Inside the Children's Hospital

"We, we weren't letting those people push us around because, believe it or not, living with us 24 hours a day, we knew more than some of the doctors." - Skip Vilas In this heartfelt episode of the Child Life On Call podcast, host and CCLS Katie Taylor interviews Deb Vilas, an expert child life specialist, alongside her parents, Skip and Joyce Vilas. They share their story spanning over 60 years, recounting the challenges and triumphs of raising Deb, who was born with ichthyosis, a rare skin condition. The episode dives deep into the emotional and medical journey of Deb's early years, the evolution of parental advocacy, and the power of family and community support in navigating the complexities of pediatric healthcare. Takeaways from Skip and Joyce: The Power of Advocacy: Joyce and Skip's relentless advocacy for Deb's health and well-being, challenging medical professionals when necessary. Importance of Parental Presence: The emotional and developmental impact of parental presence and touch, even in limited hospital circumstances. Resilience and Adaptation: Deb's strength and resilience in the face of social challenges and medical hurdles. Evolution of Pediatric Care: A reflection on how pediatric care has evolved, highlighting the necessity of family-centered approaches. "The advocacy role is important. And of course, that's one of the roles that Child Life has for children." - Skip Vilas Resources and Tips: Foundation for Ichthyosis and Related Skin Types (FIRST): Provides support and resources for families dealing with ichthyosis. Learn more National Conferences by FIRST: Opportunities for families to connect and share experiences. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Today's guest is Taylor Happley, a mom of a child with CHARGE syndrome. "We need to figure out why and how to help these kids get the medical attention that they need." In today's episode, Katie Taylor had an important conversation with Taylor Happley, whose son has CHARGE syndrome. Taylor's prenatal journey was filled with miscommunication and emotional challenges. Taylor's story of learning about her son's diagnosis of CHARGE Syndrome in less-than-ideal circumstances underscores the need for healthcare professionals to provide information in ways that are both sensitive and supportive. This conversation shines a light on the crucial role of empathy and effective communication in pediatric healthcare. Taylor also acts as a powerful reminder of the resilience of families navigating complex medical conditions. "There's power in sharing stories, and that power multiplies when you can listen to other parents who have walked a similar path to yours." What you can learn from this episode: Communication is Key: Healthcare providers must deliver information compassionately to support families effectively during challenging times. Parent Advocacy: Taylor's story highlights the importance of parental advocacy in navigating the complexities of a child's medical condition. Importance of Support Networks: Connecting with other parents and finding community support can be crucial for managing the emotional toll of a child's diagnosis. Learning through Experience: Families often develop a deep understanding of their child's condition, which can empower them to advocate effectively within the healthcare system. Resilience and Hope: Despite the challenges, there is a powerful narrative of resilience and hope that can inspire other families in similar situations. Resources and Tips: CHARGE Syndrome Foundation: Provides invaluable resources for families and professionals CHARGE Syndrome Foundation Support Group on Facebook Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe during Medical Procedures Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Today's guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks." In today's episode Katie Taylor had the chance to speak with Erin Prosser, an IEP expert consultant and a mom navigating the complex world of pediatric healthcare due to her daughter Lucy's rare neurodevelopmental disorder. Erin shares her profound journey from a second-time, confident mom to a whole new role as a crucial advocate for her daughter's specialized needs. The challenges and triumphs of parenting Lucy led Erin to a new career path helping other parents ensure necessary services and support for their children. This episode dives deep into the realities and emotional challenges of parenting a child with significant medical needs, including the strategies Erin has employed to ensure her daughter receives the best possible care and education through effective IEP management. "I think the best kinds of experts are those who have walked the path themselves. The best teachers are the ones who have been students and have had to have a process and said, this can be better and I want to fill it." Key Insights and Lessons: Early Identification and Advocacy: The importance of recognizing symptoms early, advocating for proper diagnosis, and persistently seeking appropriate treatments. Navigating IEPs and Special Education: Listeners gain an in-depth look at navigating Individualized Education Programs (IEPs), where Erin uses her personal and professional experiences to help other parents secure necessary services and support for their children. Community and Support Systems: The crucial role of community support and early intervention therapies in managing children's condition and the value of connecting with other families facing similar challenges. Mental Health and Coping Strategies: The significance of mental health for parents in similar situations is underscored, with therapy and community support as coping tools. Resources and Tips: IEP coaching for rare disease families Ketogenic Diet for Epilepsy Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Listen to another episode of the Child Life On Call Podcast discussing rare diseases here. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

April is Child Abuse Prevention Awareness Month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today's guest expert is Jane Donovan, who is a child abuse prevention advocate. "And like we say in child life, you have to prepare. So you know what to expect and you know how to cope with what's going to happen next." - Katie Taylor, CLOC In this crucial episode, Katie Taylor is joined by a child abuse prevention advocate, Jane Donovan, to delve into the sensitive and vital topic of child protection within the healthcare system. The discussion focuses on how child life specialists can play a crucial role in identifying and responding to signs of abuse in children. Through detailed education on proper documentation, response strategies, and the importance of preparation, this episode provides essential insights for any adult from child life specialists to parents, underscoring the role of education in prevention and the duty to teach children how to keep their bodies safe. Key Insights and Lessons: Importance of Proper Documentation: Understanding how accurate and detailed documentation can aid in protecting children and supporting further investigations. Recognizing Signs and Symptoms: Learning the subtle signs and symptoms of abuse to ensure early intervention and support for the affected children. Educational Role of Child Life Specialists: How child life specialists can educate and prepare themselves to better support children who may disclose abuse. Empowering Children: Strategies for teaching children about body safety and self-protection in a manner that is appropriate and empowering. Resources and Tips: Kids Count Players Safety Sheet for Parents and Caregivers Kids Count Safety Sheet for Kids Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

"I've learned so much in this whole process. It's like you have a depth inside of you that resurrects as an advocate and high alert, and it lives inside of you when you need it." -Aspen, Willa's Mom In this episode of Child Life On Call, host Katie Taylor and guest Aspen share an intense and educational journey through pediatric appendicitis. Aspen recounts her daughter Willa's sudden illness, misdiagnosis, and the emotional rollercoaster of a ruptured appendix leading to urgent surgery. This story not only highlights the challenges and nuances of navigating pediatric healthcare, but also underscores the importance of parental intuition and the vital role of child life specialists in supporting both children and their families during medical crises. Katie and Aspen dive into topics such as parental intuition, medical advocacy, and the impact child life can make. Aspen's experience stresses the importance of trusting your parental instincts when you feel the medical assessments are overlooking the correct diagnosis. The conversation also discusses the significant positive impact of child life specialists in managing a child's anxiety and discomfort through creative and empathetic interventions, as well as the emotional toll on parents and the necessity of finding support during a child's medical emergency. "I wish I would have pressed harder to say, let's just do a scan. What's the worst thing that's gonna happen? Aspen, Willa's Mom The resources mentioned in this episode are: Child Life On Call: Access comprehensive guides and support for parents and healthcare providers on Child Life On Call. Hospital Playrooms: The therapeutic benefits of play, the use of hospital playrooms to aid recovery and normalcy for hospitalized children. Read more about creating a comfortable and child-friendly environment in medical facilities here Preparation Books: The importance of specialized books for children undergoing medical procedures to help them understand and cope with their experiences. Engage with us on Instagram @ChildLifeOnCall for more stories from parents and practical tips. Check out our Amazon storefront for recommended products that support your child's development. Interested in enhancing your organization's pediatric care? Request a demo of the Child Life On Call app today! About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

"Sometimes it's really therapeutic though to remember all that you have gone through because I feel like there are times when we look at each other and I'm like how did we get here?" -Tayler Ransome We're grateful for our sponsor for this episode, Nestle Health Science, and are thrilled to share their incredible MyTubeFeeding.com/ChildLifeOnCall website, your go-to online resource for valuable information and support. In this episode, Katie Taylor welcomes the Ransome family, known to many as the Ransome Fam on social media, where they share their daily life and the challenges of managing their son Sully's end-stage kidney disease. From their initial shock and learning curve as medical parents to the powerful advocacy that led them to seek better care, the Ransomes' story is a beacon of resilience and hope. Their journey underscores the importance of community, the power of advocating for your child and finding joy amidst life's toughest challenges. Key Insights: The critical role of advocacy in securing the best possible care for your child, is illustrated by the Ransome's transition to a more capable hospital. How establishing a disciplined routine for medical care fosters a sense of normalcy and control. The unexpected journey of becoming medical parents, including the steep learning curve and the importance of specific communication with family and friends. Discovering inner strength, resilience, and the ability to find joy in the most challenging circumstances. "Seeing how ceaseless his joy is... reminds me every day of the strength and beauty in our life, no matter the circumstances." – Tayler Ransome Resources and Tips Shared in the Episode: The Ransome Family's Daily Routine: A glimpse into managing home dialysis and medical care with love and dedication. Advocating for Your Child in the Healthcare System: Tips from the Ransome's experience on how to navigate healthcare providers and ensure your child receives the best possible care. Coping with the Unexpected: Strategies for dealing with the initial shock of a diagnosis and finding support. We want you to join our community! Follow us on Instagram @ChildLifeOnCall for more stories, support, and inspiration. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

In This Episode: Katie Taylor goes off the beaten path in this special episode to share a profound moment of inspiration that struck her. This episode is a heartfelt message to child life specialists, students, and parents, emphasizing the importance of showing up as you are, without the burden of imposter syndrome. Key Highlights: A Different Kind of Episode: Katie shares her spontaneous thoughts that came from a moment of inspiration, promising that the usual stories from the field and parental perspectives will return in future episodes. Message of Empowerment: The core message is about overcoming the misconception of imposter syndrome. It's about recognizing that being in the room is an acknowledgment of one's worth and contributions. Inspirational Source: Katie discusses insights gained from listening to Reshma Saujani, CEO of Girls Who Code, and her philosophy of bravery over perfection, which struck a chord with Katie in relation to the child life profession and parental involvement in healthcare. For Child Life Specialists: A call to recognize the value they bring to healthcare settings, emphasizing that healthcare teams are fortunate to have them participate. For Students: Encouragement to embrace their internships and opportunities without doubting their deservedness or capability. For Parents: An affirmation of the crucial role parents play when involved in their child's care, emphasizing that their presence inherently improves the healthcare experience for their child. Katie wraps up with a reminder of the importance of showing up authentically in every room you find yourself in, celebrating Child Life Month, and expressing gratitude to her listeners. Resources and Next Steps: Visit Child Life On Call for resources tailored to parents, professionals, and healthcare providers. Explore opportunities for Child Life Specialists, including PDUs and support through the Child Life Circle. Parents can find a starter kit to navigate their child's healthcare journey. Healthcare professionals are invited to take a clinician course to enhance pediatric care skills. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

