Amber's Story
Amber already had a difficult and rare blood disorder (TTP) but treatment for her unknown disease resulted in her developing antibodies, resulting in alloimmunization in her first pregnancy.
The Allo Podcast · Bethany Weathersby, Molly Sherwood
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Show Notes
Amber already had a difficult and rare blood disorder (TTP) but treatment for her unknown disease resulted in her developing antibodies, resulting in alloimmunization in her first pregnancy. A chance visit with a different doctor made the difference with her first child, but extraordinary measures were needed when she became pregnant with twins. Bethany and Molly are in for quite a tale of HDFN in already unusual circumstances.
Show Themes
- Pregnancy with secondary disease
- Managing alloimmunization with twins
- When to get an IUT
- Making difficult decisions with twins
- After birth in the NICU and preemie challenges
Links
- TTP information Platelet Disorders - Thrombotic Thrombocytopenic Purpura (TTP) | NHLBI, NIH
- TTP and Pregnancy TTP and pregnancy | Blood | American Society of Hematology (ashpublications.org)
- MoM calculator Calculators & Tools - Allo Hope Foundation
- IUT outcomes with hydrops Liden https://www.sciencedirect.com/science/article/abs/pii/S0002937801313728
- Nystagmus Nystagmus: Definition, Causes & Treatment (clevelandclinic.org)
- NEC Necrotizing Enterocolitis (NEC): What is it, Causes & Treatment (clevelandclinic.org)