Special Ed Rising; No Parent Left Behind

During the COVID-19 pandemic, many states allowed parents of children with significant disabilities to be paid caregivers under Medicaid—offering dignity, recognition, and financial support for the work they were already doing. But now, as emergency waivers expire, those programs are vanishing. Quietly. Quickly. And families are once again being left behind.In this PURGE 47 Edition, host Mark Ingrassia examines how states are handling (or mishandling) the rollback of parent caregiver pay, the devastating effects on families, and why this is about more than just money—it’s about equity, justice, and respect.📌 What You’ll Learn in This Episode:Which states are continuing caregiver pay and which are notThe policy arguments on both sides—including federal pushbackHow families are scrambling to fill care gapsReal-world stories from Idaho, Indiana, New York, and beyondWhat options remain for families after caregiver pay is cutHow you can advocate for change at the state and federal levels📝 Resources & References:“Medicaid cutbacks will affect unpaid family caregivers” – Wisconsin Examiner, Erik GunnDisability Scoop and Idaho Statesman reporting on Idaho caregiver program cutsBoard for People with Developmental Disabilities (BPDD) caregiver survey (Wisconsin)New York CDPAP and Medicaid Waiver info – NY Post, Times Union, NYS DOHComplex Care Act advocacy updatesLegislative tracking via SpecialEdRising.com🧾 Full bibliography available New York State Department of Health. (n.d.). Care at Home waiver program for developmentally disabled children. Retrieved from https://www.health.ny.gov/publications/0548/care_at_home_dev_disabled.htmNew York State Department of Health. (2014, July 7). 1115 Waiver special terms and conditions. Retrieved from https://www.health.ny.gov/health_care/medicaid/redesign/2016/2014-07-07_waiver_authority_stcs.htmCampbell, C. (2024, May 7). Parents push N.Y. to support care of medically fragile children. Times Union. Retrieved from https://www.timesunion.com/news/article/parents-push-n-y-support-care-medically-fragile-19986153.phpColón, J. (2024, July 4). Commentary: PPL is failing caregivers and the people they care for. Times Union. Retrieved from https://www.timesunion.com/opinion/article/commentary-ppl-failing-caregivers-people-care-20323023.phpTimes Union Editorial Board. (2024, May 23). Another problem with New York’s CDPAP overhaul. Times Union. Retrieved from https://www.timesunion.com/opinion/article/another-problem-new-york-s-cdpap-overhaul-20053619.phpNew York Post Editorial Board. (2024, October 8). Opinion: Hochul bows to nursing unions in $12B senior care power play. New York Post. Retrieved from https://nypost.com/2024/10/08/opinion/hochul-bows-to-nursing-unions-12b-senior-care-power-play/Campanile, C. (2024, December 1). Home care agency exec accuses Hochul team of bid-rigging. New York Post. Retrieved from https://nypost.com/2024/12/01/us-news/home-care-agency-exec-accuses-gov-hochul-team-of-rigging-bid-process-for-9m-program/Campanile, C. (2024, December 2). Rep. Ritchie Torres calls for bid-rigging probe of Hochul’s $9B home care contract. New York Post. Retrieved from https://nypost.com/2024/12/02/us-news/ritchie-torres-calls-for-bid-rigging-probe-of-hochuls-9b-home-care-contract/Wikipedia contributors. (n.d.). New York State Office for People With Developmental Disabilities. Wikipedia. Retrieved from https://en.wikipedia.org/wiki/New_York_State_Office_for_People_With_Developmental_DisabilitiesReddit users. (2023–2024). Various discussions on CDPAP and home care in New York. Retrieved from:https://www.reddit.com/r/Albany/comments/1i1p6f5/https://www.reddit.com/r/CaregiverSupport/comments/17rnlqu/https://www.reddit.com/r/tax/comments/1jcacef/https://www.reddit.com/r/healthcare/comments/1037it1/Centers for Medicare & Medicaid Services. (n.d.). Appendix K: Emergency preparedness and response and COVID-19. U.S. Department of Health and Human Services. Retrieved from https://www.medicaid.govDisability Scoop. (n.d.). National disability news for self-advocates, professionals & families. Retrieved from https://www.disabilityscoop.comFamily Voices. (n.d.). Family-led organization supporting children and youth with special health care needs. Retrieved from https://familyvoices.orgFixler, K. (2024, June). Idaho ends program that paid parents to care for children with disabilities. Idaho Statesman. Retrieved from https://www.idahostatesman.comIdaho Department of Health and Welfare. (2024). Budget and Medicaid program data on family caregiver reimbursement. Boise, ID.KFF Health News. (n.d.). Independent source for health policy news and analysis. Retrieved from https://kffhealthnews.orgNational Core Indicators. (2023). Staff Stability Survey Report – 2022. Retrieved from https://www.nationalcoreindicators.orgParaprofessional Healthcare Institute (PHI). (2022). Direct care workforce data center: Turnover, wages, and policy reports. Retrieved from https://www.phinational.org

In this compelling and heartfelt episode, Mark explores the deep-rooted issue of ableism and how the labels we place on individuals—particularly those with disabilities—often do more harm than good. With personal stories, powerful analogies, and critical insights, he challenges the idea that difference equals deficiency.You’ll hear about:The cultural conditioning that teaches us to value conformity over authenticityHow inclusive education is a justice-driven response to outdated, medicalized views of disabilityThe hidden cost of labels in schools and societyReal-world examples of how systemic ableism sidelines incredible peopleWhy our shared humanity is strengthened—not threatened—by neurodiversity and physical differenceFrom childhood classrooms to adult workplaces, Mark reveals how rethinking ability, identity, and inclusion can create richer, more equitable communities.💡 Key Takeaways:Difference is typical. Every human being is different—that’s the one thing we all have in common.Labels have utility—but also weight. They can open doors to services, but they can also box people in.Ableism is real, and often invisible. It thrives on unspoken assumptions and systemic design flaws.Inclusive education shifts the burden. It moves from “fixing the child” to “adapting the system.”Personhood over diagnosis. We must stop seeing people as their labels and start seeing them beyond them.🧠 Referenced Ideas & Quotes:“Labels are for jars.” — Dr. Danielle Farrel“I’m not your inspiration, thank you very much.” — Stella Young“Different is not broken.” — Mark IngrassiaFrom the National Library of Medicine: The need to shift from disability-as-deficit to disability-as-differenceFrom ScienceDirect: Inclusive education as a response to the medical model of disabilityFrom Access Living: The definition and impact of ableism in society🙌 Ways to Support the Show:🌐 Visit: specialedrising.com🛠️ Explore coaching, tools, and family resources📺 Watch Interviews: Special Ed Rising YouTube Channel💛 Contribute to Change:Help bring Ray’s Respite Care to life—a vital new service for families of exceptional children.🎁 Support the GoFundMe (Insert Link)📣 Stay Connected:Rate & Review: It helps others find the podcastSubscribe: Never miss an episodeShare: Spread the word to friends, families, and alliesFollow on Social: (Insert relevant platforms or handles)🔚 Closing Thought:When we stop dividing the world into “normal” and “different,” we can finally see people as they are—valuable, worthy, whole. Because difference is not a deficit. It’s a reflection of what makes us human.Peace, and Keep Rising.— Mark Ingrassiaspecialedrising.comRay's Respite Care GoFundMe: https://www.gofundme.com/f/join-rays-respite-care-mission

In this conversation, Frank Lobb shares his extensive background in law and healthcare, discussing his personal experiences with the healthcare system and the challenges he faced. He emphasizes the importance of understanding insurance contracts and patient rights, advocating for individuals to take control of their healthcare decisions. Frank also addresses the systemic issues within the healthcare industry, including the impact of insurance companies on patient care and the recent cuts to Medicaid. His insights aim to empower patients to navigate the complexities of the healthcare system effectively.takeawaysFrank Lobb has a diverse background, including being a Navy pilot and a consultant on the Clean Air Act.Personal experiences with healthcare shaped Frank's understanding of the system's flaws.Insurance companies often have the power to deny necessary care, impacting patients' health.State laws govern healthcare, and patients have rights that can be asserted.Patients can challenge medical bills and demand proof of accuracy from providers.Doctors often feel powerless within the current healthcare system due to insurance constraints.Frank's book, 'The Big Lie of My Healthcare Bill,' aims to educate patients on their rights.Empowering patients involves understanding contracts and advocating for necessary care.The recent cuts to Medicaid threaten access to healthcare for vulnerable populations.Frank encourages individuals to take an active role in their healthcare decisions.titlesNavigating the Healthcare Maze with Frank LobbUnderstanding Your Rights in the Healthcare SystemSound Bites"I have a right in a free market to go get it.""The healthcare system is broken.""You need to understand the system we have."Chapters00:00Navigating Complexity in Modern Life01:48Frank Lobb's Background and Career03:42The Impact of Insurance on Healthcare06:21Understanding Healthcare Contracts09:01The Role of Doctors in the Insurance System11:34The Ethics of Healthcare14:20The Limitations of the Current Healthcare System17:01The Importance of Patient Advocacy19:26The Big Lie of Healthcare Insurance21:51Strategies for Navigating Healthcare Costs24:54Understanding Medical Billing Accuracy27:38Navigating Insurance and Legal Rights30:31Practical Steps for Patients34:08Challenging Medical Bills Effectively38:04Empowering Patients in Healthcare Decisions42:58The Future of Healthcare Coverage47:38Taking Control of Your Healthcare JourneyReach Frank at https://thebiglieinmyhealthcarebill.com/specialedrising.com

🔊 Episode Summary:On July 4th, 2025, Donald Trump signed what he calls the “One Big Beautiful Bill” (OBBBA) into law. While it’s being touted as a historic win, the truth beneath the headlines reveals a devastating reality—especially for disabled individuals, caregivers, and working-class families. This episode breaks down what’s actually in the bill, who gets hurt, and who profits.From over $900 billion in Medicaid cuts to $285 billion in food assistance reductions, we expose how the bill’s “reforms” are designed to strip away the very programs that help people live independently, with dignity. We cover expanded work requirements, punishing paperwork traps, the illusion of “no tax on tips,” and the permanent tax cuts for the ultra-wealthy—all while disabled people are pushed toward poverty, hunger, and institutionalization.🔍 Key Topics Covered:💔 Medicaid Cuts: Over $900B in cuts that will devastate access to healthcare, HCBS, and force many into institutions.📄 Punishing Paperwork: Monthly documentation traps for people with cognitive or mental health disabilities.💼 Work Requirements: Disabled people not officially classified as “permanently disabled” now forced to meet impossible standards.🍽️ SNAP Cuts: $285B slashed from food assistance, with new work rules threatening the food security of disabled individuals and caregivers.👨‍👩‍👧‍👦 Caregivers Penalized: Parents of disabled children and family caregivers risk losing benefits if they can't meet work requirements.🏥 Rural Hospital Closures: Medicaid cuts mean less coverage, more uncompensated care, and a death spiral for rural healthcare access.🏡 Housing Crisis Deepens: Medicaid waivers help fund accessible housing—cutting them pushes people toward homelessness or institutions.to remove taxation on tips.💸 Who Wins?: Permanent tax cuts for the top 1%, corporations, and billionaire heirs.📉 Who Loses?: Disabled people, rural communities, low-income families, and working-class Americans.🧠 Mental Health Impact: Disrupted access to medication, therapy, and community care leads to higher costs, crisis, and suffering.🌍 Environmental Justice & Accessibility Grants: Eliminated in OBBBA—programs supporting inclusive employment and green jobs are gone.🗣️ Expert Voices Featured:Zoe Gross (ASAN): “These cuts could kill people.”Michelle Robbins-Garcia (Access Living): “If Medicaid or home healthcare services are cut, [disabled people] won’t be able to go to work.”Kelly PeLong (Disability Network Mid-Michigan): “A responsible budget shouldn’t come at the expense of people with disabilities.”Nancy Gardiner (CT Insider): “Almost 279,000 CT residents could lose health insurance. This isn’t reform—it’s a betrayal.”📢 Call to Action:This is not just another policy shift—it’s a moral line in the sand.✅ Call your representatives.✅ Share this episode.✅ Sign petitions from groups like The Arc, ADAPT, NDRN, and DREDF.✅ Speak out—online and in your community.🧠 Because silence is complicity. And we rise together—or not at all.🔗 Resources & Links:The Arc – Take ActionADAPTNDRNDisability Rights Education & Defense FundCenter on Budget and Policy Priorities – Tax PolicyConnecticut Insider Article – Nancy Gardiner📌 Hashtags to Share:#OneBigBetrayal#SaveMedicaid#DisabilityRightsAreHumanRights#CuttingCareKills#TaxBreaksVsLifelines🎧 Listen, Share, ActThis isn’t about politics—it’s about survival. Let’s make sure the truth gets louder than the spin.Sources: AxiosNYTimesOffice of the State Comptroller NYStateCenter on Budget and Policy Priorities (CBPP)Kaiser Family FoundationSocial Security WorksCommittee for a Responsible Federal BudgetNational Disability Rights Network Dept. of EnergyJustice40 InitiativeEP Environmental Justice ProgramsConsortium for Citizens with DisabilitiesThe ArcADAPTWebsite: specialedrising.com

