seeing more behavior disorders that are manifesting as anxiety [7:15] Your child's anxiety is not your fault [7:45] The way we respond to their anxiety is important [10:19] Understanding what anxiety is [12:15] Accommodating vs Supporting [14:42] Being systematic in your approach [15:45] Our children are people too [18:20] Getting a call about her son at school [19:18] Wearing a professional hat as a parent [20:23] Shifting your perspective [21:20] Every situation is not an indicator of a problem Connect with Kristen Instagram Website SPACE Books Kristen Recommends Freeing your Child from Anxiety by Tamar Chansky Breaking Free of Anxiety and OCD Eli Lebowitz Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

podcast, Katie interviews Crystal Polk, a Social Worker and Licensed Therapist speaks about the dual role parents of medically complex children hold as caregiver and parent. Crystal specializes in working with families who have children with special or medical needs. She gives parents practical things they can do today to start on the path of healing. [3:30] Crystal introduces herself [6:00] Identifying the differences between caregiving and parenting [8:30] Acknowledging the stages of grief [9:40] Grieving what you once imagined [11:03] Delegation, being heard and frustration are common themes [14:08] Healing unprocessed trauma using EMDR [16:19] Lean into mindfulness [17:53] Giving your self the the gift of consistency [21:13] Type of support families receive varies from state to state [22:24] Parents are demanding positive changes [25:04] Getting the word out about parent caregiver support Connect with Crystal Website Instagram Crystal recommends using Psychology Today to search for a qualified therapist. View Crystal and other therapists here. Crystal is LEND Certified. Read more about the LEND program here. Unseen Caregiver Documentary Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On this week's episode of the podcast, Katie interviews Michele Benyo, a Certified Grief Specialist who helps families navigate the loss of a child with a focus on sibling relationships. Michele experienced the loss of her 6 year old son due to cancer. Michele shares how her daughter still maintained her relationship with her son in the midst of several long hospitalizations and how she processed the loss of her brother. *trigger warning-- this episode talks about loss and grief * [4:15] Michele Introduces herself [5:47] How her career and experience with losing a child collided [7:30] Helping families cope with grief and loss [8:45] How her 3 year old articulated her loss [11:40] Even at 15 months Michele's daughter could tell something was wrong [13:24] Her daughter came with to see her brother frequently [15:15] The visits prepared her for reality [17:59] There is no right way to process grief [21:29] Her daughter was aware of the seriousness of the situation [22:46] The radiation chemo took a toll on his body [23:20] Learning how to say the word 'die' [25:40] On the plane with a family from their school [26:55] Preparation helped her cope with his death [28:40] Unsettling for. young children to not be aware of what is happening [30:50] Sharing about her daughter after her son's death [32:31] Asking about what grade David would be in [33:54] Middle School was challenging at times [35:48] How her daughter adjusts her perspective and compassion through her wisdom of the loss of her brother [37:24] Parenting from the heart Connect with Michele Guide to Good Grief Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Travis shares how they discovered his daughter's cystic fibrosis diagnosis at age 4. Just months earlier, Travis learned his half sister was diagnosed with Cystic Fibrosis. He shares how the journey impacted his life on a professional and personal level creating the foundation, Piper's Angels to help support families dealing with a Cystic Fibrosis diagnosis. [3:50] Introductions [6:43] Showing signs of respiratory issues [8:11] Chest X-Ray to determine the cause of the Cystic Fibrosis [8:37] Adamant state of denial [9:16] The earth-shattering news of the Cystic Fibrosis diagnosis [11:06] Oldest half sister was diagnosed with Cystic Fibrosis months before [13:00] Prescreening for Cystic Fibrosis [14:22] Gene expression can create varied symptoms [15:32] Travis and sister have mild Cystic Fibrosis system [18:25 Learning how to advocate started with becoming apart of the CF community [18:44] Piper became very sick around age 8 [20:36] Roller coaster of having a child with a chronic illness [22:44] Creation of Piper's Angels [25:14] Being vulnerable [27:00] Adversity is the starting line for courage [28:50] Growth is the hearts expansion [30:40] Piper's Angels [33:10] Scholarships available for Saltwater Camps for CF patients [34:10] Mindfulness activities [36:15] Paddling contest annually Connect with Travis Website Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this episode, Savannah shares what it means to have wreck-less hope. Through her traumatic birth, having micro preemie twins and receiving a cerebral palsy diagnosis for one of the twins, Savanah explains how her twins have changed her outlook on life and how she cherishes the little things life has to offer. Savannah opens up about maternal mental health and how it affected her. It is her mission to help other moms experiencing a traumatic brith feel not alone through the gift of artwork and support. [4:05] Introductions [4:55] Stories of hope [6:47] History of pre-term labor [7:29] Going into labor at 24 weeks gestation [8:34] Journaling became therapeutic [11:32] Finding out both boys had brain bleeds [13:00] Cerebral Palsy and Hydrocephalus diagnosis [14:45] Leaning on each other and family and friends [17:00] The answers to the hard questions [20:00] The shift of worry [22:30] Charm and Wit of Lochlan [25:29] Staying in the present [27:05 The strength within came from [30:30] Cards of hope for mothers who experienced a traumatic birth [31:27] Survival mode [36:00] Caregivers needs the proper help [40:21] Beads of Courage Connect with Savannah Website Instagram Additional Resources Dear NICU Mama March of Dimes Hand to Hold Beads of Courage Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this episode of the podcast, Lenora from BetterSpeech shares about virtual speech language pathology services and how they can be beneficial for not just the child but for the family. Lenora explains how making a connection with the child positively impacts the progress of speech therapy. This episode is informative of what a virtual session would look like and provides valuable insight to parents seeking out virtual therapy services. [2:50] Lenora introudces herself [3:59] How she got started in Speech Language Pathology [4:32] Integration of therapy into the family setting [5:35] Putting parents at ease [8:03] Parents can share more information [9:22] Providing dedicated time for practicing speech [10:55] Asking your child how they would like to learn to motivate them [12:31] First experiences with children and connection with a child [14:20] The humor children bring [16:40] There are no stupid questions Connect with Lenora Better Speech Website Better Speech Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