"As a child life specialist, watching my tiniest patients grow and accomplish so many things is my favorite part of the job." - Julie, Certified Child Life Specialist Episode Summary: In this heartfelt episode of Child Life On Call, we celebrate Child Life Month by diving deep into the dedicated world of child life specialists and the resilient families they support. Host Katie Taylor talks to Julie, a remarkable child life specialist with 18 years of experience in the renal service at Texas Children's Hospital in Houston, Texas. Julie shares her profound journey of supporting children with end-stage renal disease and their families, emphasizing the incredible growth and accomplishments of her patients, from NICU discharge to life milestones like graduation and beyond. This episode shines a light on the unseen challenges and invisible diseases, offering a beacon of hope and understanding for families navigating similar paths. Key Insights and Lessons: The Power of Specialization: Julie's dedication to the renal unit for nearly two decades highlights the impact of specialized care and deep knowledge in supporting families through long-term medical journeys. Invisible Illness Awareness: Kidney and renal diseases are often "invisible illnesses," where children may not appear sick externally, challenging families to seek and receive support from their communities. Advancements in Treatment: Remarkable advancements in transplant medicine and the introduction of new facilities like a dedicated dialysis unit represent hope and progress in the care of patients with kidney disease. Comprehensive Family Support: The role of child life specialists in educating and supporting families beyond medical interventions, helping them navigate school, social challenges, and encouraging participation in community events. Celebrating Growth and Achievements: Witnessing the development and achievements of patients, such as learning to walk, talk, and engage with their favorite activities post-transplant, underscores the transformative impact of child life specialists. "We actually just opened up a brand-new dialysis unit at our hospital...watching that come to fruition from having been a dream of the department for so long to actually happening has been amazing." - Julie Resources and Tips: Kid's Health: Offers kid-friendly explanations and illustrations about medical conditions and treatments. National Kidney Foundation: Provides extensive resources and information for families dealing with kidney disease. Kidney School: An educational platform with modules for healthcare team members and families to learn about kidney disease. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

"Having a medically complex child, it's like everything's fine. And then, you know, we have a morning where we've thrown up a lot or our blood pressure is too low, and it just doesn't look good. You just never know what you're going to get." - Lyndsey, Episode 211 In this deeply moving episode, we are joined by Lyndsey, who shares the compelling journey of her son James's battle with post-urethral valves before birth, leading to kidney issues and eventually a kidney transplant. Through her narrative, we learn about the rollercoaster of emotions, the challenges of navigating the healthcare system, and the critical role of child life specialists in providing support. Lyndsey's story is one of immense courage, the power of hope, and the transformative impact of compassionate care on families navigating pediatric health challenges. "Having a medically complex child is like everything's fine until it's not." - Lyndsey Key Insights: The Crucial Role of Early Diagnosis: Lyndsey's experience underscores the importance of prenatal screenings and the challenges of facing unexpected medical conditions before birth. Support Systems Are Key: The journey highlights how family, medical teams, and child life specialists form a crucial support network that helps navigate the complexities of a child's medical care. Resilience in the Face of Uncertainty: The family's story is a testament to the resilience required to face the unknown and advocate for a child's health and well-being. The Importance of Child Life Specialists: Lyndsey's story reinforces how child life specialists play a vital role in supporting both the child and the family through medical procedures, hospitalizations, and the overall healthcare journey. How Child Life Specialists Can Help: Understanding Post-Urethral Valves: Providing educational materials to help parents understand complex medical conditions. Building a Support Network: Encouraging families to connect with others through support groups and communities. Coping Strategies: Sharing resources and strategies for families to manage stress and maintain emotional well-being. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: Get 20% of toys, fidgets and more at Smilemakers.com using ONCALL20 at checkout 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

"Love is the most powerful force in the universe, and the invisible string is a testament to the connections that bind us all." - Patrice Karst In this special Child Life Month episode, Katie Taylor sits down with Patrice Karst, the beloved author of "The Invisible String" and several other impactful books. They explore Patrice's journey from personal challenges to becoming a source of comfort and connection for families worldwide. This conversation delves into the power of storytelling in addressing themes of separation, loss, and the enduring strength of love. Patrice shares her inspiration behind "The Invisible String" and its profound impact on both children and adults, emphasizing our universal connectedness and the healing power of love. "The messages of love and connection I write about are not just for children; they resonate with the inner child in all of us." - Patrice Karst Key Insights or Lessons Learned: The concept of "the invisible string" as a universal metaphor for love and connection that transcends physical presence and even loss. The importance of acknowledging and discussing feelings of loneliness and the power of finding one's inner best friend, as explored in "Ruby and Lonely." How creativity and storytelling can be therapeutic, providing solace and understanding in times of grief and separation. The role of child life specialists in utilizing literature like Patrice's to foster emotional safety and understanding among families facing medical challenges. "Every letter I receive is a reminder of the profound impact stories can have on healing and connection." - Patrice Karst Resources and Tips Shared in the Episode: "The Invisible String" by Patrice Karst: A must-read for anyone seeking to understand and teach about the bonds of love. Other books by Patrice Karst Child Life On Call App: Explore this invaluable tool for additional support and resources for navigating pediatric healthcare challenges. Request a Demo. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Advocacy, Compassion, Innovation: Elise's Child Life Journey "Working with children with medical complexity and developmental differences isn't just a job; it's rooted in who I am." - Elise Cofer, CCLS Research Article: Fitting the Pieces Together Lead Researcher: Elise Cofer In this captivating episode of Child Life On Call, Katie Taylor sits down with Elise, a Nashville-born child life specialist who brings her passion and dedication to the hematology oncology unit at Vanderbilt. Elise's journey into child life, driven by a background deeply embedded in caring for children with special needs, showcases her commitment to enhancing pediatric healthcare. Through her story, listeners will gain insights into the challenging yet rewarding world of a child life specialist. Elise discusses the evolution of her career, her groundbreaking research on caregiver support, and her vision for a more inclusive and personalized approach to pediatric healthcare. "Elise's insights remind us of the critical role child life specialists play in not just supporting children, but whole families through their healthcare journeys." - Katie Taylor, CCLS Key Insights and Lessons: The Holistic Approach: Elise's interdisciplinary background highlights the importance of integrating care for children with special needs, emphasizing a holistic approach to their well-being. Research as a Pathway for Change: Elise shares her research findings on caregiver experiences, revealing a profound need for targeted child life interventions that support not only the child but the entire family unit. Advocacy and Empowerment: Through her work and research, Elise emphasizes the power of advocacy by caregivers and the role of child life specialists in empowering families to navigate the healthcare system effectively. The Importance of Listening: One of the most critical skills in child life work, according to Elise, is the ability to listen—to truly hear the needs and wishes of children and their families, thereby tailoring support to each unique situation. Recommendations: For Families: Elise recommends resources that provide guidance on navigating the healthcare system for children with medical complexities, emphasizing the importance of community support and advocacy. For Child Life Specialists: Insights into integrating research findings into practice, enhancing the child life specialist's toolkit for supporting families dealing with medical complexities. 🌟 Connect and Share Your Story: Join our community on Instagram @ChildLifeOnCall to share your journey and find support from others navigating similar paths. As we continue to explore the depths of pediatric healthcare through stories like Elise's, we are reminded of the resilience, courage, and love that drive individuals to make a significant impact. Stay tuned for more inspiring episodes from Child Life On Call. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

In this profound episode, we join Katie Taylor as she delves into the inspiring journey of a military family navigating pediatric healthcare for their two medically complex children. Through the voice of the remarkable mother, Kat, we explore the unique challenges and triumphs of securing continuous, specialized care amidst the frequent relocations and complexities inherent to military life. Kat shares her experiences with advocacy, the importance of resilience, and the deep bonds forged through their family's journey, offering invaluable insights into the realities faced by military families dealing with medical complexities. "Every challenge we've faced has only amplified our strength as a family. Our journey is a testament to the power of love, persistence, and advocacy." - Kat Key Insights and Lessons: The critical role of advocacy in navigating pediatric healthcare, especially within the military system. Strategies for explaining medical treatments and changes to young children in a way that fosters understanding and cooperation. The importance of building a supportive healthcare team that listens and adapts to the unique needs of each family. Implementing coping mechanisms for children, like the "Brave Box," to make medical procedures more manageable and less intimidating. Recognizing and nurturing the individual strengths and personalities of each child amidst their medical challenges. Resources and Tips: The Sticky Notes Diary: Follow Kat's blog for more insights and support for families of medically complex children in the military. Visit The Sticky Notes Diary. Child Life On Call Resources: Access a variety of resources tailored for parents, professionals, and healthcare providers to navigate pediatric healthcare experiences. Explore Resources Call to Action: Connect on Instagram: Join our vibrant community @ChildLifeOnCall for daily inspiration, stories, and support. Explore Our Amazon Storefront: Discover curated resources to support your family's healthcare journey. Shop Now Request a Child Life On Call Demo: Learn how our app can revolutionize pediatric healthcare experience in your organization. Request a Demo Let's continue to support each other and share our stories, fostering a community where no one feels alone in their journey. Tune in next week for another episode filled with hope, courage, and the collective wisdom of our Child Life On Call family. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

What if we could prevent more kids from having to have invasive surgery? During this episode, we are joined by Katie Corrado, who invented a product that works as an alternative to surgery for babies and children. Tune in to hear how her first-hand experience of watching her child struggle with an umbilical hernia led her to an innovative solution that she now offers to other families facing the same challenge. You'll also learn why Katie is an advocate for proactive rather than reactive medical solutions and how her passion for connecting with kids led her to work as a Physical Therapist rather than a Paediatrician. Join us today to hear all this and more. Watch the episode on YouTube Key Highlights: The Penn State Dance-Off Fundraiser and all the connections it facilitates. Katie's journey to becoming a Doctor of Physical Therapy with a Board Certification in Pediatrics. The story of an out-of-the-box solution that Katie developed to resolve her son's umbilical hernia, now known and sold as The Navel Cradle. Differentiating between reactive and proactive medical care and testing non-invasive solutions. Quotes: "The resiliency of children is just unmatched and it is amazing to be a part of that." — Katie Corrado [0:11:50] "The idea that the best advice to me was to do nothing [about my son's hernia] was awful. I felt so helpless." — Katie Corrado [0:24:46] "Just because there isn't a treatment for something yet doesn't mean that there's never going to be one." — Katie Corrado [0:27:41] Resources Mentioned: Kate Corrado's LinkedIn: https://www.linkedin.com/in/cathlyn-corrado-pt-dpt-pcs-00305326/ The Navel Cradle: https://www.navelcradle.com/ Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

In this special episode of Child Life On Call, we flip the script as Emily Martinec interviews our very own founder, Katie Taylor. Dive into Katie's journey from child life specialist to tech entrepreneur, exploring the roots of Child Life On Call, the challenges and triumphs of building a company, and how her upbringing shaped her mission to support families and healthcare professionals alike. "Child Life On Call is not a technology replacement for child life specialists... It's a tool to enhance and expand what Child Life Services is." — Katie Taylor Episode Highlights: Katie's personal story and the pivotal moments that led to her career as a child life specialist and entrepreneur. The evolution of Child Life On Call, including its challenges, successes, and the impact it aims to have on healthcare experiences for families. Insights into the future of the child life profession and how technology can play a role in enhancing family-centered care. Resources Mentioned: Child Life On Call app and website: A hub for resources, support, and community for families navigating healthcare experiences. ACLP (Association of Child Life Professionals): Mentioned in the context of the child life profession's growth and challenges. Katie emphasizes the importance of support, both within families and the healthcare community, to navigate the complexities of medical experiences. She highlights the role of Child Life On Call in empowering families and professionals with resources and support. Explore Child Life On Call's resources, join the Child Life Circle for professional support, and share their stories to strengthen the community. Visit Child Life On Call to learn more and get involved. This episode is a testament to the power of resilience, innovation, and community in transforming healthcare experiences for children and families. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