*My apologies to any early listeners of this episode for the editing mishap regarding music playing over the first several minutes of the interview. It's fixed!In this conversation, Mark and Lauren Henry Brehm delve into the complexities of mental illness, particularly how it affects families across generations. Lauren shares her personal experiences with her grandmother's OCD and the impact it had on her family dynamics. They discuss the importance of breaking the stigma surrounding mental illness, the need for open conversations, and the role of therapy in healing. The discussion also touches on the legacy of mental illness and the compassion needed to understand those who suffer from it.takeawaysLauren's background as a special ed teacher informs her perspective on mental illness.Generational trauma can perpetuate untreated mental illness.The importance of recognizing mental illness as a family issue.Coping mechanisms often include humor and shared experiences.Self-identification of mental health issues can lead to seeking help.Compassion for those with mental illness is crucial for understanding.Open conversations about mental health should be normalized.The impact of childhood experiences shapes adult mental health.Therapy can provide tools for managing mental illness.Storytelling can help others relate and find hope.titlesBreaking the Silence on Mental IllnessGenerational Echoes of Mental HealthSound Bites"She ruled with an iron hand.""Nobody ever treated anything in 1946.""The power of storytelling is so important."Chapters00:00Introduction and Personal Connections01:03Background and Career Journey03:40Generational Impact of Mental Illness06:30Family Dynamics and Delusions08:51The Role of Treatment and Acceptance11:27Personal Experiences with OCD13:55Rituals and Compulsions in Family16:24Coping Mechanisms and Humor19:07Understanding Autism and Identity21:44Mother's Rebellion Against Cleanliness24:13Exploring Grandmother's Past25:21Conclusions and Reflections26:14The Symbolism of Gloves29:28Exploring Family History and Incest32:16Understanding Generational Trauma35:06Breaking the Stigma of Mental Illness37:37The Role of Family in Mental Health42:07The Impact of Mental Illness on Identity43:41Finding Peace in Senility47:58The Importance of Authentic StorytellingLauren Henry Brehm's website: https://laurenhenrybrehm.com/specialedrising.com

In this conversation, Albert discusses his unique journey from aspiring psychologist to talent agent, emphasizing the importance of mental health in the acting industry. He explores the challenges actors face, including self-sabotage and the need for diversity in casting. Albert shares strategies for actors to manage their mindset, the role of AI in the industry, and the significance of parental support for young actors. The discussion highlights the emotional toll of acting and the necessity for authenticity in storytelling.takeawaysAlbert's journey from psychology to talent agent highlights the intersection of mental health and the arts.Self-sabotage is a common issue among actors, often stemming from fear of rejection.Diversity in casting is essential for authentic storytelling and representation.The importance of having diverse voices behind the camera to tell accurate stories.Actors should view auditions as opportunities to perform rather than tests of worth.Mindset strategies, such as reframing auditions, can help actors manage self-doubt.AI can assist in the creative process but should not replace the actor's voice.Parents should support their children's aspirations in acting while maintaining realistic expectations.The emotional toll of acting can be significant, requiring strategies for mental health management.Creating a supportive environment for neurodiverse actors is crucial for their success.titlesNavigating the Acting Industry: Insights from a Talent AgentThe Psychology Behind Acting: Understanding Self-SabotageSound Bites"It's really a head game.""AI can be a great assistant.""Don't take the nos personally."Chapters00:00Introduction and Background00:28The Journey to Becoming an Agent04:20Understanding Self-Sabotage in Actors07:09Research on Self-Defeating Behavior08:25The Importance of Diversity in Acting11:46Facilitating Inclusion and Visibility15:44Scouting and Representing Diverse Talent19:39Mindset and Overcoming Self-Doubt in Actors25:08Harnessing the 30%: The Actor's Mindset28:05Visualization and Affirmations: Tools for Success31:01The Dark Side of Method Acting35:48AI in the Creative Process: A New Frontier39:20Supporting Young Actors: The Role of Parents43:01Diversity and Inclusion in the Acting Industry45:45Reframing the Artist's Identity47:35Final Thoughts: Embracing Self-Worthhttps://bramanteartists.com/https://www.facebook.com/albertcbramante/https://www.linkedin.com/in/albertbramante/specialedrising.comgofundme: https://www.gofundme.com/f/join-rays-respite-care-mission

🎙️ Special Ed Rising: Purge 47 EditionWhile families are focused on graduations, IEP meetings, and summer prep, a dangerous regulatory rollback is quietly unfolding. The Department of Energy (DOE), under the Trump administration, has issued a direct final rule—a shortcut usually reserved for noncontroversial housekeeping—to eliminate accessibility standards for buildings that receive federal funds. This move guts long-standing disability rights protections without public debate or transparency.In this episode, host Mark Ingrassia breaks down the real-world implications of this rule change—from the elimination of the Uniform Federal Accessibility Standards (UFAS) to the erosion of communication access, employment protections, and enforcement tools. The stakes are clear: less access, fewer rights, and more exclusion. This is not red tape—this is civil rights. And they’re trying to gut them quietly.💥 Highlights:What a “direct final rule” is and why it’s being used deceptivelyThe specific disability protections being eliminated—UFAS, transition plans, communication access, employment protections, and public noticesReal-world consequences for students, veterans, workers, and familiesWhat this means for Section 504 protections across other federal agenciesActions you can still take to push back—even after the public comment deadline has passed📛 What’s Being Rescinded:UFAS (10 C.F.R. § 1040.73) – No clear accessibility standard = patchwork compliance and inaccessibilityTransition Plans (10 C.F.R. § 1040.72) – No roadmap for making older buildings usableCommunication Access (10 C.F.R. § 1040.5 & § 1040.6) – LEP and disabled users lose guaranteed access to infoEmployment Protections (§§ 1040.1, 1040.12, 1040.14) – Easier to discriminate without accountabilityPosting of Rights (10 C.F.R. § 1040.102) – No visible notice = no awareness = no complaints🚨 What’s at Stake:Physical Access: Fewer ramps, narrower doors, inaccessible restrooms, labs, or entrancesCommunication Gaps: Safety alerts and essential info may be unreadable or unavailableEmployment Discrimination: Bias in hiring, retention, and promotion could go uncheckedLegal Ambiguity: With no standards to follow, lawsuits may replace prevention🛠️ What You Can Still Do (Post-June 16):✅ 1. Contact Your Members of Congress📢 Sample script: “I oppose the DOE’s rescission of accessibility standards. This is an attack on civil rights and public input. Please investigate and stop this rule.”✅ 2. Partner With AdvocatesCollaborate with:National Disability Rights Network (NDRN)Access LivingEnergy Justice NetworkGreen New Deal Network✅ 3. Keep It PublicUse and follow these hashtags:#AccessNotOptional | #DisabilityRightsNow | #StopTheRollback | #HoldDOEAccountable✅ 4. Write to the MediaLetters to the editor and op-eds help keep pressure on lawmakers and DOE✅ 5. FOIA RequestsRequest internal DOE communications—transparency is our ally✅ 6. Track Legal ActionStay connected to groups pursuing lawsuits or administrative complaints✅ 7. Petition and OrganizeStart petitions, host virtual town halls, or join webinars on disability advocacy🗂️ Docket Numbers to Track:DOE-HQ-2025-0015 (UFAS elimination)DOE-HQ-2025-0024 (Other nondiscrimination rollbacks)Visit https://www.regulations.gov and search these docket numbers to view filings.📝 Bonus: Sample Comment Letter AvailableI’ve included a downloadable sample public comment letter in the show notes, written in plain language. Feel free to adapt.Go to: https://specialedrising.com/resources/🧷 Mentioned Article:Effort To Roll Back Federal Disability Rights Protections Alarms Advocates – by Michelle Diament, Disability Scoop💬 Mark’s Final Word:“This is not just about building codes—it’s about who belongs. About whether we see civil rights as essential or optional. It’s our duty to rise. Because silence is exactly what they’re banking on.”🔗 Follow and Connect:Website: https://specialedrising.com/Instagram/TikTok: @SpecialEdRisingLinkedin: https://www.linkedin.com/in/mark-ingrassia-m-s-04680a77/

🎧 Show Notes – Special Ed Rising; Purge 47 EditionHost: Mark IngrassiaWelcome to Special Ed Rising: Purge 47 Edition, where we take off the gloves and shine a light on the policies, politics, and people shaping the future of disability rights.In today’s episode, Mark exposes the high-stakes crisis quietly unfolding in Congress — the passage of the “One Big Beautiful Bill Act” in the U.S. House of Representatives, a dangerous piece of legislation that could gut Medicaid and leave millions of people with disabilities without the services they depend on.Here’s what you’ll learn in this episode:🔍 A breakdown of the bill and what it really means for the disability community💰 The truth behind Medicaid funding and the devastating $698 billion in proposed cuts⚠️ Why work requirements and frequent eligibility checks are harmful and discriminatory💔 Who gets hurt most — and why this isn’t just a political issue, but a human one📢 What you can do right now to stop this bill in its tracksMark makes it clear: this is not just about dollars. It’s about lives, dignity, and survival. But the bill isn't law yet — and there's still time to act.Take Action:📞 Call your senators📲 Share your story📣 Use your voice and your platforms🎙 Have a story or want to be featured?Reach out to Mark Ingrassia on Instagram, Facebook @special ed rising or email: [email protected] — let's amplify the voices that matter most.Because when policies threaten our community, silence is complicity.Together, we Resist the Purge.💥 Subscribe. Share. Take action. Because this isn’t just politics — it’s personal.#Purge47#SpecialEdRising#SaveMedicaid#DisabilityRights#NoParentLeftBehind#ProtectMedicaid#MedicaidMatters#DisabilityJustice#CareNotCuts#SayNoToThePurge#NothingAboutUsWithoutUs#StopTheBeautifulBill#HealthcareIsAHumanRight

Title: One Feed. Two Voices. The Next Chapter of Special Ed RisingIn this special announcement episode, Mark Ingrassia shares exciting news: SER: No Parent Left Behind! and Purge 47 are officially joining forces under one powerful banner—Special Ed Rising.Here's what to expect moving forward:✅ Weekly episodes of Special Ed Rising: No Parent Left Behind – offering real-world support, heartfelt stories, and strategies for families of exceptional individuals.🔥 Monthly special editions of Special Ed Rising: Purge 47 Edition – where we confront injustice, dissect policy, and amplify the voices too often left out of the conversation.Why the shift? Because family life and disability justice aren't separate—they’re part of the same fight. And this new format lets us meet both with the urgency and care they deserve.Tune in. Subscribe. Share. Let’s rise—together.Links Mentioned:Subscribe to Special Ed Rising (Apple | Spotify | Google | RSS)Follow me on Instagram & Facebook: [@SpecialEdRising]Got feedback or a story to share? Email: [your email] #SpecialEdRising#NoParentLeftBehind#Purge47Edition#DisabilityJustice#InclusiveParenting#NeurodivergentVoices#AdvocacyInAction#ParentingWithPurpose#DisabilityRightsAreHumanRights#UnifiedVoices#ExceptionalFamilies#SpecialNeedsParenting#PolicyAndParenting#NothingAboutUsWithoutUs#RiseTogether

In this heartfelt and honest episode of SER: No Parent Left Behind, I reflects on his early days as a special education teacher—and how my “green” beginnings hold powerful lessons for parents raising children with exceptional needs. Drawing from personal experience and decades of coaching, I introduce the core principles of mindful parenting: presence, compassion, and intentionality.You’ll hear stories, real-world strategies, and simple practices to help you meet daily challenges with more peace and less panic. Whether you're navigating meltdowns, struggling with routines, or simply trying to hold it together, this episode will remind you that your presence is powerful—even when things feel far from perfect.🧠 In This Episode, You’ll Learn:Why it’s okay to feel unprepared—and how self-compassion is key.What mindful parenting really means (hint: it’s not about always being calm).How to respond—not react—in tough moments using a simple 5-second pause.The power of routines, visual tools, and emotional regulation.Real-life examples of mindful parenting that foster connection and trust.How the M.I.N.D.F.U.L. Protocol can support a calmer, more connected home.🌿 The M.I.N.D.F.U.L. Protocol:A practical framework Mark uses in his parent coaching sessions:M – Mindfulness: Stay present in tough moments with grounding techniques.I – Intentionality: Parent with clarity, consistency, and purpose.N – Nurturing: Lead with empathy and build resilient relationships.D – Development: Use strength-based strategies to support growth.F – Flexibility: Adapt to your child’s unique needs with grace.U – Understanding: See through your child’s lens and meet them where they are.L – Learning: Keep growing with support, coaching, and community.🧩 One Small Practice for This WeekChoose one to try:Pause for five seconds before reacting.Reflect at the end of the day: “I showed up today. That matters.”Sit beside your child during a meltdown—without trying to fix.Join a mindful parenting group or support community.💬 Quote from the Episode:“Mindful parenting isn’t about getting it right—it’s about showing up with presence and compassion. Even one breath can change the moment.”🤝 Work With MeIf you’re ready to bring more calm and connection into your home, I offers personalized coaching using the M.I.N.D.F.U.L. Protocol.You’ll get:Customized behavior and routine strategiesSupport for school and life transitionsTools to navigate meltdowns and difficult momentsAdvocacy guidance and confidence-building coaching📩 Interested? Reach out to begin building a home where your child can thrive—and so can you.📣 Spread the WordIf this episode encouraged or empowered you, please share it with another parent who could use support. Subscribe, leave a review, and help us reach more families navigating the journey of raising exceptional children.🎧 Until next time—stay compassionate, stay connected, and keep rising. Because no parent should ever feel left behind.specialedrising.comDonate to Ray's Respite Care Mission: https://www.gofundme.com/f/join-rays-respite-care-mission

