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A Bloody Freaking Mystery: Immune Thrombocytopenia (ITP)

A Bloody Freaking Mystery: Immune Thrombocytopenia (ITP)

This week the boys chat with their guest, James, about living with Immune Thrombocytopenia (ITP). James shares his journey of having a WILD rare disease with hidden symptoms. A case of feeling perfectly fine, yet being on medication that makes you feel worse. Black dots in the mouth? Google might say it’ll clear up on it’s own. But sometimes it really really doesn’t. James recounts the jaw-dropping reaction of doctors and nurses to his rapidly dropping platelet count. A not so fun adventure of the uncertainty of constant blood tests and the emotional rollercoaster they bring. James's story reveals the unpredictability of ITP, leading to two intense emergency room visits and a life lived in fear of the next clinic summons. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN

Sickboy · CBC

October 16, 20231h 0mExplicit

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Show Notes

This week the boys chat with their guest, James, about living with Immune Thrombocytopenia (ITP). James shares his journey of having a WILD rare disease with hidden symptoms. A case of feeling perfectly fine, yet being on medication that makes you feel worse. Black dots in the mouth? Google might say it’ll clear up on it’s own. But sometimes it really really doesn’t. James recounts the jaw-dropping reaction of doctors and nurses to his rapidly dropping platelet count. A not so fun adventure of the uncertainty of constant blood tests and the emotional rollercoaster they bring. James's story reveals the unpredictability of ITP, leading to two intense emergency room visits and a life lived in fear of the next clinic summons. Join the post-episode conversation over on Discord! https://discord.gg/expeUDN
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