In this episode, we're honored to have Jessica Correnti, a certified child life specialist and a bereaved mother, share her profound insights on grief. Jessica's dual perspective offers a rich understanding of the multifaceted nature of grief beyond the loss of a loved one. She discusses her personal journey, the importance of recognizing and naming grief in children, and how this awareness can empower kids to navigate their emotions. Key Highlights: Jessica's background as a child life specialist and how her personal loss has shaped her professional and personal life. The concept of "grief bombs" and the physical manifestations of grief. How grief evolves with children as they grow, and the importance of reprocessing their emotions at different stages of development. The significance of creating space for children to express and process grief through activities and conversations. Jessica's contributions to the field through her books and private practice, aim to enhance grief literacy among children and adults. Take a look at Katie's favorite books to help kids grow, thrive and learn! Resources Mentioned: Jessica Correnti's Instagram: @KidsGriefSupport Download 38 Activities to Help Grieving Kids Here! Website: kidsgriefsupport.com ABCs of Grief series by Jessica Correnti. For anyone looking to deepen their understanding of child grief support and the power of connection through shared experiences, this episode is a must-listen. Join us in exploring the complexities of grief with empathy, knowledge, and hope. Other recommended episodes on this topic: Episode 197 | James' Story - 5 Years with a Remarkable Son (tw: death) Episode 173 | Dr. Korie Leigh – What Does Grief Feel Like? Episode 152 | Kelly's Story - A daughter with epilepsy (tw: death) And more here. _____ About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

"Millie's journey has taken me to the end of myself, but it's been the most beautiful beginning of understanding humanness and how to be compassionate and how to really be kind to other people and take notice that the story that is their life may not be what you see." How does trauma affect the whole family, and how can we show compassion to adults with special needs? One thing I have learned about throughout my career as a child life specialist and have heard from many families on this podcast is the impact that having a child with disabilities and the societal stigma can have on a family. Today we get to chat with Marna Pacheco, a mother and inventor who understands this impact all too well. She and her husband have two children, one of whom, Millie, has special needs. Marna shares with us the challenges of adopting a child with trauma and special needs, such as the way trauma affects a family, finding therapies, and navigating the medical system. She shares how parenting a special needs child has both challenged her and shifted her perspective over the years. Marna has continued to empower communities to support individuals with special needs. Being a 24/7 caregiver is not an easy job, Marna describes it as "predictably unpredictable". Now at almost 18, Millie is transitioning into adulthood which has presented the Pacheco family with a whole new set of challenges. "It is a huge gap that is missing for the adult special needs community of how the caregivers are being supported in this to help our children navigate the world and thrive. I mean, she should be given every opportunity to thrive as an adult." Aside from being a committed and resilient parent, Marna is also a businesswoman who created CapeAble Weighted Products made with smart weight technology. Her invention was inspired by Millie after weighted products were recommended by an occupational therapist to help regulate her nervous system and feel safe. After searching through weighted products and trying many out, Marna saw a lack of dignified, fashionable, and practical options. The resources mentioned in this episode are: CapeAble Weighted Products, Diagnosis resources Robyn Gobbel's podcast Big Baffling Behaviors Books on trauma and brain development by Dr. Bruce Perry, Dr. Stephen Porges, Dr. Dan Siegel About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

"If you have a question, ask it. You are the parent, you need to know" - Jessica Siddi-Sewart How can medical parents use their experiences to promote action and advocacy? As a child life specialist, I know that there is not one "normal" or "best" reaction for a parent when their child receives a medical diagnosis. Today's guest, Jessica Siddi-Sewart and she helps us reflect on the different stages parents go through when facing a medical diagnosis for their child. She is also a mother of three, a paralegal, and a business owner. I had the pleasure of meeting Jessica during our time at the American Academy of Pediatrics Conference this past October and was instantly drawn to her products and knew I wanted her to join me on the Child Life On Call podcast. Her company Puffaluffs Inc. was inspired by a personal experience with one of her sons. After giving birth at 28 weeks, a NICU stay, and a long and emotional journey to receiving a diagnosis, Jessica still found a way to make meaning and give back. For Jessica's son, it took 12 years and hundreds of doctor appointments to receive a concrete diagnosis: DiGeorge Syndrome. She shares her journey and learned the importance of finding support and resources from families walking through similar challenges. "It teaches you to pivot. It teaches you, you know, to learn different things and be okay. It is what it is and you will be okay" The resources mentioned in this episode are: Puffaluffs Inc. Diagnosis resources for families with DiGeorge include: https://www.nationwidechildrens.org/conditions/22q-deletion-syndrome https://22q.org/ https://www.maxappeal.org.uk/ About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

In this episode about parenting a child with infantile spasms, Katie Taylor, a certified child life specialist, has a profound conversation with Hailey, a resilient mother navigating the complexities of raising a child with a disability. Join us as we delve into Hailey's journey, exploring the challenges and triumphs of parenting under extraordinary circumstances. "It's not always about thriving in the traditional sense; sometimes it's about finding small victories in our daily struggles and embracing them." - Hailey Adkisson About the Episode: This episode offers an intimate glimpse into the life of Hailey, a mother from the Pacific Northwest, and her blended family. Hailey shares her experiences managing her professional life while being a dedicated caregiver to her youngest child, diagnosed with infantile spasms. The discussion also touches on the significance of mindfulness and the power of being present, especially during challenging times. From the episode with Hailey and Katie, here are three key takeaways: The Importance of Advocacy and Community: Hailey emphasizes how advocacy and connecting with a community have been vital for her. She discusses the therapeutic aspect of advocating for her child and how it has helped her connect with other families in similar situations. Challenges and Adaptations in Parenting: The conversation highlights the difficulties of parenting a child with medical complexities. Hailey shares her experiences of managing work-life balance and the adjustments she and her family have had to make to accommodate their child's needs. Mindfulness and Presence in Caregiving: Both Hailey and Katie touch upon the theme of mindfulness in caregiving. They discuss the challenges of staying present and mindful while dealing with recurring medical crises and the importance of finding ways to disconnect momentarily without losing focus on the child's needs. "I've learned so much from my daughter. Even though the journey is tough, it has opened my eyes to a different kind of love and strength." - Hailey Adkisson In our enlightening talk with Hailey, we discover the often-overlooked realities of caregiving and the resilience it fosters. Her parenting journey is a testament to the strength found in adversity and the importance of mindfulness in the face of life's challenges. We hope this episode inspires and provides valuable insights to caregivers and families facing similar journeys. You can buy Hailey's book, What is Epilepsy?, on Amazon. About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

I'm his mom, and I carried him for almost nine months, and no one loved him more than me. I'm his expert, and I'm going to own that. - Kathryn Whitaker Have you ever found yourself amazed at the strength people find in the toughest of times? Well, on today's podcast, we're talking about one of the common themes we've seen over the past 200 episodes of Child Life On Call and something I consistently see parents share on social media. We're talking about the incredible phenomenon of PTG, or post-traumatic growth. We're taking a special look at one of the deeply personal journeys a parent has embarked on during and after their child's medical battles. Together, we'll explore how these intense experiences can unexpectedly sow seeds of strength, knit tighter family connections, and awaken a profound appreciation for every precious moment of life. And guess what? We have a special guest, parent, and passionate advocate, Kathryn Whitaker, who's here to share her inspiring story. So grab your favorite cup of comfort, settle in, and join us as we uncover the resilience and beautiful transformation hidden within the heart of every parent's medical challenge. Kathryn Whitaker, a proud 6th generation Texan and a mother of six, brings a wealth of personal experience and resilience to the Child Life On Call podcast. With a background in agriculture and marketing, Kathryn's journey as a seasoned NICU parent has inspired her to advocate for families facing similar challenges. Her work with Hand to Hold, a national nonprofit supporting NICU families, showcases her passion for providing strength and support to others dealing with the NICU experience. Through her difficult experiences, Kathryn has found personal growth and hope, offering valuable insights to parents navigating similar paths. Her unique perspective and unwavering resilience make her a compelling voice for anyone seeking strength and inspiration during challenging times. You are not going to be the same person, thankfully, but hopefully a stronger, better version of the person who walked in the door, as opposed to the person who walks out. - Kathryn Whitaker The resources mentioned in this episode are: HandtoHold.org Check out the NICU Heroes podcast for NICU professionals looking to earn continuing education credits while learning from amazing guests. Purchase Kathryn Whitaker's book Live Big. Love Bigger. on Amazon or wherever books are sold for an inspiring and transformational read about living an intentional life. Kathryn on Instagram. About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures Instagram | LinkedIn | Amazon

In this milestone 200th episode, Katie delves into a unique mix of content, answering insightful questions from Instagram, sharing a personal story about her daughter Cameron's burn accident, and reflecting on the impactful moments of 2023. The episode features discussions on a variety of books Katie read throughout the year, the best toys of 2023, and tackles the challenging aspects of balancing work and personal life as a child life specialist. Katie's candid sharing of Cameron's experience provides a heartfelt insight into the realities of parenting and healthcare challenges. Toys that I recommend in this podcast: Smart Sketch 2.0 by Flywheel Melissa & Doug Sticker Wow (At Wal-Mart Only) Katie also shares her thoughts on balancing professional responsibilities with personal life, offering valuable insights for child life specialists and parents alike. Additionally, she discusses her favorite books and toys of 2023, showcasing how these resources can be instrumental in child life practice. This episode is not just a celebration of reaching a significant milestone but also a testament to the power of shared experiences and the strength of our community. Tune in to hear Katie's heartfelt reflections and valuable advice as we continue our journey together in supporting families through healthcare experiences.

