Community Spotlight: PC Project - Episode 2
PeDRA Pearls · Pediatric Dermatology Research Alliance
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Show Notes
Pachyonychia Congenita is a rare and extremely painful dermatologic disease. For many patients, a clear diagnosis isn’t even made until adulthood. PC Project aims to change that with a patient registry and free genetic testing. Patients and families come to PC Project for support from a community that knows and understands them, but also to advance the science. Due to the success of the international registry, data provided by patients is fueling research at an accelerated pace. You can learn more about PC Project and ways to get involved by visiting www.pachyonychia.org.