Inside the Children's Hospital

"Millie's journey has taken me to the end of myself, but it's been the most beautiful beginning of understanding humanness and how to be compassionate and how to really be kind to other people and take notice that the story that is their life may not be what you see." How does trauma affect the whole family, and how can we show compassion to adults with special needs? One thing I have learned about throughout my career as a child life specialist and have heard from many families on this podcast is the impact that having a child with disabilities and the societal stigma can have on a family. Today we get to chat with Marna Pacheco, a mother and inventor who understands this impact all too well. She and her husband have two children, one of whom, Millie, has special needs. Marna shares with us the challenges of adopting a child with trauma and special needs, such as the way trauma affects a family, finding therapies, and navigating the medical system. She shares how parenting a special needs child has both challenged her and shifted her perspective over the years. Marna has continued to empower communities to support individuals with special needs. Being a 24/7 caregiver is not an easy job, Marna describes it as "predictably unpredictable". Now at almost 18, Millie is transitioning into adulthood which has presented the Pacheco family with a whole new set of challenges. "It is a huge gap that is missing for the adult special needs community of how the caregivers are being supported in this to help our children navigate the world and thrive. I mean, she should be given every opportunity to thrive as an adult." Aside from being a committed and resilient parent, Marna is also a businesswoman who created CapeAble Weighted Products made with smart weight technology. Her invention was inspired by Millie after weighted products were recommended by an occupational therapist to help regulate her nervous system and feel safe. After searching through weighted products and trying many out, Marna saw a lack of dignified, fashionable, and practical options. The resources mentioned in this episode are: CapeAble Weighted Products, Diagnosis resources Robyn Gobbel's podcast Big Baffling Behaviors Books on trauma and brain development by Dr. Bruce Perry, Dr. Stephen Porges, Dr. Dan Siegel About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

"If you have a question, ask it. You are the parent, you need to know" - Jessica Siddi-Sewart How can medical parents use their experiences to promote action and advocacy? As a child life specialist, I know that there is not one "normal" or "best" reaction for a parent when their child receives a medical diagnosis. Today's guest, Jessica Siddi-Sewart and she helps us reflect on the different stages parents go through when facing a medical diagnosis for their child. She is also a mother of three, a paralegal, and a business owner. I had the pleasure of meeting Jessica during our time at the American Academy of Pediatrics Conference this past October and was instantly drawn to her products and knew I wanted her to join me on the Child Life On Call podcast. Her company Puffaluffs Inc. was inspired by a personal experience with one of her sons. After giving birth at 28 weeks, a NICU stay, and a long and emotional journey to receiving a diagnosis, Jessica still found a way to make meaning and give back. For Jessica's son, it took 12 years and hundreds of doctor appointments to receive a concrete diagnosis: DiGeorge Syndrome. She shares her journey and learned the importance of finding support and resources from families walking through similar challenges. "It teaches you to pivot. It teaches you, you know, to learn different things and be okay. It is what it is and you will be okay" The resources mentioned in this episode are: Puffaluffs Inc. Diagnosis resources for families with DiGeorge include: https://www.nationwidechildrens.org/conditions/22q-deletion-syndrome https://22q.org/ https://www.maxappeal.org.uk/ About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

In this episode about parenting a child with infantile spasms, Katie Taylor, a certified child life specialist, has a profound conversation with Hailey, a resilient mother navigating the complexities of raising a child with a disability. Join us as we delve into Hailey's journey, exploring the challenges and triumphs of parenting under extraordinary circumstances. "It's not always about thriving in the traditional sense; sometimes it's about finding small victories in our daily struggles and embracing them." - Hailey Adkisson About the Episode: This episode offers an intimate glimpse into the life of Hailey, a mother from the Pacific Northwest, and her blended family. Hailey shares her experiences managing her professional life while being a dedicated caregiver to her youngest child, diagnosed with infantile spasms. The discussion also touches on the significance of mindfulness and the power of being present, especially during challenging times. From the episode with Hailey and Katie, here are three key takeaways: The Importance of Advocacy and Community: Hailey emphasizes how advocacy and connecting with a community have been vital for her. She discusses the therapeutic aspect of advocating for her child and how it has helped her connect with other families in similar situations. Challenges and Adaptations in Parenting: The conversation highlights the difficulties of parenting a child with medical complexities. Hailey shares her experiences of managing work-life balance and the adjustments she and her family have had to make to accommodate their child's needs. Mindfulness and Presence in Caregiving: Both Hailey and Katie touch upon the theme of mindfulness in caregiving. They discuss the challenges of staying present and mindful while dealing with recurring medical crises and the importance of finding ways to disconnect momentarily without losing focus on the child's needs. "I've learned so much from my daughter. Even though the journey is tough, it has opened my eyes to a different kind of love and strength." - Hailey Adkisson In our enlightening talk with Hailey, we discover the often-overlooked realities of caregiving and the resilience it fosters. Her parenting journey is a testament to the strength found in adversity and the importance of mindfulness in the face of life's challenges. We hope this episode inspires and provides valuable insights to caregivers and families facing similar journeys. You can buy Hailey's book, What is Epilepsy?, on Amazon. About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

I'm his mom, and I carried him for almost nine months, and no one loved him more than me. I'm his expert, and I'm going to own that. - Kathryn Whitaker Have you ever found yourself amazed at the strength people find in the toughest of times? Well, on today's podcast, we're talking about one of the common themes we've seen over the past 200 episodes of Child Life On Call and something I consistently see parents share on social media. We're talking about the incredible phenomenon of PTG, or post-traumatic growth. We're taking a special look at one of the deeply personal journeys a parent has embarked on during and after their child's medical battles. Together, we'll explore how these intense experiences can unexpectedly sow seeds of strength, knit tighter family connections, and awaken a profound appreciation for every precious moment of life. And guess what? We have a special guest, parent, and passionate advocate, Kathryn Whitaker, who's here to share her inspiring story. So grab your favorite cup of comfort, settle in, and join us as we uncover the resilience and beautiful transformation hidden within the heart of every parent's medical challenge. Kathryn Whitaker, a proud 6th generation Texan and a mother of six, brings a wealth of personal experience and resilience to the Child Life On Call podcast. With a background in agriculture and marketing, Kathryn's journey as a seasoned NICU parent has inspired her to advocate for families facing similar challenges. Her work with Hand to Hold, a national nonprofit supporting NICU families, showcases her passion for providing strength and support to others dealing with the NICU experience. Through her difficult experiences, Kathryn has found personal growth and hope, offering valuable insights to parents navigating similar paths. Her unique perspective and unwavering resilience make her a compelling voice for anyone seeking strength and inspiration during challenging times. You are not going to be the same person, thankfully, but hopefully a stronger, better version of the person who walked in the door, as opposed to the person who walks out. - Kathryn Whitaker The resources mentioned in this episode are: HandtoHold.org Check out the NICU Heroes podcast for NICU professionals looking to earn continuing education credits while learning from amazing guests. Purchase Kathryn Whitaker's book Live Big. Love Bigger. on Amazon or wherever books are sold for an inspiring and transformational read about living an intentional life. Kathryn on Instagram. About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

In this milestone 200th episode, Katie delves into a unique mix of content, answering insightful questions from Instagram, sharing a personal story about her daughter Cameron's burn accident, and reflecting on the impactful moments of 2023. The episode features discussions on a variety of books Katie read throughout the year, the best toys of 2023, and tackles the challenging aspects of balancing work and personal life as a child life specialist. Katie's candid sharing of Cameron's experience provides a heartfelt insight into the realities of parenting and healthcare challenges. Toys that I recommend in this podcast: Smart Sketch 2.0 by Flywheel Melissa & Doug Sticker Wow (At Wal-Mart Only) Katie also shares her thoughts on balancing professional responsibilities with personal life, offering valuable insights for child life specialists and parents alike. Additionally, she discusses her favorite books and toys of 2023, showcasing how these resources can be instrumental in child life practice. This episode is not just a celebration of reaching a significant milestone but also a testament to the power of shared experiences and the strength of our community. Tune in to hear Katie's heartfelt reflections and valuable advice as we continue our journey together in supporting families through healthcare experiences.

Join me for an emotional and insightful conversation as I sit down with Kate Kostolansky in this episode of Child Life On Call. Kate, a dedicated mother and advocate, shares her touching journey of raising her daughter, Charlotte, who battles infantile spasms. In this heartfelt discussion, Kate sheds light on the challenges faced by families dealing with rare medical conditions, emphasizing the importance of parental instincts and advocating for timely medical attention. Discover Kate's inspiring efforts to create age-appropriate resources, including a poignant book and a comforting teddy bear, designed to support and educate children navigating epilepsy. This episode offers valuable insights into the world of pediatric epilepsy and the powerful impact of emotional support from peers. Kate's advocacy work and her family's emotional journey will surely resonate with anyone facing similar challenges. Tune in to gain a deeper understanding of navigating pediatric epilepsy and the remarkable strength found in advocacy and support. #InfantileSpasms #PediatricEpilepsy #ChildLife #Advocacy #RareMedicalConditions In this episode, you will be able to: Discover insights on parenting a child with infantile spasms. Learn the importance of seeking timely medical attention. Explore advocacy strategies for raising infantile spasms awareness. Find age-appropriate resources for children with epilepsy. The key moments in this episode are: 00:00:05 - Introduction to Childlife on Call podcast 00:01:24 - Kate's Family and Experience with Infantile Spasms 00:06:03 - Recognizing Infantile Spasms and Seeking Medical Help 00:11:37 - Advocacy for Infantile Spasms Awareness 00:15:54 - Challenges of Treatment and Advocacy 00:18:23 - Understanding the Impact of Epilepsy on Children 00:20:24 - Filling the Gap in Pediatric Epilepsy Resources 00:23:34 - Coping with EEG and Treatment 00:25:21 - Empowering Children through Understanding 00:29:30 - Resources for Children with Epilepsy Ways to Connect with Kate Instagram Char Bear Keeps Dancing Brave Bear Use discount code CLOC10 to receive a discount! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