Join me for an emotional and insightful conversation as I sit down with Kate Kostolansky in this episode of Child Life On Call. Kate, a dedicated mother and advocate, shares her touching journey of raising her daughter, Charlotte, who battles infantile spasms. In this heartfelt discussion, Kate sheds light on the challenges faced by families dealing with rare medical conditions, emphasizing the importance of parental instincts and advocating for timely medical attention. Discover Kate's inspiring efforts to create age-appropriate resources, including a poignant book and a comforting teddy bear, designed to support and educate children navigating epilepsy. This episode offers valuable insights into the world of pediatric epilepsy and the powerful impact of emotional support from peers. Kate's advocacy work and her family's emotional journey will surely resonate with anyone facing similar challenges. Tune in to gain a deeper understanding of navigating pediatric epilepsy and the remarkable strength found in advocacy and support. #InfantileSpasms #PediatricEpilepsy #ChildLife #Advocacy #RareMedicalConditions In this episode, you will be able to: Discover insights on parenting a child with infantile spasms. Learn the importance of seeking timely medical attention. Explore advocacy strategies for raising infantile spasms awareness. Find age-appropriate resources for children with epilepsy. The key moments in this episode are: 00:00:05 - Introduction to Childlife on Call podcast 00:01:24 - Kate's Family and Experience with Infantile Spasms 00:06:03 - Recognizing Infantile Spasms and Seeking Medical Help 00:11:37 - Advocacy for Infantile Spasms Awareness 00:15:54 - Challenges of Treatment and Advocacy 00:18:23 - Understanding the Impact of Epilepsy on Children 00:20:24 - Filling the Gap in Pediatric Epilepsy Resources 00:23:34 - Coping with EEG and Treatment 00:25:21 - Empowering Children through Understanding 00:29:30 - Resources for Children with Epilepsy Ways to Connect with Kate Instagram Char Bear Keeps Dancing Brave Bear Use discount code CLOC10 to receive a discount! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

In this episode of Child Life On Call, we are honored to host Jennifer Canvasser, the driving force behind the NEC Society, as she shares her poignant journey and advocacy for Necrotizing Enterocolitis (NEC) awareness in the NICU. Join us as Jennifer unveils her personal story and how she transformed her loss into a powerful force for supporting families grappling with NEC. Gain valuable insights into the pivotal role of human milk and early intervention in mitigating the risk of NEC, and the vital need for open communication between healthcare providers and families in the NICU. Jennifer also sheds light on the indispensable contribution of Child Life specialists and palliative care teams, along with the plethora of resources available on the NEC Society's website. Additionally, Jennifer delves into her touching book, "Forever Our Little One," a heartfelt guide for parents navigating the complexities of grief. Tune in to this impactful episode and be inspired by Jennifer's unwavering commitment to enhancing NEC awareness and providing unwavering support for families in the NICU. In this episode, you will be able to: Discover how NEC Society supports and raises awareness for families. Learn the importance of human milk in reducing NEC risk. Explore the significance of early intervention and communication in the NICU. Understand the vital role of Child Life specialists in the NICU. Find valuable resources for families dealing with NEC in the NICU. More about Jennifer Jennifer Canvasser is the Executive Director and founder of the NEC Society. With firsthand experience as a mother who lost her son to Necrotizing Enterocolitis (NEC), Jennifer's expertise and advocacy work in the field of NEC is invaluable. Her dedication to raising awareness and driving change is evident through her establishment of the NEC Society, which brings together researchers, scientists, and families affected by NEC. Jennifer's personal journey in the NICU has propelled her to create a platform that fosters collaboration and provides support for families facing the challenges of NEC. Her work aims to empower parents and improve outcomes for premature babies at risk of NEC. We are privileged to have Jennifer as a guest on this episode, as she shares her knowledge and personal insights to shed light on the importance of NEC advocacy. Connect with Jennifer Website X (twitter) The key moments in this episode are: 00:00:00 - Introduction 00:04:05 - Jennifer's NICU Experience 00:06:55 - Loss of Micah 00:08:58 - Memories of Micah 00:12:25 - Coping in the NICU 00:15:38 - The Urgency of the NICU Society's Work 00:16:15 - The Importance of Human Milk in NEC Prevention 00:17:41 - Starting Conversations with At-Risk Families 00:18:56 - The Power of Information and Early Intervention Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

In this episode, our guest James Robinson will share the keys to living life to its fullest, both inside and outside of the hospital, so that you can provide the result of bringing joy and happiness to your child's life, despite their medical condition. James Robinson, the author of the book "More Than We Expected: 5 Years with A Remarkable Son." On today's episode, he shares his personal experience as a parent of a child with a congenital heart defect. Living in Brooklyn, New York, James and his wife have three children, one of whom was born with a serious congenital heart defect. They navigated their way through multiple surgeries and hospital stays, learning valuable lessons along the way. James's story highlights the importance of holistic care and the impact of medical professionals, from doctors to Child Life Specialists, in providing support to families. James and his family found strength and created meaningful experiences for their child. It was a privilege to be his father. We learned a lot through our journey about what it means to live when you have a medical condition. - James Robinson In this episode, you will be able to: Discover the transformative power of parenthood and how it can bring joy and strength in the face of medical challenges. Explore the importance of transparency in navigating the realities of your child's medical condition, and how open communication can benefit both you and your child. Learn how child life specialists in hospitals can provide support and create meaningful experiences for your child during their medical journey. Find inspiration in stories of resilience and the power of support from other parents who have faced difficult times with their children's medical conditions. Discover practical strategies for balancing fear and living a fulfilling life, while still prioritizing your child's health and well-being. Connect with James Learn more about James' book here. Link to purchase "More than we Expected" To request bookplates and oregano seeds: https://morethanamemoir.com/bookplates/ Social media: FB: MoreThanAMemoir Instagram: MoreThanAMemoir X/Twitter: MoreThanAMemoir All best The key moments in this episode are: 00:00:00 - Introduction 00:00:40 - Purpose of the Podcast 00:02:07 - Story of James' Son 00:05:15 - Balancing Fatherhood and Medical Care 00:07:01 - Trip to Australia and Medical Emergency 00:09:18 - Differences in Medical Practices 00:10:04 - Heart Beads 00:13:11 - The Miracle of the Body Formation 00:14:00 - Trusting the Body's Processes 00:15:47 - Accepting Things Beyond Control 00:16:22 - Challenges of Living in Another Country for Medical Treatment 00:19:26 - The Healing Power of Nature 00:25:34 - The Impact of Therapists 00:26:01 - Exploring the Hospital 00:27:09 - Going Outdoors 00:28:19 - Unexpected Kitchen Visit 00:31:30 - Balancing Fear and Living 00:37:34 - The Purpose of Writing the Book 00:38:01 - The Importance of Child Life 00:38:48 - Parenthood and Self-Discovery 00:40:53 - Availability of the Book 00:42:31 - Conclusion and Resource Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

In this episode, you will be able to: Discover the untold journey of NICU parents, gaining insights and understanding into their unique experiences. Uncover the challenges of medically complex pregnancies, and learn strategies for navigating this complex journey with support and resilience. Explore the support systems available for medical motherhood, and find out how to build a network of understanding and empowerment. Gain invaluable insights and practical tips for navigating the complexities of special needs parenting, empowering you to advocate for your child's unique needs. Learn the art of accepting uncertainty in medical diagnoses, finding peace and strength in the face of the unknown. Hannah Parsons is the guest on this week's episode of Child Life On Call. She shares her personal journey as a mother to a child with Vactrel Association. Hannah has a diverse background, starting out as an actor and comedian before transitioning into editing and stagecraft. Living in Los Angeles with her husband and two-year-old son, Obie, Hannah has faced numerous challenges and complexities throughout her son's medical journey. From navigating a unique pregnancy without insurance to experiencing the unexpected during childbirth, Hannah's story sheds light on the emotional rollercoaster of motherhood and medical motherhood. Her determination, resilience, and unwavering belief in her son's well-being are truly inspiring. Tune in to hear Hannah's incredible journey and gain insights into the realities of special needs parenting. The key moments in this episode are: 00:00:00 - Introduction 00:02:05 - Pregnancy and Diagnosis 00:06:14 - Birth and Initial Diagnosis 00:10:24 - Navigating the NICU 00:13:48 - Transitioning to Home 00:17:45 - Challenging Medical Conditions 00:19:20 - Unwanted Medical Procedure 00:23:37 - Feeling Unsafe and Disappointed 00:25:02 - Acts of Kindness and Support 00:26:33 - The Impact of NICU Nurses 00:34:54 - Gratitude for a Healthy Child 00:35:45 - Need for Resources and Support 00:36:50 - Navigating Post-Hospital Care 00:37:59 - Importance of Resources and Podcasts 00:45:12 - Diagnosis and Acceptance Connect with Hannah here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Join Katie Taylor in an emotional conversation with Mackenzie Carolin as they discuss the unexpected medical journey she faced with her daughter. Learn how Mackenzie navigated the complexities of her child's healthcare needs and discover the importance of trust and human connections during challenging times. This episode of Child Life On Call provides valuable insights and support for parents who find themselves in similar situations. Don't miss this heartwarming and inspiring discussion that highlights the power of advocacy and the strength of a supportive community. Join us now and start watching to gain valuable knowledge and find solace in knowing you're not alone in your journey. In this episode, you will be able to: Discover the power of your personal experiences in transforming your child's healthcare journey. Unlock the importance of building human connections to enhance your child's medical care. Navigate the complexities of your child's healthcare with confidence and clarity. Advocate for your child with disabilities and ensure they receive the support they need. Learn how unexpected medical conditions can shape and strengthen your parenting journey. My special guest is Mackenzie Carolin. Mackenzie Carolin, a parent from Florida, joins us on this episode of Child Life On Call. Mackenzie shares her personal journey as a mom navigating unexpected medical conditions with her child. With a background in the medical field and surrounded by family members in healthcare professions, Mackenzie brings a unique perspective to the challenges faced by families in similar situations. From the initial shock of discovering her daughter's condition to the emotional rollercoaster of hospital visits and uncertainty, Mackenzie's story highlights the importance of trust, human connections, and advocating for your child's healthcare needs. Join us as Mackenzie shares her experiences and provides valuable insights for parents in similar situations. The key moments in this episode are: 00:00:05 - Introduction 00:01:13 - The Power of One-on-One Conversations 00:02:47 - Tips for Effective Doctor's Visits 00:03:17 - Introduction to Mackenzie Carolin 00:05:17 - Unexpected News at the Hospital 00:16:05 - Empowerment through Seeking Second Opinions 00:17:05 - Finding Her Voice in Advocating for Her Child 00:19:30 - Becoming an Advocate for Other Moms 00:21:43 - The Power of Mom-to-Mom Support 00:24:06 - Personal Growth and Learning from Liv Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Are you a parent of a child with a medical condition? Join me, Katie Taylor, as I chat with Keeley Machen Schares, a Child Life Specialist, in this special episode of Child Life On Call. Keeley takes us through her incredible journey as a mother to a premature baby with hydrops fetalis and profound hearing loss. From routine ultrasounds to a life-saving diagnosis, Keeley's story will captivate you. Learn about the challenges she faced, the importance of finding the right medical team, and the power of support from fellow parents. Keeley's experience serves as a beacon of hope and inspiration for parents navigating through their own medical journeys. Don't miss out on this heartfelt conversation and join us today. In this episode, you will be able to: Discover how a child life specialist can support you and your child through their medical journey, providing invaluable emotional and practical guidance. Understand the complexities of hydrops fetalis and pregnancy complications, and gain valuable insights into managing these challenges during pregnancy. Explore the emotional toll of a lengthy NICU stay and discover strategies to navigate the rollercoaster of emotions that come with it. Learn about the journey of receiving a hearing loss diagnosis for your child and the positive impact cochlear implants can have on their life. Get inspired to become an advocate for your deaf child, empowering them to thrive and ensuring they have access to the resources and support they deserve. My special guest is Keeley Machen Schares Keeley Machen Schares is a seasoned Child Life Specialist with over seven years of experience. As a dedicated mom herself, she understands firsthand the challenges and emotions that come with having a child with medical conditions. Keeley's journey took an unexpected turn when her daughter, Dottie, was diagnosed with hydrops fetalis during pregnancy. This life-changing experience led her to navigate the complexities of the healthcare system while also being a supportive advocate for her daughter. Keeley's expertise in child life and her personal experience as a parent of a child with special healthcare needs make her a valuable resource for other parents facing similar situations. She brings a unique perspective and a wealth of knowledge to the discussion, providing insights and support to parents dealing with prematurity, hydrops fetalis, and hearing loss. The key moments in this episode are: 00:01:08 - Introduction to Keeley 00:03:25 - Finding Out About Dottie's Condition 00:06:55 - The Impact of the 32-Week Ultrasound 00:10:20 - Expressing Gratitude 00:15:32 - The whirlwind of Dottie's birth and NICU stay 00:18:26 - The significance of scent cloths 00:21:13 - Navigating visits and the emptiness of leaving 00:23:50 - Dottie's health progress and gratitude 00:26:13 - Balancing rest and gratitude for visitors 00:31:57 - Additional Testing and Switching Providers 00:34:30 - Cochlear Implants and Hearing Aid Phase 00:39:00 - Advocating for Deaf and Hard of Hearing Kids 00:40:28 - Impact on the Speaker's Life and Perspective Connect with Keeley here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

It's a solo episode this week and our host, Katie Taylor, CCLS, dives in to what she experienced at the American Academy of Pediatrics Conference. Katie talks about her travels to Chicago to train a group of clinicians in Chicago, and then her trip to DC where she had hundreds of conversations with pediatricians from across the globe. What was the overwhelming takeaway? PEDIATRICIANS LOVE CHILD LIFE, y'all! Listen to hear more about what Katie learned as a child life specialist exhibiting at the conference for the first time. ____ Are you a parent of a child who HATES shots? Me, too! But, rest assured - we're giving you ALL the tips and tricks to make these experiences way easier for kids... and YOU! These are the LAST few days to get course access to our Parent Course "How to Help Your Child With Shots!" ____ Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

This episode is a repost in honor of Spina Bifida awareness month. Are you a parent of a child with spina bifida who is seeking support and guidance to navigate the challenges of raising your child? Are you looking for increased understanding, support, and strategies to help you and your child thrive? Join us as we welcome guest Teresa Crespo, who will be sharing the solution to help you achieve that desired outcome. Get ready to gain valuable insights and practical tips that will empower you as a parent and enhance your child's quality of life. In this episode, you will be able to: Gain access to intimate narratives of parents championing the hardships of parenting children with spina bifida. Learn the crucial role communication, and representation play in optimizing the welfare of children with spina bifida. Immerse yourself in strategies for handling bodily functions in children afflicted with spina bifida. Delve into the emotional facets impacting both parents and children and procure invaluable coping methods. See the assortment of beneficial products conceived for children with spina bifida and similar medical conditions. My special guest is Teresa Crespo Allow us to introduce Teresa Crespo - a mother, a problem solver and an advocate for kids with Spina Bifida. Hailing from Miami, Teresa's 14-year old daughter Isabella was born with this congenital disorder, which led her into a rollercoaster ride through the healthcare system. Also an entrepreneur, Teresa co-created 'Hidden Underwear', a solution for children, like Isabella, who want to blend in with their peers. Teresa's strength, determination, and warm demeanor make her a beacon of hope for other parents. The key moments in this episode are: 00:00:00 - Introduction to the podcast and Teresa's story 00:05:09 - Discovering something was wrong at birth 00:07:51 - The challenges of waiting for a diagnosis 00:11:02 - Understanding the diagnosis and treatment plan 00:12:30 - The importance of having a comprehensive view of the medical journey 00:14:19 - Understanding Spina Bifida, 00:15:05 - Bella's Prognosis and Challenges, 00:18:23 - Coping with Potty Training Challenges, 00:22:12 - Bella's Multiple Surgeries, 00:25:31 - Bella's Perspective and Coping, 00:29:20 - Validating Feelings and Effective Communication, 00:31:45 - Empowering Kids and Finding Language to Explain Their Condition, 00:34:23 - From Game to Business: The Inspiration Behind Hidden Underwear, 00:37:53 - Expanding Hidden Innovations and Helping More Kids, 00:40:10 - Resilience and Accomplishment in the Face of Challenges, 00:44:05 - Importance of Sharing Experiences, 00:44:38 - Finding Inspiration in Others' Stories, 00:45:37 - Hidden Underwear and Innovations, 00:45:59 - ChildLife On Call Resources Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

We wanted to repost this epsidoe to highlight that October is Learning Disabilities / Dyslexia / Attention Deficit Hyperactivity Disorder Awareness Month. In a world of unexpected twists, sometimes the greatest surprises lie within our own children. Child Life Specialist, Shani Thornton's journey with her son's learning differences took an unforeseen turn, unraveling a mystery that went beyond what anyone could have imagined. But what if this unexpected twist held the key to unlocking their hidden potential? Join us as we delve into the story of a mother's unwavering determination, and discover how engaging in activities outside of academics could be the missing piece to building confidence and self-esteem in children with learning differences. Get ready to embark on a journey of empowerment and endless possibilities... In this episode, you will be able to: Immerse in Shani's passionate crusade to ensure her children with learning differences receive the care they need. Delve into the complex world of digital education amid a pandemic, and how this interplays with learning differences. Grasp the significance and need for early dyslexia diagnosis and intervention, shaping successful learning paths. Learn about the strategies to foster confidence in children with learning differences, touching upon areas beyond academics. Grasp the role of 'self-care' for those caring for children with learning differences, shedding light on avoiding burnout and delivering effective support. My special guest is Shani Thornton Meet Shani Thornton, a seasoned Child Life specialist with nearly 14 years of experience in the field. Living in Northern California, Shani balances being a loving mom of two alongside running her private practice, Child Life Mommy. Typically offering a range of services including hospice care support for children of adult patients, workshops, and grief counseling, Shani's approach is marked by compassion and understanding. Known for her deep understanding of child development, she has a personal connection to this episode's theme: raising confident children with learning differences. Shani has navigated her own children's learning journey and excels in creating an environment that facilitates emotional growth beyond academics. The key moments in this episode are: 00:01:14 - Introduction, 00:02:28 - Shani's Background, 00:06:04 - Challenges with Remote Learning, 00:07:59 - Individualized Education Plan (IEP), 00:10:26 - Diagnosis and Support, 00:15:42 - Early Interventions and Frustrations, 00:18:00 - Misdiagnosis and Advocacy, 00:19:22 - Individual Educational Evaluation and Interventions, 00:24:27 - Finding Support and Balancing Schoolwork, 00:26:18 - Explaining Learning Differences to the Child, 00:31:39 - The Nature of Dyslexia, 00:32:15 - Normalizing Dysgraphia, 00:33:44 - Supporting Children with Dyslexia in Online Learning, 00:36:03 - Supporting a Child with Dyslexia's Confidence, 00:39:53 - Identifying and Addressing Learning Differences Connect with Shani here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

In honor of October being Breast Cancer Awareness month we wanted to repost this episode to provide awareness to our community. Breast cancer survivor, Sara Olsher, battles the disease as a single parent, using her experience to empower others and create resources for families facing cancer, in a moving and inspiring episode of the Child Life On Call podcast. In this episode, you will be able to: Explore Sara's firsthand experiences from her breast cancer diagnosis to treatments, offering an inspiring narrative for those facing a similar situation. Learn to simplify complex cancer terminologies into friendly conversation, developing a resourceful way to ease children into understanding the disease. Comprehend the value of a strong community in fueling hope and resilience during cancer treatments. Master the art of balancing the role of a single parent with the imperative of self-care during cancer treatment. Understand the silent toll of cancer on children and strategies to alleviate their anxiety, making them feel safe and heard. List 3: My special guest is Sara Olsher Let's meet Sara Olsher, a mother, a steadfast partner, and a formidable cancer warrior. Living in the heart of California's wine country, Sara embodies the phrase 'survivor' in more ways than one. Having traversed the rocky terrain of single parenthood and then battling against a troublesome breast cancer diagnosis, Sara's life journey is nothing short of inspirational. Her frank and sensitive sharing of her personal struggles inspires hope and resilience. The key moments in this episode are: 00:00:00 - Introduction, 00:03:43 - Sarah's Diagnosis, 00:09:04 - Treatment and Reconstruction, 00:12:57 - Pain and Recovery, 00:15:48 - Sharing the News, 00:18:35 - Explaining Cancer to Her Daughter, 00:23:48 - Providing a Concrete Understanding, 00:25:55 - Seeking Support as a Single Parent, 00:31:30 - Recognizing Acts of Kindness, 00:33:06 - Simple Ways to Help, 00:36:16 - The Importance of Support in Parenting, 00:37:22 - Empathy and Exposure to Different Family Dynamics, 00:38:02 - Sara's Books on Cancer Awareness, 00:43:09 - Creating Calendars for Children with Cancer, 00:45:36 - Donating Calendars to Children's Hospitals Link to Mighty and Bright Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

My special guest is Ryan Sheedy Meet Ryan Sheedy, an incredible father who, much to his own surprise, found himself immersed in the delightful chaos of caring for twin boys. His world drastically transformed ten years ago, when he moved from Pennsylvania to Bentonville, Arkansas. Not only has Ryan navigated the unexpected challenges of parenting twins, but he has also bravely navigated his son's Costello Syndrome diagnosis. Through it all, he's embraced being a stay-at-home dad, constantly learning, adapting and conquering unforeseen hurdles. We can plan as much as we want to plan, but it's out of our control. We have to go with the flow. - Ryan Sheedy In this episode, you will be able to: Delve into the heartening and daunting experiences that fathers encounter in the NICU, shedding light on their tenacity and determination. Grasp the profound impact support and open communication can make in navigating the NICU's challenging landscape. Understand better the diverse responsibilities fathers shoulder as caregivers and staunch advocates in their children's healthcare journey. Comprehend the rollercoaster ride of emotions and experiences that encapsulate being a stay-at-home dad and the head caregiver. Get introduced to 'Mijo', a versatile web app offering an efficient solution to The importance of communication and support in the NICU cannot be overstated. It anchors not only the medical care of the infant but also the emotional well-being of the parents. Ryan's story emphasizes how a strong support network, open communication with healthcare professionals, and sharing information with family and friends can make a significant difference in this intense journey. The key moments in this episode are: 00:00:05 - Introduction, 00:01:08 - Guest Introduction, 00:09:29 - NICU Experience Begins, 00:11:55 - Early Days in the NICU, 00:12:55 - Ongoing Relationship with Care Team, 00:15:12 - The Separation, 00:16:49 - Perspective and Gratitude, 00:21:33 - Breaking the Mold, 00:24:29 - The Challenges of Caregiving, 00:28:35 - My Mejo App, 00:31:47 - The Genesis of Mejo, 00:35:59 - Who Can Use Mejo?, 00:38:34 - Moments of Care, 00:40:38 - Building a Community, 00:43:20 - Lessons Learned Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

