Colitis Unfiltered

In episode 16 of the Colitis Unfiltered podcast, I speak with Clare, who was diagnosed with indeterminate colitis after a sudden and severe onset of symptoms that landed her in the hospital. With no clear diagnosis and little information available at the time, she was thrown into a confusing and frightening start to life with inflammatory bowel disease.Diagnosed as a teenager and navigating years of flares, steroids, and uncertainty, Clare shares what it was like to grow up with IBD while trying to live a normal life. After more than a decade of remission, her condition came back aggressively, leading to emergency surgery and a life-changing ostomy. She opens up about fear, complications, mental health struggles, and the reality of starting over after major surgery.Today, Clare lives with a stoma and ongoing complications, but also with perspective, resilience, and a renewed sense of purpose. She speaks honestly about body image, advocacy, and why surgery should not always be seen as a last resort. Her story is raw, complex, and a powerful reminder that life with IBD doesn’t end, it changes.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

In this episode of the Colitis Unfiltered podcast, I speak with Jess, who was diagnosed with ulcerative colitis at 32 after years of being told it was “just IBS.” What began with mucus, bleeding, and exhaustion quickly turned into a relentless cycle of flares, medications, and uncertainty that took a serious toll on her mental health. Diagnosed in adulthood and facing worsening symptoms every year, Jess talks about steroid dependence, failed treatments, chronic fatigue, and the constant fear of when the next flare would hit. She opens up about hitting a breaking point, spending weeks in the hospital, and ultimately undergoing stoma surgery after exhausting every other option. Now living with an ostomy, Jess shares how surgery gave her back her energy, her identity, and her life. From struggling to even look at her stoma to building a support group for others, her story is raw, emotional, and deeply hopeful. A powerful reminder that what once feels like the end can become a new beginning.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

In episode 14 of the Colitis Unfiltered podcast, I speak with Lewis, who was diagnosed with ulcerative colitis at 23 after waking up one day with relentless diarrhea, bleeding, and inflammation that doctors described as “off the charts.” Fit, healthy, and in the best shape of his life, Lewis had no warning signs before his body suddenly changed overnight.After months of waiting for a colonoscopy through the NHS, Lewis finally saw the damage on screen for himself. What followed was enemas, steroids, a revised diagnosis of Crohn’s colitis, and the mental battle of accepting a new normal. He opens up about health anxiety, joint pain, fatigue, and learning to listen to his body instead of pushing through flares.Now in remission on biologic injections, Lewis shares how chronic illness reshaped his mindset, deepened his compassion, and pushed him to advocate openly about IBD on social media. His story is honest, motivational, and a powerful reminder that life with colitis may be harder, but it is not impossible.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

In episode 13 of the Colitis Unfiltered podcast, I speak with Sarah, whose IBD symptoms began at just 15 years old. What followed were eight years of colonoscopies, misdiagnoses, eating disorder accusations, and being told it was “just IBS” before she finally received a diagnosis of ulcerative colitis at 23.Through law school stress, repeated flares, and worsening symptoms, Sarah tried to power through until her body forced a breaking point. After multiple hospitalizations and a final severe flare, she underwent emergency ileostomy surgery in July 2024. What was meant to be relief turned into a medical marathon: bowel perforation, ICU, ventilator support, additional surgeries, and months of recovery.Today, Sarah hikes, runs races, and lives without the constant intestinal pain that defined her teenage years and early adulthood. She opens up about medical trauma, body image, stopping medication, and learning that an ostomy didn’t ruin her life, it gave it back. Her story is raw, resilient, and proof that even the longest road to diagnosis can still lead somewhere powerful.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

In episode 12 of the Colitis Unfiltered podcast, I speak with Oktober, who was diagnosed with Crohn’s disease at 18 after months of relentless bathroom trips, joint pain, exhaustion, and rapid weight loss. What began during a stressful year quickly escalated into six years of failed biologics, steroid cycles, and a life shrinking around the nearest toilet.After losing response to every available treatment, Oktober faced the reality of stoma surgery. What was meant to be temporary turned into emergency surgery, intensive care, and ultimately a permanent ostomy. She opens up about fear, body image, leaks, panic attacks, and the moment she realized she couldn’t keep living confined to four walls.Now living with a permanent stoma while still managing Crohn’s, Oktober shares how surgery gave her back freedom, travel, and control. She challenges misconceptions about ostomies, speaks candidly about mental health and fatigue, and reminds anyone facing surgery that life with a bag is not the end. In many cases, it’s the beginning.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

In this episode of the Colitis Unfiltered podcast, I speak with Janelle, who was diagnosed with ulcerative colitis at 25 after years of confusing symptoms, mucus, bleeding, and the constant fear that something was seriously wrong. What began as manageable flares slowly turned into nearly two decades of pain, accidents, and a body that kept pushing her to the edge.Diagnosed in her mid-twenties, Janelle talks about navigating medications, steroids, remission cycles, and the mental toll of living with an invisible illness. She reflects on advocating for herself, hitting rock bottom, and ultimately choosing permanent ostomy surgery after her colon failed beyond repair. Her story covers the realities of surgery, body image, intimacy, and finally getting her life back.Using humor, blunt honesty, and zero shame, Janelle shares how living with an ostomy didn’t end her life. It gave it back. This episode is raw, funny, and deeply real, and a must-watch for anyone living with ulcerative colitis, facing surgery, or trying to survive the mental weight of IBD.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

In this episode of the Talking Sh*t podcast, I speak with Kristin, who was diagnosed with ulcerative colitis at just nine years old after months of severe diarrhea, urgency, weight loss, and bleeding. What followed was an 87-day hospital stay, a long stretch of steroid dependence, and a childhood shaped by chronic illness long before she could understand what it meant.Diagnosed in elementary school and facing surgery as a teenager, Kristin opens up about growing up with IBD, missing school, struggling with identity, and living through colectomy, a J-pouch, and eventually a permanent ostomy. She reflects on the emotional toll of being labeled “strong,” the anger she was never allowed to express, and the moment she finally learned it was okay to grieve her body.Now living a full life with an ostomy and decades of perspective, Kristin shares how community, support, and purpose helped her rebuild after years of trauma. Her story is raw, compassionate, and deeply hopeful. A powerful listen for anyone navigating IBD, surgery, or life after surgery.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

In episode 9 of the Talking Sh*t podcast, I speak with Ant, who was diagnosed with ulcerative colitis at 19 in the UK. What began as worsening diarrhea, pain, and blood was repeatedly dismissed, until a colonoscopy finally revealed severe colitis and the start of a long, exhausting treatment journey.After more than a decade of medications, steroids, biologics, and cycling in and out of remission, Ant made the difficult decision to undergo a colectomy and now lives with a stoma. In this conversation, he opens up about the fear surrounding surgery, the realities of stoma life, and how gaining his quality of life back reshaped his perspective on health, identity, and resilience.Today, Ant uses his platform to normalize ostomy life and raise IBD awareness, showing that life after surgery isn’t an ending, but a restart. Honest, reflective, and deeply empowering, this episode is for anyone navigating colitis, surgery decisions, or life with a stoma.For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com