Epilepsy Sparks Insights

Delays in epilepsy surgery referral are not just about access and are not limited to one region. Epileptologist Asst. Prof. Juan Perez discusses paediatric epilepsy surgery across Latin America, where services exist but remain underutilised, and how misconceptions, training gaps, and system-level barriers continue to prevent eligible children from being referred for surgical evaluation, as well as what needs to change to improve access and outcomes. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

What happens when epilepsy medication doesn’t work? Prof. John Duncan explains how treatment decisions evolve beyond medication, from resective surgery to neuromodulation, and how patients and clinicians weigh these options together. The conversation covers real-world outcomes, risks, and the balance between seizure control, cognitive function, and quality of life. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Why does epilepsy still receive so little funding, attention and public understanding compared to other diseases? Intellectual disability nurse Jay Price discusses why epilepsy remains underfunded and badly marketed, alongside misdiagnosis, quality of life, and how co-produced training could improve epilepsy care! This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/epilepsy-ignored 🌐 More about Jay 👇🏻 https://www.epilepsysparks.com/guests/jay-price 📃 Paper "Epilepsy, it's just not sexy, is it?’: A qualitative exploration into health and social care professionals' perspectives of people with intellectual disabilities and epilepsy, in social care" 👇🏻 https://www.epilepsybehavior.com/article/S1525-5050(25)00437-8/fulltext 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Many epilepsy lesions that cause seizures are missed on routine MRI scans, delay diagnosis and surgery. Dr. Konrad Wagstyl discusses his research using AI and large MRI datasets to detect subtle abnormalities such as focal cortical dysplasia and hippocampal sclerosis. The conversation explores how these tools help identify surgical candidates earlier and improve outcomes in epilepsy! This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/mri-lesion-detection-ai 🌐 More about Konrad 👇🏻 https://www.epilepsysparks.com/guests/konrad-wagstyl 📃 Paper "Automated and Interpretable Detection of Hippocampal Sclerosis in Temporal Lobe Epilepsy: AID-HS" 👇🏻 https://onlinelibrary.wiley.com/doi/full/10.1002/ana.27089 🎞️ MELD project guide 👇🏻 https://www.youtube.com/@MELDproject 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Generalised epilepsy is often described as involving the whole brain at once. But does it start all at once? Dr. Frederic Schaper discusses research mapping subtle brain abnormalities to shared brain networks in generalised epilepsy, and how these networks overlap with targets used for deep brain stimulation. The conversation explores what this may reveal about seizure mechanisms and future neuromodulation research. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/generalised-epilepsy-network-dbs 🌐 More about Frederic 👇🏻 https://www.epilepsysparks.com/guests/frederic-schaper 📃 Paper "A generalized epilepsy network derived from brain abnormalities and deep brain stimulation" 👇🏻 https://www.nature.com/articles/s41467-025-57392-7 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Psychiatric symptoms are common in the epilepsies, yet they are often overlooked in clinical care. Dr. Andres M. Kanner, epileptologist and Professor of Clinical Neurology at the University of Miami, explains why mental health symptoms are central to epilepsy outcomes - not peripheral! Topics include depression, anxiety, psychosis, ADHD, suicide risk, family psychiatric history, and how these factors influence antiseizure medication choices and quality of life. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/mental-health-epilepsy 🌐 More about Andres 👇🏻 https://www.epilepsysparks.com/guests/andres-miguel-kanner 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Flash-back to our most popular episode*! Epileptologist & neurologist Dr. Ángel Aledo-Serrano talks of his review and opinion on a former paper regarding the antiseizure medication Levetiracetam/Keppra, its effectiveness in controlling seizures, but also the importance of precision medicine. He also speaks of the need to improve prescribing and avoid polypharmacy for people with an epilepsy, the need for further qualitative research into treatment and care, and convincing clinicians that epilepsy is far more than seizures alone. This episode is sponsored by EASEE® by This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/keppra-levetiracetam-quality-of-life 🌐 More about Ángel 👇🏻 https://www.epilepsysparks.com/guests/angel-aledo-serrano 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​ *2023