My special guest is Rhandyl Vinyard, Deonna Wade Rhandyl Vinyard and Deonna Wade are two phenomenal mothers from Texas, each raising disabled children. Drawn together by shared circumstances, their friendship continues to strengthen others walking a similar path. Rhandyl, a physical therapist assistant, is the mother to Remy, who has required intensive medical care from an early age. Her background in healthcare provides a unique perspective into the challenges of raising a disabled child. Deonna, once a teacher, is mom to Allie who was thrust into an unexpected medical journey after a rare and tragic accident. Both moms bring a wealth of personal experience and heartfelt understanding to the table, connecting communities and gifting invaluable advice to others. If that's your only thing is being that caretaker role and that's it, it's going to eat you up eventually... life is short and that we're not guaranteed tomorrow. So let's just have fun today and be happy and thankful for what we have. - Deanna Wade In this episode, you will be able to: Uncover the remarkable strength that emerges from raising children with special needs. Explore the unseen challenges and isolations encountered by parents of disabled children. Discover the pivotal role in forming a solid support system for those raising differently-abled children. Recognize the necessity of becoming a powerful advocate for your child's unique needs. Grasp the profound influence of Child Life specialists in the lives of families with disabled kids. The key moments in this episode are: 00:00:00 - Introduction, 00:03:33 - Starting the Podcast, 00:07:49 - Purpose of the Podcast, 00:10:04 - Deanna's Story, 00:13:02 - Randall's Story, 00:16:30 - Remy's Journey, 00:19:48 - Remy's Personality, 00:20:56 - Allie's Journey, 00:23:19 - Coping Mechanisms, 00:28:10 - Finding Joy, 00:32:48 - The Importance of Advocating for Your Child, 00:35:47 - Transitioning into a Different Role, 00:38:47 - Learning to Trust Your Instincts, 00:43:58 - Taking Control of Medical Decisions, 00:49:01 - The Purpose of the Podcast, 00:50:30 - Broad Topics of Discussion, 00:51:49 - The Value of Child Life, 00:52:55 - Discovering the Importance of Child Life, 00:55:22 - Resources and Opportunities Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

Do you want to become a confident advocate for your child's medical needs? Are you searching for a solution to navigate the complex world of medical care for children with conditions? Join us as we welcome Kayleigh Koehler, a Child Life Specialist who has transformed into a medical parent. She will be sharing valuable insights and strategies on how you can achieve the ultimate goal of becoming a knowledgeable and effective advocate for your child's medical journey. Get ready to embark on a transformative journey towards becoming the empowered advocate your child needs. Kayleigh Koehler is a remarkable and multifaceted individual who navigates through life wearing various hats. As a wife to her high school sweetheart Mitch and a mother to their charming four-year-old son, Hudson, Kayleigh's world is filled with love and profound resilience. Professionally, she is a dedicated child life specialist working tirelessly in a cardiac ICU. Her firsthand expertise and personal connection to her job started to take a unique and powerful perspective when her unborn son was diagnosed with a heart condition. Kayleigh's courage, wisdom, and gutsy perseverance inscribed an unforgettable chapter in her life story where her professional and personal world astoundingly intertwined. Because of this experience, I am a better child life specialist. Because I understand the world in a different way that I simply could not understand when I wasn't a mom. - Kayleigh Koehler The key moments in this episode are: 00:00:00 - Introduction, 00:01:42 - Reflections on Trauma and Mental Health, 00:09:47 - Advocacy and Empathy in Child Life, 00:13:21 - Permission to Coexist with Messiness, 00:13:56 - Conclusion, 00:16:17 - Introducing a New Course for Parents, 00:17:25 - The Importance of Advocacy, 00:21:05 - Speaking Up for Change, 00:24:35 - The Pressure of Being a Parent Advocate, 00:27:08 - Differentiating Between Healthy and Unhealthy Advocacy, 00:30:45 - The Importance of Support and Self-Care, 00:31:38 - Utilizing Social Media for Connection, 00:32:03 - Prioritizing Mental Health, 00:33:08 - Dreams and Future Aspirations, 00:33:28 - Resources and Support Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

Welcome to the ChildLife On Call podcast, where I, Katie Taylor, sit down with Kayleigh Koehler, a certified child life specialist, to discuss her journey as a medical mom and a child life specialist in a cardiac ICU. Join us as we dive into Kayleigh's personal story, from her gut intuition during pregnancy to her son's diagnosis, and the emotional challenges she faced along the way. We explore the importance of trusting gut intuition, the complexities of navigating the healthcare system as a parent, and the impact of personal experiences on professional practice. Whether you're a child life specialist, nurse, doctor, or any healthcare professional working with pediatric patients, this episode will provide you with valuable insights and a deeper understanding of the emotional journey of becoming a medical mom. Get ready to be inspired and gain a new perspective on supporting families through challenging medical experiences. In this episode, you will be able to: Delve into the empathetic journey of a child life specialist turned medical mom and the untold lessons it brings. Learn the underrated power of trusting gut instincts during pregnancy for improved health decisions. Acknowledge the challenges and rewards of juggling roles as a child life specialist and a parent to a child with a cardiac defect. Dissect the fight for children's rights in healthcare and the persistence it requires to make a change. Unpack the emotional turmoil in parenting and its impact on one's personal identity in exigent situations. My special guest is Kayleigh Koehler Our guest today, Kayleigh Koehler, paints a picture of resilience and determination in her unique personal and professional journey. From her early days being a carefree high school lover with her husband, Mitch, to becoming a mother to their vibrant son, Hudson - she personifies strength. Alongside the joys and challenges of parenting, Kayleigh also stars as a certified child life specialist working passionately in a cardiac ICU. When they discovered Hudson's heart condition, her professional and personal life merged in an unprecedented way. This transformative experience endowed Kayleigh with a profound understanding of patient care, advocacy, and resilience. Her story is a testament to her unbreakable spirit. The key moments in this episode are: 00:00:00 - Introduction, 00:03:59 - Colliding Worlds, 00:06:20 - Identity Shift, 00:08:55 - Gut Intuition, 00:12:11 - Anatomy Scan, 00:14:57 - The Moment of Knowing, 00:18:08 - Feeling Angry and Resentful, 00:19:36 - Coming to Terms with the Diagnosis, 00:21:42 - Living in the Messiness, 00:28:22 - Giving Permission for Imperfection, Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

Meet J.R., a parent on a challenging journey. From aggressive behaviors to sensory challenges, she shares her struggles of raising a child with severe special needs. But just when things start to improve, an event occurs which leaves her questioning everything. You will not want to miss this story of resilience and uncertainty. In this episode, you will be able to: Gain insights into the journey of raising a child with significant special needs, and learn how to turn these experiences into growth opportunities. Discover the challenges in obtaining an early diagnosis and the role of perseverance in overcoming these hurdles. Understand the importance and the process of tailoring therapeutic interventions for your special needs child. Identify the importance of self-care and support networks for parents and caregivers of special needs children. Immerse in the raw and real-life narration of completing a book detailing a child's unique experiences. My special guest is J.R. Meet J.R., a remarkable woman whose world authentically embodies the complexities and nuances of parenting. An academic powerhouse, J.R. boasts a solid background in molecular biology and human genetics. But it's her real-life experience as a mother to three beautiful sons - one of whom has a severe diagnosis - that truly validates her expertise. Her middle son's journey with intellectual disability, seizures, autism, and behavioral challenges led to his group home placement from the age of twelve. J.R.'s dedication to understanding and improving the lives of children with complex needs manifests in her volunteering with the SynGAP Research Fund. Her candid accounts of becoming a parent, navigating the healthcare system, and learning to balance her family's varied needs radiate a contagious strength and resilience. The key moments in this episode are: 00:00:09 - Welcome to ChildLife on Call, 00:01:11 - Introduction of Jr. and her Family, 00:06:40 - Placing Her Son in a Group Home, 00:10:17 - Transitioning into Motherhood, 00:11:29 - Advocating for Her Son's Needs, 00:15:41 - The balance between love and fear, 00:16:29 - Therapy and transformation, 00:18:03 - Floor Time therapy, 00:22:26 - Wisdom of a child, 00:25:19 - Self-care and challenging cultural expectations, 00:30:48 - The Start of Challenging Behaviors, 00:32:36 - Underestimating Sensory Challenges, 00:34:22 - Reaching a Breaking Point, 00:36:14 - Fear and Relief in Getting Help, 00:45:46 - The struggle to finish the book, 00:46:15 - Joey's aging, 00:46:53 - Timing is everything, 00:47:32 - Gratitude for the community, 00:48:09 - Conclusion and resources Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialist and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

In the world of healthcare, where hope often intertwines with despair, one woman's accidental encounter sparked a revolution of compassion. Casey Baynes, driven by a single twist of fate, unlocked the power of providing support and joy to critically ill children and their families. The story unravels in unexpected ways, leading us down a path where ordinary logistics transformed into extraordinary healing. Brace yourself for a tale that will leave your heart racing and your soul yearning for more. My special guest is Casey Baynes Casey Baynes is an inspiring individual with a heart of gold and an unmatched passion for supporting the families of critically ill children. She has dedicated her life to ensuring that these families are treated with love, compassion, and care through her organization, Casey Cares Foundation. Having started her journey as a volunteer at a children's hospital, Casey's life took an unexpected turn when she witnessed the challenging lives of these children. Today, with her team, she creates memorable moments for these young patients and their loved ones with programs like Cammie's Jammies and fun family movie nights. If we all pull together and help and support one another, we can make it. - Casey Baynes In this episode, you will be able to: The key moments in this episode are: 00:00:00 - Introduction, 00:03:06 - Impact of a Child's Wish, 00:09:14 - Support for Bereaved Families, 00:10:47 - Family Time in the Hospital, 00:12:31 - Essential Supplies and Support, 00:14:09 - Casey Cares: Supporting Families of Critically Ill Children, 00:15:19 - Creating Lasting Memories for Families, 00:16:31 - Supporting Siblings of Critically Ill Children, 00:17:37 - Getting Involved with Casey Cares, 00:19:21 - Easy Application Process and Ways to Support, Connect with Casey Cares Follow Casey Cares on Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Have you ever heard these myths about preparing children for ambulance rides and hospital transfers? Myth 1: Children don't need any special preparation for medical transportation. Myth 2: It's best to keep children in the dark about what to expect during the ride. Myth 3: Distractions like toys or electronics can prevent children from feeling anxious. In this episode, our guest Josh Itano will debunk these myths and share the truth about how to prepare children for a smooth and anxiety-free medical transportation experience. Join host Katie Taylor as she interviews ambulance paramedic Josh Itano, who shares valuable insights on how to prepare children for ambulance rides and hospital transfers. Learn how to ease your child's anxiety and create a comforting environment, but be prepared for a shocking moment that will leave you questioning what happens next. Find out more on the Child Life On Call podcast. In this episode, you will be able to: Navigate the intricate relationship between Child Life and EMS for effective emergency service delivery. Realize the value of establishing strong family communication mechanisms during emergency medical situations. Unearth helpful strategies to make ambulance rides and hospital transfers less daunting for children. Unwrap the significance of preparation books and visual aids in children's adaptation to medical scenarios. Investigate how creating a comforting environment affects pediatric patients' overall experience. My special guest is Josh Itano. Meet Josh Itano, an empathetic first-responder whose commitment to his profession is evident in the extra steps he takes to provide comfort during stressful times. After spending over three and half years working as an EMT Basic, Josh's experiences span from serving suburban Chicago neighborhoods to aiding in wilderness settings. He's been an EMTB Field Training officer and chaplain, and he voluntarily serves the Glenwood Volunteer Fire Department. Josh brings to light the critical aspect of communication during high-stress situations and shares his experiences dealing with a range of patients, including those dealing with psychological distress. The key moments in this episode are: 00:00:00 - Introduction, 00:01:15 - Why Josh Reached Out, 00:05:37 - Communicating with Kids, 00:09:20 - Validating and Listening, 00:11:53 - Being Honest and Detailed, 00:14:37 - What Happens During an Ambulance Call, 00:15:57 - Inbound Report and Hospital Arrival, 00:17:56 - Sensory Issues and Sirens, 00:19:16 - Involving Parents and Normalizing the Experience, 00:24:31 - Parents Taking Care of Themselves Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialist and Clinicians! 🌈👨‍👩‍👧‍👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!

