Hold the Moment

When Kath who lives with dementia became confused inside a public toilet, her husband Bob knew something had to change. What started as one small fix in the tiny coastal town of Tumby Bay, South Australia, soon grew into action by the local council — and sparked a ripple effect reaching communities far beyond their town. No one can make big changes on their own. Dementia Australia’s National Manager Dementia-Friendly Communities Belinda Curtis explains how small actions can lead to lasting change and why connection really matters when it comes to assisting those living with a dementia diagnosis. +++ Hold The Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers. Follow Dementia Australia on Instagram and find support resources online. Dementia Australia’s Dementia-Friendly Communities program informs and supports people who want to collaborate with people living with dementia to create communities where everyone can participate. This episode was produced by Amelia Navascues with sound design by Slade Gibson. The executive producers are Sarah Dabro and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

So much changes when someone you love is diagnosed with dementia and often the most difficult adjustment can be coming to terms with how it affects your relationship. You might still be parent-and-child, romantic partners, siblings, but you’ll also have to step into a new role entirely as a carer. For Col, this feels like ‘taking his turn’. His wife Shirley took on much of the caring work when they were raising kids together, and now Col and the kids are looking after her. For Sanna, who cared for her mother, the relationship shift was much more dramatic. After being diagnosed, Sanna’s mother didn’t recognise her at all and it looked, for a little while, like their connection might’ve disappeared altogether... Dementia changes things and it will change your relationship with the person you’re caring for – but you can take steps to ease the change for both of you. +++ Hold The Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

It’s tough watching someone you love change, especially when it starts to shift the way you relate to each other. As a carer, your role evolves in ways you may not have expected, which can make things feel uncertain. This episode has tips and ideas to help you maintain your connection. If you’d like personalised advice on how to reconnect or just smooth any tensions as your relationship changes, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. To hear how other carers have re-connected with their loved ones, you can also [listen to this episode of Hold the Moment] . +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Caring for others often means putting your own needs on the back burner but you can’t give your best if you're running on empty. Self-care is crucial to avoid burnout and stay healthy. This episode has tips to help you find time for yourself while in the chaos of caring. If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. To hear how other carers are managing their self-care, you can listen to this episode of Hold The Moment] +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Vicki’s pain wasn’t going away and she couldn’t figure out why. She was healthy, ate well, exercised regularly...but the pain just wouldn’t let up, even keeping her from sleeping sometimes. Finally, she realised it might be the culmination of years of stress. She’d cared for her husband, Michael, for over a decade and he’d only just transitioned into permanent residential care. For the first time, she felt relief – but her body was catching up after years of pushing through exhaustion. Caring for someone living with dementia can be emotionally and mentally overwhelming but it can take a physical toll too. Find out how Vicki regained her health and how you can implement self-care while caring for someone else. +++ Hold The Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

Managing paid work and caring for your loved one with dementia is a delicate juggling act, with many balls in the air at a time. While it’s tricky to keep from dropping any, it doesn’t always have to be an either/or decision between caregiving and your career. This episode will give you practical strategies for approaching your employer and finding ways to balance both roles without losing yourself in the process. If you’d like personalised advice on how to balance both worlds, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

If you’re caring for someone living with dementia, you know it can take just as much work as any formal job... but many carers need to continue paid work while caring. So how do you manage that juggle? Wendy loves her work, especially the intellectual challenges it presents, so didn’t want to give up her career when she took on caring duties for her dad. Instead, she moved to part-time employment so she could have more flexibility and control over her and her dad’s schedules. Find out how to balance work commitments and caring duties, whether that means a frank conversation with your managers or some clever timetabling around medical appointments. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

Caring for someone with dementia means you’re constantly learning—how to navigate healthcare, manage family dynamics and balance work with caregiving. You quickly become an expert in so many areas, often without realising it. But how do you share that wisdom with others? And what happens to all that knowledge once your loved one passes? Sharing your experiences with other carers can be incredibly valuable, not just for them but for you as well. It helps you to connect with others and can give you a renewed sense of purpose. If you’d like personalised advice on how to connect with other carers, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. You can also listen to this episode of Hold the Moment to hear more stories of how other carers are sharing their knowledge. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Caring for someone living with dementia requires you to learn so much so quickly. From navigating a complex healthcare system, to managing family dynamics, to balancing caring duties with paid work – you’ll have to become an expert in a lot of areas very fast. But what do you do with all that knowledge after the person you cared for passes away? Miriam’s mum lived with dementia and, in her community in the Northern Territory, the condition wasn’t well understood and rarely talked about. But Miriam’s first-hand experience as a carer, as well as a Family and Community Coordinator for Dementia Australia, made her the go-to person on the subject. Miriam shares her story and explains why she’s so passionate about passing wisdom on to her community and the next generation of carers. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