This episode is full of tangible truth about what it means to be a caregiver and advocate. Kelly shares about her daughter's epilepsy diagnosis and how it changed her entire world. After a normal pregnancy and delivery, Adelaide wasn't gaining weight and had low muscle tone which was the beginning of her epilepsy diagnosis. Kelly became involved in CURE Epilepsy's mission and shares how Adelaide's spirit lives on through the work she does today. **Trigger warning: Kelly talks about her daughter's death in this episode** [3:20] Introductions [4:35] Adelaide's diagnosis [5:15] Miguel getting the call [6:00] Moving to Chicago [7:50] A friend's advice [10:35] Learning how to find your voice as a medical parent [14:05] Talking with other parents [16:40] Adelaide's seizures [17:31] Having a plan for seizures gave control over the situation [19:08] Regression after seizures [21:00] Accepting the reality of the situation [22:20] Finding empowerment and advocacy through working with CURE Epilepsy [24:51] CURE Epilepsy's research on Infantile Spasms [26:24] Adelaide passed away in 2019 [29:00] Adelaide's spirit lives on with the research [31:15] The forever connection with epilepsy families, clinicians and doctors [33:31] Learning patience along the way [36:00] How to connect with Kelly Connect with Kelly Website Twitter Instagram CURE Epilepsy Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Cindy and Gavin share about their son Ryan and his battle with Osteosarcoma. Cindy shares about how she created a Case for Smiles to help her cope with Ryan's diagnosis. Gavin brings the perspective of dad and professional and shares how he started a new position at the Hospital his son was being treated at the very same day as a diagnosis. They openly share the ups and downs of their journey and how Ryan's legacy lives on today. [3:16] Introducing their family [5;34] A bike accident lead to the shocking diagnosis [6:26] Going into remission [7:00] Gavin begins a new job as a CFO the same day they got the Osteosarcoma diagnosis [8:30] Diagnosis day [9:30] Bedside Manner of Pediatrician [10:26] Balance between hospital and home [13:32] Being open with Ryan during his treatment [15:38] Ryan learned how to golf during his treatment period [18:03] Cindy shares about how she made a pillowcase for Ryan to make each stay more comfortable [19:50] Finding out Ryan was terminal [21:30] Case of Smiles being formed after a Martha Stewart Contest entry [23:00] Coping with the new reality and loss [25:20] Using Ryan's experience to help cope with a cancer diagnosis [28:40] Finding your advocate voice [30:00] The joy in Ryan's pranks [32:32] Learning the ropes quickly [33:05] Evolution of care [35:15] Smiling and laugh through the hard times [39:02] Just Sibs Program Connect with Gavin and Cindy Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode, Katie shares with our listeners how Grandparents can support their kids and grandkids during an illness or diagnosis. During the holidays with lots of family time, this topic came to mind. Grandparents are an integral part of the family, whether they live near or far. This episode gives practical ways Grandparents can support their kids and grandkids. [1:58] Hard conversations during the holidays [2:17] How can Grandparents give support [4:05] When your child is hurting. your heart is in a million pieces [4:45] When is it ok to ask questions [5:25] "Can you let me know when a good time is?" [6:32] I love you, I'm here, I want to be useful [7:00] Let them know that you are there without expecting a response [7:58] Write down your questions [8:30] How can Grandparents advocate? [9:26] Sitting down with your child and ask their wants and needs [10:00] Helping with everyday tasks [11:07] Resources for Grandparents [11:32] Online resources to help navigate [12:38] The role of Grandparents is so important Download our free grandparents guide here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this week's episode, Katie wraps up the year with, Lyndsey (CLOC admin + podcast editor) sharing about what the common themes across the episodes were in 2022. This year was a memorable one as there were so many parents who so candidly shared their story on the podcast and clinicians who shared their expertise to inspire our listeners. 2022, you were SO good to us! 2023 we look forward to all the amazing stories and insight this next season will bring! [00:45] Lyndsey Introduces herself [3:34] Listening to stories while in the hospital [4:09] Diversity of topics in 2022 [4:32] Paola's Story {Episode 131} [5:30] Laura's Story {Episode 123 + Episode 124} [6:02] Dear NICU Mama's Story {Episode 145} [6:28] Feeding pump interruption [8:00] Acceptance of being an advocate and expert [8:25]Find your people [9:09] It's ok to use google [11:20] We are grateful for you Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Katy shares about her daughter Charlotte and how her surgeries that left scars inspired her to write a book about seeing scars in a positive way. Finding out about her daughter's diagnosis at 32 weeks on a Thursday morning and then welcoming Charlotte that Friday evening, talk about a whirlwind! Katy shares so many truths that will resonate with parents and how Charlotte has changed her life forever. [5:00] Katy introduces herself [6:23] Deciding what to share and not share [8:44] Finding your tribe and shared experiences [10:32] The diagnosis was a complete surprise [11:59] Abnormalities on the ultrasound on a Thursday morning [12:46] Being admitted to the hospital at 32 weeks pregnant [13:31] Emergency C-section on Friday evening [15:51] Getting cliff notes for diagnosis and drew photos to explain [17:02] That numbing feeling of receiving a diagnosis [18:23] Thinking of her husband and how it unfolded for him [21:25] Wedding rings gone missing [24:36] Placing value on people rather than things [26:14] Meeting Charlotte for the first time [30:55] Becoming close with the staff [34:44] Importance of a support system [37:50] Finding an expert who knew her diagnosis [39:42] Balancing time between home and schools [41:45] Milestones hit a little differently [46:43] Inspiration to write a book Connect with Katy Instagram Website Book Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast we will hear from Kirsten Black, a Certified Child Life Specialist, who had the opportunity to visit children's hospitals in Sweden. Kirsten shares her perspective on the major differences in pediatric healthcare, what she learned along the way and how it has influenced her as a Child Life Specialist. She shares her unconventional yet beautiful journey to the field of Child Life. [4:00] Introducing herself [7:15] Pivoting after the economy crashed [8:30] A seed was planted [10:15] Utilizing her degree in education [12:00] Using a brain map to help a patient with taking a medication [14:00] Connecting with Pediatric Hospice in London [15:15] Going to the Ronald McDonald House in Sweden [18:33] Several connections lead to many different children's hospitals in Sweden [22:27] Legal rights for children in Swedish Hospitals [23:35] The value of children and families in Sweden [25:48] Child Life specialists have an education degree in Sweden [28:41] Advocating for ourselves as Child Life Specialists [29:21] Nurses are trained to think through a poke plan prior to an injection [34:05] Low technology toys and activities [35:00] Accessibility to different languages in books [37:30] Anatomically correct dolls in Sweden Connect with Kirsten: Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Caryn shares about her daughter Elaina developing ALCAPA, a congenital heart defect, and how they found out weeks after an uneventful pregnancy. Caryn will shed light on how she coped with Elaina's diagnosis and how she strongly advocated for her along the way. You will feel moved by Caryn's fierce love and commitment to her daughter [2:25] Takeaways on numbing cream from Katie [7:22] Caryn introduces her family [10:16] Experiencing a wide variety of symptoms [12:56] A visit to the emergency room [15:16] Diagnosis of ALCAPA and emergency surgery [18:40] Caryn was not able to go home to get belongings [19:14] Thoughts about getting a second opinions [20:56] Elaina quit eating after her first surgery [21:58] Advocating for a transfer to a different hospital [23:13] Elaina needed ventilation to recover from her first surgery [23:47] Getting devastating news that Elaina may not pull through a repeat surgery [25:00] She struggled with feeding difficulties [27:29] Honesty and Empathy [29:39] Crash course on the anatomy of the heart [33:13] The early diagnosis was a better outcome for Elaina [34:50] Caryn shares statistics about ALCAPA [35:49] PTSD symptoms arise while Elaina is hospitalized [36:57] Covid + Thanksgiving [39:22] Everyone has their own pain [40:37] Taking turns going home [42:15] How she turned her own worry into company [44:33] Why she wrote My Scar is Beautiful [46:39] What Elaina has taught Caryn [47:40] Heartfelt words of encouragement from one medical parent to another Connect with Caryn Instagram Facebook Website Sleep Tight Tonight Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast, Ashley + Martha from Dear NICU Mama share their personal stories of trials and joy as they navigated difficult seasons as NICU moms themselves. You will feel right at home with the wit and charm Martha and Ashley bring to this episode. You learn why and how these amazing women created the Dear NICU Mama community all while giving us bits of wisdom, laughter and empowerment along the way. **Trigger Warning**: This episode talks about infant loss. If your heart isn't in the place to listen today, feel free to fast forward through Martha's part of the story.** [3:30] Introducing Dear NICU Mama [3:48] Martha Introduces herself [5:11] Sharing how she became septic and had to have an emergency c-section [6:48] Her son was born at 25 weeks gestation [7:24] Receiving a bleak prognosis [7:58] How JP's life changed the trajectory of Martha's life [8:14] Discovering she had a bicornuate separate uterus [9:00] JJ was born at 29 weeks gestation [10:09] Struggles with PTSD from the past [10:50] Ashley's story [12:33] Finding out she had sub-chorionic hemorrhage in early pregnancy [15:45] Learning her son had a heart condition [16:35] Ashley becomes pre-eclamptic [17:55] Ashley was rushed to the OR for an emergency C-Section [18:55] Silas was transported back to their local NICU [19:37] Adjusting to a private room from a pod [21:34] Ashley's positive emergency room experience [22:55] Ashley posting about her NICU journey lead to Martha reaching out [26:25] Unfollowing accounts on social media is allowed [29:05] The power of Facebook groups [30:50] Delivering a message of hope [33:07] Research about private rooms vs pods [36:06] Empowerment and validation for parents on the facebook group [37:53] Grief and joy can co-exist [40:05] Leaning into grief and pain, finding the beauty in it all [42:33] Every day is a miracle [44:37] the fierce loyalty of the sisterhood of NICU moms Connect with Martha + Ashley at Dear NICU Mama Website Instagram Facebook Course recommendation from Katie: Soul Care Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