In this engaging conversation, Kijuan Amey shares his journey from a challenging upbringing in Durham, North Carolina, to becoming a highly motivated individual with a diverse range of interests and experiences. He discusses his passion for fitness, sports, and music, as well as his time in the military, particularly in the Air Force as a KC-135 Stratotanker operator. Kijuan emphasizes the importance of perseverance, personal growth, and the lessons learned throughout his life, including the challenges faced in both fitness and military training. In this conversation, Kijuan Amey shares his life-altering experience of a motorcycle accident that left him blind and how he transformed his adversity into a motivational journey. He discusses the importance of respecting life, the challenges of recovery, and the philosophy of focusing on abilities rather than disabilities. Kijuan emphasizes the significance of support systems, personal growth, and the will to overcome life's challenges, inspiring others to find their strength and purpose.takeawaysKijuan emphasizes the importance of energy and motivation in daily life.He shares insights on how pushing through challenges can lead to growth.Kijuan's upbringing shaped his resilience and determination.Music has been a lifelong passion for Kijuan, starting at a young age.He was a competitive bowler, showcasing his drive for excellence.Sports provided structure and discipline in Kijuan's life.His decision to join the Air Force was influenced by family and personal goals.Kijuan's experience in the military taught him valuable life lessons.He highlights the significance of finding one's passion and pursuing it.Kijuan's journey reflects the power of perseverance and adaptability. Respect for the motorcycle grew after the accident.The accident marked a new life journey for Kijuan.Recovery is an ongoing process, still being navigated.Kijuan emphasizes the importance of mindset in overcoming adversity.He believes in focusing on abilities rather than disabilities.Support from family and friends was crucial during recovery.Kijuan's faith played a significant role in his healing process.He encourages others to find their own path to recovery.Kijuan's story is a testament to resilience and strength.He aims to inspire others through his motivational speaking.titlesFrom Struggles to Strength: Kijuan Amey's JourneyThe Power of Perseverance with Kijuan AmeySound Bites"That's how most people get hurt.""I wanted to create my own footprint.""I respected it even more."Chapters00:00Introduction and Technical Difficulties00:52Physical Fitness and Personal Challenges03:36Early Life and Family Dynamics05:56Musical Passion and Creative Outlets08:37Sports Journey and Competitive Spirit09:36Basketball Experiences and Personal Strengths10:06Football and Track Background10:56Rivalries and School Spirit11:10The Impact of Football on Personal Development12:07Transitioning to the Air Force: A Personal Journey14:54Navigating Military Recruitment and Choices21:11Experiences in Active Duty and Transitioning to Reserves23:52Understanding the Role of a KC-135 Stratotanker Pilot24:28The Flying Gas Station25:37Beyond Refueling: The Multifaceted Role of Airmen26:21A Passion for Engines: From Dirt Bikes to Motorcycles28:34The Journey to Motorcycle Endorsement31:55The Day That Changed Everything: The Accident41:04Recovery and Resilience: A New Life Journey46:56Embracing Life After Adversity49:10The Power of Support Systems52:23Transforming Pain into Purpose54:01The Will to Overcome58:32Connecting with Others Through Storytelling01:00:28Advocating for Ability Over Disability01:02:29The Importance of Mentorshiphttps://ameymotivation.com/

In this conversation, Sarah Ingledue shares her profound journey as a nurse and caregiver for her sister, Rachel, who has Cornelia de Lange syndrome. Sarah discusses her early passion for nursing, her unique relationship with Rachel, and the challenges and joys of caring for someone with special needs. The conversation delves into the importance of love and support in their lives, the daily responsibilities Sarah manages, and her aspirations to create a respite care service for families in similar situations. Throughout, Sarah emphasizes the significance of happiness, quality of life, and the need for better support systems for families with special needs individuals.takeawaysSarah's nursing background has equipped her to care for Rachel effectively.The bond between Sarah and Rachel is deep and rooted in love.Caring for a special needs sibling can be both challenging and rewarding.Respite care is crucial for families with special needs individuals.Sarah's husband is supportive and is pursuing nursing to help care for Rachel.Daily life with Rachel involves extensive care and attention.Sarah's daughters are learning valuable lessons about kindness and acceptance through their relationship with Rachel.Healthcare funding and support for special needs individuals is a significant challenge.Sarah is passionate about creating a respite care service for families in need.The importance of advocating for proper care and understanding in healthcare settings.titlesA Sister's Love: Caring for RachelNavigating Life with Cornelia de Lange SyndromeSound Bites"Love is medicine.""Rachel grows on you.""It's just fair."Chapters00:00Childhood Experiences with Rachel07:18Understanding Cornelia de Lange Syndrome09:07The Importance of Love and Support09:32Finding a Partner Who Understands11:38Family Dynamics and Support13:08Daily Life and Responsibilities with Rachel15:58Raising Daughters with a Special Needs Sister17:21Communication and Education for Rachel20:16Navigating Healthcare and Funding Challenges25:24Advocacy in Healthcare: A Caregiver's Role27:20The Birth of Raise RespaCare: A Vision for Change29:37Building a Community: The Need for Respite Care32:03Connecting with Support: Legislative and Community Efforts34:10Healing Through Care: The Role of Veterans38:51Quality of Life: Ensuring Happiness for Ray42:07Creating Memorable Experiences: Travel and Adventures43:51Raising Awareness: Fundraising and Community Engagementhttps://www.raysrespitecare.org/https://www.instagram.com/rays.respite.care/

🎙️ Show NotesOn May 16, 2025, a groundbreaking documentary titled "Deaf President Now!" will be released, chronicling the historic 1988 student-led protest at Gallaudet University—the world’s only liberal arts university for Deaf and hard-of-hearing students. But this episode is more than a retelling. It’s a personal reflection on what that moment meant then, how it shaped Deaf education, and the cultural revolution that followed.In this episode, I share my own journey from a curious outsider to someone deeply embedded in the Deaf community. I revisit the DPN movement not just as a pivotal civil rights event, but as the spark that lit a fire of change in Deaf education, culture, and self-representation. We explore:Why the appointment of a Deaf president finally matteredThe rise of bilingual-bicultural (Bi-Bi) education and what it really meansHow the cultural renaissance post-DPN transformed Deaf schools and inspired studentsThe impact of cochlear implants on Deaf identity and language accessThe continuing relevance of DPN in today’s shifting educational and cultural landscapesWhether you’re familiar with Deaf culture or discovering this history for the first time, this is a powerful reminder that inclusion isn’t just about access—it’s about representation, respect, and identity.💬 As Nyle DiMarco said, “Deaf history is American history.” Let’s make sure it's remembered, celebrated, and passed on.📌 Key Moments:[00:02:00] The Gallaudet Protest: Why It Happened[00:07:30] My First Encounter with Deaf Culture[00:14:45] Deaf Schools and the Bi-Bi Shift[00:22:10] The Cultural Renaissance of the 1990s[00:28:00] Cochlear Implants and Language Deprivation[00:34:00] Why DPN Still Matters Today🔗 Resources & References:Deaf President Now! Documentary – Releasing May 16, 2025Disability Scoop article on the film: [Link if available] https://www.disabilityscoop.com/2025/05/09/appletv-documentary-spotlights-pivotal-disability-protest/31447/National Association of the Deaf (NAD) – www.nad.org“A Journey Into the Deaf World” by Harlan Lane, Robert Hoffmeister, and Ben Bahanhttps://gallaudet.edu/museum/history/the-deaf-president-now-dpn-protest/the-impact-of-the-deaf-president-now-protest/#:~:text=The%20Americans%20with%20Disabilities%20Act%20(ADA)%20protects%20deaf%20people%20and,and%20the%20speed%20of%20introduction.📢 Let’s Continue the Conversation:Have you experienced Deaf education before or after DPN? Are you a teacher, student, or parent navigating Bi-Bi vs. oral approaches today? Share your story with us on social or email!🔖 Hashtags:#DeafPresidentNow #DPN1988 #DeafHistory #DeafEducation #BiBiEducation #SignLanguageMatters #ASL #DeafCulture #CochlearImplants #DisabilityRights #NyleDiMarco #Gallaudet #RepresentationMatters #DeafIdentity #InclusionWithIntention #LanguageAccess #DeafAndProud #DeafVoices #CelebrateDeafCulture

In this heartfelt and urgent episode, I reflect on a long-standing goal I've held since the launch of this podcast: to speak with a gun violence prevention advocate about the devastating impact of mass shootings, particularly in schools. As a classroom teacher, this issue is deeply personal. The statistics are staggering—but behind them are real people, real families, and far too many children lost.That goal led me to Moms Demand Action, a grassroots movement founded by Shannon Watts in the wake of the Sandy Hook tragedy. What began as a Facebook group created by one mother has evolved into a nationwide force advocating for stronger gun laws and safer communities.In 2024, I attended my first meeting. But it wasn’t until I got on an "action bus" to Albany, New York—a place where I earned my undergraduate education—that I truly felt the power of community activism. I joined fellow advocates to meet with lawmakers and push for three essential bills that address:The ban of semi-automatic handguns that can be converted into machine guns using illegal Glock switches,The codification and expansion of New York’s Office of Gun Violence Prevention,A simplified and strengthened firearm storage law.These aren't radical ideas—they're common-sense measures to save lives.This episode isn't just about one person's journey into advocacy—it's about what happens when we move from storytelling to action. I found inspiration, purpose, and a network of passionate people who believe we can and must do better.If you’ve ever asked yourself, “What can I do?”—this episode is your invitation to find out.🔗 Resources Mentioned:Moms Demand Action: https://momsdemandaction.orgEverytown for Gun Safety: https://everytown.orgShannon Watts on Twitter: @shannonrwatts“In the Battle Against Gun Violence, Shannon Watts Fights Like a Mother” – Glamour Article📢 Call to Action:Attend a local Moms Demand Action meeting. Speak up. Vote smart. And when the “action bus” rolls into your town—get on.https://momsdemandaction.org/🎧 Subscribe, share, and stay tuned for my upcoming interview with a gun prevention advocate.

In this conversation, Kristie Raymond discusses her revolutionary approach to modeling and casting, focusing on inclusivity and representation for individuals with disabilities. She emphasizes the importance of building a talent pool of adaptive talent to ensure authentic representation in media. Kristie shares her journey in founding Humankind Casting, her experiences in the industry, and the impact of inclusive casting on individuals and society. The conversation highlights the need for education, awareness, and collaboration to create opportunities for underrepresented communities in the modeling world.takeawaysCreating a talent pool of adaptive talent is essential for inclusive casting.Representation matters in advertising and media.Building confidence in individuals with disabilities can change their lives.The modeling industry needs to evolve to include diverse talent.Education and awareness are crucial for industry professionals.Inclusive casting can lead to authentic representation in media.The journey of Humankind Casting is about empowering individuals.Collaboration with organizations can enhance opportunities for talent.The impact of advertising on the disability community is significant.Creating a supportive environment fosters growth and confidence.titlesRevolutionizing Representation in ModelingBuilding a Talent Pool for Inclusive CastingSound Bites"It's about the human connection.""Representation matters, right?""It's okay to go for inclusive casting."Chapters00:00Technical Difficulties and Introduction02:50The Importance of Inclusive Casting05:56Authenticity in Representation09:12Building Confidence Through Modeling11:57The Journey of Kristie Raymond15:54Founding Humankind Casting19:04Challenges in the Industry21:55Creating a Talent Pool25:09The Future of Inclusive Casting31:15Scaling Opportunities in Secondary Markets34:40Building a Diverse Talent Pool37:18The Importance of Representation39:12Authenticity in Advertising42:04Impact of DEI Policies44:42The Casting Process Explained46:18Expanding Clinics and Opportunities51:14Educating the Industry55:12Empowering Creatives58:14Navigating the Hiring Processhttps://www.youarehumankind.com/ https://www.linkedin.com/in/kristieraymond/

In this conversation, Erica shares her journey as a late diagnosed autistic ADHD female and the insights gained from parenting her neurodivergent child. She discusses the emotional challenges faced due to societal norms and the importance of self-acceptance. The dialogue emphasizes the value of different perspectives, the significance of asking for help, and the need to challenge societal expectations regarding disability and worth. In this conversation, Erica and Mark explore the themes of compassion, acceptance, and the interconnectedness of social justice issues, particularly focusing on autism and animal rights. Erica shares her personal journey, the importance of communication in relationships, and how her experiences shape her advocacy work. They discuss the need for understanding and validating diverse experiences, the significance of amplifying marginalized voices, and the privilege of being able to express oneself freely. The conversation emphasizes the importance of collective liberation and the responsibility to advocate for all living beings.takeawaysErica's journey began as a late diagnosed autistic ADHD female.Understanding her child's perspective helped Erica appreciate her own neurodivergence.Receiving a professional diagnosis was validating for Erica.Emotional wounds stemmed from societal narratives about autism.Erica felt alienated despite being socially active.The concept of 'normal' is problematic and often harmful.Society often overlooks the value of neurodivergent individuals.Asking for help is a sign of strength, not weakness.Elders in society are often marginalized and undervalued.Parenting a neurodivergent child can lead to profound self-discovery. Compassion allows individuals to navigate their experiences authentically.Communication and trust are essential in relationships, especially in understanding diverse perspectives.Erica's journey highlights the importance of finding supportive environments for personal growth.Advocacy for animals and social justice is interconnected and essential for collective liberation.Understanding autism requires recognizing the unique experiences of each individual.The narrative around autism and disability needs to shift towards acceptance and validation.Amplifying marginalized voices is crucial in the fight for social justice.Privilege plays a significant role in how individuals navigate their identities and experiences.Education should come from lived experiences to foster understanding and empathy.Collective care is necessary for the well-being of all living beings.Sound Bites"I began to see myself through that same lens.""I felt like I was constantly comparing myself.""Our worth really comes down to productivity.""It's not a sign of weakness to ask for help.""We have to give people more credit.""You just need to be willing to say, I believe you.""It's about collective care and collective liberation.""We can expand that to include everybody.""Animals are always the bottom of the rung.""This message needs to get out there.""We need to educate from lived experiences.""Showing up as ourselves is a privilege.""It's important to recognize our privilege."Chapters00:00Introduction and Background02:56Understanding Neurodivergence06:10Personal Experiences with Autism and ADHD08:56The Impact of Diagnosis12:01Navigating Social Norms and Expectations15:03The Value of Different Perspectives17:56Disability and Worth in Society20:49Asking for Help and Support24:05The Role of Elders in Society27:04Parenting a Neurodivergent Child30:00Shared Experiences and Understanding34:27Understanding Compassion and Acceptance39:10The Importance of Communication and Trust44:30Erica's Journey and Career49:19Advocacy for Animals and Social Justice56:15Intersection of Autism and Animal Rights01:02:17Amplifying Voices and Collective LiberationInstagram: erica_settinohttps://www.karunaforanimals.com/

🎙️ Special Ed Rising: No Parent Left BehindEpisode Summary:In this episode, we address the dangerous and deeply offensive comments made by Robert F. Kennedy Jr. during his April 16, 2025 press conference, where he claimed autism is “preventable” and described individuals on the spectrum as incapable of working, dating, writing poetry, or living independent lives.We confront these statements with facts, lived experience, and community response.From debunking outdated vaccine myths to amplifying the voices of autistic adults and their families, we’re here to set the record straight.RFK Jr.’s rhetoric isn’t just wrong—it’s harmful. And our community deserves better.🔍 Key Segments:Segment 1: Breaking Down the ClaimsWhat RFK Jr. said and why it’s dangerousThe truth about thimerosal and autismScientific consensus from CDC, WHO, AAP, IOM, and JAMA PsychiatrySegment 2: The Community Claps BackResponses from Holly Robinson Peete, Dr. Peter Hotez, and our own communityReal-life stories of autistic individuals thriving in work, love, and creativitySegment 3: What Families Really NeedSupport, not stigmaWhy RFK’s message misses the mark entirelySegment 4: Moving ForwardHow to respond to misinformationWays we can build inclusive, empowering spaces for all neurodivergent people📌 Takeaways:Autism is not caused by vaccines or thimerosal.Genetics play a major role in autism.Autistic people can and do live meaningful, connected, and creative lives.The real barrier is not autism—it’s misinformation and underfunded systems.Words matter, and so does leadership rooted in truth and compassion.📚 Sources Mentioned:CDC on Thimerosal & AutismInstitute of Medicine 2004 ReportJAMA Psychiatry 2019 Heritability StudyWHO Vaccine SafetyHolly Robinson Peete’s ResponseDr. Peter Hotez’s Commentary🧷 Share the Message:Autism is not a tragedy. Stigma is.We don't need cures. We need compassion.

summaryIn this conversation, Gaile Valcho discusses the evolution of the Holly Springs Autism Acceptance Day, highlighting the importance of community engagement, police involvement, and the establishment of a nonprofit organization to support families with autistic children. She shares insights on training first responders, the significance of family dynamics, and the challenges of parenting a teenager with autism. The conversation emphasizes the need for awareness, support systems, and self-care strategies for parents. In this conversation, Gaile Valcho discusses the importance of guardianship for her son Brady, who has autism, and the steps they are taking to ensure his independence and well-being as he approaches adulthood. She emphasizes the need for families to understand the legal and medical implications of guardianship. Gaile also shares her role at the Hand Center for Autism, where she supports families and builds community partnerships to provide resources for children with autism. The conversation touches on the challenges of living with chronic illness while parenting, the significance of the spoon theory in understanding energy levels, and the need for better education and awareness in schools regarding autism. Gaile highlights the importance of community engagement and acceptance for individuals with autism and their families.takeawaysThe Holly Springs Autism Acceptance Day has grown significantly over the years.Police involvement is crucial for building community trust and understanding.Training first responders on autism can prevent misunderstandings in crisis situations.Establishing a nonprofit allows for more structured support and fundraising efforts.Family dynamics play a vital role in managing the challenges of autism.Self-care is essential for parents to maintain their well-being.Involving children in decision-making fosters independence and confidence.ABA therapy can be beneficial for older children with autism.Community events can enhance awareness and support for families.Creative solutions are necessary for finding time for self-care. Guardianship is crucial for individuals with disabilities as they transition to adulthood.Families should actively pursue guardianship to ensure their loved ones' rights and needs are met.Community resources and partnerships are essential for supporting families with autistic children.Events like Autism Acceptance Day foster community engagement and awareness.Living with chronic illness can complicate parenting responsibilities.The spoon theory helps in understanding energy management for those with chronic conditions.Education systems often lack the necessary awareness about autism, leading to punitive measures.Invisible disabilities are often misunderstood by the public, leading to stigma.Building relationships with community organizations can enhance support for families.Open conversations about disabilities can lead to greater understanding and acceptance.Sound Bites"You look great and I'm joking the switch""They really embraced the idea""It's one thing to have police involvement""We became a nonprofit during COVID""We need some help""You need an outlet, a healthy one""We find it really beneficial again for us""That's the promised land.""It's an amazingly fun day.""I got diagnosed with lupus over COVID.""I use the spoon theory.""There's invisible handicaps, sir.""We're in a very judgy world."Chapters00:00Introduction to Autism Acceptance Day03:01Police Involvement and Community Engagement05:59Training First Responders for Autism Awareness09:09Establishing a Nonprofit and Fundraising Efforts11:52Family Dynamics and Support Systems14:59Parenting Strategies and Self-Care18:02Brady's Growth and Independence20:54Navigating Teenage Challenges and ABA Therapy32:45Navigating Guardianship and Independence36:24Supporting Families in Autism Services41:52Community Engagement and Resources42:58Promoting Autism Acceptance49:08Living with Chronic Illness and Parenting54:07Understanding Through the Spoon Theory57:49Challenges in Education and Awareness01:00:25Invisible Disabilities and Public Perceptionhttps://bva.foundation/https://www.handscenter.com/

Show NotesIn this conversation, Mark interviews David Tillman, a dedicated father of a son with Fragile X syndrome. David shares his journey as a parent, the challenges and joys of raising Miles, and the importance of community support. They discuss the impact of Fragile X syndrome on Miles' life, the significance of music and arts in education, and the need for advocacy in the disability community. David emphasizes the value of patience, understanding, and connection in navigating the complexities of raising a child with special needs.takeawaysDavid Tillman emphasizes the importance of dad representation in discussions about parenting children with special needs.Fragile X syndrome presents unique challenges, but also opportunities for connection and joy.Community support is crucial for families navigating disabilities.Music and arts can play a significant role in the development of children with special needs.Patience and understanding are key in helping children with disabilities thrive in social situations.The Fragile X community provides invaluable resources and connections for families.Social media can help families connect with others facing similar challenges.Advocacy is essential for ensuring that the needs of children with disabilities are met.Preparing for the future involves teaching independence and life skills from an early age.Every family’s journey is unique, and it’s important to celebrate the small victories.Sound Bites"I love talking about Miles.""We can do this, Miles.""It's a beautiful vision."Chapters00:00Introduction to David Tillman and His Journey02:18Understanding Fragile X Syndrome and Its Impact08:19Navigating Family Dynamics and Support Systems11:00The Importance of Community and Connection13:20Music as a Bonding Tool17:48The Need for Arts Programs in Disability Advocacy21:43Advocacy and Raising Awareness25:07Finding Balance and Celebrating Moments27:20Navigating Crisis Moments31:24Understanding Diagnosis and Support41:04Building Community Connections46:24Advocacy and Future PlanningInstagram: @xtraordinarymileshttps://www.linkedin.com/in/david-tillman-phd/

Podcast Show Notes: Impact of Policy Changes on Special Needs FamiliesEpisode Overview:Welcome to today’s episode where we explore the impact of policy changes on families of individuals with disabilities. With potential cuts to Medicaid and the Department of Education, many families worry about losing access to essential services. In this episode, I break down what these changes could mean and share actionable steps you can take to protect your child's future. Please note that this information is for educational purposes and not legal advice.Key Topics Covered:Understanding how Medicaid and Medicare cuts could affect individuals with disabilitiesPotential impacts of reduced federal oversight on special educationSpecial Needs Trusts (SNTs) and how they safeguard government benefit eligibilityABLE Accounts for flexible, tax-advantaged savingsChoosing the right trustee for your child’s Special Needs TrustSpecial Needs Trusts (SNTs):First-Party SNTs: Funded with the beneficiary’s assets, often from settlements or inheritances. Includes a Medicaid payback provision.Third-Party SNTs: Created by family members or friends, with no Medicaid payback requirement.Benefits: Maintain eligibility for Medicaid and Supplemental Security Income (SSI) while providing supplemental support.Resources:CHOP: Special Needs Trusts OverviewNYS Bar Association: Improved Trust AdministrationMcAndrews Law Firm: Establishing a TrustInternational Bipolar Foundation: Management ModelsABLE Accounts:Annual contribution limit of $18,000, with additional contributions for working individuals.Tax-free growth for qualified expenses like education, housing, and assistive technology.SSI protection for accounts under $100,000.Complements SNTs for managing day-to-day expenses.Learn more at the ABLE National Resource Center.Choosing the Right Trustee:Family Member Trustee: Offers personal insight and familiarity but may lack financial and legal expertise.Professional Trustee: Provides expertise in financial management but may have higher fees.Co-Trustees: Combines the strengths of a family member and a professional.Pooled Trusts: Managed by nonprofit organizations for cost-effective management.Evaluate factors like financial knowledge, understanding of benefit rules, and long-term commitment.Next Steps:Consult a Special Needs Attorney: Find one through NAELA or the Special Needs Alliance.Open an ABLE Account: Compare programs using the ABLE National Resource Center.Develop a Letter of Intent: Document your child’s care preferences and essential information.Consider Life Insurance: Fund a third-party SNT to provide ongoing support.Review Your Plan: Regularly revisit your financial plan to accommodate changes in circumstances and laws.Resources and Support:The Arc of the United StatesNational Disability InstituteFamily VoicesAutism Speaks Financial ToolkitParent to Parent USAEastersealsCouncil of Parent Attorneys and Advocates (COPAA)If you found this episode helpful, share it with other parents and caregivers! Stay informed and empowered as we navigate these uncertain times together.Contact:For more resources, visit the resource page on my website. Have questions or topic suggestions? Reach out via my contact form or follow me on social media. Thanks for tuning in!specialedrising.com

This episode also appears on the Purge 47 podcast which is in its infancy with few followers. I feel this information is important and so I'm adding it to this podcast. Check out Purge 47 for continuing episodes related to disability politics. Podcast Show Notes: Understanding Medicaid & The Fight to Protect ItIntroductionWelcome to the show! Today, I'm diving into Medicaid—what it is, how it works, and why proposed budget cuts could have devastating consequences for millions of Americans with disabilities.If you or a loved one rely on Medicaid, this episode is for you. Stay tuned to learn how you can take action to protect this essential program.Segment 1: What is Medicaid?Medicaid is a government-funded health insurance program that provides free or low-cost healthcare to low-income individuals, families, seniors, and people with disabilities.It is distinct from Medicare, which serves seniors (65+) and certain disabled individuals regardless of income.Medicaid covers hospital visits, doctor appointments, prescription drugs, and long-term care, including Home and Community-Based Services (HCBS) that help individuals with disabilities live independently.Funded jointly by federal and state governments, meaning eligibility and benefits vary by state.Key Differences Between Medicaid & Medicare:FeatureMedicareMedicaidWho It CoversSeniors (65+) & some with disabilitiesLow-income individuals, children, pregnant women, elderly, and disabled peopleFundingFederal programJoint federal & state programIncome Limits?NoYes, based on financial needCoverageHospital care, doctor visits, some prescriptionsHospital care, doctor visits, prescriptions, long-term care, and sometimes dental & visionCost to PatientsMay have premiums & co-paysUsually low or no cost, some states have small co-paysLong-Term Care?LimitedYes, covers nursing homes & in-home careWho Can Have Both?Some individuals qualify for both Medicaid and Medicare, known as “dual eligibility.” Medicaid can help cover Medicare premiums and out-of-pocket costs.Segment 2: Medicaid Under Threat – Proposed Budget CutsThe U.S. House of Representatives recently passed a budget framework that proposes cutting over $800 billion from Medicaid over the next decade.Advocates warn that these cuts could:Limit access to essential health services for over 10 million people with disabilities.Reduce funding for HCBS, forcing more people into institutional care.Deepen the workforce crisis in disability services—69% of providers have already had to decline new clients due to staffing shortages.Put nursing home care at risk, affecting millions of seniors.Leave states struggling to fill the funding gap, leading to more people losing coverage.What’s at Stake?More than 700,000 people are already on waiting lists for Medicaid waivers that provide home and community-based services.Cuts could force families to become full-time caregivers, quit jobs, or lose access to critical health services.ACLU and disability rights advocates stress that Medicaid is a lifeline—not just another budget line item.Segment 3: Why This MattersMedicaid is more than just a government program—it’s a promise to protect our most vulnerable citizens.If these cuts go through, real people will lose access to care, families will face overwhelming burdens, and communities will suffer.Experts warn that Medicaid funding reductions could lead to:Over 15.9 million people losing their Medicaid or CHIP coverage by 2026.Reduced support for children, pregnant women, seniors, and people with disabilities.Longer waiting lists and fewer available services for those who rely on HCBS.Segment 4: What Can We Do?Good news: The Senate still has to approve these cuts. There’s time to act!Here’s how you can help:Call your senators – Demand they protect Medicaid. Every call makes a difference.Join advocacy groups – Organizations like ACLU, ANCOR, and Caring Across Generations are fighting to protect Medicaid.Share your story – If Medicaid has helped you or a loved one, spread the word on social media, contact your representatives, and educate your community.Attend town halls and protests – Show lawmakers that their constituents care about this issue.Closing Message:“Protect Medicaid, Protect Lives!” Cutting $800 billion from Medicaid means millions will lose critical healthcare, home support, and nursing care.This isn’t just about a budget—it’s about real people losing essential services.Stay informed, stay engaged, and keep fighting for what’s right.If you found this discussion valuable, please share this episode with your friends, family, and community.Final Call to Action:Stand up. Speak out. Stop the cuts.Follow me for more updates and action steps.Thank you for [email protected]

Episode Summary:Today, I'm flipping the script on ADHD. Instead of focusing solely on the challenges, I'm highlighting the strengths—the creativity, innovation, and unique ways of thinking that make kids with ADHD exceptional. Whether you’re a parent, educator, or someone with ADHD yourself, this episode will offer a fresh perspective on how to harness ADHD as a superpower.I'll explore the science behind ADHD and creativity, the impact of movement on cognitive performance, and how hyperfocus can be an incredible asset. Plus, we’ll discuss real-world examples of successful innovators, entrepreneurs, and leaders who have thrived because of their neurodiverse minds—not in spite of them.What You’ll Learn in This Episode:✅ How ADHD fuels creativity and problem-solving✅ Why movement can enhance focus and performance✅ The power of hyperfocus and how to channel it effectively✅ Career paths that align with ADHD strengths✅ Inspiring stories of ADHD innovators, from historical figures to modern-day leadersKey Takeaways:🔹 ADHD and divergent thinking: A natural connection to innovation🔹 Hyperactivity isn’t always a distraction—it can be a tool for success🔹 Many industries thrive on the unique strengths of ADHD minds🔹 Embracing neurodiversity is the key to unlocking extraordinary potentialFeatured Research & Insights:📖 Dr. Holly White’s research on ADHD and divergent thinking📖 UC Davis MIND Institute study on movement and cognitive performance📖 Dr. Ned Hallowell’s insights on hyperfocus as a "turbocharged concentration mode"📖 Thought-provoking perspectives from Bill Gates and other neurodiverse innovatorsLinkshttps://www.sciencedaily.com/releases/2015/06/150611082116.htm?utm_source=chatgpt.com#google_vignettehttps://www.thetimes.com/comment/columnists/article/neurodiversity-is-a-power-we-must-tap-into-2t56jj8pr?utm_source=chatgpt.com&region=globalLet’s Connect!📩 Have thoughts on this episode? Share your experiences with ADHD as a strength! Reach out at [email protected]🎙️ Subscribe to the podcast for more insights and inspiration for families of exceptional individuals.If you found this episode valuable, share it with someone who needs a fresh perspective on ADHD! Let’s change the narrative together.https://specialedrising.com/

Podcast Show NotesEpisode Sub Title: Siblings as Caregivers, Protectors, and AdvocatesEpisode Summary:In this episode, I take a deep dive into the unique experiences of siblings of individuals with disabilities. Through my personal journey—growing up with a paraplegic uncle and later witnessing my mother’s struggles with OCD and anxiety—I explore how these experiences shape identity, relationships, and emotional well-being.Siblings of individuals with special needs often take on multifaceted roles: caregiver, protector, and advocate. These responsibilities can be both rewarding and challenging, influencing their development, career choices, and emotional resilience. We discuss the psychological impact, share real-world examples, and highlight strategies for supporting siblings on their journey.Key Topics Covered:Personal Reflections: My experiences with my uncle’s physical disability and my mother’s mental health challenges.Understanding the Sibling Experience: How children instinctively adapt to their sibling’s needs and how this shapes their identity over time.The Three Core Roles:The Caregiver: Balancing responsibility with personal growth.The Protector: Defending and ensuring the safety of a sibling.The Advocate: Speaking up for their sibling’s rights and fostering inclusion.Emotional Complexity: Exploring feelings of guilt, pride, anxiety, and responsibility.The Psychological Impact of Challenging Behaviors: Research on the potential trauma experienced by siblings.Trauma Theory & Family Dynamics: How family experiences shape long-term emotional health.Supporting Siblings with Mindful Practices: Open communication, validation, leadership opportunities, and self-care strategies.Empowerment & Identity: Helping siblings find their voice, build leadership skills, and shape their identity beyond their role as a sibling.Key Takeaways for Parents & Siblings:Create a safe space for siblings to express their emotions without guilt.Acknowledge and validate their unique experiences and contributions.Provide resources and peer support networks to help them navigate challenges.Encourage leadership and advocacy skills to empower their growth.Reinforce their individuality beyond their sibling relationship.Final Thought:“To all the siblings listening—your role in your family is important, but it doesn’t define you. You are a leader, an advocate, and a person with your own dreams and identity. And to the parents—empowering all your children ensures they don’t just survive these challenges, but thrive.”Resources Mentioned:The Sibling Survival Guide by Don MeyerSibshops: siblingsupport.orgJoin the Conversation:📩 Email me at [email protected]📱 Follow us on Instagram, Facebook, Tik Tok and LinkedIn🎙️ Subscribe and leave a review on wherever you listenTune in and let’s explore what it means to be a sibling in a world of exceptional needs.

"Helping People Understand the World Through Games." -Josh BoykinIn this conversation, Mark and Josh Boykin explore the intersection of gaming and accessibility, discussing how games can serve as tools for storytelling, empathy, and connection, particularly for children with special needs. They delve into the evolution of gaming narratives, the importance of inclusivity, and the role of parents in guiding their children's gaming experiences. The discussion also touches on the social aspects of multiplayer gaming and the future of the gaming industry in terms of accessibility and understanding.takeawaysGaming can be a powerful tool for storytelling and connection.Empathy and understanding are crucial in today's society.Parents can use gaming to connect with their children.The Xbox adaptive controller enhances accessibility in gaming.Tabletop role-playing games foster creativity and social skills.Violence in video games does not directly correlate with real-life violence.Inclusivity in gaming is essential for a diverse audience.Multiplayer games provide opportunities for social interaction.Games can help children with special needs feel included.The future of gaming should focus on understanding and connection.titlesGaming and Accessibility: A New FrontierEmpathy Through Gaming: Connecting GenerationsSound Bites"Gaming is a tool for storytelling.""We need more inclusivity in gaming.""Multiplayer games offer social connections."Chapters00:00Introduction and Personal Updates00:01Exploring the Role of Gaming in Education01:31Connecting Games to Real-World Issues06:21The Importance of Empathy and Understanding10:19Gaming as a Tool for Parent-Child Connection14:05Navigating the Gaming Landscape20:15Games for Neurodivergent and Physically Disabled Kids25:44The Power of Tabletop Role-Playing Games28:05Communal Storytelling and Character Development30:05Exploring Marginalized Experiences Through Gaming33:01The Importance of Accessibility in Gaming36:07Innovations in Gaming Accessibility38:59The Social Component of Multiplayer Gaming41:41Building Trust Through Shared Interests49:21The Future of Gaming: Understanding and ConnectionYou can find Josh on BlueSky at https://wallstormer.bsky.social, and for more information about Intelligame at https://linktr.ee/intelligame. You can also contact him for speaking/consulting opportunities at [email protected].

In this conversation, Dr. Ruth shares her extensive background in education, particularly focusing on autism and special needs. She discusses her journey from teaching in diverse environments to establishing Blue Sky, a charity aimed at providing early intervention services for children with autism. The conversation highlights the challenges faced in the UK regarding autism services, the cultural differences in perception and support, and the importance of empowering parents in the therapeutic process. In this conversation, Dr. Ruth discusses the challenges and innovations in autism therapy, particularly focusing on the Play-to-Talk approach. She highlights the importance of legal frameworks for disability services, the role of parents in therapy, and the need for accessible services across socioeconomic backgrounds. Dr. Ruth shares transformative success stories of children who have benefited from their therapy, emphasizing the potential of every child and the importance of not giving up hope.takeawaysDr. Ruth has a diverse background in education and autism.Blue Sky started with limited resources but grew rapidly.The therapy model focuses on parent involvement and empowerment.UK autism services face significant challenges and inconsistencies.Cultural perceptions of autism differ greatly between the UK and the US.Early intervention can lead to significant progress in children.Parents often lack a clear path post-diagnosis in the UK.Funding for autism services is limited and competitive.The importance of community support for parents is emphasized.Dr. Ruth advocates for more accessible early intervention services. Legal frameworks for disability services are often inadequate.Play-to-Talk is an innovative approach to autism therapy.Parental involvement significantly enhances therapy outcomes.Training parents is crucial for effective home practice.Accessibility to therapy is a major concern for families.Children's progress can be transformative with the right support.Understanding sensory processing is key in therapy.Cultural differences impact therapy approaches and parent involvement.Economic factors can limit access to necessary services.Every child has the potential to thrive with the right support.titlesNavigating Autism: Insights from Dr. RuthEmpowering Parents in Autism TherapyThe Journey of Blue Sky: A Model for ChangeCultural Perspectives on Autism SupportChallenges in UK Autism ServicesEarly Intervention: A Path to ProgressSound Bites"It's a really strange road, I know.""It's tricky in the UK.""I want to have a path.""We need to have a path.""We don't have a lot of money.""It's sad to hear.""We play and help children to talk.""We want to empower parents.""It's a cultural thing.""We try and bridge that gap.""Don't give up hope."Chapters00:00Introduction and Background of Dr. Ruth04:54The Journey to Establishing Blue Sky11:52Therapy and Educational Services Overview17:58Challenges in the UK Autism Services23:51Cultural Differences in Autism Perception29:52Empowering Parents in Autism Therapy31:05Understanding Legal Frameworks for Disability Services35:05Innovative Approaches: Play-to-Talk Therapy39:47The Role of Parents in Therapy48:07Training Parents for Effective Home Practice56:11Accessibility and Economic Considerations in Therapy57:00Transformative Success Stories from Therapyhttps://www.blueskyautism.com/

summaryIn this conversation, Alex Wosleger shares her journey as a parent of two children with a rare genetic disorder, discussing the challenges, triumphs, and the importance of community support. She reflects on the diagnosis journey, the impact of diet and therapy, and the dynamics of parenting in the face of adversity. Alex emphasizes the beauty of her children's progress and the lessons they teach her, while also touching on the hope brought by advancements in gene therapy.takeawaysParenting children with special needs is a unique journey.The diagnosis process can be long and challenging.Genetic disorders can significantly impact development.Nutrition plays a crucial role in managing health.Therapies should be enjoyable and engaging for children.Every child develops at their own pace, regardless of challenges.Community support is vital for families with special needs.Finding joy in small milestones is essential.Gene therapy offers hope for children with rare disorders.Parenting requires constant adaptation and learning.titlesNavigating Parenthood with Special NeedsThe Journey of a Special Needs ParentSound Bites"It's been a huge journey for us.""We're just gonna live.""It's been a lot to process."Chapters00:00Technical Troubles and Initial Greetings00:28Introduction to Alex Wosleger and Her Family02:49The Journey of Parenthood and Genetic Challenges08:46Connor's Diagnosis and Genetic Insights12:46Diet, Nutrition, and Managing Health15:11Establishing Routines for Well-Being18:37Navigating Seizures and Medical Challenges21:17Milestones and Communication Progress23:51The Journey of Walking and Independence27:23Parenting Dynamics and Relationship Growth29:37Coping with Emotional Challenges as a Couple34:33Finding Gratitude Amidst Challenges37:54Embracing New Beginnings with Quinn39:44Navigating Emotions and Mourning42:26The Journey of Gene Therapy46:05Finding Joy in Daily Life49:36Innovative Therapies and Their Impact53:24Community and Connection in Parenting56:48Advice and Reflections on ParentingYOUTUBE: https://www.youtube.com/@OutsideTheMilestoneshttps://www.rarediseaseday.org/friends/the-wwox-foundation/

In this conversation, Carinne Mossa shares her personal journey into the world of special education and parenting a child with complex needs. She discusses the challenges faced by parents, the importance of self-care, and the need for community support. Carinne emphasizes the significance of understanding behavior as communication and the role of advocacy in navigating the education system. She also highlights the necessity of pacing oneself and finding meaning in adversity, while advocating for better training and support for parents and teachers alike.takeawaysCarinne transitioned from being a teacher to a parent coach after her child's diagnosis.Understanding behavior as communication is crucial in special education.Self-care is essential for parents to effectively support their children.Building a supportive community can alleviate feelings of isolation for parents.Advocacy is key in navigating the special education system.Parents should prioritize their mental and physical health.Education for parents about their rights and the system is vital.Teachers need to be valued and compensated fairly for their work.Finding meaning in adversity can help parents cope with challenges.Pacing oneself is important to avoid burnout in parenting.titlesNavigating the Journey of Special Needs ParentingEmpowering Parents in Special EducationSound Bites"All behavior is communication.""It's a work in progress.""You can't pour from an empty cup."Chapters00:00Introduction and Personal Background01:36Journey into Special Education05:30Navigating the Emotional Landscape10:47The Importance of Support Systems14:37Coaching and Self-Care Strategies18:33Advocacy and Bridging Gaps in Education21:00Navigating the Education System as Advocates25:27The Role of COPA in Advocacy30:36Empowering Parents Through Coaching33:23Systemic Changes Needed in Education38:52Self-Care for Parents of Children with Complex Needs

Episode Summary:In this episode, I tackle the critical issues facing special education today and the potential ramifications of the Trump administration's proposed Project 2025, which includes plans to dismantle the U.S. Department of Education. This episode is essential listening for parents, educators, and advocates who want to stay informed about the policies shaping the future of education for students with disabilities.Key Topics Discussed:The Current Challenges in Special Education:Workforce Issues:Teacher recruitment is at an all-time low, with only 5% of ACT test-takers in 2014 expressing interest in education.Retention challenges due to low pay, high stress, and lack of mentorship.Funding and Resource Gaps:Federal funding for special education remains significantly below the promised 40% target, leaving states and districts struggling to fill the gap.Administrative Burdens:Complex paperwork and compliance reporting take time away from student engagement and contribute to burnout among teachers and administrators.Potential Impact of Eliminating the Department of Education:Loss of federal oversight and accountability for the Individuals with Disabilities Education Act (IDEA).Significant funding disparities and increased state-level inconsistencies in special education services.Greater burden on parents to advocate for their children’s rights and navigate a fragmented system.Reduced training and support for educators, exacerbating existing teacher shortages.How These Changes Could Affect Families and Students:Increased inequities in access to quality education, especially for low-income and rural areas.Potential erosion of civil rights protections for students with disabilities.Disruption of established frameworks like IEPs, creating confusion and service delays.Steps Parents Can Take to Advocate and Protect Their Children’s Rights:Stay informed about state and local policy changes.Work with advocacy groups to lobby for strong state-level protections.Leverage resources from organizations like The Arc, Autism Speaks, and Wrightslaw.Push for adequate state funding and standardized support systems.Solutions for a Better Future in Special Education:Increased funding to meet federal commitments and reduce inequities.Mentoring and training programs to attract and retain qualified teachers.Technological innovations to streamline IEP management and improve compliance.Key Quotes from the Episode:“Without a large governing body, there will be no regulation on who gets what.” – Amanda Levin Mazin“The Department of Education and the experts within it play a crucial role in enforcing civil rights for students with disabilities across the country.” – Jessica LevinResources Mentioned:The ArcWrightslawAutism SpeaksU.S. Department of Education’s Personnel Preparation InitiativeCall to Action:As policies continue to evolve, staying informed and actively advocating for your child's rights is more important than ever. Share this episode with other parents, educators, and advocates, and join in the fight to ensure that every child receives the education and support they deserve.Connect with Me:Subscribe to the podcast on your favorite platform.Follow me on social media for updates and advocacy tips.Check out my parent training offers and more at specialedrising.comTogether, we can make a difference.

In this conversation, Lori Cooney discusses Universal Design for Learning (UDL), a framework aimed at creating flexible learning environments that accommodate all students. She shares her personal journey in education, the importance of inclusive teaching practices, and how technology can enhance learning experiences. The discussion also covers the realistic implementation of UDL in classrooms, the impact of physical space on learning, and the positive effects of UDL on student engagement and behavior. Cooney emphasizes the need for ongoing training for teachers and the potential of future technologies to support diverse learners. In this conversation, Mark and Lori Cooney delve into the integration of AI in education, the principles of Universal Design for Learning (UDL), and the importance of parent advocacy in creating inclusive classrooms. They discuss the challenges teachers face, the potential of AI to ease workloads, and the necessity of training and resources for educators. Lori emphasizes the role of parents in supporting UDL and the need for innovative teaching methods to engage all students effectively.takeawaysUniversal Design for Learning (UDL) is a framework for inclusive education.Lori Cooney's journey highlights the importance of understanding diverse learning needs.Technology plays a crucial role in implementing UDL effectively.Teachers can provide multiple means of engagement and assessment for students.Physical classroom design impacts student learning and inclusivity.Peer mentoring can enhance engagement and learning outcomes.UDL can help reduce behavioral issues in the classroom.There is evidence supporting the effectiveness of UDL in improving student outcomes.Future technologies, including AI, are being developed to support UDL.Ongoing professional development is essential for teachers to implement UDL. Many educators are unaware of the age restrictions for AI tools like ChatGPT.UDL encourages creative and authentic student outputs, reducing plagiarism.Parents often lack knowledge about UDL but can influence its adoption in schools.Training sessions can help educators understand the needs of students with disabilities.Effective communication between parents and teachers is crucial for student success.AI can assist teachers in creating assessments and rubrics efficiently.Inclusive education should be a standard practice in all classrooms.Teachers can start implementing UDL principles by making small changes.AI tools can help bridge language gaps for multilingual learners.Engaging students in creative projects can lead to better learning outcomes.titlesUnlocking Learning: The Power of UDLCreating Inclusive Classrooms with UDLLori Cooney on Universal Design for LearningTransforming Education through UDLThe Future of Learning: UDL and TechnologySound Bites"Give them an alternate method.""Teachers are really schooled in this.""It makes it much more enticing for them.""UDL is part of inclusive design.""Their behavior is so much better.""There's just so many that I can name.""AI can provide automated feedback methods.""Parents play a huge role in advocacy.""Don't be afraid to try new tools.""Students can create better work than AI.""Engagement is key to student success."Chapters00:00Introduction to Universal Design for Learning03:59Lori Cooney's Journey in Education07:56Understanding UDL: A Framework for All Learners11:59Realistic Implementation of UDL in Classrooms15:58Physical Space and UDL: Creating Inclusive Environments20:06Engagement and Behavior: The Impact of UDL23:48Measuring Success: UDL vs. Traditional Learning28:02Future Tools and Technologies for UDL29:19Exploring AI in Education32:18Understanding Universal Design for Learning (UDL)34:35Training and Resources for Educators40:03Advocating for UDL in Schools44:43The Role of Parents in UDL Implementation47:03Teacher Workload and AI Solutions51:50Encouraging Innovation in Teachinghttps://www.linkedin.com/in/lori-cooney/

In this conversation, Joan Accolla shares her journey from interior design to discovering the healing power of humor. She discusses how her background in design led her to explore holistic health and the integration of laughter as a therapeutic tool. The conversation delves into the science behind laughter, its effects on the brain, and how intentional laughter can transform one's mindset and emotional well-being. Joan emphasizes the importance of humor in various aspects of life, including leadership and personal health, and introduces the concept of laughter yoga as a practice for enhancing well-being.Joan discusses the concept of intentional laughter and its healing properties, stemming from the movement of Laugh Yoga initiated by Madan Kataria. She explains how laughter can be provoked intentionally and how it triggers positive hormones in the brain. Joan also shares her work with Healing Headbands, a project that combines humor and art to support children with cancer and disabilities. The discussion highlights the importance of laughter in various communities, including those with special needs, and emphasizes the transformative power of humor in healing and emotional well-being. Joan discusses the mission and growth of Healing Headbands, emphasizing the importance of laughter and humor in healing. She shares insights on how laughter yoga serves as a universal language that transcends cultural barriers and highlights the role of humor in alleviating stress and promoting wellness. Joan also outlines her plans for expanding outreach, engaging with communities, and the future adventures of Healing Headbands as they aim to bring joy to children in hospitals.takeawaysJoanie's journey began with a desire to help others.Humor can be a powerful healing tool.Laughter activates the entire brain.Intentional laughter can shift negative thought patterns.Holistic health integrates mind, body, and spirit.Laughter yoga promotes well-being through intentional laughter.CEOs with a sense of humor are more respected.The Humor Academy teaches the science of laughter.Laughter can derail negative thinking.Humor is essential for emotional health.Intentional laughter can provoke genuine reactions.Laughter yoga was founded to explore laughter as a healer.The brain responds similarly to real and fake laughter.Laughter releases dopamine, oxytocin, serotonin, and endorphins.Healing Headbands combines art and humor for children with cancer.Workshops help children express themselves through laughter and art.Laughter provides a sense of normalcy for families with disabilities.The impact of laughter is immediate and profound.Humor can shift perspectives and reduce stress.Cortisol, the stress hormone, can be countered with laughter. Laughter yoga is still in its infancy and needs more awareness.Stress is a leading cause of illness, and laughter can be a remedy.Humor is a universal language that connects people across cultures.Watching others laugh can still provide healing benefits.Prominent figures use humor as a healing modality.Healing Headbands is expanding its outreach to more communities.Art therapy plays a significant role in healing processes.The organization is working on building a marketing team to spread awareness.Future plans include taking Healing Headbands on the road to various hospitals.Community engagement is crucial for the success of Healing Headbands.https://www.healingheadbands.com/

Jenifer Breaux is a Luxury Travel Agent and mother of two special needs children. Six years ago she opened a franchise of Dream Vacations called JB Travel Pros. Included in her work is her focus on helping families of special needs children make wonderful memories through travel.  She is the author of Travel IS Possible - How to Travel with Children with Special NeedsIn this conversation, Mark and Jenifer Breaux discuss the challenges and triumphs of parenting children with special needs, particularly in the context of education and travel. Jenifer shares her experiences as a military parent and how it shaped her approach to travel, emphasizing the importance of advocacy, routine, and creating memorable experiences for families. They explore practical tips for traveling with children who have sensory needs, the significance of social stories, and the value of establishing a vacation routine to reduce anxiety and enhance enjoyment for both parents and children.takeawaysAdvocacy is crucial for parents navigating school systems.Good teachers can make a significant difference in a child's education.Celebrating small victories is important for children with special needs.Traveling can provide valuable experiences for families.Establishing a routine helps children feel secure while traveling.Social stories can prepare children for new experiences.Creating a comfortable travel environment is essential for sensory needs.Parents should not hesitate to seek help and resources.Traveling with special needs children requires planning and flexibility.Every family deserves to create lasting memories through travel.Chapters00:00Introduction and Daily Life of a Busy Parent01:23Navigating School Systems and Advocacy04:19The Importance of Good Teachers06:57Travel as a Means of Creating Memories09:41Understanding Sensory Needs in Children12:33The Journey into Travel and Military Influence17:57Transitioning from Military to Travel Advocacy20:42Overcoming Challenges in Special Needs Travel23:26Practical Travel Tips for Families24:13Embracing Family Travel30:08Creating Comfort for Kids35:44Planning Memorable Experiences39:23Navigating Air Travel with Kids45:01Establishing Routines on Vacation50:56Resources for Traveling Familieshttps://www.iamjeniferbreaux.com/Instagram: iamjeniferbreaux

This episode is influenced by my recent conversations with guests on my show;  particularly my chat with Taylor Winnett.  We spoke about bridging the gap of communication between non-disabled people as they interact with disabled people.  How does the conversation begin for someone who is unfamiliar with or has never met a disabled person and therefore may stumble when engaging for lack of appropriate, acceptable and respectful language?  How can we get better at inclusive language to move the needle towards greater equality and recognition in all areas of life for all people no matter our differences? 

summaryIn this conversation, Chris Higgins shares his journey as a filmmaker and writer, emphasizing the importance of accessibility in technology and storytelling. He discusses his film 'Access,' which profiles Corey Joseph, a user of assistive technology, and highlights the need for empathy and understanding in creating inclusive designs. The conversation explores the challenges of navigating conversations about disability and the role of generosity in sharing personal stories. In this conversation, Chris Higgins discusses the importance of accessibility in filmmaking, emphasizing the need for inclusive design that accommodates diverse audiences. He shares insights on the role of text and audio description in media, the challenges faced in implementing these features, and the evolving technology that supports accessibility. The conversation highlights the moral imperative of creating inclusive content and the potential impact of films like 'Access' in reducing stigma around disabilities.takeawaysAccessibility is crucial in technology and storytelling.Empathy is key to understanding the experiences of others.Filmmaking can be a powerful tool for advocacy.Corey's story illustrates the importance of lived experiences.Generosity from subjects can enhance storytelling.Inclusive design should consider various user needs.Awkwardness in conversations about disability is natural.Text can be a fundamental aspect of documentaries.Universal design benefits everyone, not just those with disabilities.Creating accessible content requires thoughtful planning. Accessibility is essential for filmmakers to consider.Text can serve as a universal medium for content.Audio description enhances the viewing experience for all.Filmmakers have a responsibility to provide access to their work.Technology plays a crucial role in supporting accessibility.Inclusive design can help reduce stigma around disabilities.Empathy is key in understanding diverse needs.The evolution of technology will improve accessibility features.Creating inclusive content is the right thing to do.Awareness and education are vital for promoting accessibility.titlesExploring Accessibility in FilmmakingThe Journey of a FilmmakerEmpathy and Storytelling in DocumentariesCorey Joseph: A Story of AccessibilityNavigating Conversations About DisabilityThe Role of Generosity in FilmmakingSound Bites"I had plans, but life happens.""This is just how reality is for him.""Corey was really generous.""What if there's no display?""The documentary is text.""I want to provide the text.""Can I enjoy this if?""Everything I make can be reduced to text.""This is how I'm learning English.""It changed me as a filmmaker.""There's an art to audio description.""Access is a product of its time."Chapters00:00Introduction and Background03:13The Journey of Filmmaking and Writing05:47The Importance of Accessibility in Technology09:14Shifting Perspectives: From Experts to Users11:57Corey's Story: A Personal Connection14:58Building Empathy Through Storytelling18:01The Role of Generosity in Filmmaking20:59Navigating Awkward Conversations24:14Inclusive Design and Its Challenges26:56Universal Design and Accessibility Features29:58Exploring Accessibility in Filmmaking31:56The Role of Text in Media33:33Understanding Audio Description36:56Challenges of Implementing Accessibility Features39:45Future of Inclusive Design in Film42:43The Evolution of Accessibility Technology54:54Addressing Stigma Through Inclusive DesignChris Higgins Website:https://chrishiggins.com/w/https://accessmovie.org/

In this conversation, Taylor Winnett shares her reflections on competing in the Paralympics, and the emotional journey of balancing high expectations with the realities of performance. She discusses her future plans, including moving to Texas, aspirations for world championships, and the possibility of motherhood. Taylor also expresses her desire to coach and the importance of maintaining a positive mindset in sports and life. In this conversation, Taylor Winnett shares her experiences as a Paralympic swimmer, discussing the vibrant atmosphere of the Paralympic Village, the accessibility challenges she faced in Paris, and the social acceptance of athletes with disabilities. She emphasizes the importance of media representation and sponsorship in promoting disability sports and advocates for greater awareness and understanding of the disabled community. Taylor also reflects on the evolving perceptions of disability and the potential for future generations to embrace adaptive sports.TakeawaysThe Paralympics provided a humbling experience despite performance disappointments.It's important to balance high expectations with reality in sports.Life after the Paralympics involves new challenges and opportunities.Future plans include moving, competing, and possibly starting a family.Coaching can be a fulfilling path for athletes post-competition.Maintaining a positive mindset is crucial in sports and life.Friendships formed through sports can last a lifetime.The Paralympic village was a unique and accessible environment.Personal growth often comes from navigating challenges. The Paralympic Village offers a unique and supportive environment for athletes.Accessibility in cities like Paris has improved, but challenges remain.Social acceptance of disabilities is crucial for athletes' experiences.Media representation can significantly impact public perception of disability sports.Sponsorship and support from companies are vital for Paralympic athletes.Personal stories of athletes can inspire others with disabilities.Awareness and advocacy work are essential for changing societal views.The classification system in sports can be complex but also offers unique opportunities.Curiosity about disabilities should be approached with respect and understanding.The journey of athletes with disabilities can inspire future generations.Sound Bites"I gained time in every event.""I wanted to show that to the world.""I'm worth more than an athlete.""I want to be a stay-at-home mom.""I plan to be in LA.""It was like a disabled utopia.""I have so many pins.""I cried when my roommate medaled.""The Metro was not accessible.""I had a great time in the city."Chapters00:00Snowstorm Adventures in Colorado06:16Reflections on the Paralympics Experience10:43Balancing Expectations and Reality19:28The Journey Ahead: Future Plans and Aspirations25:11Coaching Dreams and Life Beyond Swimming30:17Exploring the Paralympic Village Experience32:58Accessibility in Paris: A Personal Perspective40:06Social Acceptance and Recognition of Paralympians46:51The Impact of Media and Sponsorship on Disability Sports54:03Navigating Curiosity and Respect in Disability Conversations