People often think of grief as sadness felt when a loved one passes away. But grief can surface at many stages of caring for someone living with dementia, often in ways that you don’t expect. There are ways to care for yourself, find comfort and reconnect with what brings you happiness. This episode offers simple, practical ways to process those emotions while still embracing joy, connection and the things that make you feel like you. If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. Dementia Australia offers counselling support for caregivers and family members, find out more here. You can also listen to this episode of Hold the Moment to hear more about how other carers are working through their grief. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Jenny started grieving well before her husband passed away. After Noel was diagnosed with dementia, Jenny knew their life together would never be the same. But the grief she felt about that gave her strength and purpose too... Grief will be a major part of your journey if you’re caring for someone living with dementia. You might grieve the relationship you had before their diagnosis and you might be grieving after the person you cared for has passed away. It’s a natural part of the process and it’s painful, but there are strategies that can help you manage. Jenny shares what helped her through and Mara, a Dementia Australia counsellor, shares how she helps carers through tough times. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

Navigating the healthcare system on behalf of someone living with dementia can be challenging, especially when the different systems you’re engaging with don’t speak to each other. This episode offers simple tips to streamline the process. If you’d like personalised support on how to approach appointments or figure out the health care systems, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. If you’re considering residential care for your loved one with dementia, you can register for Dementia Australia’s helpful webinar here. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Nick’s in a pretty unique position as a carer. “I can’t fix the problem with my mum but as an engineer, I can problem-solve. I can advocate for her and give her a voice when she can’t navigate the system,” Nick said. As an engineer, Nick’s used to untangling complex systems. He’s about as tech-savvy as they come but even he found it frustrating trying to access support for his mum, who’s living with Alzheimer’s disease. Dementia Australia Executive Director Services, Advocacy and Research Dr Kaele Stokes sees the system from another angle, and offers tips for new carers who don’t know where to start. If you’d like to access counselling services, you can visit the counselling section on Dementia Australia’s website or the CarerGateway. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. Production by Liam Riordan and sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

Whether you're new to caring or have been supporting someone with dementia for a while, it’s not always clear where to turn to for help. Every carer’s path is different, but you don’t have to figure it out alone. This episode offers straightforward advice on where to get help, what support services are available and why it’s never too early to reach out. If you’d like tailored support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. If you want to hear stories about other carers’ experiences, [listen to this episode of Hold the Moment]. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Rachel Corbett couldn’t afford to put her life on hold, even when her mother was diagnosed with Alzheimer’s disease. She was in her 20s, her career wasn’t established and she wanted to have kids, so spent the next few years looking after her mum while juggling everything else in life. Then her dad was diagnosed with Lewy body dementia. Rachel would go on to spend her 30s supporting and caring for her parents. “I did have a difficult time with both my parents because of this, but it connected us in a way that might not have ever happened if they were both well.” Caring for someone living with dementia can be overwhelming, but you’re not alone. Hold the Moment is a podcast by people living with dementia and their families, and season two is all about people who are caring for loved ones with dementia. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

"As carers of people living with dementia, we all have a public face and a private face." When someone you love is diagnosed with dementia there’s a lot you take on – physically, mentally and emotionally. So how do you even start to process all these changes? On Hold the Moment, you’re not alone. Join Jim, who was diagnosed with younger-onset Alzheimer’s, and his co-host Hamish Macdonald, whose dad lived with Parkinson’s and Lewy body dementia, as they learn how their peers are managing their new circumstances. We’ll also bring in a few experts along the way for advice on the especially tricky stuff, like navigating the complex maze of care systems. Follow Hold the Moment wherever you get your podcasts so you don’t miss an episode. And share it with anyone you know who’s caring for someone with dementia. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish MacDonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This trailer was produced by Liam Riordan. Sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production Manager is Ann Chesterman. We acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

Over the last few months, the Hold the Moment team has been hard at work... Your response to our first season was incredible, and luckily you won’t have to wait long for more episodes. Hamish and Jim are back for a quick announcement. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. Follow Dementia Australia on Instagram and find support resources online. This episode was produced by Gia Moylan. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

A dementia diagnosis has a ripple effect across families. So where can you turn for information and support? This bonus episode is packed with tips for families who want to know more about how to support themselves and a family member living with dementia. Whether you live close to your loved one or further afield, Dementia Australia has many helpful resources and programs specially tailored to family members of any age, including children. If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. For more information, explore our support resources for family, friends, and carers or learn more about staying connected with loved ones. You can also listen to this episode of Hold the Moment to hear candid stories from families who have been impacted by a dementia diagnosis. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