In a world turned upside down by the pandemic, one Child Life Specialist found herself on a journey she never could have anticipated. But little did she know, a twist of fate was about to lead her down an unexpected path. This story is the catalyst for a groundbreaking virtual Child Life Specialist program. Stay tuned to discover how her resilience and determination transformed the healthcare experience for children and their families, forever changing the landscape of pediatric care. In this episode, you will be able to: Explore the unique workings of the virtual child life specialist program at Helen DeVos Children's Hospital. Dive deep into the methodology behind pre-surgical tours and outpatient surgery center tours to deliver premium care. Realize how fundamentally decreasing anxiety levels pre-medical procedures can contribute to empowering families. Dive into the groundswell of positive feedback flooding in from staff and families regarding virtual visits. Realize the compelling need for specialists to craft personalized messages for optimal patient interaction. My special guest is Sarah Lanham Meet Sarah Lanham, a dedicated and passionate Certified Child Life Specialist revolutionizing the field with her innovative virtual services. She hails from Grand Rapids, Michigan, working at the renowned Helen DeVos Children's Hospital. Since stepping into the world of virtual patient care, Sarah has effectively transformed traditional face-to-face services, demonstrating the direct impact virtual child life services can have on kids and their families. Her work not only helps to demystify hospital visits for children but also significantly reduces their apprehension and fear. Her successful adaptation to a virtual setting underscores her skill in navigating the modern needs of child healthcare. The key moments in this episode are: 00:00:00 - Introduction, 00:02:07 - Transition into Virtual ChildLife Services, 00:06:30 - Daily Responsibilities, 00:09:09 - Challenges and Solutions, 00:12:19 - Impact and Feedback, 00:14:21 - Constant Communication and Handoffs, 00:14:57 - Need for More Child Life Specialists, 00:15:47 - Success of Email Communication, 00:16:51 - Technology's Impact on Appointment Reminders, 00:17:39 - Appreciation for the Guest's Work, Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

A mother fights against time and navigates the emotional rollercoaster of her daughter's lung transplant, as she strives to fulfill her promise while facing the heart-wrenching challenges of the organ transplant process in a race for survival. In this episode, you will be able to: Uncover the intricate realities of pediatric lung transplants and management of exceptional medical conditions. Relate to the heart-rending emotional challenges families wrestle with during the organ transplant procedure. Comprehend the physical restrictions imposed on children by pulmonary hypertension and PVOD. Appreciate the critical role of sturdy support networks and trusty medical personnel in the face of daunting health dilemmas. Spark dialogue about the pressing imperatives of greater recognition and resources needed by families dealing with severe health situations. My special guest is Jan Stepps Life sometimes throws curveballs that test our strength and resilience. As a parent who has navigated the complex journey of her child's lung transplant, Jan Stepps is a beacon of hope and strength for all families facing similar situations. Armed with personal experience and the lessons learned from her daughter's PVOD diagnosis and subsequent transplant, Jan generously shares her insights on the emotional highs and lows of this life-changing journey. Once an accomplished train dispatcher, she adeptly uses her situational management skills, providing clarity amidst the chaos that such overwhelming situations create. The key moments in this episode are: 00:00:00 - Introduction, 00:04:33 - Initial Symptoms and Diagnosis, 00:07:40 - Pulmonary Hypertension and Transplant, 00:10:57 - Emotional Response and Coping, 00:13:55 - Supportive Network, 00:15:39 - Dealing with Difficult Conversations, 00:16:20 - Telling an Eleven-Year-Old, 00:18:40 - Understanding PVOD, 00:20:15 - Overwhelmed by Transplant Process, 00:26:30 - Finding Support in a Transplant Community, 00:32:28 - "The Importance of Keeping Promises", 00:33:45 - "The Transformation After the Lung Transplant", 00:35:09 - "Handling Follow-up Visits and Appointments", 00:36:24 - "Personal Growth and Perspective Shift", 00:38:47 - "Humor and Healing", Connect with Jan Instagram Facebook Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

[ Child Life 101] How to Prepare Children for Medical Procedures Does this sound familiar? You try to prepare children for medical procedures, but no matter what you do, they still end up feeling stressed and anxious. You've been told to simply explain the procedure to them, but it's not working. The pain of seeing children scared and overwhelmed during medical experiences is heart-wrenching, and you're desperate to find a better way to help them feel informed and equipped. Watch This Episode On YouTube In this episode, you will be able to: Discover savvy ways to prepare children for complex medical procedures letting families breathe easy. Unearth potent strategies to mitigate infants' hospital-induced stress and provide aid. Learn game-changing techniques that turn medical acclimatization into child's play for toddlers. Master the art of using imagination and language as tranquilizing tools for preschoolers. Understand how to empower school-age children with the ability of choice during medical preparation. The key moments in this episode are: 00:00:00 - Introduction, 00:00:59 - The Role of ChildLife Specialists, 00:03:48 - Preparing Infants for Procedures, 00:07:50 - Preparing Toddlers and Preschoolers, 00:13:56 - Preparing School-Age Children, 00:16:27 - Importance of Peer Support for Teens, 00:17:15 - Maintaining Privacy and Independence for Teens, 00:17:52 - Recap of Stressors and Considerations for Different Age Groups, 00:18:30 - Conclusion and Invitation to Continue Child Life 101 Series, 00:19:00 - Wrap-Up and Closing Remarks, We want to make sure that they have accurate information. One of the things we can do with these preschoolers who use their beautiful imagination is really use that to our advantage when we are preparing them for something. - Katie Taylor Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

If you're feeling overwhelmed, frustrated, and powerless as you try to address your child's unresolved behavioral issues, only to see them persist and worsen, then you are not alone! Despite your best efforts, the actions you may already be taking, such as discipline strategies, counseling, or seeking help from professionals, may not be producing the desired results. Instead, you may be witnessing strained relationships within your family, academic struggles, social isolation, and a constant sense of stress and worry. Understanding the long-term effects of unresolved behavioral issues on individuals and families is crucial in order to find effective support and interventions for your child. In this episode, you will be able to: Unravel the secrets to overcoming behavioral dilemmas in parenting. Be immersed in the transformative world of neurofeedback therapy. Advocate for alternative healthcare treatments to disrupt the traditional landscape. Dive into how neurofeedback revolutionizes family dynamics. Grasp the lasting influence of unaddressed behavioral issues on family and personal life. My special guest is Dianne Kosto Our guest for this episode is Dianne Kosto, founder, and CEO of Symmetry Neuro-PT. A mother deserving the title on a mission, she has spent her life tirelessly looking for ways to help her son. Her dedication led her into unfamiliar territory: Neurofeedback. From holes in the walls to constant disruption at home and school, Dianne's quest for a solution kept taking her back to square one. That is, until she discovered neurofeedback. This unexpected journey allowed her son to thrive and inspired Dianne to shift gears professionally, creating a platform through which she could support other families. The key moments in this episode are: 00:00:00 - Introduction, 00:03:06 - Recognizing the Issue, 00:06:23 - Seeking Help, 00:07:27 - Neurofeedback Saves His Life, 00:09:19 - Coping and Emotional Impact, 00:14:22 - The Effectiveness of Neurofeedback, 00:15:07 - The Process of Neurofeedback, 00:16:12 - History and Research of Neurofeedback, 00:18:09 - Positive Results and Trust, 00:21:06 - Dianne's Personal Journey, 00:28:47 - Social Media Presence, 00:29:10 - Website and Resources, 00:29:39 - Interaction on Instagram Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

Attention, parents! Have you ever come across these myths while seeking ways to support your child's emotional well-being during healthcare experiences? Myth #1: Children are too young to understand and process their emotions. Myth #2: Therapeutic play is just a form of entertainment, not a valuable tool for emotional support. Myth #3: Children will naturally bounce back emotionally after healthcare experiences. Well, today we have an expert guest, Laura Sufka, who will debunk these myths and shed light on the importance of therapeutic play in supporting children's emotional well-being. Get ready to discover the truth and equip yourself with the tools to help your child process their emotions effectively. In this episode, you will be able to: Absorb knowledge about the compelling benefits of therapeutic play in fostering children's emotional health. Differentiate between the often-confused arenas of play therapy and therapeutic play. Delve into Laura Sufka's impressive experience and skills in the realm of therapeutic play. Appreciate the subtle yet powerful language of play for children's emotional processing. Recognize the crucial work of Child Life specialists in providing psychological and emotional support to children during their healthcare journeys. Let's introduce Laura Sufka, certified Child Life Specialist and a staunch believer in the healing power of play. With more than 20 years serving children and families in the healthcare setting, Laura's approach to children's emotional well-being emphasizes the therapeutic power of undirected play. Her extensive experience across various healthcare environments shaped her holistic approach, continuously adapting and evolving to best serve children's needs. She is the proud founder and owner of Children's Coping Connection, her private practice. Here, Laura employs therapeutic play as a modality to help children process challenging life events, extending her expertise and support into the homes of those in need. Her work underlines her unwavering dedication to empowering children in healthcare settings. The key moments in this episode are: 00:00:00 - Introduction, 00:02:13 - Laura's Background, 00:08:11 - How Families Find Laura, 00:11:23 - Therapeutic Play, 00:14:19 - Goals of Therapeutic Play, 00:15:58 - The Importance of Play and Communication with Children, 00:17:29 - The Benefits of Therapeutic Play, 00:19:34 - The Power of Play in Processing Emotions, 00:20:03 - Getting Started with Therapeutic Play, 00:24:01 - The Importance of Play in Building Trust and Connection, 00:30:57 - Welcome and Introduction, 00:31:03 - Website Resources, 00:31:28 - Call to Action Connect with me here: https://www.linkedin.com/kfdonovan http://www.instagram.com/childlifeoncall http://www.childlifeoncall.com https://www.facebook.com/childlifeoncall https://www.youtube.com/childlifeoncall

