Seizure Salad (~Fustercluck Epilepticus~)

~Solo Epileptico I Go!

JoJoe reflects on the inner demons and struggles he has battled throughout his life, and opens up about the darkest days he has had to face. (*Warning! This episode is intended for mature audiences, as it deals with serious subject matter such as depression, PTSD, suicide, etc.; & also contains 'foul' language.)

JoJoe reflects on the inner demons and struggles he has battled throughout his life, and opens up about the darkest days he has had to face. (*Warning! This episode is intended for mature audiences, as it deals with serious subject matter such as depression, PTSD, suicide, etc.; & also contains 'foul' language.)

JoJoe reflects on the inner demons and struggles he has battled throughout his life, and opens up about the darkest days he has had to face. (*Warning! This episode is intended for mature audiences, as it deals with serious subject matter such as depression, PTSD, suicide, etc.; & also contains 'foul' language.)

JoJoe reflects on the inner demons and struggles he has battled throughout his life, and opens up about the darkest days he has had to face. (*Warning! This episode is intended for mature audiences, as it deals with serious subject matter such as depression, PTSD, suicide, etc.; & also contains 'foul' language.)

JoJoe reflects on the inner demons and struggles he has battled throughout his life, and opens up about the darkest days he has had to face. (*Warning! This episode is intended for mature audiences, as it deals with serious subject matter such as depression, PTSD, suicide, etc.; & also contains 'foul' language.)

~There is no 'secret sauce'; just tools. ~It's hard, yet you've got to stand up: be a good model & pay it forward. Spread understanding through action & example. ~What do YOU do in 'the moment' to reduce stress? and most importantly... ~How do you show Gratitude? (I am grateful for lending your time and an ear; thank you!)

~To move forward, our society might just need to get over ourselves. ~Don't compare this Christmas to every other; NOT healthy. ~Learning to savor humble pie. ~Why? What's the point? (aka- What's my purpose?)

~Unusual holiday, eh? ~Emotional & mental fallout. ~The need for connections / for purpose. ~What are your diversionary tactics? ~Move Forward / Reach Out.

-We can do more than we know, just gotta learn how. -Mind over matter is hard when your mind IS the matter. -Our epilepsy goes WAY beyond the science. -Helping each other is the best therapy.

-Life is likely much longer than the situation we're in. -Grasping for hope, for control; for anything. -Don't discount those who've been there for you.

-Building the support / building the tools -The Medication Honeymoon Syndrome -Fuel for the fire. -Regaining some sense of control.

-Losing predictability & stability. Stuff to think about. -Limitations of neurologists & scientists in general... -Ya really don't want everyone to know you have epilepsy (my naïve ass is learning the hard way) -Mental health hygiene & nourishment menu

-Mason & I continue to educate Mark on Colorado colloquialisms. -Mason's native american roots. -Adjusting might just be a lifelong thing. (Luckily I'm good at improv!)

-Fatherhood -Colorado connections -Benefits of having an older brother

-Mason & I talk about outdoor fun, and don't give Mark much room to talk at all. -Finally we let Mark in on the conversation, as it shifts toward parenthood; which is way outside of Mason's wheelhouse!

-They may not get it, yet they do want to help. -No control; how to get a taste of it back. (Fuel for the fire...) -Peer support really does help!

-Best case scenario moving forward? ....Damn good question!

-Keppra Lite -More of the same Pharma-coaster -Sometimes you gotta be your best advocate -Put yourself in the best space for healing

~Coming to terms & learning to let go. ~Who's gonna pick you back up? (hint: look in the mirror) ~False feelings (is it the drugs, the condition, or....?) ~Honest feedback.

JoJo & I catch up on the med crap in part 1...

~Seizing Life coach & licensed therapist Mark DeFee introduces B-Side & Mason to each other. ~Mason shows yet again that the younger generations are more attuned than given credit for!

Join the Epilepsy Foundation of Colorado in a week-long virtual symposium on epilepsy and how it affects our lives! Each session starts at 5:30pm, Mountain Time. Check out their website for all the information and to register for various presentations! I'll be attending a few of them, and hope to 'see' you in some of them! https://www.epilepsycolorado.org/

Back from being evacuated from the Cameron Peak Fire in Colorado, and keeping stuff packed for more adventures! ~On the road again. ~F*ck these drugs.

Help Team Seizure Salad-Fustercluck raise money for the Epilepsy Foundation of Colorado! https://runsignup.com/seizuresalad

~ Wrapping up a wonderfully random conversation with two great people. ~ Vulnerability is strength. ~ Brainstorming future side-series.

~ Accept when your vulnerable, guys. Drop the toxic masculinity bullshit! ~ Time & technology is starting to change the old paradigm. ~ Being honest with others or being honest with yourself? Which do you think is more difficult?

Quick update on Micah's meeting with his new specialist, and then shameless promotion to raise funds for Team Seizure Salad in the 2020 Walk to End Epilepsy this Sunday, Oct 4th! Seriously, though; since I can't be there in person, Seizure Salad will be live streaming during the event and talk about all things neurological! Plus a whole bunch of stuff that isn't technically, yet still boggles the mind... Join us this Sunday! Help us help others! https://runsignup.com/seizuresalad

~ Looking for answers... Do I really want to know them? ~ Working through it best way possible. Protecting Your Energy! ~ Keep it open with your support crew. They can't help unless you are!

~ Eli needs a microphone... ~ The seizures that took Eli to Montana. ~ Same specialist, different experience: Is it the mindset of the patient, or the unique particularity of one's condition?

~ JoJo joins the party! ~ Continuing the idea of community homes for people with seizure disorder. ~ Finding roommates is hard. Gets harder with epilepsy.

~Mischievous vs Malicious. ~Psychedelics. ~Mini-communities for epileptics? It would help in our need for as much independence as possible. Hmmm...

~Mountain Town Partying... Epileptics can't go to 10 The whole town knows about it the next day ~B-Side shares stories of his trouble with the law back in his younger days. Nothing malicious I assure you! ;-)

~Eli & B-Side talk about how our epilepsy effects our family. ~Touching on challenges of independent living with our condition.

~Laws can change, yet if minds don't nothing will!~ BLACK LIVES MATTER! Militarized police forces?!?! What The F*ck?!? ...can you say Authoritarian State?

~You need a break, at least once a week. (Seriously). ~The 60's....ah the memories! For white people... ~Good cop / bad cop is not the f*ing point. The problem lies within the system.

I have never been delighted to have a seizure until now!...

~More on political disillusionment. ~Frank Zappa saw the writing on the wall. ~Jerry Garcia's "success paradox". https://seizuresalad.org/

B-Side steps out of character to remind a young friend that his vote is as important or more so as his voice.... Don't be the one who rallied with those affected, yet chooses to do nothing come November! If the young generation turn out to vote like they turned out to protest injustice, we might just make steps toward change! VOTE!

~Random topics

B-Side sits down with certified counselor & coach Mark DeFee. http://www.seizinglifecoaching.com/ [email protected] 303-335-0571 Part 5: -Wrapping up an insightful & inspiring conversation. -Final thoughts & shameless plugs.

B-Side sits down with certified counselor & coach Mark DeFee. http://www.seizinglifecoaching.com/ [email protected] 303-335-0571 Part 4: -Mark details his 'Seizing Life Coaching Program'. (Employers!, Look into this!) -The Seizing Life program is also a social support platform for epileptics! Let's support each other!

B-Side sits down with certified counselor & coach Mark DeFee. http://www.seizinglifecoaching.com/ [email protected] 303-335-0571 Part 3: -The rest of Mark's backstory; Graduate school, and how Mark's proposal for a research class changed his life (again). -Mark's current work, including his involvement with the Epilepsy Foundation of Colorado.

B-Side sits down with certified counselor & coach Mark DeFee. http://www.seizinglifecoaching.com/ [email protected] 303-335-0571 Part 2: -Backstory; more Texas football!....how it taught him self therapy, the importance of good friends (read: support network!). -How self-therapy grew into helping others...

B-Side sits down with certified counselor & coach Mark DeFee. http://www.seizinglifecoaching.com/ [email protected] 303-335-0571 Part 1: Backstory; Texas football, baby!!!

"He who has hope has everything." -Buddha

~Examine your beliefs. ~Why adhere to dogma? ~Moral battlefields

~America- you are considered the "melting pot of the world". Start acting like it! -We need to get used to constant change, and fast! -FACT CHECK!!! -And of course we're dealing with more police brutality...sigh. B-Side shares his recollection of the live video of the Rodney King beating. & I mean beating.... I'd riot too, dammit!

Epilepsy Foundation of Colorado in the house! Wendy, their Community Outreach Manager, talks about how we all can be more involved & proactive. https://www.epilepsycolorado.org/

~2-party politics suck. ~Change starts at the local level. ~Third party voting. ~America; still proud, especially of the people speaking out. We got this.