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Rare Disease, Big Impact with Matt Wilsey
Episode 45

Rare Disease, Big Impact with Matt Wilsey

Matt Wilsey, cofounder and CEO of Grace Science, joins Jorge Conde, general partner of a16z Bio + Health.

Raising Health · Matt Wilsey, Olivia Webb, Jorge Conde, Kris Tatiossian

December 10, 202423m 8s

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Show Notes

In this episode, Matt Wilsey joins Jorge Conde to share the profound personal story of his daughter Grace's diagnosis with NGLY1 deficiency and how it catalyzed his journey to founding a biotech startup, Grace Science, aimed at developing a cure for his daughter’s condition.

Matt emphasizes the importance of strategic partnerships, like his collaboration with Nobel laureate Carolyn Bertozzi, and sheds light on the search for gene therapies for rare diseases. 

Check out our previous episode with Carolyn Bertozzi here.


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Topics

ngly1rare diseasegrace science