E186:Behind the Scenes of The Triad Film on POTS/MCAS/hypermobility: A Crossover Episode
We have the entire medical/production team of 5 physician/researchers to give us an update and behind-the-scenes look at the documentary they are making about the trifecta of dysautonomia/POTS, MCAS and hypermobility spectrum disorders. We hear from doctors Tania Dempsey, Larry Afrin, Linda Bluestein, Lawrence Kinsella and Leonard Weinstock, along with patient Jill Brook, to hear how filming is going so far and how we can all help support the film. This is a crossover episode with Bendy Bodies with Hypermobility MD, Dr. Linda Bluestein. You can learn more about the documentary at MCASfund.org. Chapters 00:00 Introduction 00:37 Creating Awareness and Increasing Treatment Options 03:09 The Birth of the Documentary Project 05:20 Filming in New York 07:19 Filming in St. Louis 10:32 The Motivation to Work with Complex Patients 15:49 The Journey of Recognizing MCAS 17:34 The Impact of MCAS Treatment 21:00 Personal Experiences and Incorporating MCAS Treatment 22:42 The Need for an Educational Library 25:29 The Challenge of Condensing Information 26:21 Describing MCAS in Sound Bites 31:10 The Importance of Raising Awareness 34:42 Growth and Development Abnormalities in MCAS 40:03 Main Points about Hypermobility Syndromes and Dysautonomia 44:48 Partnership with LDN Research Trust 51:47 Final Words and Call for Support 54:26 Recognition and Treatment of Unrecognized Patients 55:44 Importance of Learning and Trying 56:13 Gratitude for Dedicated Doctors 56:47 Closing Remarks and Resources You can learn more about the physicians in this episode at: https://aimcenterpm.com/ for Dr. Tania Dempsey and Dr. Lawrence Afrin https://www.gidoctor.net/leonard-weinstock-md for Dr. Leonard Weinstock https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md for Dr. Laurence Kinsella
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Show Notes
We have the entire medical/production team of 5 physician/researchers to give us an update and behind-the-scenes look at the documentary they are making about the trifecta of dysautonomia/POTS, MCAS and hypermobility spectrum disorders. We hear from doctors Tania Dempsey, Larry Afrin, Linda Bluestein, Lawrence Kinsella and Leonard Weinstock, along with patient Jill Brook, to hear how filming is going so far and how we can all help support the film. This is a crossover episode with Bendy Bodies with Hypermobility MD, Dr. Linda Bluestein. You can learn more about the documentary at MCASfund.org.
Chapters
00:00 Introduction
00:37 Creating Awareness and Increasing Treatment Options
03:09 The Birth of the Documentary Project
05:20 Filming in New York
07:19 Filming in St. Louis
10:32 The Motivation to Work with Complex Patients
15:49 The Journey of Recognizing MCAS
17:34 The Impact of MCAS Treatment
21:00 Personal Experiences and Incorporating MCAS Treatment
22:42 The Need for an Educational Library
25:29 The Challenge of Condensing Information
26:21 Describing MCAS in Sound Bites
31:10 The Importance of Raising Awareness
34:42 Growth and Development Abnormalities in MCAS
40:03 Main Points about Hypermobility Syndromes and Dysautonomia
44:48 Partnership with LDN Research Trust
51:47 Final Words and Call for Support
54:26 Recognition and Treatment of Unrecognized Patients
55:44 Importance of Learning and Trying
56:13 Gratitude for Dedicated Doctors
56:47 Closing Remarks and Resources
You can learn more about the physicians in this episode at:
https://aimcenterpm.com/ for Dr. Tania Dempsey and Dr. Lawrence Afrin
https://www.gidoctor.net/leonard-weinstock-md for Dr. Leonard Weinstock
https://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-md for Dr. Laurence Kinsella
https://www.hypermobilitymd.com/ for Dr. Linda Bluestein
You can read the transcript for this episode here: http://tinyurl.com/potscast186
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