Who should receive genetic testing in epilepsy, and how should results really be interpreted? Epileptologist and scientist Dr. Christian Bosselmann explores genome sequencing, diagnostic yield, variants of uncertain significance, and why results are rarely black and white. The discussion highlights how quickly things are changing in epilepsy genetics and how re-analysis and improved interpretation can meaningfully influence clinical decision-making. This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/genetic-testing-variant-interpretation 🌐 More about Christian 👇🏻 https://www.epilepsysparks.com/guests/christian-bosselmann 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​ ​

Who is already using generative AI in health care, and what does the evidence actually show? Researcher Charlotte Blease, PhD, examines the positives, patient and clinician uptake, emerging risks, and where major gaps in training, policy, and research remain. The discussion explores mental health use, long-term conditions, empathy, and why regulation is struggling to keep pace with real-world practice. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/ai-in-healthcare-evidence 🌐 More about Charlotte 👇🏻 https://www.epilepsysparks.com/guests/charlotte-blease 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Accelerated brain ageing is a key feature of epilepsy that cannot be explained by seizures alone. Drawing on longitudinal imaging and biomarker research, Dr. Marian Galovic discusses neurodegeneration beyond seizure activity and the clinical importance of early intervention. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/neurodegeneration-brain-ageing 🌐 More about Marian 👇🏻 www.epilepsysparks.com/guests/marian-galovic 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Seizures are often the focus in childhood epilepsies, but they certainly are not the only symptoms affecting outcomes and quality of life. This episode with Prof. Kette Valente looks at the non-seizure features that matter personally and clinically, why they can be missed, and why identifying them early can change care and long-term impact. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights//seizures-not-only-problem 🌐 More about Kette 👇🏻 https://www.epilepsysparks.com/guests/kette-valente 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Routine EEG provides a brief snapshot of brain activity and may not capture seizures or epileptiform activity. In this conversation, neurologist Prof. Norman Delanty explains how extended and implantable EEG monitoring can improve assessment of seizure burden, support treatment decisions, and clarify diagnosis and management when short recordings are insufficient. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/long-term-eeg-monitoring 🌐 More about Norman 👇🏻 https://www.epilepsysparks.com/guests/norman-delanty 📃 Related paper 👇🏻 "Unilateral ultra long-term subcutaneous EEG monitoring in drug-refractory idiopathic generalized epilepsy" https://onlinelibrary.wiley.com/doi/10.1111/epi.18644 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

In part two of this conversation, Dr. Ching Soong Khoo discusses practical approaches to managing obesity in epilepsy, including exercise safety, diet, and multidisciplinary care. The episode highlights why weight and physical health are often overlooked in routine practice, and how simple clinical changes can support better quality of life and overall outcomes in people with an epilepsy. 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-quality-of-life 🌐 More about Ching Soong 👇🏻 https://www.epilepsysparks.com/guests/ching-soong-khoo 📜 Related publications - “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755 - “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920 - “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Why is obesity so common in people with epilepsy - and why is it often overlooked in clinical care? Dr. Ching Soong Khoo shares new research findings on obesity prevalence, physical activity, and mobility, and discusses how fear, diet, and behaviour intersect with epilepsy management. The episode highlights why addressing weight alongside seizure control matters for long-term health and quality of life. 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-health-fitness 🌐 More about Ching Soong 👇🏻 https://www.epilepsysparks.com/guests/ching-soong-khoo 📜 Related publications - “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755 - “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920 - “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

The updated seizure terminology aims to make life easier for everyone both affected by focal seizures and those involved in epilepsy care. In this episode, Prof. Sándor Beniczky breaks down why "consciousness" is now the key term used to describe focal seizures, and how it imporves clarity, consistency, and global usability - benefiting those with with an epilepsy, carers, GPs/physicians, nurses, and specialists alike. We discuss… why focal "awareness” has been retired what "consciousness" means during a seizure the difference between responsiveness and recall why the number of seizure types has been reduced how the update strengthens communication at all levels of care what these changes mean for real clinical practise how shared language supports better decision-making 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/focal-consciousness-seizures-explained 🌐 More about Sándor 👇🏻 https://www.torierobinson.com/guests/sandor-beniczky 📖 Paper spoken of 👇🏻 https://onlinelibrary.wiley.com/doi/10.1111/epi.18338 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎬 Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://www.youtube.com/@EpilepsySparksInsights 🔗 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

