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Show Notes
June 19th is World Sickle Cell Awareness Day. This painful rare disease affects an estimated 100,000 people in the United States. It’s more prevalent among people of African ancestry. About 1 in 13 Black or African American babies are born with sickle cell trait, which could be passed to their children.
What promise do new cell-based gene therapies hold?
We speak with Cimone Vaughan, a 12-year-old living with sickle cell disease, and her mother, Nikia Vaughan, executive director of the Maryland Sickle Cell Disease Association.
Then, Dr. Jason Fixler, a doctor of pediatric hematology oncology at Lifebridge Health breaks down misconceptions about the disease.
Links:
CDC Sickle Cell Disease
Sickle Cell Improvement in the Northeast Region through education project
FDA approves two sickle cell therapies, including first CRISPR medicine
Baltimore is a city heavily impacted by Sickle Cell Disease as awareness day approaches
Do you have a question or comment about a show or a story idea to pitch? Contact On the Record at: Senior Supervising Producer, Maureen Harvie she/her/hers [email protected] 410-235-1903 Senior Producer, Melissa Gerr she/her/hers [email protected] 410-235-1157 Producer Sam Bermas-Dawes he/him/his [email protected] 410-235-1472