Episode 298
Fighting IFAP Syndrome with love and Capoeira
Sapo and Lorena are the loving parents of little Nauê. Nauê was born with Ichthyosis follicularis, alopecia, and photophobia AKA IFAP syndrome. An extremely rare condition with a shortened life expectancy. Caring for a chronically ill child can be draining. But Sapo and Lorena have found a way of coping with the stress and connecting to their roots. Capoeira, a playful mix of martial arts and dance from their homeland, which they have immersed their son into to encourage play, love and courage.
Sickboy · CBC
June 28, 202154m 45sExplicit
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Show Notes
Sapo and Lorena are the loving parents of little Nauê. Nauê was born with Ichthyosis follicularis, alopecia, and photophobia AKA IFAP syndrome. An extremely rare condition with a shortened life expectancy. Caring for a chronically ill child can be draining. But Sapo and Lorena have found a way of coping with the stress and connecting to their roots. Capoeira, a playful mix of martial arts and dance from their homeland, which they have immersed their son into to encourage play, love and courage.