keywordsmusic education, special education, parental involvement, inclusivity, advocacy, misconceptions, music therapy, child development, songwriting, creativity, parent-teacher relationships, music education, child development, emotional regulation, musical exploration, parenting tips, music in schools, child psychology, music therapy, family bondingsummaryIn this conversation, Giuliana Conti and Mark discuss the vital role of music education, particularly for children with special needs. They explore misconceptions surrounding talent in music, the importance of parental involvement, and the need for advocacy within school systems to ensure that all children have access to music education. Giuliana shares her experiences working with parents and students, emphasizing the necessity of inclusivity and the potential for every child to engage with music, regardless of their background or abilities. The conversation also highlights practical tips for parents to encourage musical exploration at home and the importance of communication between parents and educators. In this conversation, Mark and Giuliana Conti discuss the vital role of music in child development and the importance of fostering positive relationships between parents and teachers. They explore how music can aid in emotional regulation, socialization, and personal identity formation. Giuliana emphasizes the need for parents to engage with their children musically at home, providing opportunities for exploration and creativity. The discussion also highlights the significance of understanding children's musical preferences and the impact of music on their emotional well-being.takeawaysMusic education fosters confidence and brain plasticity.Parents often live vicariously through their children's musical experiences.There is a misconception that talent is innate and not developed.Every child is capable of engaging with music given the opportunity.Music can be integrated into the home environment easily.Advocacy is crucial for ensuring children receive music education.Inclusivity in music programs benefits all students, not just those with special needs.Parents should inquire about their child's IEP and its implications for music education.Music teachers often lack awareness of students' special needs.Exploration and exposure to music should start early in a child's life. Parents should approach teachers with the benefit of the doubt.Building relationships with educators is crucial for child success.Music exposure in early childhood fosters social and emotional development.Children's musical preferences can reflect their emotional states.Music can serve as a tool for emotional regulation in children.Creating a musically rich environment at home enhances bonding.Parents should provide opportunities for musical exploration.Understanding developmental stages helps in parenting decisions.Encouraging children to express their musical tastes is important.Music technology can facilitate musical discovery and engagement.titlesEmpowering Children Through MusicCreating a Musical Home Environment Creating a Musical HouseholdThe Role of Music in SocializationSound Bites"It's a wonderful tapestry of imperfection.""Music is a necessity for wellbeing.""Don't believe everything you're told about your child.""Develop relationships with the teachers at your school.""Music is such a strong bonding agent.""Music can be one of those tools that they use."Chapters00:00Introduction and Background02:57Exploring the Power of Music in Education06:00The Role of Parents in Music Education09:00Misconceptions About Special Education and Music11:53Advocacy for Music Education in Special Needs14:52The Importance of Inclusivity in Music Programs18:01Practical Tips for Parents to Encourage Music21:04Navigating School Systems and Music Education23:51Conclusion and Final Thoughts33:32Navigating Parent-Teacher Relationships36:01The Importance of Music in Early Development40:31Understanding Musical Preferences and Socialization43:12Music as a Tool for Emotional Regulation51:52Engaging Children Musically at Home01:03:35Fostering Musical Exploration and Identityhttps://musicworkshopedu.org/

In this episode I’m talking about a critical issue: inequality in employment for people with disabilities.  Despite advancements in diversity and inclusion, millions of disabled individuals around the world still face enormous challenges when it comes to finding and maintaining employment. In today’s episode, I want to dive into why this problem persists, what’s being done about it, and how we can all contribute to creating more inclusive workplaces.

keywordsAI, special education, learning differences, assistive technology, skill development, equity in education, communication tools, educational technology, AI, special needs, education, Goblin Tools, executive functioning, note-taking apps, communication, technology, learning support, transition to adulthoodsummaryThis conversation explores the intersection of AI and special education, focusing on how AI can support students with learning differences. Joan Green discusses the potential benefits and challenges of integrating AI into educational settings, emphasizing the importance of thoughtful implementation and the need for educators to adapt to new technologies. The conversation also highlights various tools available for skill development and the necessity of collaboration among educators to effectively utilize these resources. In this conversation, Mark and Joan Green discuss the integration of AI tools in education, particularly for students with special needs. They explore various applications such as Goblin Tools for task management, note-taking apps for auditory processing, and AI's role in facilitating communication. Joan emphasizes the importance of teaching students how to effectively use these technologies to enhance their learning experience and prepare for adult life. The discussion also touches on the challenges educators face and the potential of AI to alleviate some of these burdens, ultimately aiming to create a more inclusive and supportive educational environment.takeawaysAI has the potential to help students with learning differences significantly.There are concerns about skill development due to reliance on AI tools.Educators need to be thoughtful about the tools they use in classrooms.AI can assist in reading and writing through various applications.Collaboration among educators is essential for effective AI integration.Nonverbal students can benefit from augmentative and alternative communication devices.Equity in access to AI tools remains a challenge in education.Many AI tools are free and can be integrated into existing systems.Professional development is crucial for teachers to learn about AI tools.AI can bridge gaps in education if used thoughtfully. Goblin Tools is a free resource for breaking down tasks.AI can significantly aid executive functioning skills.Note-taking apps like Otter.ai are beneficial for students.AI can help students transition to adult life.Communication aids powered by AI can assist those with speech difficulties.Educators need to adapt their assessment methods with AI.AI tools can help create personalized learning materials.It's essential to teach students how to use AI responsibly.AI can help reduce the workload for special educators.Joan offers resources and support for educators and parents.titlesThe Future of AI in EducationNavigating AI in the Classroom Transforming Communication with AIThe Role of AI in Modern EducationSound Bites"AI has the potential to enormously help students.""There's a lot of fear that there's gonna be a loss of skill development." "This is something that's available to everybody.""This for executive functioning is phenomenally great.""AI can help you with reading, writing, and communication."Chapters00:00Introduction to AI in Special Education05:02The Role of AI in Supporting Learning Differences11:01Tools and Applications for Skill Development17:56Collaboration and Professional Development in Schools25:10Addressing Nonverbal Communication Needs27:52Equity and Access to AI in Education29:35Introduction to Goblin Tools30:32Breaking Down Tasks for Special Needs33:15Executive Functioning and Daily Living Skills36:06AI in Education: Monitoring and Support37:40Note-Taking Apps for Students39:30Transitioning to Adult Life with AI40:53AI as a Communication Aid45:59AI in Special Education: Tools and Resources54:16The Future of AI in [email protected]

keywordsdisability, advocacy, accessibility, inclusion, mental health, representation, family dynamics, self-advocacy, education, awarenesssummaryIn this conversation, Kimberly shares her personal journey living with a disability, emphasizing the importance of advocacy, accessibility, and the need for awareness and education. She discusses her family dynamics, the role of siblings, and the challenges faced in relationships and employment. Kimberly highlights the significance of communication and connection in fostering inclusion and understanding, while also addressing the mental health aspects of living with a disability. The conversation concludes with a call to action for society to treat individuals with disabilities as equals and to create environments that support their needs.takeawaysLiving with a disability affects every aspect of life.Advocacy is crucial for individuals with disabilities.Different does not mean bad; it just means hard.Parents should raise the child they have, not the one they expected.Accessibility goes beyond physical ramps; it includes practical considerations.Awareness and education lead to acceptance and inclusion.Children are often more accepting and curious about disabilities.Representation in media is vital for validation and inclusion.Creating inclusive environments benefits everyone, not just those with disabilities.Connection and communication are key to overcoming fears and misconceptions.Sound Bites"Raise the child you have, not the child you thought you'd have.""Different means hard, but different doesn't mean bad.""You have to advocate for them because the world is going to be brutal."Chapters00:00Introduction and Technical Glitches02:59Living with a Disability: Personal Journey06:00Siblings and Family Dynamics08:52The Importance of Advocacy11:56Accessibility: Beyond Ramps14:52The Role of Awareness and Education18:02Confronting Stares and Curiosity20:55Representation in Media24:09Future Aspirations and Advocacy Work27:04Mental Health and Self-Perception29:57Navigating Relationships and Friendships33:01The Power of Communication35:57Creating Inclusive Environments39:09Employment Opportunities and Challenges42:01The Fear of the Unknown44:54The Importance of Connection47:57Final Thoughts on Inclusion and HumanityEmail: [email protected]: @kim_530

This episode is a huge milestone – it’s my 100th. Join me as I reflect on this adventure and talk about what's to come!

In this episode I’ll be diving into a key component of inclusive education that’s transforming classrooms: Universal Design for Learning, or UDL, and how flexible learning spaces are making education more accessible for all students. Whether you're a teacher, administrator, or parent, you'll find valuable insights into how these strategies can foster a more inclusive and engaging learning environment for every child.

summaryClarissa discusses her experience as a parent of a child with ARID1B-related disorder and the challenges they face. She emphasizes the importance of routine and structure for children with special needs and the need for parents to take care of themselves. Clarissa also talks about the Foundation for ARID1B Research (FAR) and their efforts to raise money for research into potential treatments. She highlights the diversity of experiences within the special needs community and the importance of supporting and connecting with other parents. Clarissa shares her son's communication challenges and the various methods they have tried, including Proloquo2Go and picture exchange communication systems. In this conversation, Clarissa discusses her experiences as a parent of a child with ARID1B-related disorder and autism. She shares her journey of seeking a diagnosis, finding support, and navigating the challenges of raising a child with special needs. Clarissa emphasizes the importance of patience, acceptance, and finding balance as a parent. She also highlights the need for more awareness and resources for children with neurodevelopmental disorders. The conversation touches on topics such as communication methods, behavioral issues, and the differences in support systems between the UK and the US.keywordsARID1B-related disorder, special needs, routine, self-care, Foundation for ARID1B Research, communication challenges, Proloquo2Go, picture exchange communication system, ARID1B-related disorder, autism, diagnosis, support, challenges, patience, acceptance, balance, awareness, resources, communication methods, behavioral issues, UK, UStakeawaysRoutine and structure are essential for children with special needs.Parents of children with special needs should prioritize self-care.Connecting with other parents in the special needs community can provide valuable support and resources.Communication challenges can be addressed through various methods, such as assistive communication devices and picture exchange systems. Seeking a diagnosis opens the way for therapies and support for children with special needs.Patience and acceptance are key in raising a child with neurodevelopmental disorders.Finding balance between work life and home life is important for parents.Communication methods like picture pecs and visual aids can help improve understanding and reduce frustration.Behavioral issues can be managed through repetition, clear explanation, and redirection.There is a need for more awareness and resources for children with neurodevelopmental disorders.The support systems for special needs children differ between the UK and the US.summaryClarissa discusses her experience as a parent of a child with ARID1B-related disorder and the challenges they face. She emphasizes the importance of routine and structure for children with special needs and the need for parents to take care of themselves. Clarissa also talks about the Foundation for ARID1B Research (FAR) and their efforts to raise money for research into potential treatments. She highlights the diversity of experiences within the special needs community and the importance of supporting and connecting with other parents. Clarissa shares her son's communication challenges and the various methods they have tried, including Proloquo2Go and picture exchange communication systems. In this conversation, Clarissa discusses her experiences as a parent of a child with ARID1B-related disorder and autism. She shares her journey of seeking a diagnosis, finding support, and navigating the challenges of raising a child with special needs. Clarissa emphasizes the importance of patience, acceptance, and finding balance as a parent. She also highlights the need for more awareness and resources for children with neurodevelopmental disorders. The conversation touches on topics such as communication methods, behavioral issues, and the differences in support systems between the UK and the US.keywordsARID1B-related disorder, special needs, routine, self-care, Foundation for ARID1B Research, communication challenges, Proloquo2Go, picture exchange communication system, ARID1B-related disorder, autism, diagnosis, support, challenges, patience, acceptance, balance, awareness, resources, communication methods, behavioral issues, UK, UStakeawaysRoutine and structure are essential for children with special needs.Parents of children with special needs should prioritize self-care.Connecting with other parents in the special needs community can provide valuable support and resources.Communication challenges can be addressed through various methods, such as assistive communication devices and picture exchange systems. Seeking a diagnosis opens the way for therapies and support for children with special needs.Patience and acceptance are key in raising a child with neurodevelopmental disorders.Finding balance between work life and home life is important for parents.Communication methods like picture pec

This episode is part 2 of my two part interview with Lauren Enders Gonzales, MA, CCC-SLP.  This time we will be diving deeper into AAC; how to use it, what options are available, apps and more. keywordsAAC, augmentative communication, technology, misconceptions, assessments, innovations, AI, speech therapy, communication devices, educationsummaryIn this engaging conversation, Mark and Lauren delve into the world of Augmentative and Alternative Communication (AAC), exploring its definition, importance, and the common misconceptions surrounding it. They discuss the role of technology in AAC, the challenges of assessments, and the latest innovations in apps and devices. The conversation also touches on the future of AAC with the integration of AI, emphasizing the need for personalization and user ownership in communication tools.takeawaysAAC stands for augmentative and alternative communication, which helps individuals communicate beyond natural speech.The primary goal of communication is connection, not just speech production.AAC is often misunderstood as a last resort or a crutch, but it is essential for meaningful communication.Language acquisition requires interaction and experience, not just exposure to language.Technology has revolutionized AAC, making it more accessible through devices like tablets.Assessments for AAC should focus on interest and ease of use, not mastery of skills.There are no prerequisites for using AAC; individuals should be given access to language from the start.AI has the potential to enhance AAC by personalizing communication tools for users.User ownership and customization of AAC devices are crucial for effective communication.Celebrating individual learning differences is essential in the AAC field.titlesDebunking Myths: Understanding AACEmpowering Voices: The Importance of AACSound Bites"AAC stands for augmentative and alternative communication.""The goal of communication is being able to connect.""AAC is not a crutch; it's essential for connection."Chapters00:00Introduction and Light Banter03:36Understanding AAC: Definition and Importance11:50Common Misconceptions About AAC20:07The Role of Technology in AAC28:06Navigating AAC Assessments and Rights33:36Innovations in AAC Apps and Devices55:34The Future of AAC: AI and PersonalizationLauren is a licensed and certified speech-language pathologist (SLP) with 27 years of experience. Working as an SLP and Assistive Technology Consultant in K-12 school programs, she has developed expertise in Assistive Technology and Augmentative and Alternative Communication (AAC) with a focus on creating rich, meaningful, and engaging learning experiences. Lauren also teaches graduate students about Assistive Technology and AAC in her role as adjunct professor at Delaware Valley University in Doylestown, PA.Contact Laura at: [email protected], https://www.linkedin.com/in/lauren-s-enders-gonzales-ma-ccc-slp-3a74429/, [email protected]

