4D: Deep Dive into Degenerative Diseases - ANPT

Note to listeners: We want to hear from you! We value listener feedback and are always working to improve our podcast. Share your 4D podcast feedback with us here: https://forms.gle/NKAC5Lob5rxpZ3459 In this special 3-year anniversary episode of 4D, host Parm Padgett and DDSIG secretary and podcast editor Sara Zoeller dive into the world of neuro-rehab and the pet peeves that come along with it. From terminology to exercise intensity to balance, we hear from previous guests and board members about what they are itching to correct in neuro PT practice. Join us with special guests Anne Kloos, Jeannie Stephenson, Herb Karpatkin, Lori Quinn, Vanina Dal Bello-Hass, Judy Deutsch, Alicia Flach, Amy Yorke, and Julie Hershberg as they share their personal pet peeves when it comes to neuro rehabilitation. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org. Show notes To learn more about the Moving Forward/Evidence Elevates Task force, check out their site on the ANPT website here: https://neuropt.org/practice-resources/best-practice-initiatives-and-resources/moving-forward Guests Vanina Dal Bello-Haas PT, PhD Judy Deutsch PT, PhD Alicia Flach PT, DPT Julie Hershberg PT, DPT Herb Karpatkin PT, DSc Anne Kloos PT, PhD Lori Quinn PT, EdD Jeannie Stephenson PT, PhD Amy Yorke PT, PhD

In this episode, we highlight one of the winners of our poster awards at CSM 2022. Lindsay Fitchett talks to Chris Burke about her group’s systematic review of wearable sensors assessing balance and mobility in people with PD. They discuss themes from the review including differentiating PIGD and tremor-dominant subtypes, looking at fall risk, assessing movement strategies/transfers, and sensor-based interventions. They also discuss potential future avenues for sensors in rehab. The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org

In this episode, we highlight one of the winners of our poster awards at CSM 2022. Jason Longhurst talks to Katy McGraw about his research on gait characteristics in people with PD. His research looks at data from people without freezing, people with freezing on initiation, and people with non-initiation-type freezing. He discusses the role of gait variability in clinical presentation and expands on how this research might inform PT intervention and make interventions more specific to patients with different presentations in the future. The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org Guest information: Jason Longhurst Ph.D., PT, DPT, NCS Assistant Professor St. Louis University Related Articles Ziegler K, Schroeteler F, Ceballos-Baumann AO, Fietzek UM. A new rating instrument to assess festination and freezing gait in Parkinsonian patients. Mov Disord. 2010 Jun 15;25(8):1012-8. doi: 10.1002/mds.22993. PMID: 20310009.

Description: In this episode, we highlight the winners of our platform award at CSM 2022. Lori Quinn talks to Chris Burke about her team’s research on long-term PT follow up to promote exercise in people with HD. They discuss findings related to feasibility, participant engagement, and outcomes related to function, disease progress and physical activity during the year-long study. They also discuss innovative models to provide care for and do research with people with HD, and unique challenges in the HD population. Whether you missed it at CSM or are looking for bonus clinical insights beyond the platform, this is definitely worth a listen! The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org Guest Information: Lori Quinn, PT, EdD Associate Professor of Movement Science & Kinesiology Teachers College, Columbia University Related Information/Links Huntington’s Disease Society of America (HDSA): https://hdsa.org/ European HD Network: http://www.ehdn.org/ ENGAGE-HD workbook: http://www.ehdn.org/wp-content/uploads/2020/07/ENGAGE-HD-Physical-Activity-Workbook-v2-UK.pdf PT/Exercise Resources: http://www.ehdn.org/physiotherapy-wg/#physioresources Enroll-HD: https://www.enroll-hd.org/ HD PRO-TRIAD: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3990832/ (Carlozzi NE, Victorson D, Sung V, et al. HD-PRO-TRIAD™ Validation: A Patient-reported Instrument for the Symptom Triad of Huntington's Disease. Tremor Other Hyperkinet Mov (N Y). 2014;4:223. Published 2014 Apr 14. doi:10.7916/D8PN93NZ) Unified Huntington’s Disease Rating Scale (UHDRS) https://www.sralab.org/rehabilitation-measures/unified-huntingtons-disease-rating-scale-uhdrs-tm

