Two Disabled Dudes

Cookies 4 Cures bakes and sells cookies to fund research for rare pediatric diseases.

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Find out how the scarcity mindset can limit your thinking. John Maxwell on the scarcity mindset: https://www.success.com/john-c-maxwell-6-tips-to-develop-and-model-an-abundance-mindset/

Andra Stratton was diagnosed with a rare disease called Lipodystrophy that makes her look very athletic and fit due to her lack of adipose tissue. Appearance is deceiving in this case because Lipodystrophy often causes organ failure and sudden death.

We are often surprised by the twists and turns of life - especially when confronted with disability. Lara Bloom was surprised when she was diagnosed with Ehlers Danlos Syndrome. She was even more surprised to meet a man who helped her find her purpose - launching The Ehlers Danlos Society. Lara is president and CEO of The Ehlers Danlos Society and she is a global leader in the rare disease community. Lara has taken life's twists and surprises and turned them into a beautiful life of service to others. Join us for laughter and a conversation about what it means to build and sustain a life of advocacy.

Welcome back! This Season 3! When we get annoyed or mad at others it is important to do a little self-assessment to let the situation teach us how not to act in the future. If someone is doing something you don't like, perhaps it is important to avoid doing that same thing to others. With a few real-life examples, Sean and Kyle explore this topic in the hopes of improving themselves an giving the listeners (you!) something to think about.

We are closing out this season with a deep conversation about purpose and commitment and how we reconcile our efforts if we do not quite reach our our goals. We had fun with this one. Enjoy!

Kyle and Sean invent a new game with news headlines and then catch up on their 2019 goals. Also, the two dudes circle back on a conversation from a previous episode about "hidden cities" on flight itineraries.

Bumble is not specifically a disability dating website/app, but it worked for Sam and Emily. Sam lives with Friedreich's ataxia (FA) and he uses a wheelchair but they matched, connected, and the rest is history. Listen to this episode to learn their tips and experience for online dating for people with a disability.

First, Sean shares the grim story about fracturing his hip. If you'd like details about the incident and the prognosis for the future, have a listen. Then Dr. Fajgenbaum shares his perspective on why humor is important while facing challenges in life. Listen up!

Dr. David Fajgenbaum has a rare disease called Castleman's Disease which put him on his death bed 5 times as he was in medical school and earning his MBA. He repurposed a drug to treat himself and is now the world's leading researcher in Castleman's Disease. He is now helping other rare disease groups by training them to use his collaborative approach to research. He also just published a book called Chasing My Cure. Please enjoy our conversation with our friend Dr. David Fajgenbaum. @DavidFajgenbaum

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Our Odyssey is a nonprofit organization designed to provide support for young adults living with rare and chronic diseases. Listen to learn more from the founders Seth, Kristina, and Anna.

Transitions are difficult no matter what your challenges are in life. If your challenges include a progressive neurodegenerative disease, your transitions will probably include mobility devices including walkers, wheelchairs, and scooters. In these transitions it is important to see these devices as tools to accomplish the things you want to get out of life.

In August, we joined team de:terminence for an off-road adventure! White Mountain is one of California's highest peaks, reaching over 14,240' in elevation. Recognized as one of the easiest 14'ers and probably the most bike-able, we called our friends at Catrike and went for a ride. Listen to find out what happened!

Kipp Wesslen was diagnosed with an unknown type of Ataxia and he has become an amazing adaptive athlete. He has learned to fight back against his disease and gain control over his life through adaptive sports.

Kyle and Brent Pease are amazing athletes, period. They support each other and push each other to amazing heights including an official finish at Ironman Kona, the most prestigious finish line in Ironman. Kyle happens to have Cerebral Palsy and they compete as a team. Listen to this episode to hear a shining example of living beyond circumstances.

We can stop limiting ourselves by changing our perception of how others view us.

Push it!

Muffy Ritz completed "the world's toughest bike race" - Race Across America 3 times as a solo competitor. But that's not what she's most proud of. Listen to find out what it is.

The teenage years are some of the toughest years most of us live through. Aside from the typical peer pressures and desires to fit in, imagine facing middle and high school with a rare disease. That’s exactly what these three girls have done or are doing right now. Meet Caterina, Maya & Annie as we talk about life with a rare disease. From pay phones and boy bands, to navigating school schedules and surgeries, these three girls talked with Kyle & Sean in front of the committed and supportive staff at Amicus Therapeutics. Their authenticity and outlooks on life are inspiring and enriching to anyone who hears them share. In this episode you’ll be encouraged by their unifying message: Be Yourself! We are grateful to Amicus Therapeutics for allowing us to be a part of their global-staff conference, held at the Make-A-Wish Wishing Place in Monroe, NJ. Additionally, we are thankful for and forever touched by the willingness of Caterina, Maya & Annie to join us on stage for this forum.

This podcast would have never happened if we weren't keeping each other accountable. There are many other examples in our lives where accountability is the key to follow through. Join us as we discuss this and the future of Two Disabled Dudes.

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Kyle Attended the Professional Patient Advocates in Life Sciences (PPALS) training a few weeks ago. Immediately following, Sean joined for a screening of The Ataxian to kick off the Great Plains Rare Disease Summit. Join us for the conversation!

Kristin smedley was a new mother with a dream life when she found out her baby was blind due to a rare disease. Then she was dealt a second "dose of blindness" a couple years later when her second son was blind too. All the hopes and dreams she had for her life were crushed. It took several years but she learned to follow her kids' lead to navigate the world of blindness. And she learned to Set Extraordinary Expectations through her experiences.

Elaine Baumstark and Diane Bryant join the dudds to talk about how two pains in the neck turned into two really good looking and extremely intelligent young men. Seriously, we are grateful for Moms who continue to be wise and supportive influences on our lives. Happy Mothers' Day everyone!

Understanding the science behind your disease, condition, or challenge is intimidating and many times the question is "Why should I? What's the point?" However when we do make the effort to understand, we may find out that it becomes an incredibly important and empowering part of our journey.

In part one of this two part interview, Jeff talked about the chalenges OCD brought to his life. In part two (this epidode) Jeff talks about how he has used his adversity to create a platform for advocacy for himself and others.

Jeff Bell lives with Clinical OCD and he has used it as an opportunity to formulate an approach to conquering challenges and help others do the same.

The dudes discuss the difference between a reason and an excuse based on one's own personal principles.

Sean read Kyle's book (Shifting into High Gear) recently and he had a few questions and discussion points. Links to order Kyle's book are ar kyleabryant.com Additionally Sean and Kyle explore their photos for their top three of 2019 so far.

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Kyle's first experience as an Uber driver. And the dudes discuss 3 things each that make their lives better.

James Miller is a licensed psychotherapist and the executive producer and host of the nationally broadcasted and syndicated radio show: James Miller Lifeology. James has been in the mental health field for over 22 years. After 13 years in private practice James left his successful practice in the Washington, DC area to follow his own dreams. He created James Miller Lifeology where he globally helps people simplify and transform their spirit, mind, and body.

Glenn hartrick has been an amazing athlete for a long time, setting records as an able bodied triathlete. He was hit by a car during a training ride and was immediately paralyzed. He is now an Ironman para triathlete. His addiction to endurance knows no bounds.

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We all get annoyed at lots of things in life. Laughing about these things can put our circumstances in perspective.

Gabriel Cordell was paralyzed due to a car accident. He became the first person to push his everyday wheelchair across the entire USA. gabrielcordell.com. Check out the documentary at rollwithmemovie.com.

Getting started is the hardest part. Even if you get started down the wrong path you can start over or correct your direction. Either way, you're still farther than if you didn't do anything.

In this episode our conversation is inspired by a listener email! Maria Sobotka reached out to us via Facebook (facebook.com/twodisableddudes) and she cut straight to the chase, asking four direct and specific questions: What does having disability mean to you? Do you even feel disabled? Are you ashamed or proud of being disabled? Has having FA changed your view about disability? We tackle these questions and share a few resources that have helped developed our own perspectives. One thing we mention is a TEDx talk we’ve both enjoyed in the past, but we couldn’t remember the speaker or the title at the time of the recording! So, Stella Young is who we refer to and her hilarious and insightful talk can be seen here: https://www.youtube.com/watch?v=8K9Gg164Bsw

Set them, don't forget them. Be accountable to yourself.

2018 Was awesome.

Sarah Dodd

Smart Doctors.

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Wheelchairs, walkers, trikes...

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Nutrition