Inclusivity in Parkinson's Research and Care: Why It Matters in Speeding a Cure
The Michael J. Fox Foundation Parkinson's Podcast · The Michael J. Fox Foundation for Parkinson’s Research
August 19, 202045m 16s
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Show Notes
In this episode of The Michael J. Fox Foundation Parkinson's Podcast, we explore the intersection of race and Parkinson’s in both the lived experience of obtaining care for the disease and how that translates to research.
Listen as our panelists have a candid conversation about the value of inclusivity to advance the field’s understanding of the disease and ultimately, more scientific breakthroughs. And learn about how the Foundation is working today to break down barriers to recruit and retain underrepresented communities to participate in research.
Rather listen on-the-go? Subscribe to our Michael J. Fox Foundation Parkinson's Podcast on iTunes or through any podcast app on your smartphone or tablet. And if you enjoyed what you heard, share it with a friend or leave a review on iTunes. It helps listeners like you find and support our mission.
EXPERT PANELISTS
Host and person with Parkinson’s Larry Gifford leads a discussion with:
Jonathan Jackson, PhD, founding director of Community Access, Recruitment, and Engagement (CARE) Research Center at Massachusetts General Hospital and principal investigator of the Fostering Inclusivity in Research Engagement for Underrepresented Populations in Parkinson’s Disease (FIRE-UP PD)
Bernadette Siddiqi, Associate Director of Research Partnerships at MJFF
María L. De León, MD, movement disorder specialist, MJFF Patient Council member and policy advocate
View a transcript of this podcast.
EXTRA READING:
Share Your Story -- The Michael J. Fox Foundation is seeking to grow its community by sharing diverse experiences and perspectives from all who are touched by Parkinson’s disease. If interested, please email your story to [email protected] along with the best contact information to reach you. We may share your story in future communications.
Get Involved in Research -- Learn more about Parkinson’s clinical research, who can participate and what types of studies are available. Download MJFF’s free guide to Navigating Clinical Trials, which is available in several languages, including Spanish.
Listen as our panelists have a candid conversation about the value of inclusivity to advance the field’s understanding of the disease and ultimately, more scientific breakthroughs. And learn about how the Foundation is working today to break down barriers to recruit and retain underrepresented communities to participate in research.
Rather listen on-the-go? Subscribe to our Michael J. Fox Foundation Parkinson's Podcast on iTunes or through any podcast app on your smartphone or tablet. And if you enjoyed what you heard, share it with a friend or leave a review on iTunes. It helps listeners like you find and support our mission.
EXPERT PANELISTS
Host and person with Parkinson’s Larry Gifford leads a discussion with:
Jonathan Jackson, PhD, founding director of Community Access, Recruitment, and Engagement (CARE) Research Center at Massachusetts General Hospital and principal investigator of the Fostering Inclusivity in Research Engagement for Underrepresented Populations in Parkinson’s Disease (FIRE-UP PD)
Bernadette Siddiqi, Associate Director of Research Partnerships at MJFF
María L. De León, MD, movement disorder specialist, MJFF Patient Council member and policy advocate
View a transcript of this podcast.
EXTRA READING:
Share Your Story -- The Michael J. Fox Foundation is seeking to grow its community by sharing diverse experiences and perspectives from all who are touched by Parkinson’s disease. If interested, please email your story to [email protected] along with the best contact information to reach you. We may share your story in future communications.
Get Involved in Research -- Learn more about Parkinson’s clinical research, who can participate and what types of studies are available. Download MJFF’s free guide to Navigating Clinical Trials, which is available in several languages, including Spanish.
Mentioned in this episode:
April is Parkinson’s Awareness Month, and it comes with a chance for you to make a real difference. For people living with Parkinson’s and their loved ones, progress can’t wait — every new discovery, every step forward in research and every bit of your support matters. Visit our website to learn how you can get involved. http://bit.ly/48bPdM3