Strategies to Advance Practice – with Elissa Held Bradford In this episode, we highlight the article “Health Promotion and Wellness in Neurologic Physical Therapy: Strategies to Advance Practice” from the April 2022 issue of JNPT by Rafferty, et. al. Parm is joined by one of the authors, Elissa Held Bradford, to discuss how to implement health promotion and wellness topics into daily PT practice. They expand on the role of health promotion and wellness across multiple practice settings and delve into the healthcare delivery models outlined in the paper. The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org

A Clinical Practice Guideline (CPG) for PT management of PD was recently published in the Physical Therapy & Rehabilitation Journal in December, 2021. In this episode, Parm talks to Miriam Rafferty, an author of the CPG and co-chair of the CPG knowledge translation task force, about the development of this new guideline. They discuss the goals of the CPG and highlights intervention featured in the paper, as well as nuances about application to PT practice. This podcast gives both an introduction to the CPG for listeners who haven’t read it, and “behind the scenes” insights for listeners who have. If you are listening to this podcast before 3/28/22 and want to give the KT task force feedback, please fill out this survey: https://redcap.dial.sralab.org/surveys/?s=ARPCH7T8YR Show notes area available through this link. The Degenerative Disease Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org

In this episode, Parm talks to the authors of the winners of the the DD SIG poster awards at the 2021 ANPT annual conference. Dr. Rashelle Hoffman discusses aspects of fatigue related to Multiple Sclerosis and Dr. Rebecca Martin discusses the effect of modeling and cueing on sit to stand transfers in individuals with Parkinson’s Disease. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode, Parm talks to Mark Mañago about his recent publication in PTJ about the changing landscape of community exercise classes. Parm and Mark review the results of the study’s survey that asked exercise class participants with PD and exercise group leaders to identify facilitators and barriers to virtual and in-person class. They also discuss observed changes in activity level in the people surveyed. Parm and Mark brainstorm some real-world solutions to the barriers identified to help listeners start problem solving for their own classes and patients.

In this episode, Rebecca talks to Rupal Patel, a founding member of the APTA Health Promotion and Wellness Council. They discuss the council and how it relates to patients with degenerative diseases. They highlight different areas of wellness and ideas for promoting healthy lifestyles at the individual, community, and society levels. Don’t miss these practical tips and resources for clinicians. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode, Parm talks to Dr. Zajac and Dr. Ellis about their paper in the October 2021 issue of JNPT “Are Mobile Persons With Parkinson Disease Necessarily More Active?” Parm dives into the methods and results with Dr. Zajac. Then, she zooms out to talk about big picture implications including measuring and defining performance and participation with Dr. Ellis. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode, Katy talks to Heather Cianci, who works in University of Pennsylvania’s COPE (Comprehensive Outpatient Parkinsonism Evaluation) Clinic. They discuss the structure of this and other specialty clinics, the rehabilitation team, and atypical PD diagnoses. They highlight resources, evaluation and treatment strategies for clinicians who provide care to patients with these diagnoses. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuropt.org.

In this episode Parm talks to Lisa Brown, an author on the newly released Clinical Practice Guideline for use of Ankle-Foot Orthoses and Functional Electrical Stimulation Post-Stroke. They discuss the CPG development process, as well as what conclusions might be applicable outside of the stroke population including for people with MS and other neurodegenerative conditions. They talk through some practical strategies clinicians can use when making bracing recommendations and give a preview of upcoming knowledge translation projects. Show notes: https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/ddsig-episode-23.pdf The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this special episode, Rebecca interviews Dr. Graham Cochrane about his recent publication in the July 2021 issue of the Journal of Neurologic Physical Therapy: “Comprehensive Clinical Assessment of Vestibular Function in Multiple Sclerosis.” They discuss his significant findings in central vestibular integration through variance in response to subjective visual vertical and dynamic visual acuity, as well as its association with disease severity. In addition, Dr. Cochrane describes each vestibular measure used in his study and his recommendation for an efficient battery of clinical vestibular tests. Listen in to discover more about vestibular function in Multiple Sclerosis and how you can best assess it in your patients! To review show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

What is it like working as a therapist in a multidisciplinary clinic? How is the integrated model of care applied to complex degenerative diseases? Learn this and more as Parm interviews physical therapist Katey Burke and speech-language pathologist Stacey Sullivan about their experience working in a multidisciplinary clinic for Amyotrophic Lateral Sclerosis (ALS). Together they dive into the ins & outs of patient-centered care, including coordination and communication, billing, and initiating difficult conversations with patients. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode, Parm and Patty Scheets take a step back and discuss the big picture of our profession, including utilizing practice-based evidence to establish standards of care and drive our practice forward. In addition to getting an in-depth look at Patty’s clinical experience, we take a deeper dive into the challenge of stepping out of your comfort zone to grow as a clinician. Listen in to discover the inspiration for “Moving Forward” from JNPT’s January 2021 Presidents Perspective and join us as we learn how to prove our value as physical therapists! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this CSM bonus episode, Rebecca talks to Dr. Suzanne O’Neal about her work using backward cycling as a treatment strategy for people with PD. Suzanne and Rebecca discuss the ins and outs of testing backward stepping, the study’s results, and how to incorporate this treatment approach into your practice. This research was the basis for a platform presentation that won the DD SIG Platform Award at APTA’s CSM 2021. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In 4D's first ever topic-based episode, Katy and Parm talk to experts Dr. George Fulk, Dr. Lee Dibble, and Dr. Laurie King about how we define participation, how PTs are measuring it, and how we may measure it in the future. Have you ever asked yourself if you're missing or just skimming the surface of this piece of the ICF? Join us to spark ideas for how to make participation more relevant to your practice! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuropt.org.

Join DD SIG Chair Rebecca Martin as she interviews Heather Salon and Bart Hanson from the ANPT Programming Committee about the first ever virtual CSM. Learn the ins and outs of how CSM will work, and hear about events and programming that might be interesting to DD SIG members. If you're participating in CSM 2021, consider joining us at our DD SIG meeting on Tuesday, February 4th at 8 pm EST. Register here: https://us02web.zoom.us/meeting/register/tZYuceitqjIoGtzD7yEqjsQIXfkrLouYPtOz The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

A Knowledge Translation Project - with authors Amy Yorke and Angee Ludwa In this episode, JNPT partners with the ANPT Degenerative Diseases SIG to bring you an interview between host, Parm Padgett, and authors, Amy York and Angee Ludwa. In the podcast, they discuss the nuances of the project that resulted in their January 2021 JNPT article, “Standardizing Outcome Assessment in Parkinson Disease: A Knowledge Translation Project.” Access the article in the Journal of Neurologic Physical Therapy. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode, Parm talks to Dr. Prue Plummer about her research on effective interventions for movement dysfunction associated with Multiple Sclerosis. They cover about the Guidelines for Exercise in Multiple Sclerosis (GEMS) and current clinical research examining the effects of a GEMS program delivered in person versus through tele-rehabilitation. Dr. Plummer also delves into her research on combining Dalfampridine (Ampyra) with physical therapy interventions to improve outcomes. Listen in as address complex presentations in MS, self-efficacy and peer modeling, and meaningful responses to therapy. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode, Dr. Gammon Earhart and Parm dive into Dr. Earhart’s 2019 ANPT Golden Synapse Award-winning research on the effect of mental singing on gait variability in adults with Parkinson Disease. They discuss her methods and inspiration for exploring this intervention, as well as the intricacies of her findings and their clinical relevance. Listen in to get a detailed perspective on how mental singing can help individuals with PD and a sneak peek of her lab’s current and future research studies! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode, Parm talks to Dr. Vanina Dal Bello-Haas about her research and experience treating people with Amyotrophic Lateral Sclerosis. They discuss expanding the classification of ALS, addressing multi-system involvement (including pain and respiratory dysfunction), and recognizing patient priorities while balancing active intervention and overuse. Join us as we learn more about the assessment, management, and empowerment of our patients with ALS! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org.

In this episode from the ANPT Degenerative Diseases Special Interest Group, Parm talks to Dr. Herb Karpatkin about the interactive effect of aging with Multiple Sclerosis. They discuss important aspects of care and dive into a deeper understanding of how fatigue and dosage can dictate the rehabilitation experience. Join us in our exploration of reversing the cycle of frailty in aging with a degenerative neurologic condition. For show notes and references click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuropt.org

Join our host, Parm Padgett as she and Dr. Alicia Flach discuss telerehabilitation and what you can do to help keep telerehab accessible and reimbursable! Click here for a link to the APTA Action Center where you can send letters of support to your Senators and Representatives (you do not need to be an APTA member). You can email Dr. Alicia Flach for more information or to help at [email protected].

In this episode, Parm talks to Beth Fisher about her 2019 John H.P. Maley Lecture ““Beyond Limits: Unmasking Potential Through Movement Discovery.” Dr. Fisher gives examples across diagnoses of how to integrate exploration of the patient’s implicit movement choices into PT assessment and treatment. We also gain insight into some of her groundbreaking work with people with Parkinson’s Disease. Join us as we learn how to push our patients to their full potential by challenging their existing movement strategies. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy- www.neuropt.org.

In this episode, to ring out HD Awareness Month, Katy talks to Ann Kloos and Deb Kegelmeyer about the most up-to-date recommendations for exercise and physical therapy for people with Huntington’s disease. It is chock-full of the latest information for clinicians treating patients with HD, whether experienced or novice. We hope you enjoy it! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this final of four CSM bonus episodes, Katy talks to Dr. Laurie King about her study on the impact of an exercise intervention in people with PD on the MiniBEST, freezing of gait, gait mechanics, dual task function, and patient-reported outcomes. They discuss the ins and outs of the study including who responded best and details of the agility bootcamp intervention. They also delve into Laurie and her colleagues’ upcoming research on turning in people with PD. This research was the basis for a platform presentation that won the DD SIG’s Best Platform Award at APTA’s CSM 2020. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this third of four CSM bonus episodes, Parm talks to Lindsay White Walston about her case series that combined manual therapy with additional intervention for gait and balance for people with PD. Lindsay tells us how she combines her orthopedic and neurologic clinical specialties to improve outcomes for patients. This case series was the basis for a poster presentation that won the DD SIG’s Best Clinical Poster Award at APTA’s CSM 2020. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this second of four CSM bonus episodes, Parm talks to Dr. Cristina Colon-Semenza about her work investigating decision making and response to rewards for exercise in people with PD. This research was the basis for a poster presentation that won the DD SIG’s Best Basic/Applied Science Poster Award at APTA’s CSM 2020. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this first of four CSM bonus episodes, Parm talks to Dr. Paul Kline and Dr. Mark Manago about their work investigating the relationship between single leg calf raise test with dynamometry and with clinical measures of gait in people with MS. This research was the basis for a platform presentation that won the DD SIG Platform Presentation Award at APTA's CSM 2020. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this episode, Parm talks to Dr. Tara McIsaac about her recent study outlining characteristics of people with PD that determined exercise class prescription. Tara and Parm review the study results, including a group of clinical tests that may help PTs refer to appropriate programs. They also discuss the importance and logistics of communication between PTs and other exercise professionals. If you’re interested in community exercise in this population, this is a great listen! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this episode, Dr. Lori Quinn talks to Parm about key features of Huntington’s Disease for PTs to recognize and examine, treatment approaches, and her rehabilitation-based research with this population. This is a great learning opportunity for clinicians familiar with HD as well as those who may see it very rarely (or haven’t seen it at all yet!). Lori also gives some great clinical pearls that apply to working with patients with any rare neurological condition. For show notes click here. Click here for courses on the ANPT Synapse Education Center on Huntington's Disease. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

Join hosts Parm Padgett and Katy McGraw as they discuss the degenerative disease-related programming coming to CSM this year, with sneak preview clips from prior guests of the show and SIG members. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this episode, we talk to Kathy Gill-Body about her role on the Movement System Diagnosis task force. Kathy shares her impressions and applications of the movement system, including how she uses it in her clinical practice, and future directions for movement system diagnosis. She also shares her journey as a physical therapist involved in clinical practice, research, and teaching, and how she has been able to make connections and take advantage of a variety of opportunities to develop her interests. For show notes click here. To watch free webinars on the Movement System click here to visit the ANPT Synapse Education Center. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

On the 4D: Deep Dive into Degenerative Diseases podcast Ryan Duncan talks to first-time host Katy McGraw about his career path from an entry-level PT working as an outcomes assessor to a primary investigator on his own clinical studies. Along the way, he gives great advice on how to use research methodology to improve clinical practice and how to get involved in research as a DPT. Ryan also discusses some of his upcoming research including delving into low back pain in people with PD and physical therapy interventions for people with deep brain stimulation. A great listen for anyone who has considered the research side of PT but isn’t on the path to a PhD! For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this 4D: Deep Dive into Degenerative Diseases podcast, host, Parm Padgett geeks out about the cerebellum with Dr. Amy Bastian of the Kennedy Krieger Institute. It is chock full of clinical pearls and bottom lines! You will hear one of our preeminent researchers of the cerebellum discuss how the cerebellum influences movement, neuroplasticity of the cerebellum, clinically how to be most effective with patients with cerebellar dysfunction and how the cerebellum and proprioception are tied together. You may need to listen more than once! For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this 4D: Deep Dive into Degenerative Diseases podcast, we interview Judy Deutsch about her research using virtual reality in PT, as well as practical considerations and applications for clinicians with access to all levels of technology. We also talk to Judy about her role as the president of the evolving International Neurological Physical Therapy Association and how physical therapists can collaborate internationally to share resources on common areas of interest. For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In our fifth episode of 4D: Deep Dive into Degenerative Diseases podcast, we talk to Dr. Julie Hershberg, who with her company Re+active PT, started the first ever PT Movement Disorders Fellowship. Julie also tells us about her journey opening her private neurological PT practice in the Los Angeles area, and talks about using social media and online education to enhance collaboration between neurologic physical therapists. For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

Check out a quick snip-it from our conversation with Evan Cohen that didn't make it into Podcast #4! 4D listeners, please give us some feedback here: https://forms.gle/jh2jWstyU5dFzcgY7 The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In our fourth episode of 4D: Deep Dive into Degenerative Diseases podcast, we talk to Dr. Evan Cohen about his work in people with multiple sclerosis and its application to other degenerative diseases regarding assessment and treatment of fatigability. For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this episode of 4D: Deep Dive into Degenerative Diseases podcast, our host Parm Padgett talks to Dr. Lee Dibble from the University of Utah about motor learning in people with Parkinson’s Disease and other neurodegenerative diseases. Our discussion centers around how motor learning applies to balance tasks, including reactive balance. We also review the research about the impact of medication on motor learning. For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In this episode of 4D: Deep Dive into Degenerative Diseases podcast, we talk to Dr. Nora Fritz about the assessment of dual task ability and treatment strategies for dual task conditions in people with neurodegenerative diseases. Nora also explains some of her up and coming neuroimaging studies in people with MS and telerehab for people with MS. For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.

In our first episode of 4D: Deep Dive into Degenerative Diseases podcast, we talk to Dr. Terry Ellis about alternate models for delivery of care in PT for people with degenerative diseases. For show notes click here. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy - www.neuropt.org.