Arthritis Life

In this episode, Cheryl discusses the major themes in Taylor Swift’s music that relate to the chronic illness experience, from the “Haunting” experience of a medication not working anymore to my own “Anti Heroic” immune system to the constant question of “Are We Out of the Woods yet?” when in a flare up. After weaving in and out her own experience with rheumatoid arthritis and anxiety with listener contributions, Cheryl concludes by exploring the the “State of Grace” we experience when we connect with the chronic illness community. Throughout, she shares how she’s learned to accept what’s out of her control and the empowerment of acknowledging that while my journey might have been rocky, “Long Story Short: I Survived.” Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video:Go to the episode page on the Arthritis Life Website! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl and Dr. Hosey delve into the importance of accepting the unpredictability of life with chronic illness and redefining what constitutes a "normal" life. This includes a discussion about resilience, mindfulness, and the potential for personal growth in the face of chronic health struggles.Dr. Hosey's shares how she turned her pain into purpose, referencing her upcoming book, 'Girl on a Gurney: Trading my White Coat for a Hospital Gown’. She also provides tangible solutions for medical gaslighting, including medical student education in this phenomenon.** Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode Sponsors** Episode SponsorRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!*For full episode show notes, go to the show page on the Arthritis Life website at: https://arthritis.theenthusiasticlife.com/2024/01/05/from-medical-gaslighting-to-a-sjogrens-diagnosis-dr-rebecca-hoseys-story/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

After discovering that episode 14 is the most downloaded of all my Arthritis Life Podcast episodes, I decided to release it with some additional insights from my perspective now. I also provide some updates after facilitating support groups for over 250 people in the last three years.This episode includes a deep dive into how rheumatoid arthritis affects more than just joints – it affects people’s whole bodies, and whole lives. I reflect on the five things I wish I had known when I was first diagnosed, way back in 2003. I hope that these reflections help you feel less alone and more grounded as you try to manage the best life possible with inflammatory arthritis!Episode at a glance:#1 – Rheumatoid Arthritis affects more than just joints.#2 – RA affects your social life in difficult ways (such as misconceptions) and positive ways (such as connections with a chronic illness community)Tips for using websites and social in productive ways#3 – Gray areas are the norm for autoimmune disease#4 – Living with chronic illness will affect your mental health.Cheryl’s experience with allowing herself to grieve her healthMedical gaslighting.#5 – Managing RA is a job but you can learn how to do it!Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript:Go to the episode page on the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

This is a follow up to episode 45: “What’s it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?” Paulina, Jenny, Ali, and Ananthi share what’s changed and what has stayed the same with their medications, including whether they’re still on methotrexate. They also reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences.Paulina, Jenny, Ali, and Ananthi each share wisdom that has guided them along this nonlinear journey; encouraging self-care, advocating, celebrating small victories, and approaching life one day at a time. They conclude with a discussion about how to balance acceptance and adapting with a “fixing” mindset.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video:Go to the episode page on the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl and Dr. Amigues touch upon the significance of accurately diagnosing RA and the potential for misdiagnosis, especially as this influences the ability to receive appropriate care. They give valuable insight into the journey of living with RA, and bring a positive perspective that thriving can be possible through effective medical interventions and lifestyle modifications. For full episode details including a transcript and video, go to the episode page on the Arthritis Life Website. Episode at a glance:Being a rheumatologist: Dr. Amigues finds joy in her medical practice, especially in encouraging patients to live life to the fullest despite challenges. She emphasizes understanding the patient's perspective and asking thorough questions.Importance of Accurate Diagnosis: The complexity of rheumatological conditions is acknowledged, with Dr. Amigues mentioning the importance of differentiating between various disorders for accurate diagnosis, while considering factors like comorbidities to create effective treatment plans.Individualized Patient Care: Dr. Amigues emphasizes the importance for patients to find a rheumatologist they trust, fostering personalized, comprehensive care. Advocating for accurate information and addressing medication concerns are also important while navigating healthcare for rheumatic conditions.Rheumatoid Arthritis (RA) Remission: Dr. Amigues shares the possibility of medicated remission in rheumatoid arthritis, highlighting advancements in treatment options and balancing these with lifestyle adjustments.Management through lifestyle adaptations: The integration of lifestyle changes alongside medical treatments for managing RA is discussed, with a focus on using exercise and movement as beneficial strategies.Mental Health and Self-Worth: The conversation explores psychological aspects of living with chronic diseases, addressing the concept of accepting and coping while acknowledging that life may present ongoing challenges that impact adaptability.Language Matters: Being mindful of the language used with chronic illness makes a difference. For example, patients don't fail medications, rather, certain medications may not achieve the desired result. Terms like "difficult to treat" should not be applied to the patient but rather to the disease itself. The importance of using sensitive language when discussing rheumatoid arthritis and similar conditions is also expressed.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For full episode details including a transcript and video:For full episode details including a transcript, go to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Emily explains what post-exertional malaise is, and highlights the challenges associated with diagnosing and managing ME/CFS. Emily emphasizes the need for personalized care and the critical role of patients in advocating for their own health. This conversation underscores the significance of creating strong support networks for people living with ME/CFS, as well as the broader chronic illness community. They also highlight the value of sharing personal stories to raise awareness and bring about policy changes. Episode at a glance:Advocacy and awareness: Cheryl and Emily discuss the power of patient stories in driving advocacy efforts, and the importance of raising awareness of the complexities of living with chronic illness.Symptom management: Post-exertional malaise, fatigue, pain, and cognitive issues often require a dynamic approach to management. This conversation delves into the importance of tailoring treatment to the specific condition/individual needs, and strategies such as pacing activity.Coping strategies and mental health: Having self-compassion is a key part of coping with chronic illness. Additionally, emotional support aids well-being and therapy can be a useful resource.Importance of having a support network: Cheryl and Emily emphasize the value of connecting with others who have similar conditions to create a sense of community, as well as accepting support from friends, family, and healthcare professionals.Patient/healthcare provider relationship: Emily shares the challenges of obtaining accurate diagnoses and appropriate medical care for chronic illnesses, especially for lesser-known conditions like ME/CFS. Building collaborative, patient-centered relationships with healthcare providers who are willing to listen, learn, and explore treatment options can make a big difference in managing complex chronic illnesses.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Speaker Bios:Emily Taylor Vice President of Advocacy and Engagement at Solve ME, Emily brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years’ experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation. Prior to joining the Solve M.E., Emily served as the director of policy and advocacy for an award-winning autism organization. There she spearheaded major overhauls in disability, early intervention, and education policies. She is also a veteran of several successful electoral campaigns, where she trained others in effective social media and online organization. She received a B.A. with honors in politics and international relations from Scripps College in Claremont and earned her M.A. in American politics from Claremont Graduate University. Emily draws inspiration from her mother who has battled ME/CFS as well as chronic autoimmune and thyroid conditions since 1999.Cheryl CrowCheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.For full episode details including a detailed transcript and video:Coming soon on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl and Brianna discuss the challenges and the benefits of sharing your chronic illness story publicly on social media, including how they deal with both positive and negative feedback from a growing audience. They also discuss the positive impact of finding support and inspiration online. Brianna shares her involvement with the Arthritis Foundation and the Lupus Foundation, highlighting the importance of giving back and helping others in the community. The role of support groups, camps, and patient advocacy organizations in providing a sense of community and connection for individuals living with chronic diseases is highlighted. Cheryl and Brianna also discuss the value of adapting and accepting one's condition to live a fulfilling life. Finally, they emphasize the importance of acceptance and adaptation in thriving with rheumatic diseases.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcriptGo to the episode page on the Arthritis Life website for full details! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Summary:Cheryl and Tyra delve into Tyra's unique journey as a Black woman living with rheumatoid arthritis (RA) and her inspiring efforts to create a documentary about her experiences. Tyra, an actress and filmmaker, shared how her struggle with RA led her to embark on the documentary project. She discussed the challenges of living with chronic pain, the lack of representation for people of color with RA in media, and the need to make creative spaces more accessible.Tyra emphasizes the importance of re-parenting oneself and adopting a compassionate attitude toward one's body when dealing with chronic illness. She also touches on the significance of finding joy in love, laughter, and supportive communities despite the pain. Cheryl and Tyra discussed the complexities of living with RA, including the physical and emotional challenges, and the importance of representation and empathy in media. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For Full Episode Show Notes:Go to the episode page on the Arthritis Life Website for detailed show notes including a full transcript and video of this conversation. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Summary:Chery and Laura discuss the importance of connecting with others in the autoimmune community to create a sense of belonging and empowerment.They delve into the diverse offerings at the Autoimmune Association’s upcoming event: the Autoimmune Community Summit. This includes sessions on managing pain and fatigue, communicating with healthcare teams, and exploring dietary strategies, all aimed at empowering patients with autoimmune conditions. Throughout their conversation, Cheryl and Laura underscore the pivotal role of community and empowerment in thriving with autoimmune diseases, making it clear that the Autoimmune Association's annual summit is a place where patients can find connection, knowledge, empowerment and support on their autoimmune journey.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including transcript & VideoGo to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode summaryRheumatologist Dr. Buckner emphasizes the importance of early diagnosis and reassures patients that, although there might not be a cure yet, advancements in treatments have significantly improved the quality of life for individuals with autoimmune diseases. She highlights the crucial role of patients in research partnerships, where their input and participation are highly valued, leading to better understanding and management of these conditions.Dr. Mikacenic emphasizes the importance of viewing the patient-researcher relationship as a partnership. She discusses the potential benefits of participating in research studies, not only in drug trials but also through donating samples and providing clinical information.Both doctors express optimism about the future, believing that a cure for autoimmune diseases is possible with the rapid growth of knowledge about the immune system and targeted treatments on the horizon. They emphasize the significance of teamwork between patients, caregivers, and researchers, fostering hope and improving the lives of those affected by autoimmune conditions.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.This episode is brought to you by:Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now at https://arthritislifeschool.thinkific.com/For full details including a video and transcript:See the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Summary:Nikita shares her personal journey of acceptance, self-compassion, and finding her center while navigating multiple conditions, including endometriosis, fibromyalgia, and Hashimoto’s. Their conversation delves into the power of mindset in managing chronic pain, the significance of self-love, and the need to let go of self-blame. Cheryl and Nikita highlight the importance of community, finding joy in everyday moments, and the role of pets in providing companionship and comfort. Nikita's journey is characterized by embracing her authentic self and recognizing that, while challenges persist, she has the tools to thrive despite them. Her favorite mantra, "Do what you can when you can," encapsulates the empowerment of choices and resources. Nikita invites listeners to connect with her on Thrive With Nikita and explore her podcast, Crafted to Thrive, which focuses on the experiences of entrepreneurs with chronic illnesses. For a supportive community and to hone skills for living well despite chronic illness, Cheryl also welcomes listeners to her Rheum to THRIVE program.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Show Page - for Full Transcript, Show Notes & VideoGo to the episode page on the Arthritis Life Website for full details and hyperlinks. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Navigating Diagnosis and Treatment: Stella shares her journey of being diagnosed with axial spondyloarthritis at a young age and the challenges of finding effective treatments. Cheryl emphasizes the importance of advocating for oneself and seeking alternatives if a treatment is not the right fit.Using Mobility Aids and Devices: Stella and Cheryl discuss the use of mobility aids to help manage the impact that symptoms have on daily life. Stella highlights how using a cane helped her receive better care and awareness, while Cheryl mentions the benefit of finding tools that reduce the impact on joints and make tasks easier.Reclaiming Identity and Self-Expression: Personalizing mobility aids and turning them into accessories can help them feel more comfortable and reduce the stigma associated with them.Internalized Ableism: Their conversation brings up the topic of internalized ableism and emphasizes the importance of challenging these perceptions.Self-Advocacy and Communication: Stella and Cheryl discuss the necessity for advocacy when interacting with healthcare professionals. They encourage being thorough about symptoms, side effects, and concerns. Additionally, they recommend taking notes, bringing a friend or support person, and having a list of questions ready during appointments.Knowing Your Rights and Accommodations: Stella talks about obtaining a letter from her doctor to protect her rights in the workplace. Knowing legal protections for people with disabilities can be essential in navigating work environments and seeking proper accommodations.Finding joy despite limitations: Despite the challenges of chronic illness, Stella and Cheryl emphasize the importance of seeking joy, pursuing passions, and participating in activities that bring happiness, including using adaptations and coping strategies when needed.Community and Support: Stella and Cheryl discuss the value of being involved in a supportive community, such as Rheum to THRIVE where individuals with chronic illnesses can share experiences, insights, and mutual understanding.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For full episode details including a transcript and video:See the episode page on the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Relation to autoimmune arthritis: Dr. Furlan is a physician at a pain clinic, a scientist at the rehab institute, and assistant faculty at the University of Toronto. She is a physiatrist who specializes in pain.Understanding Pain: Dr. Furlan explains how pain science is continually advancing and more information about how the brain processes pain is being discovered. There are different types of pain, and multiple systems in the body involved with the sensation/perception of pain.Your pain is valid: Some people might not see your pain, and you may be stigmatized, but what you say is pain, IS pain. If other people say you’re not in pain, it’s because they don’t understand the pain system.Language around pain: The words we use about pain can make a difference too. Cheryl and Dr. Furlan discusses different ways of approaching words like “conquer” or “defeat” in the context of living with a painful autoimmune condition.8 steps for living better with pain: Dr Furlan explains strategies for exercise, sleep and more. For example, she recommends breaking up exercise into smaller “snacks” or movement breaks. She also shares the importance of quality sleep is important too, since it gives you energy for other lifestyle factors. Investigate if you have a treatable sleep condition (like sleep apnea), and then address your sleep hygiene/routines - including making sure you’re not sleeping too little or too much. Lifestyle factors are often interconnected, and taking care of your mental health and nutrition can also support sleep and exercise.Dr. Furlan’s best advice for newly diagnosed: Doing it alone is HARD. Find support, someone knowledgeable who’s climbed their mountain or helped others do it, who’ve traveled this road before - they can be your guide.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and group support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Full Episode Details plus Audio Transcription: Please go to the episode page on the Arthritis Life website for all the details! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode Summary:🛑Trigger warning: discussion of eating disorders (I did not have one but was accused of lying about causing my weight loss and hiding an ED) 🛑In this episode, my parents and I share our memories of my diagnosis story, which covers roughly 2001-2004.This includes a discussion about the profound confusion we all experienced when I went from a healthy, robust student athlete to having a “mystery illness” that doctors keep insinuating is “just anxiety” (or an eating disorder). We also share how we lost faith and trust in some doctors after experiencing medical gaslighting, yet we also found hope in the competency and empathetic care of other doctors (particularly in rheumatology). We share our mixed reactions to the diagnosis of rheumatoid arthritis, and my parents open up about what it’s like to have a child get sick who’s a young adult - not a kid anymore but not a fully independent adult either.My parents also share their advice to other parents of children or young adults who are sick but not yet diagnosed, as well as their best advice for newly diagnosed people with rheumatic diseases. This is a must listen!Episode at a glance:Introduction to my parents and discussion about my early life (healthy, active lifestyle, no drugs or risky behaviors).Cheryl’s Early diagnosis story (2001-3): Going down the gastroenterology path. We initially addressed systemic symptoms (stomach issues, eye issues and fatigue). The gastroenterologist did many procedures (including an endoscopy, barium swallow and pH manometry) then said nothing was wrong other than “the relationship between mom and daughter” (insinuating we were too close or perhaps both “too anxious”). He then did a gastric emptying scan and diagnosed me with gastroparesis (slow motility - a form of dysautonomia) but still said nothing else was wrong.Medical Gaslighting: My parents dilemma of whether to believe me or the gastroenterologist and others who accused me of having “nothing wrong” and just being a hypochondriac: how they chose to believe me despite the medical gaslighting from docs; how it was confusing that i could just get sick out of seemingly nowhere, it just didn’t make sense. My dad knew I didn’t have an eating disorder.2003: Hiring a concierge doctor who initially thought it was just anxiety, but eventually in summer 2003 once my joints were hurting more she ran more bloodwork and preliminarily diagnosed me with RA.Immediately after diagnosis - memories of the first trip to the rheumatologist and starting meds: relief, confusion, a whiplash from feeling not believed to feeling believed and that this is very serious; discussions about whether to start medications or not; my mom opened up about realizing she could advocate for me but wasn’t the expert in the medications;Cheryl returns to New York for final year of undergrad and experiences medicated remission for 6 years - end of “phase 1” of her RA journey, which became more bumpy and complex after that first remission ended.My parents advice to others: My parents share their best advice to other parents who may be in the position of advocating for their childrenMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!Full episode details including video and transcriptGo to the Arthritis Life Website for full episode details. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

You are not alone. In this episode, host Cheryl Crow and Rheum to THRIVE Graduate Katie Searfross discuss how to find a realistic sense of hope when coping with multiple fluctuating, complex chronic illnesses that are sometimes out of our control. Katie shares how she copes and finds ways to hold on to moments of joy even when her symptoms of Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome), Migraine and Rheumatoid Arthritis remain. Katie and Cheryl share how they’ve learned to be gentle with themselves and patient in those tough moments when you do “everything right” and your symptoms remain. They also discuss the complexity of moments where you have to decide whether to push past your pain and when to slow down and listen to your body. Katie and Cheryl also discuss the value of group support and a sense of community, which Katie found in Rheum to THRIVE. Katie also shares lessons she learned as a children’s pastor specializing in grief, which can apply to people with chronic illness as well.Episode at a glance:Diagnosis story: Prior to her rheumatoid arthritis (RA) diagnosis, Katie knew she had other diagnoses including Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome) and Migraine. As a result, it was difficult for her to recognize “normal” symptoms for RSD compared to out of the ordinary symptoms which pointed to a new diagnosis of rheumatoid arthritis.Pain and dissociating: Katie shares how she found herself dissociating from pain / distracting herself from pain, and needing to learn to reconnect with her body.Katie’s coping toolbox: At first, adjusting to RA diagnosis felt like losing everything. It’s frustrating to have days when you do everything right and still have pain. Katie shares how in Rheum to THRIVE, being provided with evidence-based tools to manage pain and fatigue while having acknowledgement of the reality that sometimes your symptoms will remain despite doing everything right was empowering. It’s a reminder that we can still focus on ways to find joy and thrive. Katie found freedom in knowing her diagnosis is not her fault, and learned to be gentle with herself.Social support: Katie shares how important it was for her to find a sense of authenticity, understanding, valid information and connection and how she found that in Rheum to THRIVE. Having expert guidance and an ability to ask questions helps to make sense of diagnosis, experiences, and lifestyle considerations.Lessons learned from Katie’s work in grief: Katie shares lessons she has learned in her work as children’s pastor with adults and children who are grieving; many of these lessons can also help people with chronic illness, including learning to be gentle with yourself.Katie’s best advice for newly diagnosed: Find a safe community - don’t try to do this as an island, because it’s too much for one person to hold all on their own. All suffering is valid, it’s never helpful to say it could be worse.What it means to Katie to thrive with rheumatic disease: Using the “and” - this is hard and I want to laugh and make memories. It is embracing that and not putting life on hold. I remind myself that I’m doing my best.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Episode details & Transcript:Go to to the episode page on the Arthritis Life website for full episode details including a transcript and video! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Jenni shares how her symptoms were initially dismissed before she got diagnosed with rheumatoid arthritis. She then got her diagnosis and experienced a rare medication side effect: medically induced pustular psoriasis. Through it all, she also balanced being a mom, wife and friend. In this episode Jenni shares how she learned the importance of social-support, self-advocacy, humor and an unashamed embracing of her “new normal.”Episode at a glance:Diagnosis and treatment Saga: After experiencing knee pain, fatigue, and fevers, Jenni is first diagnosed with an “infection in her knee” and then told she needs to “just lose weight; after advocating for herself Jenni gets a second opinion and a preliminary RA diagnosis, then has many complications with treatments including medically induced pustular psoriasis.Learning Self-Advocacy: Jenni talks about the importance of finding a doctor who is the right fit for you, listens to your story, and explains their treatment clearly - while avoiding medical gaslighting and weight blameThe importance of social support: Jenni shares how she lost some friendships, but also found amazing people to keep her going. Jenni started “My Spoonie Sisters” to help others feel less alone.Jenni’s Coping Tools: She works to lean hard into the mindset of embracing her reality and not feeling shame about her health.Finding a “New Normal:” Be honest with the people in your life - including finding ways to talk about it to your children if you have any. Don’t be afraid to ask for help and be specific! Be open to trying new things and sharing/connecting with others.Best Advice for Newly Diagnosed Patients: When things feel out of control - you matter, you’re enough, your life matters; use what you’re going through to help others.Favorite Mantra: Don’t forget your spoon - save one for yourself!Thriving with Rheumatic Disease: Thriving with rheumatic disease means not giving up! Have hope that you will still live a wonderful life, even if it’s not exactly how you may have once envisioned it.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:What is a naturopathic doctor? Naturopathic doctors use a holistic approach to patient care. They often include nutrition, mind-body medicine, exercise, and natural approaches to their treatment. Naturopathic doctors must take professional board exams in order to be licensed to practice.Mymee: Mymee aims for personalized care for people with autoimmune rheumatic disease and symptoms resulting from long-COVID, aiming to track variables that may make symptoms better or worse.Symptom Tracking 101: With Mymee, tracking pain focuses on quality vs quantity - so it’s not just the average 1-10 pain scale. The importance of context and ability to participate in activities is taken into consideration.Coping with unpredictability: Part of being human is dealing with the unknown. Control can also be a double-edged sword: it can be empowering, but also overwhelming if obsessed over and freeing to let go over.Tips for exercise & fatigue: Overexertion can be trigger, so pace your movement! Incorporating snacks with your exercise may help with fatigue, and calisthenic exercise can be beneficial for strength training with the bonus of having minimal equipment requirements.Words of wisdom: Some things aren’t modifiable / controllable, but be open to possibilities for the things that can be controlled. Practice self-compassion and take care of yourself, first! You don’t have to know it all.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode Sponsors:Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For Full Episode Show Notes + Transcript:Go to the Arthritis Life Website at: https://arthritis.theenthusiasticlife.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, host Cheryl Crow and psychotherapist Timothy Weymann delve deep into the existential, philosophical questions that chronic illness poses. Is there hope without healing? Is it possible to “make peace with loss and change?” How on earth can you “access a sense of peace in the midst of ambiguity,” particularly when that ambiguity has to do with your own health and wellbeing? Timothy reflects on gender, sexual orientation, disability, acceptance and more, sharing how he used “minority survival skills” he learned as a gay man to help him navigate his newfound identity as a person with rheumatoid arthritis. He and Cheryl also discuss how gratitude, forgiveness, self-acceptance, compassion, and social connection help them and others face health difficulties with meaning and purpose.Episode at a glance:Diagnosis story: Timothy advocated for himself as his symptoms worsened despite experiencing medical gaslighting. Eventually he was tested for and diagnosed with Mixed Connective Tissue Disorder and Rheumatoid Arthritis - which came with feeling crushed and wondering: “Is this going to be my new life?”. Impact of gender and chronic illness: Men are a minority in the rheumatoid arthritis community, and Timothy shared how his gender has affected his experiences of healthcare and belonging in the chronic illness community. He reflects on how our culture has often given the message that men should tough things out and not ask for help, which can be challenging for mental health.Sexual identity: Timothy shares lessons he learned while navigating being a minority as a gay man. Gaining protective skills through this experience helped prepare him for the considerations of sharing disability-related information.Mental health: Early on in Timothy’s diagnosis he felt like he was in a “crisis phase”, which led to self-blame, shame, and an urge to keep it hidden. Cheryl shares that many people aim to ‘conquer” the diagnosis in an effort to feel like they can control it, but in time inevitably reach limits. Tim reflects on the wisdom of turning away from control and learning ways to “access a sense of peace in the midst of ambiguity”.Coping Toolbox: Timothy explores existential psychology, which is rooted in existential philosophy and is a non-religious examination of the human condition. The 4 ultimate concerns of this are captivity versus freedom, meaning versus meaninglessness (we get to define what is meaningful to us as individuals), connection versus isolation (we’re independent but also need support), and life versus death / ambiguous loss (experiencing limitations and losses). These 4 ultimate concerns can ground one in building a fulfilling life despite chronic illness.Best advice for newly diagnosed: Know that it’s ok to not be ok, and it’s ok to let everything unfold. Build a good team, be patient with yourself and others, get connected through support, and utilize collective wisdom.What it means to Timothy to thrive with rheumatic disease: Reframing life purpose to mean that a rich life includes both difficulties and happy moments.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details and a transcript:Go to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Kelly shares the long and winding road trialing medications and building her coping toolbox as she navigates an undetermined form of autoimmune arthritis. She shares what it’s like to work as a Speech-Language Pathologist while balancing her health needs, and reflects on the pros and cons of disclosing health information to coworkers. With advocacy and education in mind, Kelly has also co-founded The International Foundation for Autoimmune and Autoinflammatory Arthritis and is the author of the blog As My Joints Turn: My Autoimmune Soap Opera. Cheryl and Kelly talk about the benefits of spending time with pets, along with the importance of prioritizing mental health, practicing mindfulness, and getting connected with a supportive community.Episode at a glance:Diagnosis story: Kelly has learned to cope with a changing diagnosis under the umbrella of “autoimmune arthritis,” along with Grave’s Disease. She has tried a variety of treatments to manage symptoms and help determine the underlying diagnosis.Balancing Work and Chronic Illness: Kelly works as a Speech-Language Pathologist, and is also the co-founder of The International Foundation for Autoimmune and Autoinflammatory Arthritis and author of the blog As My Joints Turn: My Autoimmune Soap Opera. In the workplace, she navigates disclosing her health to her coworkers and being aware of accommodation options.A look inside Kelly’s Arthritis Toolbox: Practicing mindfulness, spending time with pets, getting support, and taking care of mental health.Advice for Newly Diagnosed Patients: You’ll be invited to a lot of arguments but don’t have to engage.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For full episode details including a transcript and video:Go to the show page on the Arthritis Life website! www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Content / trigger warning: mass shooting discussion Learning to thrive with chronic illness is a marathon, not a sprint. Cheryl and Gittel discuss coping through unlearning toxic positivity, confronting internalized ableism, getting social support and adapting though accommodations. Gittel shares what’s in her coping toolbox for life with ankylosing spondylitis, from exploring the benefits of medicinal cannabis to getting support in Rheum to THRIVE. Becoming a “life hacker”, learning acceptance, going with the flow, and letting go of control can help you find joy despite pain, one moment at a time!Episode at a glance:Journey to diagnosis: After 15 years of chronic pain, Gittel was diagnosed with Ankylosing Spondylitis and Crohn's disease. With diagnosis came a combination of emotions: validation that something was wrong, sad that it wasn’t something acute and fixable, and empowered with information that she could research. She learned to adapt and ask for accommodations without shame.Gittel’s coping toolbox: Understanding and unlearning toxic positivity, confronting ableism (including internalized ableism), and building health literacy.Medical Cannabis: Gittel has experienced pain relief, appetite stimulation, and mental health benefits from medical cannabis, which can be injested, topical, or smoked. Her favorite medicinal brand is Level.Getting support: After trying individual therapy, Gittel found Rheum to THRIVE and felt seen and heard with multiple people who “get it”.Finding joy despite pain: One moment at a time, my now is not my forever.Best advice for newly diagnosed patients: Be patient with yourself! This is a marathon, not a sprint. To me, thriving with rheumatic disease means becoming a life hacker, learning acceptance, going with the flow and letting go of controlMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For full episode detailsTo see full details including a transcript and video, go to the episode page on the Arthritis Life Website here. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Summary:Psychologist Dr. Afton Hassett and Cheryl Crow, OT explore the neuroscience behind chronic pain and how its interconnection with fatigue, sleep, stress, and emotions may affect your experience of pain over time. Dr. Hassett is an Associate Professor and Director of Pain and Opioid Research in the Department of Anesthesiology at the University of Michigan. In this episode, she explains how pain is not "all in your head," however it is in your BRAIN! Because the areas of your brain that process pain overlap with the areas that process thoughts and emotions, there is much you can do to influence pain signals. Further, there is evidence that building your resilience through mindfulness, social support, optimism, and healthy lifestyle habits can positively alter how the brain perceives pain.Dr. Hassett also shares lessons from her soon-to-be-released book, The Chronic Pain Reset, and Cheryl shares how she developed her Rheum to THRIVE course and program to help address the full picture of chronic pain patients’ needs.Episode at a glance:Professional background: Dr. Hassett studied clinical psychology in San Diego, where she received her doctorate. She now works as an Associate Professor and principal investigator at University of Michigan in the renowned Chronic Pain and Fatigue Research Center, one of the largest Chronic Pain Research centers in the world.Pain Science 101: Pain is not “all in your head”... but the brain processes pain using many of the same areas and structures of your brain that process emotions and thoughts. Thus, our thoughts, emotions, and life context can greatly affect how pain is processed and experienced. Tools for Fatigue: Pain, poor sleep, poor mood, and lack of energy often group together and affect each other - if you can improve one it can help improve the others. Saving “spoons” for relationships and supportive connections and spending time outside getting fresh air and sunshine can also help improve symptoms of fatigue. Tips for building resilience and optimism: Cope with uncertainty by practicing mindfulness, make time to do the things you love and value even with some lingering pain, and keep a gratitude journal or other practices to help you stay centered and increase positive emotions.Advice to newly-diagnosed patients: Seek a mentor who can help you navigate, find ways to do activities that feel purposeful to you, and know that you’ve got this!Chronic Pain Reset book: Set to release September 5, 2023, Dr. Hassett wrote this book for people with chronic pain and their care providers. She begins by explaining the neuroscience of chronic pain the connection between pain and stress, social relationships, positive and negative emotions, gratitude, joy, and physical health. The second part of the book leads you through a 30-day journey to try evidence-based activities and practices to find the ones you like best. The last part of the book helps you customize a program filled with activities that make sense to you and address multiple domains of wellness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Speaker Bios:Dr. Afton Hassett is a licensed clinical psychologist who is an Associate Professor and Director of Pain and Opioid Research in the Department of Anesthesiology at the University of Michigan. She studies behavioral interventions for people with chronic pain including those that promote resilience. She has published over 100 articles in scientific journals and has over $10M in NIH research funding. She is also a Past President of the Association for Rheumatology Professionals, a division of the ACR. Cheryl CrowCheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode links:Links to things mentioned in episode or additional listeningChronic Pain and Fatigue Research Center at U MichiganAfton’s research - link to all research publicationsDr Marty Seligman Positive Psychology - UPennAfton’s research w/Dr. Martin Seligman (optimism) on soldiers - Chronic Pain Reset book, will be released September 2023Afton’s social mediaTwitter - @aftonhasset Cheryl’s Arthritis Life Pages:Arthritis Life websiteYoutube channelInstagram @a

Cheryl C. and Cheryl K. share key tools for thriving with arthritis, like finding ways to ask for help, developing health literacy, practicing self-compassion, and getting support. They also discuss the safety of modern medicine and how to balance it with complementary therapies to create an individualized plan for managing rheumatoid arthritis. Additionally, they delve into the mental health techniques that have helped them cope, including: reframing exercises, and working past bias. Cheryl K. shared how she used her experiences to form Arthritis Consumer Experts, a patient-led and science-based organization with the goal of providing better education to people with arthritis.Episode at a glance:Navigating chronic illness when the internet was just starting: Cheryl Koehn had an athletic background, but when symptoms struck she went to the library to do her own research and advocated for herself despite medical gaslighting.Trialing treatment options: Cheryl K. initially denied Western Medicine before she ended up with 36 active swollen joints within a year and progressively worsening quality of life. Following this, she received gold injections and other conventional DMARDs initially, adding in Methotrexate and later transitioning to newer medications like biologics as they became available.Coping with peer pressure: People trying to convince her that “natural is better” and to avoid medications, however natural isn’t inherently better at controlling disease and newer medications are backed by research. Cheryl C. and Cheryl K. discuss how a balance of complementary therapies and medication help people safely manage their conditions. Koen practices reframing exercises, works on explicit and implicit bias, and considers “what can I learn from this person today” with an open mind.Wisdom for newly diagnosed patients: Find ways to ask for help! Develop health literacy as a tool for advocating for yourself and to guide decision making.What does it mean to thrive with rheumatic disease: Practice self-love and self-compassion, love what you do, and give yourself room to breathe.Arthritis Consumer Experts (ACE): Cheryl K. used her experiences of running her own consulting firm, volunteering, and being on the board at the Arthritis Society to form this organization. Her goal is to provide better education to people with arthritis, and to not be the only person with arthritis with a say in arthritis organizations.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For Full Episode Details Including Transcript:Go to the Arthritis Life website Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Wada and Cheryl delve into the connection between Sjogren’s and Rheumatoid Arthritis, discover what’s in Dr. Wada’s disease management toolkit, and share insights into living a full, vibrant life with chronic illness.Dr. Wada and Cheryl also share insights into how mental health can be affected by chronic illness, and reflect on how the “overachiever” lifestyle is not always helpful. They encourage listeners to focus on making decisions that align with their values and target living well with chronic conditions rather than focusing on total symptom elimination. They encourage listeners to find ways to live a balanced lifestyle and develop a support system which can help you thrive throughout the highs and lows of chronic illness life.Episode at a glance:Understanding Sjogren’s Syndrome: The immune system attacks moisture producing glands and parts of the nervous system, leading to a variety of symptoms including dry eyes and mouth, difficulty swallowing, fatigue, body aches, irritable bowel, and small fiber neuropathy. Rheumatologists are typically the specialists seen for Sjogren’s, but patients may also get support from neurologists, ophthalmologists, and other specialists.Perspective as an Allergist-Immunologist: Advocacy, bringing awareness, and education A look Inside Dr. Wada's Toolkit: Finding the right medications, carrying a water bottle, using eye drops, utilizing stress management skills, and being mindful of lifestyle factors like sleep hygiene, movement, and nourishing your body with proper nutrition.Chronic illness and mental health: Initially felt like being an “overachiever” by working out often and taking supplements would ease symptoms, but that’s not necessarily helpful. Words of caution re: supplements & “natural” methods: Dr. Wada and Cheryl discuss the reasons to be cautious about supplements as there isn’t much regulation or transparency with them currently.Advice for living well despite chronic illness: Take a deep breath, there will be good days and bad days no matter what. Focus on making decisions in alignment with your values.Want more Sjogren’s support? Check out the Sjogren’s Summit - April 1st-2nd!: Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a full transcript:Go to the show page on the Arthritis Life website at www.MyArthritisLife.Net. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode summaryIn this episode, occupational therapists Cheryl Crow & Hoang Tran go in depth on how and why the human hand is so complex, and how people with inflammatory arthritis can take good care of their hands to relieve hand pain and improve function.This episode includes an in depth exploration of what it’s like to see a hand therapist, why hand therapy helps people with arthritis, what people with rheumatic diseases need to know about hand anatomy, and how to advocate for yourself to get an interdisciplinary team supporting you (in addition to your rheumatologist). They also take a deep dive into how rheumatoid arthritis can transition to a more orthopedic issue long term, and Cheryl & Hoang share their best advice & tips for newly diagnosed patients.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course & support group program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!Full episode notes + transcriptGo to the show page on the Arthritis Life website, thanks! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Clare and Cheryl share tips for how to cope with periods of no diagnosis or changing diagnosis. Clare also provides insights from her unique perspective as someone diagnosed with autism as an adult, soon after her myofascial pain syndrome diagnosis.Cheryl and Clare discuss the importance of perseverance in seeking help, building a personalized treatment plan, and ways to find joy in the midst of chronic illness while accepting that it’s okay to feel sad or angry too. The episode concludes with a discussion about how pain, brain fog, anxiety, and burnout are hard, but support is out there and can make a big difference in living well despite the challenges.Episode at a glance:Journey to diagnosis of myofascial pain syndrome and autism: getting referred to a variety of specialists to troubleshoot symptoms that mimic other conditions, learning to unmask and cope with pain, brain fog, anxiety, and burnoutBuilding a personalized treatment toolbox: currently incorporating pharmaceutical medication with integrative treatment. Physical therapy and exercise with gentle movement, yoga, and weight training, Cymbalta for depression and chronic painFinding joy: Find a community where you can learn new things and have compassionate and caring support. Don’t forget to find joy in the “little things”, like cozy blankets or a TV show / movie / book to escape to.Advice for undiagnosed patients: You’re not crazy! The gray area is scary, but it won’t last forever. Keep an open mind, and know it’s okay to feel sad and angry. Coping with a change in diagnosis: Clare’s tips from her experience having her diagnosis changed: being open to new possibilities, advocating for yourself, and being realistic about what doctors knowLiving well despite chronic illness: Getting to a place where you’re friends with your body - not fighting against it but rather acknowledging what your body has survived. Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course & support group program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!For full episode Details, Links, Video & TranscriptionGo to the Arthritis Life Website: www.MyArthritisLife.Net (episode page coming soon!) Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, Marisa shares what it was like to be diagnosed with rheumatoid arthritis around her thirtieth birthday after thinking her wrist pain was only carpel tunnel syndrome. She opens up about her mixed emotions after her diagnosis and shares what helps her cope and thrive, including burlesque dancing, group fitness, the Rheum to THRIVE support group program and more. The episode concludes with a discussion about how Cheryl and Marisa learned to be kind to themselves.Episode at a glance:Diagnosis journey - thought it was carpel tunnel in both hands, turned out to be RA, diagnosed around her 30th birthday.Emotional response to diagnosis: mixed feelings, bittersweet - partly relieved to have answers, but frustrated about not being able to do what she used to. Went down google “rabbit holes” and got overwhelmedWhat helped her adjust and thrive: joining Rheum to THRIVE for more credible information and support from others going through similar thingsThe role of fitness: Marisa explains how her work as a group fitness instructor and her fitness habits help her manage her RA symptoms, mood and stress.The role of burlesque dancing: Marisa joins a local burlesque dancing group and connects with her body in new waysLearning to be kinder to herself: Marisa shares how through therapy and Rheum to THRIVE she learned to be less judgmental of herself and more compassionate.Tips for Work with RA - Marisa shares what helps her work full timeMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Learn more here!For full episode details, links & transcript:Go to the episode page (coming soon) at the Arthritis Life website: www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Trigger warning: This episode includes a discussion of near-death experiences, medical trauma and decisions about quality of life versus prolonging of life. If you are having a mental health crisis or are struggling with suicidal thoughts, in the US you may call “988” for the Suicide and Crisis Lifeline which is staffed 24 hours a day.In this episode, Hay shares her tumultuous experiences with autoimmune vasculitis. She and Cheryl urge fellow chronic illness warriors to resist trying to fit their experience into a tidy narrative and instead ride the waves of uncertainty. While extremely challenging, Hay notes that “deep calls unto deep”, allowing shared humanity and connections based on what unites us all.For Full Episode Details Including Transcript:Go to the episode page on the Arthritis Life Website at: https://arthritis.theenthusiasticlife.com/2023/01/17/how-i-survived-survival-mode-marriage-faith-near-death-experiences-with-autoimmune-vasculitis-warrior-hay/Episode at a Glance:Education and work: Hay earned her PharmD (Pharmacy Doctorate) in 2011, but began experiencing chronic illnesses shortly after. She has learned to understand that your value is not based on your productivity.Relationships: Symptoms like fall risk, limitations on leaving the house, and being in “survival mode” have been trying on her marriage, but her husband never gave up.Diagnosis saga: living with Behcet’s vasculitis, common variable immune deficiency, Microscopic colitis, and respiratory failure, along with a variety of complicationsTreatment journey: Hay explains how she uses total parenteral nutrition (TPN, aka “vein food”) due to her GI tract not absorbing and has had a lot of trial and error with medications over the years, some even working against each other. She eventually found a promising mix of medications that has recently been helping her improve. She has been working with a team of seven specialists who collaborate on her treatment, especially from a palliative care perspective.Coping and advice: Hay shares the importance of art, faith, clear communication, and having boundaries. She explores how she tries to live life to the fullest within constraints. After having to deal with end of life conservations, she notes that “The way you hold people’s stories has to be infinitely more gentle than you thought”. Having been a writer and interning for a literary agent, she is used to stories being explained in 45-65 minutes but life with chronic illness feels like “you’re on a blindfolded roller coaster you’ve never seen before”. Cheryl and Hay discuss the benefits of resisting the urge to force your experience into a tidy narrative.Surviving SURVIVAL MODE: Hay shares how some days have been just living breath to breath and opens up how she’s allowed herself to grieve and learned to “riding the waves of uncertainty.” She shares what it’s like to have conversations about quality of life vs prolonging life. She explains the importance of connecting to others and exploring our shared humanity, “because deep calls unto deep” - what is happening, why am i here, what connects us, and understanding you’re not alone. She also shares how religion and faith have served an important purpose in her life.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in March 2023! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Yoga therapist and researcher Dr. Steffany Moonaz and host Cheryl Crow discuss the many benefits of yoga for people with inflammatory arthritis. They also bust common myths and misconceptions about yoga, including that it’s just an exercise or series of physical poses. Dr. Moonaz shares her best tips for patients newly diagnosed with arthritis and explains how the philosophy of yoga can help people with arthritis fully embrace the present moment and improve overall wellbeing. Dr. Moonaz is the founder of Yoga for Arthritis, which aims to bring evidence-informed and heart-centered yoga practices to people living with arthritis and chronic pain worldwide. Episode at a glance:Yoga meaning and philosophy: The union of mind and body through movement, breath, and mindfulness - not just poses and exercise!What makes Yoga Therapists different than Yoga Teachers: Yoga therapists have further training in understanding of health conditions to help patients manage chronic illness or imbalances through yoga.The power of movement for mental health: After experiencing improvements in her own mental health through dance and exercise, Dr. Moonaz realized her purpose of reducing suffering for people through mindful movement. She focuses on arthritis due in part to it being a leading cause of disability.Research on Yoga for Arthritis: It is considered integrative medicine with improvements for overall quality of life. This is due to relief of pain and stiffness, increase in physical function through balance, strength, and flexibility, and mindfulness for stress reductionBeginner Tips: Ask your rheumatologist if there are positions you should avoid, search for a Yoga Therapist who has experience with accessible / adaptive yoga through the International Association of Yoga Therapists, private lessons can be beneficial for added safety and personalized / targeted symptom managementAdvice for newly diagnosed patients: find “RA Thrivers” and listen to their stories, use social media as a resource for building connections, and join Rheum to THRIVE for education and support!Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in 2023!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Full show notes including transcript and videoGo to www.MyArthritisLife.Net to the show page, which should be up soon! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

After being a fierce athlete and playing Division 1 water polo, Emily was diagnosed with rheumatoid arthritis at age 22. She shares lessons learned while working as a night shift nurse for 12 years and having three children. Emily & Cheryl discuss ways to cope with the ups and downs of chronic illness, especially during times of uncertainty or when it seems the disease is posing “moving targets.” Emily shares what helps her thrive despite obstacles, including: having a supportive community, learning tips & tricks, and using products for accessibility. Episode at a glance:Emily’s diagnosis story: second opinions, new/fluctuating symptoms, uncertaintyEmily’s treatment journey: methotrexate, steroids, medical cannabisPregnancy and postpartum journey with RA: how RA has impacted functional/lifestyle tasks with parentingWork life: Emily shares what it was like working as an ER nurse while managing RACoping with “hard seasons”/flares: having community, validation, knowing “it’s not in my head,” connecting with other patients in the Rheum to THRIVE group; learning tips / tricks / products; accessibilityWhat Emily wishes she knew when first diagnosed: autoimmune journey is not linear/is like a moving target; wondering “is this a temporary flare up, or is this long-term”; setting treatment goals - “I want to not be distractingly aware of my RA/health”Coping: through a supportive community who “gets it”, learning tips and tricks for creating a rheumatoid arthritis “toolbox”, and addressing the mental health impact that isn’t often talked aboutMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a video and transcript:Go to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a Glance:Dianne’s Diagnosis story and subsequent emotional roller coasterDianna’s Treatment Journey: Dianna went from resistant to medicines to trying a biologic and feeling a large improvement in symptomsThe Importance of Support - Dianna shares how the Rheum to THRIVE group support & education program was a “lifeline” and helped her get out of a cycle of self-blame. She highlights the ways she learned how to explain her condition to others and process some of the social effects and pressures (such as not drinking wine)Anxiety and Uncertainty: Cheryl & Dianna discuss how uncertainty and not being able to be in control triggers their anxietyWhat helps you cope? “It’s a gift knowing you can’t solve it;” Dianna shares what else is in her toolbox alongside acceptance: exercise, movement, journaling, social time and moreThe role of writing and journaling in Dianna’s lifeRapid fire questionsBest advice for newly diagnosed patients? Encourage others to join Rheum to THRIVE or a similar program for social support; trust in the processFavorite arthritis gadget or tool in your arthritis toolbox: Compression gloves - from Grace & AbleDo you have a favorite mantra or inspirational saying? - “Si combino tuto” - everything works out;What’s bringing you joy right now? The fall weather; essay published - 2 onlineWhat does it mean to you to live a good life with rheumatic disease / thrive with rheumatoid arthritis: to accept the new me; just relax into it;Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in 2023!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.For Full Episode Details + Show NotesGo to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:Marion’s Diagnosis StoryMarion’s Treatment Journey: changes in medications over 15 years,Working while Living with Rheumatoid Arthritis: from struggling in silence to disclosing and getting supportHow Marion went from feeling guilty and afraid she’d be seen as “lazy” to realizing her condition wasn’t her faultValues: How RA led Marion to “crystallize her values” and redefine what success means to her, and to become more assertiveThe role of online support communities in Marion’s coping and acceptanceRapid fire “lightning round” questionsMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full Episode Show Notes Including TranscriptSee the show page on the Arthritis Life Website here. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Nitika and Cheryl discuss how acceptance is an ongoing journey when living with multiple chronic health conditions, and share insights into how they cope with uncertainty. Nitika shares how and why she founded the incredibly impactful Chronicon conference and online community which inspires and uplifts people living with chronic illness around the globe. Nitika and Cheryl also discuss what brings them joy and how they balance present moment acceptance with hope for the future. Episode at a glanceNitika’s emotional journey with psoriasis and psoriatic arthritis in childhoodHow acceptance of chronic illness is an ongoing journey: Nitika shares how a new diagnosis last year challenged her, but she eventually concluded that “acceptance and hope aren’t not mutually exclusive.” Cheryl & Nitika discuss how acceptance can sometimes bring up grief or other uncomfortable emotions.Uncertainty: Cheryl & Nitika explore how they have coped with uncertaintyListening to your body & nurturing yourself: Nitkka shares how she learned the importance of listening to her body and how she integrates nurturing self care into her daily routinesA discussion about how to accept the need for medications along with utilizing non-medicinal disease management toolsThe “a-ha” moment that inspired Nitika to start the event & community Chronicon !Community: Cheryl & Nitika discuss the importance of supportive and uplifting communities when you live with chronic illnessMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.For Full Episode Show Notes + TranscriptGo to the episode show notes page at the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, seasoned patient and registered nurse (RN) Jan Hempstead shares her best tips for managing stress and living a fulfilling life with multiple comorbidities. Jan lives with rheumatoid arthritis (RA), Ehlers-Danlos Syndrome Hypermobile type (EDS), hereditary alpha-tryptasemia (HAT), Dysautonomia, and more. This includes discussions about the importance of support (including Cheryl’s Rheum to THRIVE program) and mindfulness, meditation and Stoic Philosophy in Jan’s journey.Episode at a glance:Diagnosis story: Jan shares how her rheumatoid arthritis diagnosis was very difficult due to her comorbid conditions: EDS Ehler-s danlos syndrome, dysautonomia, and hereditary alpha-tryptasemia (HAT)Best tools in Jan’s toolbox for RA and EDSBiggest challenges with Managing multiple comorbiditiesWhat helps Jan cope with managing multiple conditionsImportance of community and support groupsRapid fire questions (lightning round)Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the next group today!Full Episode DetailsSee full details including a transcript at www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a Glance:Wendy’s diagnosis story of juvenile rheumatoid arthritis as a babyGrowing up in the 1970s and 1980s with JRA: Wendy shares her ups and downs, from acceptance in grade school to isolation in high school and young adulthood (when she first met someone with her same condition at age 26)Treatments: Reflections on how treatments have changed in the current era as compared to the 1980sCareer choices with JRA: Wendy’s shares how she managed a career as a computer programmer at Hewlett Packard after initially hoping to become an artist.Disability and “medical retirement:” Wendy wants to keep working longer but her job is not conducive to her medical needs; she has a smooth process of going on social security disability but experiences a very tedious and dehumanizing experience while attempting to utilize her long term disability insurance benefits through her company.Importance of Art and Mandalas in Wendy’s coping: “Art was the one place I could be free.” Wendy takes a healing art class with a focus on mandalas and shares how “it’s about getting quiet with yourself”Support groups: Wendy gets involved with the Arthritis foundation support groups and then is asked Kim Burda to help admin Co-Admin of the 26,000 person “Rheumatoid Disease (RD) - Laughing, Living, Loving, and Learning” for people with various forms of Rheumatoid Disease. SHe shares the ups and downs of being an admin.Wendy’s best advice newly diagnosed patients? Find a good rheum who will partner with you and share and answer questions. Don’t be afraid of the meds.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.For full episode details including a transcriptGo to www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, Kate shares her journey getting diagnosed with psoriatic arthritis while working as a chef in London. She opens up about her post-diagnosis emotional roller coaster and shares how joining Cheryl’s Rheum to THRIVE online support and education program helped her feel more confident, empowered and supported. She also details other programs that helped her including a mindfulness course and CBT therapy. The episode ends with Kate sharing what it means to her to live a “good life” with rheumatic disease.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the next group today! Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full episode details and transcriptPlease go to the show page on www.MyArthritisLife.Net for full episode details including a transcript. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Content Warning - This episode contains profanity and explicit sexual content Episode at a glance:Liv’s diagnosis story for juvenile idiopathic arthritis and uveitisHighlights and lowlights of growing up with juvenile idiopathic arthritisLiv’s Fitness and self-advocacy Journey: switching jobs to protect her energy and stress levels and finding her own personal training business MovetoLivWhen to push and when to rest?Mindfulness and being present even in pain discussionBusting the biggest myths about arthritis-friendly / flare friendly workoutsWhy is intimacy is so important for spoonies - learning to connect with our bodies, trust them, and communicate with partners. Live shares how sexual intimacy, kink, and BDSM found a place in her chronic pain management.Liv’s best Advice for the Newly diagnosedMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join today! Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full episode details including transcript:Go to www.MyArthritisLife.Net for full details and a transcript. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl reflects on a blog post she wrote at age thirty called: “Ten Years with Rheumatoid Arthritis: What’s the Impact?” This includes a deep dive into the physical effects of rheumatoid arthritis, effects on my daily routines, as well as finances, social and emotional life, school, career, hobbies, travel and overall life philosophy. Cheryl shares how pregnancy and parenting changed her disease progression, and details how she coped with additional health issues and injuries in her thirties along with adjusting to her new role as a mother. For full show notes plus a transcript, go to the episode page on the Arthritis Life Website. Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Full Show Notes, Links & TranscriptFor full show notes plus a transcript, go to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Ali and Cheryl discuss how overwhelming medication changes can be, and Ali describes what it was like to switch doses of methotrexate, switch to a new biologic medication and add prednisone and NDSAIDs in the mix. Ali & Cheryl also discuss what it’s like to have costochondritis and how they cope with unresolved health issues while still trying to live a full, joyful life. This episode also includes reflections about how to cope with social media jealousy within the chronic illness community, how to set boundaries with friends and loved ones during Covid times, and more. This interview was conducted in February 2022.Episode at a glance:Flare up leads to medication changes: Ali shares what it was like to switch biologics, take a course of prednisone and add in NSAID (Non steroidal anti inflammatory medications) and alter her methotrexate dosageHeartbreak: when Ali discovered she wasn’t in medicated remission, she feels heartbrokenEmergency Room Visit: Ali goes to the emergency room with severe pelvic pain, doesn’t get any clear answers, follows up with both Gynecology and GI doctorsCostochondritis and “hypochondriac” accusations: Cheryl & Ali discuss their experiences with costochondritis and how they were both accused of being hypochondriacs before their accurate diagnosis of costochondritisCoping: we discuss how we cope with the ups and downs of chronic illness lifeCovid and social life: discussion about how to set boundaries socially around covid precautionsSocial Media and Jealousy: reflections about how to cope when others seem to be doing better than youEveryone is different: there’s no badge for managing RA a certain wayAli’s advice to people just starting out on Methotrexate, or who are hesitant about itMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Episode SponsorsFor full episode details including a transcript, please go to the Arthritis Life Website at www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Stefanie was diagnosed with rheumatoid arthritis after the birth of her first child. In this episode, she shares how her weight gain and difficulty performing daily tasks led to a negative body image. Cheryl and Stefanie discuss ways to overcome ableism and shame, and gain a sense of body positivity or at least a “body neutral” stance. They also discuss the importance of self compassion and challenging societal norms. For full episode details including a transcript, go to the show page. Episode at a glance:Overview: how does chronic illness affect body image?Stefanie’s personal journey: postpartum diagnosis of RA, coping with weight gain and difficulty performing basic daily activitiesWhat is “normal?” Stefanie and Cheryl discuss how it’s hard to know what’s normal or expected as a first time parent, especially when you receive an autoimmune diagnosisOvercoming ableism and shame: how Stefanie and Cheryl have learned to grow in confidence and embrace their perfectly imperfect bodiesIt’s ok to feel “body neutral:” sometimes being neutral is a middle ground step between body shame and body confidenceSelf-Compassion: Cheryl shares why self compassion is so critical for people with chronic illnessStefanie’s best advice for newly diagnosed people who might be struggling with body imageMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in October 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.For Full Episode links Plus Transcript:For full episode details including a transcript, go to the show page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, parents Leeza Broome and Courtney Bruce share why arthritis-specific summer camps have been such a lifeline to their families over the years. As volunteers, they helped start the very first Pacific Northwest family camp for kids with arthritis, “KAT-Fish Camp,” which has historically been put on by the Arthritis Foundation. Cheryl also shares her experiences volunteering at the camp. All three speakers share their favorite camp memories from the last two decades and explore the importance of community and belonging in chronic illness communities.Episode at a glance:Diagnosis story: Courtney shares her daughter’s diagnosis story at 18 months, which started with a swollen knee and a misdiagnosis.Diagnosis story: Leeza shares her son’s diagnosis story, which started with difficulty getting out of the toddler bed and swollen fingers.Why is it important to have family camps for kids with juvenile idiopathic arthritis? Leeza and Courtney share what they’ve learned in the parent education sessions, from advocacy to emotional tips for coping with injecting a child who’s afraid of needles. Cheryl, Leeza and Courtney explore the emotions that parents, children with JIA and siblings experience at these camps including: relief, shared anger at similar negative experiences people have gone through, envy, hope and more.Favorite camp memories: all three speakers share their favorite memories, from S’Mores and campfire songs to talent shows.Where can you sign up to volunteer at a camp or attend one? Links below!Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full Episode Details, Links plus Transcript:Go to the show page on the Arthritis Life website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Codd and Cheryl share specific tips for coping with how an inflammatory arthritis condition (like psoriatic arthritis, rheumatoid arthritis or ankylosing spondylitis) can lead to difficulties adjusting to one’s new role as a parent, in addition to other important roles.*Celebrating 50,000 downloads of the Arthritis Life Podcast: now through July 15th, enter for a chance to win a Arthritis Friendly Prize Package Giveaway - full details here or at bit.ly/arthritis50 Episode at a glance:Research: Review of Dr Codd’s research on how inflammatory arthritis (rheumatoid, psoriatic, ankylosing spondylitis, etc) affects important life roles including parentingBecoming a Parent with Inflammatory Arthritis: A conversation about the complexity of asking for help and how it relates to control, grieving, ableism and independencePlay is important: how to play with your child when you have pain and tips for coming to terms with how your condition affects your ability to parent.Why it’s important for health professionals to address life roles, not just symptom management: Dr. Codd explains how occupational therapists help people with inflammatory arthritis participate in meaningful daily roles and activities and bring joy back to their livesDr. Codd’s best advice for the newly diagnosedMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.For full episode show notes including a full transcript: See the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Saimun Singla shares her journey first becoming a pediatric rheumatologist (a Pediatrician who further specializes in rheumatology), then becoming diagnosed with adult rheumatoid arthritis after the birth of her second child. Dr. Singla’s experiences as a patient changed her approach to her patients, and led her to pursue a fellowship in integrative medicine. She shares what’s in her personal RA management toolbox, from sleep and meditation to medication and exercise. She also reflects on how her experiences ultimately led her to open up her own private practice in Houston, TX.Episode at a glance:How Dr Singla became a pediatric rheumatologistDiagnosis: Dr Singla gets diagnosed with adult rheumatoid arthritis after the birth of her second childPregnancy: What it was like to be pregnant before rheumatoid arthritis and after her RA diagnosisIntegrative Medicine: How Dr Singla’s personal journey with RA led her to pursue Integrative medicineWhat’s in Dr. Singla’s personal RA management toolbox: lifestyle factors like nutrition, sleep ,exercise, medication and other mind-body approaches in addition to medicationsBeing both patient and doctor: Dr Singla describes how humbling it’s been to be a patient and how that’s led her to be a more empathetic doctorPivoting career due to RA: how she started her own integrative pediatric rheumatology practice, Rheum to Grow, in Houston, TX which allows her to control her schedule and accommodates her RA needsCulture and the patient experience: Dr Singla reflects on how her South Asian identity and culture affects her patient experienceDr Singla’s words of wisdom for the newly diagnosedMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.##Full Episode Details & Transcript:Go to the episode page at www.MyArthritisLife.Net for all links and details! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

People living with rheumatoid arthritis (RA) and related autoimmune forms of arthritis (such as psoriatic arthritis and ankylosing spondylitis) are at greater risk of developing hypermobility, Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Emily and Cheryl discuss ways for people living with arthritis and EDS or POTS to manage the day to day of their conditions and cope with the ups and downs and uncertainties that come with fluctuating chronic illnesses. They also discuss the role of occupational therapists in helping people with these conditions improve their self-management abilities and confidence in building a meaningful life despite health challenges.Episode at a glance:Emily’s diagnosis story for EDS and POTS at age 14: joint pain, feeling like passing out, digestive symptoms and moreWhat is POTS?Autoimmune conditions, Covid-19 and POTS: Emily and Cheryl discuss the connections between these conditionsEDS and Hypermobility Spectrum Disorder and General hypermobility: Emily explains the difference between hypermobility and EDS (which includes one of 13 subtypes being hypermobile type)Who diagnoses EDS and POTS?Connection to arthritis: Emily and Cheryl review the data about the incidence of POTS and EDS amongst people with rheumatoid arthritis and other related conditionsTips for coping when you have both arthritis and EDS: the fluctuation and the uncertainty; whack a mole - live in the moment, acceptanceWhat’s in Emily’s toolbox for coping with POTS and EDS: sleep routines, hand splints, planning ahead, energy conservation and moreWhat is the occupational therapist’s role in helping people manage dysautonomia and EDS? Sleep hygiene, energy conservation, fatigue management, pain tools, teaching strategies and moreSelf-Management for Chronic Conditions: Emily and Cheryl share insights into this often overlooked area of need for many patients.Emily’s best advice for people newly diagnosed with EDS and/or POTSMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full Episode Show Notes & TranscriptFor full episode show notes, including links discussed in the episode and a full transcript, go to the show page on the Arthritis Life website: www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Kori and Cheryl discuss ways to approach assessing the risks versus benefits of medications from the "shared decision making" model. They also explore how insurance barriers in the United States can make medication decisions all the more complex. Kori shares her tips for getting prescription medication support, as well as her words of wisdom for diagnosed patients. The conversation concludes with a discussion of the latest research developments Kori is most excited about in the world of rheumatology.Episode at a glance:What is an Advanced Registered Nurse Practitioner (ARNP)? What is the role of the nurse practitioner on the rheumatology team?Tips for making medical decisions: Kori explains how she helps her patients assess the risks of treating (like medication side effects) versus the risks of undertreating (like disease progression).What to do if you have insurance barriers to medication: Kori discusses insurance barriers and gives tips including copay cards, patient assistance programs, ways to proactively research medication costs, and what the deal is with prior authorizations and specialty pharmaciesAdvocacy: Cheryl and Kori discuss how patients can support reforms to healthcare through sharing their storiesNewly Diagnosed: Kori’s words of wisdom for newly diagnosed patientsLatest research developments: What recent innovations in the field of rheumatology Kori is most excited about?Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.For full episode details including a Transcript:Go to the Arthritis Life Website at: www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Melissa shares how she learned to be a more effective advocate over time, and provides insights into how she copes with the ups and downs of chronic illness life.Episode at a glance:Melissa’s Diagnosis story for Lupus & Type 1 Diabetes as a nine year oldMelissa becomes a mental health occupational therapist while managing her conditionsMelissa shares her treatment ups and downs for lupus, including medications and lifestyle factors such as exercise and stress managementAdvocacy: Melissa shares her journey towards becoming a health advocateWhat to do when your supporters or caregivers don’t “get it?”Melissa’s Best Advice for people newly diagnosed with Lupus and/or Type 1 DiabetesMelissa’s Mental health / coping tips for chronic illness lifeMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:How Cristina’s postpartum flare up and difficulty with pain control led her to delve into medical cannabis; helped especially with fibromyalgia. Cannabis, CBD & THC 101: How the endocannibinoid system (within our body) helps with homeostasis, memory, pain, mood, inflammation and even skin.The difference between cannabis, help, THC, CBD, endocannabinoids and phytocannabinoidsWhat people with arthritis might want to know about how cannabis affects pain, inflammation, sleep, anxiety, appetite and mood (including a discussion of what risks there are versus benefits) What are the different methods of consumption for cannabis (Sublingual, Topical creams, Transdermal patch, Oral Suppositories (vaginal), inhalation, IV and more)Where to find valid information about CBD and chronic painWhere to find a dispensary: - check the laws in your area; five things Cristina looks for in a cannabis dispensaryCommunication to medical team: Cristina discusses the importance of thisCristina answers listener questionsHow to learn more from CristinaMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.##Full Episode Details + TranscriptSee the Arthritis Life Website at www.MyArthritisLife.Net for full details, including a transcript! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Meaghan shares her journey growing up with juvenile idiopathic arthritis, which turned into psoriatic arthritis (PSA) in her twenties. She busts common myths about PSA and delves into the importance of advocacy, mental health, sharing our stories and more.##Episode at a glance:Meaghan’s Diagnosis story / saga for JIA and then PsA: medical gaslighting, delays in care, learning to advocate for herself and moreWhat does Meggie Wish People Knew about PSA? Dispelling common misconceptionsMeggie’s advocacy journey: from insurance step therapy to formal advocacyRelationships: Meggie reflects on dating with arthritis and shares how her husband supports herMeggie reflects on the importance of mental health & how being open about her diagnosis helped herWhat’s it been like to share your story online? Meggie shares her story writing for Bezzy PSA from Healthline and sharing her story on social mediaMeggie’s advice for newly diagnosed patientsWhere to find Meggie: Instagram: @Arthritis_Meggie Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in April 2022!For Full Episode Details + Transcript:Go to www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

As a child and teenager growing up with juvenile idiopathic arthritis, Jen Blair often felt lonely, isolated and "broken." Fast forward to the present: Jen is a mother of three, accepts her "new normal" and has come to see herself as strong rather than broken. This episode delves into Jen’s story and includes details about her different prescription treatments, how she came to embrace exercise and dietary contributions to her health, her pregnancy and parenting journey and her experiences both with working and being on disability.Episode at a glance:Jen’s diagnosis story of juvenile idiopathic arthritisJen’s treatment journey over the years: biologics, exercises, nutrition, serial casting (which is no longer done for JIA) and morePregnancy with JIA & RAWhat is it like being a mom of three children while living with JIA? Jen’s emotional journey: as a teenager and young adult, experiences loneliness, isolation, yearning for acceptance, and feelings of being “broken.”Jen’s experiences working in different environments and then going on disabilityJen’s advice for people newly diagnosed with inflammatory arthritisMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.Full Episode Details including Transcript:Go to www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Emily Johnson, the Arthritis Foodie, shares her journey from medical gaslighting to a diagnosis of seronegative arthritis during her university years. She and Cheryl discuss how they combine lifestyle changes with western medication to manage rheumatoid arthritis. Emily also explains how her experiences inspired her to write a book about lifestyle changes for rheumatoid arthritis, called “Beat Arthritis Naturally.” Cheryl and Emily discuss the wisdom of a “both/and” rather than an “either/or” approach to combining pharmaceutical with lifestyle approaches to disease and symptom management. They also share insights on how they cope with fluctuating symptoms and difficult times with self-kindness.Episode SponsorRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Full Episode Show Notes & TranscriptPlease go to the show page on MyArthritisLife.Net for full episode show notes and a transcript. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl and Eileen’s personal stress management toolboxes include: formal therapy, delegating tasks, prioritizing self care, snuggling with their pets, acceptance, mindfulness, addressing past traumas, advocacy and more.This conversation originally took place as an Instagram Live discussion in March 2022.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details and transcriptGo to www.MyArthritisLife.Net Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.