Parent-Led Science: Ana Rita Moreira’s Fight for Rare Disease Research
Mission Matters Innovation with Adam Torres
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Show Notes
In this Mission Matters Milken Conference Series episode, Adam Torres interviews Ana Rita Moreira, Executive Director of v-ATPase Alliance. Ana Rita shares how a rare diagnosis for her son led her to found a nonprofit that collects critical data to drive research for ultra-rare genetic conditions. Through grassroots collaboration and strategic advocacy, her organization is filling the scientific gap where few others will.
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