In this episode of Child Life On Call, we are honored to host Jennifer Canvasser, the driving force behind the NEC Society, as she shares her poignant journey and advocacy for Necrotizing Enterocolitis (NEC) awareness in the NICU. Join us as Jennifer unveils her personal story and how she transformed her loss into a powerful force for supporting families grappling with NEC. Gain valuable insights into the pivotal role of human milk and early intervention in mitigating the risk of NEC, and the vital need for open communication between healthcare providers and families in the NICU. Jennifer also sheds light on the indispensable contribution of Child Life specialists and palliative care teams, along with the plethora of resources available on the NEC Society's website. Additionally, Jennifer delves into her touching book, "Forever Our Little One," a heartfelt guide for parents navigating the complexities of grief. Tune in to this impactful episode and be inspired by Jennifer's unwavering commitment to enhancing NEC awareness and providing unwavering support for families in the NICU. In this episode, you will be able to: Discover how NEC Society supports and raises awareness for families. Learn the importance of human milk in reducing NEC risk. Explore the significance of early intervention and communication in the NICU. Understand the vital role of Child Life specialists in the NICU. Find valuable resources for families dealing with NEC in the NICU. More about Jennifer Jennifer Canvasser is the Executive Director and founder of the NEC Society. With firsthand experience as a mother who lost her son to Necrotizing Enterocolitis (NEC), Jennifer's expertise and advocacy work in the field of NEC is invaluable. Her dedication to raising awareness and driving change is evident through her establishment of the NEC Society, which brings together researchers, scientists, and families affected by NEC. Jennifer's personal journey in the NICU has propelled her to create a platform that fosters collaboration and provides support for families facing the challenges of NEC. Her work aims to empower parents and improve outcomes for premature babies at risk of NEC. We are privileged to have Jennifer as a guest on this episode, as she shares her knowledge and personal insights to shed light on the importance of NEC advocacy. Connect with Jennifer Website X (twitter) The key moments in this episode are: 00:00:00 - Introduction 00:04:05 - Jennifer's NICU Experience 00:06:55 - Loss of Micah 00:08:58 - Memories of Micah 00:12:25 - Coping in the NICU 00:15:38 - The Urgency of the NICU Society's Work 00:16:15 - The Importance of Human Milk in NEC Prevention 00:17:41 - Starting Conversations with At-Risk Families 00:18:56 - The Power of Information and Early Intervention Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

In this episode, our guest James Robinson will share the keys to living life to its fullest, both inside and outside of the hospital, so that you can provide the result of bringing joy and happiness to your child's life, despite their medical condition. James Robinson, the author of the book "More Than We Expected: 5 Years with A Remarkable Son." On today's episode, he shares his personal experience as a parent of a child with a congenital heart defect. Living in Brooklyn, New York, James and his wife have three children, one of whom was born with a serious congenital heart defect. They navigated their way through multiple surgeries and hospital stays, learning valuable lessons along the way. James's story highlights the importance of holistic care and the impact of medical professionals, from doctors to Child Life Specialists, in providing support to families. James and his family found strength and created meaningful experiences for their child. It was a privilege to be his father. We learned a lot through our journey about what it means to live when you have a medical condition. - James Robinson In this episode, you will be able to: Discover the transformative power of parenthood and how it can bring joy and strength in the face of medical challenges. Explore the importance of transparency in navigating the realities of your child's medical condition, and how open communication can benefit both you and your child. Learn how child life specialists in hospitals can provide support and create meaningful experiences for your child during their medical journey. Find inspiration in stories of resilience and the power of support from other parents who have faced difficult times with their children's medical conditions. Discover practical strategies for balancing fear and living a fulfilling life, while still prioritizing your child's health and well-being. Connect with James Learn more about James' book here. Link to purchase "More than we Expected" To request bookplates and oregano seeds: https://morethanamemoir.com/bookplates/ Social media: FB: MoreThanAMemoir Instagram: MoreThanAMemoir X/Twitter: MoreThanAMemoir All best The key moments in this episode are: 00:00:00 - Introduction 00:00:40 - Purpose of the Podcast 00:02:07 - Story of James' Son 00:05:15 - Balancing Fatherhood and Medical Care 00:07:01 - Trip to Australia and Medical Emergency 00:09:18 - Differences in Medical Practices 00:10:04 - Heart Beads 00:13:11 - The Miracle of the Body Formation 00:14:00 - Trusting the Body's Processes 00:15:47 - Accepting Things Beyond Control 00:16:22 - Challenges of Living in Another Country for Medical Treatment 00:19:26 - The Healing Power of Nature 00:25:34 - The Impact of Therapists 00:26:01 - Exploring the Hospital 00:27:09 - Going Outdoors 00:28:19 - Unexpected Kitchen Visit 00:31:30 - Balancing Fear and Living 00:37:34 - The Purpose of Writing the Book 00:38:01 - The Importance of Child Life 00:38:48 - Parenthood and Self-Discovery 00:40:53 - Availability of the Book 00:42:31 - Conclusion and Resource Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

In this episode, you will be able to: Discover the untold journey of NICU parents, gaining insights and understanding into their unique experiences. Uncover the challenges of medically complex pregnancies, and learn strategies for navigating this complex journey with support and resilience. Explore the support systems available for medical motherhood, and find out how to build a network of understanding and empowerment. Gain invaluable insights and practical tips for navigating the complexities of special needs parenting, empowering you to advocate for your child's unique needs. Learn the art of accepting uncertainty in medical diagnoses, finding peace and strength in the face of the unknown. Hannah Parsons is the guest on this week's episode of Child Life On Call. She shares her personal journey as a mother to a child with Vactrel Association. Hannah has a diverse background, starting out as an actor and comedian before transitioning into editing and stagecraft. Living in Los Angeles with her husband and two-year-old son, Obie, Hannah has faced numerous challenges and complexities throughout her son's medical journey. From navigating a unique pregnancy without insurance to experiencing the unexpected during childbirth, Hannah's story sheds light on the emotional rollercoaster of motherhood and medical motherhood. Her determination, resilience, and unwavering belief in her son's well-being are truly inspiring. Tune in to hear Hannah's incredible journey and gain insights into the realities of special needs parenting. The key moments in this episode are: 00:00:00 - Introduction 00:02:05 - Pregnancy and Diagnosis 00:06:14 - Birth and Initial Diagnosis 00:10:24 - Navigating the NICU 00:13:48 - Transitioning to Home 00:17:45 - Challenging Medical Conditions 00:19:20 - Unwanted Medical Procedure 00:23:37 - Feeling Unsafe and Disappointed 00:25:02 - Acts of Kindness and Support 00:26:33 - The Impact of NICU Nurses 00:34:54 - Gratitude for a Healthy Child 00:35:45 - Need for Resources and Support 00:36:50 - Navigating Post-Hospital Care 00:37:59 - Importance of Resources and Podcasts 00:45:12 - Diagnosis and Acceptance Connect with Hannah here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Join Katie Taylor in an emotional conversation with Mackenzie Carolin as they discuss the unexpected medical journey she faced with her daughter. Learn how Mackenzie navigated the complexities of her child's healthcare needs and discover the importance of trust and human connections during challenging times. This episode of Child Life On Call provides valuable insights and support for parents who find themselves in similar situations. Don't miss this heartwarming and inspiring discussion that highlights the power of advocacy and the strength of a supportive community. Join us now and start watching to gain valuable knowledge and find solace in knowing you're not alone in your journey. In this episode, you will be able to: Discover the power of your personal experiences in transforming your child's healthcare journey. Unlock the importance of building human connections to enhance your child's medical care. Navigate the complexities of your child's healthcare with confidence and clarity. Advocate for your child with disabilities and ensure they receive the support they need. Learn how unexpected medical conditions can shape and strengthen your parenting journey. My special guest is Mackenzie Carolin. Mackenzie Carolin, a parent from Florida, joins us on this episode of Child Life On Call. Mackenzie shares her personal journey as a mom navigating unexpected medical conditions with her child. With a background in the medical field and surrounded by family members in healthcare professions, Mackenzie brings a unique perspective to the challenges faced by families in similar situations. From the initial shock of discovering her daughter's condition to the emotional rollercoaster of hospital visits and uncertainty, Mackenzie's story highlights the importance of trust, human connections, and advocating for your child's healthcare needs. Join us as Mackenzie shares her experiences and provides valuable insights for parents in similar situations. The key moments in this episode are: 00:00:05 - Introduction 00:01:13 - The Power of One-on-One Conversations 00:02:47 - Tips for Effective Doctor's Visits 00:03:17 - Introduction to Mackenzie Carolin 00:05:17 - Unexpected News at the Hospital 00:16:05 - Empowerment through Seeking Second Opinions 00:17:05 - Finding Her Voice in Advocating for Her Child 00:19:30 - Becoming an Advocate for Other Moms 00:21:43 - The Power of Mom-to-Mom Support 00:24:06 - Personal Growth and Learning from Liv Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Are you a parent of a child with a medical condition? Join me, Katie Taylor, as I chat with Keeley Machen Schares, a Child Life Specialist, in this special episode of Child Life On Call. Keeley takes us through her incredible journey as a mother to a premature baby with hydrops fetalis and profound hearing loss. From routine ultrasounds to a life-saving diagnosis, Keeley's story will captivate you. Learn about the challenges she faced, the importance of finding the right medical team, and the power of support from fellow parents. Keeley's experience serves as a beacon of hope and inspiration for parents navigating through their own medical journeys. Don't miss out on this heartfelt conversation and join us today. In this episode, you will be able to: Discover how a child life specialist can support you and your child through their medical journey, providing invaluable emotional and practical guidance. Understand the complexities of hydrops fetalis and pregnancy complications, and gain valuable insights into managing these challenges during pregnancy. Explore the emotional toll of a lengthy NICU stay and discover strategies to navigate the rollercoaster of emotions that come with it. Learn about the journey of receiving a hearing loss diagnosis for your child and the positive impact cochlear implants can have on their life. Get inspired to become an advocate for your deaf child, empowering them to thrive and ensuring they have access to the resources and support they deserve. My special guest is Keeley Machen Schares Keeley Machen Schares is a seasoned Child Life Specialist with over seven years of experience. As a dedicated mom herself, she understands firsthand the challenges and emotions that come with having a child with medical conditions. Keeley's journey took an unexpected turn when her daughter, Dottie, was diagnosed with hydrops fetalis during pregnancy. This life-changing experience led her to navigate the complexities of the healthcare system while also being a supportive advocate for her daughter. Keeley's expertise in child life and her personal experience as a parent of a child with special healthcare needs make her a valuable resource for other parents facing similar situations. She brings a unique perspective and a wealth of knowledge to the discussion, providing insights and support to parents dealing with prematurity, hydrops fetalis, and hearing loss. The key moments in this episode are: 00:01:08 - Introduction to Keeley 00:03:25 - Finding Out About Dottie's Condition 00:06:55 - The Impact of the 32-Week Ultrasound 00:10:20 - Expressing Gratitude 00:15:32 - The whirlwind of Dottie's birth and NICU stay 00:18:26 - The significance of scent cloths 00:21:13 - Navigating visits and the emptiness of leaving 00:23:50 - Dottie's health progress and gratitude 00:26:13 - Balancing rest and gratitude for visitors 00:31:57 - Additional Testing and Switching Providers 00:34:30 - Cochlear Implants and Hearing Aid Phase 00:39:00 - Advocating for Deaf and Hard of Hearing Kids 00:40:28 - Impact on the Speaker's Life and Perspective Connect with Keeley here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

