Living With EDS, POTS & a Medical System That Can’t Keep Up
When Gwen first went to the doctor for stomach pain, she didn’t expect to leave with a diagnosis of Ehlers-Danlos Syndrome—let alone a growing list of conditions including POTS and Mast Cell Activation Syndrome. In this episode, the gang explore what it’s like to get too many answers too quickly, how chronic illness reshapes identity, and why the system often fails patients with complex needs. From medical gaslighting to becoming a voice for disability advocacy, Gwen’s story is as sharp as it is eye-opening. It’s a reminder that “invisible” doesn’t mean imaginary—and that the fight for proper care can be just as exhausting as the illness itself.Follow Sickboy on Instagram, TikTok and Discord!
Sickboy · CBC
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Show Notes
When Gwen first went to the doctor for stomach pain, she didn’t expect to leave with a diagnosis of Ehlers-Danlos Syndrome—let alone a growing list of conditions including POTS and Mast Cell Activation Syndrome. In this episode, the gang explore what it’s like to get too many answers too quickly, how chronic illness reshapes identity, and why the system often fails patients with complex needs. From medical gaslighting to becoming a voice for disability advocacy, Gwen’s story is as sharp as it is eye-opening. It’s a reminder that “invisible” doesn’t mean imaginary—and that the fight for proper care can be just as exhausting as the illness itself.