Prof. Nicola Specchio shares insights into how regional and global collaboration can strengthen epilepsy care, highlighting the need for coordinated systems, improved pathways and fairer access to expertise. The episode also examines the impact of emerging scientific developments and how shared standards across countries could support better long-term outcomes for people living with an epilepsy. We discuss: • Diagnostic delays and treatment access • Priorities for ILAE Europe • Cross-border collaboration • Networks for rare epilepsies • Precision medicine and biomarkers • Neuroimaging developments • Earlier intervention and improved outcomes Check out: 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/global-epilepsy-care-challenges-opportunities 🌐 More about Nicola 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights-guests-/nicola-specichio 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://www.youtube.com/@EpilepsySparksInsights 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

The epilepsies are a complex neurological disease, and patients, families, and clinicians all deserve clear, empowering information! Torie Robinson sits down with nurse, writer Cheryl Tveit and paediatric neurologist/epileptologist writer Dr. Charbel El Kosseifi. from Gillette Children’s Hospital to discuss their new Mac Keith Press book: “Epilepsy”. They explain how they simplified the science for everyone, highlighting crucial topics often ignored in clinic-like morbidities, driving, and the vital need for reassurance. An empowering publication! We discuss: How the new Gillette Children's Hospital & Mac Keith Press book makes complex epilepsy science accessible for everyone The importance of plain language - not patronising, just clear The book's value for med students, residents, and practicing physicians Quality of life beyond seizures - school, work, relationships & mental health Cognition, anxiety, and other common comorbidities Writing with empathy and the voice of families Why collaboration between patients, clinicians, and educators matters 🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/epilepsy-book-full-life-guide 👤👤 More about Cheryl & Charbel 👇🏻 Cheryl https://www.torierobinson.com/guests/cheryl-tveit Charbel https://www.torierobinson.com/guests/charbel-el-kosseifi 📘 Get the book "Epilepsy" (Mac Keith Press) with 20% off 👇🏻 https://www.mackeith.co.uk/book/epilepsy - code: epilepsysparks20 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Watch the video-podcast 👇🏻 https://youtu.be/bHhtMfNxErw 📒 Glossary 👇🏻 https://www.epilepsysparks.com/glossary

This chat delves into the intricate relationship between the blood-brain barrier and epilepsy - particularly temporal lobe epilepsy! Claire, Chris, and Torie highlight the dysfunction of the blood-brain barrier in people with an epilepsy, the role of imaging techniques in assessing this dysfunction, and the outcomes of surgical interventions. Excitingly, Claire and Chris also explore future research directions aimed at targeting the blood-brain barrier to improve treatment outcomes! 🌐 More about the episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claire-behan-chris-greene-blood-brain-barrier-temporal-lobe-epilepsy-neurosurgery 🌐 More about Claire https://www.torierobinson.com/guests/claire-behan 🌐 More about Chris https://www.torierobinson.com/guests/chris-greene 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Around 20–30% of people with an epilepsy don’t respond well to anti-seizure medications - so what happens next? Dr. Ricardo Morcos (UCLH) joins host Torie Robinson to explain the epilepsy surgery journey: how people are assessed, what tests are involved, and how teams make decisions together. We discuss: The “tube map”(!) that helps explain this complex process Why surgery isn’t talked about enough Common myths & fears What to expect from surgery & recovery How neuromodulation, new medications & trials also fit in This empowering conversation is for anyone affected by the epilepsies - patients, carers, and clinicians alike! Check out: 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos-epilepsy-surgery-journey 🌐 More about Ricardo 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎞️ Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://youtu.be/QzIoLlRG1Lw 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

We discuss: Why epilepsy is up to four times more common in prison populations The role of traumatic brain injuries, substance use & mental health Barriers to accessing epilepsy specialists behind bars Misuse, mistiming, & under-optimisation of anti-seizure medications The continued use of rectal diazepam and lack of rescue treatment awareness Increased SUDEP risks for people with epilepsy in prisons How NICE guidelines should be improving care - but often aren’t What needs to change to ensure prisoners get the epilepsy care they are entitled to 🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karen-mcleod-uk-prisons More about Karen McLeod 👇🏻 https://www.torierobinson.com/guests/karen-mcleod 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎥 Watch the video 👇🏻 https://youtu.be/2yKOxliR1pY 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary 👇🏻 https://www.epilepsysparks.com/glossary 📲 Connect with us Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