In this episode I’m speaking with Dr. Giuliana Conti.  Giuliana is Director of Music Workshop's Education & Equity.  Music Workshop is a nonprofit organization that creates high-quality, culturally responsive music programming for teachers to use in their classrooms and professional development to further their own learning.summaryThe conversation explores the importance of starting kids young in the music world and the belief that anyone can learn to sing or play music at any age. It highlights the power of music in building confidence, connecting with others, and promoting brain plasticity. The conversation also touches on the impact of teachers' beliefs on students with learning disabilities and the need for inclusive music education. The guest shares her personal journey with music and trauma, emphasizing the role of music in emotional regulation and self-expression. The organization, Music Workshop, offers a free curriculum and professional development courses for teachers to integrate music into the classroom and support student well-being. Music Workshop aims to make music education accessible and inclusive for all students, including those with disabilities. They provide free curriculum and professional development courses for teachers to integrate music into the classroom. The program emphasizes the importance of recognizing and accommodating different learning styles and needs, as well as promoting the well-being of both students and teachers. By incorporating diverse music genres and cultures, Music Workshop helps students connect with their own identities and creates a sense of belonging. The impact of the program includes increased engagement, connection with peers, and empowerment for students.keywordsmusic education, starting young, learning disabilities, confidence, brain plasticity, trauma, emotional regulation, self-expression, inclusive education, curriculum, professional development, well-being, music education, accessibility, inclusion, disabilities, diverse music, learning styles, well-being, teacher support, cultural representation, student engagement, empowermenttakeawaysStarting kids young in music can have numerous benefits, including building confidence, promoting brain plasticity, and fostering connections with others.Music can be a powerful tool for emotional regulation and self-expression, particularly for individuals who have experienced trauma or have learning disabilities.Inclusive music education is essential, and teachers should provide opportunities for students to explore diverse genres and cultures of music.Integrating music into the classroom can support student well-being and engagement, and teachers can offer multiple avenues for students to demonstrate their understanding through music.Music Workshop offers a free curriculum and professional development courses to help teachers integrate music into their classrooms and support student well-being. Music Workshop provides free curriculum and professional development courses to make music education accessible and inclusive for all students.The program emphasizes recognizing and accommodating different learning styles and needs, as well as promoting the well-being of both students and teachers.By incorporating diverse music genres and cultures, Music Workshop helps students connect with their own identities and creates a sense of belonging.The impact of the program includes increased engagement, connection with peers, and empowerment for students.titlesThe Power of Starting Kids Young in MusicThe Importance of Inclusive Music Education Empowering Students through Music EducationPromoting Well-being for Students and TeachersSound Bites"I am such a strong proponent of starting kids young in the music world""You can learn to sing well at any point in your life. You can learn to play music at any point in your life.""If you really love it and you want to try it, go for it.""Music education is a field where that is more challenging because instruments tend to be taught to be played a certain way, and that's how it works.""Students just won't shut up about it because they get so excited, they jump out of their chairs, they go home, they tell their parents.""There's nothing more exciting than feeling like you're witnessing an epiphany where they're coming out of their shell, they're really owning their own identity."Chapters00:00Starting Kids Young in Music02:30The Power of Music at Any Age04:32Inclusive Music Education08:08Music as a Tool for Emotional Regulation and Self-Expression11:48Personal Journey with Music and Trauma15:36The Impact of Music on Well-Being19:11Music Workshop: Empowering Teachers and Students28:54Music Workshop's Free Curriculum and Professional Development35:16Integrating Music into the Classroom39:12Making Music Education Accessible and Inclusive40:39Promoting Well-being for Students and Teachers46:13Recognizing and Accommodating Different Learning Styles52:45Connecting Students with Dive

*TRIGGER WARNING: This episode can be raw and descriptive at times. For anyone who might be upset by conversations about the specifics of breast surgery and reconstruction I just want you to be aware. Kayla expresses herself in a very frank, positive and humorous way so hopefully you will be able to receive her story as a celebration of the human spirit under very difficult conditions and feel empowered. In this episode I’ll be speaking to Kayla Connick. Kayla is a Music Therapist who I had the pleasure of interviewing for my 11th episode.  In recent years, Kayla discovered that she carried the BRCA 1 gene mutation that can lead to breast, ovarian and other cancers.  Today Kayla generously, and bravely, shares her experience from discovery to pre and post prophylactic, or risk reducing surgery to save her life.  And while her battle continues, she agreed to this interview in hopes that her story might help others.summaryKayla shares her experience of discovering that she carries a pathogenic mutation on the BRCA1 gene, which puts her at a high risk for breast and ovarian cancer. She found out through a consumer genetic test and confirmed the results with a genetic counselor. Kayla discusses the initial shock and the considerations she had to make regarding preventive surgeries and fertility preservation. She also reflects on how the news affected her relationships and how she found support from her current partner. Despite the challenges, Kayla feels empowered by the knowledge and sees it as an opportunity to take control of her health. Kayla discusses the importance of being proactive and advocating for oneself when it comes to prevention and early detection of cancer. She emphasizes the need to find a good healthcare team and genetic counselor who can guide and support individuals through the process. Kayla also shares her experience with the reconstructive surgery after her mastectomy, highlighting the importance of finding a plastic surgeon who is ethical and cares about the patient's health. She encourages individuals to do their research and make informed decisions about their treatment options. In this conversation, Kayla discusses her experience with breast cancer and the decisions she made regarding surgery and risk reduction. She talks about the emotional and physical challenges she faced, as well as the importance of having a strong support system. Kayla also emphasizes the need for improved screening methods and proactive self-checks. She shares her journey of body acceptance and the impact of the surgeries on her body image. Kayla concludes by expressing her desire to provide music therapy sessions for BRCA women and encourages others to cut toxic people out of their lives.keywordsBRCA1 gene, genetic testing, pathogenic mutation, high risk, breast cancer, ovarian cancer, preventive surgeries, fertility preservation, relationships, empowerment, cancer prevention, early detection, advocacy, healthcare team, genetic counselor, reconstructive surgery, mastectomy, plastic surgeon, research, informed decisions, breast cancer, surgery, risk reduction, support system, screening methods, self-checks, body image, music therapy, toxic relationshipstakeawaysGenetic testing can provide valuable information about an individual's risk for certain diseases, such as cancer.Discovering a pathogenic mutation on the BRCA1 gene can be shocking and overwhelming, but it also presents an opportunity to take proactive measures.The decision to undergo preventive surgeries, such as a double mastectomy and hysterectomy, is deeply personal and requires careful consideration.Support from loved ones and finding a partner who accepts and understands the situation can be crucial in navigating the challenges of a genetic predisposition to cancer.Having knowledge about one's health can provide a sense of control and empowerment in the face of a potentially devastating diagnosis. Be proactive and advocate for yourself in cancer prevention and early detectionFind a good healthcare team and genetic counselor who can guide and support youDo your research and make informed decisions about treatment optionsChoose a plastic surgeon who is ethical and cares about your health Having a strong support system is crucial when facing a cancer diagnosis and undergoing surgeries.Improved screening methods and proactive self-checks are necessary for early detection of breast and ovarian cancer.Body acceptance and self-image can be challenging after undergoing surgeries, but having a choice in the process can lead to a more positive outcome.Cutting toxic people out of your life is important for emotional well-being and recovery.Music therapy can be a valuable tool for healing and coping with the emotional challenges of cancer.titlesEmpowerment Through Knowledge: Taking Control of HealthNavigating Preventive Surgeries and Fertility Preservation Proactive Advocacy for Cancer PreventionThe Importance of a Supportive Healthcare Team He

In this episode I’ll be taking a look at the impressive level of disability awareness and the efforts of the Paris Olympic Committee to improve accessibility at this year’s games.

In this episode I’ll be speaking about the rise of inclusion, the importance of its role in educating all children and my reflections on working in a private, state-supported school intended to meet the needs of the students with various disabilities. 

In this episode I’ll be speaking with Para-Olympian Swimmer, Taylor Winnett.  Taylor was America’s most decorated athlete at the 2023 Parapan American Games after medaling in 6 individual and 1 relay events in Paralympic Swimming, the Parapan American Games Record Holder in the Women’s S10 100m Butterfly, the American Record holder in the Women’s S10 50m Backstroke, and a National Team Member for U.S. Paralympics Swimming. She began swimming at age 4 and after acquiring a spinal injury and diagnosis of Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome she began paraswimming in 2019 as a S10/SM10/SB9. She is a Paris Paralympian and competes in 100m Butterfly, 100m Backstroke, and 400m Freestyle. She is the middle child with two sisters and wife to Jeric Winnett.summaryIn this conversation, Mark and Taylor discuss various topics related to disability, athleticism, and advocacy. Taylor shares her experiences as a Paralympic swimmer and her journey with Ehlers-Danlos syndrome. She talks about the mental game of being an elite athlete and the internal dialogue that drives her. They also discuss accessibility issues and the importance of disability advocacy. Taylor emphasizes the need for more representation and understanding of disabilities in society. The conversation touches on topics such as adoption, travel, and the challenges of living with a disability. Taylor discusses her experience with hiking and the physical challenges she faces due to her disability. She talks about the support system she had after her injury and how her family struggled to understand and cope with her disabilities. Taylor also shares her pain management process and the different methods she has tried. She talks about the classification system in Paralympic swimming and the different disabilities that compete in the same races. Taylor expresses her goals for the upcoming Paralympics and her desire to bring home a medal. She also discusses the team aspect of the competition and the camaraderie among the athletes.keywordsdisability, athleticism, Paralympic sports, Ehlers-Danlos syndrome, mental game, accessibility, disability advocacy, representation, adoption, travel, hiking, physical challenges, disability, support system, pain management, classification system, Paralympic swimming, goals, Paralympics, team aspecttakeawaysBeing an elite athlete requires mental strength and discipline.Accessibility is still a major issue in many places, and more needs to be done to accommodate people with disabilities.Representation and understanding of disabilities in society are crucial for creating a more inclusive and empathetic world.Living with a disability comes with unique challenges, but it is possible to find acceptance and lead a fulfilling life.Adoption and fostering can be wonderful options for building a family, regardless of disability. Hiking can be physically challenging for individuals with disabilities, but with determination and support, it is possible to overcome obstacles.Having a strong support system is crucial for individuals with disabilities to navigate the challenges they face.Pain management for individuals with disabilities often involves a combination of medication, therapy, and alternative treatments.Paralympic swimming has a classification system that allows individuals with different disabilities to compete in the same races.The team aspect of Paralympic competitions provides a sense of camaraderie and support among the athletes.titlesAddressing Accessibility IssuesThe Mental Game of an Elite Athlete The Importance of a Strong Support SystemGoals and Expectations for the ParalympicsSound Bites"I think at the level that I'm at with how much I'm training, a lot of it can be like a mental game.""I've heard before that disability is the only minority group anyone can become a part of at any time.""Growing up, I didn't have many people in my life who were disabled, especially adults.""It kind of makes physically harder but like I'm faster so yeah""I want to go back. Not all the way, like maybe a mile or a mile and a half.""You'll make it work. You'll find a way."Chapters00:00Introduction and Appreciation01:05Starting the Conversation and Background02:54Discovering Triathlon and Dealing with Injuries04:44The Mental Game of an Elite Athlete07:24Overcoming Challenges and Self-Restraint11:37Acceptance and Dealing with Limitations15:18Disability Advocacy and Representation20:48Addressing Accessibility Issues23:17Experiences with Disability in Other Countries24:50Navigating Accessibility Challenges25:28Preparing for Future Challenges26:33Overcoming Physical Challenges in Hiking with a Disability29:43The Importance of a Strong Support System32:38Managing Pain with a Combination of Methods49:48The Classification System in Paralympic Swimming54:06The Team Aspect of Paralympic CompetitionsInstagram: taylor_winnett

In this episode I’ll be speaking about AAC (Alternative and Augmentative Communication) with Lauren Enders Gonzales, MA, CCC-SLP.  Lauren is a licensed and certified speech-language pathologist (SLP) with 27 years of experience. Working as an SLP and Assistive Technology Consultant in K-12 school programs, she has developed expertise in Assistive Technology and Augmentative and Alternative Communication (AAC) with a focus on creating rich, meaningful, and engaging learning experiences. Lauren also teaches graduate students about Assistive Technology and AAC in her role as adjunct professor at Delaware Valley University in Doylestown, PA.Known for her user-friendly online and print resources, eye-catching visual supports, and interactive presentation style, Lauren is a sought-after speaker at local, national, and international conferences and events. Lauren enjoys collaborating with other professionals, AAC companies, and app developers to create more accessible and customizable AAC systems and evidence-based clinical and educational practices.Sign up to receive resources from Laura: https://www.theleap.co/creator/engagingaacslp/Contact Laura at: [email protected]

In this episode I’ll be speaking about sensory friendly shopping, how to find establishments near you and what you can do to influence businesses to become sensory friendly.https://specialedrising.com/

In this episode I’ll be speaking with Andrew Arboe.  Andrew is a self-advocate with a professional work background consisting of public school, private school, nonprofits, and online programs. Andrew is also certified through the International Board of Credentialing and Continuing Education Standards’ Autism Certification since August 14th, 2023. His current workplaces include FOCUS Center for Autism, Anderson Center for Autism, and the Children Hospital of Philadelphia.  In addition, Andrew is a public speaker known for presenting throughout New England about autism and his personal experiences. Andrew graduated from Manchester Community College with an associate degree as a Disability Specialist and is attending Charter Oak State College to obtain his bachelor’s degree in psychology by December 2024.  https://andrewarboe.weebly.com/https://www.linkedin.com/in/andrew-arboe/Instagram: andrewarboespeaker5https://www.facebook.com/profile.php?id=100009110943288Life Animated: https://www.youtube.com/watch?time_continue=2910&v=PlyfKk8_HxA