If You Nap, You Die: Congenital Central Hypoventilation Syndrome

Join the fellas as they dive into an extraordinary conversation with the fabulous Shannon. Shannon shares her experience in living with Congenital Central Hypoventilation Syndrome, a disorder that affects normal breathing. People with this disorder take shallow breaths (hypoventilate), especially during sleep, resulting in a shortage of oxygen and a buildup of carbon dioxide in the blood. Basically, if you nap, you die. They explore the wild world of technology transitions, from going trach to vent to becoming a full-blown bionic wonder. Shannon thrives independently and manages to conquer parenting challenges while raising a kid with the same diagnosis. Hold your breath—literally—as they navigate the comorbidities of CCHS and the complexities of pediatric care. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN

Sickboy · CBC