The ILAE Academy is changing how clinicians and researchers learn about the epilepsies! Prof. Gagandeep Singh, Chair of the ILAE Education Council, joins Torie to explain how this innovative, self-paced, and structured platform is helping to shape the next generation of epilepsy specialists! We discuss: What the ILAE Academy is and who it’s for How it keeps up with new discoveries Why accessibility and affordability matter The future of interactive, AI-based learning 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/gagandeep-singh-ilae-academy 🤩 More about Gagandeep 👇🏻 https://www.torierobinson.com/guests/gagandeep-singh 🎓 The ILAE Academy https://ilae-academy.totaratalent.com 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎞️ Watch episode on YouTube 👇🏻 https://youtu.be/PrYZyKrb4Ec 🔤 Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary 📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜 Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy. Florien talks with Torie about: Who carers are The staggering £184 billion value that carers add to the UK economy The personal costs of caregiving - sleep, stress, health, finances & relationships Why epilepsy research rarely includes carers (compared with other diseases) The importance of measuring carer outcomes through core outcome sets Florien’s study to define what truly matters most to carers 👉🏻 Tune in to hear how research is beginning to highlight carers’ voices & why supporting them means supporting people with epilepsy too. 🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/florien-boele-quality-of-life-carers-epilepsy 🤩 More about Florien 👇🏻 Dr. Florien Boele | Family caregiving, quality of life, & the epilepsies — Torie Robinson 👕 Join the Epilepsy Sparks community with our merch!👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Watch episode on YouTube 👇🏻 https://youtu.be/7F7N3TvnMjM 🔤 Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary 📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs). We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care. 🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-eeg-dees-dravet-lgs 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com 📖 Chapters 00:00 Intro 14:30 Understanding Developmental and Epileptic Encephalopathies 17:57 Future of Seizure Tracking Technology 21:01 Collaboration Between Clinicians and Engineers 23:52 The Broader Impact of Epilepsy Beyond Seizures 00:00 Conclusion & Thanks 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