As a NICU Dad, Alex Zavala share his perspective and critical role as a father on today's episode of the podcast. Alex shares so many moments along his journey that impacted him and gives advice to fellow NICU dads out there. This episode is for you too moms and partners-- you will learn more about the dad perspective and how to support your spouse. [3:32] Alex shares about his family [7:39] Giving his wife daily injections [9:49] Went to the store to register for baby gifts [10:41] Alex's wife called to let him know her water broke [11:00] The drive to the hospital [14:16] Feeling like you are in the movies [16:00] Finding new found strength as the situation gets harder [17:36] Feeling like you are drinking water from a firehose [18:27] Stat C-Section [19:34] Alone and scrubbing in [23:45] Pleading with the doctor [24:10] Putting faith in the team [26:30] Being in the OR was traumatic for Alex [27:10] Alex's attention turns to his wife as she has post delivery complications [30:25] Dad's are responsible for relaying so much information in the NICU [31:32] Baby was transported to the Children's Hospital [33:00] Setting foot in the NICU for the first time [34:40] His wife meeting the baby [37:20] The trauma and the stress is at a different level for Dads [37:52] The NICU is just a warm up for home life [39:15] Taking better care of yourself [41:09] Sharing your experience makes you feel less alone Connect With Alex Instagram NICU Dad Website Hand to Hold NICU Dad Podcast Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast, Emily Lemke shares how to stay organized as a medical parent. Emily's expertise comes from being a medical parent herself and a clinical social worker. She shares about her own journey navigating the world of being a medical parent and the passion behind creating The Medical Mama Compass. You will learn how to manage everything that comes with this title without becoming overwhelmed. [1:52] Introducing her family [2:38] Nora's premature birth and 97 day NICU stay [4:26] Coming home from the NICU with a G-Tube [5:48] Finding a feeding tube solution for Nora [7:15] Feelings surrounding taking your medically complex baby home from the hospital [8:40] Solution focused mindset [11:10] How to help manage the new equipment [12:20] Learning all about health insurance [16:00] The Medical Mama compass uses (A first time discharge MUST have!) [16:37] Document everything, even for insurance. it is a practical way to advocate [17:58] Keep track of your child's progress no matter how small [19:06] Ask questions to gain understanding [20:08] Keep a big picture view as much as possible [21:01] Taking care of yourself [24:00] In order to cope you have to think about it [26:37] What Nora has taught Emily Connect with Emily Instagram Etsy Shop for the Medical Mama Compass Code: CLOC15 15% off for CLOC Listeners Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Swapnil, father of two, shares on this episode of the podcast about his daughter, Anya, who has severe food allergies. Swapnil shares about Anya's first symptoms of a food allergy and the event that revealed the severity of her allergies. Whether you are a parent or Clinician, you will gain so much understanding and knowledge about food allergies by listening to Swapnil's story. [2:10] Value of resources along the journey [4:00] Introducing the family [4:56] Eczema struggles at 6 months old [5:30] Anya had a anaphylactic reaction to cashew butter [6:44] Awareness is arising about food allergies [7:46] Preparation for Anya to go to school [9:07] Testing from a local allergist [10:20] Keeping a variety of foods in her diet [11:30] Keeping a spreadsheet to keep track of food and reactions [14:50] How manufacturing changes created an issue [16:00] How mitigating the risk is a form self care [17:23] Sub-lingual Immunotherapy treatment (SLIT) [19:00] Finding a team of allergists for Anya [21:30] The differences in a school settings and away from home [25:13] Swapnil wrote a book to help Anya cope [26:10] How the Allergy Community online was extremely helpful [28:22] Practical ways to remember to take the Epi pen [31:08] Using the epi-pen is never easy [32:00] Sharing about Anya's character Connect with Swapnil Instagram Recommended Resource Book by Swapnil Patel Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Hannah bravely shares how her two young daughters developed febrile seizures. Although febrile seizures are common, it is something that isn't talked about enough. Hannah will shed some light for families walking through this diagnosis and provide you with ways to navigate the practicality and emotions that come along with it. [2:47] Hannah introduces her family [4:45] Sharing symptoms and instincts [6:08] Finding her daughter, Hadley, unresponsive in her crib [8:16] Hand foot and mouth was the initial culprit of the fever [10:52] Discharge instructions after having a febrile seizure [11:43] How prayer and a supportive husband gave Hannah the ability to cope [12:45] Hannah shares about her second daughter, Madison [14:40] Madison has her first febrile seizure [16:39] The after effects of a febrile seizure [19:09] Madison's second seizure [20:58] Hannah shares how the week prior she had a CPR and First Aid refresher course [23:27] Madison showed no symptoms but ended up having a UTI, ear infection and pharyngitis [27:04] Madison's third seizure [30:28] Back to back seizures [32:16] Hannah shares the instructions from the dispatcher [33:29] Bloodwork to diagnose Madison [34:45] Hannah explains how reoccurring febrile seizures can result in a seizure disorder [37:40] Connecting with a friend whose son has had febrile seizures [38:33] Tips for prevention [40:12] After effects of febrile seizures [41:07] Being sensitive to illness [44:24] Talking about motherly instinct Connect with Hannah Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

" It was like I was leaving home with a newborn because I had no idea what to do. We were in survival mode for those 3 days in the hospital. It was just nothing that I ever expected to be dealing with.'-Melanie Smith Melanie shares how she learned of her daughter's diagnosis of type 1 diabetes when her daughter was 18 months old. She so vulnerably shares their journey from diagnosis to life at home. This story is packed full of great insight to families navigating a new diagnosis of type 1 diabetes. [2:50] Melanie introduces her family [5:33 Noticing an excessive thirst in her daughter was the first symptom of diabetes [7:05] Malia's energy levels were depleted [8:55] Melanie made a list of concerns to tell her doctor [11:30] The pediatrician urges them to go the emergency room [13:04] Melanie shares the trauma that incurred for her [15:45] Advocating for Maliah to eat while hospitalized [17:36] Processing the news of her daughter being diabetic [19:17] Learning how to care for Maliah [21:30] Melanie shares the range of emotions she felt processing the news of the diagnosis [24:30] Using a continuous pump monitor her diabetes [25:13] Counting the carbohydrates [28:08] Watching her sugar levels at first was overwhelming [30:39] Advocating for your young child [33:00] Feeling reassured starting Maliah in Preschool as her teacher is diabetic [36:30] Melanie shares her concerns about her newborn having diabetes [38:16] Type 1 diabetes misconceptions and value of education [39:26] Questioning how long Maliah had diabetes for [40:59] Finding a community to lean on [44:30] Celebrating Maliah's diaversary Connect with Melanie on Facebook Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"A patient becomes so vulnerable with them because they don't even realize what they are doing. When you are in that moment petting the dog, every emotion, feeling and thought runs free because you aren't having to focus on a conversation, it is so natural." -Shelby Bonnet, CCLS Shelby Bonnet, a certified Child Life Specialist and Animal Assisted Therapy Coordinator, shares how facility dogs are utilized in children's hospitals. This episode is packed full of information on how facility dogs impact patient care and how to balance patient and clinician needs. If you are a parent who has ever wondered about the purpose of a facility dog in hospitals or a clinician who is wanting to have a facility dog be apart of their hospital's program, you will want to give this episode a listen! [3:00] Shelby shares about her career being a Child Life Specialist and Facility Dog handler [5:00] How they started the Facility Dog Program [6:30] Child Life Specialists role with Facility Dogs [7:12] How her workflow changed [8:25] Balancing the needs of patients and clinicians [10:10] Being intentional with your time [11:18] How Pinto, the facility dog helped with a with an intervention with an oncology patient [14:08] How Pinto altered the entire families experience, not only the patient [17:38] Common misconceptions of having a facility dog [19:07] Life at home with Pinto [21:04] How to get the process started [23:22] Splitting time amongst different units in the hospital Connect with Shelby: Instagram Shelby's Recommended Resources: Canine Companions Canine Assistants Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On todays episode, we will hear from Rita Ho-Bezzola, CEO and Founder of Piper + Enza: A Covid-19 inspired health and happiness company for kids. Rita shares her inspiration behind Piper + Enza and how her goal is to make common health experiences positive for children and parents. You will not want to miss this episode! [2:30] Sharing about her family [6:14] How Covid-19 was her inspiration create Piper + Enza [8:10] The moment Rita discovers her mission [10:10] Using Literacy to help children cope with medical experiences [14:45] Growing pains of parenting and children [15:00] Changing our perspective on pain [16:56] Our worldview vs our children's worldview [17:50] Empowering parents to be their child's biggest advocate Connect with Rita: Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On today's episode of the podcast we hear from Lauren about her son's diagnosis of Aicardi-Goutieres Syndrome (AGS.) She shares how her uneventful pregnancy followed by a NICU stay and numerous hospital visits with unanswered questions eventually resulted in a diagnosis. Lauren shares how coaching changed her life and how she is now a life coach for mothers of children with disabilities. [4:32] How ranch living was a dream come true [5:20] After an uneventful pregnancy, Lauren gives birth [7:00] A nurse tells Lauren to get a second opinion [9:15] Lauren and Katie chat about the NICU life [11:00] How staying at the hospital added to the emotional and stressful times [12:25] Asking about Lauren's pregnancy history [14:00] An MRI reveals some answers [16:50] Living in flight or fight mode [19:50] Leo stopped eating and had a swallow study [21:00] The doctors grasp for answers [26:30] Genetics appointment results [27:30] How diagnosis day holds trauma [29:11] Finding a specialist who has experience working with children who have AGS [31:20] How Lauren found healing through coaching [35:28] Lauren shares Leo's love language [37:24] Self care is what works for your stress management [39:22] What is driving your action and feelings? [42:27] Our definitions of being a good mom Connect: Lauen's Coaching Website Lauren's Instagram Page Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"It's not a time to say I'm sorry, It's a time to acknowledge that, yes in fact you had something you did not plan for, a traumatic event. But also you did have a baby and to step into that joy and gratitude and not lose sight of those things.-Jamie Cline Jamie shares how her daughter Callie has persevered with tetralogy of fallot and later on a limb loss.She learned about her daughter's tetralogy of fallot just hours after having her 7 weeks premature. When Callie turned one, she shares how they came to the decision to do a lower leg amputation. Jamie shares Callie's journey of learning to walk with a prosthetic as well as the emotional journey she embarked on as a mother. [3:00] Jamie shares about their family and hobbies [4:50] Close monitoring during Jamie's pregnancy due to her pre-existing type 1 diabetes [5:37] Callie was born 7 weeks early via c-section [6:43] Learning of Callie's heart condition, Tetralogy of fallot [8:30] The grief and anger to follow the initial diagnosis [10:35] Feeling cheated of hopes and dreams she had [11:40] Sharing the emotional challenges of others saying they are sorry rather than celebration [13:12] Callie had to be transferred to a different hospital for the surgery [15:00] How their community rallied around supported their family [17:18] Callie went between the NICU and PICU for close to 3 months [20:40] The best Christmas gift- Callie got to come home for Christmas [21:40] Noticing Callie's limb difference shortly after birth [26:05] At 19 months old, Callie had her amputation surgery [27:30] Decision making process [30:08] How grief was a big part of Jamie's journey to healing [32:00] Jamie shares how she took care of her self during this difficult time [36:00] How Callie has changed their lives and the positive things she has gleaned from being her mother Connect with Jaime: Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Judith shares how one of her twins was born with albinisim and how she stayed positive during the diagnosis and beyond. This episode will absolutely touch your heart, Judith is a natural story teller and captures hows she embraced her daughter's albinism and has seen the beauty through it