Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse
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Show Notes
Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs).
We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care.
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📖 Chapters
00:00 Intro
14:30 Understanding Developmental and Epileptic Encephalopathies
17:57 Future of Seizure Tracking Technology
21:01 Collaboration Between Clinicians and Engineers
23:52 The Broader Impact of Epilepsy Beyond Seizures
00:00 Conclusion & Thanks
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