4D: Deep Dive into Degenerative Diseases - ANPT

In this episode, host Ken Vinacco interviews Mission MSA CEO Joe Lindahl, and DD SIG liaison physical therapist Lindsay Beatty to share how the organization champions connection, education and research related to Multiple System Atrophy. Join us to learn more about this rare neurodegenerative disease and discover resources to help empower your patients. For more information on Mission MSA, visit www.missionmsa.org For questions about this podcast, please contact [email protected]. Guest Information Joe Lindahl, MA, CAE Chief Executive Officer Mission MSA Related Resources Mission MSA www.missionmsa.org Centers of Excellence: https://missionmsa.org/centers-of-excellence/ Patient Support Line: 866-737-5999; https://calendly.com/mission-msa/mission-msa-patient-support-scheduler MSA Connect (patient community): https://missionmsaconnect.org/ Support Groups: https://missionmsa.org/finding-support/ MSA Essential Guidebook: https://missionmsa.org/resource-library/your-essential-msa-guidebook/ Resource Library (brochures, webinars): https://missionmsa.org/resource-library/ Care Grant (Respite Care): https://missionmsa.org/missionmsacares/ International MSA Congress: https://missionmsa.org/internationalmsacongress/ Webinar: Physical Therapy and Exercise for People with MSA: https://www.youtube.com/watch?v=yFTpfN7aMPQ Show notes available here

In this episode, created in collaboration with ANPT’s Assistive Technology and Wheeled Mobility (ATSWM) SIG, host Chris Buke is joined by AT/SWM SIG Chair Wendy Koesters and special guest Pam Glazener to discuss wheeled seating considerations for people living with ALS. Drawing from their experience in specialized wheelchair clinics, Wendy and Pam share practical insights on key wheelchair components, drive control considerations, and essential documentation strategies. Whether you’re new to seating and mobility and looking to better support your patients, or a seasoned seating specialist seeking deeper clinical insight, this episode offers valuable takeaways to enhance your practice when working with individuals with ALS. For questions about this podcast, please contact [email protected]. Show notes available here: https://app.box.com/s/szj3bis39kg8k0vcj4wexihk8tvq6eps

Get ready for a slam dunk! Join our podcast team members Madison Catalano, Ken Vinacco, and Sara Zoeller as they discuss the degenerative diseases programming at this year’s CSM in Anaheim, CA. This podcast highlights talks to help you plan your best "February Madness" experience. The DD SIG committee and members of the 4D podcast team will be visible at the Myelin Melter on Friday evening and at the poster session on Saturday from 12-2 pm and. Please come find us and introduce yourself, we'd love to hear your ideas for our podcast (comments, future topics, etc). Happy CSM! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For more information about Combined Sections Meeting, visit https://csm.apta.org/ For questions about this podcast, please contact [email protected].

In this episode, host Ken Vinacco interviews Jessica Shurer, CurePSP’s Director of Clinical Affairs and Advocacy, to share how the organization is leading initiatives to expand support, outreach, and education for individuals with PSP, MSA and CBS/CBD. The conversation highlights current advocacy efforts, the importance of early recognition, and the need for interdisciplinary collaboration. If you’re interested in elevating care for patients with atypical Parkinsonism, this episode is for you! For questions about this podcast, please contact [email protected]. Show notes available here: https://app.box.com/s/o8b2u47sgoqnj133ky3d93cpo70ge7ab

In this episode, host Ken Vinacco talks with guest Brooke Smith to learn more about the resources and role of the Muscular Dystrophy Association. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org. For questions about this podcast, please contact [email protected]. Show notes available: https://app.box.com/s/lg8ac18l51pcf98maa0pcyua9iauhrsy

In this episode, host Parm Padgett interviews Dr. Daniel Peterson about how to conceptualize and begin to intervene in the area of reactive balance. He discusses his work with people with Parkinson’s Disease and Multiple Sclerosis and other emerging areas of work in the field. If you are curious about making balance training functional and impactful for your patients, this is for you! For questions about this podcast, please contact [email protected]. Show notes available at: https://app.box.com/s/7nyf8q4ic6dow6vdm9ulil91nvy5ur1z

In this episode, we bring together a panel of guests to discuss neurologic physical therapy residencies. Host Chris Burke talks to ANPT RF SIG chair Christina Platko, along with DD SIG volunteers Madison Catalano, a residency graduate, and our very own podcast intern, Ayesha Sawnani, a PT student interested in residency. From logistics of applying to tips on knowing what to look for in a residency, this is the perfect listen for prospective residents as you start your search! If you are listening around our publishing date in 2025 and are interested in the Virtual Residency Fair on November 12th, click here to sign up! For questions about this podcast, please contact [email protected] or [email protected] Show notes available here

In this episode, we tune into the audio from a special webinar from the Myotonic Dystrophy Foundation (MDF) about exercise for people with Myotonic Dystrophy (DM). Join Dr. Andy Rohrwasser- MDF Chief Scientific Officer, Dr. Donovan Lott- a PT and PhD at University of Florida and specialist in muscular dystrophy, and cardiologist Dr. Matt Wheeler as they explore the latest research on movement and exercise in this population. Stay tuned for a Q&A at the end as the experts answer questions from the DM community. A special thank you to the Myotonic Dystrophy for sharing this content with our special interest group! For questions about this podcast, please contact [email protected]. See the full webinar video here: https://www.myotonic.org/digital-academy/stump-doctor-exercise-dm-2025-myotonic-dystrophy-motion-awareness-month Access the MDF Exercise Guide here: https://www.myotonic.org/sites/default/files/pages/files/MDF_Exercise-Guide-for-the-Community_1_21.pdf For a quick look, check out the MDF’s Infographic on Exercise: https://www.myotonic.org/sites/default/files/2024-07/MDF_Exercising-with-Myotonic-Dystrophy_Infographic.pdf Show notes available: https://app.box.com/s/yhuzygfl6ekyv7trw832f89w37g6izxs

In this episode, host Parm Padgett interviews Dr. Sarah Milne about different rehabilitation strategies for physical therapists working with people with degenerative cerebellar ataxias. Dr. Milne shares results from her clinical trials, as well as tips and treatment approaches from her time in Friedreich Ataxia Clinic. If you’re curious about components of effective rehabilitation for degenerative ataxias, this episode is for you! For questions about this podcast, please contact [email protected]. Show notes available at: https://app.box.com/s/1c3b6g4jgih64skasv1kxrwg3gji9nko

In this episode, host Ken Vinacco talks with guests Andrew Rosen and Ashley Durando to discuss the National Ataxia Foundation mission and resources.The Degenerative Diseases Special Interest Group is part of the Academy ofNeurologic Physical Therapy – www.neuroPT.orgFor questions about this podcast, please contact [email protected] InformationAndrew Rosen, CEO of the National Ataxia FoundationAshley Dorundo, PT, DPT, DD SIG Liaison to the National Ataxia FoundationResources from the NAFhttps://www.ataxia.org/[email protected] of Excellence: https://www.ataxia.org/ace/No-cost genetic testing program: https://www.ataxia.org/genetics/Support Groups: https://www.ataxia.org/support-groups/NAF Events: https://www.ataxia.org/events/Health Care Provider Resources: https://www.ataxia.org/provider-resources/Fact sheets: https://www.ataxia.org/fact-sheets/Exercise videos: https://www.ataxia.org/exercise/General references: https://www.ataxia.org/general-references/Citation: Rosen A, Dorundo A, Vinacco K. DD SIG Navigating the Path Episode 5: The National Ataxia Foundation. 4D: Deep Dive Into Degenerative Diseases, a podcast of the ANPTDegenerative Diseases Special Interest Group. Published 07/31/2025.https://podcasts.neuropt.org/?p=1985This is for informational and educational purposes only. It should not be used as a substitute forclinical decision making. The Academy of Neurologic Physical Therapy and its collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication. The views or opinions expressed are those of the individual creators and do not necessarily represent the position of the Academy of Neurologic Physical Therapy.

In this episode, host Ken Vinacco talks with guest Gia Mannone to discuss the resources that the Huntington’s Disease Society of America (HDSA www.hdsa.org ) offers for people with HD. Gia discusses events, ways to find specialized medical care, and education for people with HD in all stages of the disease. If you treat people with HD, you’ll likely find something new to share after a listen! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact [email protected]. Show notes available: https://app.box.com/s/87w9nzdiaqqyo937ibcgc392hifagq8m

This episode of 4D highlights results and implications from an article in the July 2025 Journal of Neurologic Physical Therapy special issue on walking in people with neurological health conditions. Host Parm Padgett interviews two authors, Michael (Mike) VanNostrand and Patrick (Paddy) Monaghan, about their recent study examining the role of proprioception in backward walking in people with multiple sclerosis, as well as previous work related to backward walking. If you’re curious about how to interpret backwards walking and incorporate it into your clinical practice, this episode is for you! Show notes available: https://app.box.com/s/0om94igfagb23nzm8v7ck18gx3mkj5l7 The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact [email protected].

In this episode, host Ken Vinacco interviews Franchino Porciuncula, the winner of the DDSIG platform award at CSM 2025 in Houston, TX. They discuss his research related to utilizing closed-loop, music-based rhythmic auditory stimulation (RAS) with people with Parkinson’s Disease (PD). They review the impact on real-world walking and gait quality, as well as participant feedback. He discusses ways to integrate use of RAS in clinic, highlighting both the complex nature of PD and challenges and limitations observed in this randomized clinical trial. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org Show notes: https://app.box.com/s/yqos32rt9wf5ofdshnsiwedxh8ftny7i

In this episode, host Ken Vinacco sits down with guests Lauren LaMar and Kyle Vasher to discuss the range of resources that the ALS Association offers for people with ALS. Lauren shares her role in the multidisciplinary clinic as well as the range of online, local and one-on-one support services offered for patients and caregivers. Kyle adds his input as a DD SIG liaison and treating therapist. Filled with great advice, perspective and practical resources to share with patients, this is a helpful listen for PTs treating patients with ALS. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact [email protected]. Resources from the ALS Association Medicare information: https://www.als.org/navigating-als/financial-information/medicare-information Caregiver education and support groups: https://www.als.org/navigating-als/support-for-caregivers Care Matters newsletter: https://www.als.org/care-matters-sign-up Multidisciplinary clinic locator: https://www.als.org/support/certified-centers-clinics Education for healthcare professionals: https://www.als.org/navigating-als/education-healthcare-professionals - Rehabilitative Care for ALS: Guidance for PTs and OTs: https://app.schoox.com/login.php?courseId=8207995 Printed materials: https://www.als.org/order-portal Transfer technique videos: https://www.youtube.com/watch?v=C6QI9CQO63I&list=PL2RF9Bwbv6Com3nZM-jFh_EGl3Gmn6S43 Virtual home modification and safety assessment program: https://www.als.org/support/programs/virtual-home-modification-and-safety-assessment-program ALS Insurance Navigator https://www.als.org/support/als-insurance-navigator ALS Advocacy Team https://www.als.org/advocacy/action-center Show notes: https://app.box.com/s/q45h3p0fsgiuzluwxtzajnupp5hyofr2

In this insightful episode, host Parm Padgett sits down with Dr. Alice Nieuwboer, a leading expert in Parkinson’s rehabilitation, to unpack the complex and frustrating phenomenon of freezing of gait (FOG). From the role of dopamine loss and neural "overload" to the influence of stress, motor challenges, and cognitive demands, Dr. Nieuwboer explains what we know about the factors influencing FOG. She also shares the latest research on freezing subtypes, how medication impacts symptoms, and why defining FOG remains a moving target. Full of clinical pearls and research updates, this conversation offers fresh hope and practical strategies for therapists and clinicians navigating the challenges treating people with FOG. Show notes available: https://app.box.com/s/gcyeiq1xk326ltqxj6zgemlfqtkgoooa The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact [email protected].

In this episode, host Ken Vinacco sits down with special guest Donna Sperlakis to explore the wide range of resources and support services offered by the Parkinson’s Foundation. Together, they dive into the educational tools, community programs, and research initiatives designed to empower individuals living with Parkinson’s disease and their families. Donna shares personal insights and expert advice on how to access these resources and make the most of the resources offered. This conversation provides valuable information and encouragement for everyone touched by Parkinson’s. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.orgFor questions about this podcast, please contact [email protected]. Show notes available here: https://app.box.com/s/a97fdclbbznlsqti6uhvh01ctwlnykly

Tune in to the first episode of our new series, Navigating the Path: Resources for Patients with Neurodegenerative Diseases, which highlights organizations that provide resources and information to people with neurodegenerative diseases. In this episode, Lauren Corley, a National MS Society representative, joins our host Christina Burke to explore the many resources and programs offered by the society. From financial assistance for assistive devices to continuing education opportunities for clinicians, learn how the National MS Society is making a meaningful impact in the MS community. They are both joined by Gregory Brusola, a board member of the DD SIG and coordinator of the DD SIG liaison program, who discusses the role of DD SIG liaisons and connections for PTs with the National MS Society. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact [email protected]. Show notes available Visit the National MS Society website for more information on their programs

In this episode, Parm interviews Lisa Inglis, the winner of the DDSIG poster award at CSM 2025 in Houston. Lisa, a PT and professor at Daemen college, explains her research related to measuring backward walking and comparing backward walking characteristics of people with and without Parkinson’s Disease (PD). She goes on to discuss potential uses of backward gait assessment in PT practice. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org Show notes available here

Join our podcast team members, Sara Zoeller and Parm Padgett, as they discuss the in-person and on-demand degenerative diseases programming (and some DD-adjacent talks) at this year’s CSM in Houston, TX. This podcast highlights talks and authors to help you plan your best CSM experience, complete with fun haikus and a CSM song at the very end of the bloopers - listen for that! The DD SIG committee and members of the 4D podcast team will be visible at the poster session on Friday from 1-3 pm and at the Myelin Melter on Friday evening. Please come find us and introduce yourself, we'd love to hear your ideas for our podcast (comments, future topics, etc). Happy CSM! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org For questions about this podcast, please contact [email protected]. Show notes available at: https://app.box.com/s/9zeyy65ft2pdksilfh28orw5dworu6vu