all. [3:15] Judith shares her busy life and routine with the twins [6:25] She shares about her high risk her twin pregnancy journey [7:27] How the ultrasound tech noticed the bridge of the nose on both of the babies [8:20] Overwhelming feeling that finding out about one issue after a next, [8:49] Joining a support group felt like accepting the mis-diagnosis she received [9:57] The doctor noticed her daughter stopped growing and told her she needed a c-section [11:12] Soon after birth, she noticed her skin was light in color and Judith wondered if she had albinisim [13:14] Baby girl had to stay a little longer to gain some weight when brother got discharged. [15:25] Judith and her family were concerned about others not accepting her [19:45] How her faith helped her maintain positivity during trying time [21:45] While trying to become pregnant, Judith's faith that she would become pregnant with twins was walked out when she prepared the extra bedroom for children [25:55] Confirming the gender of the babies [29:00] How she felt like going to a support group for parents of blind children was accepting that her daughter would be blind [32:00] Sharing how people in her culture treat albinisim [33:40] Judith shares how she explained to her daughter how she was beautiful and that different is beautiful [35:05] Sharing how she is confident in school and speaking to others about her differences [36:50] How she uses her story to help others and inspire parents going through it [40:00] Embracing the journey of albinism and seeing the beauty in it all CONNECT with Judith: Instagram Learn more about albinism at www.albinism.org Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"I've connected with food allergy patients and we have all come together. That is the most important thing, to make sure that nobody feels alone."-Rebekah Wallace Rebekah shares her life today as a teen with food allergies. This episode brings perspective to our listeners about how we can take our challenges and turn them into advocacy and awareness. Rebekah, shares her first memories of having food allergies and how she and her family learned to cope. She shares how she coped with the news and what she is doing today to bring awareness to food allergies. [3:15] Rebekah shares her about her every day life as a teen with food allergies [5:30] The struggle as a young child not understanding why she couldn't eat certain foods [6:40] She began to understand the importance of the allergies around age 10 [7:45] Rebekah shares the first time she had to use an EPI pen [8:00] She explains how remaining calm during a reaction is key [10:30] How Pageantry made her feel confident to speak up about bringing awareness to food allergies [11:55] The Allergy bet book she created to share with young children about food allergies [15:45] Being able to connect with other peers going through the same thing was so helpful [16:00] All children need is just love and support [17:45] Rebekah shares her dream of being a oncology nurse CONNECT Instagram- @Rebekahreacts Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists,get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST

"I really feel like I'm paying forward with everything that I lived and everything I've experienced as a professional. My program is my heart in a basket for them."- Dr. Michelle Hu, Audiologist Dr. Michelle Hu shares how she was diagnosed as hard of hearing as a young child and what lead her to become an audiologist. This episode is packed full of wisdom. [3:12] Michelle's teacher encourages her mom to get her hearing checked [3:49] Getting hearing aids after a mild hearing loss diagnosis [4:44] The hurricane feeling her parents felt after receiving her diagnosis [5;26] Struggling with the news of hearing loss [6:14] Seeking second opinions after struggling with the diagnosis [7:00] How Michelle's parents processed her diagnosis [9:15] The inspiration behind creating a community for parents [10:18] Through the community she has created, she feels like she is paying it forward [13:00] Creating tools to helped newly diagnosed families [16:00] Katie+ Michelle discuss how parenting is full circle [17:33] How Michelle decided to be an Audiologist [20:10] Providing the cliff notes to help each other and win is the goal CONNECT: Instagram Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Tanisha tells a story of strength and perseverance as her son Jaleel was born with a lower urinary tract obstruction. This story highlights the powerful ways Tanisha and her husband, Quentin work together as a team for Jaleel and their family. From her experiences in the NICU and beyond, Tanisha created a community to support NICU Medical Moms. [3:52] The journey to motherhood for Tanisha [6:13] Learning that Jaleel had a lower urinary tract obstruction at her 20 week anatomy scan [9:30] How Tanisha's husband helped her feel included in Jaleel's care [14:16] Healing is on-going for Tanisha and her family [18:39] She describes how she had the urge to walk one evening and the next morning learned she was in labor [20:35] Jaleel was born and was immediately rushed to the NICU for respiratory issues [22:57] Tanisha explains the emotional reunion in the NICU [24:51] Her husband advocated for Tanisha become involved in Jaleel's care to connect with him [26:49] Tanisha shares how she went into learning mode to not be stressed [28:42] Child Life specialists put up pictures of Jaleel's progress in the NICU and decorated his room the theme of his nursery [31:33] Getting a G-Tube was key to getting Jaleel ready for transplant [33:30] Moral support from Mom to Mom was key for Tanisha [37:43] Tanisha shares how she was enrolled in her Master's Degree program and how she was supported by faculty [42:00] Tanisha shares how she feels she is getting to live her dream in a new way [45:24] How Child Life Specialists shaped Jaleel's interest in music Connect with Tanisha: Medical Moms of NICU Facebook Group Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Paola shares the shocking diagnosis her son received as a newborn of ADA-SCID (Severe Combined Immunodeficiency.) This powerful story a he shares how she navigated hospital life during the beginning of the pandemic and her journey with postpartum depression. She shares words of wisdom on how to deal with the feelings that come when your child gets a life altering diagnosis. [5:22] Paola describes the grief