When Millie Rogers first discovered her dad, Jim Rogers (co-host of Hold the Moment), had received a diagnosis of younger onset dementia, she felt like a rug had been pulled from beneath her feet. “I just froze. I just couldn’t believe what he was saying.” In this candid episode, Millie and her sister Daisy open up to journalist Hamish Macdonald about the initial shock of the diagnosis, Jim’s role as a grandfather to their young children, and how it can be hard to be vulnerable when everyone wants to put on a brave face. Then, Jim Rogers interviews Hamish Macdonald about his experience with his own father’s diagnosis of Parkinson’s disease and Lewy body dementia. Hamish explains why giving his father dignity is crucial and why you need to advocate for your family member. “People living with dementia need love and they need support, but they need advocates as well…You know, just actually getting your head around the really fine detail of what someone’s needs are and being able to advocate on their behalf.” +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. For more information, explore our support resources for family, friends, and carers or learn more about staying connected with loved ones. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Madeleine Hawcroft, with sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. Thank you to Millie, Daisy and Maggie for being part of the episode. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

If you’re looking for new ways to get around town or travel further afield with a dementia diagnosis, this episode is full of tips and resources on how you can do just that. If you’d like tailored support on travelling with dementia, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. You can also find some information here. In this episode you'll hear about a Dementia Australia webinar on driving and dementia – you can watch it here. If you want to learn more on getting around with dementia, listen to this episode of Hold the Moment. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. This episode was produced by Luci McAfee. The executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Jim Rogers was once ‘captain organised’ when planning overseas trips with his husband Tyler. But after his diagnosis of younger onset dementia, he’s learnt to get Tyler to assist with online check-in, packing and itinerary planning. And it’s not just setting off overseas that’s changed. Getting around town has become trickier now that Jim’s lost his driver’s licence. Like Jim, Juanita wishes she could zip over to the shops to do her weekly groceries. But since being diagnosed with frontotemporal dementia, a trip like this needs a bit more planning. After losing her driver’s licence, Juanita has relied on public transport and taxis to get around town – but she’s figured out some handy ways to maintain her independence. Discover the tips and tricks you need to get out and about. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. In this episode Juanita discusses how the sunflower lanyard for hidden disabilities has helped her travel independently. You can also watch this Dementia Australia webinar about driving and dementia. This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Getting a restful night’s sleep when you’re living with dementia can be an elusive task. This episode contains tips on managing your changing sleep patterns. If you’d like tailored support to tackle sleep issues, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email. Dementia Australia has plenty of resources relating to sleep on its website here. And for more discussion about sleep and dementia, listen to this episode of Hold the Moment. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Ann, a former nurse, struggles to sleep because of the symptoms of her Lewy body dementia. Most nights, Ann experiences intense, multi-sensory hallucinations. Meanwhile, Jim Rogers takes us through some of the long nights he’s experienced since his diagnosis of Alzheimer's disease. Sleep is vital to both mental and physical health, and it’s disrupted for many people living with dementia. Associate Professor Stephanie Rainey-Smith, a neuroscientist from Murdoch University, explains disturbances in sleep, what causes hallucinations for people living with dementia and has some tips for improving your sleep. Dementia Australia has plenty of resources relating to sleep on its website here. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Your close relationships enter new territory once you’ve been diagnosed with dementia. Roles change, people might pull away but, for the most part, your loved ones just want to know how to be there for you. This episode helps you navigate these changes. If you’d like tailored support you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. The Dementia Australia website has resources about maintaining relationships for people with dementia and for carers, family and friends. There is also information about navigating intimacy here. If you want to hear more stories about caring, dating and making friends with dementia, listen to this episode of Hold the Moment. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Anthony was by himself when he first learned he had dementia. He didn’t feel like he had a close-knit family or a group of friends to turn to for support. But now, Anthony’s not only made new friends and become closer with his three siblings – he’s also found love again. So much changes after being diagnosed with dementia, including your relationships. But it doesn’t mean you have to let go of them. When Dom’s father was diagnosed with dementia, she took on some of the caring duties, but she didn’t want to lose their father-daughter dynamic. It took some creative thinking and a lot of practice, but it was worth the effort to keep the relationship strong. Hold the Moment co-host Jim Rogers is still figuring out what friendship and romance looks like now he’s living with younger onset dementia. And co-host Hamish Macdonald who is navigating the changes with his father, who’s living with dementia with Lewy bodies and Parkinson’s. Join them to hear how others are managing their relationships after a diagnosis. The Dementia Australia website has resources about relationships for carers, family and friends, as well as people living with dementia here. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Whether you’ve always been a marathon runner or just love getting out in your garden, staying active is an important way to manage symptoms of dementia. Here’s your quick guide on building physical activity into your routine in a way that suits your lifestyle. If you’d like support to stay active with dementia, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat, or send an email with whatever is on your mind. If you want to learn more on exercising with dementia, listen to this episode of Hold the Moment. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. Producer is Luci McAfee, executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