In this first half of our chat with Dr. Ewan Nurse, we explore why seizure reporting matters so much in epilepsy care. From forgotten focal seizures to the challenges of eyewitness accounts, Ewan explains why accurate seizure diaries are vital yet so difficult to achieve. We discuss research findings showing that most minor seizures go unreported(!), why some go over-reported(!), the role of memory, stigma, and psychology in diary-keeping, and the importance of involving carers in the process. 🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-silent-witness 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🎧 Watch on YouTube to the podcast 👇🏻 https://youtu.be/rP7sTgSSiik 📖 Chapters 00:00 Intro – How reliable are seizure diaries really? 01:09 Meet Dr. Ewan Nurse - Engineer & epilepsy researcher from Melbourne 02:05 Why seizure reporting is fundamental for diagnosis & treatment 03:46 Landmark study: only 1 in 3 seizures recorded during video EEG 04:55 Overreporting - when non-seizure events make it into diaries 07:37 Why subtle seizures are the hardest to track 09:28 Psychology, identity & why some people don’t record their seizures 10:12 The role of witnesses in reporting & why so many seizures are missed 11:26 Cool paper on the topic “The Silent Witness, the unseen gaps in eyewitness recognition of seizures" 13:50 Education, collaboration & improving seizure reporting for better care 14:10 Closing thoughts + what’s coming in Part 2 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain! 🌐 More about Phillip 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-rare-epilepsies-sudep-neurology-journey 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Watch the chat on YouTube 👇🏻 https://youtu.be/scBYPashBAs 📖 Chapters 00:00 – Intro 00:56 – Meet Dr Phillip Pearl 01:17 – What keeps you going, as a paediatric neurologist 03:19 – Choosing paediatric neurology 05:06 – Falling in love with neurology 06:25 – Future of metabolic epilepsies 07:30 – Gene therapy breakthroughs 09:44 – SUDEP & risk awareness 11:18 – Depression, mortality, & suicide in epilepsy 11:55 – The intersection of music and epilepsy 12:28 – Conclusion & thanks 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Neurologist Dr Phillip Pearl (Boston Children’s Hospital / Harvard Medical School), joins Torie to explore inherited metabolic epilepsies. He explains why include far more than seizures, shares powerful stories (including vitamin B6-responsive epilepsy), and traces the progress from mid-20th century discoveries to today’s targeted therapies - including research into gene therapy! 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More about Phillip 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-inherited-metabolic-epilepsies-gene-therapy 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🎧 Watch the video 👇🏻 https://youtu.be/yJ31k_6xNNg 📖 Chapters 00:00 Intro 00:00 Meet Philip 02:52 Understanding Inherited Metabolic Epilepsies 06:08 The Role of Genetics in Epilepsy 08:58 Transformational Treatments in Epilepsy 12:05 The Future of Epilepsy Treatment 00:00 Conclusion & Thanks 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Asst. Prof. Simona Balestrini, an adult and paediatric neurologist, shares her epilepsy research into the use of transcranial magnetic stimulation (TMS) as a tool for understanding genetic forms of epilepsy! She explains the methodology of TMS, its applications in clinical and research settings, and the importance of safety in its use for people with an epilepsy. The chat also explores future directions for TMS, including its potential as a treatment option! 📖 Chapters 00:00 Intro 00:22 Meet Simona Balestrini 02:20 What Transcranial Magnetic Stimulation Actually Is 03:47 How Simona Uses TMS in Epilepsy Research 05:56 What TMS Reveals About Genetic Epilepsies 09:50 Why Safety Matters in Magnetic Brain Stimulation 12:09 Could TMS Guide or Improve Treatment? 14:31 Looking Ahead: The Future of TMS in Epilepsy 14:57 Closing Thanks & Where to Learn More 🎞️ Watch on YouTube 👇🏻 https://youtu.be/hyLxVtc6ud8 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🌐 More about Simona 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/simona-balestrini-transcranial-magnetic-stimulation 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

