146 - DD pt4: Why Sean Baumstark Is Banned From Clinical Trials
Two Disabled Dudes · The Dudes
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Show Notes
As a clinical coordinator at Children's Hospital of Philadelphia (CHOP), Jen Farmer gained years of experience designing and operating clinical trials. Now as the CEO at the Friedreich's Ataxia Research Alliance (FARA) she uses that experience to design effective trials for the Friedreich's ataxia (FA) community - and she nicely puts Sean in his place when she states "the rules are there for your safety".
Jen shares the principles that guide clinical trials and a few tips for those who choose to participate.
FARA - curefa.org