she experienced with Jakob's diagnosis [7:10] She describes the shock and acceptance of the news that Jakob has ADA-SCID [9:12] Postpartum depression struggles during isolation [11:10] Sharing the importance of opening up about your struggles [13:44] Being a first time Mom and medical mom [15:03] Paola describes how she fights the good fight [17:44] Her cervical cancer diagnosis after Jakob's diagnosis [19:29] Paola's campaign to fight for Jakob's treatment [20:21]She describes how her cancer diagnosis was her moment to pause [26:50] Coming up with a plan and leaning on community helped Paola cope with the diagnosis [30:12] She shares how Child Life specialists have helped reduced the trauma Jakob has had to endure [31:28] Jakob has taught Paola to be brave and to have courage [32:20] Paola has created an environment that helps Jakob have some normal day to day activities despite being isolation [33:45] She shares how her motherhood journey was so different than what she anticipated, she feels fierce and does not take no for an answer In My Magical Bubble Book Connect with Paola: Instagram Facebook Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists,get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

"Never listen when they tell you your child will not, encourage them to do the best they can do"- Belinda Hammond, CCLS Belinda shares her son's journey with low tone, epilepsy and autism and how her professional and personal experiences collided, giving her an invaluable perspective as a parent and professional. This episode is in our top 5 most downloaded episodes to date. [4:39] Belinda notices her son is not meeting some major developmental milestones [5:17] Receiving a low tone diagnosis as an infant [10:00] Belinda shares a touching moment in her son's journey to run a 5k [12:39] Finding activities your child likes to incorporate into therapy [13:34] She gets a phone call from Justins school, Belinda begins to search for answers [14:57] Additionally, she learns her son is having absent seizures and after a neurology referral learns he has Epilepsy [15:41] After hearing feedback from her son's school, Belinda decides to homeschool Justin [19:53] Getting her Masters degree helped her become a stronger advocate for her son and patients [22:45] In addition to low tone and seizures, Belinda shares about Justin's mild autism spectrum diagnosis at age 5 [24:50] Belinda describes how going back to school was self-care for her [28:54] Working on self-confidence [30:09] Justin's amazing attitude and ability to push forward is inspiring to Belinda If you would like to connect with Belinda, you can email her, or connect through her website and Facebook pages. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

This episode originally aired in March 2020 at the beginning of the pandemic. This topic is so important and rightfully so, it is our 2nd most downloaded episode of all time. When it comes to COVID-19, how we inform our children is incredibly important. If you're wondering how we can talk to our kids about COVID-19 when we as adults still don't know exactly what's happening, you're not alone. This episode covers suggestions for age-appropriate language to use as well as general considerations to keep in mind as you talk to your children about COVID-19. Children are looking to adults for honest, easy-to-digest information. Give a listen to learn how to break it down into a way that they can understand. [3:20] Katie explains that children and adolescents crave a strong compassionate leader who establishes boundaries [6:00] It's important to remind children that a lot of the information they hear may not be factual [8:53] Katie explains to empower your children by validating what they are already doing [9:19] She shares how hand-washing is an easy practical way fuel empowerment when discussing COVID-19 [10:10] t is ok to admit that there are unknowns about COVID-19 and acknowledging that we don't know the answers and that is ok [11:06] Katie shares the importance of setting a good example.You want to model behavior that your children will follow [12:00] Offer to have a check in with your child if they are feeling worried [12:22] Katie's key to success is to be a strong and compassionate leader and exhibit the behavior you want your child to have. Be a buffer! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

On this episode of the podcast, you will hear an amazing story of resilience and hope.This episode originally aired back in August of 2020. This is the most shared of all of our podcast episodes; you will quickly learn why after listening to this inspiring story. Meet Maura Senneff, mom to sweet Ryan. Ryan is a thriving 8-year-old boy who has Down syndrome. The amazing advocate by his side, his momma Maura, describes that "zooming out" and looking at things from a wide lens helped them turn Ryan's health around.She talks about small changes and the "no limits" attitude their family lives by. [1:39] Maura shares about her family and introduces us to Ryan and his journey with Down syndrome [2:40] Maura explains how resilient Ryan is despite his struggles with chronic illness for his first six years of life [3:27] Never giving up was key to their success at navigating Ryan's diagnosis of Down syndrome [4:00] Maura shares how Ryan's diagnosis with Down syndrome was not going define him and put limits on what he can and can't do [4:56] Maura shares the deep meaning behind advocating for Ryan; it meant the idea of unlocking potential and removing barriers for generations to come [5:23] Maura explains how they came to learn of Ryan's unexpected Down syndrome diagnosis at birth [7:12] Maura shares that during her prenatal care there were no markers on any of her ultrasounds for Down syndrome [8:04] Maura began to have what she thinks are braxton hicks contractions but learns she is in labor [9:07] Maura describes Ryan's quick delivery and the time that lapsed before getting to see him [9:32] She describes how Ryan wasn't latching and crying like her first baby and something felt wrong [10:45] Maura describes the moment she told her husband Jack that she thought Ryan may have Down syndrome [10:56] She explains through tears how she feels sad about the emotional roller coaster of emotions she went through the first few days and how there is immense joy despite the diagnosis [12:51] Ryan goes to the NICU for additional testing