It's a solo episode this week and our host, Katie Taylor, CCLS, dives in to what she experienced at the American Academy of Pediatrics Conference. Katie talks about her travels to Chicago to train a group of clinicians in Chicago, and then her trip to DC where she had hundreds of conversations with pediatricians from across the globe. What was the overwhelming takeaway? PEDIATRICIANS LOVE CHILD LIFE, y'all! Listen to hear more about what Katie learned as a child life specialist exhibiting at the conference for the first time. ____ Are you a parent of a child who HATES shots? Me, too! But, rest assured - we're giving you ALL the tips and tricks to make these experiences way easier for kids... and YOU! These are the LAST few days to get course access to our Parent Course "How to Help Your Child With Shots!" ____ Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

This episode is a repost in honor of Spina Bifida awareness month. Are you a parent of a child with spina bifida who is seeking support and guidance to navigate the challenges of raising your child? Are you looking for increased understanding, support, and strategies to help you and your child thrive? Join us as we welcome guest Teresa Crespo, who will be sharing the solution to help you achieve that desired outcome. Get ready to gain valuable insights and practical tips that will empower you as a parent and enhance your child's quality of life. In this episode, you will be able to: Gain access to intimate narratives of parents championing the hardships of parenting children with spina bifida. Learn the crucial role communication, and representation play in optimizing the welfare of children with spina bifida. Immerse yourself in strategies for handling bodily functions in children afflicted with spina bifida. Delve into the emotional facets impacting both parents and children and procure invaluable coping methods. See the assortment of beneficial products conceived for children with spina bifida and similar medical conditions. My special guest is Teresa Crespo Allow us to introduce Teresa Crespo - a mother, a problem solver and an advocate for kids with Spina Bifida. Hailing from Miami, Teresa's 14-year old daughter Isabella was born with this congenital disorder, which led her into a rollercoaster ride through the healthcare system. Also an entrepreneur, Teresa co-created 'Hidden Underwear', a solution for children, like Isabella, who want to blend in with their peers. Teresa's strength, determination, and warm demeanor make her a beacon of hope for other parents. The key moments in this episode are: 00:00:00 - Introduction to the podcast and Teresa's story 00:05:09 - Discovering something was wrong at birth 00:07:51 - The challenges of waiting for a diagnosis 00:11:02 - Understanding the diagnosis and treatment plan 00:12:30 - The importance of having a comprehensive view of the medical journey 00:14:19 - Understanding Spina Bifida, 00:15:05 - Bella's Prognosis and Challenges, 00:18:23 - Coping with Potty Training Challenges, 00:22:12 - Bella's Multiple Surgeries, 00:25:31 - Bella's Perspective and Coping, 00:29:20 - Validating Feelings and Effective Communication, 00:31:45 - Empowering Kids and Finding Language to Explain Their Condition, 00:34:23 - From Game to Business: The Inspiration Behind Hidden Underwear, 00:37:53 - Expanding Hidden Innovations and Helping More Kids, 00:40:10 - Resilience and Accomplishment in the Face of Challenges, 00:44:05 - Importance of Sharing Experiences, 00:44:38 - Finding Inspiration in Others' Stories, 00:45:37 - Hidden Underwear and Innovations, 00:45:59 - ChildLife On Call Resources Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

We wanted to repost this epsidoe to highlight that October is Learning Disabilities / Dyslexia / Attention Deficit Hyperactivity Disorder Awareness Month. In a world of unexpected twists, sometimes the greatest surprises lie within our own children. Child Life Specialist, Shani Thornton's journey with her son's learning differences took an unforeseen turn, unraveling a mystery that went beyond what anyone could have imagined. But what if this unexpected twist held the key to unlocking their hidden potential? Join us as we delve into the story of a mother's unwavering determination, and discover how engaging in activities outside of academics could be the missing piece to building confidence and self-esteem in children with learning differences. Get ready to embark on a journey of empowerment and endless possibilities... In this episode, you will be able to: Immerse in Shani's passionate crusade to ensure her children with learning differences receive the care they need. Delve into the complex world of digital education amid a pandemic, and how this interplays with learning differences. Grasp the significance and need for early dyslexia diagnosis and intervention, shaping successful learning paths. Learn about the strategies to foster confidence in children with learning differences, touching upon areas beyond academics. Grasp the role of 'self-care' for those caring for children with learning differences, shedding light on avoiding burnout and delivering effective support. My special guest is Shani Thornton Meet Shani Thornton, a seasoned Child Life specialist with nearly 14 years of experience in the field. Living in Northern California, Shani balances being a loving mom of two alongside running her private practice, Child Life Mommy. Typically offering a range of services including hospice care support for children of adult patients, workshops, and grief counseling, Shani's approach is marked by compassion and understanding. Known for her deep understanding of child development, she has a personal connection to this episode's theme: raising confident children with learning differences. Shani has navigated her own children's learning journey and excels in creating an environment that facilitates emotional growth beyond academics. The key moments in this episode are: 00:01:14 - Introduction, 00:02:28 - Shani's Background, 00:06:04 - Challenges with Remote Learning, 00:07:59 - Individualized Education Plan (IEP), 00:10:26 - Diagnosis and Support, 00:15:42 - Early Interventions and Frustrations, 00:18:00 - Misdiagnosis and Advocacy, 00:19:22 - Individual Educational Evaluation and Interventions, 00:24:27 - Finding Support and Balancing Schoolwork, 00:26:18 - Explaining Learning Differences to the Child, 00:31:39 - The Nature of Dyslexia, 00:32:15 - Normalizing Dysgraphia, 00:33:44 - Supporting Children with Dyslexia in Online Learning, 00:36:03 - Supporting a Child with Dyslexia's Confidence, 00:39:53 - Identifying and Addressing Learning Differences Connect with Shani here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

In honor of October being Breast Cancer Awareness month we wanted to repost this episode to provide awareness to our community. Breast cancer survivor, Sara Olsher, battles the disease as a single parent, using her experience to empower others and create resources for families facing cancer, in a moving and inspiring episode of the Child Life On Call podcast. In this episode, you will be able to: Explore Sara's firsthand experiences from her breast cancer diagnosis to treatments, offering an inspiring narrative for those facing a similar situation. Learn to simplify complex cancer terminologies into friendly conversation, developing a resourceful way to ease children into understanding the disease. Comprehend the value of a strong community in fueling hope and resilience during cancer treatments. Master the art of balancing the role of a single parent with the imperative of self-care during cancer treatment. Understand the silent toll of cancer on children and strategies to alleviate their anxiety, making them feel safe and heard. List 3: My special guest is Sara Olsher Let's meet Sara Olsher, a mother, a steadfast partner, and a formidable cancer warrior. Living in the heart of California's wine country, Sara embodies the phrase 'survivor' in more ways than one. Having traversed the rocky terrain of single parenthood and then battling against a troublesome breast cancer diagnosis, Sara's life journey is nothing short of inspirational. Her frank and sensitive sharing of her personal struggles inspires hope and resilience. The key moments in this episode are: 00:00:00 - Introduction, 00:03:43 - Sarah's Diagnosis, 00:09:04 - Treatment and Reconstruction, 00:12:57 - Pain and Recovery, 00:15:48 - Sharing the News, 00:18:35 - Explaining Cancer to Her Daughter, 00:23:48 - Providing a Concrete Understanding, 00:25:55 - Seeking Support as a Single Parent, 00:31:30 - Recognizing Acts of Kindness, 00:33:06 - Simple Ways to Help, 00:36:16 - The Importance of Support in Parenting, 00:37:22 - Empathy and Exposure to Different Family Dynamics, 00:38:02 - Sara's Books on Cancer Awareness, 00:43:09 - Creating Calendars for Children with Cancer, 00:45:36 - Donating Calendars to Children's Hospitals Link to Mighty and Bright Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

My special guest is Ryan Sheedy Meet Ryan Sheedy, an incredible father who, much to his own surprise, found himself immersed in the delightful chaos of caring for twin boys. His world drastically transformed ten years ago, when he moved from Pennsylvania to Bentonville, Arkansas. Not only has Ryan navigated the unexpected challenges of parenting twins, but he has also bravely navigated his son's Costello Syndrome diagnosis. Through it all, he's embraced being a stay-at-home dad, constantly learning, adapting and conquering unforeseen hurdles. We can plan as much as we want to plan, but it's out of our control. We have to go with the flow. - Ryan Sheedy In this episode, you will be able to: Delve into the heartening and daunting experiences that fathers encounter in the NICU, shedding light on their tenacity and determination. Grasp the profound impact support and open communication can make in navigating the NICU's challenging landscape. Understand better the diverse responsibilities fathers shoulder as caregivers and staunch advocates in their children's healthcare journey. Comprehend the rollercoaster ride of emotions and experiences that encapsulate being a stay-at-home dad and the head caregiver. Get introduced to 'Mijo', a versatile web app offering an efficient solution to The importance of communication and support in the NICU cannot be overstated. It anchors not only the medical care of the infant but also the emotional well-being of the parents. Ryan's story emphasizes how a strong support network, open communication with healthcare professionals, and sharing information with family and friends can make a significant difference in this intense journey. The key moments in this episode are: 00:00:05 - Introduction, 00:01:08 - Guest Introduction, 00:09:29 - NICU Experience Begins, 00:11:55 - Early Days in the NICU, 00:12:55 - Ongoing Relationship with Care Team, 00:15:12 - The Separation, 00:16:49 - Perspective and Gratitude, 00:21:33 - Breaking the Mold, 00:24:29 - The Challenges of Caregiving, 00:28:35 - My Mejo App, 00:31:47 - The Genesis of Mejo, 00:35:59 - Who Can Use Mejo?, 00:38:34 - Moments of Care, 00:40:38 - Building a Community, 00:43:20 - Lessons Learned Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