If you take a long walk around Bealiba in regional Victoria, you might spot the occasional water bottle, perched under a tree. Those would be Heather’s. Heather’s always been a keen athlete and, even now at 80 years old, she loves long-distance running. That hasn’t changed since she was diagnosed with Alzheimer’s disease, but she’s had to adapt her training to make sure she stays safe and on the right track. The water bottles, strategically placed every four kilometres along her usual running route, don’t just keep her hydrated – they mark her trail. Fitness has always been important to Heather. But Hold the Moment co-host Jim Rogers can’t say the same: “I’ve never been a gym junkie.” But because of his dementia, Jim’s learning to think of exercise as medicine. You’ll also meet exercise physiologist Nick who has tips on physical exercise that can support your quality of life. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Feeling overwhelmed at the prospect of writing or updating a will? Want to better understand things like power of attorney and enduring guardianship? Help is at hand! This episode breaks it down so you can start planning with confidence. Dementia Australia also has a webinar on ‘Future Planning’ you can watch online and other resources to help get your affairs in order. If you’d like tailored support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email. You can also listen to this longer episode of Hold the Moment to hear more stories of people planning their lives after diagnosis. Hearing how they’ve tackled their affairs might just help you get started! +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

“I was diagnosed early, so I got what I call my ‘active dying plan’ out of the way. And now I’m on my ‘active living plan’ and my adventure with dementia.” Pam was diagnosed with primary progressive aphasia in her late 50s. Although the diagnosis at such a young age was a shock, Pam wasted no time making arrangements for her own funeral so that when the time comes, her family can celebrate her life the way she prefers. For Hold the Moment co-host Jim Rogers, the process of getting his paperwork in order started with a long, reflective walk around the Glebe foreshore in Sydney with his husband Tyler. But once the big picture was planned, how did Jim start the necessary legal processes to make sure that big picture would come to life? Professor Nola Ries can help. She’s a co-founder of the Dementia Law Network. She explains the common (and sometimes confusing) terms you’re likely to hear as you start getting your affairs in order. Dementia Australia also has a webinar on Future Planning you can watch online, plus other resources to help get your affairs organised. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

A dementia diagnosis can be a shock and it also can be a relief. If you’re looking for support, resources and guidance on what to do after you or someone you love has been diagnosed with dementia, this bonus episode is your simple how-to guide. If you’d like personalised support on what to do once you’ve been diagnosed, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. There are many helpful Dementia Australia resources and programs to support you and your loved ones following a dementia diagnosis. We can also connect you with peers who have been through what you’re going through right now. Find resources online or register for Dementia Australia’s peer support program. You can find out more about Dementia Australia’s BrainTrack app here. You can also listen to this episode of Hold the Moment to hear more stories of real people navigating life after diagnosis. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

Jim Rogers didn’t see it coming. “It was almost like an out-of-body experience,” he says. “It was as though time stood still.” Only a few months earlier, life for Jim was as it had always been. He and his husband Tyler were both busy, focused on their careers and very social. But Jim’s colleagues noticed he would occasionally forget important details at work. Little did he know this seemingly innocuous symptom would lead to a dementia diagnosis. In the first episode of Hold the Moment, Jim shares the story of his own diagnosis with his co-host, broadcaster and journalist Hamish Macdonald. He then meets, Catherine, a kindergarten teacher from Sydney who shares the frightening accident that led to her own diagnosis and what gives her hope in the dark moments. In Hold the Moment, Jim and Hamish talk to people living with dementia about their diagnosis experience, their new lifestyles and, most importantly, the changes, habits and mindsets that have helped them find positivity and peace in the moment. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

"You could’ve knocked me off my chair. It was like time stood still." Jim Rogers was blindsided by his diagnosis of younger onset Alzheimer’s disease in his 50s. He didn’t see a dementia diagnosis coming, and yet it changed almost everything. The way you sleep, exercise, travel around, and even how you interact with your loved ones will change after a diagnosis. So how do you even start to process all these changes? On Hold the Moment, you’re not alone. Join Jim and his co-host, journalist and broadcaster Hamish Macdonald whose father has dementia with Lewy bodies and Parkinson’s, as they learn how people with dementia are managing their changing circumstances. We’ll also bring in a few experts along the way for advice on the especially tricky stuff, like getting your legal affairs in order. Follow Hold the Moment wherever you get your podcasts so you don’t miss an episode. And share it with anyone you know who has a dementia diagnosis or who knows someone who does. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman. We acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.