and Maura describes how she was mentally preparing for the diagnosis of Down syndrome [13:45] Maura shares how her husband saw their family pediatrician come in with his Saturday work clothes on and was how it was an indicator that something serious was happening [14:07] Maura explains the emotional moment they heard the official diagnosis of Down syndrome [15:30] Maura explains how with Down syndrome, there is a variety of health complications and Ryan was fairly healthy despite the circumstances, but struggled with acute illness [18:26] Maura shares how she and her husband didn't know much about Down syndrome and special needs before meeting their son [19:57] Ryan was reading before he learned to talk. Maura did not know if he was going to talk but ensured that he had access to as much therapy as possible [22:37] Maura shares how she advocated for Ryan during one of his ICU stays [24:02] Ryan had a low white blood count at birth and had several emergent blood draws over the years and Maura shares her desperation for answers [26:09] Maura explains how an ABA therapist was a pivotal force for Ryan to potty train [28:00] Ryan did swimming lessons at 18 months old, could roll over and do things in the water before he could do them without his walker [29:46] Maura shares how other people have reached out to her after finding her on instagram and how his story has given them hope [31:00] Maura shares about the language surrounding Down syndrome and how it made her feel [33:50] When children have a diagnosis, it is important to not put what they can or can't do in a box [35:40] Maura explains how the school called her about Ryan's therapy, stating that he did not need it any longer. She had his therapists train the teachers on his behavior plan [37:25] She shares the one thing she wished she would have done in early Ryan's diagnosis is to meditate and how many medical professionals urged her to do so as it is a part of their daily practice. It helped her not get overwhelmed in her thought life [41:00] How their family added meditation into their daily routine for calm minds,manage stress and think clearly [43:05] Maura explains how going through the emotions and feeling like your head is spinning is normal but you don't need to stay there. Meditation is so crucial to her to get through the days. [48:00] Maura explains how ABA therapy was a game changer and how she wishes that she would have started Ryan in this type of therapy at birth [50:00] She shares about how when she broke her foot badly and told the doctor she would do anything to help her broken foot.. He sent her to a Chinese medicine doctor for acupuncture and had immediate pain relief. She vented to the doctor about Ryan's situation and she suggested she bring him in for treatment [54:00] Maura explains how thinking outside of the box and trying things that are not typical are SO impactful to their experience. Find your tribe that will sit

Episode 127 | Courtney's Story - A daughter born at 25 weeks [MOST DOWNLOADED] At just 25 weeks pregnant, Courtney was diagnosed with pre-eclampsia and was hospitalized. Just 5 days later and after a terrifying emergent c-section, she would meet her daughter, McKenzie. In this episode, Courtney talks about her entire experience from her own hospitalization and her daughter's 5-month stay in the NICU and eventually going home. She talks about the balance of being a single, working mom and the struggles that come along with having a child with medical needs. Courtney will leave you feeling inspired and in utter awe of how she loves and supports her daughter. [2:47] Courtney is informed she has high blood pressure and is admitted to Labor and Delivery [4:24] Courtney is transported to a larger hospital that has a higher-level NICU [6:35] Courtney asks tough questions about her condition and her daughter [9:12] Courtney is informed she will need to have a c-section [11:12] Courtney is informed she will need an emergency c-section as she has developed HELLP syndrome [15:44] Courtney describes the overwhelming emotions she felt meeting her daughter for the first time in the NICU [19:44] A primary nurse keeps Courtney accountable in the NICU about pumping. Courtney shares how important this was to her and her journey with McKenzie. [21:24] Learning how to do McKenzie's care in the NICU helped Courtney feel empowered [22:45] Courtney describes the roller coaster ride she experienced while McKenzie was in the NICU [24:20] She explains how she stayed in the hospital recovering from HELLP syndrome [24:50] That punch in the gut feeling Courtney felt after learning the significance of a white flower posted outside of a neighboring NICU room [26:50] Courtney shares how she advocated for McKenzie, even when others did not agree with her [29:35] She shares about life after the NICU + rooming in with McKenzie [33:15] Courtney shares about McKenzie's feeding journey and oral aversion and the ups and downs with her feeding including developing, GERD and getting an NG tube [36:41] She recalls how McKenzie's nurse, now friend, came to the rescue to help drop McKenzie's NG tube [38:32] Courtney shares how she came to the decision to get McKenzie a g-tube and how it affected her as a mother [40:15] She shares the love and hate relationship with the feeding tube and how she came to the understanding that even though it wasn't preferable it helped her nutrition [43:00] Changes she had to make in her life to support McKenzie including staying in during cold and flu season [43:50] The beautiful gesture of friends supporting her during their NICU stay, bringing her to lunch each Sunday, and giving her weekly care packages. [45:35] Courtney shares her struggle of finding quality childcare for McKenzie and how difficult it was to find someone whom she could trust [48:12] Courtney relied on her faith and prayer to cope with what was going on in her life and with McKenzie [50:18] Courtney's friend Ebony, encourages her to get help and go to therapy after she describes some dreams and things during her day that remind her of being in the hospital [54:00] She shares how difficult it was for other people to understand what she was going through [55:09] Courtney describes how she puts her own needs aside to give McKenzie the selfless care and love she needs and deserves CONNECT WITH COURTNEY Instagram Facebook Twitter Blog Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.