My special guest is Rhandyl Vinyard, Deonna Wade Rhandyl Vinyard and Deonna Wade are two phenomenal mothers from Texas, each raising disabled children. Drawn together by shared circumstances, their friendship continues to strengthen others walking a similar path. Rhandyl, a physical therapist assistant, is the mother to Remy, who has required intensive medical care from an early age. Her background in healthcare provides a unique perspective into the challenges of raising a disabled child. Deonna, once a teacher, is mom to Allie who was thrust into an unexpected medical journey after a rare and tragic accident. Both moms bring a wealth of personal experience and heartfelt understanding to the table, connecting communities and gifting invaluable advice to others. If that's your only thing is being that caretaker role and that's it, it's going to eat you up eventually... life is short and that we're not guaranteed tomorrow. So let's just have fun today and be happy and thankful for what we have. - Deanna Wade In this episode, you will be able to: Uncover the remarkable strength that emerges from raising children with special needs. Explore the unseen challenges and isolations encountered by parents of disabled children. Discover the pivotal role in forming a solid support system for those raising differently-abled children. Recognize the necessity of becoming a powerful advocate for your child's unique needs. Grasp the profound influence of Child Life specialists in the lives of families with disabled kids. The key moments in this episode are: 00:00:00 - Introduction, 00:03:33 - Starting the Podcast, 00:07:49 - Purpose of the Podcast, 00:10:04 - Deanna's Story, 00:13:02 - Randall's Story, 00:16:30 - Remy's Journey, 00:19:48 - Remy's Personality, 00:20:56 - Allie's Journey, 00:23:19 - Coping Mechanisms, 00:28:10 - Finding Joy, 00:32:48 - The Importance of Advocating for Your Child, 00:35:47 - Transitioning into a Different Role, 00:38:47 - Learning to Trust Your Instincts, 00:43:58 - Taking Control of Medical Decisions, 00:49:01 - The Purpose of the Podcast, 00:50:30 - Broad Topics of Discussion, 00:51:49 - The Value of Child Life, 00:52:55 - Discovering the Importance of Child Life, 00:55:22 - Resources and Opportunities Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

Do you want to become a confident advocate for your child's medical needs? Are you searching for a solution to navigate the complex world of medical care for children with conditions? Join us as we welcome Kayleigh Koehler, a Child Life Specialist who has transformed into a medical parent. She will be sharing valuable insights and strategies on how you can achieve the ultimate goal of becoming a knowledgeable and effective advocate for your child's medical journey. Get ready to embark on a transformative journey towards becoming the empowered advocate your child needs. Kayleigh Koehler is a remarkable and multifaceted individual who navigates through life wearing various hats. As a wife to her high school sweetheart Mitch and a mother to their charming four-year-old son, Hudson, Kayleigh's world is filled with love and profound resilience. Professionally, she is a dedicated child life specialist working tirelessly in a cardiac ICU. Her firsthand expertise and personal connection to her job started to take a unique and powerful perspective when her unborn son was diagnosed with a heart condition. Kayleigh's courage, wisdom, and gutsy perseverance inscribed an unforgettable chapter in her life story where her professional and personal world astoundingly intertwined. Because of this experience, I am a better child life specialist. Because I understand the world in a different way that I simply could not understand when I wasn't a mom. - Kayleigh Koehler The key moments in this episode are: 00:00:00 - Introduction, 00:01:42 - Reflections on Trauma and Mental Health, 00:09:47 - Advocacy and Empathy in Child Life, 00:13:21 - Permission to Coexist with Messiness, 00:13:56 - Conclusion, 00:16:17 - Introducing a New Course for Parents, 00:17:25 - The Importance of Advocacy, 00:21:05 - Speaking Up for Change, 00:24:35 - The Pressure of Being a Parent Advocate, 00:27:08 - Differentiating Between Healthy and Unhealthy Advocacy, 00:30:45 - The Importance of Support and Self-Care, 00:31:38 - Utilizing Social Media for Connection, 00:32:03 - Prioritizing Mental Health, 00:33:08 - Dreams and Future Aspirations, 00:33:28 - Resources and Support Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

Welcome to the ChildLife On Call podcast, where I, Katie Taylor, sit down with Kayleigh Koehler, a certified child life specialist, to discuss her journey as a medical mom and a child life specialist in a cardiac ICU. Join us as we dive into Kayleigh's personal story, from her gut intuition during pregnancy to her son's diagnosis, and the emotional challenges she faced along the way. We explore the importance of trusting gut intuition, the complexities of navigating the healthcare system as a parent, and the impact of personal experiences on professional practice. Whether you're a child life specialist, nurse, doctor, or any healthcare professional working with pediatric patients, this episode will provide you with valuable insights and a deeper understanding of the emotional journey of becoming a medical mom. Get ready to be inspired and gain a new perspective on supporting families through challenging medical experiences. In this episode, you will be able to: Delve into the empathetic journey of a child life specialist turned medical mom and the untold lessons it brings. Learn the underrated power of trusting gut instincts during pregnancy for improved health decisions. Acknowledge the challenges and rewards of juggling roles as a child life specialist and a parent to a child with a cardiac defect. Dissect the fight for children's rights in healthcare and the persistence it requires to make a change. Unpack the emotional turmoil in parenting and its impact on one's personal identity in exigent situations. My special guest is Kayleigh Koehler Our guest today, Kayleigh Koehler, paints a picture of resilience and determination in her unique personal and professional journey. From her early days being a carefree high school lover with her husband, Mitch, to becoming a mother to their vibrant son, Hudson - she personifies strength. Alongside the joys and challenges of parenting, Kayleigh also stars as a certified child life specialist working passionately in a cardiac ICU. When they discovered Hudson's heart condition, her professional and personal life merged in an unprecedented way. This transformative experience endowed Kayleigh with a profound understanding of patient care, advocacy, and resilience. Her story is a testament to her unbreakable spirit. The key moments in this episode are: 00:00:00 - Introduction, 00:03:59 - Colliding Worlds, 00:06:20 - Identity Shift, 00:08:55 - Gut Intuition, 00:12:11 - Anatomy Scan, 00:14:57 - The Moment of Knowing, 00:18:08 - Feeling Angry and Resentful, 00:19:36 - Coming to Terms with the Diagnosis, 00:21:42 - Living in the Messiness, 00:28:22 - Giving Permission for Imperfection, Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

Meet J.R., a parent on a challenging journey. From aggressive behaviors to sensory challenges, she shares her struggles of raising a child with severe special needs. But just when things start to improve, an event occurs which leaves her questioning everything. You will not want to miss this story of resilience and uncertainty. In this episode, you will be able to: Gain insights into the journey of raising a child with significant special needs, and learn how to turn these experiences into growth opportunities. Discover the challenges in obtaining an early diagnosis and the role of perseverance in overcoming these hurdles. Understand the importance and the process of tailoring therapeutic interventions for your special needs child. Identify the importance of self-care and support networks for parents and caregivers of special needs children. Immerse in the raw and real-life narration of completing a book detailing a child's unique experiences. My special guest is J.R. Meet J.R., a remarkable woman whose world authentically embodies the complexities and nuances of parenting. An academic powerhouse, J.R. boasts a solid background in molecular biology and human genetics. But it's her real-life experience as a mother to three beautiful sons - one of whom has a severe diagnosis - that truly validates her expertise. Her middle son's journey with intellectual disability, seizures, autism, and behavioral challenges led to his group home placement from the age of twelve. J.R.'s dedication to understanding and improving the lives of children with complex needs manifests in her volunteering with the SynGAP Research Fund. Her candid accounts of becoming a parent, navigating the healthcare system, and learning to balance her family's varied needs radiate a contagious strength and resilience. The key moments in this episode are: 00:00:09 - Welcome to ChildLife on Call, 00:01:11 - Introduction of Jr. and her Family, 00:06:40 - Placing Her Son in a Group Home, 00:10:17 - Transitioning into Motherhood, 00:11:29 - Advocating for Her Son's Needs, 00:15:41 - The balance between love and fear, 00:16:29 - Therapy and transformation, 00:18:03 - Floor Time therapy, 00:22:26 - Wisdom of a child, 00:25:19 - Self-care and challenging cultural expectations, 00:30:48 - The Start of Challenging Behaviors, 00:32:36 - Underestimating Sensory Challenges, 00:34:22 - Reaching a Breaking Point, 00:36:14 - Fear and Relief in Getting Help, 00:45:46 - The struggle to finish the book, 00:46:15 - Joey's aging, 00:46:53 - Timing is everything, 00:47:32 - Gratitude for the community, 00:48:09 - Conclusion and resources Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialist and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

In the world of healthcare, where hope often intertwines with despair, one woman's accidental encounter sparked a revolution of compassion. Casey Baynes, driven by a single twist of fate, unlocked the power of providing support and joy to critically ill children and their families. The story unravels in unexpected ways, leading us down a path where ordinary logistics transformed into extraordinary healing. Brace yourself for a tale that will leave your heart racing and your soul yearning for more. My special guest is Casey Baynes Casey Baynes is an inspiring individual with a heart of gold and an unmatched passion for supporting the families of critically ill children. She has dedicated her life to ensuring that these families are treated with love, compassion, and care through her organization, Casey Cares Foundation. Having started her journey as a volunteer at a children's hospital, Casey's life took an unexpected turn when she witnessed the challenging lives of these children. Today, with her team, she creates memorable moments for these young patients and their loved ones with programs like Cammie's Jammies and fun family movie nights. If we all pull together and help and support one another, we can make it. - Casey Baynes In this episode, you will be able to: The key moments in this episode are: 00:00:00 - Introduction, 00:03:06 - Impact of a Child's Wish, 00:09:14 - Support for Bereaved Families, 00:10:47 - Family Time in the Hospital, 00:12:31 - Essential Supplies and Support, 00:14:09 - Casey Cares: Supporting Families of Critically Ill Children, 00:15:19 - Creating Lasting Memories for Families, 00:16:31 - Supporting Siblings of Critically Ill Children, 00:17:37 - Getting Involved with Casey Cares, 00:19:21 - Easy Application Process and Ways to Support, Connect with Casey Cares Follow Casey Cares on Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Have you ever heard these myths about preparing children for ambulance rides and hospital transfers? Myth 1: Children don't need any special preparation for medical transportation. Myth 2: It's best to keep children in the dark about what to expect during the ride. Myth 3: Distractions like toys or electronics can prevent children from feeling anxious. In this episode, our guest Josh Itano will debunk these myths and share the truth about how to prepare children for a smooth and anxiety-free medical transportation experience. Join host Katie Taylor as she interviews ambulance paramedic Josh Itano, who shares valuable insights on how to prepare children for ambulance rides and hospital transfers. Learn how to ease your child's anxiety and create a comforting environment, but be prepared for a shocking moment that will leave you questioning what happens next. Find out more on the Child Life On Call podcast. In this episode, you will be able to: Navigate the intricate relationship between Child Life and EMS for effective emergency service delivery. Realize the value of establishing strong family communication mechanisms during emergency medical situations. Unearth helpful strategies to make ambulance rides and hospital transfers less daunting for children. Unwrap the significance of preparation books and visual aids in children's adaptation to medical scenarios. Investigate how creating a comforting environment affects pediatric patients' overall experience. My special guest is Josh Itano. Meet Josh Itano, an empathetic first-responder whose commitment to his profession is evident in the extra steps he takes to provide comfort during stressful times. After spending over three and half years working as an EMT Basic, Josh's experiences span from serving suburban Chicago neighborhoods to aiding in wilderness settings. He's been an EMTB Field Training officer and chaplain, and he voluntarily serves the Glenwood Volunteer Fire Department. Josh brings to light the critical aspect of communication during high-stress situations and shares his experiences dealing with a range of patients, including those dealing with psychological distress. The key moments in this episode are: 00:00:00 - Introduction, 00:01:15 - Why Josh Reached Out, 00:05:37 - Communicating with Kids, 00:09:20 - Validating and Listening, 00:11:53 - Being Honest and Detailed, 00:14:37 - What Happens During an Ambulance Call, 00:15:57 - Inbound Report and Hospital Arrival, 00:17:56 - Sensory Issues and Sirens, 00:19:16 - Involving Parents and Normalizing the Experience, 00:24:31 - Parents Taking Care of Themselves Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialist and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

In a world turned upside down by the pandemic, one Child Life Specialist found herself on a journey she never could have anticipated. But little did she know, a twist of fate was about to lead her down an unexpected path. This story is the catalyst for a groundbreaking virtual Child Life Specialist program. Stay tuned to discover how her resilience and determination transformed the healthcare experience for children and their families, forever changing the landscape of pediatric care. In this episode, you will be able to: Explore the unique workings of the virtual child life specialist program at Helen DeVos Children's Hospital. Dive deep into the methodology behind pre-surgical tours and outpatient surgery center tours to deliver premium care. Realize how fundamentally decreasing anxiety levels pre-medical procedures can contribute to empowering families. Dive into the groundswell of positive feedback flooding in from staff and families regarding virtual visits. Realize the compelling need for specialists to craft personalized messages for optimal patient interaction. My special guest is Sarah Lanham Meet Sarah Lanham, a dedicated and passionate Certified Child Life Specialist revolutionizing the field with her innovative virtual services. She hails from Grand Rapids, Michigan, working at the renowned Helen DeVos Children's Hospital. Since stepping into the world of virtual patient care, Sarah has effectively transformed traditional face-to-face services, demonstrating the direct impact virtual child life services can have on kids and their families. Her work not only helps to demystify hospital visits for children but also significantly reduces their apprehension and fear. Her successful adaptation to a virtual setting underscores her skill in navigating the modern needs of child healthcare. The key moments in this episode are: 00:00:00 - Introduction, 00:02:07 - Transition into Virtual ChildLife Services, 00:06:30 - Daily Responsibilities, 00:09:09 - Challenges and Solutions, 00:12:19 - Impact and Feedback, 00:14:21 - Constant Communication and Handoffs, 00:14:57 - Need for More Child Life Specialists, 00:15:47 - Success of Email Communication, 00:16:51 - Technology's Impact on Appointment Reminders, 00:17:39 - Appreciation for the Guest's Work, Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

A mother fights against time and navigates the emotional rollercoaster of her daughter's lung transplant, as she strives to fulfill her promise while facing the heart-wrenching challenges of the organ transplant process in a race for survival. In this episode, you will be able to: Uncover the intricate realities of pediatric lung transplants and management of exceptional medical conditions. Relate to the heart-rending emotional challenges families wrestle with during the organ transplant procedure. Comprehend the physical restrictions imposed on children by pulmonary hypertension and PVOD. Appreciate the critical role of sturdy support networks and trusty medical personnel in the face of daunting health dilemmas. Spark dialogue about the pressing imperatives of greater recognition and resources needed by families dealing with severe health situations. My special guest is Jan Stepps Life sometimes throws curveballs that test our strength and resilience. As a parent who has navigated the complex journey of her child's lung transplant, Jan Stepps is a beacon of hope and strength for all families facing similar situations. Armed with personal experience and the lessons learned from her daughter's PVOD diagnosis and subsequent transplant, Jan generously shares her insights on the emotional highs and lows of this life-changing journey. Once an accomplished train dispatcher, she adeptly uses her situational management skills, providing clarity amidst the chaos that such overwhelming situations create. The key moments in this episode are: 00:00:00 - Introduction, 00:04:33 - Initial Symptoms and Diagnosis, 00:07:40 - Pulmonary Hypertension and Transplant, 00:10:57 - Emotional Response and Coping, 00:13:55 - Supportive Network, 00:15:39 - Dealing with Difficult Conversations, 00:16:20 - Telling an Eleven-Year-Old, 00:18:40 - Understanding PVOD, 00:20:15 - Overwhelmed by Transplant Process, 00:26:30 - Finding Support in a Transplant Community, 00:32:28 - "The Importance of Keeping Promises", 00:33:45 - "The Transformation After the Lung Transplant", 00:35:09 - "Handling Follow-up Visits and Appointments", 00:36:24 - "Personal Growth and Perspective Shift", 00:38:47 - "Humor and Healing", Connect with Jan Instagram Facebook Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

[ Child Life 101] How to Prepare Children for Medical Procedures Does this sound familiar? You try to prepare children for medical procedures, but no matter what you do, they still end up feeling stressed and anxious. You've been told to simply explain the procedure to them, but it's not working. The pain of seeing children scared and overwhelmed during medical experiences is heart-wrenching, and you're desperate to find a better way to help them feel informed and equipped. Watch This Episode On YouTube In this episode, you will be able to: Discover savvy ways to prepare children for complex medical procedures letting families breathe easy. Unearth potent strategies to mitigate infants' hospital-induced stress and provide aid. Learn game-changing techniques that turn medical acclimatization into child's play for toddlers. Master the art of using imagination and language as tranquilizing tools for preschoolers. Understand how to empower school-age children with the ability of choice during medical preparation. The key moments in this episode are: 00:00:00 - Introduction, 00:00:59 - The Role of ChildLife Specialists, 00:03:48 - Preparing Infants for Procedures, 00:07:50 - Preparing Toddlers and Preschoolers, 00:13:56 - Preparing School-Age Children, 00:16:27 - Importance of Peer Support for Teens, 00:17:15 - Maintaining Privacy and Independence for Teens, 00:17:52 - Recap of Stressors and Considerations for Different Age Groups, 00:18:30 - Conclusion and Invitation to Continue Child Life 101 Series, 00:19:00 - Wrap-Up and Closing Remarks, We want to make sure that they have accurate information. One of the things we can do with these preschoolers who use their beautiful imagination is really use that to our advantage when we are preparing them for something. - Katie Taylor Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

If you're feeling overwhelmed, frustrated, and powerless as you try to address your child's unresolved behavioral issues, only to see them persist and worsen, then you are not alone! Despite your best efforts, the actions you may already be taking, such as discipline strategies, counseling, or seeking help from professionals, may not be producing the desired results. Instead, you may be witnessing strained relationships within your family, academic struggles, social isolation, and a constant sense of stress and worry. Understanding the long-term effects of unresolved behavioral issues on individuals and families is crucial in order to find effective support and interventions for your child. In this episode, you will be able to: Unravel the secrets to overcoming behavioral dilemmas in parenting. Be immersed in the transformative world of neurofeedback therapy. Advocate for alternative healthcare treatments to disrupt the traditional landscape. Dive into how neurofeedback revolutionizes family dynamics. Grasp the lasting influence of unaddressed behavioral issues on family and personal life. My special guest is Dianne Kosto Our guest for this episode is Dianne Kosto, founder, and CEO of Symmetry Neuro-PT. A mother deserving the title on a mission, she has spent her life tirelessly looking for ways to help her son. Her dedication led her into unfamiliar territory: Neurofeedback. From holes in the walls to constant disruption at home and school, Dianne's quest for a solution kept taking her back to square one. That is, until she discovered neurofeedback. This unexpected journey allowed her son to thrive and inspired Dianne to shift gears professionally, creating a platform through which she could support other families. The key moments in this episode are: 00:00:00 - Introduction, 00:03:06 - Recognizing the Issue, 00:06:23 - Seeking Help, 00:07:27 - Neurofeedback Saves His Life, 00:09:19 - Coping and Emotional Impact, 00:14:22 - The Effectiveness of Neurofeedback, 00:15:07 - The Process of Neurofeedback, 00:16:12 - History and Research of Neurofeedback, 00:18:09 - Positive Results and Trust, 00:21:06 - Dianne's Personal Journey, 00:28:47 - Social Media Presence, 00:29:10 - Website and Resources, 00:29:39 - Interaction on Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Attention, parents! Have you ever come across these myths while seeking ways to support your child's emotional well-being during healthcare experiences? Myth #1: Children are too young to understand and process their emotions. Myth #2: Therapeutic play is just a form of entertainment, not a valuable tool for emotional support. Myth #3: Children will naturally bounce back emotionally after healthcare experiences. Well, today we have an expert guest, Laura Sufka, who will debunk these myths and shed light on the importance of therapeutic play in supporting children's emotional well-being. Get ready to discover the truth and equip yourself with the tools to help your child process their emotions effectively. In this episode, you will be able to: Absorb knowledge about the compelling benefits of therapeutic play in fostering children's emotional health. Differentiate between the often-confused arenas of play therapy and therapeutic play. Delve into Laura Sufka's impressive experience and skills in the realm of therapeutic play. Appreciate the subtle yet powerful language of play for children's emotional processing. Recognize the crucial work of Child Life specialists in providing psychological and emotional support to children during their healthcare journeys. Let's introduce Laura Sufka, certified Child Life Specialist and a staunch believer in the healing power of play. With more than 20 years serving children and families in the healthcare setting, Laura's approach to children's emotional well-being emphasizes the therapeutic power of undirected play. Her extensive experience across various healthcare environments shaped her holistic approach, continuously adapting and evolving to best serve children's needs. She is the proud founder and owner of Children's Coping Connection, her private practice. Here, Laura employs therapeutic play as a modality to help children process challenging life events, extending her expertise and support into the homes of those in need. Her work underlines her unwavering dedication to empowering children in healthcare settings. The key moments in this episode are: 00:00:00 - Introduction, 00:02:13 - Laura's Background, 00:08:11 - How Families Find Laura, 00:11:23 - Therapeutic Play, 00:14:19 - Goals of Therapeutic Play, 00:15:58 - The Importance of Play and Communication with Children, 00:17:29 - The Benefits of Therapeutic Play, 00:19:34 - The Power of Play in Processing Emotions, 00:20:03 - Getting Started with Therapeutic Play, 00:24:01 - The Importance of Play in Building Trust and Connection, 00:30:57 - Welcome and Introduction, 00:31:03 - Website Resources, 00:31:28 - Call to Action Connect with me here: https://www.linkedin.com/kfdonovan http://www.instagram.com/childlifeoncall http://www.childlifeoncall.com https://www.facebook.com/childlifeoncall https://www.youtube.com/childlifeoncall

If you're feeling overwhelmed and powerless as you watch your teenager's health concerns worsen, despite your efforts to find solutions, then you are not alone! In this episode, you will be able to: Discover why your innate parental instincts can serve as an invaluable guide for your child's health concerns. Unlock the importance of open and constant communication in discerning your child's wellbeing. Recognize how seeking advice from health professionals can be a game-changer when in doubt. Appreciate the immeasurable power of your intuition in pinpointing potential mental health issues in your child. Realize why keeping a record of your child's behavior or appearance fluctuations can significantly aid medical professionals. In a world where unexpected twists can alter the course of our lives, Hina Talib's journey into adolescent medicine was nothing short of serendipitous. Little did she know that a chance encounter during a medical school rotation would ignite a passion so fierce, so resolute, that it would shape her life's work. But what was it about this field that captivated her? What secrets did she uncover that could forever change the lives of parents with health concerns for their teenagers? Brace yourselves, for within this transcript lies an unexpected twist that will leave you yearning for more. The key moments in this episode are: 00:00:00 - Introduction, 00:02:10 - Empowering Parents in Adolescent Medicine, 00:06:03 - Reframing Adolescence, 00:08:49 - Labels and Advocacy, 00:11:14 - Transitioning to Self-Advocacy, 00:14:18 - Importance of Medical History for Children, 00:15:06 - Transitioning to Independent Medical Management, 00:16:34 - Navigating Complex Medical Conditions in Adolescence, 00:20:13 - Positive Reinforcement and Regular Check-ins, 00:23:14 - Risks and Challenges in Post-Pandemic Socialization, 00:28:34 - Checking in with Your Young Person, 00:29:23 - Trust Your Gut, 00:30:40 - Don't Wait to Take Action, 00:31:41 - Asking for Help is a Sign of Strength, 00:32:26 - Connect with Dr. Hina Talib, The resources mentioned in this episode are: Follow Dr. Hina Talib on Instagram as @TeenHealthDoc for thought-provoking and educational content on adolescent medicine. Check out the Child Life On Call app, a resource for parents with children who have medical experiences, diagnoses, or diseases. Explore Hello Sleuth, a startup in New York City that puts parents and teens at the center of adolescent medicine. Remember that words matter when communicating with teens and their parents. Avoid labeling and use empowering language when discussing medical conditions. Encourage teens to advocate for themselves by asking questions, seeking information from healthcare professionals, and taking an active role in their own healthcare decisions. Familiarize yourself with the field of transition medicine, which helps guide adolescents in becoming their own chief medical officers and transitioning from parental healthcare management. Start the transition process early, with milestones such as private, confidential time with the teen, encouraging them to ask questions, and involving them in their own healthcare decisions. Create opportunities for one-on-one conversations with adolescents to ensure their voices are heard and their questions are addressed. Be mindful of the timing when assigning medical care tasks to adolescents with chronic conditions, avoiding overwhelming them during times of flare-ups

Empowering NICU Parents: Kimberly Reyes Shares Her Advocacy Journey If you're feeling helpless and overwhelmed in your NICU journey, despite trying to be involved and advocate for your baby, then you are not alone! It can be frustrating when your requests and concerns are not heard or acted upon by healthcare providers, and you may feel like you have no control over your baby's care. You may be spending countless hours researching and asking questions, but still feel like you're not making progress. It's important to know that your feelings are valid and that there are ways to increase your involvement and advocacy in your baby's care. In this episode, you will be able to: Unravel the art of parental advocacy and participation in a NICU setting. Probe into the emotional and psychological toll of having a child with complex medical needs. Discern the value of empathy in delivering exceptional patient-oriented healthcare. Understand the importance of flexibility and adaptability in the practices of healthcare professionals. Unearth innovative techniques to combat burnout and prioritize self-care among healthcare workers. My special guest today is Kimberly Reyes. We are excited to introduce Kimberly Reyes, a compassionate mother who channeled her own NICU journey into a mission to inspire and educate other parents. With a background in teaching that spans 15 years, Kimberly has a natural ability to connect with others and share her story in an impactful way. Facing the challenges of having a premature baby during the global Covid-19 pandemic, she has become a resilient advocate for parental involvement in the NICU. Kimberly's firsthand experience of fighting for her child's care and advocating for her family has made her story both relatable and inspiring for other NICU parents. The key moments in this episode are: 00:00:02 - Introduction, 00:02:42 - Pregnancy Journey, 00:06:55 - NICU Journey, 00:10:43 - Advocating for Yourself and Your Child, 00:14:46 - Conclusion, 00:16:17 - The Importance of Humanity in Medical Care, 00:21:23 - Recognizing Grief in Medical Settings, 00:25:00 - Finding Community and Support in Medical Settings, 00:29:32 - The All the Unexpected Hub, 00:33:23 - Importance of Advocacy, 00:33:53 - Changing World Views, 00:34:07 - Gratitude Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Do you want to feel empowered and confident in advocating for your child's healthcare needs? Are you searching for a solution that will help you effectively speak up for your child in healthcare settings? In this episode, I will be sharing the key to unlocking your advocacy potential, enabling you to achieve the outcome you desire - ensuring the best possible care for your child. By exploring the role of child life specialists, together we will explore how child life provides you with the knowledge and tools necessary to become a formidable advocate. Say goodbye to feeling overwhelmed and uncertain, and hello to being a strong and effective voice for your child's healthcare needs. They show you how to understand your child's needs and empower you to advocate for their wellbeing. In this episode, you will be able to: Understand why parental advocacy is essential to getting the best possible health outcome for the child Learn how child life specialists use their skills to help parents learn how to advocate Be aware of the challenges of advocating in healthcare and how child life supports parents during those times. The key moments in this episode are: 00:00:21 - Introduction, 00:01:11 - The Importance of Parent Advocacy, 00:03:10 - Research on Caregiver Advocacy, 00:04:22 - Teaching Parents How to Advocate, 00:07:28 - Overcoming Challenges of Advocacy Resources mentioned in this episode: Visit Child Life On Call's website at childlifeoncall.com/parents to access more information and free resources to help support your child's unique needs. Tune in to the Child Life On Call podcast every Wednesday to hear parent stories and gain insights from those who have gone through similar experiences. Explore the different episodes of Child Life On Call 101, where we cover various topics related to child life specialist practices, to learn more about how you can implement these tools and tips into your family life or professional work. Sign up for updates and newsletters from Child Life On Call to stay informed about new resources, events, and opportunities to further support your child's healthcare journey. Take advantage of the educational and emotional support provided by Child Life On Call specialists to help you navigate the hospital system and effectively advocate for your child's needs. Share your journey and experiences as a parent on the Child Life On Call podcast to support and inspire others going through similar situations. Connect with the Child Life On Call community through social media platforms to engage with other parents and caregivers who are also navigating the healthcare system and advocating for their children. Consider becoming a member of Child Life On Call to Every family deserves a child life specialist. ________________________________________ Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field. She is an accomplished author, an engaging speaker on child life and entrepreneurship, and the host of the Child Life On Call Podcast. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Today's guest on the podcast is Dr. Barbara Hecht, National Director of Strategic Initiatives and Partnerships at Clarke Schools for Hearing and Speech. She shares with us how to support Deaf, Deaf +, and Hard of Hearing students. Dr. Hecht shares about early intervention, brings awareness to CMV (cytomegalovirus), and how telehealth has positively impacted students. Katie and Dr. Hecht have such an important conversation you will not want to miss on today's episode of the podcast! [2:20] Dr. Hecht introduces herself [3:40] Being involved with the IDEA law [5:42] How she became involved with Clarke Schools [10:00] Diagnosing hearing loss in infancy [12:40] Two major causes of hearing loss [13:16] Cytomegaolvirus (CMV) during pregnancy [15:12] Importance of early intervention [17:50] Early Intervention is available in every state [18:39] Pleasantly persistent parent [20:00] Acess to Clarke Schools [21:36] Efficiency of teleservices [24:33] How Clarke Schools support families [26:45] Explaining Deaf + [28:40] Integrating a tool for everyone [31:00} Normalization n the atypical Connect with Clarke Schools Clarke Schools Wesbite Instagram Twitter Facebook LinkedIn When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot Website Download SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the SupportSpot app's comprehensive resources and user-friendly interface. 92% of parent users say the SupportSpot app's helped them understand medical procedures and treatment better. 80% of parents believe the SupportSpot app's has contributed to better health outcomes for their child. 73% of parent users believe the SupportSpot app's has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Going to the emergency room with your child for any reason is never an occasion you plan on. Today, Sam Kraewic and Jessica Baird, Child Life Specialists working in the Emergency Room empower and equip us on how to be the best advocates when it comes to the Emergency Room. From medical play to normalizing the hospital at home there are many ways parents can plan for the unexpcted. Katie, Jessic and Sam have great conversation surrounding Child LIfe in the Emergency Room. [3:30] Introductions [3:46] Meet, Jessica [4:40] Meet, Sam [6:25] Swabs in the emergency room [8:15] Medical play for swabs [10:00] Letting parents know they have a voice [12:00] Comfort items in the waiting room [13:34] Triage can be stressful [14:50] Talking to your child about what you might see [15:19] Don't make promises they can't keep [18:17] Familiarizing home and hospital [20:20] Children feed off our emotions [22:22] Stepping away is ok [23:10] Mental Health in the Emergency Room [25:50] Therapeutic games addressing emotions [27:00] First trusted contact Connect with Jessica and Sam Jessica Sam Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

"What we can do as parents and professionals is look past the behavior." Helping Hands: Resources for Parents Supporting Siblings in Healthcare Situations I remember the first time I saw the impact of a sibling's illness on a family. It was heart-wrenching to watch as the older sibling hesitantly chose a toy to play with in the hospital playroom. As a Child Life On Call specialist, I've learned valuable strategies to support siblings in healthcare situations. But what surprised me was the positive transformation that happened when we involved siblings every step of the way. By providing age-appropriate information and emotional support, we strengthened bonds and alleviated misunderstandings. The unexpected twist? Seeing the siblings become stronger together. Now, as I continue to support families, I'm reminded of the remarkable resilience of siblings. And I can't wait to see where their journey takes them next. In this episode, you will be able to: Discover effective ways to support siblings during healthcare situations. Learn how to provide accurate and helpful information to siblings in a way that is easy to understand. Unlock the secrets to fostering better communication between family members. Gain insights into addressing the emotional needs of siblings in difficult times. Explore techniques for normalizing the hospital experience to lessen sibling anxiety. The key moments in this episode are: 00:00:21 - Introduction, 00:01:58 - Communication with Siblings, 00:06:02 - Emotional Needs of Siblings, 00:09:33 - Normalize the Experience for Siblings, 00:11:12 - Conclusion, Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Dr. Maureen Michele brings such a valuable perspective to the podcast with her experience being a pediatrician and mother to a medically complex child. Maureen shares with us how to become an advocate and what inspired her to write a book called, 'Reclaiming your Life.' Her book is meant to guide parents who have a child with a medical diagnosis. Maureen shares a snapshot of her book through a thoughtful conversation with Katie. [4:00] Introductions [6;00] Motherhood and Medical School [7:02] Learning her daughter had neuroblastoma as an infant [8:00] Her daughter shared concerns about frequent urination [8:42] Learning she had type 1 Diabetes [10:00] How it changed her as a physician [12:21] Realizing what was unhealthy [14:50] Losing herself in the process and worry [16:00] Doctors are human too [17:30] Trust but verify [18:16] Collaboration between parents and doctors [19:30] Approaching the situation with a spirit of collaboration [24:16] Reflecting on her daughter's care [25:30] Wanting to be a mom, not a doctor [28:52] '"Reclaiming Life" book Connect with Maureen Website Facebook Instagram Twitter LinkedIn Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here.

So happy to share this "child life insight" with parents and professionals, but first let's answer the question: What are child life specialists? Child life specialists are trained professionals who provide emotional support and guidance to children and families facing challenging life experiences. They are experts in helping children cope with difficult topics and ensure that children's development is as smooth as possible while going through challenging times. In this episode, we talk about how caregivers navigate difficult conversations: Here's a break down of what we cover: First, take time to explore your own emotions around the information. Talk to your child about the situation in a way they can understand. Validate your child's emotions. Create a safe environment for your child to express their emotions. Encourage your child to name trusted adults and explore coping strategies. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Dr. Korie Leigh is our guest today on the podcast, sharing with our listeners what grief feels like. Dr. Leigh is a Child Life Specialist, Thanatologist, Associate Professor, and most recently a Children's Book Author. Katie and Dr. Leigh have an essential conversation surrounding grief and what it feels like and how her new book, "What does grief feel like?" can guide parents and professionals to navigate the questions that come with talking about grief with children. [3:55] Dr. Leigh introduces herself [5:00] Sharing her why [6:24] Growth in grief [7:49] Dr. Leigh's new book launched [9:33] Helping children navigating grief [11:02] Reflecting on the grief process [12:47] Conversations about grief take place over time [13:42] How grief is felt in the body [15:51] Asking for feedback and input to expose pre-teens and teens [17:43] Dr. Leigh's new book Connect with Korie Bookshop link: https://bookshop.org/a/85078/9781631987069 Publisher link -the 20% off code is A23LEIGH https://www.teachercreatedmaterials.com/free-spirit-publishing/p/what-does-grief-feel-like/899857/ Amazon link https://www.amazon.com/What-Does-Grief-Feel-Like/dp/1631987062 My website: www.korieleighphd.com Instagram: https://www.instagram.com/drkorieleigh/ Tiktok: https://www.tiktok.com/@drkorieleigh Twitter: https://twitter.com/drkorieleigh Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode of the podcast, Katie interviews Rylee Neal who decided to become a Child Life Specialist from her past experiences being hospitalized with a heart condition called tetralogy of fallot. An experience with a Child Life Specialist during one of her hospital stays lead her to pursue the field of Child Life. Katie and Rylee have some great conversation about scars, our feelings and how as Child Life Specialists or parents we constantly are looking to better ourselves. You will leave this episode with a heartfelt perspective from Rylee as she shares pieces of her journey as patient and clinician. [3:23] Rylee introduces herself [4:41] First memory of her diagnosis [5:45] Realizing her diagnosis was serious at age 13 [6:45] Aversion to medical care [8:01] Reading consent forms at a young age [10:00] How preparing ahead would have helped Rylee [12:07] Wanting to know more the Child Life Specialist who helped her [14:30] How she fell in love with the Child Life field [16:50] How her parents get sappy hearing about her work [19:00] Rylee shares about her scars [21:18] Kids say what they feel [22:26] Being able to relate with the children [24:07] Not letting worse case scenarios creep into personal thoughts [26:33] Feeling your feelings and decompressing [28:42] Continual betterment [30:35] Creating a virtual diversion wall [33:01] Getting patients out of bed Connect with Rylee by sending her a message here! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie along with co-host Mijha from Jambo books interview Dr. Kate Lund, TedEx speaker, clinical psychologist and hydrocephalus warrior. She brings an incredibly important perspective as provider, patient and parent. Dr. Lund shares with us how the support she received throughout her childhood had a positive impact on her life and journey with hydrocephalus. From her wise words and experiences, you will leave this episode feeling empowered with actionable things you can do today. This message is so inspiring. [4:00] Mihja shares about her daughter [5:44] Dr. Kate introduces her self [8:05] Wally, the Facility Dog [9:36] Discussing support she received as a child [11:24] Working hard put her ahead of the game [13:00] Focusing on what you can do [14:19] Diagnosed with hydrocephalus when she was 4 [15:53] Finding out she had 2 different kinds of tumors [17:15] A Child Life Specialist became her friend during a hospitalization [20:50] Katie shares how it is a choice who is in your room [23:12] Modeling interactions for our children [25:54] Understanding and appreciating differences [27:46] The stakes are high with parenting [29:19] Be open to connecting with your child's experiences [31:25] Watching your child's passions emerge [34:30] Helping your children find their happy place [35:50] Communicating your child's needs [38:24] Finding her voice [40:00] Sitting with you reality Connect with Dr. Lund Website Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

[Child Life 101] How to Support Kids in Pain As a child life specialist, I know that pain can significantly impact children. It can affect them physically, emotionally, socially, and cognitively. Research has shown that uncontrolled pain can lead to long-term effects such as stress, anxiety, and depression, as well as changes in brain function and delayed recovery. Helping children cope with pain can be particularly challenging as they may not be able to articulate what they're feeling or understand what's happening to them. That's where child life specialists come in. What we cover in this episode: Pain can have a significant impact on children, both physically and emotionally. Child life specialists play an essential role in assessing kids in pain and determining what they need to feel better. Child life specialists use a combination of observation, conversation, and other techniques to understand a child's pain experience. Child life specialists work closely with healthcare providers and other professionals to ensure that children's pain is being managed effectively. By providing a supportive and compassionate presence, child life specialists help children and families navigate the often-challenging world of healthcare with greater ease and confidence. By the way, my favorite resources for anything pain related are over at Meg Foundation for Pain. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

On today's episode of the podcast, Katie interviews Courtney Morey, Mother to Annie who was diagnosed with Trisomy 21, AVSD and Pulmonary Hypertension. Katie and Courtney have such great dialogue and raw conversation in this episode. Courtney shares the positive impacts on her marriage and the questions that arise when receiving a life altering diagnosis. Sharing about her journey of self discovery along the way and how it has changed her view on life, this episode will leave you feeling validated and inspired by Courtney's strength. [4:00] Introducing her family [6:00] Receiving a life changing phone call [8:24] Misconceptions about Trisomy 21 [8:59] Spencer having experience working with children who had Trisomy 21 [10:20] Learning Annie had AVSD [12:00] Being asked if you are a medical professional [12:50] Coping by learning about Annie's diagnosis's [15:25] Learning how to ask the right questions [16:55] Annie's birth [18:40] Annie's first heart surgery at 4 months old [20:40] Refusing to google and reaching out to other parents [22:04] Friendships carried her through difficult times [23:03] Annie coded post surgery [23:35] Starting ECMO [26:20] Caring for Annie while on ECMO [28:42] Pulling them closer together [30:30] Sharing updates about Annie's health helped her have a better grasp on the situation [30:04] How Annie's story impacted other people's lives through social media [32:49] Self care in the hard moments [35:34] Speaking up about the language we use [37:41] Giving feedback that is humbling and gracious [40:08] Receiving feedback from parents [42:00] Wrestling with the why [45:40] Meaning in being Annie's Mother [47:12] Starting a foundation Annie's honor [48:20] Resource hub to help families [50:10] Singing more alike than different [52:31] Annie's perspective keeps things real Connect with Courtney Instagram Shop for Spoonie Threads here! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here

Today in [Child Life 101] we are answering the question we get ALL THE TIME: WHAT IS CHILD LIFE?! You've asked and now we're answering. Did you know that SO many of the parents on our podcast haven't ever even met a child life specialist before our interview?! Our goal during this series is to help people understand what child life is all about by getting rid of any misunderstandings or roadblocks. What do child life specialists do? Why is play an essential component of child life services? Family Centered Care and Child Life Services How do you become a Child Life Specialist? Where do child life specialists work? Why Should Hospitals invest in Child Life Services? Challenges and Barriers in the Field Wrapping it Up Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

On this week's episode, Katie and Co-Host Serheen Noor Ali from Hello Sleuth interview Dr. Kelly Fradin about building trusted relationships with your child's pediatrician. Dr. Fradin shines a light on parent and patient experiences through being a physician in public health and in private practice. She touches on ways to have productive conversations with your child's pediatrician to create a lasting and effective relationship. [4:00] Introductions [6:45] Barriers her patients were experiencing [9:00] Information to create independence and confidence [9:24] Reading your audience as a Pediatrician [11:00] Dr. Fradin's book on Advanced Parenting [13:00] Choosing a Pediatrician [14:54] Finding a new Pediatrician first [16:41] Who to share feedback with [18:36] Finding different Pediatricians for different age groups [20:04] Listening to your adolescent about doctor preferences [22:30] Atria Institue [25:30] The power parents have [27:30] Developmental screenings from the pediatrician's office [31:06] Judgement free zone [32:00] Preparation tools [34:32] Preparing for lab draws [37:38] The positive difference that Child Life makes [39:10] Making a plan Connect with Dr. Kelly Fradin Website Instagram Order Dr. Fradin's book HERE Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here

I'm SO excited to share a new podcast series we are starting at Child Life On Call! [You can watch this via a screencast on YouTube here] Child Life 101 is a new 10-week podcast series dedicated to all things related to all things child life specialists and the important role they play in the lives of children and families. This series was born from some of the questions I've gotten over the past 6 (almost 7!) years that we've been producing Child Life On Call. Each week we will cover a new topic: Child Life 101: What is Child Life Child Life 101: Kids in Pain and Procedure Support Child Life 101: Difficult Conversations with Kids Child Life 101: Preparing Kids for Procedures Child Life 101: Empowering Parents Child Life 101: Digital Resources in Hospitals Child Life 101: Child Life Entrepreneurship & Private Practice Child Life 101: Family-Centered Care Child Life 101: Child Life Tips Child Life 101: How to Support Child Life Programs I promise to keep it awkward (like always) and fumble over my words in the most Katie-way possible. Join us as we explore topics such as pain management, coping strategies, therapeutic play, and much more. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Follow us on Instagram Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect

Today we have another Dad on the podcast. Katie interviews Oliver Bernier, father of Emilio and filmmaker, about his son's unexpected diagnosis of down syndrome. You will learn what inspired Oliver to create a film to educate and empower parents of children with Down syndrome how to navigate the school system and be the best advocate for their child. Oliver's passion to educate parents about the importance of inclusivity will shine through as he shares an inspiring message. [3:45] Introductions [5:10] Forever connection to New York [6:22] Filming the moments [7:12] Misconceptions about Down syndrome [9:28] Giving Emilio the world [10:22] Building the bridge to understanding living with disabilities [12:17] An atmosphere of acceptance [15:01] Putting a dent the world to raise awareness [17:20] Sharing other families stories on the film, giving him hope [19:28] Living in the moment [21:34] Universal design for learning [23:18] Empathy taught by practice [24:53] All parents advocating to be in classes with differently abled child [26:45] NICU is a mirror of an inclusive classroom Connect with Oliver Forget Me Not Documentary Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie and Cortney Given, host of the Mindset for Medical Moms Podcast, interview Leah Ward about her son Jackson and his journey with Hypoplastic Left Heart Syndrome (HLHS.) Leah shares the ups and downs of being a heart mom. Jackson received the gift of life through a Heart Transplant after he went into heart failure and was placed on the Berlin Heart for several months. Leah and Cortney's conversation (Cortney is a heart Mom too!) with Katie will leave you feeling inspired to live in each moment. You will not want to miss this episode of the podcast. [6:50] Introductions [8:40] 20 week ultrasound and subsequent echocardiograms [9:57] The unimaginable grief of losing her older son months ago [11:29] First surgery at 4 days old [12:05] After Fontan surgery, Jackson developed a lung condition [12:50] Rhinovirus caused Jackson to go into heart failure [13:32] Jackson was put on a Berlin heart [14:00] 15 month hospital stay [15:14] Explaining to Jackson about his heart transplant [16:00] Jackson's will to fight [17:45] A sequence to to build up to the question [19:00] Accepting reality that all life will end [20:27] Advances in the medical field with the best quality of life [22:11] How Leah supported Mae [24:35] Grappling with the concept of finality [27:14] Staying in the present [29:35] It's ok to grieve the dreams you had for your children [31:28] Letting yourself feel the feelings [35:15] Taking things day by day [36:31] Someone has lived through my worst fear [38:30] You have be stronger than the diagnosis [40:15] Advocate for your child [43:00] Not having an end date [48:33] Simple moments with family Connect with Leah Connect with Cortney Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On today's episode of the podcast, Katie interviews Lo Nigorish, certified IBCLC Lactation Consultant and Host of The Milk Making Minutes Podcast. Whether your journey consisted of breastfeeding or not she shares how lactation consultants can assist with feeding the NICU and beyond. Lo shares her heart and mission behind supporting families. Whether you are a parent of a baby in the NICU or a clinician, you will not want to miss this episode. [4:21] Introductions [6:05] Parents are experts [7:04] Perceptions of what a lactation specialist is and does [8:38] Listening is so important [10:45] Helping families feel heard and supported [13:00] Focusing on what you can do in those moments [14:12] Bottle feeding support [17:20] It's ok to say no [18:50] The evolution of breast feeding [20:47] Congenital Heart Defect Mama's breast feeding journey [22:32] Support is key [23:09] Reframing your mind and not comparing your journey during [24:00] How Chelsea's Story inspired Lo to connect with Child Life Specialists [25:00 ] Assessing needs as a clinician prior to seeing the parent [26:00] Creating an inclusive community [28:00] Judgement free support zone Connect with Lo Instagram Quabbin Birth Services The Milk MakIng Minutes Podcast Link to Show ' Letting go of Breastfeeding Comparisons' episode with Chelsea Bea Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie, along with co-host Serheen Noor-Ali from Hello Sleuth interview Kelsey Ward, mom to Scarlett who was diagnosed with gastroparesis and hereditary spherocytosis as an infant. Kelsey shares the ups and downs of what it means to be a medical mom and how Scarlett's diagnosis strengthened her marriage. Body confidence is something near to Kelsey's heart. She shares about how she empowers Scarlett to be proud of her g-tube and scars. This episode is packed with great dialogue and you will get at insight from both Kelsey and Serheen on navigating medical parenthood. [3:40] Kelsey introduces herself and her family [4:04] Finding out she had a blood disorder [4:31] Scarlett was losing weight at 2 months old [6:10] Gastric emptying scan revealed answers [6:56] G-tube placement [7:29] G-J tube placement [7:57] Pyloroplasty surgery success [9:27] Behind on developmental milestones [11:24] Connecting with parents on social media [12:20] Feeding Therapy 101 [13:21] Swallowing vs Textural [15:10] Sibling bond and integration [16:00] Balancing information sharing with her siblings [17:26] Medical supplies and home integration [18:46] Finding your family's new normal [21:09] Post discharge to do lists [21:39] Post g-tube replacement [22:58] Hospital shower woes [24:55] Prioritizing yourself [26:02] Celebrating everything [27:46] Perspective on body image [29:12] Lack of accessibility [31:00] Everybody is different [33:12] Sharing about [34:13] Do what works for your family [36:12] Social Media boundaries Connect with Kelsey Instagram TikTok Link to Present not Perfect's store front here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

April is Child Abuse awareness month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today's guest expert is my mother, Jane Donovan, who is a child abuse advocate. She is here to provide tangible ways to make this concept less scary and to empower kids and parents. We want to leave you feeling confident about how to teach kids about child abuse. In this episode, we talk about… [3:50] Jane's background and her passion for advocacy [8:48] Using puppets to talk to kids about child abuse [15:04] Good touches versus confusing touches [15:54] Empowering children to tell an adult about abuse [17:31] Respecting personal space [21:08] Feedback about the puppet program [22:35] Reporting child abuse [25:42] Engaging in conversations with kids about child abuse [31:06] A safety sheet to create with your children Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Katie interviews Emma Springer, mother to Sage who was born with Trisomy 18. Emma shares her journey to parenthood and how they learned of Sage's diagnosis. Prior to Sage being born, Emma was a pediatric nurse. Emma shares the struggles she went through in Sage's first few months to find care options. She opens up about how being on social media can be so empowering but also shares some of the challenges go along with it. Through Emma, you will get to know the joy that Sage carries with her each and every day. Katie dedicates this episode to her dear friend Anna and family who lost baby Jack to Trisomy 18. [5:50] Introductions [7:12] Meeting her husband at College [7:41] Enrolled in nursing school [9:08] Opting out of first trimester screening [9:51] Navigating Covid in early pregnancy [10:27] Two blood vessel cord and cysts on the brain at 20 week ultrasound [11:45] The combination of symptoms were concerning [12:54] Blood test results coming back with high probability of Trisomy 18 [14:57] Being alone for the appointments was very isolating [16:24] First time being a patient [18:16] Getting the call about the diagnosis just before an echocardiogram for baby Sage [22:00] Learning about Trisomy 18 during clinical rotations [25:00] Telling her family about the diagnosis [27:11] Cardiac interventions [29:58] Hope for the future [31:29] Respiratory support changed her life [34:20] Finding things in common with other families [37:29] Connecting with other parents changed the trajectory of their course [39:56] Social media causing fast movement with advancements for treatment [41:30] Recognizing your boundaries [46:00] Sage loves being around people [49:30] Hospitalizations [51:20] Growing advocacy skills [52:48] Compartmentalizing emotions [55:11] Looking behind the curtain isn't always pretty [57:45] Springer Family Foundation Resources Connect with Emma Instagram Springer Family Foundation Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

On todays episode of the podcast, Katie along with co-host Mijha Godfrey from Jambo Books, interview Kayla Gunderson, who's daughter was diagnosed with Ollier's disease. You will get to hear how Kayla navigated her daughter's diagnosis just weeks after giving birth to her son and her valuable perspective as a nurse and former Child Life Specialist. We talk about navigating grief, the support of her spouse and loved ones and what Claire has taught Kayla along this journey. [4:47] Mijha shares about Jambo books [7:00] Kayla introduces herself [9:40] Small bumps on her daughter's finger [10:27] Full body rash from amoxicillin reaction [12;23] Playing phone tag with the doctor [12:44] Mention of Ollier's Disease [15:29] Emotions run high after receiving a diagnosis of Ollier's disease [16:50] Blaming yourself [19:12] Understanding Ollier's disease [20:40] Expressing her feelings at her postpartum appointment [22:17] Ollier's is a rare disease [23:18] The delivery of information can make or break you [24:07] Mijha shares how she learned of her daughter's condition [26:00] X-rays revealed she had endchondromas in her hands and feet [27:59] The grief process [29:41] Supporting those walking down the same road by sharing Claire's story [31:06] Being grateful for the timing of the diagnosis to be together as a family [31:50] The support of family [33:25] Genetics appointments and advocating for an earlier time [34:22] Relationships and connections are important [35:35] Understanding her own fragility [37:00] Giving others the avenue to support you [39:38] Coming to terms with the birth of her last baby [41:10] Motivation and inspiration [42:30] Listening to podcasts is healing Connect with Kayla Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.