An epilepsy specialist neurologist develops an epilepsy! In this fascinating episode, we delve into the extraordinary journey of Dr. Jim Morrow, a retired consultant neurologist who ends up developing the disease himself! Jim shares his unique perspective on the challenges and ironies of navigating life with an epilepsy; from his initial diagnosis of Autoimmune Limbic Encephalitis due to a Voltage-Gated Potassium Channel Antibody, to the impact on his professional and personal life. Tune in also to learn about Jim’s fun, fictional books (with a medical twist) - out now! 🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🌐 More about Jim 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jim-morrow-neurologist-diagnosed-epilepsy-autoimmune-encephalitis 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 📖 Chapters 00:00 Intro 00:00 Meet XXX 00:00 Conclusion & Thanks 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Paediatric Neurologist Dr Yanin Rivera shares how cultural beliefs, limited access to healthcare, education, and innovative telemedicine solutions are shaping the landscape of epilepsy treatment, care, and prevention in Mexico! 🎧 Listen on all platforms 👇🏻 https://www.youtube.com/@EpilepsySparksInsights 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🌐 More about Yanin 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/yanin-rivera-mexico-lmic-culture-telemedicine 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 📖 Chapters 00:00 Intro 00:00 Meet Brad & Lucas 00:00 Conclusion & Thanks 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Sexual health in epilepsy is vital - but many clinicians and patients hesitate to address it. 💜 Epileptologists Dr. Brad Kamitaki and Dr. Lucas Orellana join Torie Robinson for a warm, giggly, and open conversation on: Why clinician confidence matters in sexual health discussions Cultural barriers that can silence important conversations Creating safe spaces for patients What’s coming up at the IBE Lisbon 2025 conference! 🎧 Listen now to break barriers with us - and maybe share a laugh along the way. 🎧 Listen on all platforms 👇🏻 https://www.youtube.com/@EpilepsySparksInsights 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights 🌐 More about Brad & Lucas 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/brad-katmitaki-lucas-orellana-sexual-health-epilepsy-clinician-patient-confidence 🌐 More about the conference 👇🏻 https://www.ilae.org/congresses/36th-international-epilepsy-congress/section/sectionid/1 👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com 📖 Chapters - Intro - Meet Brad & Lucas - Challenges in Discussing Sexual Health - Patient Perspectives on Sexual Health - Cultural Influences on Conversations about Sex - Experiences in Discussing Sexual Health with Patients - Evolving Medical Education and Open-Mindedness - Interactive Learning and Role Play at the Conference - Conclusion & Thanks 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Milena Gandy (Clinical Psychologist) and Heidi Munger Clary (Epileptologist) chat with Torie about the intersection of epilepsy and suicide, emphasising the importance of welcoming talking about addressing mental health issues in patients with an epilepsy. They go into the stigma surrounding suicidal thoughts, the need for open conversations between patients and clinicians, and strategies for improving patient care and quality of life. The chat also highlights the upcoming, fun(!) IEC workshop in Lisbon, aimed at enhancing patient-centered communication in epilepsy care. ------------------------------------------ Suicide crisis lines 👇🏻 https://en.wikipedia.org/wiki/List_of_suicide_crisis_lines ------------------------------------------ 🔗 Website & more about Milena Gandy & Heidi Munger Clary 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/milena-gandy-heidi-munger-clary-su!c&&&de-lisbon-iec-2025 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Neurologist Dr Parthvi Ravat shares the relationship between epilepsy and Non-Epileptic Events* (also known as dissociative Seizures and PNES), symptoms of the latter, treatment options, and the importance of research and awareness in improving patient outcomes. Parthvi highlights the complexities of diagnosing and managing FND and Dissociative Seizures/PNES/Non-Epileptic Events, the need for a multidisciplinary approach, and the shared experiences of patients experiencing both an epilepsy and NEEs! *A type of Functional Neurological Disorder (FND) ------------------------------------------ 🔗 Website & more about Parthvi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/parthvi-ravat-fnd-functional-neurological-disorder ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Adult neurologist and epileptologist Lucas Orellana shares the intriguing connection between migraine and epilepsy! These seemingly distinct neurological conditions share common pathogenic mechanisms, genetics, and treatments and while they are often experienced together there may be challenges in distinguishing between them. Lucas emphasises the importance of personalised treatment plans and the role of lifestyle factors and stress as common triggers. ------------------------------------------ 🔗 Website & more about Lucas: 👇🏻 http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Epileptologist Daniel Goldenholz shares his innovative approach to using 3D printing technology to create practical tools for epilepsy care! He tells us about the evolution of his products - designed to assist caregivers/public during seizures. He also explains how accessible, customisable, and durable they are, and chats about the importance of community engagement and collaboration to spread awareness and provide support for those affected by an epilepsy! ------------------------------------------ 🔗 Safesteps platform 👇🏻 https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform ------------------------------------------ 🔗 Website & more about Daniel 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Epilepsy Specialist Nurse Jenny Edwards, shares how she supports people who experience sexual dysfunction and epilepsy, focusing on the importance of open communication and building trust with patients. She emphasises the need for a holistic approach to care, including mental health support, and the significance of understanding the different types of epilepsy and their impacts on patients' lives. The chat highlights the challenges patients face in discussing sensitive topics and the vital role nurses play in facilitating these conversations. ------------------------------------------ 🔗 Website & more about Jenny: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jenny-edwards-flaccid-dry-disinterested ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Sex! It's a key part of the lives of homo sapiens - including those with an epilepsy! Epilepsy Specialist Nurse Jenny Edwards shares how sexual dysfunction is more common in people with an epilepsy and how she provides support to her patients affected - whether issues be libido, dating, arousal, orgasm, penetration, masturbation, emotional relationships - anything, really! This is part 1 of 2 with Jenny. ------------------------------------------ 🔗 Website & more about Jenny: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

We hear about the upcoming International Epilepsy Conference (IEC) 2025 in Lisbon - with global lead Epilepsy Specialist Nurses Patty Shafer and Ludivine Rohrer! They talk about the Epilepsy Nursing Section at the conference and why people should attend! Each share how they address the emotional and behavioural aspects of epilepsy and even things like physical exercise! They chat about the significance of empowering nurses, sharing knowledge, and addressing often embarrassing topics related to epilepsy. They emphasise the social aspects of living with epilepsy and the importance of education for both patients and families. ------------------------------------------ 🔗 Website & more about Patty and Ludivine: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/patty-shafer-ludivine-rohrer-iec-2025-lisbon-epilepsy-nursing-section ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ----------------------------------------- 🔗 Register for the Nursing Symposium 👇🏻 https://www.ilae.org/congresses/36th-international-epilepsy-congress/section/sectionid/1 ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Epilepsy specialist nurses (ESNs) play a multifaceted role…! Hear all about it from ESN’s Ludivine Rohrer and Patty Shafer who share their responsibilities in patient care, education, and psychosocial support. They also provide insights into the challenges faced by patients and families trying to manage an epilepsy (including all symptoms and morbidities) and emphasise the importance of personalised care for everyone. ------------------------------------------ 🔗 Website & more about Patty & Ludivine: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/patty-ludivine-ludivine-rohrer-being-epilepsy-nurse ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

What is consciousness?! Paediatric resident Dr. Kayleigh Marcinski Nascimento invites you to take part in a new study aimed at understanding the terminology surrounding “consciousness” during focal (formerly known as partial) seizures; emphasising the need for clear communication between clinicians and caregivers! The chat also covers the importance of diverse input in research and how the data collected will be used to improve patient care. ------------------------------------------ 🔗 Link to study - take part! 👇🏻 www.surveymonkey.com/r/epilepsytalk ------------------------------------------ 🔗 Website & more about Kaley Marcinski Nascimento: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kaley-marcinski-nascimento-consciousness ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Neuroscientist Deborah Kurrasch talks about her cool research into the epilepsies using zebrafish! She explains the challenges faced in acceptance of using zebrafish as a model system for epilepsy research and shares how we need to explore new mechanisms of action if we are going to figure out how to help the remaining 30% of people who cannot (yet!) have their seizures controlled using anti-seizure medications! ------------------------------------------ 🔗 Website & more about Deborah: 👇🏻 https://torierobinson.com/epilepsy-sparks-insights/deborah-kurrasch-zebra-fish-dee-pharma ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Adult Neurologist Naluca Mwendawe-Beckford chats about her work in Zambia, focusing on the challenges of treating epilepsy in a low-resource setting. She highlights the limited access to diagnostic tools and medications, the roles of neurologists and traditional healers (and how they can work together!), and the importance of education and awareness in combating stigma. Naluca also shares her plans for an epilepsy registry and the need for policy advocacy to improve care for individuals with epilepsy in Zambia. ------------------------------------------ 🔗 Website & more about Naluca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/naluca-beckford-epilepsy-awareness-zambia ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Helen Scharfman, a professor at NYU and a research scientist, discusses her extensive research on the epilepsies; particularly focusing on mossy cells in the temporal lobe! She explains the significance of these cells in understanding seizures and anxiety, and the potential for future treatments/preventions! Helen emphasises the importance of patient involvement in research and the international, collaborative nature of scientific discovery! ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://torierobinson.com/epilepsy-sparks-insights/helen-scharfman-mossy-cells-international-research ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Epileptologist Zarine Mogal has changed the world for many affected by the epilepsies in Pakistan! She shares her incredibly impactful 3 decades in diagnoses, care, and social acceptance - through her comprehensive epilepsy program. Zarine highlights the importance of sustained epilepsy awareness with insights on measuring the impact of campaigns, the challenges faced in healthcare, and the future directions for improving epilepsy care in Pakistan. ------------------------------------------ 🔗 Website & more about Zarine: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/zarine-mogal-epilepsy-pakistan-stigma-treatment-gap ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks

Psychiatrist Andrea Cipriani discusses his work in clinical psychiatry and research, focusing on mood disorders and the importance of personalised treatment! He highlights the GALENOS project, which aims to synthesise existing data to improve mental health outcomes, and chats about the need for a shift from a medication-centered approach to one that prioritises quality of life and community care. Andrea also advocates for collaboration between clinicians and community support systems to enhance patient care and reduce the stigma surrounding mental health treatment. ------------------------------------------ 🔗 Website & more about Andrea: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/andrea-cipriani-galenos-mental–health-research-outcomes-psychiatry ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks