Cystic Fibrosis Ireland’s annual fundraising day, 65 Roses Day on 12th April
The Pat Kenny Show · Newstalk
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Show Notes
Cystic Fibrosis Ireland’s annual fundraising day, 65 Roses Day, which is taking place on Friday, April 12th. We speak to a mother who is advocating for her son.
Joining Pat on the show was Louise Dowling is Mum to Aaron who has cystic fibrosis (CF). Aaron carries two rare CF gene mutations. This means that Aaron is considered part of the 10% of the CF population who is not eligible for access to life- changing modulator drug therapies. Also joining Louise was Professor Paul McNally is an Associate Professor of Paediatrics in Royal College of Surgeons Ireland (RCSI) in Dublin. He is a consultant in paediatric respiratory medicine and Director of Research and Innovation in Children’s Health Ireland.