If you're feeling overwhelmed and powerless as you watch your teenager's health concerns worsen, despite your efforts to find solutions, then you are not alone! In this episode, you will be able to: Discover why your innate parental instincts can serve as an invaluable guide for your child's health concerns. Unlock the importance of open and constant communication in discerning your child's wellbeing. Recognize how seeking advice from health professionals can be a game-changer when in doubt. Appreciate the immeasurable power of your intuition in pinpointing potential mental health issues in your child. Realize why keeping a record of your child's behavior or appearance fluctuations can significantly aid medical professionals. In a world where unexpected twists can alter the course of our lives, Hina Talib's journey into adolescent medicine was nothing short of serendipitous. Little did she know that a chance encounter during a medical school rotation would ignite a passion so fierce, so resolute, that it would shape her life's work. But what was it about this field that captivated her? What secrets did she uncover that could forever change the lives of parents with health concerns for their teenagers? Brace yourselves, for within this transcript lies an unexpected twist that will leave you yearning for more. The key moments in this episode are: 00:00:00 - Introduction, 00:02:10 - Empowering Parents in Adolescent Medicine, 00:06:03 - Reframing Adolescence, 00:08:49 - Labels and Advocacy, 00:11:14 - Transitioning to Self-Advocacy, 00:14:18 - Importance of Medical History for Children, 00:15:06 - Transitioning to Independent Medical Management, 00:16:34 - Navigating Complex Medical Conditions in Adolescence, 00:20:13 - Positive Reinforcement and Regular Check-ins, 00:23:14 - Risks and Challenges in Post-Pandemic Socialization, 00:28:34 - Checking in with Your Young Person, 00:29:23 - Trust Your Gut, 00:30:40 - Don't Wait to Take Action, 00:31:41 - Asking for Help is a Sign of Strength, 00:32:26 - Connect with Dr. Hina Talib, The resources mentioned in this episode are: Follow Dr. Hina Talib on Instagram as @TeenHealthDoc for thought-provoking and educational content on adolescent medicine. Check out the Child Life On Call app, a resource for parents with children who have medical experiences, diagnoses, or diseases. Explore Hello Sleuth, a startup in New York City that puts parents and teens at the center of adolescent medicine. Remember that words matter when communicating with teens and their parents. Avoid labeling and use empowering language when discussing medical conditions. Encourage teens to advocate for themselves by asking questions, seeking information from healthcare professionals, and taking an active role in their own healthcare decisions. Familiarize yourself with the field of transition medicine, which helps guide adolescents in becoming their own chief medical officers and transitioning from parental healthcare management. Start the transition process early, with milestones such as private, confidential time with the teen, encouraging them to ask questions, and involving them in their own healthcare decisions. Create opportunities for one-on-one conversations with adolescents to ensure their voices are heard and their questions are addressed. Be mindful of the timing when assigning medical care tasks to adolescents with chronic conditions, avoiding overwhelming them during times of flare-ups

Empowering NICU Parents: Kimberly Reyes Shares Her Advocacy Journey If you're feeling helpless and overwhelmed in your NICU journey, despite trying to be involved and advocate for your baby, then you are not alone! It can be frustrating when your requests and concerns are not heard or acted upon by healthcare providers, and you may feel like you have no control over your baby's care. You may be spending countless hours researching and asking questions, but still feel like you're not making progress. It's important to know that your feelings are valid and that there are ways to increase your involvement and advocacy in your baby's care. In this episode, you will be able to: Unravel the art of parental advocacy and participation in a NICU setting. Probe into the emotional and psychological toll of having a child with complex medical needs. Discern the value of empathy in delivering exceptional patient-oriented healthcare. Understand the importance of flexibility and adaptability in the practices of healthcare professionals. Unearth innovative techniques to combat burnout and prioritize self-care among healthcare workers. My special guest today is Kimberly Reyes. We are excited to introduce Kimberly Reyes, a compassionate mother who channeled her own NICU journey into a mission to inspire and educate other parents. With a background in teaching that spans 15 years, Kimberly has a natural ability to connect with others and share her story in an impactful way. Facing the challenges of having a premature baby during the global Covid-19 pandemic, she has become a resilient advocate for parental involvement in the NICU. Kimberly's firsthand experience of fighting for her child's care and advocating for her family has made her story both relatable and inspiring for other NICU parents. The key moments in this episode are: 00:00:02 - Introduction, 00:02:42 - Pregnancy Journey, 00:06:55 - NICU Journey, 00:10:43 - Advocating for Yourself and Your Child, 00:14:46 - Conclusion, 00:16:17 - The Importance of Humanity in Medical Care, 00:21:23 - Recognizing Grief in Medical Settings, 00:25:00 - Finding Community and Support in Medical Settings, 00:29:32 - The All the Unexpected Hub, 00:33:23 - Importance of Advocacy, 00:33:53 - Changing World Views, 00:34:07 - Gratitude Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Do you want to feel empowered and confident in advocating for your child's healthcare needs? Are you searching for a solution that will help you effectively speak up for your child in healthcare settings? In this episode, I will be sharing the key to unlocking your advocacy potential, enabling you to achieve the outcome you desire - ensuring the best possible care for your child. By exploring the role of child life specialists, together we will explore how child life provides you with the knowledge and tools necessary to become a formidable advocate. Say goodbye to feeling overwhelmed and uncertain, and hello to being a strong and effective voice for your child's healthcare needs. They show you how to understand your child's needs and empower you to advocate for their wellbeing. In this episode, you will be able to: Understand why parental advocacy is essential to getting the best possible health outcome for the child Learn how child life specialists use their skills to help parents learn how to advocate Be aware of the challenges of advocating in healthcare and how child life supports parents during those times. The key moments in this episode are: 00:00:21 - Introduction, 00:01:11 - The Importance of Parent Advocacy, 00:03:10 - Research on Caregiver Advocacy, 00:04:22 - Teaching Parents How to Advocate, 00:07:28 - Overcoming Challenges of Advocacy Resources mentioned in this episode: Visit Child Life On Call's website at childlifeoncall.com/parents to access more information and free resources to help support your child's unique needs. Tune in to the Child Life On Call podcast every Wednesday to hear parent stories and gain insights from those who have gone through similar experiences. Explore the different episodes of Child Life On Call 101, where we cover various topics related to child life specialist practices, to learn more about how you can implement these tools and tips into your family life or professional work. Sign up for updates and newsletters from Child Life On Call to stay informed about new resources, events, and opportunities to further support your child's healthcare journey. Take advantage of the educational and emotional support provided by Child Life On Call specialists to help you navigate the hospital system and effectively advocate for your child's needs. Share your journey and experiences as a parent on the Child Life On Call podcast to support and inspire others going through similar situations. Connect with the Child Life On Call community through social media platforms to engage with other parents and caregivers who are also navigating the healthcare system and advocating for their children. Consider becoming a member of Child Life On Call to Every family deserves a child life specialist. ________________________________________ Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field. She is an accomplished author, an engaging speaker on child life and entrepreneurship, and the host of the Child Life On Call Podcast. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Today's guest on the podcast is Dr. Barbara Hecht, National Director of Strategic Initiatives and Partnerships at Clarke Schools for Hearing and Speech. She shares with us how to support Deaf, Deaf +, and Hard of Hearing students. Dr. Hecht shares about early intervention, brings awareness to CMV (cytomegalovirus), and how telehealth has positively impacted students. Katie and Dr. Hecht have such an important conversation you will not want to miss on today's episode of the podcast! [2:20] Dr. Hecht introduces herself [3:40] Being involved with the IDEA law [5:42] How she became involved with Clarke Schools [10:00] Diagnosing hearing loss in infancy [12:40] Two major causes of hearing loss [13:16] Cytomegaolvirus (CMV) during pregnancy [15:12] Importance of early intervention [17:50] Early Intervention is available in every state [18:39] Pleasantly persistent parent [20:00] Acess to Clarke Schools [21:36] Efficiency of teleservices [24:33] How Clarke Schools support families [26:45] Explaining Deaf + [28:40] Integrating a tool for everyone [31:00} Normalization n the atypical Connect with Clarke Schools Clarke Schools Wesbite Instagram Twitter Facebook LinkedIn When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot Website Download SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the SupportSpot app's comprehensive resources and user-friendly interface. 92% of parent users say the SupportSpot app's helped them understand medical procedures and treatment better. 80% of parents believe the SupportSpot app's has contributed to better health outcomes for their child. 73% of parent users believe the SupportSpot app's has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Going to the emergency room with your child for any reason is never an occasion you plan on. Today, Sam Kraewic and Jessica Baird, Child Life Specialists working in the Emergency Room empower and equip us on how to be the best advocates when it comes to the Emergency Room. From medical play to normalizing the hospital at home there are many ways parents can plan for the unexpcted. Katie, Jessic and Sam have great conversation surrounding Child LIfe in the Emergency Room. [3:30] Introductions [3:46] Meet, Jessica [4:40] Meet, Sam [6:25] Swabs in the emergency room [8:15] Medical play for swabs [10:00] Letting parents know they have a voice [12:00] Comfort items in the waiting room [13:34] Triage can be stressful [14:50] Talking to your child about what you might see [15:19] Don't make promises they can't keep [18:17] Familiarizing home and hospital [20:20] Children feed off our emotions [22:22] Stepping away is ok [23:10] Mental Health in the Emergency Room [25:50] Therapeutic games addressing emotions [27:00] First trusted contact Connect with Jessica and Sam Jessica Sam Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.

"What we can do as parents and professionals is look past the behavior." Helping Hands: Resources for Parents Supporting Siblings in Healthcare Situations I remember the first time I saw the impact of a sibling's illness on a family. It was heart-wrenching to watch as the older sibling hesitantly chose a toy to play with in the hospital playroom. As a Child Life On Call specialist, I've learned valuable strategies to support siblings in healthcare situations. But what surprised me was the positive transformation that happened when we involved siblings every step of the way. By providing age-appropriate information and emotional support, we strengthened bonds and alleviated misunderstandings. The unexpected twist? Seeing the siblings become stronger together. Now, as I continue to support families, I'm reminded of the remarkable resilience of siblings. And I can't wait to see where their journey takes them next. In this episode, you will be able to: Discover effective ways to support siblings during healthcare situations. Learn how to provide accurate and helpful information to siblings in a way that is easy to understand. Unlock the secrets to fostering better communication between family members. Gain insights into addressing the emotional needs of siblings in difficult times. Explore techniques for normalizing the hospital experience to lessen sibling anxiety. The key moments in this episode are: 00:00:21 - Introduction, 00:01:58 - Communication with Siblings, 00:06:02 - Emotional Needs of Siblings, 00:09:33 - Normalize the Experience for Siblings, 00:11:12 - Conclusion, Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan

Dr. Maureen Michele brings such a valuable perspective to the podcast with her experience being a pediatrician and mother to a medically complex child. Maureen shares with us how to become an advocate and what inspired her to write a book called, 'Reclaiming your Life.' Her book is meant to guide parents who have a child with a medical diagnosis. Maureen shares a snapshot of her book through a thoughtful conversation with Katie. [4:00] Introductions [6;00] Motherhood and Medical School [7:02] Learning her daughter had neuroblastoma as an infant [8:00] Her daughter shared concerns about frequent urination [8:42] Learning she had type 1 Diabetes [10:00] How it changed her as a physician [12:21] Realizing what was unhealthy [14:50] Losing herself in the process and worry [16:00] Doctors are human too [17:30] Trust but verify [18:16] Collaboration between parents and doctors [19:30] Approaching the situation with a spirit of collaboration [24:16] Reflecting on her daughter's care [25:30] Wanting to be a mom, not a doctor [28:52] '"Reclaiming Life" book Connect with Maureen Website Facebook Instagram Twitter LinkedIn Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to: Give medicine to your child without it becoming a wrestling match Prepare your child (and yourself) for a shot so they can feel less anxious Create and use a coping plan for any medical appointment or procedure The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here.

So happy to share this "child life insight" with parents and professionals, but first let's answer the question: What are child life specialists? Child life specialists are trained professionals who provide emotional support and guidance to children and families facing challenging life experiences. They are experts in helping children cope with difficult topics and ensure that children's development is as smooth as possible while going through challenging times. In this episode, we talk about how caregivers navigate difficult conversations: Here's a break down of what we cover: First, take time to explore your own emotions around the information. Talk to your child about the situation in a way they can understand. Validate your child's emotions. Create a safe environment for your child to express their emotions. Encourage your child to name trusted adults and explore coping strategies. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan