Arthritis Life

Camille and Gittel share how lost and overwhelmed they felt trying to manage rheumatoid arthritis and ankylosing spondylitis on their own. They describe how Rheum to THRIVE helped them not only on a practical level but also emotionally, and share their best tips for managing flare-ups.This conversation originally took place as an Instagram Live discussion in September 2021.Episode at a glance:Camille’s journey getting diagnosed with rheumatoid arthritis (Camille is at https://www.instagram.com/camilledemere/ on Instagram)Gittel’s journey with ankylosing spondylitis: diagnosed in 2018 after a lifetime of chronic pain (Gittel is at https://www.instagram.com/gittel_gt/ on Instagram)How Gittel and Camille felt overwhelmed, confused and alone while trying to manage their conditions on their own. Gittel finds an online support group but it wasn’t a good fit for her.Gittel & Camille join Cheryl’s Rheum to THRIVE educational support group programCamille reflects on how the group has helped her process challenges around the pandemic and uncertaintyGittel shares her experience overcoming shame around using mobility aids and helps others confront internalized ableismCamille loses her health insurance and is forced to go to “Dr Google” for answers, which was terrifyingCamille joins Rheum to THRIVE and transforms to feeling confident and supportedGittel shares how terrified she was about using “Dr. Google” to learn about ankylosing spondylitis and how the organization of Rheum to THRIVE helped her feel less overwhelmedCheryl, Gittel and Camille share tips for flare ups: rest breaks, hot showers, breath work, alternative pain relief such as cannabis, mental work such as anchor breathing and mindfulness exercisesCheryl, Gittel & Camille share their Covid19 vaccine experiencesMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the next group today! Rheumatoid Arthritis RoadmapA self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full Episode Details including TranscriptSee more details and a full transcript at www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Erin & Heather share their diagnosis journeys for rheumatoid arthritis, and how Cheryl’s “Rheum to THRIVE” program helped them become more empowered and supported. This conversation originally took place as an Instagram Live discussion in September 2021.Episode at a glance:Erin shares her diagnosis story: originally ankylosing spondylitis, then changed to rheumatoid arthritisHeather shares how she felt “desperate to find answers” after her rheumatoid arthritis worsenedErin and Heather share how they became more empowered through joining the Rheum to THRIVE programHeather shares how important it was for her to have access to a consistent set of resources and how she benefited from learning skills to “be the CEO of her care team!”Erin shares what it meant to her to have a supportive communityErin reflects on how she previously did not ask for work accommodations due to shame and guilt, before she became empowered and understood the power of counteracting your own internalized ableismHeather reflects on how she used to “fake it til you make it” or “power through,” then she gained the courage to talk to her boss about her needs for accommodations at workErin and Cheryl reflect on how their experiences with Facebook “support groups” is different than Rheum to THRIVEAmy shares what she got out of Rheum to THRIVECheryl answers some FAQs about the programMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Registration is open now through March 31st, 2022 - it’s only open twice a year so join now if you’re interested!Full Episode Details + TranscriptGo to www.MyArthritisLife.Net for full details including a full transcript. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Catina’s Diagnosis journey/saga for endometriosis, RA, fibromyalgia: was initially told it was “growing pains,” not believed for yearsHow Catina managed to push through pain and work as a nurseCatina’s experiences as a black woman managing multiple chronic conditionsHow Catina’s experiences inspired her to form the Nurse Loves Essentials company, community and coaching servicesCatina’s mindset tips for coping with chronic pain and chronic illnessMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Registration is open now through March 31st, 2022 - it’s only open twice a year so join now if you’re interested! Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.##For full episode details including a transcript:Please go to Cheryl's website at www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Amy shares what she’s learned while managing a fast paced, mentally taxing career as a lawyer while living with rheumatoid arthritis. Amy & Cheryl share their experiences in peer support groups, and explore how they've both learned how to challenge their internalized ableism and overcome shame through connecting with others in Cheryl's Rheum to THRIVE support group. Episode at a glanceAmy’s diagnosis journey during the Covid19 pandemic- after severe fatigue, brain fog and pain, Amy gets preliminary diagnosed with RA by her primary care doctor but faces a long waiting time to see a Rheumatologist. She also experiences other challenges getting healthcare due to the Covid19 pandemic.Reflections on balancing a demanding career as a lawyer with RA, including a discussion about how and whether to disclose your disability in the workplaceThe importance of support: Amy discovers she doesn’t have to go through this alone after connecting with others on social media and joining Cheryl’s Rheum to THRIVE support groupShame, mobility aids and challenging internalized ableism: Amy shares how she’s gone from hiding her disability to having a pretty cane she can show off, but continues to face some challenges using mobility aids such as wheelchairs.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts on April 2nd and registration closes on March 31st - sign up today!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.For full Episode Details including a TranscriptGo to www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Erika Bustos and Rachel Albo share how their individual journeys with managing rheumatoid arthritis and holistic health coaching led them to connect on social media. They then transformed their virtual relationship to a “real life” friendship and business partnership in their podcast “Autoimmune & You." Episode at a glance:Rachel and Erika’s diagnosis stories for rheumatoid arthritis in their 20sErika pivots from studying marriage and family therapy to becoming a holistic health coach after her diagnosis of rheumatoid arthritis, and Rachel pivots from traditional occupational therapy to health and wellness coaching as wellErika and Rachel both delve into holistic lifestyle changes that help them manage rheumatoid arthritis but also caution others not to fall into some of the common traps in holistic communities, for example “one size fits all” approachesHow Rachel and Erika found each other on social media and grew from acquaintances to true friends before ever even meeting in personHow Rachel & Erika combined their personal and professional passions (as autoimmune coaches) into their joint podcast, “Autoimmune & You”Rachel & Erika briefly discuss their experiences contacting Covid-19 and how that’s affected their rheumatoid arthritisRachel, Erika and Cheryl’s tips for navigating social media interactions and friendships - how to get what you need out of it without experiencing the downsides.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Full episode details and transcriptGo to the show page on the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Paulina, Ananthi and Jo update the audience about their methotrexate journeys for rheumatoid arthritis, including having to titrate the dosage up or down due to liver enzyme numbers, decisions about whether to add a biologic medication in addition to methotrexate, and reflections on the emotional ups and downs of living with a chronic, unpredictable illness during a pandemic.This episode is a follow up to episode 45 (which was originally recorded in July 2020), where eight patients shared their experiences taking methotrexate for rheumatoid arthritis or psoriatic arthritis. Today’s episode was recorded in the fall of 2021.Episode at a glance:Paulina provides an update to her methotrexate journey and what has helped her cope with the ups and downs of rheumatoid arthritisAnanthi shares how she initially tolerated methotrexate but her liver enzymes went up so she had to fiddle around with the dosage a bit to get to a just right amountReflections on the need to stay on top of tracking our bloodwork and take charge of our careJo explains how she felt she wasn’t able to control her disease well with methotrexate alone but her doctor did not think she qualified yet for biologics, which was a very sad and frustrating experienceEveryone reflects on how the pandemic continues to affect their ability to make appointments and see their doctorsWe reflect on the limitations of standardized assessments for rheumatoid arthritisEveryone gives a piece of wisdom for listenersMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Full Episode DetailsFor full episode details including a complete transcript, please go to the show page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Victoria Sampson explains how oral health, the oral microbiome and rheumatoid arthritis inflammation are all interrelated. She provides ample details about why people with rheumatoid arthritis should take extra care with their oral health, and explains how altering the oral microbiome can potentially lead to improvements in RA disease activity. See full episode notes including a detailed transcript here.Episode at a glance:How rheumatoid arthritis can lead to gum damage and why flossing is so importantSpecific action steps people with RA can take to improve their dental health and oral microbiomeCheryl and Dr. Sampson’s tips and life hacks for flossing, brushing and other oral health care when you have hand painWhat it means to be a holistic dentist or integrative dentistWhat is the oral microbiome and why should people with rheumatoid arthritis care?A case study of a patient with severe RA who had dramatically positive response to changing her gut and oral microbiome, as well as overall RA disease activity, through diet and oral hygiene habits.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in April 2022!For full episode details including speaker bios and a full transcript:Go this episode's page at the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

After living with rheumatoid arthritis, a disease characterized by at times unpredictable flare-ups and remissions) for nineteen years, host Cheryl Crow is no stranger to uncertainty.However, the pandemic has brought a whole new level of uncertainty to the lives of those who are vulnerable, including Cheryl.In this discussion, mental health occupational therapist Carlyn Neek and Cheryl focus discuss ways that Acceptance and Commitment Therapy tools can help people cope with uncertainty and continue moving towards a full and meaningful life despite so many things being out of their control.Cheryl & Carlyn also delve into specific ways that being immunocompromised and vulnerable to other’s actions has emotionally affected people, and ways to cope with difficult emotions like anger, jealousy and anxiety.\Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!For full episode notes plus a transcription:Full episode notes including links to things discussed in this episode and a full transcription can be found on the episode page on the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

What happens when the person who loves everything suddenly likes nothing? Arthritis Life founder and Arthritis Life host Cheryl Crow shares her rocky transition to motherhood while managing a rheumatoid arthritis flare up.She also opens up about her experience with symptoms of postpartum depression and postpartum anxiety, and highlights the importance of therapy in helping her get back to her “usual self.”Please note: this interview initially took place in 2020 on the “What about the Mama?” podcast, hosted by occupational therapist Karena Skibinsky, on episode 11: “What about being a mama with a chronic illness?"Episode at a glance:Why Cheryl founded Arthritis Life after working as an occupational therapist in pediatrics, and the value of “edutainment” (entertaining educational content)!Brief overview of Cheryl’s pregnancy remission and postpartum flare up of rheumatoid arthritisCheryl describes the irritability and mental exhaustion she experienced postpartum with decision fatigue around her medical needs and her baby’s needsHow Cheryl’s postpartum mood changes affected her social relationshipsThe exact moment Cheryl realized she needed to go to therapyHow “leaning in” to work was helpful in some ways and unhelpful in othersThe dangers of a “breast is best” mentality and how Cheryl learned to embrace formula and a “Fed is Best” perspectiveHow being stubborn and optimistic is both the best and worst thing for Cheryl and her husbandCheryl’s advice to other prospective mothers living with chronic illnessesHow Acceptance and Commitment Therapy helped Cheryl cope with her health and motherhood adjustment challengesEpisode SponsorsRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full Episode Links, including a transcript:https://arthritis.theenthusiasticlife.com/2022/01/21/the-storm-after-the-calm-cheryls-journey-with-postpartum-anxiety-and-rheumatoid-arthritis/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Tiffany’s diagnosis journey: from initial diagnosis of RA to eventual diagnosis of non-radiographic axial spondyloarthritisHow Tiffany learned the importance of patient advocacyWhy Tiffany formed AiARTHRITIS - International Foundation for Autoimmune & Autoinflammatory Arthritis”What is precision medicine and why is it important?Tiffany’s best advice to newly diagnosed patientsHow you can get involved in patient advocacy and volunteer work at her organizationSpeaker Bios:Tiffany Westrich-RobertsonI am the CEO of the International Foundation for Autoimmune & Autoinflammatory Arthritis, "AiArthritis" for short. I am also a person living with non-radiographic axial spondyloarthritis, after originally being diagnosed with rheumatoid arthritis (RA). I dedicate my time to running the organization, which has a unique mission to help other patients have a voice, alongside all other stakeholders, as equals. Together, we can solve problems and develop innovative solutions that positively impact education, advocacy, and research.Cheryl CrowCheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorsRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full episode details:For full episode details go to the episode page here! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Colleen shares what it was like to grow up with one hand.Colleen’s diagnosis story for rheumatoid arthritis and treatments that have helped.How Colleen met her husband and her tips for chronically ill relationships.How Colleen maintains a “glass half full” attitude and a brief discussion of “toxic positivity.”Pain management strategies that helped Colleen after over 4 joint replacement or fusion surgeries.Colleen’s favorite adaptations and gadgets that help her function with one hand affected by rheumatoid arthritis .Cheryl & Colleen discuss what brings them joy and how they’ve found meaning in “fandom” communities.Colleen’s fertility journey and how she relishes her current role as a “bonus mom” to her best friend’s children.Colleen’s best advice for people newly diagnosed with rheumatoid arthritis.Speaker Bios:Colleen Hood:My name is Colleen Hood. I am a housewife and have been with my husband 34 years. I was diagnosed with RA age 20 and it started on my hands and knees. I was born with a limb difference of having just one hand. But honestly, I love every part of myself, even the RA. It makes me ME. I have always been determined, strong, “I will get this” type person. RA just made things a little harder, but never stopped me. I am my own bionic woman. I had my 4 knuckles replaced through surgery, my wrist and ankle fused surgically, my right hip was replaced and I’ve had lots of rheumatoid nodules removed from my feet, fingers, and my little arm elbow. OT and PT have helped me a lot since I have one hand. I use gadgets and tools and just practice makes progress. I did develop cataracts at age 37 and early osteoporosis in my mid 30s due to long and large steriod use. But no complaints... I am all good now. I love the infusion meds... been on different ones since 2008 and things have been way better since. I did stop working in 2014 as just having one hand and 2 functional fingers, I put my health first. I worked 28yrs and am proud of it. So now I just care for my hubby and did care for my mom before she died in 2019. I am everyone's cheerleader and grateful I joined instagram last January. Cheryl CrowCheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Episode links:Colleen’s ChannelsInstagram channel - https://www.instagram.com/mad4minnie/Cheryl’s Arthritis Life Pages:Arthritis Life website - https://arthritis.theenthusiasticlife.com/Youtube channel - https://www.youtube.com/c/arthritislifeInstagram @arthritis_life_cheryl - https://www.instagram.com/arthritis_life_cheryl/TikTok @arthritislife - https://www.tiktok.com/@arthritislifeArthritis Life Facebook Page - https://www.facebook.com/arthritisLIFECheryl on Twitter: @realcc https://twitter.com/realccArthritis Life Podcast Facebook Group - https://www.facebook.com/groups/arthritislifepodcastandsupportArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full Episode Transcript:See www.MyArthritisLIfe.Net for a full episode transcript! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Natalie’s diagnosis stories for fibromyalgia, migraine, celiac, cold urticaria, Hashimoto’s, and other conditionsWhat does fibromyalgia feel like?Cheryl & Natalie discuss how useful the “faulty battery charger” metaphor is for explaining fatigueHow Natalie uses humor to cope with her chronic illnesses, and how that led her to create funny T-shirts and ultimately the Unchargeables communityNatalie’s tips for making invisible illness more visible (including how she formed the “Chargimals” plushies and wrote books to spread awareness)Cheryl & Natalie discuss the value of using entertainment, storytelling and fun to educate people about disabilitiesHow Natalie deals with negative feedback on social mediaHow Cheryl & Natalie navigate being entrepreneurs with chronic illnessNatalie’s advice for newly diagnosed patients with any chronic health conditionSpeaker Bios:Natalie is a chronically ill online entrepreneur, living her best life despite all the health challenges. She lives with Fibromyalgia, Hashimoto's disease, and a bunch of other conditions ever since she was a young girl. She lives on a sunny island with her family and pets. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Episode links:Natalie’s channelshttps://www.instagram.com/wearethechargimals/https://Facebook.com/thechargimals https://vm.tiktok.com/ZMevL8Tqk/ “The Unchargeables by Natalie”Unchargeables shop: https://www.theunchargeablesshop.com/pages/linksCheryl’s Arthritis Life Pages:Arthritis Life website - https://arthritis.theenthusiasticlife.com/Youtube channel - https://www.youtube.com/c/arthritislifeInstagram @arthritis_life_cheryl - https://www.instagram.com/arthritis_life_cheryl/TikTok @arthritislife - https://www.tiktok.com/@arthritislifeArthritis Life Facebook Page - https://www.facebook.com/arthritisLIFECheryl on Twitter: @realcc https://twitter.com/realccArthritis Life Podcast Facebook Group - https://www.facebook.com/groups/arthritislifepodcastandsupportArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full Episode TranscriptGo to MyArthritisLife.Net for a full episode transcript Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:0:00 - 3:25: Lene’s journey with juvenile idiopathic arthritis from diagnosis at age 9 to using a power wheelchair starting at age 16 to now3:25 - 10:40: What is ableism, and how does it relate to other forms of descrimination such as racism or sexism?10:40 - 17:51 - What is health privilege?17:51 - 24:30 - What is internalized ableism and how might it manifest in a person with chronic illness?24:30 - 30:00 - How to dismantle internalized ableism: disentangling worth from productivity, not being ashamed to use mobility aids or daily living aids30:00 - 34:50 - How Lene is not “wheelchair bound” but in fact a wheelchair is liberating and a helpful tool for everyday life34:50 - 41:00 - The social model of disability and how external barriers are often more limiting to quality of life than the disability itself41:00 - 46:50: The differences between living with an invisible versus visible disability46:50 - 48:10: TRIGGER WARNING (suicide): Brief discussion of assisted suicide as it relates to disability48:10 - 52:50 - How the tropes of disabled people in media (movies, books) are often incredibly over simplified52:50 - 55:30: What does it mean to have a “dynamic disability” with fluctuating symptoms?55:30 - endUniversal design versus accessibilitySpeaker Bios:Lene (pronounced Lena) is an award-winning writer and rheumatoid arthritis advocate living in Toronto, Canada. Born and raised in Denmark, Lene has had autoimmune arthritis since childhood and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and writes books about living well with RA and other types of chronic illness. Lene shares her home with a cat and too many books. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. For full episode links and show notes:Go to the Arthritis Life website at: www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode I share why I became an occupational therapist (spoiler alert - it wasn’t about arthritis initially!), answer your “just for fun questions” (including my favorite Taylor Swift songs), answer your arthritis related questions and share insights about coping with the roller coaster of emotions that accompanies chronic illness life. I’m beyond honored and touched to have reached fifty episodes and almost 30,000 downloads of the Arthritis Life podcast! Speaker Bio:Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Episode links:Things mentioned in this episode;Podcasts I like:Maximum Fun podcast network - artist owned, listener supported independent podcast networkJudge John Hodgman podcastWe Got This with Mark and Hal podcastThis American Life PodcastSarah Putt - OT4Lyfe PodcastPast episodes I mentionedBest advice for newly diagnosed patientsCheryl’s Arthritis Life Pages:Arthritis Life website - https://arthritis.theenthusiasticlife.com/Youtube channel - https://www.youtube.com/c/arthritislifeInstagram @arthritis_life_cheryl - https://www.instagram.com/arthritis_life_cheryl/TikTok @arthritislife - https://www.tiktok.com/@arthritislifeArthritis Life Facebook Page - https://www.facebook.com/arthritisLIFECheryl on Twitter: @realcc https://twitter.com/realccArthritis Life Podcast Facebook Group - https://www.facebook.com/groups/arthritislifepodcastandsupportArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full Episode TranscriptComing soon to the Arthritis Life webpage for this episode! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Ashley’s rheumatoid arthritis diagnosis story: getting the diagnosis at age twenty-seven after being told she was “too young” when she first presented with symptomsFaith: How Ashley’s different kinds of faith help her: faith in God, and faith in herself that she can persevere and achieve her goals, and faith that she can change her mindset.Fitness: Ashley’s journey becoming a personal trainer in 2018, even when those close to her questioned whether she could succeed in that field while having RAFood: How Ashley found a food plan that worked for her to help manage her weight and overall healthy lifestyleCheryl & Ashley discuss different ways to approach a healthy diet in a balanced way that supports quality of life rather than a restriction mindsetFrom sedentary to active: Ashley’s fitness journey was kickstarted with Jazzercise, then a gym membership and then personal training. How fitness helped decrease her pain.Tips for exercising and improving fitness with rheumatoid arthritis: think movement if exercise is intimidating; celebrate what you *can* do and do more of that; make it convenient for you;What is it like to work with a personal trainer?What are some adaptations or modifications for strength training with rheumatoid arthritis when your fingers or wrists hurt?Shame & Comparison: Cheryl & Ashley discuss how to avoid the “comparison trap” on social media, and Cheryl discusses the shame she feels at times due to being a former athlete who now is not in as good of shape as she used to be, and how her identity has shifted away from an identity as an athlete.Positive mindset without minimizing negative emotions: Cheryl & Ashley discuss ways to focus on the positive while not minimizing or delegitimizing the true negative feelings we haveAshley’s entrepreneur experience: starting RA Warrior Fitness LLC two months before the pandemic in 2020Advice for newbies: either newly diagnosed, or people who are new to fitness & RASpeaker Bios:My name is Ashley Nicole and I am a RA Warrior! I've lived with RA for 17 years and counting. It is now my mission to empower women living with rheumatoid arthritis to improve their quality of life through faith, food and fitness.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Episode links:Ashley’s channelsIG: @ashnic_rawarriorfitness, @rawarriorfitnessFB: RA Warrior Fitness, LLCWebsite: https://www.rawarriorfitness.com/Cheryl’s Arthritis Life Pages:Arthritis Life websiteYoutube channelInstagramTikTokFacebook PageTwitterArthritis Life Podcast Facebook GroupMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full episode transcript:Available on the episode page on the Arthritis Life website! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Natasha and Cheryl discuss her treatment journey, how her social life was affected by JIA, the importance of diet and stress management in her treatment plan, and why Natasha formed the nonprofit Take a Pain Check.Episode at a glance:Natasha’s diagnosis story and early experiences with juvenile idiopathic arthritisDifferent treatments Natasha has tried, including steroid joint injections, methotrexate, biologic medications, nutrition and dietary changes, Ayurvedic medicine, meditation and other lifestyle changesHow Natasha’s mother helped support and advocate for her when it felt like “nothing was working” in her treatment planHow Natasha navigates peer pressure to drinkWays Natasha manages stress while living with juvenile idiopathic arthritisThe importance of cultural representation and what it means for Natasha to see other South Asian people in the chronic illness communityThings that bring Natasha joy, including singingNatasha’s inspiration for forming the nonprofit Take a Pain CheckThe importance of patient involvement in research and advocacyEpisode SponsorRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Episode links:Submit an “Ask me Anything” question to Cheryl in honor of the Arthritis Life Podcast reaching 25,000 downloads! Email at info -at- MyArthritisLife.Net or on the social media links below by Saturday, November 6th.Natasha and Take a Pain Check’s channels:ALL RESOURCES AND PODCAST: https://instabio.cc/takeapaincheck Instagram: https://www.instagram.com/takeapaincheck_/Twitter: https://twitter.com/takeapaincheckYoutube - https://www.youtube.com/channel/UCRF07SYaN-9fbatNCKhL08gWebsite: www.takeapaincheck.com Other orgs mentionedCheryl on Take a Pain Check podcast Cassie & Friends: Juvenile Idiopathic Arthritis Support & ResourcesResearch projects - JIA option map at University of Ottowa (research)PACER - patients doing reserach on other patients Chronic EileenCheryl’s Arthritis Life Pages:Arthritis Life website: https://arthritis.theenthusiasticlife.com/Youtube channel: https://www.youtube.com/c/arthritislifeInstagram: https://www.instagram.com/arthritis_life_cheryl/TikTok: https://www.tiktok.com/@arthritislifeFacebook Page: https://www.facebook.com/arthritisLIFETwitter: https://twitter.com/realccArthritis Life Podcast Facebook Group: https://www.facebook.com/groups/arthritislifepodcastandsupportMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Transcript: go to MyArthritisLife.Net for full episode details and a transcript. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glanceOccupational therapy (OT): Why Lindsay became an OT, and Lindsay & Cheryl’s definitions of the profession. (1:00-6:00)Things to think about when accessing a home when you have arthritis: steps, ramps and more, plus tips on aging in place. (6:00-14:29)Tips for the Bathroom with Arthritis: wiping, bidets, toilet seat height, grab bars, shower gadgets, drying hair and more. (14:30 - 30:25)Tips for the Kitchen with Arthritis: opening aids, considerations for how you organize items within the kitchen, refrigerator design considerations, kitchen design tips, stools, fatigue mats and chopping aids. (30:30 - 51:00)Tips for the Bedroom and Dressing with Arthritis: power assist beds, bed rails, pivot grabs, bed ladders, dressing sticks, dressing aids, bras, and more. (51:17-1:01:00)Tips for Living Rooms and Dining Rooms with Arthritis: recliners, arm rests for chairs, round versus square tables and more. (1:01:00 - 1:07:45)The emotional side of adaptive equipment: Tips for coping with shame and other emotions around needing adaptive equipment or assistive devices (1:07:48 - 1:17:09)For a full list of links to everything Lindsay discussed in this episode, go to this special page of her website here https://www.equipmeot.com/arthritislife/.Check out Cheryl's "Favorite Arthritis Items" page for links to some of the things she discussed on this episode: https://arthritis.theenthusiasticlife.com/2020/03/17/my-favorite-arthritis-products/Speaker Bios:Lindsay DeLong: As an occupational therapist, I have spent years treating and supporting individuals dealing with all forms of arthritis. I have been challenged to find creative solutions for individuals to help them maintain their independence, self worth and joy in every day life! I’ve learned so much from the arthritis community and am thrilled for the opportunity to give back in any way I can.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She’s passionate about helping others with rheumatoid arthritis live a full life, by using effective tools to manage physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.Episode SponsorThis episode is brought to you by Rheum to THRIVE, a 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today for the next group which starts in Spring, 2022! Episode links:Lindsay’s EquipMeOT channels:Website: EquipMeOT.comYoutube - https://www.youtube.com/c/EquipMeOTInstagram - https://www.instagram.com/equipmeot/For a full list of links to everything Lindsay discussed in this episode, go to this special page of her website here https://www.equipmeot.com/arthritislife/.Check out Cheryl's "Favorite Arthritis Items" page for links to some of the things she discussed on this episode: https://arthritis.theenthusiasticlife.com/2020/03/17/my-favorite-arthritis-products/Cheryl’s Arthritis Life Pages:Arthritis Life website: https://arthritis.theenthusiasticlife.com/Youtube channel: https://www.youtube.com/c/arthritislifeInstagram: https://www.instagram.com/arthritis_life_cheryl/TikTok: https://www.tiktok.com/@arthritislifeFacebook Page: https://www.facebook.com/ArthritisLifeCherylTwitter: https://twitter.com/realccArthritis Life Podcast Facebook Group: https://www.facebook.com/groups/arthritislifepodcastandsupportArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in Spring 2022!Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full Episode TranscriptSee arthritis.theenthusiasticlife.com for full episode details, including a transcript Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glanceFull transcript and additional notes available at the Arthritis Life website here.1:00 - 7:30 Unity’s shares her diagnosis story at 15 months old and details her young childhood experiences growing up with juvenile idiopathic arthritis (JIA)7:30 - 15:00: How Unity became more active in her care management as an adolescent and explored alternate ways of managing JIA including nutrition, reiki, shamanism, and meditation.15:00 - 23:00 The importance of meditation and managing stress in Unity’s JIA journey, including a discussion of some of Unity’s favorite books.23:00 - 30:00 Unity explains what it means to be a “wounded healer” and what “healing” means to her. She also explains her Seasons of Self Energy Report framework.30:00 - 37:00 Unity explains the importance of addressing mindset and mindfulness while living with a health condition.37:00 - 40:00 Unity explains the inspiration behind S.O.S. Energy Report: A Survivor's Guide to Self-Healing Breakthroughs40:00 - 43:00 Unity shares about her experience becoming a mother and now parenting two teenagers while managing her JIA.43:00 - Unity & Cheryl discuss the many cost benefit analyses they do as patients, and when it’s worth it to do an activity even when it causes painSpeaker Bios:Unity Schmit: Born into a near-death experience, and diagnosed with chronic childhood illness, in the form of juvenile rheumatoid arthritis (JRA), Unity awakened to seek self-healing growth and the powerful meaning behind her unusual life start. On her path, she sought to understand how to bring pain to purpose, and how to follow her inner calling to experience her dreams, even though she was told they were unattainable. By studying self-healing, energy work, reiki, psychology, world religions and shamanism, Unity reached her dreams, and studied with healers and shamans from Canada, the United States and Australia. Through her experiences, Unity has become an author, teacher and 'faery godmother' life coach who seeks to help others awaken their own self-healing breakthroughs to reach their dreams, no matter the storms present or ahead.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She’s passionate about helping others with rheumatoid arthritis live a full life, by using effective tools to manage physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.Episode SponsorThis episode is brought to you by Rheum to THRIVE, a 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today for the next group which starts in Spring, 2022! Episode Links:Unity’s Links:https://www.instagram.com/unityschmidt/‘S.O.S. Energy Report Experience - this is a special link Unity created for Arthritis Life podcast audience members to allow you to access her “Survivor's Guide To Self-Healing Breakthroughs” for free. As a health provider I am not endorsing any claims from this website but am passing along the opportunity for you to experience it if you are interested, in hopes that it will be helpful.Books Unity Recommended in this episodeThe Power of Myth - Joseph Campbell The Brain that Changes Itself - neuroscience bookBarbara Brennena - Hands of LightMindfulness, by Dr. Ellen Langer Cheryl’s Arthritis Life social media pages:Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.For full episode notes and a transcript: Full transcript and additional notes available at the Arthritis Life website here. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, eight women share their journeys with methotrexate as of July 2020. You can hear an update from Jo, Ananthi and Paulina from October 2021 in episode 58.Episode at a glanceIntroduction to Episode with Methotrexate facts (0:00-5:00)Patient introductions (5:00-10:00)Patient stories about being on methotrexate: Paulina, Cheryl, Ali & Ananthi (10:00 - 41:00)Discussion about natural methods versus medications and decision making around that (41:00 - 47:40)More patient stories about being on methotrexate: Jo, Aashi, Kristen, Jenny (47:40 - 1:09:00)Patients share tips on injecting methotrexate or other rheumatic disease medications (1:09:00 - 1:31:00)Tips for coping with “miracle cures,” unsolicited advice & medication shamers (1:31:00 -Speaker Handles:Aashi Bhimani @solo_spoonie on InstagramCheryl Crow @Arthritis_Life_Cheryl on InstagramAnanthi Ramachandran @ar_versus_ra on InstagramAli Digiacomo @anotherdaywithRA on InstagramKristen Brogan @warriorsmovemountains on InstagramJo Mistreanu @thejosphere on InstagramJenny Parker @cute_n_chronic on InstagramCheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She’s passionate about helping others with rheumatoid arthritis live a full life, by using effective tools to manage physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.Episode SponsorRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Episode links:Resources to learn more about Methotrexate:Rheumatoid Arthritis “In the Clinic” - Annals of Internal Medicine Article (2019)““In most patients, RA is a chronic, progressive disease character-ized by episodes of disease flares or long-term chronic inflamma-tion. Only a few patients achieve long-term remission without the need for long-term medications.”“About half of all patients treated with methotrexate have little or no radiographic progression, although 30% will require addi-al DMARDs (like biologics):Global Healthy living Foundation research into how prominent methotrexate side effects areMethotrexate Side Effect Stats from the Arthritis FoundationCheryl’s Arthritis Life social media pages:Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLifeArthritis Life Facebook PageCheryl’s Twitter: @realccArthritis Life Youtube channelMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full episode transcriptFor additional details including a transcript, please go to www.Arthritis.TheEnthusiasticLife.Com Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glanceGrace’s introduction & diagnosis story (3:22 - 9:00)Grace’s experience with pregnancy remission and a postpartum flare up (9:21 - 15:00)What has helped Grace cope mentally and emotionally with chronic pain and stress (15:50 - 32:00)Grace describes her current business coaching work (32:00 - 37:00)Speaker Bios:Grace Nelson is a business coach, specializing in supporting women in corporate start their online business from scratch and make their first consistent 1K+ months online without having to leave their 9-5! She has been “experiencing” Rheumatoid Arthritis over the last 16 years and shares her story about she manages living with an autoimmune condition, running a business and being a first time Mummy to her daughter Eliza-Rae (who is now 1 years old).Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She’s passionate about helping others with rheumatoid arthritis live a full life, by using effective tools to manage physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.Episode SponsorThis episode is brought to you by Rheum to THRIVE, a 6-month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today for the next group which starts in early October, 2021!Episode links:Grace pages:@Iamgracenelson on Instagram https://www.instagram.com/iamgracenelson/Grace’s free ebook training: https://bit.ly/23WaysToGetMoreClientsCheryl’s Arthritis Life social media pages:Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLifeArthritis Life Facebook PageCheryl’s Twitter: @realccArthritis Life Youtube channelArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glanceIntroduction & definition of terms:What is stress, pain versus suffering, statistics on mental health and arthritis, common causes of stress with chronic illness (1:30 - 12:00)Cognitive behavior therapy for “thinking problems”:How “Catching ANTs” is a helpful tool for “thinking problems” (when your stress is caused by maladaptive thinking patterns) (12:30 - 20:45 )Mindfulness & “perpetual problems”Cheryl explains how true mindfulness of the present moment (even uncomfortable parts of the present) can help cope with perpetual problems from chronic illness (21:45 - 27:10).Acceptance and Commitment Therapy (ACT)Cheryl explains how acceptance and commitment therapy helps her devote energy towards present possibilities rather than wasting time trying to solve unsolvable problems (which can lead to unnecessary stress). (27:10 -43:00)Concluding thoughts: 43:00-endSometimes there is not a clear way to make your pain go away, no effective tool to “heal” your condition, and no way to convince someone else that your invisible illness is real.While that might sound depressing at first, Cheryl explains that accepting this reality helped set her free (“The truth will set you free, but first it will piss you off” - Gloria Steinem). She explains how she learned this technique from #acceptanceandcommitmenttherapy. Speaker Bios:Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She’s passionate about helping others with rheumatoid arthritis live a full life, by using effective tools to manage physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources.Episode SponsorThis episode is brought to you by Rheum to THRIVE, a 6 month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today for the next group which starts in early October, 2021!Episode links:Sign up to access the video recording of this webinar (which includes the visuals I refer to)Reproductive Health and Rheumatic Disease Webinar:Cheryl will be moderating a free “Reproductive Health and Rheumatic Disease” patient webinar on September 14th 2021, sign up here http://www.rheum4you.org and learn more here https://simpletasks.org/Things mentioned in the episode:Find a therapist in the US - Psychology TodayCBT - resources for learning about common cognitive distortionsJohn Gottman marriage research: solvable versus perpetual problemsThe Happiness Trap by Dr. Russ Harris - explains Acceptance and Commitment TherapyPassengers on the bus metaphor - more detailsCheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glanceArt and arthritis: Maria shares how she participates in artistic hobbies like photography and artwork despite hand pain from rheumatoid arthritisDiagnosis journey: Maria’s diagnosis journey with rheumatoid arthritis in Venezuela and her emotional reaction to the diagnosis at age twenty oneManaging expectations: Maria and Cheryl discuss what it’s like to try to manage your expectations and plan your life when diagnosed with RA so youngCollege and international studies: The difficulties of managing rheumatoid arthritis while being a college student in the USA, including barriers to medicationSocial media: Cheryl & Maria reflect on the benefits and drawbacks of social media, both having been diagnosed prior to social mediaMaria moves to Australia: the scarcity of medication and resources in Venezuala leads Maria and her husband to move to AustraliaPregnancy and parenting with rheumatoid arthritis: Maria shares her journey with pregnancy and parenting her two girls with severe pain from rheumatoid arthritisRemission: Maria shares the happy news of her current remission and how that’s improved her quality of life.“Auch Revista” - Maria explains why she started this non-profit Spanish language magazine to share stories and tips for others living with chronic illnesses.Speaker Bios:Maria Gonzales has lived with rheumatoid arthritis since she was twenty one years old. Throughout the years she has lived on three continents with RA. She also graduated college and had two babies while managing rheumatoid arthritis. She has experienced everything from excruciating pain to a current remission. She enjoys sharing her journey with others and started the “Auch Revista” (translation: Ouch Magazine), a non-profit magazine for the Spanish speaking community living with chronic illness. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorThis episode is brought to you by Rheum to THRIVE, a 6 month education and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today! Episode links:Maria’s links:Instagram @auch.revistaAUCH Revista - Spanish language magazine focusing on ways to help people with chronic illnesses Things we mentioned in the episode:Man’s search for meaning bookCheryl’s Arthritis Life free resources:Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupFree Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full Episode Details + TranscriptionFor a full transcription and more details about this episode, go to www.MyArthritisLife.net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Even after getting diagnosed with bi-lateral pulmonary emboli, a necrotizing lung nodule and periodic paralysis, Kim was repeatedly dismissed as being “hysterical,” “just anxious” and having “nothing wrong” with her when it turns out her lung had collapsed, she had an air leak on her lung suture line and she also had rheumatoid arthritis. Kim shares her experiences and perspectives with candor in hopes that no one who’s gone through similar experiences will feel alone.Episode at a glance:Kim’s journey going from 90 minute daily bike rides to not being able to walk due to a collapsed lung and other undiagnosed health issues.Kim’s multiple experiences with medical gaslighting, or being dismissed by medical providers, including being erroneously diagnosed with “conversion disorder” when she presented with lower body paralysis.Kim files a complaint with the hospital (who employed Kim’s original surgeon who told her “nothing’s wrong” when she in fact had a collapsed lung) and nothing happens.Kim and Cheryl discuss ways the medical system can be improved to avoid medical gaslighting in the future, including using systems like “risk management.”Kim shares what it’s been like to balance treatments for rheumatoid arthritis with hypokalemic periodic paralysis.Kim shares how she’s mentally coped with everything she’s been through.SUICIDE PREVENTION RESOURCE: If you are in the USA and you are in crisis, please call the National Suicide Lifeline at 1-800-273-8255. For a list of international suicide hotlines by country see this page.Kim and Cheryl discuss what it feels like to feel “trapped” in your own bodyKim & Cheryl discuss “thin privilege” and how people who are overweight face additional stigmas when seeking medical careKim & Cheryl discuss the “inconvenient truth” that so much of our health is influenced by luck rather than things we can control (like diet). Kim discusses equity versus equality and relates those concepts to healthcareKim shares “a day in the life” and what tools help her function on a daily basis.’Kim shares what brings her joy in life, including rescuing kittens.Kim provides an alternative to the 1-10 pain scale.Speaker Bios:Kim:Kim has experienced chronic intermittent pain since she was seven years old. She has been written off by doctors as being depressed, anxious, over exaggerating. Her severe pain experience has been in her head/neck/shoulders but more recently it has extended from her hips to her feet and from her shoulders to hands. In between her daily struggles with pain, she has experienced massive bi-lateral pulmonary emboli, a lung nodule that started necrotizing her lung tissue, hypermobile joints and most recently periodic paralysis. The necrotizing lung nodule was determined to be rhematoid in nature so that put her into the rheumatoid family and a working diagnosis of rheumatoid arthritis. Outside of illness, Kim is an academic librarian, an endurance cyclist, newborn foster kitten parent and lover of state and national parks. Cheryl:Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.This episode is brought to you by Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected. Join the waitlist today! Episode links:SUICIDE PREVENTION RESOURCE: If you or someone you know is suicidal, please call the National Suicide Lifeline at 1-800-273-8255. For a list of international suicide hotlines by country see this page.Kim’s contact information: Klooby2 -at- gmail.comCheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this conditionArthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a s

Episode at a glance:Suruthi’s diagnosis story of juvenile idiopathic arthritis (JIA) at age 3What it was like to be a small child with hip displasia and JIA, unable to walk for long periods of time, including social isolationThe challenges Suruthi faced in college with some “friends” and roommates not understanding her condition, accusing her of faking and ultimately bullying and shaming herHow Suruthi’s painful experiences and her volunteer work with “Versus Arthritis” in the UK led her to create her “Fight Rheumatoid Arthritis” instagram account and be more open about her storyHow Suruthi’s south Asian culture affected her experience of disability and chronic illnessHow and why Suruthi is pursuing a PhD in chemical engineering“A Day in the Life” for Suruthi todayWhat Suruthi wishes everyone knew about living with arthritis Speaker Bios:Suruthi, I am 22 and I have had Juvenile Idiopathic Arthritis since I was three! Having arthritis has impacted my life in many ways but I rarely saw people like me talking about it which is what led me to start my instagram account, fightrheumatoidarthritis.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.This episode is brought to you by Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected. Episode links:Suruthi account:Instagram @fightrheumatoidarthritisCheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc For full episode details and links, go to: https://arthritis.theenthusiasticlife.com/2021/07/20/whats-it-like-to-grow-up-with-juvenile-idiopathic-arthritis-suruthis-gnanenthirans-journey-from-isolation-to-advocacy/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Karol’s experience getting diagnosed with JIA at age 13 and being angry, terrified and grumpy about itThe importance of disability representation beyond the cliche “inspirational” storyHow Karol learned the importance of partnership with a doctor and taking an active role in her care in her 20sWhy Karol identifies as disabled, rather than a “person with disability” (including a discussion of the #SayTheWord, #TheWordIsDisabled movement)How both Cheryl and Karol have confronted their internalized ableismWhy Karol wishes she had listened to her occupational therapists earlier, and why occupational therapy is so important for people with rheumatic diseasesExcerpts from Karol’s award winning young adult novel “Cursed,” about a young woman with JIA who is “frank, funny and full of f-bombs.”The importance of disability prideSpeaker Bios:Karol Ruth Silverstein is a children's book author and screenwriter. She was diagnosed with juvenile rheumatoid arthritis at 13 and has identified as disabled since 21. Originally from Philadelphia, she now lives in West Hollywood with her two exceptionally fully cats. You can find her website at: https://www.karolruthsilverstein.com/ Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.This episode is brought to you by Rheum to THRIVE, an online support group and educational program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.\For full episode links go to: https://arthritis.theenthusiasticlife.com/2021/07/14/why-do-disability-pride-and-disability-representation-matter-with-cursed-novelist-and-jia-patient-karol-ruth-silverstein/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Introduction and Agenda Review (1:00)Definition of a Flare Up for rheumatic disease (which includes ankylosing spondylitis, psoriatic arthritis and rheumatoid arthritis) (6:30)What causes flare-ups, and why is it so important to discover our own unique flare triggers? (7:40)Focus on Pain: tools to prevent pain and reduce existing pain (25:00)Focus on Fatigue: tools to prevent and reduce fatigue (31:00)Focus on Stress: ways to decrease stress levels & cope with existing stress (37:00)Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorRheum to THRIVE, an empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here! Speaker Bio:Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode links:Resources discussed in this episode:Video recording of the “Build Your Rheumatic Disease Flare Up Toolkit” webinar (includes presentation slides)"Multiple Factors Associated With Fatigue in Rheumatoid Arthritis" research articleLink to my webinar about stress managementWhat is ACT - acceptance and commitment therapy: Information siteThe Happiness Trap - Book and online program from Dr. Russ Harris - explains Acceptance and Commitment TherapyApps for symptom tracking:Cheryl doesn’t have one favorite but some she finds helpful are: Symple, MyArthritis, OpenCare, Wave, MyRaTeam, MyVectra, Chronic Insights, RA Healthline, Arthritis Foundation Track & ReactRecommended episode: 8 Things everyone who loves someone with arthritis should knowFree Facebook group: Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupArthritis Life Program LinksRheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected.Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLifeArthritis Life Facebook PageCheryl’s Twitter: @realccArthritis Life Youtube channel Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

This episode includes discussions about:How to decide whether or not to have children while living with a chronic illnessTips for comfortable sex with chronic painFrequently Asked Questions about pregnancy with rheumatoid arthritis, including how to find out which medications are safeCheryl and Mariah’s experiences with childbirth and C-sectionsHow frequent is the postpartum flare-up and how can it be prevented?Advice for feeding a newborn with rheumatoid arthritis, including discussions about ergonomics, breast versus bottle feeding and “fed is best.”Practical tips for managing the physical and energy demands of new babies including diapering, clothing, baby wearing and more!This is part one of a two part series - later, Mariah and Cheryl will share tips for parenting toddlers / “big kids” and managing mental health as chronically ill parents!Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.This episode is brought to you by Rheum to THRIVE, an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected. Episode links:Resources discussed in this episode: Mother To Baby - nonprofit resource for medication safety during pregnancy and breastfeedingPast episodes of Arthritis Life podMariah’s book review from rheumatology nurse practitioner Iris Zink Sex – Interrupted: Igniting Intimacy While Living With Illness or DisabilityHealtheVoices - patient advocacy conference Mariah attended Mariah’s links:Twitter & Instagram: @mamasforwardFacebook page: https://www.facebook.com/mamasforwardFacebook group: https://www.facebook.com/groups/mamasfacingforwardArthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupJoin the waitlist for Rheum to THRIVE an online support group and education program Cheryl created to help people with rheumatic disease become more confident, supported and connected. For full episode details, including a detailed episode breakdown, go to: https://arthritis.theenthusiasticlife.com/2021/06/17/tips-for-pregnancy-and-postpartum-with-rheumatoid-arthritis/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Speaker bios in order of appearance:Kristen Brogan: Kristen has been living with rheumatoid arthritis and Sjogren's since 2018. She is a Board Certified Behavior Analyst and has a PhD in Cognitive and Behavioral Sciences, which she uses to inform behavioral chronic illness coaching that she provides for others living with chronic illness. In her free time, she enjoys writing, yoga, meditation, and spending time with her partner and their three dogs. Links: IG handle @WarriorsMoveMountains and my website which is www.WarriorsMoveMountains.WordPress.comEmma is a 24 year old living with inflammatory arthritis in Ontario, Canada.Gittel is a 32-year-old daughter of immigrants from Central America, who was born and raised in downtown Los Angeles. She is a "forever teacher" who is no longer in the workforce due to her diagnosis of ankylosing spondylitis (among others). Currently, she is riding out the pandemic at her parents' and is learning to manage her illness as best she can---one moment at a time. She can be found on IG at @gittieMelissa McKenzie is a writer from Jamaica who can be found at @pennedbymelissa on Instagram.Joel Nelson: Writer. Arthritis Advocate. Dad. Sharing my story of Juvenile Idiopathic Arthritis to raise awareness. Specialising in pain, parenting and mental health. Also writes for leading charities and organisations.Blog: https://joelvsarthritis.co.uk/Joel’s Facebook: https://www.facebook.com/joelvsarthritis.Joe’s Twitter: https://www.twitter.com/joelvsarthritis.Joe’s Instagram: https://www.instagram.com/joelvsarthritis.Joel’s Youtube Channel: https://www.youtube.com/channel/UCZrEJm2eWSSpXx8qMTjdgWA?view_as=subscriberCheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. You can find Cheryl at:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelUnity Schmidt: Born into a near-death experience, my journey with JRA became official shortly after my 1st birthday; activating my lifepath to move from chronic pain to purpose. As a life coach, author and teacher, I help my clients understand their energy, move through any blocks/challenges, and awaken their inner magic to reach their biggest dreams! Learn practical, magical ways to uplevel your life and choose your adventure with faery godmother life coaching, classes and my "SOS Energy Report" now available online.Healing with Unity on YouTubeUnity Schmidt: instagram.com/unityschmidtwww.HealingwithUnity.comMary (Mimi) Cross, age 27, diagnosed with rheumatoid arthritis 7 years ago, runs Inflammation Vacation and can be found on Instagram at @inflammationvacation.Ashley Shrum is a physical therapist living with arthritis who can be found on Instagram at @a.shrummerEffie Koliopoulos is a freelance writer and rheumatoid arthritis patient advocate. She created her blog Rising Above Rheumatoid Arthritis in 2016, after being inspired to share her story more publicly and connect with others after undergoing a total knee replacement.Currently residing in Chicago, she is working on her debut children’s picture book, enjoys creating video content for her YouTube channel and other projects. Effie’s BlogEffie’s InstagramEffie’s TwitterEffie’s Rising Above RA RAra Shop Designs (Merch): Effie’s Youtube Channel: RA and MyselfThis podcast is brought to you Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist today!Arthritis Life links:Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:01:00 Kristen Brogan: “An Unexpected Rebirth” (Sjogren’s)05:00 - Emma (in

Topics covered in this episode include:Stigmas around disability within South Asian communities.Sukhjeen’s personal story with rheumatoid arthritis and how that led her to form the nonprofit Chronically BrownExploration of medication shaming.Lack of representation of people of color’s voices in online chronic illness communities.Discussion about how South Asian practices (like yoga, herbal remedies and turmeric) are sometimes bashed within the chronic illness community.Dos and Don’ts for when reacting to someone’s chronic illness or disability.What should medical professionals consider when treating someone of South Asian descent?Exploration of white privilege and microaggressionsSpeaker Bios:Sukhjeen Kaur is the Founder of Chronically Brown which aims to address the ableism in South Asian communities. Chronically Brown is a non-profit organisation dedicated to empowering South Asians with invisible & visible disability through education and support. Sukhjeen has lived with rheumatoid arthritis for 2 years.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and enjoyable patient education and self-management resources.This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life. Episode links:Sukhjeen Kaur links:Facebook: https://www.facebook.com/ChronicallybrownIG: https://www.instagram.com/chronicallybrown/Twitter: @chronicbrown https://twitter.com/chronicbrownWebsite: https://chronicallybrown.com/Resources and Articles mentioned in this episode:South Asian culture affects people’s experiences with chronic illness. Medication shaming American College of Rheumatology - 2021 Photography contest for skin of color (due date - July 2021)“Not everyone with a chronic illness is a skinny white woman” graphic, which was inspired by “Invalid Art”Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode Breakdown:1:00 - Sukhjeen shares her initial difficulty adjusting to her chronic illness due to lack of representation of people of color in online communities. She shares how she learned to accept her condition after connecting with others from her cultural community.5:30 - Sukhjeen explains how and why she formed the nonprofit Chronically Brown. She shares how she grew up in a predominantly white area and felt her cultural background was erased during her youth. The exclusion and stigmas for people of color with disabilities leads Sukhjeen to form Chronically Brown. 9:05 - What does “intersectionality” mean and how does that apply to a person of color living with a disability? What does it feel like to be excluded from both your culture and your disability community? 10:30 - Specific stigmas around disability within South Asian communities, including “What will people say?” Pressure to hide your chronic illness, not use mobility aids, “fix” or cure your illness, maintain an image of perfection and more examples. 15:00 - How Sukhjeen became comfortable being more outspoken about her experiences with disability. 20:00 - Sukhjeen explores medication shaming within South Asian communities and the chronic illness community at large. 22:00 - Exploration of how South Asian cultural treatments (like yoga or herbal remedies or turmeric) are sometimes bashed within the chronic illness community. The importance of the language we chose; “have you tried yoga” can be exclusive or derogatory towards South Asian communities.26:45 - Exploration of the phrase “herbal medicine” and how that often signifies nonwhit

Topics include:Joel shares what it was like to grow up with juvenile idiopathic arthritisJoel explores the vulnerability of doctor patient interactions and the concern chronic illness patients often have of being perceived as hypochondriacs.Joel and Cheryl discuss the imperfections of our current health systems, and the fact that “No Established Cause doesn’t mean No Problem.”A group Pain Management program helps Joel rewire how he thinks about painCheryl & Joel share tips and exercises for mental wellbeing despite chronic illnessSpeaker Bios:Joel Nelson: Writer. Arthritis Advocate. Dad. Sharing my story of Juvenile Idiopathic Arthritis to raise awareness. Specialising in pain, parenting and mental health. Also writes for leading charities and organisations.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Episode links:Joel links:Blog: https://joelvsarthritis.co.uk/Joel’s Facebook: https://www.facebook.com/joelvsarthritis.Joe’s Twitter: https://www.twitter.com/joelvsarthritis.Joe’s Instagram: https://www.instagram.com/joelvsarthritis.Joel’s Youtube Channel: https://www.youtube.com/channel/UCZrEJm2eWSSpXx8qMTjdgWA?view_as=subscriberBooks and resourcesThe Happiness Trap book explaining Acceptance and Commitment Therapy conceptsVersus Arthritis nonprofit with helpful resourcesArthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:00 - Introduction and Joel’s diagnosis story.3:00-11:30 - Joel reads from his blog post, “No established cause doesn’t mean no problem.”11:45 - Cheryl & Joel discuss the vulnerability of seeing new specialist doctors. Joel expands on his experiences with the neurologist who had not reviewed his medical chart.15:15 - Cheryl & Joel discuss being worried about being perceived as a hypochondriac, and the challenges of filtering what information you share with a doctor / medical provider.22:45 - Joel expands on his emotional response to the test results letter he received from the neurologist with his test results. Cheryl & Joel discuss the imperfections of our current health system.28:00 - Cheryl expands on how patients who have difficulty functioning in daily life deserve access to care, for example occupational therapy, even if there is “no known cause.”30:00 - Joel explains what his GP (primary care) said after his neurological test results were normal. He went through pain management therapy which included disability adjustment training. He made a conscious choice to put his energy into adapting to it and making peace with it, yet continues living in fear that a neurological episode will happen again. 35:30 - Joel talks about his Pain Management program, which included group therapy, individual therapy, occupational therapy, physical therapy, learning about pain and special wellbeing topics. It helps him “rewire how he thought.” 40:00 - Cheryl’s perspective about finding a balance between trying to heal or eliminate pain, and building our capacity to adapt to our life as it is, even including pain.42:30 - Joel describes a helpful exercise from his pain management program: writing down the biggest issues with your current situation and recognizing that pain wasn’t necessarily the biggest problem, it was partly the spiraling thoughts around it. 46:30 - Cheryl’s analogy for positive versus negati

Episode at a glance:Renee’s diagnosis journey after a decade of mystery symptomsHow rheumatoid arthritis has affected Renee’s parenting and homeschoolingRenee’s Christian faith helps her cope with challenging timesCheryl and Renee share their different treatment choices (western medicine and natural only approaches) and how important it is to respect each other despite different choicesHow Renee adopts an anti-inflammatory lifestyleThe dark side of focusing on wellness and diet: Renee shares about orthorexia, an unhealthy obsession with healthy foodWhy Renee started her Rheumatoid Arthritis Mamas Sisterhood Facebook groupSpeaker Bios:Renee is a former middle school teacher turned homeschooling mom of three. She’s been married for 17 years and lives in West Michigan. She started The Rheumatoid Arthritis Mama after her RA diagnosis in late 2017 when she began sharing her journey, faith, and experiences with RA openly and authentically on Instagram and Facebook. Since then, Renee has been interviewed by and featured in media outlets such as Healthline, Health Central, CreakyJoints, WEGO Health, Self Magazine, and more. Her Facebook support group, The Rheumatoid Arthritis Mamas Sisterhood, has nearly 2,000 members and she uses the group as a space for all women to come together regardless of their treatment choices to support one another, share their experiences, and connect with other autoimmune disease warriors. Renee has a passion to support and encourage other women (especially moms) who are battling autoimmune diseases. Her goal is to provide others with encouragement and hope, feel less alone, and inspire them to live their best lives despite battling autoimmune disease. Her newest endeavor, a podcast called Every Day with Autoimmune, is set to launch during the summer of 2021!Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for eighteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Episode links:Things discussed in episodehttps://www.nationaleatingdisorders.org/learn/by-eating-disorder/other/orthorexiaACR guidelines“Food freedom” Elizabeth Dahl - woman of wellness -Renee linksInstagram: https://www.instagram.com/the_rheumatoid_arthritis_mama/FB: https://www.facebook.com/TheRheumatoidArthritisMama/FB Support Group: http://www.facebook.com/groups/TheRheumatoidArthritisMamasSisterhood Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the detailed show breakdown:2:14 - Renee’s journey getting her RA diagnosis after a decade of mystery symptoms. 5:23 - Renee has mixed emotions after her diagnosis: fear and confusion, mixed with relief that she finally had a definitive answer. 6:45: Discussion about how common it is for people with autoimmune symptoms to be dismissed by medical professionals.8:30 - How Renee’s three children have become more compassionate and sensitive as a result of mommy’s rheumatoid arthritis. How she initially tried to hide her diagnosis from them, and how she then realized she needed to be open with her children and husband. 13:15 - Renee opens up about her infertility journey and what she learned about communication, stress management and how to relinquish control.15:40 - How Renee structures her daily routine to suit her RA needs and her family’s needs.18:10 - How Renee’s Christian faith and eternal perspective helps her cope with RA.20:00 - Cheryl reflects on how, despi

Specific topics include:Julie’s experience with multiple knee surgeries Avascular Necrosis leads to Complex Regional Pain Syndrome and Julie is bedriddenfor 6 monthsHow a trip to Disney World led to Julie’s epiphany that she should share her story and start a blogHow Julie put her Information Technology (IT) degree to use while tracking her symptoms and discovering her unique inflammation triggersHow Julie discovered the most important tools for living a healthy, full life with PSAJulie’s current role as a patient advocate with WEGO healthHow PSA affected Julie’s dating life and how she met her now husbandJulie’s experiences with pregnancy and parenting with PSAThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Speaker Bios:Julie Croner, a psoriatic arthritis patient leader, is on a mission to advocate for ALL advocates. She's the Vice President of the Patient Leader Network at WEGO Health and was named to MM&M's inaugural class of 40 Under 40 in 2020. Julie has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode links:Julie’s sites:Blog: Itsjustabadday.com Twitter: twitter.com/justagoodlife Facebook: Facebook.com/itsjustabaddaynotlife Instagram: Instagram.com/itsjustabaddaynotlife LinkedIn: www.linkedin.com/in/juliecerrone Blog Email: [email protected] Work email: [email protected] Organizations mentioned in this interview:WEGO HealthMothertoBaby - research studies of medications and pregnancy / breastfeedingMindful Mamas AppArthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life social media pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:00 - Introduction to Julie.2:00 - Julie’s winding journey to a psoriatic arthritis diagnosis: knee surgeries / swelling from fifth grade until after college and during work as an Information Technology (IT) consultant.4:55 - Julie gets the adult diagnosis of psoriatic arthritis (PSA) and her rheumatologist helps get it under control. She’s able to connect the dots of her chronic health issues in retrospect and see how it all relates to psoriatic arthritis (PSA).8:24 - Julie also experiences avascular necrosis in the femur bone (leg) which led to complex regional pain syndrome (CRPS). She started connecting to other patients online, got medication for PSA and started exploring diet and lifestyle. 9:48: Julie researches anti-inflammation lifestyle approaches, and uses her IT consultant skills to make an excel spreadsheet to track everything (food, movement, mood, medications, etc) for 6 months and discovered her unique inflammation and flare triggers. 10:55 The BEST thing she did in her journey!11:20 - Julie discovers that her body is sensitive to food triggers. She discovers that gentle movement, meditation and mindfulness helps her. She continues going on and off medications when needed. 12:40 - Cheryl reflects on the importance of discovering your own unique triggers and not thinking there is a one size all solution. 14:00 - Julie’s worst food triggers for joint inflammation. (15:12) 15:44 - Julie is bedridden for 6 months due to her Avasular Necrosis and is depressed. Her parents take her to DisneyWorld and she has an epiphany after doing a singing competition! She decides to share her story through starting a blog: “It’s just a bad day not a bad

Episode at a glance:Eileen shares her rocky road to an RA diagnosis when he son was two years oldHow Eileen's blog led her to patient advocacy and research How symptom tracking helped Eileen reduce pain and improve fatigueHow exercise helps Eileen reduce pain and improve fatigueWhat it's like to be a single mom with RAReflections on mental health while living with chronic illnessSpeaker bios:Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver British Columbia Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador. When not advocating she is writing about her experience with arthritis through Creaky Joints, Chronic Eileen or can be found being a mom to her son Jacob.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.This episode is brought to you by Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Episode links:Find Elieen’s writing on:Chronic Eileen - Eileen’s blog and websiteArthritis Society - Canadian nonprofit Arthritis Research Canada CreakyJoints - research opportunities and Eileen’s writingArthritis Power app from CreakyJointsArthritis Foundation - research and advocacy opportunitiesAmerican College of Rheumatology - patient advocacy and engagement opportunitiesWhat it’s like to have a mom with arthritis: Article written by Eileen’s son JacobExample article of Eileen’s from HealthlineEileen on Instagram: @chroniceileen Cheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseFacebook group: Arthritis Life Podcast, Practical Tips and Positive, Realistic SupportArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life pages:Cheryl & Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:40 - Eileen’s diagnosis story: many years of symptoms prior to her diagnosis when her son was two years old. 5:50 - How Eileen’s symptoms affected her ability to take care of her baby. 8:16 - Eileen’s devastation after receiving her diagnosis due to seeing her aunt suffer from severe rheumatoid arthritis and pass away the same week.10:00 - How Eileen learned to trust her medical providers.11:20 - What helped Eileen learn to cope with her RA and share her story publicly; how others responded to her story and how writing introduced her to advocacy efforts.15:00 - How others’ negativity motivated Eileen, and Eileen shares some of the positive responses to her writing.17:45 - Eileen describes participating in arthritis research on symptom tracking using a FitBit, with a physiotherapist. Through tracking she started seeing patterns between menstrual cycle, sleep, exercise, rest.22:30 - Eileen learned the benefits of strength training and helped researchers explore barriers to patients participating in strength training. 26:00 - Physical activity doesn’t have to look like formal exercise, it can be as simple as gardening, Zumba, yoga, or dancing.29:00 - How the pandemic affected Eileen’s exercise routine and pain levels.31:30 - How exercise helps Eileen with fatigue. 34:00 - Eileen shares her journey with depression and mental health.36:20- What’s helped Eileen cope with depression and anxiety from rheumatoid arthritis & pain.38:00 - Eileen’s advice to other parents with rheumatoid arthritis and reflections on what her son has learned from having a mom with a disability. 41:00 - How her rheumatoid arthritis has made her a better mom and changed her priorities44:20 - The different forms patient advocacy can take.46:00 - Eileen’s final message: if you’re interested in getting involved

In this episode, Cheryl & Jamie discuss:Jamie’s challenging diagnosis journeyThe difference between her pre-psoriatic arthritis pregnancy and parenting experience and her experience being pregnant with psoriatic arthritis, including a discussion of medicationsThe difficulties of being a young person with rheumatic diseaseThe challenges of family planning with rheumatic disease: whether to have another child or not?What it’s like to live with anxiety along with rheumatic diseaseBalancing gratitude and griefLearning to overcome “mom guilt”Our children need us to be present not perfectSpeaker bios:Jamie lives in Gloucestershire, England, with her husband and their two children; Harper aged 4 and Kit who is almost 5 months. She was diagnosed with psoriatic arthritis in early 2019 and is still in the process of “learning” her condition. She is a freelance writer and self proclaimed coffee addict who is passionate about combining traditional and holistic approaches to find the best combination to manage her chronic illness.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Episode links:Resources mentioned in the episode:American College of Rheumatology clinical guidelines for pregnancy with rheumatic diseaseMamas Facing Forward - websiteBooks for children to learn about parents with a chronic illnessSocial media accounts: Instagram https://www.instagram.com/MamasForward/Versus Arthritis websiteFooled by Randomness bookJamie’s SocialsInstagram @mama.bear.squaresCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseCheryl’s Arthritis Life social media pages:Cheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportMedical disclaimer:All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:01:00 – Jamie’s introduction and her initial health issues: consistent pain in her fingers, spine, and neck after her first child was around two years old. 05:00 – Jamie struggles to get treated seriously by doctors. She’s diagnosed with psoriatic arthritis after originally her doctors said she was “too young” for it. 5:35 - She and Cheryl discuss their similar diagnosis journeys with medical gaslighting, how both of them had to have their parents advocate for them and spend money on additional doctors before they got their diagnoses. 7:30 - Discussion of anxiety as a result of untreated / undiagnosed chronic illness. Jamie & Cheryl discuss their experiences getting therapy for anxiety and coming to terms with it.9:45 – Jamie’s first pregnancy without psoriatic arthritis, as compared to her second pregnancy with it. Discussion about medication decisions and how difficult it was to decide whether to have another child or not.12:08 - What was it like to be pregnant with psoriatic arthritis during COVID19 pandemic (in 2020)? Includes a discussion about the pregnancy-induced remission she experienced. 14:30 Jamie discusses her experiences breastfeeding and difficult postpartum medication decisions. Cheryl and Jamie discuss how complicated medical decisions are in the context of a family system, not just what’s “best” for the baby. 16:30 - Jamie discusses comfortable ways to hold the baby during breastfeeding and the ways in which aspects of the newborn process are easier due to lockdown.18:00 - Jamie discusses her mixed feelings about using adaptive aids or gadgets in the home, as a young person with arthritis.20:00 - Balancing gratitude and grief as a mom with a disability.22:00 - The importance of learning how to adapt continuously, rather than seeing your chronic illness as having an “end point.” 23:15 - How Jamie’s flare up affects her ability to parent her “big kid” (her 4 year old) and her feelings of mom guilt, complicated by the fact that she’s experienced parenting her child prior to her diagnosis.26:10 - Cheryl and Jamie discuss how difficult it can be to decide whether to have additional children when you have a rheumatic disease, and how to spread out the space between your children. 34:45 - Cheryl parenting mantra: “My son needs me to be present, not perfect.”36:00 - Learning to enjoy the simple pleasures with your children.39:00 - How Cheryl & Jamie explain their cond

In this episode Cheryl explains how Acceptance and Commitment Therapy (ACT) has been key for her to build a life she loves despite chronic illnesses. She also shares how she’s found a balance between ways to minimize pain and ways to live a good life despite pain. Additionally she urges listeners to ask, “Can I live a good life despite rheumatoid arthritis?” rather than “Can I live a normal life with rheumatoid arthritis?” Speaker bio:Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources. Links to things discussed in the podcast episode:Rheum to THRIVE membership - sign up today (registration closes on March 31)!Articles mentioned in this episode:Summary of research article: “Rheumatoid arthritis: 80% of sufferers can now live a “normal” lifeJAMA article: Diagnosis and Management of Rheumatoid Arthritis: A ReviewMarcel the Shell with Shoes on (“Compared to what?”)Russ Harris: The Happiness TrapAcceptance and Commitment Therapy info page8 Lessons Learned Postpartum - my blog post from 201410 years with RA - what’s the impact? - blog post from 2013Cheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseCheryl’s Arthritis Life social media pages:Cheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Free Facebook group to discuss the podcast and connect further with others: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Show notes:1:20 - Why I chose this topic for today’s episode.3:00 - Does “normal” mean lack of severe joint damage? Research study showed 80% of people with rheumatoid arthritis can live a “normal life.”5:00 - What is your definition of normal - compared to what?7:00 Is a “normal life” the exact life I imagined for myself pre-diagnosis?7:55 - Is a “normal life” one where I can experience things that are important and achieve meaningful goals and life experiences?10:05 - Can you live a normal life with RA? It depends on what your definition is, and what your hopes and dreams are underneath your concept of normal.10:35: You may not get the normal you wanted or expected, but can you find a NEW normal you can learn to love?12:40 - There is no guarantee for anyone of a pain free life. Confronting that reality head on can free us from pressure and energy to try to achieve a perfectly pain free life, which is impossible for most.15:00 - How my therapists taught me the futility of trying to avoid pain and anxiety.15:45: “The hope is that you can still live a good life despite inevitable pain and suffering, that’s the hope, the hope isn’t that you can avoid it, because avoidance is not a long term sustainable strategy .”16:00 - We can and should gather evidence based tools to manage and minimize our pain and function on a daily basis, however: “If we ONLY focus on the tools to MINIMIZE pain, the problem can be the expectation or belief that we attach to the idea that if we JUST have the right tools we are going to 100% be guaranteed to avoid all pain, and I do wish that were true, but realistically it’s just not true for most people because, pain, physical or mental, is an inevitable part of the human experience.”17:15 - Difference between pain and suffering.17:55 - I was dragged “kicking and screaming” into acceptance. If you are confused, you’re not alone!18:45: True acceptance of the PRESENT moment is completely different than giving up or resignation.20:10 - When we’ve done everything we can to reduce pain, instead of struggling with that, we can focus on: what can we still do in the present moment? What can I still DO that ’s important or valuable to me, DESPITE the pain? I eventually learned to let go of the illusion that if I just do the RIGHT THING I could ALWAYS avoid pain, and once I let go, I was set free.21:30 - Balancing act between plan A (using tools to minimize symptoms) and plan B (tools to “workaround” symptoms and function despite them).22:20 - We spend a lot of time running away from pain and running away from our disease, but what if we spent more time running TOWARDS things we can still do that are valuable?23:05 - What I dislike about a “normal” life being defined as one without disease - feels ableist to me24:15 - My old optimism: if I just find the right so

James and Cheryl discuss in detail how they manage fluctuating symptoms and pain from chronic rheumatic diseases. James also explains how his patient journey led him to create his innovative 3-D symptom tracker app, Chronic Insights.Speaker bios:James Allen is 39, and has lived with ankylosing spondylitis (AS) for 22 years. He likes to think of arthritis as a clumsy housemate who moved in without permission, who he used to hate but over the years he’s grown to kind of like. It forced him to leave his job as an IT consultant, which in retrospect has been a positive development, because now he’s doing something he really loves - developing a symptom diary app called Chronic Insights.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Episode links:Where to follow James:James’ Chronic Insights Instagram: @chronicinsightsEmail James: [email protected]: https://chronicinsights.com/Book James Recommends: “Practicing Mindfulness” audio bookCheryl’s free webinar on March 26th - Sign up hereWait list for Rheum to THRIVE membership Cheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseCheryl’s Arthritis Life social media pages:Cheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Free Facebook group to discuss the podcast and connect further with others: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportMedical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:02:30 - James shares his relationship to his Ankylosing Spondylitis (AS), it’s like someone who moves into your house who at first you try to make go away, then you make peace with it.05:30- Cheryl and James discuss how metaphors and Acceptance and Commitment Therapy (ACT) help them cope with chronic illness.10:00 - James’ journey getting his initial diagnosis of Ankylosing Spondylitis quickly due to his dad’s help.12:20 - James’ journey managing his AS; initially it was pushed to the back of his mind, then it gradually worsened over time and he sought therapy to help with the struggle.17:10 - Cheryl and James’ important lessons/insights about the importance of communicating your pain levels to your providers. How hard it can be to admit you are in a lot of pain.19:40 - James’ switch to his first biologic, Humira and how it changed his life for the better.21:00 - Cheryl and James discuss the phenomenon that many patients are scared of medications, and how the risk / benefit analysis is different for each patient.23:50 - James enjoys activities like running a half marathon while his medication worked. Then, experiences his medication wearing off after years of success, which was a massive blow mentally.25:50 - James starting over with medications, trying different biologics. He experiences progressive deterioration of his health which negatively affects his work life.30:50 - James’ condition progresses to where he has difficulty getting out of bed and his partner has to help him with daily living tasks. He hits rock bottom.32:50 - James comes across meditation and mindfulness, leading to breakthroughs in his ability to manage and cope with pain. He learns to be curious about his pain and develops the ability to observe himself and empathize with his experiencing pain, and eventually accept it.36:50 - Cheryl explains the importance of the developing mental tools to cope with the uncertainties that come with chronic pain and chronic illness.39:50 - James discovers slow and gentle somatic exercise, which helps him relax and relieves joint stiffness and tension.41:50 - The benefits of the reclined exercise bike and a sit/standing desk for James’ back and hip pain.43:50 - How James sometimes allows himself to have a “bad day” and wallow to help his mental wellbeing.46:50 - Cheryl dives into acceptance and commitment therapy.48:50 - James’ challenges with difficulty rating his pain on a scale of 1-10, and why that inspired him to create an app for tracking symptoms.51:20 - Cheryl and James explain the difficulties of rating pain.53:00 – James elaborating on how he developed his symptom diary app, Chronic Insights, which allows you to draw your symptoms onto an interactive 3-D model.57:00 - James’ shares the impact of having a visual representation of your pa

Speaker biographies: Dr. Micah Yu is double board-certified in internal medicine and lifestyle medicine. He obtained his MD from Chicago Medical School and holds a Masters in Healthcare Administration and Biomedical sciences. He completed his internal medicine residency and rheumatology fellowship at Loma Linda University in Southern California. He has been accepted with a full scholarship to the Andrew Weil Integrative Medicine Fellowship at the University of Arizona. Dr. Yu has a very unique perspective on autoimmune disease and arthritis as he is both a patient with arthritis and a physician.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Links to things discussed in the episode:Dr Micah Yu website /socialsClinic website: www.drlifestyle.orgTikTok: @myautoimmunemd http://tiktok.com/@myautoimmunemdInstagram @myautoimmunemd http://instagram.com/myautoimmunemdYoutube: Dr Lifestyle https://www.youtube.com/channel/UCxUp6EwvcIntKm6o4jn6sIAFacebook: https://www.facebook.com/MYAutoimmuneMD/Twitter: https://twitter.com/myautoimmunemdDr Yu’s Recommended reading / viewing:Documentary - Forks over KnivesBook - How Not to DieDr. Andrew WeilU of Arizona Integrative MedicineArthritis Foundation episode on CBDCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseCheryl’s Arthritis Life social media pages:Cheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Here's the show breakdown: 01:15 - Rheumatologist Dr. Yu’s journey first with gout, then diffuse joint pain while in medical school, then a diagnosis of spondyloarthritis during his fellowship. 4:30 - What made Dr. Yu want to pursue Rheumatology. 6:00 - Dr. Yu pursues Integrative Medicine and the 6 pillars of Lifestyle Medicine with the help of his wife, also a physician. He adopts a whole food, plant based vegan diet and experiences huge improvements shown in lab work, pain levels and overall weight within 2-3 months. 8:28 - Dr. Yu explains what “Integrative Medicine” is and explains the process he’s going through to get board certified in it, including learning about Chinese medicine, ayurveda, herbal medicine and more.9:51 - Dr. Yu explains what the newer field of “Lifestyle Medicine” is, and the overlap between the two.10:30 - How can an appointment with an integrative medicine Rheumatologist differ from an appointment with a typical Rheumatologist? Discussions of nutrition, sleep, stress and whether medications are necessary. 12:00 - Cheryl and Dr. Yu discuss the importance of each patient’s treatment plan being individualized and customized to them, and how it can be a source of confusion for newly diagnosed patients when they see that someone else with their “same” diagnosis has a different treatment plan. For example, one person with severe disease who is afraid of medication might be confused why another patient (with more mild disease) was told they could avoid meds.15:08 - Dr. Yu answers some of the most frequently asked questions about diet and rheumatic disease (vegan diet, plant based, Mediterranean, Paleo and more). Explanation of the influence of the gut microbiome on autoimmune disease18:50 - Dr. Yu explains which supplements can help with rheumatic diseases and inflammation.20:15- Dr. Yu shares tips for fatigue. 21:30- Definition of “Functional Medicine” and his recommendations on finding a provider with valid credentials. 23:35 - Cheryl and Dr. Yu discuss the importance of sleep, ruling out a sleep disorder and how poor sleep contributes to fatigue and inflammation.24:45 - Dr. Yu discusses evidence for THC and CBD for it’s anti-inflammatory and pain relief properties. 26:00 - Is it hard being a patient and provider in Rheumatology? How Dr. Yu’s passion pushes him through the long hours!28:45 - If Dr. Yu could change anything about Medical School, what would he do?30:00 - Reflections on how th

Dr. Kara Wada is an Assistant Clinical Professor and Associate Fellowship Program Director of Allergy/Immunology at the Ohio State University in Columbus, Ohio. She graduated from the University of Illinois College of Medicine and completed her Internal Medicine and Pediatrics Residency and Allergy/Immunology Fellowship at the Ohio State University and Nationwide Children’s Hospital. After having completed additional fellowship training in medical education, Dr. Wada is passionate about building meaningful connection and therapeutic relationships with her patients and inspiring future physicians to do the same. She seeks to empower her patients and coaching clients with a naturally-minded and scientifically-grounded approach to care. She speaks nationally on topics including medical education, allergic and immunologic conditions. Outside of her work, she is an autoimmune patient, a food allergy mom of 2 spunky daughters, and wife to another Dr. Wada. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links to things discussed in the episode:Where to find Dr. Kara Wadawww.crunchyallergist.comwww.instagram.com/crunchyallergistwww.facebook.com/groups/crunchyallergistwww.twitter.com/crunchyallergyClubhouse @crunchyallergyWhat is a Allergist Immunologist? DR. Kara’s Recommendations:Sleep bookUniversity of Arizona Integrative Medicine website -Book - Nourish Cheryl's Free Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportCheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:01:25 - Introduction: Dr. Kara’s job as an Allergist Immunologist doctor at an academic medical center, journey with the autoimmune disease Sjogren's syndrome, and her role as a mother to a child with food allergy.4:10 - Dr. Kara’s experience having to advocate to get the blood testing and labs drawn for Sjogren’s disease while she was a medical intern.6:30 - Reflections on the power dynamics in physician - patient relationships and the importance of two way communication.8:38 - Dr. Kara’s tips on how to develop a trusting relationship with a physician.13:48 - How Dr. Kara uses a shared decision making to work together with patients, rather than the old model where the doctor told patients what to do.16:28- Dr. Kara explains the difference between an Allergist Immunologist and a Rheumatologist, and explains how allergist immunologists do more than “just” allergies.20:25 - How Dr. Kara manages her Sjogren’s currently, with an emphasis on the word “and” (western medicine and other “crunchy” alternatives). An explanation of Dr. Kara’s anti-inflammatory living techniques: food, meditation, and most importantly sleep to support health and healing.25:10 - How Dr. Kara un-learned her perfectionist tendencies, and Cheryl & Dr. Kara reflect on how parenting helped them lean into “progress over perfection.”26:28: Reflections on how to accept the reality: you can do everything right, and sometimes your body is going to have a mind of its own. How to accept the element of randomness and move on with an empowered and self-compassionate mindset rather than letting it get us down.27:00 - Dr. Kara explains how she finds a balance between conventional and complementary alternative treatments: “weeding out the woo.”31:10 - The warning signs to look out for when looking at different complementary alternative treatment options33:10 - Dr. Kara explains how the supplement industry is not regulated and can be dangerous and shares her own experience of experiencing liver abnormalities after taking a “superfood” supplement.36:44 - The importance of a personalized care plan and getting a variety of specialists on your care team.38:43 - Just because it’s natural doesn’t mean that it’s healthy. Dr. Kara and Cheryl dive into the balance between being open minded and skeptical about alternative methods of managing rheumatic diseases like rheumatoid arthritis and Sjogren’s.41

Christa Fairbrother is a skilled and experienced water aerobics and aqua yoga instructor who also lives with multiple chronic illnesses. For Christa, living with arthritis and teaching yoga are integrated. She credits her lack of pain to aqua yoga practice. Being passionate about aqua yoga, she wants to see aqua yoga in more communities worldwide.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Here's the show breakdown:01:15 - Christa’s diagnosis journey: symptoms of RA and Lupus symptoms started at age 12, initial diagnosis of Mixed Connective Tissue Disease (MCTD) after the birth of her 2nd son.05:05 - Christa’s MCTD symptoms (including Raynaud’s) and why it’s so hard to get this rare diagnosis.8:00 - Christa and Cheryl reflect on what it’s like to live with multiple chronic conditions, not knowing at times what is causing which symptom.10:40 - Christa’s up and down journey managing her conditions over many years.15:30 - Cheryl and Christa explain what connective tissue and fascia are.17:33 - Christa’s journey with yoga, which started when she had back pain being a farrier (a craftsperson who trims and shoes horses' hooves). 19:40 - After 20 years of doing yoga, Christa became a yoga instructor.22:11 - What is aqua yoga, and how Christa discovered and fell in love with it.25:33 - The numerous medical benefits of exercise in the water for healthy people and those living with arthritis. 32:15 - Christa’s explanation of the offloading of gravity in the water due to buoyancy and how it gives your muscles a more balanced effort.34:55 - Christa discusses how accessible swimming pools are in the US. 38:55 - Thoughts around safety and germs with aqua yoga and swimming during the COVID-19 pandemic. 41:55 - Interested in the Arthritis Foundation’s aqua therapy program? Here is how you can find it at a local water center!44:40 - Christa describes what happens in an aqua aerobics class. 47:43 - Cheryl and Christa’s insights on why group classes make people feel empowered, especially during COVID-19. 50:56 - Cheryl and Christa’s views on how the sensory elements of water can help regulate our mood, from prenatal experiences to adulthood.55:25 - Christa’s advice on what to do if your joints hurt in the water.1:01:30 - Salt water pools VS. Chlorine pools and water safety advice that you may not be aware of. Episode links:Christa’s websiteChrista’s FacebookChrista’s InstagramChrista’s PinterestBook Christa recommended: Vivek Murphy - “Together” A handout about the AFAP - Arthritis Foundation Aquatic Programhttps://arthritis.yoga/Resources from the aquatic therapy and rehab institute- plus this article Free Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportCheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportFree Handout: Cheryl’s Master Checklist for Managing RACheryl’s Twitter: @realcc This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Christy Williams is a certified health coach, wife, mother of two and endurance athlete/triathlete. She has been living with an autoimmune disease called Sero-negative spondylarthopathy (blood negative inflammatory arthritis) since the age of 24. She is now 48 and has been in remission for 15 years due to a combination of Remicade (a biologic disease modifier) and an active healthy lifestyle. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She is passionate about helping others with rheumatoid arthritis thrive despite arthritis. She formed the educational company Arthritis Life in 2019 after seeing a need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Episode links:Christy’s Instagram: @coachchristy10 Free Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThe Happiness Trap book by Russ HarrisCheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage everyday life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Show Breakdown: 01:00 – Christy shares her diagnosis at 24 after the birth of her first child, and her transition into adulthood. 03:20 – Christy’s tenacious drive to stay active, her journey completing an ironman challenge. 5:35: How Christy has managed her inflammatory arthritis over the years: it’s a marathon not a sprint! How she went from being in a wheelchair to completing triathalons after figuring out the right medication and lifestyle interventions such as exercise.8:00 - Christy explains how fatigue still affects her quality of life, and how she copes with it by pacing herself.13:05– Christy shares why and how she became a health coach for people with autoimmune disease, after she achieved remission. 20:30 – How having an autoimmune disease sparked Christy and Cheryl to confront their mortality.23:10 – Christy’s definition of “remission,” and additional reflections on the fact that no two paths towards remission are the same.30:10 – Cheryl and Christy share different debates and challenges within the chronic illness community, including medication shaming, or shaming of people who celebrate natural methods.34:40 - Cheryl reflects on how she’s tried to strike a balance between celebrating how well Western medications have worked for her and also respecting others’ choices if they differ, and how patients within the chronic illness community can unite in our common goals and consider the intent of our messages when we communicate our journeys.36:00 - How Christy & Cheryl cope with unsolicited advice.38:00 - How Cheryl’s therapy helped her cope with uncertainty and gray areas during treatment for RA.41:25 – How Christy has managed her attitude and mindset during the ups and downs of life with inflammatory arthritis.43:38– Cheryl shares how Acceptance and Commitment Therapy transformed her relationship to uncertainty as a chronic illness patient, and how anxiety makes you want black and white answers and certainty. 50:00 – Common misconceptions and myths around arthritis and remission.54:27 – Christy’s advice for anyone battling chronic illness and her best coping mechanisms dealing with uncertainty 57:00 - Christy’s pre-diagnosis challenges with people not believing her.1:03:00 - The importance of sharing our stories, even if we get criticized or misunderstood! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a Glance:0:48: Episode intro2:50: One - We want you to learn what the disease is and isn’t.9:55: Two - The fatigue can be just as bad as the pain.15:48: Three - It doesn’t just affect the body - it also affects the mind and emotions.20:20**: Four** - It affects EACH person differently.22:50: Five - Daily symptoms are often unpredictable.25:45**: Six -** We want credit for how hard we’re fighting, even when we seem “normal.”27:54: Seven - Sometimes we need problem solving, other times we need empathy.34:30: Eight - Managing the disease itself is a job that takes time and energy.35:55: Bonus point: Take care of YOUR needs as the caregiver/friend37:10: Concluding thoughtsMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Links to things discussed in this episode:Free webinar: How to Use Social Media and Online Information as an RA patient Without Wanting to Tear your Hair OutFree Handout: Cheryl’s Master Checklist for Managing RACheryl’s Arthritis Life InstagramArthritis Life website@ArthritisLife on TiktokArthritis Life Facebook PageCheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportCheryl’s Twitter: @realccThank you so much to episode contributors from Instagram:@Sophialwebb_ , @mhaggerty_ , @mariavgi , @warriorsmovemountains , @worldofOT , @shelly_steele , _brittanbee_ , @theinvisiblemewarriorspbc , @znev.alia , @aimeefb, @mrs_Alix_Naber, @Lailaschneider, @kat.panning, @Annafitandbeautiful, @danicreegs, @floopilicious, @wsmommie, @house_of_spoons, @Bto22, @diana_rosas023, @chaichat023, @kheartsphotos, @pdxfashionista, @stephanielabonte, @shelly_steele + numerous anonymous contributors! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In December 2020, Arthritis Life hosted an “Arthritis Storytelling Hour” where thirteen patients shared vivid tales from their lives.Listen and learn about how difficult the diagnosis process is for some, how people with rheumatoid arthritis and ankylosing spondylitis learned to advocate for themselves, how to navigate work life with your condition, what it’s like to be a “spoonie mom,” the importance of mindset, acceptance and self-care, and more! Video details:Topic: basics of life with RA, diagnosis stories, how diagnosis led to career1:28 - Chloe Umpleby JIA (Juvenile Idiopathic Arthritis) journey6:21 - Kia Peters: diagnosis of RA (rheumatoid arthritis) during graduate school11:00 - Sammantha Dorazio: diagnosis led to career as Nurse Practitioner14:20-Paulina Burzynsk: how RA helped her take better care of your body Topic: Advocacy / learning to speak up24:30 - Jed Finley example of how he learned how to advocate for himself in the context of medical appointments for his ankylosing spondylitis 30:00 - Mimi Cross - how she learned that if something makes you uncomfortable you need to speak up even if that feels awkwardRA’s effect on work36:13 - Sarah Dillingham - how she became comfortable talking about RA at work42:30 - Effie Koliopoulos - how RA led her to her passion for writing RA’s and family46:20 - Ushma Sampat - how RA affects family relationships and life partnership / marriage54:50 - Jes Hosjan How AS affects her experience as a mom and how she learned to advocate as a “spoonie mom!”Humor and Mindset1:03:02 - Cristina Montoya - Humorous take on life with RA1:10:17 - Krista - Her experience chasing a past life to be the same “pre diagnosis” and how she learned to embrace the present1:17:44 - Cheryl Crow - My journey to acceptance of discomfort and uncertainty in life, how ACT (acceptance and commitment therapy) and my two therapists helped me!Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Links to speaker pages and websites:Chloe Umplby - instagram @xchloeumplebyx/ and @spoonfulofchronic/Chloe’s Instagram, Chronically Happy Instagram, Spoonful of Chronic shopKia Peters Instagram https://www.instagram.com/livewellwithkia/Instagram @LiveWellWithKiaSammantha Dorazio https://www.instagram.com/samdorazio8/Sammantha’s InstagramPaulina Burzynsk https://www.instagram.com/with.paulina/Paulina’s Instagram & Chronically Happy InstagramPaulina’s WebsiteJed Finley Jed’s twitter https://twitter.com/JediMaster941 and Instagram https://www.instagram.com/jedimaster941/Jed’s Twitter, Jed’s InstagramJed’s blogJed’s writing for Ankylosing Spondylitis.net Jed’s PodcastMimi Cross - https://www.instagram.com/inflammationvacation/Mimi’s Instagram, Inflammation Vacation InstagramInflammation Vacation websiteSarah Dillingham - Grace and Able page , Women with Rheumatoid Disease Facebook Group https://www.facebook.com/groups/WomenwithRDGrace & Able: Sarah’s company making comfortable and visually appealing wrist braces Women with Rheumatoid Disease - Sarah’s Facebook group & pageEffie Koliopoulos - Effie’s blog: https://risingabovera.com/ Effie’s Instagram https://www.instagram.com/risingabovera/Effie’s BlogEffie’s InstagramEffie’s TwitterEffie’s Rising Above RA RAra Shop Designs (Merch): Effie’s Youtube Channel: RA and MyselfUshma Sampat - Ushma’s Instagram https://www.instagram.com/worldofot/Ushma’s Instagram Jes Hosjan - Instagram https://www.instagram.com/house_of_spoons/Instagram: House of SpoonsJes’s articles on Axial Spondylitis.net Jes’s Youtube Channel Cristina Montoya - on Instagram at https://www.instagram.com/arthritisdietitian/Cristina’s InstagramCristina’s blog Krista Rowan - Instagram https://www.instagram.com/kickra18/, TikTok https://www.tiktok.com/@kickra18Krista’s Instagram: @kickra18 Tiktok: @kickra18 Website: alivetoliving.comCheryl Crow: instagram https://www.instagram.com/arthritis_life_cheryl/, website https://arthritis.theenthusiasticlife.com/, tiktok https://www.tiktok.com/@arthritislife, free facebook group https://www.facebook.com/groups/arthritislifepodcastandsupportCheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportFree Handout: Cheryl’s Master Checklist for Managing RACheryl’s Twitter: @realcc This video is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl Crow created to empower people with tools to confidently manage their social, emotional and physical lives with rheumatoid arthritis. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Photo credit for Lene’s photo: David Govoni. Speaker bios:Lene (pronounced Lena) is an award-winning writer and rheumatoid arthritis advocate living in Toronto, Canada. Born and raised in Denmark, Lene has had autoimmune arthritis since childhood and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and writes books about living well with RA and other types of chronic illness. Lene shares her home with a cat and too many books. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links to things discussed in this episode:Lene’s website: The Seated View https://theseatedview.com/Lene’s Twitter @TheSeateViewLene’s Facebook https://www.facebook.com/LeneAndersenwriter/Lene’s Instagram @TheSeatedViewCheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryls Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Here's the show breakdown:· 01:50 – Lene shares her diagnosis story with Juvenile and Rheumatoid Arthritis· 02:32 – Lene shares some tips for managing the holidays with a chronic illness. · 05:00 – How Lene learned to embrace “imperfect moments” that create the family legends to make the holidays special.· 11:45 – Lene’s reflections about navigating the holiday season this year during COVID-19. · 20:55 – Lene shares her journey of creating her first book while battling major hurdles living with her Juvenile and Rheumatoid Arthritis.· 26:45 – Anyone battling chronic illness with big aspirations just take it one step at a time – remember: thinking and planning counts as moving in the right direction. · 31:40 – Lene gives insight about using her power wheelchair at age sixteen empowered her to live life to the fullest.· 36:25 – Lene discusses human right principles by understanding employment and accommodations for people with chronic illness.· 42:40 – Lene’s advice for newly diagnosed patients. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Jen dives deep into how and why she co-founded Savvy-Co-op, whose mission is to empower patients to co-create new solutions alongside health innovators. This includes a discussion of her PhD studies in human factors. Jen walks us through what it’s like for a patient to get their voice heard and provide feedback to healthcare companies and health innovators through Savvy, all while being monetarily compensated for their time. She also explains why it’s crucial for health innovators to seek diverse patient voices. Cheryl and Jen discuss the importance of quality of life (QOL) measures as part of patient-reported outcomes (PROs).The episode ends with a summary of Jen’s life experiences as a young person with juvenile idiopathic arthritis, and her advice for newly diagnosed patients today.Speaker bios:Jen Horonjeff was diagnosed with juvenile arthritis as an infant and now has a laundry list of other conditions and surprises (like a brain tumor). She is passionate about elevating and valuing the patient voice, and went on to become a health outcomes researcher, human factors engineer, FDA Consumer Representative, and, most importantly, a patient advocate. Jen earned a PhD in Environmental Medicine from NYU, and studies patient-centered outcomes at Columbia University Medical Center. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Episode links:Savvy Coop Twitter and Instagram: @savvy_coopSavvy Website: Savvy.coopJen’s personal Twitter & Instagram: @jhoronjeffJen’s LinkedIn Free Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:00 - Jen’s experience getting a phD in Human Factors, accessibility, and patient centered outcomes while balancing her Juvenile Idiopathic Arthritis (JIA). 4:50 - How Jen formed Savvy Co-op: a patient owned, public benefit co-op that connects health innovators with patients to provide feedback, where patients are co-owners of the company and are often compensated for their time and expertise.8:00 - Why is it important for health organizations to not only get patient feedback, but also seek diverse patient voices.10:50 - Jen walks us through what it’s like for a patient to get their voice heard and provide feedback to healthcare companies and health innovators through Savvy, all while being monetarily compensated for their time. 15:20 - Why it’s important to follow up with the patient after they complete their “gig,” and let the patient know how their voice had an impact.17:00 - What does “patients are the expert in their care” mean, and what does “patient centered care” mean?18:15 - An example of the patient voice changing health systems: patient feedback about the importance of fatigue led to it being incorporated as a “clinical trial outcome set,” or something that’s measured. 21:50: Jen’s experience serving on the FDA’s Arthritis Advisory Committee, and explanation of why quality of life (QOL) measures are so important. 25:15 - Chery’s quick plug for occupational therapy in helping patients achieve the best quality of life possible.26:15 - Are the current quality of life measures still relevant today, and are they sensitive enough to measure what’s truly important to patients?31:15 - Issues with patient reported outcomes are not specific to rheumatology, they are common across health conditions; Jen’s example: cystic fibrosis. 32:30 - Cheryl discusses the difference between basic “activities of daily living” (like dressing oneself) and “instrumental activities of daily living” (more time-consuming and cognitively challenging tasks like caring for children, preparing meals, managing finances). 33:30 - Jen’s personal journey with juvenile idiopathic arthritis (JIA): from gold shots in the 1980s and being told to avoid movement and exercise, to a dance major in college. 37:25 - Jen’s advice to parents of children with JIA 38:25 - Why Jen feels her disease DOES define her. 41:10 - Jen’s message for newly diagnosed patients: take time to reflect and grieve, acknowledge tha

Stefanie is the Rheumatoid Arthritis Coach. She’s a mother, teacher, volunteer, Family Nurse Practitioner, and also has rheumatoid arthritis. She was diagnosed about six years ago after the birth of her first child. As a medical professional with over ten years of experience at that time, she was completely lost and felt like her world was shattered. The day she was diagnosed she cried for 10 minutes in the car, and then decided: “I’m not only going to take control of MY disease, but I want to help others to do the same!”Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by learning effective tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links:Stefanie’s Rheumatoid Arthritis Coach WebsiteEmail: [email protected] Page: Rheumatoid Arthritis CoachStefanie’s Instagram: @RheumatoidArthritisCoachCheryl’s Free Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:00 - Introduction to Stephanie2:05 - How Stephanie’s background in medicine helped her figure out her Rheumatoid Arthritis diagnosis. 4:18- How Stephanie took control of her diagnosis and created the 1st arthritis support group in Las Vegas, Nevada through the Arthritis Foundation. 7:13 - Stephanie’s experience working in critical care (ICU - Intensive Care Unit) as a nurse at the time of her diagnosis and afterwards9:20 - Stephanie’s choice to leave the ICU setting due to her RA diagnosis10:17 - Stephanie’s advice to people with RA who are conflicted about whether to switch careers: don’t be afraid to change paths due to your condition, particularly if it helps you manage your stress better.13:25 - Cheryl & Stefanie discuss the importance of patient education.14:35 - Cheryl & Stefanie discuss how having RA changed how they practice as health providers: learning to listen better and be more present.18:50 - Stephanie’s most important tool to manage her RA on a daily basis: the ability to adapt (it’s a super power)!20:25 - Examples of how Stefanie adapts her daily routines to match her condition and abilities: pants with buttons versus pants without buttons, bar soap versus pump soap, types of cans, and more examples.24:30 - Cheryl’s examples of how occupational therapists help patients with arthritis adapt their daily routines to what works best for each individual. 28:09 - Stefanie’s family history of autoimmune diseases.29:30 - Stephanie’s first big RA flare after her first child was born and her experience with pregnancy and postpartum with her second child was born.30:35 - Stefanie’s difficulties with breastfeeding after her first pregnancy, versus her second pregnancy where she knew she couldn’t breastfeed due to medications.31:47 - Cheryl’s experience with chronic mastitis infections while breastfeeding and her views on infant feeding: fed is best! 34:15 - How Stefanie manages the demands of parenting with young kids: honest communication with your family, and some adaptations like a ramp for her children to get into their own bed.40:00 - Stefanie’s journey to creating her RA Coaching program42:30 - More details about Stephanie’s Rheumatoid Arthritis Coach program: diet, symptoms, and medications, individualized medical chart reviews for Rheumatoid Arthritis patients. 46:50 - Stefanie’s reflections on the importance of individualized care. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Jason Webb is a 42 year old father of 3 daughters who has lived with inflammatory arthritis for 38 years. He’s also an artist, chef-educator (27 years), stock trading coach, and mentor to other single fathers. Jason is a creative with a flair for wit and humor. He understands that what works for him might not work for you, but he's there to help you through, so don’t be shy to reach out. He is currently working on a culinary education program and children's book series.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links to things discussed in the podcast episode:Jason’s website: Chefscookies.caJason’s Instagram:Instagram.com/thejazzyjayInstagram.com/jazzycharts Instagram.com/chefs_cookies Instagram.com/jazzyjayfoodJason’s Facebook accounts:www.facebook.com/TheJazzyJayFB @jazzychartsFb: @chefscookiesFree Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:09- Jason’s diagnosis story (also known as a journey or saga): from juvenile idiopathic arthritis to ankylosing spondylitis.6:00 - How Jason copes with gray areas and identify his flare triggers.8:40 - How Jason manages his physical health at this time.11:18 - What helps Jason manage Ankylosing Spondylitis: staying “safe, smart, strong, sweet and silly,” plus adaptive aids, massage, knowing his flare cycles, knowing diet and food triggers and more.16:30 – Coping mechanisms for chronic illness and chronic pain 19:25 - Cheryl once again brings up Acceptance and Commitment Therapy - ACT21:30 - How Jason’s challenging upbringing taught him how to be adaptable.23:45 - How Jason learned the importance of self-education.26:00 - Jason’s reflections on the positives and challenges of parenting with a chronic illness.29:30 - Jason’s past experiences as a chef & how he experienced cycles of stress, physical challenge and financial challenges as a single father.32:30 - Jason’s experience mentoring other single dads on Facebook32:30 - Jason reads his letter to single dads and others who are struggling.37:00 - Jason’s advice for newly diagnosed patients: educate yourself about the disease, listen to your body39:00 - Jason reflects on the connection between his emotional state and physical symptoms, how stress has caused flare-ups for him.42:00 - Jason & Cheryl’s parenting and stress-management advice Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In January 2000, Krista was diagnosed with Rheumatoid Arthritis; a debilitating autoimmune disease affecting her joints, tissues, skin and organs. Having experienced chronic pain, disability, stress, depression, isolation and hopelessness for years, she relates deeply to the fear and impact to all facets of life when health is deteriorated.In 2015, Krista began addressing root cause drivers of her inflammation and disease, which not only dramatically improved her quality of life, but led her to become a speaker and certified coach. Today, Krista is on a reMISSION to inspire and empower others to improve their own health and quality of life.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links to things discussed in the podcast episode:Krista’s Instagram: @kickra18 Tiktok: @kickra18 Krista's Website: alivetoliving.comCheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportCheryl’s Free Handout: Cheryl’s Master Checklist for Managing RAThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an online education and support program Cheryl created to guide people with RA step by step through how to confidently manage their social, emotional and physical life with rheumatoid arthritis.Episode Breakdown:01:00 - Krista’s introduction and diagnosis story at age 2905:15 - Krista’s initial fears about what life with RA would be like7:00 - How Krista’s diagnosis affected her relationship with her fiance, wedding planning, family planning and all aspects of life9:20 - Living in “fear, shame, anger and doom” for the first fifteen years of her journey, without revealing her diagnosis at work or publicly10:52 - Isolating herself from fear of being perceived as weak 13:45 - Krista’s experience on prednisone, feeling “not broken”14:50 – Pregnancy challenges due to RA flare17:19 - Krista’s wedding - home made Keds19:14 - Krista hits “rock bottom” after 15 years and leaves her 20 year corporate career and decides not to apply for disability. 21:05 - Krista encounters Teri Wahl’s diet and lifestyle journey with MS and the “Wahl’s Protocol”22:10 – Krista learns about “root cause medicine,” finds hope and goes back to school to become a “holistic nutritionist.” 26:25 - Krista learns to pay attention to her inflammation triggers (stress, foods, fragrances, sleep)29:33 - Krist and Cheryl reflect on the importance of hope and mindset31:23 - The importance of avoiding the “positive thinking” trap and how it’s good to validate your feelings. 32:35 - Learning to mentally reframe what was actually happening in her life and address perceptions to stop her stress response.35:20 - How Cheryl & Krista both learned to curb the urge to be people-pleasers.36:00 – Krista and Cheryl discuss learning to set boundaries, say no & protect energy. 40:27– Krista joins TikTok in June 2020, makes “I can’t shuffle but I can Shakira” viral video showing belly dance style moves44:02 - Krista is surprised by the positive responses to her dance videos47:50 - Inspiring people to move however you can, “love yourself moving” 51:20 - Krista starts showing some of her physical limitations in her videos, and realizes that she doesn’t have to hide her RA anymore. 56:00 - Krista reflects on going from very private to public about her diagnosis58:20 - How Krista responds to unsolicited advice from people who don’t have a chronic illness1:00:10 – Krista’s words of wisdom for newly diagnosed patients.1:03:07 - Krista’s final thoughts: being 50 and being in the best place she’s been in 21 years, learning how to live in the moment even if it’s uncomfortable.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Speaker bios:Corinne McLees is passionate about helping individuals maximize the function of their upper extremities, as she believes the hands are imperative to doing the things we love most. She graduated from VCU's Master of Science in Occupational Therapy in 2016 and immediately began working in VCU Heath's hand therapy clinic. Corinne and her OT husband launched My Virtual OT - a 100% virtual occupational therapy practice - in order to safely serve clients amidst COVID-19. She has two small children and one on the way, and she and her husband have greatly enjoyed launching this business together.Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. She helps others with rheumatoid arthritis determine how to live a full life *despite* arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Links to things discussed in this episode:What is Occupational Therapy?Homonculus - sensory and motorMy Virtual OT website My Virtual OT Youtube Channel Corinne’s Virtual OT InstagramFree Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Episode breakdown:01:00 – Corinne’s explanation of what Occupational Therapy is05:00 – Educating clients about hand therapy07:00 – The brain interprets our hands as disproportionately important given their size; discussion of the homonculus 10:00 – How pain affects daily activities12:42 – Principles of joint protect while living with chronic hand pain13:00 – How posture alignment awareness protects joints19:25 – Overuse of exercises, fatigue, and flares 25:05 – How to better understand human behavior to support behavior change30:15- Corinne explains what happens during a virtual occupational therapy visit for patients with RA33:00 – The importance of distinguishing between different tyes of pain41:10 – How support groups can help keep you accountable 45:15- Additional OT treatments: heat and cold, splinting and joint protection Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, Paulina shares her personal journey of how she discovered the benefits of yoga after her rheumatoid arthritis diagnosis. She explains how it can help people manage stress and feel a better sense of peace about themselves and their lives. Paulina also busts some of the top myths about yoga in this episode.Paulina Burzynska has been a 𝑅ℎ𝑒𝑢𝑚𝑎𝑡𝑜𝑖𝑑 𝐴𝑟𝑡ℎ𝑟𝑖𝑡𝑖𝑠 𝑊𝑎𝑟𝑟𝑖𝑜𝑟 since the age of 18. She has lived with RA for five years, and as a teacher she is dedicated to providing safe, mindful classes for everyone helping them experience the benefits of yoga. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links Discussed in this episode:Paulina’s Instagram & Chronically Happy InstagramYoga school Paulina went to: Zazyoga Flexibility versus hypermobility articleFree Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, a comprehensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode breakdown:01:00 - How Paulina was introduced to Yoga while living with rheumatoid arthritis (RA)05:00 – You don’t necessarily have to modify your yoga routine07:00 – How yoga can work with your body’s central nervous system12:24 – Practicing yoga involves breath work to help with stress and getting your mind and body into a healing state15:00 – The mental aspect of yoga brings mindfulness17:56 – Cheryl shares her experience taking Pauline yoga class22:00- Yoga is not about the intensity but about the healing aspect 26:16 – How people with RA can modify yoga to help work around painful areas32:00 – Listen to your intuition about your body35:00 – Top myths around yoga - “I’m Not flexible enough to do yoga” 39:00 – You don’t need special equipment to practice yoga 42:00 – Your muscle fibers through physical activity will get weaker or stronger45:00 – Certain techniques in yoga can help how your body reacts to stressful situations48:30 – Insecurities that might prevent people from from trying yoga52:00 – How yoga can support you Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl explains how rheumatoid arthritis affects more than just joints - it affects people’s whole bodies, and whole lives!She also explores how she learned to tolerate gray areas rather than seeking black and white answers, and how mindfulness and acceptance helped her with the mental side of life with chronic illness.This episode also includes a discussion about medical gaslighting, and how Cheryl learned to give herself permission to grieve her diagnosis.It concludes with a discussion about how managing one’s rheumatoid arthritis is like a full time job. Episode breakdown:1:00 - #1 - Rheumatoid Arthritis affects more than just joints.5:00 - #2 - RA affects your social life in difficult ways (such as misconceptions) and positive ways (such as connections with a chronic illness community)9:30 - Tips for using websites and social in productive ways12:40: #3 - Gray areas are the norm for autoimmune disease16:09: #4 - Living with chronic illness will affect your mental health.17:49 Cheryl’s experience with allowing herself to grieve her health19:13 - Medical gaslighting.22:14 - #5 - Managing RA is a job but you can learn how to do it!Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorRheum to THRIVE, an empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here! Speaker Bio:Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links discussed in this episode:Free training - overcome overwhelm through online health literacy (click “Unit 1” and “Lesson 2” on this page)Note: In 2021-23 Cheryl updated the "Rheumatoid Arthritis Roadmap" course and renamed it to "Rheum to THRIVE,' to signify that it now includes instruction on all forms of inflammatory arthritis / rheumatic disease, not just rheumatoid arthritis.Cheryl’s diagnosis story on YoutubeFree Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.