Shane's Act: New Hope for EB Families
Portland Maine News Today | 2 Min News | The Daily News Now! · The Daily News Now!
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Show Notes
Shane DiGiovanna, a man from Ohio with epidermolysis bullosa, inspires new federal legislation. His story of resilience, advocacy, and friendship with Representative Greg Landsman led to the introduction of the Shane DiGiovanna Act. This bill aims to study Medicare coverage for EB bandages, potentially reducing hospital stays and long-term costs, as DiGiovanna faces terminal cancer.
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